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Download the Microsoft Tag and We’Ll Consider Them for the Magazine Fall 2014 Magazine Giant Creative Strategy Output @ 100% x 10"h Live: 7.375"w 8.25”w x 10.75”h Trim: Bleed: 8.75"w x 11.25"h Colors: 4CP + AD WINTER HB PATIENT PRINT GILPT11284 Speak from the PRINT live/trim_DO NOT heart about your angina “Tell your cardiologist exactly how you’re feeling. Don’t hold anything back.” Donnette, angina patient If you have been limiting your work or your activities because of your chronic angina, be sure to talk about it with your cardiologist. Your cardiologist is listening www.SpeakFromTheHeart.com Tips, information, and more from real angina patients Donnette, Ralph, and Claudia. Claudia, angina patient Speak From the Heart is a trademark, and the Speak From the Heart logo Ralph, angina patient is a registered trademark, of Gilead Sciences, Inc. © 2011 Gilead Sciences, Inc. All rights reserved. UN7951 1/11 D19528_1a_Donette.indd 11.04.2013 A17041x01G_300ucr_RBlk.tif 133 linescreen B19528x01A_3u.tif jn B19528x02A_3u.tif Dedicated to inspiring hope in heart disease patients and their families. Mission: Inspiring hope and improving the quality of life for heart patients and their families through ongoing peer-to-peer support THE MENDED HEARTS, INC. BOARD OF DIRECTORS 2013-2015 President Gus Littlefield Executive Vice President Donnette Smith Vice President Lynn Berringer Treasurer Dale Briggs Mended Little Hearts Vice President Andrea Baer Fall 2014 Regional Directors Central Jana Stewart Mid-Atlantic Gerald Kemp Midwest Cathy Byington Northeast Margaret Elbert Rocky Mountain Randy Gay Southern Fredonia Williams Southwest Millie Henn Western Patrick Farrant Immediate Past President Raul Fernandes Past Presidents’ Council Charles Christmas Mended Little Hearts Director Megan Setzer Staff Executive Director Michele Packard-Milam, CAE Field Services Director Marcia Baker Director of Operations Janette Edwards Mended Little Hearts Director Jodi Lemacks Program Director Jessica Deering Marketing Manager Ellen Regan Member Database Coordinator Michael Dealey Field Services Coordinator Mandy Sandkuhler Bookkeeper Sheila Todd Corporate Development Assistant Tierney Wright Heartbeat, the national magazine of The Mended Hearts, Inc., a nonprofit organization, is published quarterly by The Mended Hearts, Inc.; Editor, Sam Gaines; Art Director, Jan McLean. Features Departments Letters of inquiry and publication are encouraged. Materials should be sent to Heartbeat, The Mended Heart to Heart 5 Hearts, Inc., 8150 N. Central Expressway, M2248, Dallas, 62nd Annual Education Texas 75206, 1-888-432-7899. The publishers and editors of Heartbeat cannot assume responsibility or News from National 6 liability for the return of unsolicited photography, artwork & Training Conference 10 or written materials. Heart Hero 7 For subscriptions to Heartbeat, see the registration form It was a fun and informative event in in the center of the magazine. No part of this publication may be reproduced without the permission of The Indianapolis. Taking the Stress Out Mended Hearts, Inc. ©2014. of Caregiving 8 Mended Hearts, Inc. assumes no responsibility for claims arising in connection with products or services Sharing and Caring at MLH’s nor endorses any products or services advertised Regional Update 16 in Heartbeat. Leadership Training 20 MLH Groups on the Move 18 A first-ever CHD Symposium was a big part of Et cetera... the experience for presenters and Mended Little Exercise vs. Stress 24 Hearts volunteers alike. Historical Hearts 25 We’d love to hear from you ... about This is called a QR code or tag. It’s an easy Heartbeat or anything else having to do with way to jump from Heartbeat to the Mended National Day of Giving 26 Mended Hearts or Mended Little Hearts. Send Hearts website using your smart phone. To Gifts 28 your thoughts to [email protected] use the tag, go to gettag.mobi with your smart phone and download the Microsoft Tag and we’ll consider them for the magazine. Med Flight 1 30 Getthe free mobile appat Reader software. Then scan or snap a photo http://gettag.mobi of the QR code you see here. It’ll take your Visit us online: smart phone’s browser directly to the Mended Hearts website. This issue of Heartbeat magazine www.mendedhearts.org is made possible by support from www.mendedlittlehearts.org Gilead Sciences Inc. “It’s great to be alive … and to help others!” Fall 2014 3 Mended Hearts — Eight Regions Mended Hearts is the oldest cardiac peer-to-peer support organization in the United States. We have 300 chapters and satellites in nearly every state. Our community-based organization is built AK upon the principles of service, charity and partnership. To find out more about our services and to locate a chapter near you, reach out to one of our Regional Directors listed below or go online at mendedhearts.org: WA VT MT