Primer on Diagnoses and Treatment of Symptomatic Neurogenic Orthostatic Hypotension in This Issue by Stanley Fisher, MD

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MARCH 2015 Primer on Diagnoses and Treatment of Symptomatic Neurogenic Orthostatic Hypotension in this issue By Stanley Fisher, MD

HAPS Annual Meeting 3 Neurogenic Orthostatic Hypotension (NOH) including muscles, is a set of symptoms that results from the retina, heart, and Partners in Parkinson’s and Other failure of the autonomic nervous system to brain. Symptoms can 3 Announcements regulate blood pressure (BP) in response to finally emerge as a postural change. result of additional New Parkinson’s Medications 4 stressor on the Orthostatic hypotension (OH) is defined as a vascular system, including mild dehydration Marathon Donors 4-6 drop in systolic BP of at least 20 mm Hg or a due to inadequate fluid intake or drop in diastolic BP of at least 10 mg Hg HAPS Exercise & Support concomitant diuretics. Postprandial Insert during the first 3 minutes after the change Group Schedule (occurring after a meal) decrease of BP can of position. The risk factors include age, trigger symptoms in otherwise Upcoming Events and Programs 6 decreased cardiac compliance, anemia, asymptomatic patients. Therefore, it is dehydration and certain medications. prudent to avoid large meals and high Contributions and Tributes 7 NOH is attributed to the inadequate release glycemic index carbohydrates in the diet of of norepinephrine (NE) and is frequently patients with PD and NOH. Pancakes for Parkinson’s 7 present in several neurodegenerative In addition to those factors, many diseases including Parkinson’s disease (PD) commonly prescribed medications can and Multiple System Atrophy (MSA). By lower BP, including antihypertensives that some estimates it affects 40 to 60% of are often given for supine hypertension and patients with PD over their disease course vasodilators that are routinely used for the Which HAPS group and more than 80% of patients with MSA. In treatment of benign prostatic hypertrophy have you tried this PD, symptoms of autonomic failure are year? and erectile dysfunction, among other mainly the result of cardiac and peripheral problems. Check the insert for vasculature denervation. In MSA, it is more all group details! likely to be a result of failure of central NE Clinical evaluation of NOH should always release. include daily orthostatic vital signs. It is preferable to do it in the morning or after NE deficiency can lead to both orthostatic meals. BP and heart rate (HR) need to be hypotension and supine hypertension, checked reclining, sitting and standing with which significantly complicates both clinical 3 minutes intervals. Heart rate should diagnoses and treatment. normally increase to reverse the influence Symptomatic NOH is a result of the drop in of gravity, but this response is blunted or

