Members of the Revision Steering Group for the revision of the International Classification of Diseases
Christopher G. CHUTE
Chair: Revision Steering Group
Dr. Chute received his undergraduate and medical training at Brown University, internal medicine residency at Dartmouth, and doctoral training in Epidemiology at Harvard. He is Board Certified in Internal Medicine, and a Fellow of the American College of Physicians, the American College of Epidemiology, and the American College of Medical Informatics.
He became founding Chair of Biomedical Informatics at Mayo in 1988, stepping down after 20 years in that role. He is now Professor of Medical Informatics, and is PI on a large portfolio of research including the HHS/Office of the National Coordinator (ONC) SHARP (Strategic Health IT Advanced Research Projects) on Secondary EHR Data Use, the ONC Beacon Community (Co-PI), the LexGrid projects, Mayo’s CTSA Informatics, Mayo’s Cancer Center Informatics including caBIG, and several NIH grants including one of the eMERGE centers from NGHRI, which focus upon genome wide association studies against shared phenotypes derived from electronic medical records.
Dr. Chute serves as Vice Chair of the Mayo Clinic Data Governance for Health Information Technology Standards, and on Mayo’s enterprise IT Oversight Committee. He is presently Chair, ISO Health Informatics Technical Committee (ISO TC215) and Chairs the World Health Organization (WHO) ICD-11 Revision. He also serves on strategic advisory panels to NCRR and NHGRI within NIH, and the Health Information Technology Standards Committee for the Office of the National Coordinator in the US DHHS. Recently held positions include Chair of the Biomedical Computing and Health Informatics study section at NIH, Chair of the Board of the HL7/FDA/NCI/CDISC BRIDG project, on the Board of the Clinical Data Interchange Standards Consortium (CDISC), ANSI Health Information Standards Technology Panel (HITSP) Board member, Chair of the US delegation to ISO TC215 for Health Informatics, Convener of Healthcare Concept Representation WG3 within the (TC215), Co-chair of the HL7 Vocabulary Committee, Chair of the International Medical Informatics Association (IMIA) WG6 on Medical Concept Representation, American Medical Informatics Association (AMIA) Board member, and multiple other NIH biomedical informatics study sections as chair or member.
Contact: Mayo Clinic College of Medicine 710 9th Ave SW Rochester MN 55902, USA [email protected] Office: +1 (507) 284-5506 Fax: +1 (507) 284-0360 Members of the Revision Steering Group for the revision of the International Classification of Diseases
Robert JG CHALMERS
Chair: Dermatology Topic Advisory Group
Dr Chalmers has been a consultant dermatologist in Manchester since 1983. He has major interests in the systemic treatment of psoriasis and in evidence-based dermatology.
He has been interested in terminology for skin disease since the 1980s. He was closely involved in the development of the British Association of Dermatologists’ Index of Dermatological Diagnoses ( BAD Index ) which was developed in response to dissatisfaction with ICD for the codification of skin disease and was first published in 1994. Some 80 British dermatologists have contributed to its development and its subsequent revisions.
He was also a member of the Dermatology Specialty Working Group which submitted terms to the UK National Health Service’s project to develop a generic healthcare terminology, Clinical Terms, in the mid-1990s. Clinical Terms was amalgamated in 1999 with the American generic healthcare terminology, SNOMED RT as SNOMED CT . The majority of terms in the BAD Index were submitted to Clinical Terms and thus appear in SNOMED CT .
He has had a close interest in the further development of SNOMED CT . He contributed to the SNOMED CT multiprofessional quality assessment (MPQA) exercise to which he and colleagues contributed in 2002 soon after SNOMED CT was first published. As a result of these efforts the BAD was invited to work with the International SNOMED organisation and a further 2,000 dermatological terms which had not been included were added to SNOMED CT in 2004.
He has also worked closely with Professors Mark Pittelkow and Peter Elkin of the Mayo Clinic, Rochester, Minnesota in evaluation of the dermatology content of SNOMED CT vis-à-vis the BAD Index , and more recently, of the Dermatology Lexicon .
In 2001 he was invited on to the Advisory Board of the Dermatology Lexicon Project by Professor Lowell Goldsmith and colleagues and visited them in Rochester, New York, in December of that year to advise on the Project.
He has been keen to see the development of a standardised reference terminology for dermatology and convened a meeting of interested parties at the World Congress in Buenos Aires in October 2007 to discuss the feasibility of this.
Contact: Robert Chalmers Department of Dermatology Dermatology Centre Manchester Royal Infirmary University of Manchester School of Medicine Oxford Road Stott Lane Manchester M13 9WL UK Eccles Manchester M6 8HD UK tel +44 (0) 161 276 4173 tel +44 (0) 161 206 1016 fax +44 (0) 161 276 8881 fax +44 (0) 161 206 1018 [email protected] Members of the Revision Steering Group for the revision of the International Classification of Diseases
Michael WEICHENTHAL
Co-Chair: Dermatology Topic Advisory Group
Dr Weichenthal is a dermatologist based at the University of Kiel in Germany. He has research interests in the epidemiology and genetics of psoriasis. Further interests are in malignant melanoma and other skin malignancies as well as photobiology.
Dr. Weichenthal has been involved in coding and classification of dermatological diseases since the 1990s. Since the retirement of Dr Tilo Henseler in 2000, Dr Weichenthal has led the Diagnostic Coding Working Group of the Deutsche Dermatologische Gesellschaft. This group has overseen the development and modification of an extended six-character German language clinical modification of the dermatology content of ICD10, the Dermatologischer Diagnosenkatalog mit ICD-10 Schlüssel (2000). It is in routine use by German dermatologists to enable them to make official returns to government and health insurance organisations. An English translation of the DDK was adopted by the ILDS as the preferred clinical modification of ICD10 and is available from the ILDS website.
