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Access Letter Dec 2012 Jan 2013 FINAL

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Access Letter Dec 2012 Jan 2013 FINAL News & Information for the Access-Minded April — May 2013 Cambridge Commission for AccessLetter Persons with Disabilities Fighting Barriers to Disability Reframed Film Series presents Mary and Max Healthcare Access Now in our fourth More than 22 years since the year, and in full passage of the Americans with collaboration with Disabilities Act (ADA), people the Boston Mayor’s with disabilities still face many Commission for barriers trying to access Persons with necessary healthcare. It is well- Disabilities, documented that because of Disability Reframed: architectural and A FREE Community communication barriers, Film Series is proud inaccessible examination tables and other to be showing the equipment, people with disabilities are far less award-winning likely to access quality health care services than animated drama people without disabilities. Entrenched healthcare Mary and Max in Cambridge on Saturday, April 27, provider bias against individuals with disabilities from 2 PM to 5 PM in the Citywide Senior Center, only compounds these problems. 806 Mass. Ave., Central Square, Cambridge. The most recent study to demonstrate these problems found that nearly a quarter of all Filmed entirely in clay animation, and voiced by doctor’s offices are unwilling or ill-equipped to distinguished actors Toni Collette, Philip Seymour serve patients who use wheelchairs. In a Hoffman and Eric Bana, Mary and Max tells the telephone survey conducted by researchers at unlikely but true story of a lonely little girl in Baystate Medical Center in Springfield, 56 out of Australia who forms a life-long friendship with a 256 doctor’s offices in four major cities across the pen-pal in New York City, a man with a U.S., including Boston, refused medical services to developmental disability who also has lived an a hypothetical patient with a physical disability. isolated life. This study, which was If you are not familiar with published last month in the Underground Railway filmed art in the clay Annals of Internal Medicine, Theater presents: animation style, Mary and Max found that most of the doctors offers a moving introduction who refused services did so DISTRACTED to it. New viewers adapt to because they lacked the the organic visual style just a necessary equipment, like A play by Lisa Loomer about ADD few scenes into the film, and adjustable-height exam tables and our society opens Thursday, by the end recognize and feel or scales to accurately weigh a May 9, 2013 at 7:30 PM at the how integral the animation wheelchair user. Central Square Theater, 450 medium is to our imagining of Massachusetts Avenue, Cambridge the very human story. (More on Healthcare Accessibility, page 2) See calendar listing on page 5 (More on Mary and Max, for more information. page 3) 2 April — May 2013 AccessLetter Healthcare Accessibility (cont. from page 1) proper follow-up procedures because materials are not provided in an accessible format, and doctors “It was troubling to us that many surveyed practices talking to a personal care attendant (PCA) or family were inaccessible, but it was equally problematic member rather than directly to the patient with a that few accessible practices [only 11%] possessed disability. equipment that would facilitate the safe transfer, from chair to [exam] table, of our fictional patient,” Taking Action. The Boston Center for Independent said Dr. Tara Wagu, chief author of the study. “A Living (BCIL) and Greater Boston Legal Services majority of accessible practices reported that they (GBLS) have undertaken a project to identify and planned to have staff manually lift the patient from a address physical and programmatic barriers to wheelchair to an unadjustable, standard-height exam quality care like those listed above. The end goal of table, a method that disability experts consider to be the project is to obtain accessible, high quality health unsafe for both the patient and those lifting her.” care for individuals with disabilities. Consumer involvement is critical to their Local disability advocates efforts and they are recruiting expressed dismay at the results of people with disabilities to be the Baystate Medical Center study. involved in their project. “One in 6 practices refused even to Individuals can be involved in schedule an appointment,” said two major ways: (1) advocating John Kelly, who uses a motorized for better care at specific wheelchair. “I’ve had plenty of hospitals with which they have appointments that were been working; (2) sharing stories scheduled, but even when I have about inferior care you have asked ahead of time whether they received at other hospitals, had an exam table that I could use, clinics, and doctor’s office. I