This publication is not intended to provide systemic BP that no longer can be completely absent in patients with NOH. In diagnosis or treatment. Always seek the compensated by autoregulation of the some patients more in-depth evaluation in advice of your physician or pharmacist cerebral blood flow. It is present in about specialized autonomic laboratories needs to with questions regarding medical 20% of patients with PD at any given conditions or drug interactions. be done in order to uncover the cause of moment and increases with disease most asymptomatic abnormalities or to To request permission to reprint content duration, severity, and the use of published in this newsletter, please confirm the diagnoses. This is usually contact the HAPS office at 713-626-7114 dopaminergic medications. Symptoms are unnecessary in patients with Parkinsonism. or [email protected]. the result of the hypoperfusion of the tissue Continued page 2 The symptoms of NOH can vary dramatically from patient to Fludrocortisone is a synthetic adrenocortical steroid that patient especially in frequency and severity. The most enhances the reabsorption of sodium from the plasma, dreaded symptom of NOH remains syncope, often preceded causing fluid retention and corresponding elevation of BP. by feelings of lightheadedness, dizziness or the “feeling that Most side effects are related to that and include resting you are about to black out”. Those symptoms are the result of hypertension, peripheral edema (swelling in the legs), more severe cerebral hypoperfusion. Less severe cerebral congestive heart failure and low potassium. Midodrine is an hypoperfusion can cause difficulty concentrating, fatigue, alpha1 agonist which acts on alpha-adrenergic receptors in mental fog, headache, lethargy and excessive daytime the peripheral vasculature, producing an increase in vascular sleepiness. Retinal hypoperfusion often causes impaired tone and elevation of BP. It’s no surprise that potentially the vision that can progress from blurring to loss of color vision to most dreaded side effect is marked elevation of supine BP complete blackness just before syncope. Muscle with all the associated long term risks. hypoperfusion often presents as “coat hanger syndrome,” Recently, after years of clinical research, FDA has approved which is described by patients as a dull ache in the back of the first drug specific for the treatment of NOH. Droxidopa neck and a headache after prolonged standing. It can also (Northera) is a precursor of NE, which is extensively cause progressive knee buckling and weakness with walking. distributed through the body. NE increases BP by inducing Patients with coronary artery disease can experience chest peripheral arterial and venous vasoconstriction. Even though pain with standing or walking without significant exertion. it is likely to transiently elevate supine BP, in the long run it is These symptoms can significantly reduce mobility and quality unlikely to cause persistent resting hypertension according to of life due to fear of falling and constant fatigue. Syncopal the studies and Japanese experience. Because it is not simply episodes can often result in fractures, head injuries, elevating BP, but attempting to normalize the response to the lacerations and other problems related to unprotected falls. sudden positional change, it attempts to go after the root of This can lead to general deconditioning, social isolation, the problem of NOH in patients with Parkinsonian syndromes. anxiety and depression. In summary, today we have many viable options for the It is important to know that NOH is very treatable condition. treatment of NOH and prevention of the related disability and The first step is a nonpharmacological intervention. The injuries. management strategy should involve diet, exercise and It is important therefore to relate your symptoms to the change in sleeping habits. treating neurologist or cardiologist. I recommend that all It includes: patients with Parkinsonian syndromes, even those who are currently do not experience symptoms of NOH, elevate the  Elevating the head of the bed 20-30 degrees; head of the bed by at least 20 degrees and measure  Avoiding large meals, high glycemic index carbohydrates, orthostatic vital signs early in the morning at least couple caffeine and alcohol; times a week to be aware of potentially asymptomatic drop in  Gradual transition from supine to standing position to BP. Appropriate diet, hydration and exercise may help you to avoid falls; prevent more disabling symptoms of NOH and avoid  Increased salt and fluid intake; potentially serious injuries associated with falls related to  Frequent aerobic and resistance exercise in a safe syncope. environment;  Avoiding Valsalva maneuvers by treating constipation and urinary retention; Dr. Stanley Fisher, MD has taken a new position as the Co-  Discontinuation of antihypertensives, especially beta Director, Saint-Luke’s Marion Bloch Neuroscience Institute in Kansas City, MO. A former member of the HAPS Medical Advisory blockers except when used specifically for nocturnal Board, his primary interests include medical and surgical hypertension; treatment of Parkinson’s disease, tremor, dystonias, and  And of course, if those strategies do not alleviate Tourette’s syndrome, as well as Neurological Rehabilitation symptoms, use of thigh level tight compression stockings utilizing intrathecal baclofen and botulinum toxin. An and abdominal binders. internationally recognized expert in the field of Neuromodulation, Dr. Fisher has collaborated extensively with the researchers and However, despite those measures, certain patients continue engineers at the Center for Neuromotor and Biomechanics to experiences NOH and require medical treatment. As a first Research. step, we try to adjust dopaminergic medications; if possible HAPS thanks Dr. Fisher for his many years of dedicated service to without compromising motor control. our organization and the local Parkinson’s community. During his time as a Medical Advisory Board member, he provided countless The next step would be to raise BP with medications. For hours assisting HAPS in educational endeavors. We wish him the many years the most commonly used medications were best of luck in his new role at St. Luke’s Marion Bloch Fludrocortisone (Florinef) and Midodrine (ProAmatine). Neuroscience Institute in Kansas City. 2 | HOUSTON AREA PARKINSON SOCIETY HAPS WELCOMES NEW BOARD MEMBERS

On January 28th Houston Area Parkinson Society kicked off its 41st year of serving the Parkinson’s community at the 2015 Annual Meeting of the HAPS Boards at the home of Drs. Ellin and Robert Grossman. The evening marked the end of long tenures of a number of members of the Board of Directors who were celebrated for their many contributions as we welcomed new Board members who begin their terms this year.

Pictured are Erick Sandlin, Daphne Haskin, Philip Francis, Denise Bishop and Joe Ahmad. We look to our new leadership with great excitement as they guide the organization and further the HAPS mission to improve the quality of life for those affected by Parkinson’s disease.

MJFF’s Partners in Parkinson’s Coming to Houston!

The Michael J. Fox Foundation and AbbVie have partnered to create Partners in Parkinson’s, a national strategic health initiative which aims to fill in knowledge gaps, and provide new educational tools and resources for the Parkinson’s community to help patients optimize their care from point of diagnosis through advanced disease.

