Annual-1Report April 2014 to -31and March- Accounts2015 Chair’s foreword

“Collectively our Nurses have provided almost 600 years of care for children and their families” Contents “Roald Dahl’s Marvellous Children’s Charity helps Inspired by the inventive spirit of , this was Chair’s foreword 3 children with rare and serious long term conditions also a year of new activities as part of the transition into What we do 4 to be not just healthier but happier.” our new strategic direction. We launched The Marvellous Nurse Inventing Room with the Burdett Trust for Nursing, What we did in 2014-15 In many cases we do this is in partnership with others. and we ran a pilot of our updated Marvellous Family My personal highlights were our partnerships with Grants. Meanwhile, we continued supporting thirteen Overview 5 Great Ormond Street Hospital and Birmingham Children’s other charities to find new ways to help seriously ill Marvellous Family Grants 6 Hospital which led to the creation of two new Roald children as part of the Family Resilience Programme, which Dahl Nurse posts, with a second post at Birmingham was funded last year with proceeds from the Readathon Roald Dahl Children’s Nurses 8 Children’s Hospital on the way. We are working with campaign by our partners at Read for Good. both hospitals, as well as children and their families, to Research and Invention 12 ensure that our nurses deliver the best possible support I would like to express our thanks for the support that Influencing and Sharing 16 and services. we receive from the Dahl family through their donation of a generous share of royalties. Their philanthropy, What we will do next It was a busy and productive year for our staff and including the gift-in-kind support of rent and utilities volunteers, including our valued advisors and my fellow from the Roald Dahl Literary Estate, is invaluable for a Our future plans 17 trustees, not least because we welcomed our 50th small charity. Roald Dahl Nurse. To date all (except one) of our Roald How we are funded Dahl Nurses continue in post since we created them, I would also like to say a warm marvellous thank you to Our finances 18 including our first Roald Dahl Nurse in 1992: collectively all our partners and supporters. I hope, like me, you are providing almost 600 years of care for children and looking forward to what else the future will bring! How we are organised 19 their families. To celebrate, we gathered our Roald Dahl Nurses together from across the UK for a conference to Why we are presenting the financial information below 21 help them to continue improving the lives of seriously Martin Goodwin, Chair. Auditor’s report 22 ill children. 24 November 2015 SOFA 23 We welcomed our 50th Roald Dahl Nurse Liz Odeh (pictured below) Balance Sheet 24 Notes to the Accounts 25-31

2 3 What we do What we did in 2014 -15

We help seriously ill children brave the unknown The state currently focuses its support to meet the There are thousands of seriously ill children in the UK material (i.e. wealth) and physical (i.e. health) needs of with a rare or undiagnosed medical condition. Coping seriously ill children. We primarily aim to address their Overview not just with the illness but also the unknown puts an unmet emotional and social needs. Overview of Activity and Grants Made, 2014-15 immense strain on these children and their families. 1. Happier Lives Seriously ill children will have more 2014-15 2013-14 positive self-esteem and higher hopes for their life We are there to help them and their families brave the Programme however long or short it may be unknown, so they can all enjoy a more marvellous life Headline Spending* Headline Spending* together. 2. Stronger Families Families with a seriously ill child will receive the emotional support they need Marvellous Family The need 1 54 families helped £21,723 258 families helped £85,419 Grants Being seriously ill can be frightening, particularly for a 3. Better Healthcare Seriously ill children will receive child. This is especially true for rare and undiagnosed more integrated child-centered NHS care that helps 23 diverse projects illnesses when no-one understands what’s happening to them to be happier as well as healthier 2 you. It is lonely too, in hospital or at home while other Project Grants - - over 14 conditions £235,376 children are having fun. 4. Greater Understanding Seriously ill children and across UK their families will feel more understood and included Families do an amazing job on their own, but don’t 2 new nurse posts, in society 3 Roald Dahl Children’s 2 new nurse posts, 6 always get the support they need. Without the help and 12 nurse training £225,907 £149,325 Nurses nurse training grants reassurance of an expert, family members are more How we achieve our aims grants likely to experience feelings of anger, guilt and depression. We support children and their families, find ways to improve the care they receive, and work to improve 4 Roald Dahl Research The NHS does not always have the resources or expertise society’s perception of disability. Research and 12 nurse-led Award towards to know what to do. There are so many rare conditions, £167,929 £19,334 and so few children affected by each one, that historically Our Marvellous Family Grants2 (page 6) are individually Invention research projects second year of the the NHS has not prioritised care, research or treatment. tailored to support children and families and can include Disease Registry fun days out or respite care. Our Roald Dahl Children’s Children with rare illnesses can also be particularly Nurses (page 8) can provide care, information and support, Remained active Remained active overlooked by society, and this can mean they miss out in hospital and at home. members of CDC members of APPG on opportunities that other children enjoy. and NCCHW, and Our Research and Invention (page 12) champions seriously SCT and joined CDC joined SHA, RDUK 4 The difference we want to make ill children by combining the experience of children and and the NCCHW , Influencing and and TSL3. We help seriously ill children and young people up to families with the expertise of health and social care 5 - attended 8 meetings. - Sharing their 21st birthday throughout the UK, and focus upon professionals. First phase of new Ran workshop supporting those with rare, undiagnosed or low profile Precious Moments session on conditions.1 Our Influencing and Sharing (page 16) uses our knowledge How we are funded to help influence key government policies and practises. programme collaboration across completed. the sickle cell sector 1 Excluding cancer and mental health. 2 Stronger Families Programme was the working name for the 2014 pilot. 2 projects awarded in 2012-13 for which Less cancelled or 1 Marvellous Family payments have been £(400) £(21,119) 6 refunded grants Grant refunded refunded or commitments cancelled

Total grants £415,159 £468,335 7 expenditure

Non-grant £137,557 £105,764 8 expenditure

Total charitable £552,717 £574,099 9 expenditure

*The spending in rows 1 to 4 is grant expenditure only. Non-grant expenditure incurred by programmes including Programme 5, is not apportioned against individual programmes, and is shown on row 8 in the table above. See Note 7 to the accounts. 3CDC: Council for Disabled Children; NCCHW: National Council for Child Health and Wellbeing; SHA: Specialised Healthcare Alliance; RDUK: Rare Diseases UK; TSL: Together for Short Lives. 4APPG SCT: All-Party Parliamentary Group on Sickle Cell and Thalassaemia; CDC: Council for Disabled Children; NCCHW: National 4 Council for Child Health and Wellbeing. 5 What we did in 2014 -15

Marvellous-Family-Grants Type-of-Family-Grants-2014-15 Percentage What we provided Grant Type of Grants Swimming, horse riding, football, Sea Cadets, local leisure Specialist Lessons/ 18.5% centre, local activity centres Membership Reiki, counselling, play, music, reflexology, parenting advice, Therapy Sessions 18.5% psychotherapy, speech and language, multi play

Mia’s-story Driving lessons, conferences, sensory equipment Ad-Hoc 14.8% Thirteen month old Mia has a condition that iPad Mini or Android to assist with education and peer to peer Comms Tablet/iPad 14.8% meant she was born with only half a heart. Mia contact or access groups has defied all the odds and after two major heart Day out for family bonding or to make memories Days Out 13% surgeries, a stoma and a bowel reversal, she is currently stable. Baby monitor/video Physical Equipment 9.3%

Overnight stay to attend an activity centre, play centre, themed event Break Away 7.4% Travelling to and from hospital and the lack of an income means luxuries such as family holidays and days out are not an option. Mia’s family support Extra support for parents Respite Care 3.7% worker contacted us and explained their situation. We provided Mia’s family with a grant of £500 so that they could go on a much needed short holiday. How we made a difference 46% of our grants intended to help specific family members, 24% directly supported the seriously ill child, and 30% helped both family and child. The following bar chart shows the intended outcomes of both family and child.

