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A lifetime of specialist care

D 0 P 0 m E 0 e A

0 PatientThe newsletter for patients and ourFocus foundation trust members | Issue 3 – Spring 2014 g 1 0 0 e

Royal Brompton 0 2 s 0 Welcome to 0 – our plans for the future a h 0 Royal Brompton & NHS Investment in is the latest issue j Foundation Trust is the UK’s leading ongoing and there are no plans to centre for heart and lung disease; sell or move from this well- It is an exciting time for the Trust as plans progress to rebuild , 0 two of the world’s biggest killers. established site. consolidating services on one state-of-the-art i Investing in new and existing 0 Exhibition of plans facility in Sydney Street. It is vital that we raise n facilities at Royal Brompton Hospital the appropriate funding to enable this is essential. It is increasingly difficult A four-day public exhibition was ambitious project to go ahead. More details to deliver the care patients deserve held in February to share the opposite. 0 1 from some of our ageing buildings. evolving plans for Royal Brompton. a 0 We need 21st century state-of-the Over 330 people attended the We began a series of member events in 2013; a art facilities to continue to save lives exhibition and the majority the first in October and the second in November – read about them on page 2. More events are w and provide world-class care for expressed support for the planned for this year and will be advertised in 0 patients. Having assessed the redevelopment plans. A further d @ possible options, including exhibition will be held in June and Patient Focus and the members’ section of the Trust’s website. relocating, the Trust Board has taken we encourage you to come along the decision to continue developing and find out more about our exciting We are pleased to welcome five new governors on the current Sydney Street site in and ambitious plans for the future. to the Trust and we look forward to the valuable U L Chelsea. contributions they will make to our work. You 3 Want to know more? can read more about them on pages 4 and 5. The costs will be substantial – in the 0 l region of £580 million – but the You can visit our redevelopment If you are interested in contributing to our h w website – http://royalbrompton long-term benefits will be exciting research work in heart and/or lung h consultation.rbht.nhs.uk/ – to see @ enormous. To achieve this, we need heath, see pages 8-9 for more to sell property in the local area the plans, read the feedback from information. 2 owned by the Trust and its Charity the first exhibition and stay up to 0 F Finally, I hope you enjoy for the highest possible return, date with all the issues and progress. o 0 reading Patient Focus. h c which will allow us to invest the If you have any questions, please get money into providing a truly modern in touch with our community hospital. This means we need to gain consultation team. permission from the Royal Borough

of Kensington & Chelsea to sell Freephone: 0800 881 5442 0 B some property for residential use. Email: [email protected] 0 i Put simply, if we cannot raise Philippa Allibone, c enough money, we cannot improve Freepost RTBH-CATL-ZXGT membership w our facilities to the level needed and Director of Capital Projects and manager

we will be forced to continue Development 1 0 applying costly temporary fixes and Royal Brompton Hospital K remedial works so that our patients Sydney Street 0 k can get the care they need. SW3 6NP

Outpatients’ service evaluation for Have your say on our strategic plans Diary dates patients with a disability Pages 6-7 Page 11 Page 3 Patient Focus Spring 2014.qxd:Layout 1 07/05/2014 14:27 Page 3