Dr. Weichenthal holds a degree in Medical Informatics and is responsible for the clinical skin cancer registry, being part of the Kiel based Comprehensive Cancer Centre North. Here he is engaged in implementing recent classification models for melanoma, cutaneous lymphomas and other skin malignancies.
Contact: Dr Michael Weichenthal Klinik für Dermatologie, Venerologie und Allergologie Universitätsklinikum Schleswig-Holstein, Campus Kiel Schittenhelmstr. 7 24105 Kiel, Germany Tel.: 0431-597 1539 Fax: 0431-597 1606 [email protected] Members of the Revision Steering Group for the revision of the International Classification of Diseases
James E. HARRISON
Chair: External Cases and Injuries Topic Advisory Group
Dr James Harrison is an injury epidemiologist who directs the Research Centre for Injury Studies at Flinders University, in South Australia. He is an Associate Professor in the School of Medicine at the university. The Research Centre operates the National Injury Surveillance Unit (NISU) of the Australian Institute of Health and Welfare, which he also directs.
NISU is Australia’s national centre for injury surveillance. Its many publications are accessible on-line. Dr Harrison and the NISU team make extensive use of mortality data and hospital data classified according to the International Classification of Diseases (ICD). During the past decade, they have worked closely with Australia’s National Centre for Classification in Health concerning the injury and external causes chapters of the Australian clinical versions of ICD-9 and ICD-10, providing advice and making submissions concerning the content of revisions. Dr Harrison is currently a chief investigator in a project to evaluate the quality of ICD external cause coding of hospitalized injury cases in Australia.
Dr Harrison has been actively involved with the development of the International Classification of External Causes of Injury (ICECI) since its inception, and is a member of the ICECI Coordination and Development Group. He is also a longstanding active participant in the International Collaborative Effort on Injury Statistics, convened by the US National Center for Health Statistics.
Dr Harrison holds a degree in medicine from Melbourne University, a Master of Public Health degree from the University of Sydney, and is a Fellow of the Australasian Faculty of Public Health Medicine. His main areas of research interest are injury prevention and control, and methods and infrastructure for public health surveillance and evaluation, including classifications.
Contact: Research Centre for Injury Studies Flinders University – School of Medicine National Injury Surveillance Unit AIHW, Sturt Road, Bedford Park, Adelaide, Australia [email protected] Members of the Revision Steering Group for the revision of the International Classification of Diseases
Kentaro SUGANO
Chair: Internal Medicine Topic Advisory Group
Dr Kentaro Sugano received his doctorate and degree in medicine at the University of Tokyo. Further education at the Tokyo University Hospital led to the PhD. Dr Sugano did research at the University of California, and at the University of Michigan. His further career continued at the University of Tokyo and the Jichi Medical School. Dr Sugano is Chief Professor and Chairman of the Department of Internal Medicine, Jichi Medical University and Deputy Director of Jichi Medical University Hospital.
Dr Sugano is a member of several national and international medical societies: Japanese Society of Internal Medicine (council member), Japanese Society of Gastroenterology (member of the Board of Directors), Japanese Gastroenterological Endoscopy Society (council member), and Japanese Society for Helicobacter Research (council member), Japanese Gastric Cancer Association (council member), American Gastroenterology Association, Steering Committee Member of the International Gut Hormone Conference. He is co-editor of “Gastric Cancer” and has been the editor or advisor to several other renowned international journals. Some 300 research publications underpin his expertise in the field of internal medicine.
Contact: Department of Internal Medicine Jichi Medical School 3311-1 Yakushiji Shimotsuke 329-0498 Japan [email protected]
Members of the Revision Steering Group for the revision of the International Classification of Diseases
Steven E. HYMAN Chair: Mental Health Topic Advisory Group
Steven E. Hyman, MD is Provost of Harvard University and Professor of Neurobiology at Harvard Medical School. From 1996 to 2001, he served as Director of the National Institute of Mental Health (NIMH), the component of the US National Institutes of Health charged with generating the knowledge needed to understand and treat mental illness. Before serving as Director of NIMH, Dr. Hyman was Professor of Psychiatry at Harvard Medical School, Director of Psychiatry Research at Massachusetts General Hospital, and the first faculty Director of Harvard University's Mind, Brain, and Behavior Initiative. In the laboratory he studied the molecular biology of neurotransmitter action.
Dr. Hyman is a member of the Institute of Medicine of the National Academy of Sciences and of the American Academy of Arts and Sciences. He currently serves as Editor of the Annual Review of Neuroscience. He received his BA from Yale College in 1974 summa cum laude, and his MA from the University of Cambridge in 1976, which he attended as a Mellon fellow studying the history and philosophy of science. He earned his MD from Harvard Medical School in 1980.
Contact: The Office of the Provost Massachusetts Hall, Harvard University Cambridge, MA 02138, USA [email protected] Members of the Revision Steering Group for the revision of the International Classification of Diseases
Martin SUNDBERG Chair: Musculoskeletal Topic Advisory Group
Dr Martin Sundberg is a consultant Orthopedic surgeon. He received his medical degree at Lund University 1988 and became a certified specialist in Orthopedics in 1995. After his clinical training program he started research at Malmö University hospital and took his doctoral degree in 2001 on bone mass measurements in relation to physical activity during adolescence. After that his main research focus has been on joint replacement. Since 2008 he is Associate Professor at Lund University and since 2006 he is leader of the Arthroplasty unit at Lund University Hospital. He is the official orthopedic coding expert to the Swedish National Board of Health and Welfare and is responsible for coding within the Swedish Orthopedic Society.