Combining virtual and face-to-face opportunities, Partners in Parkinson’s empowers patients and families to “discover the benefits of team” by connecting them with information and resources that can be crucial in developing a plan of care specific to their Parkinson’s.

Together HAPS and MJFF are bringing Partners in Parkinson’s to Houston in September 2015.

Stay tuned for more details about this exciting, upcoming event! COMINGSOON

HAPS social workers are going to Washington! Check out HAPS at Parkinson’s Action Network’s 2015 PAN Forum on March 23rd - 25th through social media. Follow HAPS on Twitter and “like” the HAPS Facebook page to see pictures of the event! #PANForum15

Many thanks to Erin Furr-Stimming, MD, Assistant Professor of Neurology, UT Health, Co- Thank Director UT MOVE, Chief of Neurology, LBJGH and HAPS Medical Advisory Board member who led the presentation of the Newly Diagnosed Education Program on February 21st. We You! appreciate your time and expertise.

The Brain Awareness Campaign is a worldwide celebration of the brain that brings together scientists, families, schools and communities. This global celebration, launched by The Dana Alliance for Brain Initiatives in 1996, presents an opportunity to bring attention to brain science advances and advocate for science funding. Brain Awareness Week serves as a launching point for year-round brain awareness MARCH 16-22, 2015 activities.

MARCH 2015 HAPS HAPPENINGS | 3 HAPS Superhero Squad Does It Again!

In this year’s Chevron Houston Marathon, HAPS Superhero Squad has outdone the record-breaking numbers of 2014 and raised an exceptional $119,756! Our HAPS’ Top 15 heroes also increased Parkinson’s awareness with a massive group of 250 2015 Fundraisers participants running and walking in complete hero attire. From our top 1. Jim Thorp $15,251 fundraiser, Jim Thorp, who raised $15,251 to our youngest fundraiser, Madeleine 2. Fred Stephens $14,200 Skaufel, who raised an impressive $1,151 at the age of 8, HAPS heroes combined 3. Diana Rutherford $8,700 to make this a widely successful event. 4. Debby Hurlbert $7,126 5. Mike Hendryx $4,975 HAPS Marathon Co-Chairs, Diana Rutherford and Dotti Visosky, attribute these 6. Pamela Skaufel $4,151 achievements to attitude and awareness. Dotti stated, “The enthusiasm and the 7. Leon Keeble $4,090 number of people who came out to raise money and participate was better than 8. Kathleen Crist $3,727 ever. I was extremely impressed.” Diana added, “I think people are now more 9. Cathi Hernandez $2,465 aware of Parkinson’s disease. More people know what the disease is, understand 10. Steve Bingham $2,241 11. Lauren Diliberto $2,185 it and are willing to contribute to the cause.” 12. Steve Atchison $1,900 HAPS would like to thank the walkers, runners, fundraisers, volunteers, 13. Albert Frank $1,785 spectators and the nearly 850 donors (listed below) who participated in the 14. MVP Proud $1,520 15. Justin Folloder $1,390 Marathon and helped in the quest that Dotti describes as, “showing the community that life is not over for people with Parkinson’s.”