Our aim Intended-outcomes Our Marvellous Family Grants help seriously ill children and young people whose families are experiencing Location-of-Family-Grants-2014-15 Provide a life outside of their illness Percentage financial hardship, in order to create Happier Lives and UK Country or Region Stronger Families. of Grants Build independence, self esteem and confidence We focus on improving the emotional or social wellbeing North West 22.2% of any member of the family, or the family as a whole, Ability to express feelings and communicate with others in one or more of the following ways; Northern Ireland 14.8% Individual development and acquirement of new skills 1. Positivity and resilience Scotland 14.8% 2. Acceptance of their health condition Providing academic support 3. Relationships within the family South East 14.8% 4. Friendships outside the family West Midlands 13% Relieving parental anxiety 5. Fun, play and relaxation 6. Hopes and aspirations East Of England 5.5% Giving space and respite for the family 7. Having a role in life, meaningful things to do London 5.5% 8. Making decisions about their own life, having a voice Creating family links and developing parents understanding of child’s condidition What we did North East 3.7% We carried out changes to this programme to ensure it South West/Channel Islands 1.9% Helping and supporting siblings fitted with our new strategic direction and to improve Helping to build family relationships, our existing application process. We closed the Wales 1.9% programme in December 2013 and began a three bonds and memories month pilot (named the Stronger Families Programme) Yorkshire & Humberside 1.9% in June 2014. Happier Lives Stronger Families 0 10 20 30 40 50 60

6 7 What we did in 2014 -15

At 31 March 2015 Roald Dahl’s Marvellous Children’s Charity was funding the salaries of three Roald Dahl Nurse posts: • Roald Dahl Nurses at Addenbroke’s Hospital in Cambridge, England OurRoald aim -Dahl-Children’s-Nurses Jodi Betts - Roald Dahl Paediatric Haematology Nurse Specialist Our Roald Dahl Nurses help ensure Happier Lives, Stronger Families, Better Healthcare and Greater Joanna Musson - Roald Dahl Paediatric Neuromuscular Nurse Specialist (pictured bottom left with one of her Understanding. patients, Lizzy) • Roald Dahl Nurse at King’s College Hospital, in London, England We create new Roald Dahl Children’s Nurse posts which play a vital role in supporting children and their families Liz Odeh - Roald Dahl Transition Haematology Nurse Specialist both medically and emotionally. We fund them for the first two years and in return we ask for the NHS Trust to commit to fund the post for another three years. Once we finish funding the salaries of our Roald Dahl Nurses, we During the year we also created two innovative new Roald Dahl Nurse posts in England, both due to start by early continue to provide training and development support for them. 2016. As part of our determination to involve seriously ill children and their families more closely than ever, those affected by these conditions and/or cared for by the respective hospitals will be invited to help specify the type of What we did support they want from their Roald Dahl Nurse. The table below shows the number of Roald Dahl Nurses currently in post at 31 March 2015. • Roald Dahl Rare Diseases Clinical Specialist Nurse at Birmingham Children’s Hospital This Roald Dahl Nurse will improve the long-term wellbeing of children and young people living with serious rare Roald-Dahl-Children’s-Nurses illnesses. We have created and funded this full-time post for its first two years, and Birmingham Children’s Hospital Northern Scotland Wales England Total NHS Foundation Trust has committed to fund the role for a further three years. Ireland5 This is the first Roald Dahl Nurse to focus exclusively on rare Epilepsy 7 5 0 18 30 diseases in children and the first to be based at Birmingham Children’s Hospital. The hospital is the UK’s second biggest Brain Injury 1 0 0 106 11 provider of services for children and young people with rare Haematology 0 0 0 8 8 diseases, and currently cares for over 9,000 children a year with rare diseases, encompassing more than 500 different rare illnesses. Neuromuscular 0 0 0 1 1 The nurse post will itself be rare, working flexibly across the broad Palliative 0 0 0 1 1 spectrum of rare diseases. Total 8 5 0 38 51 We are grateful to our partners Read for Good and their Readathon campaign for helping us to create and fund what will be our 52nd This was the year of our 50th Roald Dahl Nurse recruited in post: Liz Odeh at King’s College Hospital in London who Roald Dahl Nurse. works with young people with blood disorders. To mark this milestone and to help support their training and • Roald Dahl SWAN Nurse at Great Ormond Street Hospital development, we held our first major Roald Dahl Nurse Conference at the Royal College of Nursing (see page 10). Children with undiagnosed conditions are those who have a 5 The lack of a Roald Dahl Nurse post in Northern Ireland continues to be something we are working to address – see Our Future genetic illness so rare that there is not a name for it yet. These Plans on p.19. 6The Roald Dahl Occupational Therapist (OT) post at King’s College Hospital has been expanded, due to the high illnesses are sometimes called Syndromes Without A Name (SWAN). level of need, to 1.4 full time equivalent (FTE). Both OTs receive our support and are eligible for our Roald Dahl nurse training grants. SWAN children often have complex medical needs and learning difficulties. For most children, there is no cure and for many there is not even meaningful treatment. They have hugely uncertain lives, but there is currently no national provision, or any guidelines, to help support and care for them.

The Roald Dahl SWAN Nurse will be a new specialist nurse to support seriously ill undiagnosed children and families. This new type of nurse will not only be unique to the UK, but, we believe, the role will be the first of its kind in the world. The role will be based at Great Ormond Street Hospital (GOSH), one of the world’s leading children’s hospitals.

The Roald Dahl Nurse role will be more closely defined during 2015-16 in collaboration with children and their families with the Centre for Outcomes and Experience Research into Children’s Health, Illness and Disability at Great Ormond Street Hospital over 2015.

We are grateful to our partners at St James’s Place Foundation for helping us to fund what will be our 53rd Roald Dahl Nurse in the UK. We would also like to express our thanks to parent, blogger and SWAN UK advisor, Renata Blower, who helped us to show GOSH of the importance of this new role and is co-directing the project with us.

“When my son Dominic was born, my whole world changed. He was in and out of hospital, often extremely unwell and no one could tell me why. The Roald Dahl SWAN nurse will be a lifeline to many families like mine. It is the first step to ensuring proper support for very vulnerable families who have children with some of the most complex medical needs and disabilities in the country.” Renata Blower, mother to Dominic, who has an undiagnosed ultra-rare illness (pictured together above)

8 9 What we did in 2014 -15

We also provided training grants for 12 Roald Dahl Nurses, in order to help them to continue their professional development. For example, Roald Dahl Occupational Therapist Kate Greene’s training grant was towards a five day course about sensory integration. It will be particularly useful for Kate when giving advice for parents to help their children develop to their full potential.

“I went on the course in Birmingham and it was ABSOLUTELY amazing! It has changed the way I think about things and I am so fired up and enthusiastic about it. Thank you so much!” Kate Greene - Roald Dahl Senior Paediatric and Neurosurgery Occupational Therapist, King’s College Hospital, London.

How we made a difference Our Roald Dahl Nurses help seriously ill children and young people lead as full a life as possible by: • Providing specialist medical care

• Co-ordinating appointments to reduce the number of families’ hospital visits

• Liaising with other health professionals, social workers and teachers

• Explaining medical conditions to children and families

• Signposting further support services for families

• Being available to talk, for all the family.

In 2014-15 we estimate that our Roald Dahl Nurses helped around 15,000 children, young people, and their families across Great Britain.

Marvellous Nurse Conference For the first time in ten years, Roald Dahl specialist children’s nurses gathered together from all over Great Britain to celebrate the 50th Roald Dahl Nurse created and funded by Roald Dahl’s Marvellous Children’s Charity.

