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Humanitarian Aid and Disability VADEMECUM 2015 Humanitarian aid and disability VADEMECUM 2015 1 This document is the property of the Ministry of Foreign Affairs and International Cooperation, Directorate General for Development Cooperation (DGDC). It has been prepared by the “Emergency” Working Group within the activities of the Working Table MAECI – RIDS (Italian Network on Disability and Development) for the Disability Action Plan: Marta Collu, DGDC – Office VI Giampiero Griffo, RIDS – Italian Network on Disability and Development Mina Lomuscio, DGDC – CTU (Central Technical Unit) Paola Pucello, DGDC – Office VI We are sincerely grateful to the Head of DGDC Office VI, Minister Plenipotentiary Mario Baldi, for his continued support, and to Teodora Danisi, Fabio Melloni, Vincent Racalbuto, Alessandra Lentini, Francesca Nardi, Sergio Quattrocchi and Laura Cicinelli for their editorial contributions. Cover photo: Marco Tartarini - Expert Emergency in the Democratic Republic of Congo Rome, 21st October 2015 This document was approved by the Steering Committee of the Italian Cooperation on the 19th of November 2015. ENGLISH VERSION Translation by: Alessandra Spano (AIFO), revised by Cinzia Cullice (AIFO) and Marta Collu (DGDC-Office VI) The final translation supervision has been done by: Logos Group 2 Index Preface............................................................................................................................................4 Chapter 1. Introduction: national and international contest………………………………….…………….…..5 1.1. Introduction to disability………………………………………………………………………………………….5 1.2. Principles and international conventions……………………………………………………….………..6 1.3. The Directorate General for Development Cooperation and disability………….…….…..8 Chapter 2. Humanitarian aid and emergency situations: the value of protecting people with disabilities ...................................................................................................................................10 2.1. Humanitarian aid and disability.................................................................................10 2.2. The vulnerability of people with disability and disabilities arising from emergency situations...........................................................................................................................11 2.3. Disabilities caused by emergency situations…...........................................................14 2.4. Guiding principles and strategy in humanitarian programmes for disability…………. 15 Chapter 3. Inclusion of disability within humanitarian aid programmes……………...……………….17 3.1. Programme management………………….………………………………………………………………….17 3.1.1. Mainstreaming and ad hoc programmes………………………..………….………….17 3.1.2. Staff training …………………………………………………………………….…………………..18 3.1.3. Adjustment of equipment and means……………………………………………………19 3.1.4 Statistics……………………………………………………………………………………..…………19 3.1.5 Establishment of an operating unit and a working group………….……………20 3.2. Differentiation between disability conditions…………………………….….………………….20 3.2.1 Intellectual and relational disability…………………………….......…………………..20 3.2.2 Physical disability……………………………………………..……………………………………21 3.2.3 Psychosocial disability……………………..……………………………………………………21 3.2.4 Sensory disability…………………………..………………………………………………………21 3.3. Risk management and disability……………………….……………………………………………………22 Chapter 4. Experiences and good practices ……………………………………………..…………………….………23 4.1. Skill enhancement for people with disabilities ……….……………..……………………………..23 4.2. Mainstreaming…………………………………………………………………………………………….……..…24 4.3. Involvement of people with disabilities and establishment of working groups ………24 4.4. Statistics and dissemination of information………………...………..……….……………………..25 4.5. Staff training …………………………………………………………………………………………………………26 4.6. Adjustment of equipment and means ……………………………………………………………………27 Chapter 5. Conclusions Attachment 1. Glossary Attachment 2. Performance indicators Attachment 3. Bibliography and websites 3 Preface I am pleased to present the concrete result of the experience jointly developed by Italian Cooperation and the Italian Network for Disability and Development as part of the “Emergency” working group. The group was established in 2013 following the adoption of the “Italian Development Cooperation Disability Action Plan”. This Vademecum is intended to provide a benchmark for aid workers—whether working in the field or at a strategic level—in particular concerning the formulation and implementation of programmes of prevention or response to humanitarian crises. It is not solely a theoretical document because, in addition to guiding principles, it also provides concrete examples of how to ensure protection of the rights of people with disabilities, including in terms of humanitarian aid. This Vademecum has been drafted in adherence to the UN Convention on the Rights of Persons with Disabilities, which has been in force since 2006 and which reaffirms the importance of protecting the safety of people with disabilities in dangerous situations. Although the inclusion of people with disabilities is possible in emergency situations, it requires a radical change in approach. In addition, we need to recognise that people with disabilities not only have the same rights as others, but may themselves be a powerful agent for change. Whereas in the past people with disabilities were considered recipients of interventions, now they play an active role in every phase of the project, including planning and management. The debate on this issue is at a very early stage, but Italy has been a driving force in raising cultural and social awareness—at European and international level—something that has always distinguished our country with regards to the protection of human rights. In this respect, I am pleased to point out that the protection of people with disabilities in humanitarian crises was one of the priorities of the recent Italian Presidency of the EU Council. Consequently, my personal wish is that this Vademecum will become the starting point for a renewed focus—including in humanitarian aid programmes—on people with disabilities and for a more fruitful partnership with civil society, which is a key partner in development processes. Giampaolo Cantini Director General for Development Cooperation 4 Chapter 1. Introduction: the international and national context 1.1. Introduction to disability As defined in the UN Convention on the Rights of Persons with Disabilities (CRPD), the term persons with disabilities includes "those who have long-term physical, mental, intellectual or sensory impairments which in interaction with various barriers may hinder their full and effective participation in society on an equal basis with others". The condition of disability "results from the interaction between persons with impairments and attitudinal and environmental barriers that hinders their full and effective participation in society on an equal basis with others"1. In recent years, the approach has changed from an individual and medical perspective to a social and structural one, in which disability means more than a physical individual characteristic, because it indicates the way in which society implements the rights of people with disability (the social model of disability). According to the World Health Organization, which in 2001 developed a classification tool that analyses and describes disability (called ICF – International Classification of Functioning, Disability and Health), disability is a human experience that everyone can experience. The ICF provides a comprehensive analysis of the health of individuals by placing the correlation between health and environment. In this respect, the definition of disability sums up a specific health condition in an unfavourable environment. The definition of the ICF is based on a "biopsychosocial approach" to disability, a model built on the interaction between body functions, body structures, activities and participation, and environmental and individual factors. The CRPD also defines the concept of discrimination based on disability, defined as "any distinction, exclusion or restriction on the basis of disability which has the purpose or effect of impairing or nullifying the recognition, enjoyment or exercise, on an equal basis with others, of all human rights and fundamental freedoms in the political, economic, social, cultural, civil or any other field". It includes all forms of discrimination, including denial of reasonable accommodation, meaning necessary and appropriate adjustments not imposing a disproportionate or undue burden, to ensure to people with disabilities the enjoyment and exercise of all human rights and fundamental freedoms. 1 United Nations, Convention on the Rights of Persons with Disabilities, 2006. Preamble e); Article 1. 5 The World Health Organization (WHO) estimates that around a billion people, about 15% of the world’s population2, have some form of disability, including around 80 million people in the European Union, of whom over 10% (nine million) live in Italy. More than a third of people over 75 years of age suffer from a partial disability and more than 20% have a severe disability. Furthermore, there are 93 million children with disabilities between the ages of 0 and 14 years (5.1% of the world's population), mainly in developing countries where children are exposed to multiple risks (poverty, malnutrition, lack of medical structures, an often hostile environment), that can be debilitating from a cognitive, motor
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