Donald Abrams Don Brown Howard Close Tiffany Alexander Michael Brown David Cloud Leslie Doggett Harlan Alford Katy Brown Gregory Cokinos Thomas Doneker Angie Garcia Terry Amos Sherry Brown Chip Colburn Joe Dryden Carol Garner Clarence Anderson Karen & Steve Brown Michael Cole Sandy Duncan Vicki & Rob Gatza Vicky Anderson George Brown Chris Coleman Halina Duncan Bridget Gibson Linda & Kent Anderson Debbie & John Browning Milton Colia Sheri Eastman Judith & Bill Giddings Jaquel Andrews Joyce Bruce Blake Collier Nathan Eddy Joyce Gilbreath Fernando Aponte Carl Bruice Priscilla Collier Marcia Edmonds Lee Gill Patty & Greg Aquinto Patrick Buckley Kaitlin & Joc Collignon Tomekia Edwards Evan B. Glick Greg Argyres Laura & Ralph Bulle Susan Collins Penny & Berk Egenes Betsy & Gregg Goldstein Patricia Armatta Mary Bulle Fred Collins Dan Egizi Armando Gonzalez Elizabeth Ashton Sandra Bunton Brian Collins Caridad & Roberto Egusquiza Jessica Gonzalez Steve Atchison Marlene Burkhardt ConocoPhillips Company Diana Eldredge Martha Gonzalez Dennis Atchison Carrie Burnett Celeste & Robert Conlon Christi & John Elledge Ann Gonzalez Diane Atwood Jennifer Butler Elizabeth Connors Nancy Ennis Javier Gonzalez Mahmood Banijamali Gretchen Butler Liz & Blake Cook Enterprise Holdings Foundation Sally & Glenn Goss Barbeque Exchange Kim & Chad Butler Lori Cook Frank Erwin Steve Gottardy Nicole Barrios Brian Butler Kelly Cook Jeanne & John Esler Hollie Granhold Cindy & Thom Bausch Kelly & Billy Buzzett Clare Cooper Miriam Español Denise & James Grannon Linda & Joe Bayarena Joseph Byers Cathy & Bob Cooper Carl Estler, DDS Jason Gray Iris & Doug Beatty Paula & Jack Cade Craig Cooper Tyler Evans Carolyn Green Donald Beckmann Monica Calderon Marcy Corb Mary Ann & Phillip Evans Clare Green Niamh Bedford Sam Caldwell Nicola Coronis Michael Evert Chris Griggs Barbara & Jeff Bedford Lisa & Dale Cannon Caryl Coronis PA Lynch Family Ellin & Robert Grossman Leonard Bench Dale Cannon Agency Cynthia Cortez Gerald Farha Michael Grover Michael Benestante Louis Caplan Rebecca & Mike Coulson Jerry Fazio BJ & Bob Grower John Benutty Barbara & Jerry Carlisle Debbie & Kelly Courter Maggie & John Felton Cristina Guerrero Amy Bermar Rebeca Carrera Sandi & Randy Cowman Donna Wiener & Rod Felts James Guerrero Marsha & Irl Bernstein Amado Carrillo Laura Cox Tyler Fenley Agnes Guillory Steve Bingham, Sr. Brady Carruth Jessica Craft Al Fenoy Ella Guillory Mary Birk Patty & John Carter Elizabeth Craig Nicole Fields Nomica & Eligha Gullory Charlie Blackwell Elizabeth & Stephen Cartwright Paul Crandall Susan & Bill Finnegan Magdalena & Lev Gutman Diane Blanco Blake Caruthers Lisa & Dale Craven Marcie Fischer Lana Hadlock Erin Boczek Robert Cassidy Kathleen Crist Andrew Fisher Earl Hale Chris Boeker Karen & Bob Cassidy Ellie & Terry Csengery Jeannie Fisher Amanda Hamelers Nicole & Scott Boettcher Linda Castello Dianne & Jim Curry Jen & Brad Fleck Rachel Hamelers Susie Bow Kathleen Cejka Alla Dadpay Dave Flint Judith Hamelers Mike Bow Linda & Mike Chaddick Terry & Terry Dailey Jody Folloder Jason Hanlon Jon Bowman Jay Chaicha Kristi Dailey Justin Folloder Kristin Hanson Harry Boykin Lin Chaicha Melody Dalgleish Brian Folloder Margaret Harmon Azra Brackovic Barbara Chandler Alyssa Darner Jeff Folloder Lynn & Purvis Harper Jane & Bob Bradley LaVerne Chang Liz & Rene De Hoyos Amanda Fontenot Alison & Robert Harrell Cherry Bramel Frank Chapman Charles De Voe Angela Force Charles Harrington Deborah Brancato Alexandra (Sandy) Chasse James Demases Cece & Mack Fowler Brenda & Jason Harris Lucy Brants Cara Chatfield Kendra Dempsey Martha Frances Keith Hartman Margaret Braswell Laura & Gill Cheesman June Deng Debby Francis David Hartman Garth Brentlinger Igor Cherches Richard Denney Pamela & Curtis Frasier D. Willis Hartman Bobbie Brentlinger Chevron Peggy & Bill Dermott Terry Fry Donna & Craig Hartman Gary Brentlinger Diane Chisam Elaine Desmond Eleni & Thad Fuller Daphne Haskin Melinda & Thomas Brents Kathy Christian Megan & Sam Diliberto David Fusselman Carlanda Hassoldt John Bridger Kellie & Krammer Clann Marla & Tim Diliberto Cheryl & Paul Gahm Jean Heineman Tricia Brinks Ruth Clark Lauren Diliberto Kes Gaizutis Steve Heiser Christopher Brom Elizabeth Clechenko Lisa Dixon Elizabeth & Edward Gallner David Heldenbrand Allen Brown Debra Clifton Melinda & Troy Dodd Cath Garcia Steve Hellmers