There was a special Roald Dahl Nurse conference held on 7 November 2014 at the Royal College of Nursing in London. Topics discussed included the important role that children’s nurses play in supporting emotional as well as physical wellbeing, and the future of specialist nursing.

There was a wide range of guest speakers and workshops, including key note speaker Liz Morgan, Chief Nurse at Great Ormond Street Hospital, speaking on behalf of the Royal College of Nursing. Helen Baxter, Director of Innovation and Service Design in Healthcare spoke about innovation and nursing. Lynne Thompson, founder and CEO of Breathtakers OB Trust talked about her experiences of having a child with a rare disease, and the value of coaching as a technique to support families’ coping abilities.

The conference was followed by a special evening at London West End musical Charlie and the Chocolate Factory hosted by charity patron and actress Julie Walters.

50th Roald Dahl Nurse Liz brought two families she supports along to the show, including 15 year-old Sophia and her brother Malachi, age 11 (both pictured above with Julie Walters far right). Sophia and her brother have had sickle cell since birth, and visit the hospital every three weeks for blood transfusions. Sophia had recently “I have such huge respect for nurses, not least because I originally undergone open heart surgery. trained as one myself. I’m absolutely thrilled to champion the Roald Dahl specialist children’s nurses: they are a real lifeline to thousands of children and the families.” “I-am-so-grateful-for-our-new-Roald-Dahl-Nurse- Julie Walters Liz..-I-was-concerned-about-having-the-right-support- for-my-children-during-their-teenage-years.-Yet-in-a- Every one of our conference delegates felt the event inspired and motivated them in their work to make life better for seriously ill children. Feedback comments included: “The day recharged my motivation batteries”; “Encouraged very-short-space-of-time-we-have-built-great-trust- me to challenge my practice and think outside my bubble”; and “Re-energised and lots of new ideas.”

We are very grateful to our partners Warner Bros. UK for hosting the evening’s reception for our Roald Dahl Nurses withSophie and- Liz.Malachi’s.- mother,She Cheryl-is-truly-marvellous!” and for providing tickets for them to see the musical.

10 What we did in 2014 -15

OurResearch aim -and-Invention Roald Dahl’s Marvellous Children’s Charity works to improve the care seriously ill children receive, and to help them to thrive whatever challenges their condition brings them. Part of how we do this is through our Research and Invention activities. The wide-ranging projects funded help to create Happier Lives, Stronger Families, Better Healthcare and Greater Understanding.

This section sets out the impact from our first Research and Invention programme Different Disciplines, Common Experience (completed in 2015), and the aims of its successor The Marvellous Nurse Inventing Room (launched in November 2014). Both programmes were driven by our experience that all good children’s nurses see the child, not just the condition. We believe that their insight, combined with their day-to-day experiences at the frontline of care, makes nurses well placed to spot ideas for improvements.

What we did Different Disciplines, Common Experience The charity ran the Different Disciplines, Common Experience programme from 2010 to 2015 with funding from the Burdett Trust for Nursing. We invited children’s nurses working in neurology and haematology to try out something new to improve the care for seriously ill children and young people. 197 diverse projects in 11 different medical conditions took place across the UK, and worked with a range of beneficiaries; young children, teenagers, young adults and parents.

The difference we made This was the first time that Roald Dahl’s Marvellous Children’s Charity had delivered this type of programme.8 The programme achieved its aims of:

• increasing the leadership, research and project management skills of nurses The programme improved the ability of 22 nurses to identify and meet unmet needs.

• improving care and support for children and young people with serious, long-term conditions Different Disciplines, Common Experience improved life for an estimated 1,300 children and young people, and the outcomes will help thousands more.

The programme made a real lasting difference to seriously ill children in many ways, including:

creating a global online peer network for children with haemophilia producing a children’s storybook to explain sickle cell disease For their Marvellous Nurse Inventing Room project, Helen House Hospice, created ‘Our Living Wall’. This consists of 45 jigsaw shaped wall panels on which children, siblings, parents and friends in the children’s hospice can paint and designing and delivering a highly rated training course for healthcare professionals draw. The finished panels are photographed and then attached to a large wall situated in the shared area at the heart inventing a game to make it easier for children to cope with the dreaded blood test of the hospice. Violet (pictured) is fifteen months old and has decorated her own panel. Violet’s mum said, The Marvellous Nurse Inventing Room Following the completion of Different Disciplines, Common Experience we created The Marvellous Nurse Inventing Room, again thanks to our friends at the Burdett Trust for Nursing. “It-has-been-wonderful-watching-Violet-using-paints-�

This three-year programme looks for new ways to support and improve the social and emotional wellbeing of seriously ill children and young people. It will work across a broader remit involving nurses from a wide range of and-brushes-–-we-simply-don’t-have-time-to-this- disciplines, helping a greater diversity of children. The programme prioritises children with rare or undiagnosed illnesses. kind-of-activity-at-home.-Violet-particularly-enjoyed- We offered twelve specialist children’s nurses a grant of up to £15,000 each, to try out an idea, put it into practice, and to communicate the outcomes and findings. choosing-which-colour-paint-to-use.-The-important- We identified and funded twelve projects totalling £165,929 as part of the Marvellous Nurse Inventing Room in 2014-15. thing-was-not-about-which-colour-to-pick,-but-having-

7Three further project grants were awarded, but were discontinued. 8Outlined in the Different Disciplines, Common Experiences programme report June 2015 (available to download from www.roalddahlcharity.org). autonomy-and-enjoying-being-in-control.” 12 13 What we did in 2014 -15

Lead nurse Lead nurse Lead nurse Sharon Cairns Catherine Mkandawire Patricia Kiilu Marvellous-Nurse-Inventing-Room-funded-projects Organisation Organisation Organisation Lead nurse Lead nurse Lead nurse The Great North Children’s Hospital Imperial College, St Mary’s Hospital Central Middlesex Hospital Anne Sweeney Cathy Benfield Joanne Holder & Tracey Lole Location Location Location Organisation Organisation Organisation Newcastle upon Tyne, England London London Alder Hey Children’s Hospital Alder Hey Children’s Hospital The Orchard Centre Grant Grant Grant Location Location Location £15,000 £10,461 £15,000 Merseyside, England Merseyside, England Warwickshire, England Condition Condition Condition Grant Grant Grant Complex neurological conditions Sickle cell anaemia Sickle cell disease £15,000 £7,300 £15,000 Beneficiaries Beneficiaries Beneficiaries Condition Condition Condition Children, parents, professionals 8-16 year olds, parents, professionals Children and teenagers Epilepsy Haemophilia Juvenile arthritis Project Project Project Beneficiaries Beneficiaries Beneficiaries Engaging children under their care Testing and validating a new Testing teleheath technology as an Teenagers Boys Children and rehabilitation via tablet wide-ranging questionnaire for alternative to home visits in order Project Project Project technology with therapeutic games children and parents to assess to reduce and prevent emergency Helping teenagers to create new Creating an online haemophilia Creating a superhero kit complete and creating a “biography” about care services and identify areas for hospital admissions for children resources to help other young “selfie” hall of fame to help boys with story, cape and doll to help their stay on the ward improvement people through the transition from feel more positive about injecting children to understand and cope child to adult care their medication with their illness and treatment Lead nurse Lead nurse Orla Watt Karen Coy Lead nurse Lead nurse Lead nurse Organisation Organisation Dr Kate Oulton Sabine Schwaebisch Liz Lewington Parent Action Bristol Royal Hospital for Children Organisation Organisation Organisation Location Location Great Ormond Street Hospital Helen House Children’s Hospice Jessie May Children’s Hospice at Home County Down, Northern Ireland Bristol, England Location Location Location Grant Grant The difference we made London Oxfordshire, England Bristol, England £15,000 £14,647 It is too early to evaluate the impact Grant Grant Grant Condition Condition of this programme as the projects £14,956 £14,596 £13,969 Serious long-term conditions Burn injuries began in early 2015 and are due to Condition Condition Condition Beneficiaries Beneficiaries run until summer 2016. Rare diseases Life-limiting conditions Life-limiting conditions Children, young people, families, Children and families Beneficiaries Beneficiaries Beneficiaries professionals Project 7-11 year olds and parents Children and young people Children Project Supporting the emotional journeys Project Project Project Developing and testing a way to of children with severe burns injuries Exploring what helps to create and Creating a living art wall in the Testing a new communications assess how well health, education and their families, including an build happiness and resilience using hospice for children, with a smaller “passport” to help children who and social services engage and listen educational film and a peer reviewed creative methods and focus groups accompanying digital screen to can’t speak or express themselves to seriously ill children and their paper to outline improvements to display previous art displays families services.