page 2 – Patient Focus Spring 2014

Cardiac catheter laboratories tour – Harefield Hospital

The Trust’s inaugural members’ event was held on Wednesday 16 October – a “behind the scenes” look at the cardiac catheterisation laboratories at Harefield Hospital. Mark Bowers, catheter lab manager, led the tour, giving a brief history of Harefield and explaining the primary angioplasty 5Chris Prytherch, radiographer, with visitors to Harefield Hospital programme, which has one of the fastest arrival-to-treatment times in the UK – a critical element in patients’ survival. Members were impressed by the enthusiasm and knowledge of Primary angioplasty is an emergency treatment for heart the staff involved and gave us some excellent feedback: attack. “Excellent explanations, well illustrated by seeing the actual Members took the opportunity to find out more about cardiac equipment (X-rays) and products used (stents).” electrophysiology, the X-ray equipment and the different types “Very informative and very reassuring. Particularly if an of procedures performed in the cath labs. They were shown individual has to have one of the procedures discussed.” pictures of angiograms and a cardiac stent being inserted into a coronary artery and were able to closely examine the cardiac “Delightful staff who took interest in explaining. A ‘big thank you’ catheters and stents. to everybody in the labs”. “Advances in cardiomyopathy” – Royal Brompton On Wednesday 27 November, over 30 Royal Brompton & Harefield NHS cardiomyopathy, to the podium to talk Trust members attended a talk entitled Foundation Trust is active in research in about living with the condition, the “Advances in cardiomyopathy – what we cardiomyopathy, which Dr Prasad agrees symptoms of which he had first are doing and where we are going” by Dr is the way forward in discovering the experienced as a child when he became Sanjay Prasad, consultant cardiologist at best treatments. For example, breathless after the smallest exertion. Royal Brompton Hospital. cardiovascular magnetic resonance (CMR) He has been a patient at Royal Brompton has already proved a better tool for Cardiomyopathy is a disease of the heart for 10 years, and said the care and diagnosing heart failure caused by muscle and a leading cause of heart treatment he has received have greatly dilated cardiomyopathy (DCM) than a failure. Dr Prasad explained the different contributed to the good quality of his standard angiogram. Dr Prasad showed types of cardiomyopathy: hypertrophic, life now. images of several cases of dilated and arrhythmogenic right cardiomyopathy, explaining their Several members asked pertinent ventricular. He also spoke about chronic background and the differences between questions about the MRI images and heart failure treatments, prognosis, each. were also keen to know how to improve morbidity and prevention. the quality of life of patients with Genetic research is also important and a One of the most important approaches cardiomyopathy. recent breakthrough has identified a for the successful treatment of mutation in the Titin gene, which is One member commented: cardiomyopathy is early diagnosis and, as found in one in four patients diagnosed the disease is often inherited, Dr Prasad “The talk was interesting, simple to with DCM. and colleagues have started a understand and informative. The time cardiomyopathy clinic, where an entire Towards the end of his talk, Dr Prasad flew by. I could have stayed listening family can be screened for the condition. invited Mr Peter Klinger, a patient with all night.” Patient Focus Spring 2014.qxd:Layout 1 07/05/2014 14:27 Page 4

Patient Focus Spring 2014 – page 3

Outpatients’ service evaluation for patients with a disability

We evaluated outpatients’ services at made the following changes to improve ¼ Provided more water coolers for patient Royal Brompton Hospital between the experience for patients: use. February and April 2013 to gain ¼ Trained outpatient staff and those ¼ Refurbished some treatment rooms. information on how we can improve the working in adult congenital heart experience of patients with a physical ¼ Employed a new ECHO technician for disease and the pulmonary patients with adult congenital heart and learning disability. hypertension teams in communication disease. The evaluation involved six patients with and Makaton (a type of sign language) physical and learning disabilities, and skills. ¼ Updated information about disabled parking on the Trust website. their carers, who were shadowed during ¼ Added a sign outside Chelsea Wing their outpatient visits and interviewed advising wheelchair patients to use the We have undertaken a similar service afterwards. Shadowing patients was Sydney St entrance. Information has evaluation in outpatients at Harefield found to be extremely insightful, also been included in outpatient letters Hospital. Results will be available soon. particularly with patients who often for patients having an echocardiogram If you would like to know more about the experience difficulty in communicating. (ECHO). evaluation, please contact: Melanie Foody, Staff, including consultants, nurse ¼ Re-arranged seating in outpatients for patient experience and patient & specialists and clinical support assistants easier access for wheelchairs and involvement engagement manager, on were also interviewed. created a designated area for email: [email protected] or As a result of the evaluation, we have wheelchair users. telephone: 020 7351 8208.

