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Spring 2020 NOT YOUR AVERAGE JOE Plus... Stephen Fry, Nile Rodgers JOE PASQUALE TALKS TO US and Jemma Redgrave say ABOUT LOSING HIS DAD ‘Men, we are with you’ Meet the researcher at a crucial point in the journey of a new drug The man who ran the world Spring 2020 WELCOME TO INSIGHTS This magazine was written before the outbreak of We’re operating in a rapidly-shifting landscape in 2020. coronavirus in the UK. This is an uncertain time for all of More men are being diagnosed with prostate cancer and us, but we hope the magazine showcases the positivity, living longer, but with potentially life changing side-effects. expertise and commitment of our movement during a We also know that as more men become aware of their difficult time. Of course, we continue our work to build risk, demand on diagnostic services will increase. Our the future men deserve. We’re here for you through this research is more important than ever. In response we’ve Some of the friendly people at uncertainty, and we have regularly updated information renewed our MANifesto, with the urgent priorities of earlier ASK A the other end of the phone and frequently asked questions about coronavirus, as and more accurate diagnosis, better treatments and better well as tips on how to stay informed and connected support for all men. on our website and social media channels. Go to: Our support services Inside you’ll see how we’re addressing these priorities right prostatecanceruk.org/covid19 SPECIALIST NURSE If you’re concerned about prostate now. It’s through our success, and ongoing work, to help roll cancer or prostate problems, we "I speak to my son and we’re quite open about everything, out improved diagnostic scans across the UK. It’s through A: Yes, there’s a lot you can do to look after can help. We provide a range we’ve broken that chain”. That’s our cover star Joe Pasquale success in the development of the world’s first precision your own health and wellbeing, like watching of information and support, on how things are changing for men, and the importance of medicine for prostate cancer. And it’s through the work of what you eat, and staying active. It’s open to everyone affected by talking about health. our Specialist Nurses who supported a record-breaking sometimes called self-management. number of men last year. Q: I WANT TO MAKE prostate cancer. Men you’ll meet inside like Thomas, Kevin and Lloyd We don’t recommend any set diet or exercise INFORMATION ON PROSTATE understand this well. As do Stephen Fry, Bill Turnbull and But the most important part in changing the future for men SURE MY LIFESTYLE programme, but we do suggest changes that CANCER AND PROSTATE DISEASE the thousands they’ve influenced across the country by is you. You’re part of a movement, and the might give you more control over your overall sharing their stories. In January, when we learnt that prostate money you raise fuels progress towards a IS AS HEALTHY AS We have free information on your health and help improve it. Staying a healthy cancer had overtaken breast cancer to become the most world where lives aren’t limited by prostate risk, treatment options, side-effects, POSSIBLE AFTER weight by eating a balanced diet and being commonly diagnosed cancer in England in 2018, a major cancer. Thank you. emotional wellbeing and lots more. physically active is one of the best things you can factor in the huge surge in diagnoses was put down to the Order or download copies from the TREATMENT. ARE do for your overall health. It can be something as ‘Turnbull-Fry effect’. Paul Shiels, Editor publications section of our website, THERE CERTAIN simple as walking or gardening. read it online, or call our Specialist Nurses for help choosing the Physical activity can lower your risk of many other THINGS I SHOULD publications you need. health problems, including heart disease, type-2 10 BE DOING? diabetes and some cancers. It may also be LOCAL SUPPORT important for men with prostate cancer, as there Use our website to find a service HOW A PROSTATE CANCER UK is strong evidence that being overweight raises Martin, Cardiff local to you and get access to care SUPPORTER SAVED MY LIFE the risk of being diagnosed with aggressive or Nile Rodgers and supporters like Thomas Kagezi and support where you need it, advanced prostate cancer. Staying a healthy weight may reduce your risk of prostate when you need it. are raising awareness of black men’s higher risk. cancer spreading after surgery or radiotherapy. Image credit:www.flickr.com/people/69880995@N04 Image ONE-TO-ONE PEER It may also help you manage or reduce some of the side-effects of treatments, such