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Generic Data Standards Phase 1 For reference only – Do Not Use For more information contact: [email protected] Generic Data Standards Phase 1 Comprising data standards devised and/or recommended by the Scottish Executive Data Standards Branch and NHS Scotland National Clinical Dataset Development Programme August 2005 Scottish Executive Data Standards Branch National Clinical Dataset Development (Formerly Scottish Social Care Data Standards Programme Support Team (SCDS2)) Data Intelligence Group Data Standards & eCare Division Information Services (ISD) Victoria Quay NHS National Services Scotland Edinburgh Gyle Square EH6 6QQ 1 South Gyle Crescent Edinburgh EH12 9EB Tel: 0131 275 7053 Email to:[email protected] Tel: 0131 244 4728 Website: www.show.scot.nhs.uk/clinicaldatasets Email to: [email protected] Website: www.scds.org.uk Document control Superseded documents Not Applicable Document history Date Version Comments Status 20.08.04 0.1 FIRST SUBMISSION FINAL 12.04 1.0 FIRST SUBMISSION APPROVED 02.05 1.1 Amended in line with Pending approval new eGIF standards. Minor amendments following pilot implementation in eCare multi agency store (MAS) 12.04.05 1.2 Further Amended in line Pending approval with new eGIF standards. Minor amendments following pilot implementation in eCare multi agency store (MAS) 10.05.05 1.3 Minor amendments 07.06.05 1.4 Minor amendments 09.06.05 1.5 Minor amendments 22.06.05 1.6 Minor amendments Ready for publication agreed with SE DSB Changes from submitted version The following items have changed since version 1.0. Changes are detailed in the Phase 1 Change control document. Structured Name Preferred Forename Person Name Status Name Element Position Person Full Name (Unstructured) Person Requested Name (Unstructured) Person Sex at Birth Person Current Gender Person Marital Status Ethnic Group (Self Assigned) Generic Data Standards – Phase 1 2 Country of birth First Language Interpretation Assistance Indicator Preferred Language Preferred Communication Method Address (BS7666) UK Postal Address Internet Email Address GP General Medical Council Number Sexual Orientation Unique Patient Identifier Dwelling Type Employment Status Accommodation Type New standard: Preferred Name Standards removed from Phase 1 of Generic Standards: GP, Associated Person, Associated Care Professional, Employing Agency (for Care Professional) Reviewed by Members of the NCDDP Generic Data Standards Working Group Issue control Authors: NCDDP Support Team members; SE DSB Project Team members Contributor(s): NCDDP Generic Data Standards Working Group Target Group: Any agency or individual involved in the collection, processing or use of client/patient information and any other relevant public sector bodies. Distribution: See list at end of paper. Related documents: SCDS consultation on the generic Core, Supplementary Person and Children’s High-level (General) datasets (April 2004); eCare Multi Agency Store Data Model v 1.0 Consultation on: Recommendations for Generic Data Standards for Care Information about People in Scotland, August 2004 Generic Data Standards – Phase 1 3 Contents SECTION 1 – OVERVIEW AND BACKGROUND ................6 Overview...........................................................................................................................6 Purpose.............................................................................................................................6 Status ................................................................................................................................6 SECTION 2 – SUMMARY OF GENERIC DATA STANDARDS..............................................................................................................7 Data item template description .....................................................................................7 SECTION 3 –GENERIC DATA STANDARDS DATA ITEMS .................................................................................................................................8 A) STRUCTURED NAME...................................................................................9 Person Title ....................................................................................................................11 Person Family Name ....................................................................................................12 Previous Person Family Name....................................................................................13 Person Given Name......................................................................................................14 Person Initials ................................................................................................................15 Person Preferred Forename........................................................................................16 Person Name Suffix......................................................................................................17 Person Name Status.....................................................................................................18 Name Element Position................................................................................................19 Preferred Name .............................................................................................................20 B) UNSTRUCTURED NAME .........................................................................21 Person Full Name (Unstructured)...............................................................................22 Person Requested Name (Unstructured)..................................................................23 OTHER GENERIC STANDARDS ...............................................................24 Person Birth Date..........................................................................................................24 Person Death Date........................................................................................................26 CHI Number ...................................................................................................................28 Person Sex at Birth .......................................................................................................29 Person Current Gender................................................................................................30 Person Marital Status ...................................................................................................31 Ethnic Group (Self Assigned)......................................................................................32 Religion ...........................................................................................................................38 Country of Birth..............................................................................................................46 First Language...............................................................................................................50 Interpretation Assistance Indicator .............................................................................52 Preferred Language......................................................................................................53 Preferred Communication Method .............................................................................55 Address (BS7666).........................................................................................................57 UK Postal Address........................................................................................................58 Generic Data Standards – Phase 1 4 Postcode.........................................................................................................................59 Internet Email Address .................................................................................................60 UK Telephone number .................................................................................................61 Registered GP Practice Code .....................................................................................62 GP General Medical Council Number........................................................................63 Health Record Identifier................................................................................................64 Underlying Cause of Death..........................................................................................65 Sexual Orientation.........................................................................................................66 Unique Person Identifier...............................................................................................68 Dwelling Type ................................................................................................................69 Accommodation Type...................................................................................................71 Employment Status.......................................................................................................74 PHASE 1 CONSULTATION DISTRIBUTION LIST ..........................................76 SECTION 4 – APPENDIX.............................................................................78 PHASE 2 GENERIC DATA STANDARDS..........................................................78 Generic Data Standards – Phase 1 5 Section 1 – Overview and Background Overview Information exchange and joint performance management, between and within health and social care can only be achieved if the
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