Elimination Leprosy
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WHO GOODWILL AMBASSADOR’S NEWSLETTER June 2007 • Number 26 FOR THE • Leprosy is curable Elimination • Free treatment is available OF Leprosy • Social discrimination has no place Two area residents who came to meet Yohei Sasakawa when he visited a district hospital in Moramanga, Madagascar, in May. MESSAGE CONTENTS Earning Trust and Respect Last month I visited Madagascar to congratulate it for tackling other issues. Message 1 on eliminating leprosy as a public health problem Starting with the president, all the people I met Award and to seek its ongoing commitment to tackling the in Madagascar on my visit expressed their joy and 2006 International disease. Over a year earlier, India and Angola also satisfaction. The speaker of Madagascar’s Senate Gandhi Award 2 achieved elimination. That leaves just five countries told me that it was the first time in the history of Meetings with that have yet to attain the WHO goal: Brazil, Nepal, his nation that it had been internationally Ministers Tanzania, Mozambique and the DR Congo. recognized for solving a problem and had someone ‘Good progress is India, Angola and Madagascar were all at one come specially to congratulate it. being made’ 3 time countries for which elimination seemed an It is my impression that the five countries yet to impossible dream. But thanks to the dedicated achieve elimination are steadily moving in the right Column 4 efforts of everyone from political leaders to health direction. In Mozambique, which I visited after Breaking down barriers workers in the field, these countries were able to Madagascar, eliminating leprosy is now a national Human Story pass this milestone—and more quickly than anyone goal designated by the president and by the Baba Amte: dared hope. Cabinet. I would like to urge all the remaining Man with a mission 5 Today leprosy is a relatively small problem countries to treat this as a national goal. Ambassador’s Journal alongside the many public health challenges the But achieving leprosy elimination is not just India, Madagascar, world faces. But accomplishing elimination based about reaching a target; and it is not an end in itself. Mozambique 6 on an internationally recognized numerical target For countries that have achieved elimination, and News after surmounting many difficulties is no small those still striving for it, the tasks remain the same: Sasakawa-India achievement. It attests to the character of a country to reach out to committed partners, work closely Leprosy Foundation 8 and its people, and earns for them the trust and with them and ensure that progress is sustained. respect of the international community. This breeds From the Editors 8 confidence, which can serve as a galvanizing force — Yohei Sasakawa, WHO Goodwill Ambassador 1 AWARD FTEL Jun 07 • No. 26 Sasakawa Receives Int’l Gandhi Award Honor recognizes decades of service to fighting leprosy WHO Goodwill Ambassador Yohei Sasakawa fundamental right of life with dignity.” was recently presented with the 2006 Sasakawa has spent the past three decades International Gandhi Award at a ceremony in supporting efforts to eliminate leprosy from the Wardha, India, spiritual home of India’s “father world, and in 2001 was appointed WHO Goodwill of the nation” Mahatma Gandhi. Ambassador for Leprosy Elimination. In recent The award is made every three years by the years, he has increasingly focused his attention on Gandhi Memorial Leprosy Foundation, which tackling the social aspects of the disease. was established in 1951 to perpetuate the memory of Gandhi and his life-long interest in leprosy. “We still have a long way First issued in 1986, the award goes to an individual or institution that has made a to go before stigma and significant contribution to improving the quality discrimination are banished.” of life of leprosy-affected persons and helping them to lead normal lives in society. Indian Vice-President Shri Bairon Singh On World Leprosy Day 2006, in New Delhi, Shekhawat, who chairs the award committee, he led 11 world leaders including former US presented the award at a ceremony on April 12. President Jimmy Carter, the Dalai Lama and In his speech of acceptance, Sasakawa said former President Venkataraman of India, in that “from eliminating leprosy as a public health issuing a Global Appeal to end stigma and problem, we are moving toward eradicating the discrimination against persons affected by disease altogether. But leprosy has another leprosy and their families. aspect; a social aspect. We still have a long way On 29 January this year, in Manila, he joined to go before the stigma and discrimination 16 representatives of people affected by leprosy associated with the disease have been banished. from around the world in issuing a second Until then, people affected by leprosy will not Global Appeal, calling for the restoration of the truly be free of it.” dignity