Contact: Department of Orthopedics Lund University Hospital 222 35 Lund Sweden [email protected] Members of the Revision Steering Group for the revision of the International Classification of Diseases
D. Maxwell PARKIN
Chair: Neoplasms Topic Advisory Group
After graduating in medicine (Edinburgh University, 1968), and initially specialising in internal medicine and gastoenterology, Dr Parkin became qualified in Public Health/Epidemiology in 1974. He worked in this field in Edinburgh, Leeds, and University of Michigan School of Public Health. Dr. Parkin moved to the International Agency for Research on Cancer (WHO) in Lyon in 1981, first as scientist, and then, from 1986, as head of the Descriptive Epidemiology Unit, where he remained until October 2004.
Currently, he is: • Visiting senior research fellow, Clinical Trials Service Unit and Epidemiological Studies Unit, Oxford University, • Epidemiologist, Wolfson Institute of Preventive Medicine (Queen Mary University, London).. • Consultant to Kampala Cancer Registry (Uganda). • Head of Cancer Registry Programme of the International Network for Cancer Treatment and Research (INCTR) Other positions and activities: • Immediate Past-President, International Association of Cancer Registries • Chairman of the steering committee of the European Network of Cancer Registries • Honorary Professor, Peking Medical University College • Honorary Professor, Tianjin Medical University • Foreign Adjunct Professor, Karolinska Institute, Stockholm • Chair the International Scientific Advisory Committee Cancer Surveillance Epidemiology Networks, Canadian Partnership Against Cancer (CPAC)
His work at the International Agency for Research on Cancer (IARC) included responsibility for classification and coding of neoplasms, including chairing the committee and board of editors for the third edition of the International Classification of Diseases for Oncology (ICD-O 3) in 2000. He continues in an advisory role to IARC in this field
Dr Parkin has published extensively, with more than 300 papers and reviews in the international scientific literature, mainly on descriptive epidemiology (international cancer patterns and trends), with a major concern for cancer registration, and in cancer prevention and control (especially the effectiveness of cancer screening).
Contact: Clinical Trial Service Unit & Epidemiological Studies Unit University of Oxford Cancer Research UK Centre for Epidemiology, Mathematics Richard Doll Building and Statistics Old Road Campus Wolfson Institute of Preventive Medicine OXFORD OX3 7LF Charterhouse Square U.K. LONDON EC1M 6BQ Tel: (44) 1865 743743 (reception) U.K. (44) 1865 743663 (direct) Tel: (+44) 207 014 0271 FAX: (44) 1865 743985 FAX: (+44) 207 014 0269 [email protected] [email protected] Members of the Revision Steering Group for the revision of the International Classification of Diseases
Raad A. SHAKIR
Chair: Neurology Topic Advisory Group
Raad Shakir is the Chief of Neurology, Imperial College NHS Trust, Charing Cross Hospital, London, UK. He is the Secretary-Treasurer General World Federation of Neurology. He qualified from Baghdad Medical School in 1971. Received Neurology Training in Glasgow and was Fellow at Massachusetts General Hospital.
He has served as Chair and member of many committees of the WFN and International League Against Epilepsy. His work in the field of Tropical Neurology spans 20 years. This resulted in the publication of two books on the topic. He is heavily involved in Clinical Neurology practice and training as an examiner and Regional Neurology Speciality advisor to the UK Royal College of Physicians London.
His previous appointments include Academic vice Dean and Editor of four Journals in the field of CNS Infections, Co-Editor of Continuum, CNS Infections section, of the American Academy of Neurology.
Raad Shakir was Member of the Publication and Public Relations committees WFN, Chair Tropical Neurology Research Group WFN, Tropical Neurology Commission ILAE, and Chair Local Organising committee World Congress of Neurology, London 2001.
In his capacity as Secretary-Treasurer General of the WFN, he is closely involved in international affairs of Neurology development, teaching, public health provision of neurological services and education.
Contact: Raad A Shakir Charing Cross Hospital London W6 8RF [email protected]
Members of the Revision Steering Group for the revision of the International Classification of Diseases
Satoshi KASHII
Co-Chair: Ophthalmology Topic Advisory Group
Dr Satoshi Kashii received his degree in medicine at Gifu University, doctorate degree at Kyoto University Graduate School of Medicine and Neuro-Ophthalmology fellowship at Albert Einstein College of Medicine. He is a fellow of the North American Neuro-Ophthalmology Society (NANOS). He is now Director of Department of Ophthalmology, Osaka Red Cross Hospital and Clinical Professor of Ophthalmology, Kyoto University School of Medicine. Current research interests concern clinical research that addresses function, disease and response to therapy of neuro-ophthalmic disorders, with particular emphasis in visual fields and optic nerve disorders.
As for social activities, Dr. Kashii is the Secretary General of the Asian Neuro-Ophthalmology Society and member of several national and international ophthalmology societies; Japanese Ophthalmological Society (Council Member), Japanese Neuro-Ophthalmology Society (Board Member), American Academy of Ophthalmology, NANOS and Association for Research in Vision and Ophthalmology. He is an editorial board member of the Japanese Journal of Ophthalmology (Executive Editor), the Journal of Neuro-Ophthalmology, and the Neuro-Ophthalmology Japan (Shinkeiganka).
Contact: Professor of Visual Science Faculty of Health and Medical Sciences Aichishukutoku University Aichi-Prefecture 480-1197 Japan [email protected] Members of the Revision Steering Group for the revision of the International Classification of Diseases
Jeffrey F. LINZER Sr.