14 1315 What we did in 2014 -15 What we will do next

Influencing-and-Sharing Our-future-plans Our aim Next year will see the start of the 2016 Centenary celebrations of Roald Dahl’s birth. We will be launching our first We share our knowledge to influence policies and practices to improve the lives of seriously ill children and young national charity of the year partnership with a major UK retailer, as well as moving offices and completing an people. We analyse emerging policy issues and other developments which affect children with serious rare illnesses, investment review. and we link with other organisations and parents. We also share what we have discovered through our activities In terms of our charitable activities, we are planning the following: with other charities, health and social care professionals so we can help create Happier Lives, Stronger Families, Better Healthcare and Greater Understanding. Happier Lives and Stronger Families What we did • We plan to grow the number of families helped through our Marvellous Family Grants. We aim to achieve this by reaching more health and social care professionals to tell them about the support we can provide for families. We became a member of the Specialised Healthcare Alliance to help ensure specialist services for children with We will continue to make improvements to the programme so we can provide our tailored support as quickly as serious rare illnesses are not overlooked. This is a coalition of charities and companies who campaign on behalf of possible to the families who need it most (we currently deal with applications within two weeks on average). children and adults with rare and complex conditions who need specialised care. • Our Family Resilience Programme projects are set for completion in 2015-16, and we will be sharing the We also belong to the National Council for Child Health and Wellbeing which shares information for lobbying and outcomes with the charity, health and social care sectors. puts forward initiatives for the health and wellbeing of children and young people in the UK. We are a member of the Council for Disabled Children, the umbrella body for the disabled children’s sector in England, as well as their Better Healthcare Health Policy Influencing Group. We remain members of the National Council for Voluntary Organisations and became • We plan to continue to grow the number of Roald Dahl Nurses (pictured below with President Felicity Dahl) members of Rare Diseases UK and Together for Short Lives. throughout the UK, and particularly hope that our efforts to create the first Roald Dahl Nurse post in Northern The difference we made Ireland will come to fruition in this year. We also anticipate the new Roald Dahl Nurses at Great Ormond Street Hospital and Birmingham Children’s Hospital will be in post by March 2016. We have contributed to policy discussions which have major implications for children and their families, including the changes surrounding specialist commissioning. These discussions ultimately aim to ensure that children with • We will continue to provide training and professional development opportunities for our Roald Dahl Nurses. serious rare and undiagnosed illnesses are not overlooked when NHS services are being designed and budgeted. Our aim is that these children will receive consistent access to the specialist care they need, regardless of where they • Our Marvellous Nurse Inventing Room projects are set for completion in 2016-17, and we will be sharing the live in the UK, as well as improve the overall level of care they receive. findings and outcomes with the charity, health and social care sectors. Greater Understanding Precious Moments • We will continue our general policy and influencing activities to improve the lives of seriously ill children. This programme aims to help professionals improve their communication skills when delivering important news, so that they can have a positive impact on the emotional and psychological state of the whole family. • In the future, we also expect to continue our research to find solutions to support the emotional and social needs of seriously ill children and their families, including improving communication with healthcare profession The first phase ran between November 2014 and April 2015. We launched a survey for parents who care for a child also as part of the Precious Moments programme. with a complex, long-term condition to find out more about their experiences of communications around diagnosis, and analysed the 224 responses.

The survey informed us of many of the good and bad experiences families encounter when receiving information about their child’s condition. It highlighted factors that contributed to the poor delivery of news, as well as those which could improve people’s experiences in the future. It gave us a clear indication that how news is delivered can have a long-term impact on how a family is able to cope with a child’s illness.

We presented the findings of the survey to healthcare professionals at a large national conference9. We plan to carry out further research in this area, and assess how we could provide practical solutions for families and healthcare professionals in the future.

Family Resilience Programme We carried on supporting the 13 projects funded as part of our 2013-14 activities, to create Happier Lives and Stronger Families, by improving the emotional resilience of families caring for a child with a serious long-term illness.

During the year, we held two workshops: the first workshop launched the programme in April 2014 and the second workshop in March 2015 brought everyone together to share findings. We received some very positive feedback about this collaborative way of working and sharing for the benefit of the children, young people and their families; “Great to be involved and loved the approach”; “Very interesting idea - so useful to get organisations together to share ideas.”

These projects are due for completion in 2015-16. We are grateful to our friends at Read for Good and their Readathon campaign for supporting this programme.