Adult congenital heart disease meeting for patients and their families

The adult congenital heart disease (ACHD) team held its fourth annual patient and family conference day at Royal Brompton in March. ACHD consultants, clinical nurse specialists and members of the arrhythmia and psychology teams shared their expertise with over 40 patients and relatives. Attendees took part in focus groups and discussions to share their experiences 5Suzanne Rowsell talks to a patient at the conference with each other. One person commented: “I have gained a greater understanding of my condition Involving patients and families in group and some of the potential future issues.” discussions also gives an invaluable “Involving patients Another commented that it was “good for insight into how best we can enhance our and families... gives patients to get a chance to voice their services in the future.” opinions”. The next ACHD meeting will be in October an invaluable insight Suzanne Rowsell, ACHD clinical nurse – date to be confirmed. If you would like specialist, organised the day and said: more information, please contact Suzanne into how best we can “These educational conferences are a Rowsell on email: [email protected] enhance our services great way of highlighting the facilities and or telephone: 020 7352 8121, bleep support we provide as a specialist trust. 7080. in the future.“ Patient Focus Spring 2014.qxd:Layout 1 07/05/2014 14:27 Page 5

page 4 – Patient Focus Spring 2014

Welcome to our new Trust governors

Dr Alistair Lindsay – staff governor

Alistair is a specialist cardiology well placed to consider issues in terms of registrar at Royal Brompton Hospital. He their impact on both . holds degrees in molecular biology and Alistair interacts with a wide range of medicine from the University of staff on a regular basis giving him the Edinburgh, a DPhil from the University opportunity to garner a broad overview of Oxford, and an MBA from London of staff sentiment. He recently worked Business School. with staff in the cardiac catheterisation In 2010 he was named “Young Trainee of laboratory to introduce a checklist the Year” by the Royal Society of designed to improve patient safety. Medicine. He joined the Trust in 2010 from John Radcliffe Hospital in Oxford where he was the Radcliffe Cardiovascular Fellow, having previously worked at Harefield from 2006 to 2007. He therefore feels

Dr Claire Hogg – staff governor

Claire been a consultant in paediatric facing many areas of medical care in the respiratory medicine at Royal Brompton NHS and wants to ensure that the huge Hospital since 2006 and runs the array of specialist services in the Trust national service for a rare disease called have a secure future for patients, and to primary ciliary dyskinesia (PCD). This help influence plans to develop these has given her extensive experience in services yet further. service development and bidding for Claire is also a Trustee for The Brompton commissioned services. Fountain, an independent charity that She has worked closely with patient supports patients and their families groups to successfully gain a second during their stay at Royal Brompton. nationally funded service, and has now established an extensive multidisciplinary service for both the diagnosis and management of PCD. She has a keen awareness of the issues

Brenda Davies – patient governor, Bedfordshire and Hertfordshire

Brenda underwent triple bypass surgery Since retiring, Brenda has worked as a at Royal Brompton in 2012. She says: volunteer at the Citizens Advice Bureau, “As a very nervous patient, I was and has also been actively involved in overwhelmed by the highly professional raising money for the British Heart standards of all staff and their constant Foundation. positive attitude.” Now retired, Brenda was a teacher and, as a senior member of staff at a special needs school, was partly responsible for the day-to-day running of a complex organisation. Her particular role was as leader of a support and advice team, working with local mainstream schools to ensure the best outcomes for children with learning disabilities. As a child protection officer, she worked together with the police, social services and other agencies to support vulnerable children and their families. Patient Focus Spring 2014.qxd:Layout 1 07/05/2014 14:27 Page 6

Patient Focus Spring 2014 – page 5

Stuart Baldock – patient governor, Elsewhere

Stuart is a former allergy patient at beyond being a patient; he recently Royal Brompton Hospital who wants to graduated with a postgraduate degree give something back to the Trust and from King’s College London following help play a small role in the continued presentation of a dissertation that success of our world-class hospitals. examined and critiqued NHS infrastructure procurement strategy Based in Lincolnshire, Stuart understands between 1997 and 2012. the issues facing many Trust patients outside London and hopes to be a strong voice for our members throughout the country. He is passionate about the role the Council of Governors plays and believes it is vital that patients, staff and members of the public have input into how services are provided. His knowledge of the NHS extends