ND ME NH OR MN ID MA SD WI NY WY RI MI CT IA PA NV NE NJ OH DE UT IL IN CA WV MD CO KS MO VA KY WASHINGTON, DC NC TN HI AZ OK NM AR SC TX MS AL GA LA NATIONAL OFFICE Dallas, Texas PR FL WESTERN CENTRAL Patrick Farrant Jana Stewart [email protected] [email protected] (408) 227-1119 (812) 963-6019 ROCKY MOUNTAIN SOUTHERN Randy Gay Fredonia Williams [email protected] [email protected] (406) 721-5288 (256) 837-7354 MIDWEST NORTHEAST Cathy Byington Margaret Elbert [email protected] [email protected] (605) 201-8849 (516) 775-1367 SOUTHWEST MID-ATLANTIC Millie Henn Gerald Kemp [email protected] [email protected] (254) 773-1557 (803) 684-9512 4 Fall 2014 Heart to Heart Gus Littlefield, President Managing the Challenges of Change he annual National Education & Training Board of Directors, but for those who are upset by the change, Conference is an excellent opportunity to learn from I take full responsibility for the need, design and introduction the experts and engage with other Mended Hearts of our new symbol. volunteers, and this year’s event in Indianapolis in It is a part of the transition from an organization dependent TJune was no exception. I thought we had excellent speakers on the support of others, to a better, more efficient and educational programs. It was one of our better independent organization that hopefully, with the support of conferences, in my opinion. our members, will proudly continue to serve heart patients As we emerge from the conference, we are facing challenges into a bright future. as an organization. As you probably know by now, we are no longer partnered with any outside organization, which means we have to take on the responsibilities of independence. To date, the response to this new reality has been positive, and that’s good. One of the challenges that has emerged lately is HIPAA — specifically, the lack of understanding of hospital compliance officers as to what Mended Hearts does, and how to help us instead of putting roadblocks in our path. HIPAA doesn’t apply to Mended Hearts as an organization. HIPAA covers three entities: 1) the insurance companies, which keep data on individual patients by name; 2) the electronic data companies that transmits such data; and 3) health care providers. Mended Hearts does not fall into these covered entities and therefore is not covered by HIPAA. We need to reach out to hospital compliance officers with the fact that we are there to help, not to cause problems with HIPAA compliance. TheListenMission.com Another challenge we face is our new identity. Many One of our loyal sponsors, Daiichi-Sankyo, recently named Mended Hearts volunteers are heart patients who have had us as the beneficiary of a new physician outreach project they surgery — but that doesn’t describe us all. There have been are launching. The project is called “The Listen Mission” and it many complaints over the past several years, not only from asks doctors the following question: “What is getting in the members, but also from the general public and sponsors, that way of you helping patients reach their goals in the our old logo was too similar to the American Heart management of atrial fibrillation and venous Association logo. The torch had to go. Further, although the thromboembolism, and what could help them reach those heart with the “zipper” is representative of surgical patients, it goals?” is not inclusive of all the cardiovascular patients we have in our For every physician who answers the question, Daiichi- membership. We represent stent patients, heart attack patients, Sankyo will give Mended Hearts a donation, up to $50,000. and patients with “electrical” defects, such as Atrial Fibrillation Want to help? Tell the cardiologists and physicians you work (AFib), requiring pace makers and/or defibrillators. To have a with to go to www.thelistenmission.com and answer this logo standing for all cardiovascular disease, we simply needed question. They’ll be helping a valued partner understand the a more inclusive symbol. barriers to reaching treatment goals, and they’ll be helping The new design was approved by the full Mended Hearts Mended Hearts at the same time. Fall 2014 5 News From National Michele Packard-Milam, Executive Director A New Look for a New Era ews flash! All Mended Hearts chapters and “Why didn’t you ask us before you made this decision?” Mended Little Hearts groups have a live website! This answer is more complex. Your MHI Board has been It’s not very dignified, but here goes: WOO HOO! working on new logos for a long time, and the Regional One of the most important communications Directors were part of the process, which means your interests Nchannels these days is the internet. At a recent ACC Meeting were represented. on Digital Patient Making design decisions that could Engagement, some please 20,000 people is hard startling trends were to imagine.
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