9 Royal College of Paediatrics and Child Health Annual Conference, in April 2015.

16 17 How we are funded

Income 2014-15: £827,949 Expenditure 2014-15: £932,903 Our-finances Income 2014-15 • The Stobart Group for supporting our charity with 6% 4% The charity received total incoming resources of funds raised from their annual TruckFest and from 19% £827,949. Whilst our fundraising income decreased taking part in a skydive event from the previous year’s total of £398,093 to £214,742 The hundreds of fundraisers and donors who ran races, 26% 59% 37% due to the charity of the year partnership with Garden climbed mountains, sponsored a friend, jumped out of House School coming to an end (which raised in excess a plane, swam the Channel, and baked cakes. of £180,000 in 2013-14), our total voluntary income 3% 34% increased by £143,435 due to a grant from the Burdett Every child, teacher and parent from the 469 schools 1% who took part in our fourth Dahlicious Dress Up Day. Trust for Nursing for £93,924 and increased support 11% from the Roald Dahl Charitable Trust. Expenditure 2014-15 Readathon £155,000 Cost of generating funds £342,788 We are extremely grateful to the following for their Our largest category of expenditure was our charitable RDCT £281,850 Charitable activities £552,717 support: activity (59%). Governance costs were 4%. The trustees Burdett £93,924 Governance costs £37,398 continue to treat grants committed as funds expended Other donations £9,325 The Dahl Family, who very generously donate 10% of even if they are not yet disbursed. Donation in kind £26,138 the annual net royalties and other income from Roald Income from fundraising £214,742 Dahl’s work to the Roald Dahl Charitable Trust (RDCT), Investment policy and objectives Investment income £46,970 which currently splits its income between Roald Dahl’s The trustees’ investment objective is to maintain the Marvellous Children’s Charity and the Roald Dahl capital value against inflation and generate a good Museum and Story Centre. level of income to fund ongoing activities, returning Felicity Dahl for her greatly appreciated additional RPI+4% over a 3-5 year rolling period. In the 12 months donations in the year. to 31 March 2015 the charity’s investments gained £44,045 in value and produced income of £46,970, Charitable Trusts and Foundations: producing a total return of 6%, which is RPI+5%. How-we-are-organised Administrative Details (as at 31 March 2015) Healthcare professionals • The Burdett Trust for Nursing for their longstanding The trustees reserve the right to exclude any direct Registered Charity 1137409. Company Limited by Guarantee • Dr Kofi Anie, Consultant Clinical Psychologist and support and for agreeing to fund our Marvellous investments in companies whose representation might Registered in England and Wales 7340518. Memorandum Director of Psychosocial Research and Development Nurse Inventing Room project for three years prove damaging, directly or indirectly, to the purposes and Articles of Association dated 27 July 2010. at Central Middlesex Hospital or reputation of the charity. The trustees have delegated • Read for Good for continuing to generously support • Celia Brand, Paediatric Epilepsy Nurse Consultant at the management of their investment portfolio to Trustees and Company Directors our charitable work through their annual national the Royal Hospital for Sick Children Schroder and Co. Limited. Schroders also manages a All trustees are automatically members of the charity sponsored reading event, Readathon, with a grant of • Janet Delves, Specialist Community Public Health proportion of the charity’s cash deposits. Its fees and and there are no other members. One third of the £155,000 this year Nurse at Buckinghamshire Healthcare NHS Trust performance are reviewed by the trustees annually. trustees or the next highest whole number retires • Dr Cathy Grant, Clinical Paediatric Neuropsychologist • The Openwork Foundation for supporting our annually and may stand for re-election. at Leicester Royal Infirmary Stronger Families Programme (our pilot version Policy on Reserves Georgina Cannon (née Howson) (appointed 2010) of Marvellous Family Grants) with a generous gift of The trustees have resolved to retain sufficient reserves • Kate Greene, Roald Dahl Senior Paediatric and Graham Faulkner (appointed 2012) £10,000 to ensure the charity can deliver its planned commitments Neurosurgery Occupational Therapist at King’s (e.g. grants awarded and budgeted), to protect the Martin Goodwin (Chair) (appointed 2010) College Hospital • The Grant Foundation for their generous support to charity’s funds from fluctuations in income, and to Roger Hills (appointed 2010) • Professor Michael Hanna, Senior Consultant our Stronger Families Programme this year provide resources as needed to invest in the charity’s Virginia Myer (née Fisher) (appointed 2010) Neurologist at the National Hospital for Neurology & growth. Donald Sturrock (appointed 2013) Neurosurgery • The Jack O’Donnell Foundation for kindly donating Dr Husain Khaki (appointed February 2015) £1,000 to the Stronger Families Programme Planning For Contingencies: Trustees have determined • Dr Kate Oulton, Senior Research Fellow at the Centre that, if all other sources of income were to fail, the charity Presidents for Outcomes and Experience Research in Children’s • The R S Brownless Charitable Trust for supporting should be able to maintain itself for 12 months worth Felicity Dahl Health, Illness and Disability (ORCHID) at Great our Stronger Families programme this year of grant making and support costs while it seeks Sir Ormond Street Hospital. • Dr Mike Pike, Consultant Neurologist at Oxford Corporate Supporters: alternative methods of funding. Trustees therefore aim to maintain a level of reserves between 12 and 13 Patrons Radcliffe Hospitals NHS Trust • The staff at Regalead Ltd, who threw themselves into months worth of operating income. Given our current Sir Richard Branson Danny DeVito • Professor John Porter, Consultant Haematologist at all manner of fundraising activities with unbridled level of income and planned growth, a reserve level of Maddie and Theo Dahl Julie Walters CBE University College Hospital enthusiasm, raising almost £15,000 for our charity around £1.1million is appropriate. Joanna Lumley OBE Claudia Winkleman • Vicky Rimmer, Roald Dahl Sapphire Epilepsy Specialist this year Tim Minchin Nurse at The Royal Surrey County Hospital Current Position: Our reserves at 31 March 2015 were • Tunstall Healthcare UK Ltd for donating almost £7,000, £1.4million. We plan to increase our charitable activities Advisors • Dr Christopher Verity, Consultant Paediatric Neurologist raised through events ranging from sponsored silences and reduce the reserves significantly by around £250,000 We are grateful for the advice we received during the at Addenbrooke’s Hospital to jumping out of a plane dressed as Oompa-Loompas over the next two financial years. year including valued support from:

1418 19 How we are funded

• Vicky Vidler, Nurse Consultant in Paediatric Haematology take over the assets, liabilities and operations of the £281,850 from the Roald Dahl Charitable Trust, of which financial statements unless they are satisfied that they at Sheffield Children’s Hospital unincorporated Trust; and to significantly grow Felicity Dahl is a trustee. give a true and fair view of the state of affairs of the • Dr Deborah Waller, GP fundraising in order to better address the huge level of company and the profit or loss of the company for that unmet need. A new charitable company – Roald Dahl’s Public Benefit period. In preparing these financial statements, the • Dr Mark Whiting, Consultant Nurse for Children with Marvellous Children’s Charity – was established as a Object of the charity: The object of the charity is for the trustees are required to: Complex Health Needs at Hertfordshire Community result. In 2013 Felicity Dahl stood down as a trustee public benefit to further such exclusively charitable NHS Trust after 22 years and was asked to join Sir Quentin Blake in purposes according to the law of England and Wales • select suitable accounting policies and then apply the role of President, which she accepted. In 2013 the as the trustees in their absolute discretion from time to them consistently; Social care and public sector contacts charity significantly refreshed its strategic focus, time determine, including assisting other charities. • observe the methods and principles in the Charities • Helen Baxter, Director of Innovation and Service expanding its support beyond the limits of neurology SORP; Design in Healthcare at Tessellates Innovation Limited and haematology, so as to support the emotional Charity vision: “At Roald Dahl’s Marvellous Children • make judgments and accounting estimates that are • David Cockayne, Managing Director of The Good wellbeing of children and young people with a serious Charity, we want to see a world in which every child long-term condition, with a particular focus on rare and reasonable and prudent; Governance Institute can have a marvellous childhood, no matter how rare undiagnosed conditions. • state whether applicable UK Accounting Standards • Jacqueline Fitzgerald, Director of Research and Policy or serious their illness. So we improve the long-term have been followed, subject to any material departures at the Royal College of Paediatrics and Child Health happiness of children and young people with a serious, Decision Making and Organisational Structure disclosed and explained in the financial statements; • Diane Flower, Children’s Epilepsy Specialist Nurse at rare illness.” To direct and oversee the work of the charity, the full • prepare the financial statements on the going concern the Bristol Royal Hospital for Children board of trustees meets five times a year. Meetings Charity beneficiaries: The charity helps seriously ill basis unless it is inappropriate to presume • Amy Galea, Strategy Advisor at Department of Health include reviewing progress across the charity’s strategy, children and young people up to their 21st birthday that the company will continue in business. (on secondment from the King’s Fund) impact and activities on a quarterly basis and setting throughout the UK, and focuses upon supporting those • Steve Jamieson, Deputy Director of Nursing at the the annual budget. The day-to-day delivery of the with rare, undiagnosed or low profile conditions. The trustees are responsible for keeping adequate Royal College of Nursing charity’s mission and activities is delegated to the Chief accounting records that are sufficient to show and • Karen Osland, Deputy Chief Executive and Support Executive supported by a staff team. Charity focus: The charity prioritises the social and explain the company’s transactions and disclose with Liaison Manager at SUDEP Action emotional needs (rather than the physical or material) reasonable accuracy at any time the financial position There are two active sub-committees which meet up to of seriously ill children and young people. Physical and of the company and enable them to ensure that the • Lucy Pratt, Rare Conditions Information Officer at five times a year and have delegated responsibility for material needs matter but there is a major gap in the financial statements comply with the Companies Act Contact a Family more in-depth strategic oversight of specific areas: provision of support for social and emotional wellbeing. 2006. They are also responsible for safeguarding the fundraising and marketing; and finance and HR. Each • Becky Seale, Programme Manager at the King’s Fund assets of the company and for taking reasonable steps for sub-committee consists of at least two trustees, the Charity aims and activities: listed on page 4. • Justin Simon, Independent Social Worker at Child CEO and the staff member with lead responsibility for the prevention and detection of fraud and other Centred Consultancy that area. Graham Faulkner and Roger Hills sit on the Over 2014-15 the charity created and funded two new irregularities. finance and HR sub-committee, and Donald Sturrock, Parents specialist children’s nurse posts, provided direct support Insofar as the trustees are aware: Virginia Myer and Georgina Cannon sit on the fundraising • Renata Blower, parent, blogger and SWAN UK advisor for 54 families in financial hardship caring for their seriously and marketing sub-committee. The charity is very • there is no relevant audit information of which the • Ruby Edwards, founder of Funny Blood ill child, supported 12 nurses with training grants, carried fortunate in drawing on the advice and expertise of company’s auditor is unaware; and • Scott Liddle, Chairman of Hope for Paediatric Epilepsy its advisory groups, who are experts in their fields and out research into communications between healthcare • Lynne Thompson, founder and CEO, Breathtakers generous with their time. professionals and seriously ill children and contributed • the trustees have taken all steps that they ought to OB Trust to overall policy discussions which affect the current and have taken to make themselves aware of any relevant Appointment and Training of Trustees future wellbeing of seriously ill children. audit information and to establish that the auditor is Chief Executive The charity has a written role description for trustees. aware of that information. Richard Piper Prospective candidates generally submit a CV and letter The trustees confirm that they have complied with the The trustees are responsible for the maintenance and of application and are then interviewed and may be duty in Section 4 of the Charities Act 2006 to have due History invited to attend board meetings as an observer. In regard to the Charity Commission’s general guidance integrity of the corporate and financial information included on the company’s website. Legislation in In 1991 Roald Dahl’s widow, Felicity Dahl, created the recruiting new trustees the board of trustees looks for on public benefit when planning their future activities. Roald Dahl Foundation (registered charity no: 1004230) individuals with skills, experience and connections of the United Kingdom governing the preparation and as a charitable Trust, to support charitable causes which value to the charity and which are not represented dissemination of financial statements may differ from were important to Roald Dahl during his lifetime. Sir amongst the existing trustees. Trustees benefit from Why we are presenting the legislations in other jurisdictions. Quentin Blake and Felicity Dahl were two of the initial a structured induction, opportunities for training and Small Companies Provisions trustees. Funds came from returns on an endowed meeting our beneficiaries. financial information below Various laws and regulations make the trustees (who This Report has been prepared in accordance with the investment and from the Readathon campaign with Investment Powers which the charity worked closely. In 2005 the Roald are also the Directors of Roald Dahl’s Marvellous Children’s special provisions for small companies under Part 15 of Dahl Museum and Story Centre was established with The Memorandum and Articles of Association give the Charity for the purposes of company law) responsible the Companies Act 2006. a remit around literacy, so the charity dropped literacy trustees a wide discretion to invest funds. for preparing this Report of the Trustees (incorporating from its own remit in order to focus exclusively on their Director’s report) and the accompanying financial Signed: Date: 24 November 2015 Risk Management children and young people badly affected by health statements. conditions. In 2007 the Dahl family formalised their The trustees have taken steps to manage identified risks generous donations to the charity through the formation and uncertainties on an ongoing basis. The systems Company law requires the trustees to prepare financial of the Roald Dahl Charitable Trust. in place are documented and risks and systems are statements for each financial year. The trustees have reviewed regularly. elected to prepare the financial statements in accordance Martin Goodwin In 2010 the trustees of the Roald Dahl Foundation took with United Kingdom Generally Accepted Accounting the decision that the most effective way of developing Related Parties Practice (United Kingdom Accounting Standards and On behalf of the trustees of Roald Dahl’s Marvellous its work would be to create an incorporated charity to In this period, the charity received donations totalling applicable law). The trustees must not approve the Children’s Charity