Dr Ejikeme Uzoalor – patient governor, Elsewhere

Ejikeme is a former patient and, by way Ndi Igbo UK & NI, treasurer of Nigerians of thanks for his excellent care, he has in Diaspora Organisation (NIDO) UK offered the Trust and its members his South, vice chairman of Anaedo Social vast experience gained through serving Club of Nigeria International and numerous organisations at committee foundation governor of St Anthony level. He hopes his extensive skills will Roman Catholic Primary School, Forest help the Council of Governors in Gate. He has also participated in managing and shaping the policies and numerous voluntary and charity projects projects of Royal Brompton & Harefield for several communities in London. NHS Foundation Trust. He qualified as a medical doctor and specialised as a general surgeon at the University of Medicine and Pharmacy, Cluj Napoca, Romania. He is president emeritus of Ohanaeze

Professor Mary Morrell – appointed governor,

Mary is a professor of sleep and pre-existing heart disease, and older respiratory physiology at the National people. Heart and Lung Institute. She received She is replacing Professor Michael her PhD in physiology from London Schneider who resigned his position on University, having previously trained 31 December 2013. and practiced as a nurse at St Mary's Hospital, Paddington. A Wellcome Trust Prize International Travelling Research Fellowship allowed her to complete postdoctorate studies at the University of Wisconsin-Madison. Upon her return to the UK, Mary collaborated with clinical colleagues to set up the Academic Unit of Sleep and Breathing at Royal Brompton Hospital. Mary’s current research focuses on the cardiovascular and neurological consequences of sleep apnoea, particularly in vulnerable patients with Patient Focus Spring 2014.qxd:Layout 1 07/05/2014 14:27 Page 7

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Have your say on our strategic plans

Under the terms of our NHS Provider ¼ Intensive care family satisfaction harm to the patient. While the Trust has Licence, the Trust submits, annually, a surveys: bespoke questionnaires help a good record of medicine safety, over set of forward-looking plans to our staff understand the patient’s and the next year we will make multiple regulator, Monitor. As part of this family’s perspective, and identify small changes to reduce errors and process, the NHS Foundation Trust Code improvements. improve processes. of Governance now requires that our ¼ Lung cancer review: examines the governors canvass the opinion of Trust 2. Partnerships Trust’s cancer service, including members and the public on our strategic surgical and non-surgical support, as We can only provide optimal care for our plan, objectives and priorities. These are well as input from key partners outside patients by operating within a “system of set out below and, on behalf of our the Trust, the relationship with care”. As part of this we will: governors, we invite your comment. referrers and primary care / community ¼ Devote time and resources to nurturing Your views will be reflected in the services. This programme began in relationships with our district general Trust’s five-year strategic plan when it is early 2014. hospital referral partners. submitted to Monitor at the end of June. ¼ Seven-day working: NHS England ¼ Continue to explore how we can Focused growth requires all trusts to define what transform our paediatric activities in a seven-day working means for them, Our mission is to be the UK’s leading joint venture with Chelsea & and to have put in place the necessary specialist centre for heart and lung Westminster Hospital NHS Foundation changes to deliver it by April 2017. We disease. Our strategy to achieve this is Trust on their site. are participating in the High-intensity focused growth across the whole Specialist Led Acute Care (HiSLAC) ¼ Fully exploit the research potential of spectrum of heart and lung treatments project, which is designed to evaluate common data sets and shared clinical and the ongoing development of our the efficacy and cost effectiveness of best practice through our three-year vertical model (treating patients from increasing specialist (consultant) input plan for the Institute of Cardiovascular before birth, throughout childhood and into the care of acutely ill medical Science and Medicine (a collaboration into adulthood and old age) of care. admissions at weekends. with Liverpool Heart & Chest Hospital). We are focusing on five areas: ¼ Theatre cancellations for non-clinical ¼ Recast the nature of our relationships 1. Clinical quality reasons: a programme to identify and with key suppliers of medical devices implement multiple small changes, and consumables so we can achieve The Trust has six Quality Priorities: thereby reducing the number of earlier and preferred access to exciting cancellations. Scheduled to begin in ¼ Quality and productivity: a broad-focus new technologies and funding for 2014-15. programme in cardiac surgery service research projects. at both hospitals to identify where ¼ Medication errors for children’s 3. Information technology there are challenges, agree any services: medication errors are one of changes and implement them. These the main categories of incidents The Trust has many outdated, difficult-to- programmes will merge in the latter reported nationally. Most are “near- support and overlapping computer half of 2014-5. miss” events resulting in minor or no applications. We will: Patient Focus Spring 2014.qxd:Layout 1 07/05/2014 14:28 Page 8