4 | HOUSTON AREA PARKINSON SOCIETY Carol & Tom Helms Bill Keyser Margaret & Alan McLarty Harvey Pearlstein Cristy & Mike Schmidt Barbara & Jimmy Hemphill Mdisa Khan Greg McLauchlin Carol & Jim Peiffer Lisa Schmitz Ruthann & Carlos Hendricks Amy Kick Brian McMahon Keith Pensom Bill Schoenfield Mike Hendryx Mary Kimball Don McMath Pepsico Foundation John Schoepf Gavin Hepburn Janet King Barbot McNabb Ricardo Perez Mary Jane Schott Robin Hermans Stephanie King Dianne & Kindel McNeill Armando Perez Norm Schuett Cathi Hernandez Dave Kinnan Katrina McQuillen Sandy Perez Paul Schulz Liz & Rob Herrada's Kingwood Bible Church Quin McWhirter Consuelo Perez Robert Schwartz Diana & Jerry Hertzenberg Imran Kizilbash Downing Mears Hal Perkins Muriel Selber Folloder Kent Heuring Jennifer Klein Marilyn Mease Christy & Mike Persia Eric Self Todd Hewgley Rita & Dick Klein Deck Buddy Medina Veera Perumaalla Mary Seymour Kim & Jim Higbee Edwina Klepac Renato Melo Barb & Ken Pieh Amy Shearon Laura Higley Derek Klepac Caroline Melton Cindy & Mike Pilkenton Shell Oil Company Foundation Jordan Hmaidan Nancy Kline Janet & Eddie Mendez Carole Pinell Shelley Shelton Grace Hobby Lutitia Kliner Mary & Hilario Mercado Luke Pinkard Nancy & Jack Shelton Susan Hoffius Bonnie & David Kluborg Peter Meyer Thomas Piotrowski Bonnie Sherk Cecily Hoffius Cheryl & Roger Knott Matthew Meyer Michael Polarek Todd Sherrill Mark Holt Michael Koenig Charles Milby Arlene Pontigo Nirav Sheth Lindy Hood Paula Korber Emily Minarcik Carol Pontigo Christie & Michael Shopoff Judith & Bobby Horne Gere D. Korenek John Moehring Shelly & Arthur Porter Courtney Shopoff IV Horton Linda Krejbjerg Judy & Charlie Monaghan Diana Power Yulia Shuvalova Tom Horton Dan Krueger Yolanda Monroe Rosser Powitzky Shelly Shwartz Bonnie Horton Kenneth Kruse Jeffrey Montgomery Premier Companies, Inc William Sibley Lani House Tony Kupersmith William Moore Barbara & Tom Press Adrienne Sicinski George Howard Marilyn Kusniss Cassie & Jim Moore Susan Prichard Robert Sime Susan & Kevin Howard Connie Kwon Carlette Moore Ken Prindle Pam & Ernie Simien Cindy & John Howell Kathy & Herb Ladley Penny & Brandon Moore Gayla & Jeff Pruett Rod Skaufel Marilyn & Frank Hrach Ayesha Lakhani Fran & James Moran Yves Puisieux Linda Skaufel Susan Hrach David Lakomy Zachary Morgan Ryan Putnam Madeleine Skaufel David Hrivnak Kay & Chuck Lamberth Peggy Moro Steffany Quintana Pamela Skaufel Kristen Hrncir Katharine Landmeier Ursula Morris Shannon & Jason Quisenberry Sylvia & Charlie Slaughter- Shuang-Yuan Hu Amy Landry Sterling Morris Kathy & Gary Ramsey Cunningham Jo Ellen Hubert Daniel Landry IV Niki Morrow Joyce Randolf Slay Industries Mary Ann Huntoon Nancy Latimer Cora Morrow Leann Randolph Paul Smith Debby & Jim Hurlbert Cathy Lawrence Mike Morse Nicole & Bill Rasch Michele & Mitchell Smith Kim & Tim Hurlbert Patricia Lawton Cynthia Mudd Rhonda & Rick Rawlings Lynn & Mike Smith Ashley & Jeff Hurlbert Brenda & Timothy Lawton Marvin Mueller Kelsey & Thomas Reckling Rand Smith Benjamin Huss Whitney Leavell Melinda & Thomas Mundorff Cliffe Reckling Jeanine Smith Lauren Huss Matt LeBlanc Ann Murdock Margaret Reckling Meryl Smith Katy Huss Junie Ledbetter Marlin Murdock Jerry Reese Holly Smith DelaLane Huss David Ledyard Martin Murdock Alicia Remmers Dylan Smith Michael Huss Bryan Legate Heather Murphy Phyllis Renfro Tracy & Ken Snodgrass David Hyatt Cathryne Lempa Vickie Nation Patricia Rey Yinka Solola April Ibarra Regina Leslie Nationwide Insurance Keeble & Kathleen & Clarence Rheman Heather Sommer Mathison Ingham Augusta Levine Associates Maryanna & Eugene Rhemann Patricia & Kurt Sommer Gail Ireland