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Charity News & Update Newsletter No 6 - October 2008 Information Line 0121 357 8200 Charity News & Update s I write this I cannot believe where the time has gone again! Every year the time appears to go quicker A and quicker and before we know it we are preparing our children for infant/junior school, secondary school and even college or University. My daughter Charlie has just moved up into juniors and although she is never happy at returning to school after a holiday she has settled back into school life very quickly. We would love to hear your stories of ‘school life with a cardiac child’ and even better would your child like to put their thoughts down on paper and tell us how they feel about school and if they feel any different with their heart condition compared to their friends. I do hope that all your children have settled into school life nicely and with not too many hiccups along the way. Your trustees all have experience of the education system from one degree to another, if any of you are having difficulties at school, please ring our helpline and Sue will direct you through to one of us. I know a lot of us strive for normality with our children but sometimes things have to be different, our vice chair Debra has written about her son Jason’s experience with exercise, but it would be wonderful for you to share your own experience with us. I do hope the turbulent financial strain that is troubling our country is not affecting you all too much, it is a worrying time for many people. I am sure many of you will agree that although finances can be a strain there is nothing more frightening than a child with a cardiac condition. We are planning our Christmas celebrations over the next coming months, hopefully we will meet you all at our Christmas party at our wonderful venue for the 3 rd year running ‘Aston Villa’. You will find enclosed your Christmas raffle tickets, if you could please try and sell your books as this pays for the Christmas party, the presents and also the gifts for the babies and children who find themselves on Ward 11 or 12 during the festive time . Warmest regards to you all Sandra Ramsey - Chair of Trustees COMPETITION TIME We are offering you the chance to win a Family ticket for 4 (value £35) for the pantomime 'Aladdin' on Friday 5 December 2008 at Artrix Arts Centre, School Drive, Bromsgrove Please answer the following question - In the pantomime, Aladdin. what are the magic words needed to open the cave? OPEN _ _ _ _ _ _ All entries to be returned by 14 November 2008 First winning entry to be drawn on 15 November 2008 Answers to competition question with your name and contact details to be sent to: Young at Heart, 42 Thetford Road, Great Barr, Birmingham. B42 2HY OR Email your answer to: [email protected] INTRODUCING THE NEW CARDIAC LIAISON SISTER Hello everyone, y name is Teresa Figari, and I was appointed as the 4 th Cardiac Liaison Sister here M at BCH in April 2008 but I’m anything but new!!! I’ve spent the last 18 years as a Staff Nurse and then Sister on PBG / Ward 11 so I probably know most of you! I am a born and bred Brummie and have lived here almost all my life. I started my nurse training in 1974 at what is now City Hospital. While doing my children’s ward there I worked with a senior (rather scary) staff nurse called Pauline Dewick, small world isn’t it! I got married at the end of my training in 1977 to Ed who also worked at the hospital but as an accountant. I worked as a Practice Nurse while my two sons were little as the hours suited family life and I then moved to BCH in 1990 and made Paediatric Cardiology my career. Being on the baby ward made it easy for me to combine my work with my other passion which is breastfeeding. Ward 11 have the first dedicated breastfeeding room in the hospital. It was a difficult decision to apply for the Liaison post but I feel my experience will help me support families as they go through some of the most stressful times they will ever experience. I am loving the diversity of the job; one minute being with a newly delivered mom, the next minute talking to a 15 year old who’s having surgery for the first time. The added bonus is regular hours and no weekends. I am looking forward to supporting and promoting Young At Heart in my capacity as your new liaison sister. A GUIDE TO EXERCISE t is very difficult to find the right balance as far as exercise is concerned especially if your child is naturally I into sport, and it is extremely difficult to make the right decision as a parent. My son Jason was born with a complex heart condition and also has to take Warfarin so we have to be very careful what type of exercise, activities that he takes parts in. I can only speak from my own experiences and I have always sought the advice of Jason’s cardiologist but we have found that a small amount of exercise has been beneficial to Jason he enjoys having Karate lessons, he learns the discipline and respect side of the sport and also the moves, although he doesn’t take part in combat. Jason enjoys swimming he just has to be sensible and learn to know his limits, listening to his body knowing that when he feels that he needs a rest he takes one. Following the medical advice means that Jason still feels part of things and not excluded from conversation about sport with his friends. It was always explained that he shouldn’t take part in close contact sports/activities such as rugby etc and at first Jason was quite annoyed and he thought he would really be missing out but once all the details of why he should avoid such sports were explained to him he soon came around to the idea that it was the right thing to do and we have worked together to find alternatives. If Jason couldn’t take part in physical activities, i.e. within school, I asked if they could find an alternative activity for him to do and if you’re unsure of what type of exercise your child can be involved in just ask your child’s Cardiologist. By - Debra Bailey - Vice Chair Some children with heart conditions may get tired quickly when exercising. They may also be restricted in the type of physical activity they can do. It is important to get advice from the child’s parents, cardiac liaison nurse or cardiologist on what exercise the child can do. More information The Department for Children, Schools and Families has more information on children with special needs and medical needs. • Managing Medicines in Schools and Early Years Settings’ - • www.teachernet.gov.uk/wholeschool/sen (March 2005). Available from • www.dfes.gov.uk/sickchildren http://publications.teachernet.gov.uk/ CHF Website 17.09.08 INTRODUCING OUR NEW PATRON BOB BROLLY, MBE - YOUNG AT HEART PATRON and BBC RADIO PRESENTER “We are delighted to welcome our new Patron, Bob Brolly, MBE to Young at Heart. When you have the pleasure of meeting Bob, you will see that he is a very caring and genuine person and that despite his busy schedule, he always finds time for people and supports many charities, particularly those which involve children. He has raised over a quarter of a million pounds for worthy causes over the years and charities continue to benefit from his good work. Bob’s support of Young at Heart is yet another example of his generosity. Bob himself had a stent procedure two years ago and his own brother, Pat, was the very first person to have open heart surgery in Ireland over 30 years ago. So Bob has an intimate understanding of how one’s life can be affected when you have someone close to you with a heart condition,” Martina Ponsonby, YaH Trustee. LET ME INTRODUCE YOU TO OUR NEW PATRON . ob Brolly was born in Derry, Northern Ireland where he spent the first 15 years of his life. The family then B uprooted and moved to Coventry, England where he lives to this day. As a very young boy, growing up in Ireland, Bob spent many years singing in the choir at the Waterside Chapel, so singing was something that Bob had done from a very early age. Bob’s voice was trained by the Priests and he then became a soloist for many years. He studied engineering and served his apprenticeship in the car industry. After 6 years of studying engineering, a series of different jobs then followed from shoe shop manager to beer taster for Bass Breweries – not bad for someone who has never drunk alcohol! By this time, Bob’s family had moved into the pub trade and this is where Bob’s musical career was more or less launched. Bob formed a band in which he was drummer and singer. After many different band ‘line-ups’, Bob found his forte fronting the band and singing, which he is doing to this very day. His band, Calvary, toured the world as far away as Australia and America and all over Europe. In the last few years, Bob has had a complete change of musical direction in that because of his love of country music and his native Ireland, he now combines his favourite Irish tunes with songs from country artists, old and new – his favourite singers being Rodney Crowell and Vince Gill.
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