Chair: Paediatrics Topic Advisory Group
Jeffrey Linzer Sr., MD is an Associate Professor of Pediatrics and Emergency Medicine at Emory University School of Medicine. He received his BA from the University of California, Santa Barbara, began his medical training at CEU Xochicalco and finished it at the University of California, Irvine, California College of Medicine. He did his pediatric residency at the University of California, Irvine and fellowships in Allergy-Clinical Immunology and Pediatric Emergency and Transport Medicine at Children's Hospital Los Angeles. Board certified in Pediatric Emergency Medicine, he is a Fellow of the American Academy of Pediatrics and the American College of Emergency Physicians.
Dr. Linzer currently is the Associate Medical Director for Compliance for the Division of Pediatric Emergency Medicine and Co-Director for the Children’s Sedation Service, at Children’s Healthcare of Atlanta, Emory University. In addition to his clinical and academic duties, he represents the American Academy of Pediatrics on the ICD-9-CM Editorial Advisory Board and Coordination and Maintenance Committee, and serves on several national committees dealing with diagnosis coding issues. He is currently working with several medical societies on the United States’ transition to ICD-10-CM.
Contact: Division of Pediatric Emergency Medicine Children’s Healthcare of Atlanta 1405 Clifton Road, NE Atlanta, GA 30322, USA [email protected] Members of the Revision Steering Group for the revision of the International Classification of Diseases
Ségolène AYMÉ
Chair: Rare Diseases Topic Advisory Group
Dr Ségolène Aymé is a medical geneticist, director of research at the French Medical Research Council (INSERM). She is the executive manager of the INSERM department dedicated to information on rare diseases in Paris. This service established in 1997 the European database of rare disease and orphan drugs named Orphanet (www.orpha.net ), currently funded by the French ministry of health, the INSERM and the European commission (DG Public Health and DG Research).
She was the founder and the first president (1997-1999) of the International Federation of Human Genetics Societies. She is the current chairperson of the Public and Professional Policy Committee of the European Society of Human Genetics which is releasing recommendations and guidelines ( http://www.eshg.org ) and the leader of the Rare Diseases Task Force established by the European Commission, DG Public Health and Consumers’ protection. She is also the chairperson of the French Society of Human Genetics and the editor-in-chief of the Orphanet Journal of Rare Diseases ( www.ojrd.com ).
Contact: Ségolène Aymé INSERM SC11 / Orphanet 102 rue Didot – 75014 Paris, France Tel: +33 1 56 53 81 37 [email protected] Members of the Revision Steering Group for the revision of the International Classification of Diseases
Marjorie S. GREENBERG
Co-Chair: WHO-FIC Council
Marjorie S. Greenberg is Chief of the Classifications and Public Health Data Standards Staff (CPHDSS) at the National Center for Health Statistics (NCHS), Centers for Disease Control and Prevention, U.S. Department of Health and Human Services (DHHS) ([email protected] ). The CPHDSS serves as a nucleus within NCHS for data standards and classification by fostering the collaborative development of tools and guidelines to enhance the integrity, comparability, quality, and usefulness of the data products from a wide variety of public and private agencies at the international, national and sub-national levels.
Ms. Greenberg, who has been with NCHS since 1982, also serves as Executive Secretary to the National Committee on Vital and Health Statistics, which is the external advisory committee to NHHS on health information policy. She has been Head of the WHO Collaborating Center for the Family of International Classifications (FIC) for North America since 1996 and has chaired the WHO-FIC Education Committee since its inception in 1999. Ms. Greenberg is the 2005-2007 chair of the WHO-FIC Network Planning Committee and also is an ex-officio member of the Joint Collaboration with the International Federation of Health Records Organizations (IFHRO). Her areas of interest and expertise include health data standardization, uniform health data sets, health classifications, training and education, data policy development and evaluation policy. She speaks and writes on these subjects for national audiences and co-authored the chapter on Standards and Their Use in Health Statistics in a comprehensive edited volume on Health Statistics (Oxford University Press, 2005).
Ms. Greenberg is a founding member of the Public Health Data Standards Consortium, and serves on the Consortium Board of Directors as Vice President for Federal agencies and is the Consortium’s federal representative to the National Uniform Billing Committee.
Ms. Greenberg received her bachelor’s degree from Wellesley College and a master’s degree from Harvard University.
Contact: Marjorie S. Greenberg National Center for Health Statistics Centers for Disease Control and Prevention 3311 Toledo Road, Room 2413 Hyattsville, MD 20782 USA [email protected]
Members of the Revision Steering Group for the revision of the International Classification of Diseases
Stefanie WEBER
Co-Chair: WHO-FIC Council
Dr. Weber received her medical degree from the University of Frankfurt, Germany in 1998. In the same year she finished her doctoral thesis. After some additional training in computer science Dr. Weber joined DIMDI, the "German Institute of Medical Documentation and Information" which is an institute within the scope of the German Ministry of Health.
She has recently been appointed as the new head of the German Collaborating Centre of the WHO Family of International Classifications (FIC) Network. She has also been elected to be co-chair of the Electronic Tools Committee of the WHO-FIC Network.
Current international projects of Dr. Weber include the development of a classification maintenance tool in collaboration with WHO. Additionally, she is member of the Core Group of the IRIS project, an international project for the development of an automated coding system for causes of death.
DIMDI provides high quality information for all health care areas. It develops and operates database- supported information systems for drugs and medical devices and is responsible for a programme that evaluates medical procedures and technology (Health Technology Assessment, HTA).
