Annual Report

2017 ANNUAL REPORT WWW.SIDE-OUT.ORG 2017 ANNUAL REPORT OUR MISSION Through youth education and empowerment, The Side-Out Foundation unifies the volleyball community to drive change in the way that breast cancer is treated. THE SIDE-OUT PROTOCOL ...................................................... 3 TABLE OF 2017 GRANTS ................................................................................... 5 CONTENTS LEADERSHIP .................................................................................... 6 MESSAGE FROM THE DIRECTOR ......................................... 7 MESSAGE FROM THE COO ....................................................... 8 MAJOR EVENTS OF 2017 .......................................................... 9 APRIL ROSS AND SIDE-OUT ................................................... 14 2017 AWARDS .................................................................................. 15 FRIENDS OF SIDE-OUT .............................................................. 18 MISCELLANEOUS NEWS ........................................................... 19 WALL OF HEROES ........................................................................ 20 LOOKING AHEAD .......................................................................... 23 2 2017 ANNUAL REPORT The Side-Out Foundation made great strides in our commitment to game- THE SIDE-OUT changing research in 2017. To better understand what we completed in 2017, it is PROTOCOL necessary to recap what was accomplished prior to the beginning of the year. hase one of The Side-Out that worked for patients, providing immediately. As soon as a patient Protocol (SIDEOUT 1) tested benefits for 56% of those previously qualifies, they are placed on a drug the concepts of a Multi-omic treated for metastatic breast that can help them (based on their PProfiling approach on stage IV cancer. For the second time during individual biomarkers - information breast cancer and gave us the base The Side-Out Protocol, our results that tells us what drugs may or may of our study. Using this approach, merited further investigation, which not work for this specific patient). almost 50% of patients increased ushered us into the third phase of There is no way to predict how their Progression Free Survival our study, SIDEOUT 3. short/long the recruitment process Rate (PFS). The PFS represents will take, but we are excited to the length of time during and after SIDEOUT 3 is the largest phase move forward with this third phase the treatment of a disease that a of The Side-Out Protocol with the of our trial. patient lives with the disease but it study’s largest number of recruited does not progress, meaning it does patients. The purpose of continuing As we move into 2018, there are not get worse. These results led to to focus on Multi-omic Profiling has three things we are excited to share a need for expansion in our second not changed in the third phase, but with the breast cancer community. phase, SIDEOUT 2. The second we are now working with patients First, we will continue to present phase results saw the PFS numbers that have been more recently our results from SIDEOUT 2 with of more patients increase and beat diagnosed with stage IV. As of researchers from around the world the results of SIDEOUT 1. the beginning of 2018, we are in and show the impactful benefits of the patient recruitment stages of Multi-omic Profiling. Second, we are This brings us to 2017. Our past SIDEOUT 3. When people hear the recruiting for SIDEOUT 3 and hope year saw the completion of word recruitment, they may believe to reach even more patients with SIDEOUT 2 and preparation of the our researchers are waiting to reach our findings. Third, we are working results to be presented at major our goal of 100 participants to on a community database to share conferences like the 2018 American begin work on the third phase. That our findings with others in the field Society of Clinical Oncology is not the case. While each patient and allow them to understand the Conference. The research results joins the study at a different time, benefits of personalized medicine found more drug combinations they are monitored and treated for the stage IV community. 