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¼ Address short-term capacity constraints by installing a modular-built extension with six additional beds to the level 3 ITU. ¼ Install a modular-built scanning centre to house a fixed MRI scanner and a second, high-end CT scanner. ¼ Add a further 18 ward beds on a new, second floor of Acorn Ward. ¼ Convert the former thoracic theatre suite into an endoscopy facility, with additional day case / short stay beds for respiratory as well as cardiac patients, and some additional transplant inpatient beds. These plans will require a major step-up in our capital expenditure. We have negotiated a 15-year loan facility with the ITFF (Independent Trust Financing Facility). 5. Developing services within community settings The “Shaping a Healthier Future” programme aims to improve NHS services for patients in North West London by managing more patients within primary care and at home. Expanding services in our communities, such as our pulmonary rehabilitation and ¼ Develop a new, simplified application Royal Brompton Hospital rapid access cardiology programmes, will architecture and information solution. ¼ We are working on plans for the support this aim. ¼ Implement a clinical data warehouse to redevelopment of our Chelsea campus. We are also trialling different approaches provide a single, trusted repository of The proceeds from a phased sale of to community-based diagnostic comprehensive and accurate patient- some sites within this campus will fund cardiology in the boroughs of Hillingdon related information. Coupled with the reconstruction and expansion of and Kensington & Chelsea, in electronic document and image the main Sydney Street site to create a collaboration with primary and management, workflow and data truly 21st century hospital. secondary care partners. capture solutions, we will create a Redevelopment work is not expected single information platform for our to start before mid-2018. If you want to know more integrated digital care record (IDCR). ¼ In the interim, we will open an We will also provide patients with For more detailed information on any of outpatient facility in Wimpole Street to secure, remote access to their personal the above focus areas, please refer to our expand private patient activities and clinical data. website: seek other off-site opportunities to add www.rbht.nhs.uk/strategic-plan 4. Redevelopment of our more private inpatient bed capacity. hospitals ¼ Over the next 18 months, we will create a hybrid theatre in which we will To maintain the clinical quality of our What do you think? perform a wide range of complex services and a financial surplus, we need Please direct questions and procedures more effectively. continued growth in activity, both to comments regarding the strategic respond to demand and to reduce unit Harefield Hospital plan, preferably by 2pm Friday costs. However, this growth is seriously 16 May, to: Although long-term redevelopment of constrained by the capacity, this campus is in the planning phase Post: Corporate governance manager configuration and condition of our only, during the next 18 months, we will: Level 1, Britten Wing buildings. Examples of these constraints Royal Brompton & Harefield are the shortage of critical care beds and ¼ Establish a viable development and NHS Foundation Trust outpatient clinic rooms on both sites, and funding plan to create a new graduated Sydney Street substantial increases in the Trust’s care and imaging centre. This will London SW3 6NP maintenance budget, especially relating consolidate all high-dependency and Email: [email protected] to the Fulham Road Wing. The following intensive care beds and major scanning redevelopment plans will address these modalities within a single, purpose- Tel: 020 7351 8264 limitations: built facility. Patient Focus Spring 2014.qxd:Layout 1 07/05/2014 14:28 Page 9

page 8 – Patient Focus Spring 2014 Our research

Secretary of State opens new genetics laboratory at Royal Brompton Hospital

In December 2013, Secretary of State for Health, Jeremy Hunt, officially opened a new genetics and genomics laboratory at Royal Brompton, which will dramatically improve healthcare for families affected by inherited cardiac disease.

The new £2 million state-of-the-art facility – a joint venture between the Trust and Imperial College London – will provide Trust patients (as well as the wider NHS) with vastly improved access to genetic tests. It will enable much quicker testing for those clinically diagnosed with, or a family member who is at risk of, an inherited cardiac condition.

Mr Hunt commented at the opening: “It is a great privilege to be here and see firsthand the incredible impact this scientific research has on so many lives. We want this to be the century of personalised care and the advances in treatment that we are seeing at state-of- the-art laboratories like Royal Brompton's will help revolutionise medicine.”

