CREATING MORE SURVIVORS the Race to Save Lives Starts with RESEARCH
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2014 REPORT TO DONORS THIS IS HOW YOU ARE CREATING MORE SURVIVORS The race to save lives starts WITH RESEARCH. You are the Heart and Stroke Foundation’s biggest asset and greatest ambassador. Your generosity is breathing life into innovative research that brings us closer to our vision of healthy lives free of heart disease and stroke. In 2014 alone, you helped to create 165,000 survivors. Each one has a story — a story of love, family and memories. A story that could have ended prematurely. Thanks to your investment in research that prevents disease, saves lives and promotes recovery, their stories will continue to unfold. Within these pages, you will meet some of these survivors and the researchers creating breakthroughs in their care. You’ll see how your support is fundamentally altering the narrative for survivors and the family and friends who love them. The work you fund today will have even more impact on generations to come, in countless stories that have yet to be told: • The 14-year-old who will never start smoking thanks to government policies that protect her from exposure to flavoured and menthol tobacco. • The husband who will recognize the signs of stroke in his wife and call an ambulance as a result of donor-funded awareness campaigns. • The grandmother who will get back to golf and swimming after a heart attack, thanks to a breakthrough therapy that uses her own cells to repair her heart. Healthy lives free of heart disease and stroke is a realistic vision. Together we will make it happen. Thank you, 165,000 times. David Sculthorpe Chief Executive Officer HEART1 2014 ANDREPORT STROKE TO DONORS FOUNDATION OUR PLAN: STEPS TOWARDS A HEALTHIER FUTURE Your commitment to our cause Making It Happen Together Your donations powered critical demands the Foundation’s sets out two measurable goals momentum in 2014 as we took utmost effort to invest your that will lead us to our vision important steps toward those donor dollars strategically, of healthy lives free of heart goals under the three mission funding research and programs disease and stroke: priorities set out in the plan: that will have the greatest preventing disease, saving lives possible impact. and promoting recovery. (See 1 We will reduce risk page 8 to learn about a once- Guiding us on our race to save factors for heart in-a-generation breakthrough lives is our roadmap to impact: disease and stroke in stroke treatment.) Making It Happen Together, by 10% by 2020. our national strategic plan, The stories you’ll read in this launched in 2013. It is designed report are the beginning of to deliver on our promise to a much bigger story, one in Canadians — to be here for We will reduce the which you play a crucial role. them, tangibly improving their 2 death rate from heart Hearing from real survivors and health. The plan guides every researchers, you’ll learn how disease and stroke by step we take and holds us your gift is helping to prevent accountable to you and all 25% by 2020. disease, save lives and promote our supporters. recovery every day. TABLE OF CONTENTS Preventing disease 3 Saving lives 5 Promoting recovery 7 Our donors 9 2 > PREVENTING DISEASE: reducing risk >> INNOVATIONS HELP MORE CANADIANS CUT THEIR RISK OF DISEASE. 3 2014 REPORT TO DONORS DETECTIVE WORK REVEALS NEW WAY TO PREVENT STROKE. Bedros with his wife, Aurora. Bedros Kashkarian never wants to have another mini- trial, launched with support from Heart and Stroke stroke. The first was terrifying — he lost his ability to Foundation donors, showed that a remarkable one in speak for several minutes. six of those patients had silent Afib, which could lead to more strokes if left untreated. Tests revealed no specific cause. But a mini-stroke or TIA (transient ischemic attack) often warns of a bigger Bedros turned out to be that one in six; his heart stroke to come, so Bedros was worried. Fortunately his monitor revealed Afib. Knowing he has this risk factor neurologist, Dr. David Gladstone, had an idea. means he can take anti-clotting medication which — coupled with a healthy lifestyle — will help him manage Under his direction, Bedros wore a new, high-tech his risk for a future stroke. heart monitoring belt 24 hours a day for several weeks. Dr. Gladstone was looking for atrial fibrillation (Afib), an “It’s because of Dr. Gladstone’s research and the often silent but dangerous irregular heart rhythm. Afib important work of his team that I am here today,” can cause blood clots in the heart, which can trigger a says Bedros. “He didn’t give up on finding the cause stroke if they move to the brain. of my stroke.” Dr. Gladstone had just published a groundbreaking This research is now changing clinical practice study that used this advanced heart