DIMDI is the publisher of official medical classifications such as ICD-10-GM and OPS (German procedure classification) and maintains medical terminologies, thesauri, nomenclatures and catalogues (e.g. MeSH, UMDNS, Alpha-ID, LOINC, OID) that are important for health care telematics and other applications.
DIMDI facilitates online access to its information systems and 70 databases covering the entire field of medicine. It also develops and maintains software applications and operates its own data processing centre.
Contact: DIMDI - German Institute of Medical Documentation and Information Waisenhausgasse 36 - 38a 50676 Köln Office: +49 221 4724-485 Fax: +49 221 4724-444 [email protected] Members of the Revision Steering Group for the revision of the International Classification of Diseases
Mea M. C. RENAHAN
Chair: Update and Revision Committee WHO-FIC
Mea Renahan is a business executive with over 25 years in health-care administration. She is a Certified Health Executive with the Canadian College of Health Service Executives. She holds a Masters in Business Administration from York University and an Honours Bachelor of Science in Physical Therapy from the University of Toronto.
Since January of 2002, she has held the position of Manager of Classifications Standards at the Canadian Institute for Health Information (CIHI). CIHI is a pan-Canadian, independent, not-for-profit organization whose mandate is to improve the health of the health system and the health of Canadians by providing reliable and timely health information. In this position, she is responsible for the development, maintenance, adoption and implementation throughout Canada of the International Statistical Classification of Diseases and Related Health Problems, 10 th Revision, Canada (ICD-10-CA) and the Canadian Classification of Health Interventions (CCI) in both English and French. She manages a cross- country and bilingual team of Health Information Management (HIM) Professionals.
Her administrative career has spanned: acute, long-term; rehabilitation, and community care at both local and provincial levels. As the Vice President of Client Services for the Arthritis Society, Ontario Division, she was responsible for directing the development and delivery of clinet services to people with arthritis throughout Ontario. She designed and implemented province-wide volunteer supported Community Arthritis Programs.
She held the position of Director of Physiotherapy at St. Joseph’s Health Centre in Toronto, a multi-level hospital serving West Toronto with 803 beds and over 1,400 employees.
Her credentials include— Chair, WHO Update and Revision Committee (URC) Member, WHO-FIC Planning Committee Member, Board of Directors for the Canadian Therapeutic Riding Association Member, Executive Committee, University of Toronto P & OT Alumni Association
Contact: Canadian Institute for Health Information 90 Eglinton Avenue East, Suite 300 Toronto ON M4P 2Y3, Canada [email protected] Members of the Revision Steering Group for the revision of the International Classification of Diseases
Richard MADDEN Chair: Family Development Committee WHO-FIC
Dr Richard Madden is Professor and Director of the National Centre for Classification in Health at the University of Sydney. The Centre produces ICD-10-AM and the Australian Classification of Health Interventions, and works across a range of health classification and terminology issues. He plays an active role in WHO work on health and related classifications.
Dr Madden was Director of the Australian Institute of Health and Welfare, Australia’s national health and welfare statistics agency, for 10 years up to January 2006. Previously, he was Deputy Australian Statistician for three years.
In earlier roles, Richard Madden worked in government health and disability agencies, and headed the ACT and the Northern Territory Treasuries. He is a statistician and an actuary, being actuary of the year in 2002. Dr Madden has a Bachelor of Science from Sydney University and a PhD in statistics from Princeton University. In the Australia Day honours list of 2003, Dr Madden was awarded the Public Service Medal in recognition of the commitment he has made to improve national health and welfare data collection and standards.
Contact: National Centre for Classification in Health, Faculty of Health Sciences University of Sydney P.O. Box 170 Lidcombe NSW 1825 Australia [email protected] Members of the Revision Steering Group for the revision of the International Classification of Diseases
Mark A. MUSEN
Co-Chair: Health Informatics and Modelling Topic Advisory Group
Dr. Musen is Professor of Medicine (Biomedical Informatics Research) and Computer Science (by courtesy) at Stanford University, where he is head of the Stanford Center for Biomedical Informatics Research. He holds an MD from Brown University and a PhD from Stanford.
Dr. Musen conducts research related to intelligent systems, the Semantic Web, reusable ontologies and knowledge representations, and biomedical decision support. His long-standing work on a system known as Protégé has led to an open-source technology now used by thousands of developers around the world to build intelligent computer systems and new computer applications for e-science and the Semantic Web. He is known for his research on the application of intelligent computer systems to assist health-care workers in guideline-directed therapy and in management of clinical trials. He is principal investigator of the National Center for Biomedical Ontology, one of the seven National Centers for Biomedical Computing supported by the NIH Roadmap.
In 1989, Dr. Musen received the Young Investigator Award for Research in Medical Knowledge Systems from the American Association of Medical Systems and Informatics. He received a Young Investigator Award from the National Science Foundation in 1992. In 2006, he was recipient of the Donald A. B. Lindberg Award for Innovation in Informatics from the American Medical Informatics Association. Dr. Musen sits on the editorial boards of several journals related to biomedical informatics and computer science. He is co-editor of the Handbook of Medical Informatics (Springer-Verlag, 1997) and co-editor- in-chief of the journal Applied Ontology.
Contact: Stanford Center for Biomedical Informatics Research Stanford University 251 Campus Drive, X-215 Stanford, California 94305-5479 USA [email protected] Members of the Revision Steering Group for the revision of the International Classification of Diseases
Alan RECTOR Co-Chair: Health Informatics and Modelling Topic Advisory Group
Alan Rector is Professor of Medical Informatics in the School of Computer Science at University of Manchester. He received his BA in Philosophy and Mathematics from Pomona College, his medical training at the universities of Chicago and Minnesota where he obtained his MD, and his PhD in Medical Informatics from the University of Manchester.