and recognition of the human rights of The vice-president described Sasakawa as an leprosy-affected persons. In the words of Global “exceptional man of our times in the field of Appeal 2007: “Denying the inherent human leprosy eradication.” He continued: “Today, the rights of anyone on the basis of disease is biggest challenge we face is the integration of indefensible. Discrimination can never be the leprosy-cured persons into society’s justified. Silence on this issue is not acceptable.” mainstream. A large number of leprosy-affected Sasakawa donated his cash prize of 200,000 people, after they are cured, remain poor and Rupees to the newly formed Sasakawa-India below the poverty line... they are denied their Leprosy Foundation (see page 8). ■ Past Winners of International Gandhi Award 1986: Dr. Dharmendra (India) and Dr. Turkan Saylan (Turkey) 1988: Dr. Ma Hai De (China) and Professor T. N. Jagadisan (India) 1990: Dr. R. V. Wardekar (India) and Dr. M. F. Lechat (Belgium) 1992: Dato E. J. Lawrence (Kuala Lumpur) and Late Cardinal P E Léger (Quebec) 1994: Dr. Joon Lew (South Korea) and Dr. V. Ekambaram (India) 1996: Ms. Jean Watson (United Kingdom) and Dr. S. K. Noordeen (India) 1998: Mrs. Mathilde Gruner (Germany) and Dr. S. D. Gokhale (India) 2000: ALERT (Ethiopia) and Dr. K. V. Desikan (India) 2003: Dr. H. Srinivasan (India) 2 FTEL Jun 07 • No. 26 MEETINGS WITH MINISTERS ‘Good Progress Is Being Made’ Health officials provide updates on road to leprosy elimination and beyond In May, Goodwill Ambassador Yohei Sasakawa attended the World Health Assemby in Geneva. While there, he met with several health ministers and officials who briefed him on the progress of leprosy activities in their countries. In addition to these meetings (summarized below), he also met with health ministry officials from Indonesia, Myanmar and Mongolia, as well as with Dr. Luis Gomes Sambo, WHO regional director for Africa, and Dr. Samlee Plianbangchang, WHO regional director for Southeast Asia, and asked for their continued support for leprosy works in the countries and regions concerned. Dr. José Gomes are committed to Temporão achieving the leprosy Minister of Health, elimination goal. Dr. Brazil Mahesh Maskey, chairman of the Nepal The Brazilian Health Research Council, government strongly adds: Leprosy is closely supports the fight associated with against leprosy. A recent poverty. The social evaluation shows good stigma attached to the progress is being made. disease is also a big There is also an issue. Nepal is important social movement for the defense of economically backward and faces many patients’ rights with which the government is problems. However, the health indicators are working closely. Secretary of Health Surveillance improving, and the commitment of health Gerson Oliveira Penna adds: President Lula initiated a workers and volunteers is quite high. We are law providing all people affected by leprosy with a not certain about the current leprosy prevalence pension for life. There is also a presidential order rate (PR) but believe it must be improving. that people affected by leprosy be accepted as part of society. Dr. Anastácio Ruben Sicato Prof. David H. Minister of Health, Mwakyusa Republic of Angola Minister of Health and Social Welfare, United Although leprosy is no Republic of Tanzania longer a critical problem, we are We have detected a keeping up our leprosy large number of activities and hope patients in border areas leprosy will eventually between Tanzania and disappear. The PR now Mozambique, especially is 0.84. In 2005 it was since we abolished visas 0.77 but it went up to 1.21 in 2006 because of for travel between the two countries. We are now active detection. Now it is on the decline again. integrating leprosy and TB programs. Personnel are being trained to cover these two diseases. We have Dr. Benoit Kebela closed many leprosariums because we want to Ilunga remove stigma; those that remain are for people Secretary General, who have nowhere to go. Community-level Ministry of Public Health, rehabilitation must be promoted, and we need a DR Congo good referral system. We have achieved Mr. Girirajmani Pokharel elimination in several Minister of Health and Population, Nepal provinces but we still have a few provinces Nepal is in the process of political transition. where PR is high. We Health is an important issue. The recent interim have a national strategic constitution states that free access to health plan for elimination and are making our utmost services is an indigenous right of the people. We efforts. Country-level PR is 1.55. ■ 3 COLUMN FTEL Jun 07 • No. 26 Breaking Down Barriers UN convention on disability offers hope for future WHO estimates that up to 10% of the total global AUTHOR: population is disabled, with most belonging to the Richard D. Arceno poorest and most marginalized sectors of society. This translates to about 650 million persons with disabilities worldwide.