Professor Dudley Pennell, cardiovascular biomedical research unit director, said: “This facility, officially opened by the Secretary of State, underpins the Trust’s commitment to translate cutting-edge research on the genetic causes of heart disease into improvements in the diagnosis and treatments available for NHS patients. In future, patients will benefit from unprecedented access to genetic testing which is fast, equitable and inexpensive.”

Mr Hunt also met families who have inherited cardiac conditions and are treated at Royal Brompton. Owen Hendry and his sons Sam, aged 10, and Ben, aged 9, all have the genetic condition, Brugada syndrome, which is passed on via a specific gene. Sam enjoyed showing Mr Hunt his scar (pictured right) following a procedure to implant an ICD to monitor his heart rhythm. Patient Focus Spring 2014.qxd:Layout 1 07/05/2014 14:28 Page 10

Patient Focus Spring 2014 – page 9

Meet our researchers

Royal Brompton & Harefield NHS Foundation Trust carries out a wide range of heart and lung research, all aimed at helping improve patient treatments and care. If you are interested in finding out more about our research, please join us at our: Heart and lung research open day Date and time: Friday 23 May 2014, 11.30am-2.00pm Venue: Royal Brompton Hospital, SW3 6NP

¼ Heart research: main reception area and seminar rooms, ground floor, Sydney Street ¼ Lung research: NIHR Respiratory Biomedical Research Unit, 1st floor, Fulham Wing, Fulham Road This is an opportunity for patients, members of the public and local schools to join us and discover more about the Our activities will be both fun and For more information on our open day, research studies currently taking place in informative and include 3D cilia, artificial please contact Julia Coffey (heart the Trust as well as our research success hearts, strawberry DNA extraction, genes research) or Zahra Aden (lung research) stories. You can view our facilities, and the heart, Heart in 3D and ECG buzz by telephone on: 020 7352 8121 witness hands-on demonstrations and wire. There will also be live music and or send an email to: meet our researchers. refreshments. [email protected] Have a say in our research We are keen to hear from both patients and the public who are interested in contributing to our exciting research work in heart and/or lung health. One way to have a say in our research is to join either our heart or lung public research forum. These forums involve members of the public in decisions about how we carry out our research so we can make sure: ¼ Our research focuses on the health improvements important to patients ¼ Treatments that may result from the research are acceptable to patients ¼ Research is designed to meet the needs of patients who participate. Who can be a forum member? We are looking for a variety of people who have an interest in heart or lung research. We would like to hear from people who: ¼ Are living with a heart or lung condition or their partner, carer, friend or relative ¼ Have a history of heart or lung disease in their family ¼ Have experience of being a participant in clinical research ¼ Are a member of a patient representative organisation If you are interested in joining a forum, please contact Julia Coffey (heart research) or Zahra Aden (lung research) on 020 7352 8121 or email: research- [email protected] Patient Focus Spring 2014.qxd:Layout 1 07/05/2014 14:28 Page 11

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Patients praise “excellent” care at Harefield Hospital during CQC inspection

Inspectors from the Care Quality ¼ Respecting and involving people who theatres, the intensive care and high Commission (CQC) have judged that use services dependency units, the pre-assessment Harefield Hospital is meeting seven and day case units, and inpatient wards, essential standards of quality and ¼ Care and welfare of people who use including acute cardiac care and safety. Their report, published on services transplant wards. 5 March, highlights positive comments ¼ Meeting nutritional needs In their report, the inspectors said: from patients who said “their care was ¼ Cleanliness and infection control “Patients spoke positively about the staff ‘excellent’, that they were happy with that supported them with their care and the information they'd been given pre ¼ Staffing treatment and considered them operatively and that care was ‘second to knowledgeable and professional.” ¼ none’.” Supporting workers The report also made note of patient ¼ Assessing and monitoring the quality of The report shows that following the feedback in relation to the Friends and service provision unannounced inspection on 3 February Family Test, which shows that 90 per cent 2014, the hospital met all seven essential During the visit the inspectors talked to of patients would recommend Harefield quality standards that were reviewed on patients, carers and staff in the Hospital to their friends or family if they the day, in all areas visited: outpatients department, operating needed similar treatment.