monitoring worldwide — just one way your support is helping us strategy on patients recovering from a stroke or empower more Canadians to prevent strokes before mini-stroke with no apparent cause. The EMBRACE they happen. ALSO IN 2014 You helped blow the whistle on the You empowered close to four million You brought healthy living messages health risks of added sugar when Canadians with information and tools to life for more than 100,000 children the Foundation became the first to reduce their risk of heart disease across Canada. Your support helps get organization to call on Canadians to and stroke, through the Heart and kids started on a lifetime of eating well, limit the amount of added sugar they Stroke Foundation’s health information being physically active and remaining consume each day. Too much sugar is resources and free online eTools for smoke free, through school-based linked to heart disease, stroke, diabetes managing blood pressure, heart-healthy programs and resources that use interactive and high blood cholesterol. eating and more. fun to motivate healthy choices on topics from beverages to screen time. 4 > SAVING LIVES: genetic research >> GROWING INSIGHTS CAN STOP A KILLER BEFORE IT TAKES ANOTHER LIFE. 5 2014 REPORT TO DONORS READY FOR AN EMERGENCY SHE HOPES WILL NEVER COME. April with her son, Andrew. April Kawaguchi never lets her guard down completely Overseeing a national registry of patients who when it comes to her son Andrew. That’s because his experience unexplained cardiac arrest, Dr. Krahn looks heart could stop any time, without warning. for patterns to better understand these conditions and detect them in family members — in the hope of saving Nine-year-old Andrew has Long QT syndrome, a them from sudden death. disorder of the heart’s electrical system, which puts healthy people at risk of sudden cardiac arrest and For April, knowing about her son’s risk is hard, but death. In fact April has LQTS too; her heart stopped not knowing would be so much harder. As it is, she twice during her younger years, and doctors didn’t can take steps to keep Andrew safe — learning CPR know why. After Andrew was born, DNA testing — a and making sure (with help from the Foundation) procedure developed, in part, with Heart and Stroke that there is a defibrillator at his school in case of Foundation funding — revealed that mother and son emergency. Plus there is medication for his condition share this condition. should he ever need it. Helping families like April’s protect themselves from Thanks to your support, this year Dr. Krahn and his cardiac arrest is Dr. Andrew Krahn’s goal. Support team uncovered more clues that point to other Aprils from Foundation donors is fuelling his quest to find and Andrews, who may have no inkling of the risk they the genetic links that put family members at risk, share. As Dr. Krahn puts it: “Identifying something and develop a test to identify other potentially fatal before it becomes a problem and preventing tragedy inherited heart abnormalities. from happening — that’s a breakthrough.” ALSO IN 2014 You helped millions of Canadians learn You helped ensure that almost 600,000 You funded research that is increasing to recognize and respond quickly to Canadians acquired the skills to save a cardiac arrest survival rates stroke, through the Foundation’s new life from cardiac arrest, thanks to training through testing and refinements of “FAST” campaign. FAST is a simple delivered through the Foundation’s CPR new resuscitation drugs, tools and way to remember key signs of stroke instructor network. And you supported the interventions. With Foundation support, and act fast — because every minute installation of another 2,500 automated the Canada-US Resuscitation Outcomes saved improves the chances of survival external defibrillators — devices standing Consortium is delivering the data that and recovery. Find the details at ready to save lives in arenas and recreation shows the best ways to save lives. heartandstroke.ca/FAST. centres across Canada. 6 > PROMOTING RECOVERY: stroke innovation >> NEW DISCOVERIES HELP SURVIVORS TAKE BACK THEIR LIVES. 7 2014 REPORT TO DONORS INNOVATIVE TREATMENT LETS ROSE WALK AWAY FROM STROKE. Rose with her stepson, Tom. By the time she arrived at the hospital emergency Without the procedure, Rose would likely have been room, Rose Blackmore was completely unresponsive. seriously disabled — or dead. Today, after speech, Doctors quickly diagnosed a major stroke, with a clot occupational and physical therapy, she continues to blocking blood flow to her brain. make progress getting her life back. A long-time season ticket holder to the ballet and symphony, The window to reverse the damage to Rose’s brain was she never misses a performance. closing with each passing minute. Luckily the hospital was equipped with specialized stroke services.