Over the past twenty-five years he has led a series of projects on clinical decision support, medical records, and medical terminology including the ground breaking PEN&PAD project on intelligent medical records He led the GALEN program (www.opengalen.org) on clinical terminology and ontology. More recently his work evolved to include application of the Web Ontology Language, OWL, and development of the Protégé-OWL ontology development environment in collaboration with the Stanford Center for Biomedical Informatics Research.
He currently leads two industrial collaborations using OWL to enhance clinical systems. One is with Siemens Medical Solutions Health Services of the US, on knowledge driven clinical systems. The other is with Informatics CIS of Glasgow, on adaptable forms for pre-anaesthesia assessment and other specialized information gathering tasks. From 2002 to 2008 he led the MRC sponsored Cooperative Clinical E-Science Framework (CLEF) consortium of UK universities and NHS trusts that aimed to provide "joined up" information solutions for clinical care and research.
He has been a visiting senior scientist at Stanford University and consultant to the NHS and Connecting for Health, Hewlett Packard, the Mayo Clinic, and a variety of smaller companies. He has been active in various national and international committees including, the JISC Support of Research Committee, the National Cancer Research Institute's Informatics Initiative, the Joint NHS/Higher Education Forum on Informatics, and the Board of the Academic Forum of the UK Institute for Health Informatics. He has also been active in HL7, the main standards body for health informatics, and on the board of HL7-UK. In 2003, Professor Rector was awarded the first British Computer Society Health Informatics Committee award for lifetime service to Health Informatics.
Contact: School of Computer Science University of Manchester Manchester M13 9PL UK [email protected] Office: +44 (0) 161 275 6149 /6188 Mobile: +44 (0 771 511 7526 Members of the Revision Steering Group for the revision of the International Classification of Diseases
Cille KENNEDY
Co-Chair: Functioning Topic Advisory Group
Cille Kennedy is a Senior Policy Analyst in Health Policy, Office of the Assistant Secretary for Planning and Evaluation (ASPE), US Department of Health and Human Services (DHHS). The ASPE is principal advisor to the Secretary of DHHS on policy development, and is responsible for major activities in policy coordination, legislation development, strategic planning, policy research, evaluation, and economic analysis.
In her former position at the National Institute of Mental Health, National Institutes of Health, Dr. Kennedy was a Project Scientist for the development of the World Health Organization’s Disability Assessment Schedule 2 (WHO DAS 2). Simultaneously, she was Chair of the International Mental Health Task Force for the development of the WHO’s International Classification of Functioning, Disability and Health (ICF).
Her interest in the relationship between disorder and functioning/disability was stimulated in 1983 when she was responsible for designing and managing the American Psychiatric Association’s (APA) evaluation of the Social Security Administration’s standards and guidelines which had been developed for the determination of disability on the basis of mental disorders.
Since 2008, she has been an Advisor to the APA’s Impairment Assessment Study Group which is working to distinguish the relationship of disorder and functioning/disability in the formulation of a diagnosis and in the application of the clinical significance criterion. The work is part of the APA’s development of its fifth edition of the Diagnostic and Statistical Manual. The group is basing its work on the conceptual model and classification of functioning/disabilities in the ICF.
Dr. Kennedy received her graduate education in psychology at New York University. The focus of her recent presentations and publications has been the relationship of functioning/disability and mental disorders, notably in the context of revising the classifications of mental disorders.
Contact: Cille Kennedy Office of the Assistant Secretary for Planning and Evaluation Health Policy – Room 447D 200 Independence Avenue, SW Washington, DC 20201 USA [email protected] Members of the Revision Steering Group for the revision of the International Classification of Diseases
Gerold STUCKI Co-Chair: Functioning Topic Advisory Group
Gerold Stucki is Professor and Chair of the Seminar of Health Sciences and Health Policy at the University of Lucerne and Director of Swiss Paraplegic Research in Nottwil, Switzerland.
He received his medical education at the University of Berne and obtained a Master of Science (MSc.) in Health Policy and Management from the Harvard School of Public Health and a diploma in Biostatistics and Epidemiology from the University of McGill, Montréal, Canada.
During his appointment as Chair of the Department of PRM at the Ludwig-Maximilian University from 1999-2009, Prof. Stucki pursued clinical research in PRM and musculoskeletal medicine, and developed a new research agenda for human functioning and rehabilitation research. His clinical research focused on the development of concepts and programs for multidisciplinary rehabilitation service and care provision in the acute hospital, inpatient rehabilitation, post-acute community care and prevention programs.
In the context of Prof. Stucki’s new research agenda he has been collaborating with the WHO a member of its Classification, Terminology and Standards team in an international effort to implement the new International Classification of Functioning, Disability and Health (ICF) in rehabilitation and the health sector in general. To facilitate human functioning sciences research, Prof. Stucki has initiated the ICF Research Branch at the LMU Institute for Health and Rehabilitation Sciences (www.icf-research- branch.org) as an international research network under the auspices of WHO´s German Collaboration Center for the Family of International Classifications. Since 2005, he has been assigned the task of developing the Swiss Paraplegic Research (SPF) into a research institution with a comprehensive perspective. The goal of the SPF is to contribute to optimizing the quality of life of people with spinal cord injury (SCI) as well as “to learn for and from SCI” for the benefit of people with SCI and other health conditions. With his teams at the ICF Research Branch and SPF, Prof. Stucki has been playing a key role in WHO´s ICF implementation activities.