20 21 How we are funded

Roald Dahl’s Marvellous Children’s Charity Auditor’s-report Statement of financial activities for the period ended 31 March 2015 Independent auditor’s report to the members of with, the knowledge acquired by us in the course of Unrestricted Restricted Designated TOTAL TOTAL Roald Dahl’s Marvellous Children’s Charity performing the audit. If we become aware of any apparent (General) Fund Capital Year ended Year ended material misstatements or inconsistencies we consider We have audited the financial statements of Roald Fund Fund 31 March 31 March the implications for our report. Dahl’s Marvellous Children’s Charity for the year ended 2015 2014 31 March 2015 which comprise the Statement of Financial Opinion on financial statements Activities, the Balance Sheet and the related notes Notes £ £ £ £ £ number 1 to 16. The financial reporting framework that In our opinion the financial statements: Incoming Resources has been applied in their preparation is applicable law • give a true and fair view of the state of the charitable and United Kingdom Accounting Standards (United company’s affairs as at 31 March 2015, and of its Incoming Resources from Kingdom Generally Accepted Accounting Practice). incoming resources and application of resources, generated funds This report is made solely to the charitable company’s including its income and expenditure, for the year then ended; Voluntary income members, as a body, in accordance with Chapter 3 of • have been properly prepared in accordance with Part 16 of the Companies Act 2006. Our audit work has Donations and gifts been undertaken so that we might state to the charitable United Kingdom Generally Accepted Accounting Practice; and company’s members those matters we are required to - Read for Good - 155,000 - 155,000 149,525 state to them in an auditor’s report and for no other • have been prepared in accordance with the requirements purpose. To the fullest extent permitted by law, we do of the Companies Act 2006. - Burdett Trust for Nursing - 93,924 - 93,924 - not accept or assume responsibility to anyone other Opinion on other matter prescribed by the than the charitable company and the charitable company’s - RDCT 281,850 281,850 232,523 Companies Act 2006 members as a body, for our audit work, for this report, or for the opinions we have formed. In our opinion the information given in the Annual - other donations 9,325 - - 9,325 14,616 Report for the financial year for which the financial Respective responsibilities of trustees and auditor statements are prepared is consistent with the financial - Donation in Kind 26,138 - - 26,138 26,138 As explained more fully in the Trustees’ Responsibilities statements. Income from fundraising 4 201,742 13,000 - 214,742 398,093 Statement, the trustees (who are also the directors of Matters on which we are required to report by the charitable company for the purposes of company exception Investment income 5 46,970 - - 46,970 47,835 law) are responsible for the preparation of the financial We have nothing to report in respect of the following statements and for being satisfied that they give a true Total Incoming Resources 566,025 261,924 - 827,949 868,730 and fair view. matters where the Companies Act 2006 requires us to report to you if, in our opinion:

Our responsibility is to audit and express an opinion on Resources Expended • adequate accounting records have not been kept or the financial statements in accordance with applicable Cost of generating funds 6 342,788 - - 342,788 273,104 law and International Standards on Auditing (UK and returns adequate for our audit have not been received from branches not visited by us; or Ireland). Those standards require us to comply with the Charitable activities 7 288,557 264,160 - 552,717 574,099 Auditing Practices Board’s Ethical Standards for Auditors. • the financial statements are not in agreement with the accounting records and returns; or Governance costs 8 37,398 - - 37,398 29,310 Scope of the audit of the financial statements • certain disclosures of trustees’ remuneration specified An audit involves obtaining evidence about the by law are not made; or Total Resources Expended 668,743 264,160 - 932,903 876,514 amounts and disclosures in the financial statements • we have not received all the information and Net (outgoing) /incoming sufficient to give reasonable assurance that the financial explanations we require for our audit. resources (102,718) (2,236) - (104,954) (7,783) statements are free from material misstatement, whether • the trustees were not entitled to prepare the financial caused by fraud or error. This includes an assessment of: statements in accordance with the small companies Other recognised gains and losses for the year • whether the accounting policies are appropriate to regime and take advantage of the small companies exemption in preparing the directors’ report. Unrealised gains / (losses) on the charitable company’s circumstances and have 11 - - 44,045 44,045 24,917 been consistently applied and adequately disclosed; revaluation of investment assets • the reasonableness of significant accounting estimates Net Movement in Funds (102,718) (2,236) 44,045 (60,909) 17,134 made by the trustees; and James Foskett 2 December 2015 • the overall presentation of the financial statements. – Senior Statutory Auditor For and on behalf of Fund Balances brought forward 274,224 3,242 1,183,291 1,460,757 1,443,623 Cansdales Chartered Accountants & Statutory Auditors In addition, we read all the financial and non-financial Fund Balances carried forward £171,506 £ 1,006 £1,227,336 £ 1,399,848 £ 1,460,757 information in the Annual Report to identify material Bourbon Court at 31 March 2015 inconsistencies with the audited financial statements Nightingales Corner and to identify any information that is apparently Little Chalfont All gains and losses are included above so a statement of total recognised gains and losses has not been presented. materially incorrect based on, or materially inconsistent Bucks HP7 9QS The notes on pages 25 to 31 form part of these financial statements.