Help us to celebrate 100 years of Harefield Hospital in 2015

5An ambulance outside Harefield Hospital in the early years

Next year, 2015, Harefield Hospital will you would like us to consider for celebrate its centenary. inclusion, please contact Philippa Allibone, membership manager, on email: The Trust is planning to run a series of [email protected] “Tell your story of celebratory events throughout the year. As part of the celebrations, we would like We will keep you updated as our Harefield and/or to include patient stories and/or celebration plans progress, both on the photographs. If you have anything that Trust website and in Patient Focus. share your photographs from the past 100 years” Patient Focus Spring 2014.qxd:Layout 1 07/05/2014 14:28 Page 12

Patient Focus Spring 2014 – page 11 Diary dates

TRUST EVENTS session for more information, and to If you would like to attend any of Breatheasy support groups make sure the class is running as these events or want more usual – or to buy the Singing for information, please contact: These groups provide opportunities Breathing CD. Contact: Philippa Allibone, for local residents and their carers membership manager living with chronic lung conditions to Email: [email protected] join informal, friendly discussions. Tel: 020 7351 4087 Email: [email protected] Presentations are made by members Web: www.rbht.nhs.uk/arts of Royal Brompton Hospital’s chronic obstructive pulmonary disease (COPD) team with guest speakers MEMBERSHIP EVENTS TRUST BOARD MEETINGS from both inside and outside “Easy ways to help women Members of the public are welcome the Trust. (and men!) to be healthy to attend. Date and time: and live longer” – Professor ¼ 23 July 2014 held on the first Tuesday of Time: 2.00pm-4.00pm every month at 2.00pm. Peter Collins Venue: Royal Brompton Hospital, Venue: Cardiovascular disease is the leading cause of death in women. Professor Board Room Education Centre, Respiratory Collins will discuss some of the ways Clinical Research Facility, 1st floor, ¼ in which patients can reduce their 24 September 2014 Fulham wing, Royal Brompton. risk factors for cardiovascular Time: 10.30am-1.00pm Contact: Rebecca Tanner, clinical disease. Venue: Harefield Hospital, research physiotherapist Date and time: Concert Hall Email: [email protected] 2.00pm, Monday 19 May 2014 ¼ 22 October 2014 Tel: 020 7351 8029 Venue: Time: 2.00pm-4.00pm Education Centre, Respiratory Clinical Research Facility, 1st Floor Venue: Royal Brompton Hospital, Singing for Breathing Fulham Wing, Royal Brompton Board Room Hospital The sessions are aimed at those with ¼ 26 November 2014 respiratory conditions, or Time: 10.30am-1.00pm breathlessness associated with Members’ Annual Meeting Venue: Harefield Hospital, cardiac conditions, and are relaxed, Date and time: informative and fun. 1.00pm, Monday 21 July 2014 Concert Hall They aim to teach basic singing Venue: techniques, which can help with Harefield Hospital, Concert Hall breath-management and COUNCIL OF release stress. Tour of the cardiac catheter GOVERNORS’ MEETINGS ROYAL BROMPTON HOSPITAL: laboratories ¼ 19 May 2014 Open workshop for all patients Date and time: (except those attending Foulis Ward) Tuesday 16 September 2014. Time: 11.00am-1.30pm Date and time: Time TBC Venue: Royal Brompton Hospital, 2.00pm-3.00pm every Monday Venue: Board Room Cardiac catheter laboratories, Royal Venue: ¼ 21 July 2014 The Quiet Room, Victoria Ward, 2nd Brompton Hospital floor, Fulham Wing, Royal Brompton Time: 1.00pm-3.30pm Hospital Diabetes and cardiac Venue: Harefield Hospital, HAREFIELD HOSPITAL: disease Concert Hall Open workshop for all patients Our clinical nurse specialist, ¼ 23 October 2014 Date and time: Valerie Lapworth, will talk about Time: 11.00am-1.30pm 3.30pm-4.30pm every Tuesday diabetes and its effect on heart Venue: Royal Brompton Hospital, Venue: disease – risk factors and Board Room Rehabilitation & therapies preventions. seminar room, 2nd floor, Date and time: Harefield Hospital 2.00pm, Friday 14 November 2014 Contact: Vicki, Annabelle or Jenni in Venue: the arts team before your first STaR Centre, Harefield Hospital Patient FocusSpring2014.qxd:Layout107/05/201414:27Page Useful contacts for Trust members ae1 PatientFocus Spring2014 page– 12 í í TrustFoundation oa rmtnHsia,Sde tet odnS36P Tel:+44(0)2073528121 www.rbht.nhs.uk Harefield Hospital, Hill EndRoad,HarefieldUB96JH Royal BromptonHospital, Sydney Street, LondonSW3 6NP í í contacts useful Other í í Healthwatch í í í í í Charity Hospitals Harefield & BromptonRoyal Email: 7571 8868 020 Tel: Crisp Ken Chairman: group support patient cardiology Harefield Website: Email: Tel: Unwin Brian Chairman: Club Transplant Harefield Website: Email: Tel: 1LH UB8 Pavilions,Uxbridge The Square,Market 26 Address: Email: 6771 / 7049 8968 020 Tel: Centre,Shaftesbury 25, Unit Address: Email: Tel: fundraiser,HospitalCommunity Harefield Email: Tel: assistant Executive Email: Tel: manager communications and Marketing Email: Tel: fundraiser,Hospital Community Brompton Royal Email: Tel: fundraising community of Head Email: Tel: Lumley Anthony Contact: Email: Tel: Allibone Philippa Contact: Website: Corporate Secretariat Membership Office Re-Beat Harefield Hamsters Hillingdon Healthwatch – Kensington andChelsea Healthwatch – Desiree Zimmerman Ann Rolfe Nick Fry James Hunt Stuart Willson 01494 472 470 472 01494 272997 01895 820 828 01895 4269 ext 8121 7352 020 4267 ext 8121 7352 020 2210 ext 8121 7352 020 8882 ext 8121 7352 020 8264 7351 020 2811 ext 8121 7352 020 [email protected] [email protected] [email protected] [email protected] [email protected] [email protected] [email protected] [email protected] [email protected] [email protected] [email protected] www.harefieldhamsters.org healthwatchcwl.co.uk/kensington-chelsea healthwatchhillingdon.org.uk/ 85 Barlby Road, London W10 6BN W10 London Road,Barlby 85 Follow usonTwitter @RBandH Tel: +44(0)18958237 í í í í í í í í í í intensive care unit and paediatric ward fund specific items specific fund ward paediatric and unit care intensive Website: Email: Tel: disease heart prenatal on information of source A Email: Email: 759 854 0800 Helpline: Tel: 2BN IP4 Ipswich Green,Margaret's St 25 Address: disease heart congenital with patients For Website: Email: 1000 373 0300 Helpline: Tel: Bromley,1BYRoad, BR1 KentLondon 11 Address: Email: Tel: Henderson Elizabeth Contact: Tel: Chapman Don Contact: Website: [email protected]: 9172494 0800 or 776 872 01270 Tel: Address: Website: Email: Helpline: Tel: York1DP 78 W1H Address: London Street, Website: Email: Tel: (chairman) Copeland Fiona Contact: Email: 3TB SW6 London Road, Coniger 39 Address: LyndaContact: Mackie paediatric the help specificallyto is Appeal Octavia The Email: Tel: EC2V7JN London Lane, Love 1 Address: Supportingfamilies ofchildren with heart and lung conditions Twitter: Facebook: Web: Web: Twitter: Facebook: The Brompton Fountain Tiny Tickers The SomervilleFoundation Cystic Fibrosis Trust Friends ofRoyal Brompton (volunteers) Friends ofHarefield Hospital(volunteers) Raynaud's & Scleroderma Association Duchenne Family SupportGroup Primary CiliaryDyskinesia(PCD)Group The Octavia Appeal-Friends ofRoyal Brompton 020 3286 1250 3286 020 007 252 01473 7211 8464 020 8272 7351 020 678 828 01895 0870 241 1857 241 0870 (helpline) 0122 111 0300 9000 7776 020 www.octaviaappeal.org www. 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