Since August 2009 he has been appointed as Professor and Chair of the Seminar of Health Sciences and Health Policy at the University of Lucerne. The Seminar aims to run educational and research programs and to coordinate a forum that facilitates the translation of research into practice - all with the goal of optimizing the functioning and social inclusion of people with health conditions.
Contact: Guido A. Zäch Str. 4 CH-6207 Nottwil [email protected] Members of the Revision Steering Group for the revision of the International Classification of Diseases
Syed ALJUNID
Co-Chair: Morbidity Topic Advisory Group
Dr Syed Aljunid is a Professor of Health Economics and a Senior Research Fellow at the United Nations University-International Institute for Global Health. Prior to this, he served as a Consultant in Public Health Medicine and Head of the Department of Community Health, Faculty of Medicine, National University of Malaysia (UKM). He obtained his MD from Universiti Kebangsaan Malaysia, a Master of Science in Public Health from the National University of Singapore and a PhD in Health Economics and Financing Programme from the London School of Hygiene and Tropical Medicine. He is a Fellow of the Academy of Medicine Malaysia since 2000.
His main interest is in strengthening health care systems in developing countries through research and development in health economics and financing. He is currently involved in supporting a number of developing countries develop and implement case-mix systems for provider payment under social health insurance programmes. This includes Malaysia, Indonesia, Mongolia, Uruguay and the Philippines.
He heads the International Training Centre on Case-mix and Clinical Coding established in 2006 at the University Kebangsaan Malaysia to build human resource capacity of case-mix systems with special a focus on low and middle income countries.
He is currently the Founder President of Malaysian Health Economics Association (MY-HEA), President of Public Health Medicine Specialist Association of Malaysia and Executive Board Member of Asia Pacific International Society of Pharmoeconomics and Outcome Research. He served as a consultant and adviser to a number of international agencies such as the World Health Organisations, UN-AIDS, UNDP, UNICEF, GAVI, Asian Development and the World Bank in various international projects.
He has published more than 200 journal articles, monographs and seminar papers.
Contact: Syed Mohamed Aljunid United Nations University-International Institute For Global Health, HUKM Complex, Jalan Yaacob Latiff, 56000 Cheras Kuala Lumpur, MALAYSIA +603.9171 5394 [email protected]
Members of the Revision Steering Group for the revision of the International Classification of Diseases
Harold A. PINCUS
Co-Chair: Quality and Safety Topic Advisory Group
Harold Alan Pincus, M.D. is Professor and Vice Chair of the Department of Psychiatry and Co-director of the Irving Institute for Clinical and Translational Research at Columbia University and Director of Quality and Outcomes Research at New York Presbyterian Hospital. He also serves as a Senior Scientist at the RAND Corporation.
He graduated from the University of Pennsylvania and received his medical degree from Albert Einstein College of Medicine in New York. Following completion of residency at George Washington University Medical Center, Dr. Pincus was named a Robert Wood Johnson Foundation Clinical Scholar. As a Clinical Scholar, he served as a professional staff member of the President’s Commission on Mental Health at the White House and, subsequently, as a congressional fellow in the U.S. House of Representatives.
Dr. Pincus has been the leader or co-investigator of multiple projects related to health care quality and patient safety, health system evaluation and comparative effectiveness research, including Director of the Robert Wood Johnson Foundation National Program in Depression in Primary Care: Linking Clinical and System Strategies and the Health and Aging Policy Fellowship Program funded by Atlantic Philanthropies. He also chaired and served on national committees related to the evaluation of quality and patient safety for the National Institute of Health, Institute of Medicine/National Academy of Sciences, National Quality Forum, National Committee for Quality Assurance , and World Health Organization. In addition, he has been extremely involved in the development of medical classification systems, e.g. as Vice Chair of the Task Force to develop the Diagnostic and Statistical Manual of Mental Disorders, 4 th edition (DSM IV). Internationally, he has been involved in the International Initiative of Mental Health Leadership (IIMHL) leading an initiative of 12 countries to develop and implement a framework of mental health quality indicators.
He has been appointed to the editorial boards of ten major scientific journals and has edited or co- authored 23 books and over 300 scientific publications in health services research, science policy, research career development and the diagnosis, classification and treatment of mental disorders.
Contact: NYS Psychiatric Institute Room 5813 Unit/Box:09 1051 Riverside Drive New York, NY 10032 Phone: 212-543-5401 Fax: 212-543-6038 [email protected] Members of the Revision Steering Group for the revision of the International Classification of Diseases
William GHALI
Co-Chair: Quality and Safety Topic Advisory Group
Dr. William Ghali, MD, MPH, is a Professor in the Departments of Medicine and Community Health Sciences at the University of Calgary. He is also based in the Centre for Health and Policy Studies in Calgary, Alberta, Canada. He is holder of a Government of Canada Research Chair in Health Services Research, and is also funded as a Health Scholar by the Alberta Heritage Foundation for Medical Research. Clinically, he is trained as a General Internist (MD [‘90] - University of Calgary, FRCP(C) [‘94] - Queen’s University, Kingston, Ontario), while his methodological training in health services research and epidemiology was obtained in the Health Research Unit at Boston University, where he also completed a Masters of Public Health Degree (MPH [‘95]).
