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Outreach2020 CONNECTING OUR COMMUNITY & RAISING AWARENESS ABOUT AUTISM VACCINE TALK Whatgender Does the Research Show? Page 22 Outreach2020 CONNECTING OUR COMMUNITY & RAISING AWARENESS ABOUT AUTISM VACCINE TALK WhatGender does the research show? Page 22 MEANINGFUL WORK Experts study symptom SSP America hires differences between girls adults with autism GAPand boys with autism Page 30 Page 26 EARLY DETECTION Research study helps family obtain early diagnosis Page 32 NODA AT WORK Smartphone app speeds up diagnostic process Page 30 CYBER SAFETY Grant helps SARRC launch online safety curriculum Page 32 SIBSHOPS Sisters advocate for sibling support program Page 37 2020 | 1 | OUTREACH Contents 26 GIRLS & AUTISM For Michele Thorne and her family, the journey to receive a diagnosis of autism for her son and daughter differed greatly. SARRC experts have been taking a closer look at the autism gender gap because Features symptoms can vary for girls and boys. 30 EXPEDITING THE DIAGNOSTIC PROCESS A smartphone-based app developed by SARRC with the Georgia Institute of Technology and Behavior Imaging Solutions is now being page 26 widely used for all clients younger than 6. Research studies show families receive a diagnosis 50% faster with NODA™ than traditional in-person assessments. 32 FUTURE OF CYBER SAFETY & AUTISM Thanks to grant funding from NEXT for AUTISM, SARRC is developing a new online safety curriculum that will provide effective teaching strategies for navigating the internet for people with ASD as well as their families. 35 JUMPSTART LEADS TO A NEW JOURNEY When Allyson Perreault received a diagnosis of autism for her page 30 4-year-old son, SARRC’s JumpStart® program helped her navigate a new course for her family. Her experience eventually led her to pursue a career change – she is finishing up a master’s degree in applied behavior analysis. 4 Comments 18 Giving Back 39 Community Impact 5 Vision 22 s FAQ 41 Get Connected 7 Board Update 23 Preguntas Frecuentes 46 Financials 9 Noteworthy 24 Breakthroughs 10 In Brief 37 Voices Departments On the Cover: MARIA THORNE page 32 PHOTO: STEPHEN G. DREISESZUN/VIEWPOINT PHOTOGRAPHERS STEPHEN G. DREISESZUN/VIEWPOINT PHOTOGRAPHERS (1) PHOTOGRAPHERS G. DREISESZUN/VIEWPOINT STEPHEN SARRC’S Beneficial Beans creates YOUR DONATIONS opportunities for adults with autism AT WORK who are working toward meaningful, Learn how your support makes a community-based employment. difference at autismcenter.org/yourgift Participate | Shop Signature Products | Volunteer Learn more at autismcenter.org/beneficialbeans 2020 | 3 | OUTREACH Your Thoughts 2020 • Volume 14 MANAGING EDITORS Stephanie Jarnagan Comments Karen Scott ART DIRECTOR Tamara Kopper PHOTOGRAPHERS FACEBOOK Stephen G. Dreiseszun/Viewpoint Photographers I am amazed at the difference in Miss Adalynn. The differences this Allison Anne Johnson Photography program has made in her life, her family’s and how she is managing CONTRIBUTORS day-to-day situations is simply astounding. Niamh Campbell - Marina Henk Borgmann Stephanie Conner Michelle Glicksman SARRC helped get my daughter diagnosed. They used NODA Natalie Jasso program to do so and then they told me what to do next so I Maureen Jorden Amy Kenzer wasn’t left confused. I also love how they’re charitable too, especially Andrea Levy working with the community like Studio Movie Grill as one example. Daniel Openden -Rosemary Keller Beatriz Orr Beth Salazar Ginger Scott-Eiden INSTAGRAM Christopher J. Smith Lauren Smith So much incredible energy today at the 14th Annual @autismspeaks Walk in partnership with @SWAutismCenter! It was my 3rd year SARRC LEADERSHIP emceeing, and there were over 500 teams, around 10,000 participants! Daniel Openden, Ph.D., BCBA-D, The Walk also raised a total over $585,000! Truly inspiring!!! President and CEO Larry Hillwig, Chief Administrative Officer -@ChelseyDavisTV Maureen Jorden, Chief Development Officer Amy Kenzer, Ph.D., BCBA-D Vice President of Clinical Services I still can’t believe this happened ($100,000 Devin Andrea Levy, CPA, CFE, Chief Financial Officer Booker Starting Five grant to SARRC)! Definitely one Christopher J. Smith, Ph.D., Vice President, of the highlights of 2019, @SWAutismCenter is such Research Director Rachel A. Anderson, M.A, BCBA, an amazing asset to kids on the autism spectrum Children’s Services Director and their families. Thank you @DevinBook for this Devon Graham, Human Resources Director amazing honor! Wade Newhouse, IT, Facilities Director -@EsauPearl Paige Raetz, Ph.D., BCBA-D, Teen and Adult Services Director @SWAutismCenter you are by far one of the best nonprofits Raun Melmed, M.D., Medical Director, in Arizona. I know I will never forget my experiences there SARRC Co-founder at the Employment Services center! #KeepGoingStrong Outreach is published annually by the #ChangeTheWorldOfAutism Southwest Autism Research & Resource Center -@Adam_Pitts 300 N. 18th St., Phoenix, AZ 85006 JOIN THE CONVERSATION CONTACT INFO Facebook.com/SouthwestAutism 602.340.8717 Instagram: @SouthwestAutism [email protected] LinkedIn: linkedin.com/company/sarrc SPECIAL THANKS Twitter: @SWAutismCenter to the writers, editors, photographers and designers who contributed in-kind YouTube: @SouthwestAutism time and service to SARRC. OUTREACH | 4 | 2020 Vision MESSAGE FROM THE PRESIDENT & CEO Here For You ALLISON ANNE JOHNSON PHOTOGRAPHY ALLISON ANNE BY DANIEL OPENDEN, PH.D., BCBA-D any people with autism struggle exposure for our therapists and families, we decided immensely with even the smallest to schedule only one therapist to work with only one disruptions in their routines. Parents family, as opposed to several therapists going in and Moften learn the hard way to take the very out of the homes of multiple families. same route to school each day, or that their child will We pivoted to telemedicine, allowing us to provide eat only one brand of chicken nuggets, or that the 43 remote supervision for our therapists, coaching for stuffed animals on their child’s bed must be put in our parents, and 1:1 therapy for our teens and adults the exact same place every day. with autism. Thanks to technology that SARRC And the truth is… changing routines is not so easy. introduced over the last year, families have been able Over the span of a weekend in early March, SARRC to access some of our most critical programs remotely was forced to shut down all of our group programs during the coronavirus pandemic. For instance, the due to the coronavirus, affecting 125 children between NODA™ mobile app lets families seeking a diagnosis our two inclusive preschools; 60 teens in our PEERS for their child receive an evaluation from home, and CommunityWorks programs; 70 grandparents who allowing them to maintain their appointments. regularly attend our monthly Grandparents Support And in 2019, we began transitioning JumpStart®, Group meetings; and the launch of our new Sibshops our flagship six-week program for newly diagnosed program for siblings of children with autism. We families, to an online, e-learning format, making the were heartbroken after watching many of our adults program completely accessible without coming to with autism, who competed for and were succeeding SARRC. in their jobs, become victims of our slowed economy Finally, our therapists uprooted their regular and join our country’s rapidly rising unemployment schedules overnight and became our essential rate. healthcare heroes. They made the difficult shift from Yet all of this pales in comparison to what it working with several clients to working with only would mean for our families if treatment for their one child, teen or adult with autism every day of children suddenly came to an abrupt stop. every week of every month. And they selflessly put How would parents handle the stress of balancing themselves at risk as they rallied around SARRC’s working from home, homeschooling siblings and mission with a relentless commitment to supporting becoming their child’s only therapist? And what about our families and clients. the parents who are worried and looking for answers Like people with autism, this sudden change in about their child’s development only to have their routine hasn’t been easy for any of us, and we’ve all diagnostic appointments canceled and the start of had to learn to adapt. As for SARRC, we’ve been able treatment further delayed? to do so because, for 23 years, this community has For SARRC, there was only one option: We would been here for us. And it is this community that will have to adapt to a sudden change in routine. continue to stand by SARRC as an essential partner, SARRC quickly modified our programs to ensure and together, we’ll not only overcome this challenge, treatment continued. To minimize the risk of but emerge stronger than ever. 2020 | 5 | OUTREACH Thank you for helping us help our community. UnitedHealthcare Community Plan is proud to collaborate with our community partners to help build healthy, inclusive communities for all. Contract services are funded in part under contract with the State of Arizona. CST24090 2/19 CST24090_AZ19_SW_Autism_R&R Mag Ad.indd 1 2/7/19 6:40 AM Round Team Project Details Specifications Copy: Software: InDesign CC2018 Color(s): 4/0 1 Base Design: mike File Name: CST24090_AZ19_SW_Autism_R&R Mag Ad.indd Bleed: none Layout: nate RGL: Resolution: vector UHC_CS Production: amy Project Notes: Flat: 3.875x4.75” Mkt Mgr: stacy @100% Job: CST24090 PRODUCTION OUTREACH | 6 | 2020 Board Update SARRC Welcomes 4 New Board Members SARRC is pleased to welcome Lev Gonick, Jason Lattin, 2020 SARRC Kim Shepard and Scott Wallace to its board of directors. BOARD OF DIRECTORS Lev Gonick
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