as SUPPORT SERVICE urinary problems after surgery. Hormone therapy can cause weight gain, so physical Open to anyone affected by activity and a healthy and balanced diet can help with this, too. IN THIS ISSUE prostate cancer or prostate 04 12 14 disease, whether you’re a Other things you can do include limiting your alcohol intake to 14 units per week, and THE NEWS WHO RUNS THE WORLD? LET’S MAKE HISTORY stopping smoking. diagnosed man facing a difficult decision or family member or friend Research breakthroughs, new THIS GUY. Professor Mackay is so close to Lisa O’Sullivan, Specialist Nurse looking for support, you can talk celebrity ambassadors and Meet the ultra (ultra) marathon getting a promising new drug into with a trained support volunteer. awesome feats of fundraising. runner who broke a world trials after a perilous, decade-long record after he was inspired journey from lab to men. For information about life after treatment: prostatecanceruk.org/living OUR ONLINE COMMUNITY by a Prostate Cancer UK Our Specialist Nurses are here to support you if you have any worries about Join a community of thousands supporter. prostate cancer or prostate problems, and can talk through practical ideas for online and share your experiences @ProstateUK with people who’ve been there. achieving a healthy lifestyle. Ask questions, post information @ProstateCancerUK Call free on 0800 074 8383 (Mon-Fri: 9am-6pm, Weds: 10am-8pm) and share your ups and downs. @ProstateCancerUK Chat online (Mon: 1-4pm, Tues, Thurs, Fri: 9am-4pm, Weds: 10am-4pm) Get the support you need, your [email protected] If you'd prefer to have your questions answered by email go to: way at: prostatecanceruk.org/ Editorial Team: Paul Shiels, Maxine Creedy, Mary Frampton, Phil Graham, Ruby Kell, Callum Struthers. prostatecanceruk.org/get-support get-support Prostate Cancer UK is a registered charity in England and Wales (1005541) and in Scotland (SC039332). Registered company number 02653887. 2 3 Spring 2020 Prostate cancer now Professor McCarthy most commonly takes next steps diagnosed cancer to deliver prostate cancer vaccine, in England thanks to you ack in January, just one week after we learned that deaths from prostate cancer had hit an ur Christmas appeal asked you to body’s immune system to target cancer B all time high, news broke that there were O help Professor Helen McCarthy, cells. It’s precise and very effective, 49,029 diagnoses of prostate cancer in 2018 from Queen’s University Belfast to but because of a lack of funding, and (19 per cent higher than 2017), meaning prostate deliver a prostate cancer vaccine. Helen the complexity of prostate cancer, it’s cancer overtook breast cancer as the most common has built a clever system that helps difficult to train the immune system to Without your generosity, my cancer in England. immunotherapy treatment to break target prostate cancer cells. There are research wouldn’t be possible. Marching to through certain barriers in the body so currently no immunotherapies available It really will go such a long way Your support helped to drive this increase in it can be delivered direct to the immune to treat men in the UK. to improving prostate cancer diagnoses. You helped us to spread awareness so the tune of a cells, which then can be tweaked to immunotherapy treatment for more men are aware of their risk. target prostate cancer. The next step is We’re delighted to say that our men and ultimately, saving lives. million pounds to develop it to a stage where she can 2019 Christmas appeal has just One of the most important factors was Bill Turnbull test it in men. smashed through our fundraising Professor Helen McCarthy and Stephen Fry publicly sharing their stories which ast September our ambassador and Sky target to raise over £1.2 million to fund led to more men going to see their doctor, this has Sports presenter, Jeff Stelling marched Immunotherapy is an exciting researchers like Helen who need to A massive thank you to the carol been dubbed the ‘Turnbull-Fry effect’. It’s also due to L four marathons in four days in four nations, development in cancer treatment: a take these experimental treatments to singers, Christmas shoppers, corporate the fact that men are living longer, when their risk of completing his quest to raise £1 million to help stop radical approach that can tweak our the next step. partners and all the festive givers. n getting prostate cancer is increased. prostate cancer being a killer. Here’s what Jeff has to say about this massive achievement... 50,000 Breast cancer "To raise £1 million across three years of Jeff’s March 40,000 for Men events, alongside 1,253 walkers has been 30,000 incredible.