Sharon Lewis Betsy & Hunter Nelson Lee Richardson Pat & Gordon Sorrells Grant Isaminger Charla Lindsey Barnabas Nemec Bob Richter Laura & Scott Southall Jennifer Isaminger Jim & Barbara Liner Lindy & Larry Neuhaus Yolanda Rico-Pyron Katie & Billy Spaur Mark Jackley Christopher Liu Tom Neville Carole Riekert Brenda & Chuck Spaur Shawn & Bill Jackson George Liverman Linda Nicholls Lucy & Hayden Rieveschl Cindy & Lance Speck Connie & Larry Jaeger Jean & Mike Livingston Cindy Nichols Keith Ritchey Kathy & Paul Spicer Jake's Inc. Kristi & Dale Love Pam & Kent Nicholson Valerie & Tom Rizzoli Marcus Spillson Randall Jamail Betsy Lu L ac Ganesh Nirmal Linda Robertson Lavonda Spinnato John Jankowski Jeff Dana Ryan & Ben Lynch Charlotte Nolen Lori Robertson Richard Spinnato Jeff Jenkins Odette & Bob Mace Barbara Noonan Jessica Rocca Oliver Wendell Sprott, Jr. Tom Jhou Macy's /Bloomingdale's Gerald Norman Carol Roche Ellen Sprovach J. Ernesto Jimenez Allan MacInnes Michael Norman Elisa Rochford Crews Sprovach Betty Joe Justin Mackie Paul O'Doherty Celida & Leandro Rodriguez Joseph Sreshta Jill & Kirk Johansen Sue Majer Louisa Oeding Sara Rodriguez Christine Staudt Vanessa Johnson Dominic Mandola The Offners Gabriel Rodriguez Jacqueline Steel Nan & Brent Johnston Tippy & Ting Maneewat Lisa Ogilvie Patricia Rodriguez Annette Stegemoeller Debbye & Ron Johnstone Gisele Maragos Mari & Harry Okabayashi Molly & Chuck Roe Kim Steinmetz Sam Jones Brittany Marcus J. Thomas Oldham Karen Rogers Fred Stephens Darragh Jones Wendy & Jim Markgraf Maximiliano Olivera Uncle Ronnie Ted Stephens Quyen Jones DeAnna & Michael Marquart Maria Kathrina Onate David Rose Susan & Gordon Sterling Andrea Jones Ellen Marsh Andre Orban Sheila & Marvin Rosenberg Jackie & Julie Stevenson Maura Jones Samantha Marshall Kimberly Ortiz Joanne & Jerry Ross Richard Stewart Lori & Ed Jones Jamie Martin William Osborne John Rudisill Mindy Stinson JPMorgan Chase Foundation Lucinda & Jeffrey Martin Katie & John Osborne Marie & Pete Rupp Sebastien Stoffel Phyllis Kalz Cheryl & Jack Martin Anne Owen Joan Rush Mark Stone Cheryl & Allen Kauffman Laura Martinez Patti Owens Rebecca & Arlis Russell Maureen Sullivan Sara Kauffman Antonia & David Mason Maria & Steve Palacios Diana & Jim Rutherford Zachary Sullivan Nancy Kauffman Dorsey Massey Margaret & John Palacios Wendy Rutherford Elizabeth Suman Sharon Kaufman Lou Ann Masters Virginia & Forrest Pape Diane Ryan Tina Summers Diane Kearney Stewart Masterson Ricardo Paras Janet & John Ryan Barbara Sutherland Breda Kearney Cristina Matos Fran Parent Deirdre Rysn David Svedberg Courtney Kearns Martha Matulich Nicola Park Jeremy Sabio Simone Swamber Ann Keary Brady May Alex Park Frank Salazar Stacy & Tammy Swedenburg Marjorie Keating Stormy Mayfield Maureen & Ken Parker Ashley Salazar Nelly Tacam Leon Keeble Heidi Mayne Amy & Steven Parker Juan Diego Salinas Deborah Taggart Mary Keilbart Roddy & Patsy McAlpine Sarah & Chris Parks McClain, Lainy & Nathan Sampson Terri & Benjie Talley Michael Kelingos Rachel McBath Sharon & Fred Parrott Meridith Sanders Kiana Taylor James Kelly M. D. McCain Sudha Patel Marianne & Tom Sanders Carol & Mark Taylor Sunny & Dennis Kelly Audrey McCarthy Rich Patrick Emily Sandvig James Taylor Pat Kelly Kissy & Boss McConn Linda Patterson Janis & Bruce Savatsky Steve Tefteller Wendy Kelly Douglas McConn Klaus Paul Kathleen Sayers Cindy & Howard Tenney Kimberly Kennedy Anne Thobae & Mike McKann Kaushik Paul Edward Saylor Eric Thiede Mimi & Rob Kerr Jennifer McKay Sameer Paya Laura Schafer Bill Thomason Jaysen Kettl Caroline McKnight Martin Payne Karla & Allen Schapansky Stephanie Thomsen