Dr. Ghali’s research program is in the general area of health services research and thus falls within the third of four ‘pillars’ identified by the Canadian Institutes of Health Research. His work focuses on evaluating health care delivery for four inter-related high incidence and prevalence conditions -- cardiac disease, diabetes, cerebrovascular disease, and venous thromboembolic disease. These all represent serious conditions that have a large impact on the Canadian health care system and that influence the quality of life of many Canadians. Cardiac disease, cerebrovascular disease, and venous thromboembolic disease share the common thread of being serious vascular diseases that constitute the focus of the Heart and Stroke Foundation of Canada. Meanwhile, diabetes is a high prevalence condition that causally and prognostically influences these vascular diseases. Improved effectiveness and efficiency of health care delivery to individuals with each of these conditions is clearly important to Canadians and their health care system.
Dr. Ghali’s research has shed light on several aspects of quality of care relating to the medical conditions that are the focus of his program. Specifically, his work has provided important information on: • Trends in outcomes of care for these conditions • Descriptions of processes of care for these conditions • Equity, and in some instances inequity, of access to care for these conditions (by age, by sex/gender, by geographic location of residence, by income level, by race/ethnicity) • Appropriateness of certain procedures for these conditions • Practice variation across regions and hospitals, and the implications of such variation on quality of care • Economic considerations in rationing of health services • Cost impact of adverse events • Waiting times for cardiac care
Given the pride that Canadians have in their health care system, and the investment of federal and provincial governments in the future enhancement of our health care system, findings from this research have considerable public policy implications relevant to the general health and well-being of Canadians. Members of the Revision Steering Group for the revision of the International Classification of Diseases
Tevfik Bedirhan ÜSTÜN World Health Organization
Coordinator: Classifications, Terminologies and Standards
Dr. Üstün has worked in WHO since 1990 first in Mental Health, then in Evidence Cluster as an international health officer and formed multiple international networks on Classification and Assessment of Health and Disability; Mental Health Epidemiology, and Primary Care applications of classification and training programmes.
He has conducted large scale epidemiological surveys such as the Psychological Problems in General Health Care (1990-1998) ; World Mental Health Surveys ( 1998- 2006) and World Health Surveys ( 1999- 2003).
Currently he is responsible for the WHO’s Family of International Classifications (ICD, ICF and other health classifications); development of standardized health terminologies; and compilation of health information standards.
Dr. Üstün is the author and co-author of more than 150 articles, several books on psychiatry, primary care, classifications and health assessment. He has been awarded as a Distinguished Fellow from American Psychiatric Association; Honorary Fellow from Royal College of Psychiatrists from UK; National Scientific Council Fellowship from Turkey.
Further information http://www.who.int/classifications
Contact: World Health Organization 20, Av. Appia 1211 Geneva, Switzerland Members of the Revision Steering Group for the revision of the International Classification of Diseases
Robert JAKOB World Health Organization
Medical Officer - ICD: Classifications, Terminologies and Standards
Robert Jakob, MD is Medical Officer of WHO in charge of the ICD and derived classifications, since 2005.
From 2001 to 2005, he served at the German Institute for Medical Documentation and Information (DIMDI), a federal authority, which is also a WHO-FIC Collaborating Centre. He led a team that helped formulate a German emergency data set, and other data sets for the German electronic health card, as well as creating a registry for “electronic objects” (OID) in health. He was earlier in charge of ICD use in mortality statistics, the ICD adaptation for Oncology, the ICF (International Classification of Functioning, Disability, and Health), and consulting for the classification of procedures in medicine. Dr Jakob’s fluency in four languages facilitated his participation in the international activities of the Network of the WHO-FIC Collaborating Centres. Dr Jakob was a surgeon at the St Vincenz Hospital in Datteln from 1990-2001, and set up and ran the hospital information system.
Dr Jakob is member of the German Society of Medical Informatics, Biometry and Epidemiology, has a diploma in medical quality management (German Medical Board) and management of health and social institutions (Univ. Kaiserslautern). He is a board certified surgeon and received his medical education at the University of Essen.
Further information http://www.who.int/classifications
Contact: World Health Organization 20, Av. Appia 1211 Geneva, Switzerland Tel +41 22 791 5877 Members of the Revision Steering Group for the revision of the International Classification of Diseases
Can ÇELIK World Health Organization Systems Analyst: Classifications, Terminologies and Standards
Can Çelik has worked in WHO as a Systems Analyst since 1996.
He has worked in the development of Computer Aided Personal Interviewing software, rule based diagnostic systems, computerization of WHO assessment instruments and large scale survey management.
Since 2005 he has been mainly working for the Classifications, Terminologies and Standards Unit on the design and development of tools that facilitate the use, update and maintenance of the WHO classifications.
Mr. Çelik received his Computer Engineer degree in 1991 and M.Sc. degree in 1995 from the Middle East Technical University Ankara, Turkey and he was the Head of the Systems Administration and Programming Unit in the Computer Center of the same University before he joined WHO.
Further information http://www.who.int/classifications
Contact: World Health Organization 20, Av. Appia 1211 Geneva, Switzerland Tel +41 22 791 3008 Members of the Revision Steering Group for the revision of the International Classification of Diseases
Sara COTTLER World Health Organization
Technical Officer: Classifications, Terminologies and Standards
Sara Cottler is a technical officer in the Classifications, Terminologies and Standards unit at the WHO Headquarters in Geneva. She has held this position since December 2008. Sara works as the project manager of the ICD Revision towards an ICD- 11.
Previously, she worked as a technical officer for the International Centre for Migration and Health in Geneva, Switzerland.
Ms. Cottler received a dual-degree in Gender and Women Studies and Anthropology from Washington University in St. Louis in 2007.
Further information http://www.who.int/classifications
Contact: World Health Organization 20, Av. Appia 1211 Geneva, Switzerland Tel +41 22 791 2739 [email protected]