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“If We Didn't Have RMH This Surgery Wouldn't Be Possible”

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“If We Didn't Have RMH This Surgery Wouldn't Be Possible” SPRING 2016 “If we didn’t have RMH this surgery wouldn’t be possible” The Whiddons are no strangers to the medical world. As most lives begin within hospital walls, the trip home usually follows within the first few days of life. Unfortunately for Laneah and her family this was not the case. A hospital was Laneah’s home for her first 3 months of life. Within her first year, Laneah was trached and vented, suffered from RSV and a lung collapse along with many other challenges. She was diagnosed with Global Hypertonia, a disorder similar to Muscular Dystrophy, which consists of abnormal increases in muscle tension and a reduced ability of a muscle to stretch. The struggle to find stability for Laneah took many years for the Whiddon family. During Laneah’s first 6 years of life, the family drove over an hour each way so she could receive ongoing treatment. Mom, Dana, recalls many “uncomfortable nights” and “long drives” she and her husband, Bobbie, endured so they could be close to their daughter’s side. Laneah had a stable stretch of years where she required no hospitalization, thankfully, but still had a lot of outpatient appointments. Then, at a check-up a year ago, Dana received news that Laneah would require a series of invasive surgeries. Feeling as though she needed a second opinion, Dana began her research and that’s when she came across Dr. Freeman Miller, with Nemours/Alfred I. duPont Hospital for Children. Dr. Miller had a different approach, one that Dana and her family felt more comfortable with. Within seconds of meeting Dr. Miller, Dana knew she was in the right place for Laneah. In September of 2015, the Whiddon family packed their bags and headed to their “home away from home” at the Ronald McDonald House of Delaware not knowing what to expect. Although anxious and overwhelmed with the unknown that come with pediatric surgery, the positive impact and love was felt almost immediately as Dana began her check-in process at the House. It’s more than words, it’s a feeling one gets when they experience what the House has to offer. It’s so much more than the “comfortable beds and the quiet spaces to rest”. The House allowed Dana to “reset” so she could give her daughter 100% of her energy day in and day out. Dana reflects with tears of joy in her eyes, “If we didn’t have RMH this surgery wouldn’t be possible”. Dana stayed at the House, primarily, while her husband Bobbie spent most his time at their Maryland home, in an effort not to disrupt Laneah’s older brother, James’ schedule. When time allowed dad and brother to visit the House, James found respite in the House’s Teen Room where he was able to enjoy the latest gaming systems. The House was “such a blessing” in so many ways. As Dana checked out, Laneah thanked the Ronald McDonald House staff and volunteers for taking such good care of her family by offering a huge smile. Chair Mary E. Bowler Chair-Elect Mary E. Bowler Paul D. Kempinski Chair, Board of Directors Vice Presidents Catherine L. Migliocco Michelle A. Pena Dale Perkel Paul B. Rice Michael D. Waite Secretary Allison E. Micich Dear Friends, Treasurer During 2016, the Ronald McDonald House of Delaware will be celebrating 25 years of keeping Perry S. Beberman families close. Since the House opened its doors on June 7, 1991, we have welcomed nearly 42,000 Board of Directors families. Your generous support has enabled us to provide them with a “home away from home” Peter A. Bailey, PhD – and that has made a world of difference. I invite you to join us throughout this year as we reflect on our history, celebrate our present, and envision our future. Mark your calendars for two very Mary Jane M. Cocozzoli special events – a family-oriented party at the House (complete with Ronald McDonald, carnival Robert A. Cocozzoli games and birthday cake) on Sunday, June 5 and a gala dinner at the Hotel du Pont on Saturday, Joel E. Dukart October 22. I hope to see you at one or both of these celebrations. We also have the opportunity William J. Farrell to honor or memorialize friends and family by purchasing 25th Anniversary inscribed bricks for Gary W. Ferguson our new walkway. Details are available in this newsletter. J. Phillip Hough Mark J. Lorenz Despite all the House has achieved over the past quarter century, we are not content to rest on Rachel M. Macha our laurels. In December 2015, we reopened our completely renovated “original” guest rooms. William G. Mackenzie, M.D. The new furnishings and fixtures provide an enhanced level of comfort to our guests – and the Kenneth C. Manne accommodations are getting rave reviews. We could not have executed this project without Albert J. McCrery IV the tremendous support of our financial and in-kind donors, and we are grateful