An Online Survey to Explore Users' Experiences of Participation In

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1 Title of Study: An online survey to explore users’ experiences of participation in online communities for Tourette syndrome and Tic disorders. Name of Researcher: Victoria Perkins ([email protected]), MSc Health Psychology student, The University of Nottingham Supervisors: Dr Bethan Davies (Research Fellow, School of Medicine, University of Nottingham: [email protected]) and Professor Neil Coulson (Professor of Health Psychology, School of Medicine, University of Nottingham: [email protected]) Tourette syndrome/tic disorder organisations and groups If you feel you require further support, there are a number of Tourette syndrome/tic disorder organisations and groups across the world that provide support for people living with Tourette syndrome and tics, and their families – click the hyperlink to access their website, or search them online: Argentina - Tourette Syndrome Association of Argentina Australia - Tourette Syndrome Association of Australia Austria - Tourette Selbsthilfe Österreich Belgium - Iktic Tourettevereniging België Canada - Tourette Canada Caribbean Islands - Caribbean Tourette Syndrome Support Group Hong Kong - The Hong Kong Tourette Association Czech Republic - ATOS - Touretteův syndrom Denmark - Dansk Tourette Forening Finland - Tervetuloa Suomen Tourette France - Association Francaise du Syndrome de Gilles de la Tourette (AFSGT) Germany - Tourette-Gesellschaft Deutschland e.V. Iceland – Tourette samtokin a Islandi Ireland - Tourette Alliance Italy - l’Associazione Italiana Sindrome di Tourette e disturbi correlati (A.I.S.T.) and Tourette Roma Japan -Tourette Syndrome Association of Japan Netherlands - Stichting Gilles de la Tourette New Zealand - Tourettes Association of New Zealand Norway - Nasjonalt Kompetansesenter for AD/HD, Tourettes Syndrom og Narkolepsi Norway - Norsk Tourette Forening Philippines - Philippine Tourette Syndrome Association Poland - Polskie Stowarzyszenie Syndrom Tourette'A Portugal - Associação Portuguesa de Síndrome de Tourette Sweden - Riksförbundet Attention Switzerland - Tourette Gesellschaft Schweiz Turkey - Türkiye Tik/Tourette Sendromu Gönüllüleri 2 United Kingdom - Tourettes Action works in England, Wales and Northern Ireland and is the leading support and research charity for people with Tourette Syndrome and their families. o Scotland - Tourette Scotland o Northern Ireland - Tourette Alliance USA - Tourette Association of America .

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