22 23 How we are funded

Notes For The Financial Statements For The Year Ended 31 March 15 Balance-sheet-As-At-31-March-2015 1. Accounting Policies Fixed Assets 31 March 2015 31 March 2014 Basis of accounting Depreciation is provided at the following rates in order to write off the original cost of each asset, less any expected Notes £ £ These financial statements have been prepared under the historical cost convention, except for investments residual value, over estimated useful life. Depreciation on Fixed Assets which are included at market value. The financial additions is charged from the date of purchase. statements have been prepared in accordance with Fixtures, fittings and equipment 20% per annum straight Investments 11 1,553,825 1,506,543 the Statement of Recommended Practice: “Accounting line. Assets are only capitalised where they cost £1,000 and Reporting by Charities”, reissued in July 2008 (SORP or more. 2005), the Charities Act 2011 and in accordance with Current Assets applicable accounting standards and the Companies Realised and unrealised gains/losses on investments Debtors 12 9,546 144,116 Act 2006. Realised gains/losses on the disposal of investments Basis of consolidation are calculated by reference to the market value of those Cash at bank and in hand 386,277 250,546 investments at the start of the accounting period or, if As described in Note 11, RDF Limited, a wholly owned purchased during the accounting period, the cost of subsidiary undertaking, has not been consolidated in 395,823 394,662 acquisition. Unrealised gains/losses reflect the increase these financial statements on the basis of materiality. /decrease in value during the accounting period of Liabilities: Incoming Resources investments held throughout that period or, in the case of investments purchased during the accounting period amounts falling due within one year 13 308,144 283,514 Income is recognised in the period in which the charity and still held at the end of the period, the increase is legally entitled to the income and the amount can /decrease in value compared to their acquisition cost. be quantified with reasonable accuracy. Investment Net Current Assets 87,679 111,148 income and income from fundraising are included on a Fund Accounting receivable basis. Total Assets less Current Liabilities 1,641,504 1,617,691 General funds are unrestricted funds used for furthering Grants made the objects of the charity. The designated capital fund is an expendable endowment. The Charity receives monies Grants made to individuals and institutions are charged Liabilities: that are subject to specific conditions imposed by the to the Statement of Financial Activities when they have donor and these are treated as restricted funds. Such amounts falling due after one year 13 241,657 156,934 been authorised by the Trustees and communicated to income and related expenditure is separately identified the recipients before the year end. in the Statement of Financial Activities and restricted Net Assets 14 £1,399,848 £1,460,757 Resources Expended funds are recorded on the Balance Sheet. See note 2 for Expenditure is recognised on an accruals basis. Costs further details. Capital Funds unattributable to a specific area of activity are allocated to the Statementof Financial Activities on the basis of Designated Capital Fund 3 1,227,336 1,183,291 staff time spent in relation to the respective area of activity. Cost of generating funds comprises fundraising Income Funds expenditure and donor recruitment costs. Charitable activities expenditure includes grants made in support Restricted 2 1,006 3,242 of the charity’s objectives with associated support costs. Governance costs are those costs relating to compliance Unrestricted 171,506 274,224 with constitutional and statutory requirements.

Total Funds £1,399,848 £1,460,757 Investments Quoted investments are included at market value at the Balance Sheet date. Unquoted investments are included at cost. Cash deposited with the brokers on a short-term basis has been included under “Investments”.

These financial statements have been prepared in accordance with the special provisions for small companies under Part 15 of the Companies Act 2006 Approved by the trustees and authorised for issue on and signed on their behalf by Martin Goodwin. Company Registration Number: 7340518. Martin Goodwin. The notes on pages 25 to 31 form part of these financial statements. 24 November 2015

24 25 How we are funded

2. Income Funds Notes For The Financial Statements For The Year Ended 31 March 15 The Restricted Fund accounts for: A grant of £93,924 was generously awarded by the Burdett Trust for Nursing (Registered Charity No: 1089849) in continued April 2014 to fund our Marvellous Nurse Inventing Room programme which stimulates, funds, supports and champions nurse-led innovation projects that improve the long-term social and emotional wellbeing of seriously ill children and young people. 6. Cost of Generating Funds Year ended Year ended Unrestricted Restricted 31 March 31 March Funds of £155,000 were gratefully received from Read for Good (Registered Charity No: 1130309) in March 2015 to 2015 2014 fund a rare disease specialist Roald Dahl nurse at Birmingham Children’s Hospital (£80,465) and our Family Resilience £ £ Total Total Programme (£74,535).

£10,000 was received from the Openwork Foundation and £3,000 from a number of other trusts in support of our Dahlicious School Campaign Costs 43,070 - 43,070 31,306 Stronger Families Fund. Other Direct costs 58,193 58,193 38,822 3. Designated Capital Fund Donor recruitment 11,984 - 11,984 5,074 The Charity also holds the sum of £1.23 million which is the aggregate value at the year end of the founding endowments Staff Costs 177,668 - 177,668 134,648 of the predecessor charity (the Roald Dahl Foundation registered Charity No: 1004230). This sum is designated to be Support costs (note 9) 51,874 - 51,874 63,254 retained as expendable capital to support future income generation and as a reserve for lean periods in line with the donor’s wishes. It is held in an investment portfolio the value of which can vary over time. £342,788 £- £342,788 £273,104

7. Charitable Activities Year ended Year ended 4. Income from Fundraising Year ended Year ended 31 March 2015 31 March 2014 31 March 2015 31 March 2014 £ £ Unrestricted Restricted Total Total Partnerships and Trusts 61,805 249,224 £ £ £ £ Dahlicious School Event 70,008 63,634 Grants made (see below) 153,765 261,394 415,159 468,335 Challenge & Sporting Events Event 50,865 21,465 Support costs (note 9) 24,900 2,766 27,666 33,735 Payroll Giving 11,806 12,406 Staff Costs 89,146 - 89,146 66,642 Appeals & Regular Giving 2,231 3,269 Direct Costs 20,745 - 20,745 5,387 Sale of Food & Drink & Badges 11 1,341 £288,557 £264,160 £552,717 £574,099 Special Events - 20,210 Commitments at 31 March 2014 (396,661) (25,275) (421,936) (308,086) General Community 18,016 26,544 Payments made in the period: 244,524 68,366 312,890 371,866 £214,742 £398,093 Grants Repaid - - - (17,381) Commitments at 31 March 2015 305,902 218,303 524,205 421,936 5. Investment Income Year ended Year ended £153,765 £261,394 £415,159 £468,335 31 March 31 March 2015 2014 Full details of grants paid during the year are set out in the Trustees’ Report. Unrestricted Restricted Total Total £ £ £ £ 8. Governance Costs Year ended Year ended 31 March 2015 31 March 2014 Income from investment 43,100 - 43,100 45,952 portfolio Unrestricted Restricted Total Total Bank and brokers’ interest 3,870 - 3,870 1,883 £ £ £ £ £46,970 £- 46,970 £47,835 Audit fee 4,000 - 4,000 3,885 Income from the investment Legal & Professional fees 8,618 - 8,618 - portfolio comprises: Staff Costs 17,032 - 17,032 15,862 £ Other expenses 831 - 831 1,129 Income from UK investments 43,100 Support costs (note 9) 6,916 - 6,916 8,434 £43,100 £37,398 £- £37,398 £29,310

Trustees expenses of £274 were reimbursed (£418 2014).