3 THE SIDE-OUT PROTOCOL 2017 ANNUAL REPORT OUR RESEARCH PARTNERS SIDEOUT 3 TRIAL LOCATIONS The very nature of the Side- Out“ Foundation sponsored clinical trials is to utilize the most cutting-edge technological approach to precision medicine in the entire world! I don’t know any other effort with such direct impact- and it’s all because of volleyball.” EMANUEL (CHIP) PETRICOIN PH.D Co-Director Center for Applied Proteomics and Molecular Medicine - George Mason University 4 2017 ANNUAL REPORT Side-Out offers teams the opportunity to donate 25% of their Dig Pink® initiative’s funds locally through a grant program. The foundation understands 2017 GRANTS the importance for teams to donate locally and is happy to support both local communities and the breast cancer community as a whole. THE FOLLOWING ORGANIZATIONS RECEIVED GRANTS IN 2017: THE ROSE: PATIENT SERVICES UNIVERSITY OF PENNSYLVANIA HOUSTON, TX PHILADELPHIA, PA donated by The John Cooper School donated by UPenn Volleyball This experience has made me feel“ empowered and humbled. My experience and the way I look at Dig Pink® has evolved over the last four years that I’ve OHIO STATE UNIVERSITY FOUNDATION: CLARK FAMILY BREAST CANCER SERVICES participated in Dig Pink Events. SUPPORT FOR SPIELMAN FUND FOR BREAST CHERRY HILL, NJ ” CANCER RESEARCH COLUMBUS, OH ALYSSA DALLMER donated by Upper Arlington High School 2017 Side-Out Ambassador 5 2017 ANNUAL REPORT 2017 BOARD OF DIRECTORS SCIENTIFIC ADVISERS LEADERSHIP RICK DUNETZ DANIEL D. VON HOFF Founder and Executive Director M.D., F.A.C.P. The Side-Out Foundation Physician in Chief, Distinguised Professor Translational CECILE REYNAUD Research Division, Translational Genomics Former Head Women’s Volleyball Coach, Research Institute (TGen) Florida State University Chief Scientific Officer, Scottsdale Healthcare’s Board of Directors, American Volleyball Clinical Research Institute Coaches Association Medical Director of Research, McKesson Being that it’s a solely volleyball “ President, Alliance of Women Coaches Specialty Health foundation, it’s like keeping it CAP Clinician, USA Volleyball Scientific Medical Officer, US Oncology Research Professor of Medicine, Mayo Clinic, Scottsdale, AZ in the family. It teaches kids RICHARD ADLER and high school students that Advisory Board Member, SilverLine Global, Inc., NICHOLAS ROBERT, MD they need to give back and the Board of Directors, Triathlon Business International Oncologist/Hematologist, importance of giving back. It’s Virginia Cancer Specialists SINJIN SMITH Chairman, American Society of Clinical Oncology an easy way to do it and to fire President, Rally Volleyball at Lake Point Sports (ASCO) Community Research Forum people up. Partner, World Series of Beach Volleyball ” Partner, Be the Beast College Recruiting Athletic Board Member, ASEA Cellular Health APRIL ROSS President/Owner, National Collegiate Professional Beach Volleyball Player Sand Volleyball Championships President, Association of Volleyball Professionals (AVP), Pro Beach Volleyball Tour DAN EHRMAN Principal, Seven Acre Associates 6 MESSAGE FROM THE DIRECTOR 2017 ANNUAL REPORT DEAR SUPPORTERS, am a dreamer and a sneaky- moved and inspired to see how and give them personalized secret rock star wannabe. I am our small, driven community is treatments at 10-12 cancer centers one of those folks that pops in significantly impacting change in around the country, including the Imy earbuds, plays my favorite hard the cancer world. It is why The University of Pennsylvania and rockin’ tune, and struts down the Side-Out Foundation came about Cedars Sinai in California. And we street imagining that the whole in the first place. are growing team participation and world is jammin’ along with me. community impact every year! While outcomes are critical to our Yes, it is silly to think that this would credibility and our success as an As I look back at this past year, ever happen outside of shooting a organization, we will always stay it’s hard not to be proud of the music video, but it does represent grounded and keep connected to tremendous accomplishments a vivid picture of the growing our beloved volleyball community. of the Dig Pink movement. We connection between Side-Out We will stay invested in our are extremely grateful for the and the volleyball community. 10 foundation’s history, and remind continued support of the volleyball years ago, when Dig Pink was just a ourselves to look back at all the community. Together, we are glimmer in my eye, we had no idea teams, players, coaches, parents reshaping diagnosis and treatment it would be so amazing. Everyday and administrators who got us of stage IV breast cancer. more and more volleyball players, to this point. It has always been coaches, parents and enthusiasts Volleyball, we thank you! my belief that if we stay true to are hearing our jams and strutting ourselves, have a clear mission, and down the street with us. RICK DUNETZ work hard, the outcomes we desire Executive Director The Dig Pink movement is 10 years will happen. The outcomes will take old and thousands of teams from care of themselves. around the country have come Looking forward, the future looks together to fund one the most bright. In 2018, we launched phase revolutionary clinical trials in stage three of our clinical trial that is IV breast cancer. The

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