MARCH 2015 HAPS HAPPENINGS | 5 Edna Thornton Robert Villeneuve Matt Whitney Patricia Thorp Rachel Vincent-Finley Mark Wilburn Special Thanks Carolyn Thorp Barbara Virany Barbara & Larry Wilkins Jim Thorp Mary Jean & David Volpe Bonnie Williams Tim Thurmond Jennifer Volpe Julie Williamson Patricia Timpanaro Ngoc Vu Jan Willis Kenneth Titt Lam Vu Culver Wilson Glenn Tomblin Annastasia Walker Wanna Wilson Jason Tracy Deborah Walls Pat Wininger Harper Trammell Karin Wang Dulcie Wink Stefni Tredennick Ashlee & Matt Ward Beth Wolf Margie Trevino Susan Ward Helen & Dallas Wolf Dana Tumpowsky Gayle & Don Warren Monica Wolf Sandra Turner Sylvia & Phineas Washer James Woltz Jeremy Underwood Shayna Watts Tom Woltz, Sr. Tina & Lance Underwood Cindy Weatherall Heather Woodcock Drew Underwood Leslye Weaver Shelby Yllana Jaclyn Underwood Linda Weeks Heesook Yoon Jan Van Dyke Richard Weirich Matthew Young Sarah Vandergriff Mark Werner Angelia Yurch Mary K. Vanderslice Lisa Westarp Neda Zafaranian Lisa Varghese Andrew Wheeler Amanda Vasquez Lydia Wheeler Melissa Verne Murrell & Brian Whelan Sherry & Drew Verret Courtney & Brandon Whigham Terry Villarreal Ken White Mario Villena Lee Whitley