for their Robert R. Nelson, PhD commitment to our House. Special appreciation goes to Marriott Corporation, interior designer Raymond Parisi, Jr. Marichu Valencia, and EJH Construction, Inc. Christine D. Randolph Spring is always a busy time at the Ronald McDonald House of Delaware, and this year is no Lance Sabouni exception. Here are just a few of our upcoming programs and activities: Jorge Salvat Todd R. Seelhorst • The seventh annual Change the Luck of a Child CBS3/CW Telethon (benefitting Ronald Craig R. Shor McDonald House Charities of the Philadelphia Region) is scheduled for Tuesday, March 22 from 6:00 a.m. to 8:00 p.m. The telethon is a significant source of operating funds for our Bob Trostel House. Tune in to see special highlights featuring our families or to make a pledge. Morton Richard Kimmel, Esq. Counsel to the Board • Our furry stuffed friend, Blarney the dog, has returned. Purchase one for the child in your life – or gift one to a child undergoing treatment at a local hospital. Visit rmhde.org for more Advisory Council information. R.R.M. Carpenter III, Chairman • Consider organizing a team for the 27th Annual 5K Run/Walk for the House on Saturday, Joseph Carbonell April 16. Gather your friends, teammates, families and co-workers to spend a spring morning Nick Cerchio on the beautiful Wilmington waterfront, then party together at Frawley Stadium at a post- Chrysa Cohen race celebration. All for a great cause! Joseph G. DiPinto I encourage you to visit our refreshed and enhanced website (rmhde.org). to learn more about Stanley M. Diver House events and to follow special stories celebrating our milestone birthday. Les Dukart Tom Ferry In May, my term as Chair draws to a close. I am extraordinarily grateful for the opportunity and Richard J. Gessner, Jr. for all I have learned from this unique organization and its amazing people over the past two Robert V.A. Harra, Jr. years. Paul Kempinski, President, Nemours/Alfred I. duPont Hospital for Children and one of our Shaila Kapur very talented board members, will be assuming the reins. I know Paul will be an outstanding Rachel M. Macha leader. I will remain committed to the House, serving out my board term and stepping up to new Stephen Nelson opportunities to serve. Dr. David Pensak Thank you for your engagement over the last twenty five years. I hope you will be with us for the Roy Proujansky, M.D. next twenty five! Diane H. Remy Louis Rosenberg Richard D. Rowland Deborah J. Tuttle, M. D. Michael D. Waite Anne J. Wright Staff President and CEO Guest Services Pamela W. Cornforth Coordinators Operations Director Vanessa Hilton Our Mission Meg Aument Caroline Keesee Development Director Special Events Manager To provide nurturing and supportive Barbara Loeslein Dawn Brooks environments and services to directly improve Southern Delaware Development Assistant the health and well being of children and to Advancement Officer & Pam Jones bring comfort to their families. Grant Writer Community & Family Laura Marek Room Coordinator Social Worker Erin Ryan Our Vision Megan McCray Executive Assistant Supporting families to reach the hope of tomorrow Resident Manager Carol Sayles from the challenges of today. Emily Delaplane Maintenance Assistant Volunteer Manager Fran Patone Sara Funaiock RENOVATION UPDATE In December, the 70 day renovation project to refurbish the 27 original wing guest rooms was completed. The guest rooms have new windows, bathrooms, furniture, televisions and furnishings. Thank you to our donors for helping make this possible in order to better provide the comforts of a “home away from home” for the families who rely on us. Thank you to our sweet dream donors: VISIONARIES Delaware Curative Workshop LEGENDS Inn at Wilmington The Laffey-McHugh Foundation Estate of Nancy du Pont Cooch Kimball Hospitality – Deaderia Morris Marmot Foundation Estate of Ronald F. Schocie Moeckel Carbonell Associates, Inc. Timkin Foundation of Canton, Ohio Welfare Foundation TheMIGroup – Scott Sheldon DREAMERS LUMINARIES P/Kaufmann – Neal Ramsey Meg and Dave Aument Chichester du Pont Foundation Marriott International – Dave Lippert Mary Bowler and Ken Jones Estate of William Farra, Jr. Marichu Valencia Tracey and Perry Beberman Anthony & Catherine Fusco Charitable Tempur-Pedic Pam and Doug Cornforth Foundation StARGAZERS Peggy Hart Ronald McDonald House Charities® AstraZeneca Pharmaceuticals Delaware Community Foundation Upcoming Events Telethon On Tuesday March 22, CBS 3 and CW Philly will be partnering with Ronald McDonald House Charities of the Philadelphia Region to host the 7th Annual “Change the Luck of A Child” Telethon. The Telethon will air from 6:00 am to 8:00 pm. We are in need of our faithful friends to watch that day, tell their friends, and call to make a donation to support RMHC of the Philadelphia Region, who provides the Ronald McDonald House of Delaware with an operating grant.
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