26 27 How we are funded

9. Support Costs Notes For The Financial Statements For The Year Ended 31 March 15 Cost of Year ended Year Ended Generating Charitable 31 March 31 March continued Funds Activities Governance 2015 2014 11. Investments (continued) £ £ £ Total Total Staff costs 25,191 13,435 3,359 41,984 48,284 The subsidiary undertaking’s audited financial statements for the year ending 5 April are summarised below: Sundry administration expenses 10,073 5,371 1,343 16,787 28,994 Sundry administration payments in kind 3,683 1,964 491 6,138 6,138 Year Ended Year Ended Rent paid in kind 12,000 6,400 1,600 20,000 20,000 5 April 2015 5 April 2014 Rates 927 494 124 1,545 2,007 £ £ £51,874 £27,666 £6,916 £86,455 £105,423 Profit and loss: Turnover 8,068 12,892 Support costs are allocated on the basis of time spent on each activity. Cost of sales (883) (1,364) 10. Staff Costs Year ended Year ended Administrative expenses (2,013) (1,933) 31 March 2015 31 March 2014 Donation to Roald Dahl’s Marvellous Children’s Charity - (161) Total Total Profit on ordinary activities and retained profit for the period £5,172 £9,434 £ £ Salaries 283,191 229,315 £ £ Employers NI 26,940 20,996 Balance sheet: Pension 17,699 15,124 Intangible fixed assets 3 6 Total Staff Costs £327,830 £265,435 Net current assets/(liabilities) 2,128 2 ,953

The average number of employees during the period was 8 FTE (2014 7 FTE) . No staff members were paid more than £60,000. Loan from Felicity Dahl (277,127) (277,127) Net liabilities £(268,996) £(274,168) 11. Investments Year ended Year ended 31 March 2015 31 March 2014 As the accumulated losses of the company have been underwritten by Mrs F A Dahl personally to the extent that they £ £ may not be recouped from future profits, the subsidiary has not been consolidated into the financial statements of the Quoted investments at market value 1 ,227,336 1,183,291 Charity on the grounds of materiality. Unquoted investments at cost 2 2 12. Sundry debtors Year ended Year ended Capital cash on deposit with brokers 326,487 323,250 31 March 31 March £1,553,825 £1,506,543 2015 2014 £ £ Movements on quoted investments were as follows: £ £ The following were receivable at 31 March 2015 Market value at 31 March 2014 1,183,291 1,158,374 Income Tax recoverable 9,546 5,998 Net (losses)/ gains on revaluation at 31 March 2015 44,045 24,917 Accrued income - 138,118 Market value at 31 March 2015 £1,227,336 £1,183,291 £9,546 £144,116

Historical cost at 31 March 2014 £1,164,899 £1,164,899 No commission has been charged in respect of sales and purchases of investments.

Quoted investments at market value consist of the following: £ £ UK Investments 1,227,336 1,183,291 £1,227,336 £1,183,291

UK investments at 31 March 2015 consists of unit holdings in the Schroder Charity Multi Asset Fund. The unquoted investment represents the whole of the issued share capital of RDF Limited. The principal activity of this wholly owned subsidiary is to build up and maintain a musical library of Roald Dahl’s works. The subsidiary undertaking’s audited financial statements have been filed with the Registrar of Companies.

28 29 How we are funded

13. Liabilities Year ended Year ended Notes For The Financial Statements For The Year Ended 31 March 15 31 March 31 March 2015 2014 continued £ £ 16. Analysis of Funds Income Expenditure At 31 Liabilities: amounts falling due within one year At 31 March and gains on and gains on March Grants committed 282,548 265,002 2014 investments investments Transfers 2015 Professional fees 4,578 4,080 £ £ £ £ £ Other taxes and social security costs 7,458 6,072 Unrestricted funds Sundry creditors 13,560 8,360 General funds 274,224 284,175 (435,255) - 123,144 £308,144 £283,514 Designated Funds: Funding reserve - 281,850 (233,487) - 48,363 Liabilities: amounts falling due after one year Sub-total Grants Committed 241,657 156,934 non- capital funds £274,224 £566,025 £(668,743) - £171,506 £241,657 £156,934 Designated Capital Fund 1,183,291 44,045 - - 1,227,336

Grants Committed Total unrestricted funds £1,457,515 £610,070 £(668,743) £- £1,398,842 Amounts falling within one year £282,548 £265,002 Amounts falling after one year £241,657 £156,934 Restricted funds: Total Grants Committed (note 7) £524,205 £421,936 Burdett Fund for Nurses 3,242 93,924 (170,695) ( 73,529) Readathon 155,000 (80,465) 74,535 14. Analysis of Net Assets Between Funds Trusts 13,000 (13,000) - Unrestricted Restricted Designated Total net Total restricted funds £3,242 £261,924 (251,160) £- £1,006 Fund Fund Capital Fund assets £ £ £ £ Total funds £1,460,757 £871,994 £(919,903) £- £1,399,848 Fund balances at 31 March 2015 are represented by: Investments 326,489 - 1,227,336 1,553,825 Designated funds Current assets 169,004 226,920 - 395,924 Income received from the Roald Dahl Charitable Trust has been designated to contribute towards the cost of: Liabilities (285,984) (263,816) - (549,800) a) the core strategic management of charitable expenditure Total funds £209,509 (36,896) £1,227,336 £1,399,949 b) the marketing & communications strategy development; c) it will also be used to fund certain agreed elements of fundraising, human resources, finance and charity governance. 15. Transactions With Related Parties Designated Capital Fund Trustee expenses of £274 (£418) were reimbursed to a trustee for costs of travel and subsistence. The Charity also holds the sum of £1.23 million which is the aggregate value at the year end of the founding endowments of the predecessor charity (the Roald Dahl Foundation Registered Charity No: 1004230). This sum is Other than these, there were no transactions with related parties other than donations received from trustees. designated to be retained as expendable capital to support future income generation and as a reserve for lean periods During the year the Charity held investments in the Schroder Charity Multi Asset Fund. One of the trustees, Roger in line with the donor’s wishes. Hills, is a member of the Supervisory Board of trustees of this Fund. This is an unpaid appointment. Restricted funds: A grant of £93,924 was generously awarded by the Burdett Trust for Nursing (Registered Charity No: 1089849) in April 2014 to fund our Marvellous Nurse Inventing Room programme which stimulates, funds, supports and champions nurse-led innovation projects that improve the long-term social and emotional wellbeing of seriously ill children and young people.

Funds of £155,000 were gratefully received from Read for Good (Registered Charity No: 1130309) in March 2015 to fund a rare disease specialist Roald Dahl nurse at Birmingham Children’s Hospital (£80,465) and our Family Resilience Programme (£74,535). £10,000 was received from the Openwork Foundation and £3,000 from a number of other trusts in support of our Stronger Families Fund.

30 31 Montague House, 23 Woodside Road, Amersham, Buckinghamshire, HP6 6AA Tel: 01494 890465 Email: [email protected] Twitter: @RoaldDahlFund Registered Charity No. 1137409 Company Registered England and Wales No. 7340518 www.roalddahlcharity.org