HAPS is currently enrolling individuals for the upcoming PEP session which will begin Friday, April 10th. This five-week session is limited to twelve participants with mild to moderate Parkinson’s disease, so get registered now! The four-hour program is presented at Memorial Drive Lutheran Church each Friday for five consecutive weeks and has components of exercise; recreation; socialization; education; peer-led discussion; professionally facilitated support; ice breakers; and lunchtime conversations. Registration is required. Contact Celeste Harris, LMSW at 713-313-1706 or [email protected].

Mark your calendars—the second YOPD Breakfast Club is just around the corner. Join others under the age of 50 who are living with Parkinson’s disease during this fun, social gathering. The YOPD Breakfast Club will meet quarterly with the next event scheduled for Saturday, April 25th. If you are interested in learning more about this program, you may contact Celeste Harris, LMSW at 713-313-1706 or [email protected].

2015 Saturday Meeting Schedule April 25th July 25th October 24th

6 | HOUSTON AREA PARKINSON SOCIETY

We are extremely grateful to the following individuals for their generous support of HAPS. Without the continued support of our donors, none of our programs or services would be possible.

IN MEMORY IN HONOR

Georgene Brandon Peter Almy Dr. Bob E. Stout Marian Harrison Marian Harrison Agatha and Gus Brann Linda and Kent Anderson Eleanor Evans Debbie and Frank Jones Elizabeth E. Trahan Cathy Brown Porter Leon Layne Lewis & Partners, LLC Eve Asner Rose Ann and John Shelton Carol Lee Seliger Shirley Toomim Bob Casey Linda and Tommy Hathaway Roy H. Cullen Agatha and Gus Brann Connie and Bob Bains Charlotte Duncan Jackie and Jimmy Dan Rollins Shawn Casey Emily Morgan Phillip W. Edwards Charles H. Grube Agatha and Gus Brann Pat Edwards Irene and Gordon Kellogg The Janisch Family Cheryl, Talma and Mark Turrentine Margaret Romeo Mark Messerly's Family Busgy and Larry Carter Michael Romeo Lisa and Aaron Stout Alan Hackenson The Prince Family Charitable Fund Judy Bruner Lewis & Partners, LLC The Datta Family Mary Cox GIFTS Fannie Messec Sherry Foster Rebecca A. Hackenson Mr. and Mrs. Patrick McCowen Jonathan Shear Mr. and Mrs. Casey Hernandez Thomas Byron Horton Terry Moore Mr. and Mrs. H. Scott Galloway Peggy Jackson Judy and James Stover Van and Dick White Shirley and Edward Ross

Herman Lauhoff Ron Tunnicliff Michael Brown Bettie J. Szatkowski Beverly and Anthony J. Deptula Esther Crosby Judy Bruner Andrea Friedel Margaret Mika and son, Jason Mika Warren Williams Harry H. Grant Georgia and Jerry Forbis Cynthia Crellen William R. Williams Cindy and David Marquez

While we make every effort to be accurate and thorough, it is possible to accidently omit or misspell a name. Please contact the HAPS office with corrections.

Pancakes for Parkinson’s Raises Awareness and Support

On Saturday, February 21st HAPS joined Team Fox for the 4th annual Pancakes for Parkinson’s at Rice University to raise money for The Michael J. Fox Foundation for Parkinson’s Research. Led by student volunteers, this event featured a wonderful lineup of speakers on Parkinson’s disease, pancake eating contests, improv comedy skits and musical routines to entertain those attending the pancake breakfast. Professor Robert Flatt, an esteemed photographer who lives with Parkinson’s, was a key speaker and sold various pieces of his original photography, donating the proceeds to raise support. At the end of the day, $3,500 was raised to help fund Parkinson’s research. HAPS appreciates the opportunity to join Rice University and Team Fox each year in their efforts to find a cure and raise Parkinson’s awareness in our community!

MARCH 2015 HAPS HAPPENINGS | 7 Houston Area Parkinson Society Board of Directors Board of Advisors

Mike Hendryx - President Chris Bell Marti McWhirter Greg Groogan Gabriel Zamora - Vice President/Treasurer Ron Bernell Ellin Grossman, EdD Quin McWhirter Leslye Weaver - Vice President/Secretary Nina Brown John E. Hankey W.O. Neuhuas III Aubrey Calvin Harriet Hart Malcolm Pettigrew Joe Ahmad Joiner Cartwright, Jr. Kamden Kanaly George Puig Denise Bishop Bob Casey Liz Lary Jeff Rosenberg Chris Brewster Rich Clifford Arthur Schechter Randi Carrabba Harriet Latimer Robert Cruikshank Joyce Proler Schechter Joan Cupic Dan Lauck Binky Stephenson Strom Philip Francis Meredith Cullen Anne Martin Jo Furr Frank Donnelly, Jr. Robert A. Martone John Strom Joyce Gilbreath Tom Ganucheau Medical Advisory Board Daphne Haskin Joshua Huss Richard K. Simpson, Jr., MD, PhD - Chair Rob Kerr Madhureeta Achari, MD Joseph Jankovic, MD Terry K. Satterwhite, MD Jim Nicklos Gerald Rideaux Leanne Burnett, MD Joohi Jimenez-Shahed, MD Mya Schiess, MD Erick Sandlin Steve Croft, MD Eugene C. Lai, MD, PhD Desiree B. Thomas, MD Terry K. Satterwhite, MD Albert Fenoy, MD Laura Marsh, MD Gage Van Horn III, MD Pamela Skaufel Erin Furr-Stimming, MD Greg McLauchlin, MD Ashwin Viswanathan, MD Jim Thorp Robert G. Grossman, MD Kimberly Monday, MD Michele York, PhD Michael Young Cindy Ivanhoe, MD William Ondo, MD

Staff Anne Thobae - Executive Director Leann Randolph, LMSW - Social Worker & Advocacy Outreach Coordinator Kathleen Crist, LMSW - Director of Social Services & Program Development Celeste Harris, LMSW - Social Worker & Special Programs Coordinator Kelly Nicholls - Coordinator of Marketing & Communications Angelica Rodriguez - Coordinator of Therapeutic Programs