have often been denied basic medical services upon arrival.” Working with Hospitals. GBLS and BCIL are working with The ADA states that all medical Brigham and Women’s Hospital, practitioners are required to Massachusetts General Hospital, provide “full and equal access to their health care and Boston Medical Center (BMC) to address services and facilities” for patients with mobility particular access issues at those facilities and to impairments. This includes building accessibility as improve care for people with disabilities at them. well as transfer from chair to examining table. They need individuals to become involved in their Patients who use wheelchairs have reported efforts, either by attending meetings with hospital difficulties obtaining appointments with physicians staff, or by telling them what kind of care you are and are known to receive less preventive care than getting at those facilities. their ablebodied counterparts. “These results provide one possible explanation for the health care Sharing Stories about Care at Other Facilities. disparities observed in this population and identify BCIL and GBLS are continuing to look into the need for better awareness among physicians accessibility problems at other health care facilities. about the requirements of the ADA and the Because talking to consumers is the best way to standards of care for patients with mobility learn about access barriers, they want to interview impairments,” says Dr. Lagu. you about problems like those identified above that you have experienced at hospitals, clinics, and Other examples of ADA barriers encountered by doctors’ offices. individuals with disabilities include heavy, non- automatic doors, cramped waiting rooms, and a lack For more information about the project or to get of necessary auxiliary aids and services. Examples of involved, contact: Alexa Rosenbloom, 617-603-1542 inferior care include never or rarely being weighed voice, 617-371-1228 TTY, or e-mail at a doctor’s appointment because there is no <[email protected]>. accessible scale, not being fully informed of risks or AccessLetter April — May 2013 3 ‘Disability Reframed’ holds movie screenings Mary and Max (cont. from page 1) every 6-7 weeks, alternating between Cambridge Join us on April 27 for a and Boston venues. In early free screening of Mary June 2013, we will be screening and Max at the fully- What’s Eating Gilbert Grape accessible City-wide starring Johnny Depp and a Senior Center opposite very young Leonardo DiCaprio, City Hall in Cambridge. date and location to be Readers are also announced soon. encouraged to send your Be sure to visit and “Like” email address to CCPD so Disability Reframed: you can be kept informed A Community Film Series on Facebook: about this wonderful ongoing series for the <www.facebook.com/groups/199042220225> disability community and the public alike. Upcoming Events of Interest to the Disability Community (See end of Calendar for all weekly/recurring events) Apr. 2 FREE Adaptive Skating: Games on Ice! – Offered by the Department of Recreation (DCR) Universal Access Program (UAP), this is an opportunity to use your wheelchair, an ice sled, or conventional skates to slide around the ice at The Cronin Skating Rink, 850 Revere Beach Parkway! The whole rink is ours to play on from 11:30am to 1:30pm. Spin, slide, race, slalom, socialize and play gently competitive games with others! Ice sleds and conventional skates available. Admission and equipment is provided free of cost. For more information or to register, call 617-626-1294 or email <[email protected]>. Apr. 4 Hailing the Future: Expanding the Availability of Wheelchair Accessible Taxicabs in Massachusetts – Northeastern Law School Students will be presenting their research on the current state of wheelchair accessible taxicabs in Massachusetts, ADA requirements, and possible litigation strategies to bring more wheelchair accessible taxicabs to Massachusetts. This presentation will be held from 5:30-6:30pm in Room 97 of the Cargill Building at the Northeastern University Law School, 400 Huntington Avenue, Boston. Although free and open to the public, RSVP is required to <[email protected]> Apr. 6 Start of FREE TopSoccer Clinic for Youth and Adult Athlete’s with Disabilities – Sidekick Soccer Academy & Somerville Recreation will be offering a FREE TopSoccer program for youth and adult athlete’s with disabilities starting on Saturday April 6, 2013. TOPSoccer is a modified version of the game of soccer, designed to provide opportunities for special needs children and adults of all ages. It provides an opportunity for fitness, physical therapy, fun and building self-esteem. Modifications are made to the game to allow full participation and enjoyment to each athlete. One-on- one assistance is available to those who need it. The program
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