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Care Home Stories University of Southern Denmark Who Cares? The Terror of Dementia in Ian McEwan's Saturday Simonsen, Peter Published in: Care Home Stories Publication date: 2017 Document version: Final published version Document license: CC BY-NC-ND Citation for pulished version (APA): Simonsen, P. (2017). Who Cares? The Terror of Dementia in Ian McEwan's Saturday. In S. Chivers, & U. Kriebernegg (Eds.), Care Home Stories: Aging, Disability, and Long-Term Residential Care (pp. 175-190). Transcript Verlag. Go to publication entry in University of Southern Denmark's Research Portal Terms of use This work is brought to you by the University of Southern Denmark. Unless otherwise specified it has been shared according to the terms for self-archiving. If no other license is stated, these terms apply: • You may download this work for personal use only. • You may not further distribute the material or use it for any profit-making activity or commercial gain • You may freely distribute the URL identifying this open access version If you believe that this document breaches copyright please contact us providing details and we will investigate your claim. Please direct all enquiries to [email protected] Download date: 08. Oct. 2021 Sally Chivers, Ulla Kriebernegg (eds.) Care Home Stories Aging Studies | Volume 14 The series Aging Studies is edited by Heike Hartung, Ulla Kriebernegg and Roberta Maierhofer. Sally Chivers, Ulla Kriebernegg (eds.) Care Home Stories Aging, Disability, and Long-Term Residential Care The printing of this book was supported by the Trent Centre for Aging & Society, Rei- magining Long-Term Residential Care: An International Study of Promising Practices (PI: Pat Armstrong file 435-2015-1787). An electronic version of this book is freely available, thanks to the support of libra- ries working with Knowledge Unlatched. KU is a collaborative initiative designed to make high quality books Open Access for the public good. The Open Access ISBN for this book is 978-3-8394-3805-3. More information about the initiative and links to the Open Access version can be found at www.knowledgeunlatched.org. This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivs 4.0 (BY-NC-ND) which means that the text may be used for non-commercial purposes, provided credit is given to the author. For details go to http://creativecommons.org/licenses/by-nc-nd/4.0/. © 2017 transcript Verlag, Bielefeld Bibliographic information published by the Deutsche Nationalbibliothek The Deutsche Nationalbibliothek lists this publication in the Deutsche Nationalbibliografie; detailed bibliographic data are available in the Internet at http://dnb.d-nb.de Cover concept: Kordula Röckenhaus, Bielefeld Cover illustration: Marguerite McNeil in the title role of the short film Rhonda's Party (2010). Copyright: Nelson McDonald. Photographer: Holly Crooks. Manuscript editing: Martin Boyne Typeset: Michael Rauscher, Bielefeld Printed by Majuskel Medienproduktion GmbH, Wetzlar Print-ISBN 978-3-8376-3805-9 PDF-ISBN 978-3-8394-3805-3 Content Acknowledgements | 9 PROLOGUE The Push Betsy Struthers | 13 INTRODUCTION Care Home Stories Aging, Disability, and Long-Term Residential Care Sally Chivers and Ulla Kriebernegg | 17 PART 1: PERSONAL PERSPECTIVES Pretty Little Angels Betsy Struthers | 29 At Home or Nowhere In Memoriam – Pat Sharp in Edmonton; Marretje van Herk in Edmonton; Robert Kroetsch in Leduc Aritha van Herk | 31 Home Interrupted Monique Lanoix | 39 A Place for Dad One Family’s Experience of For-Profit Care Amanda Barusch | 53 On Not Being Invisible Life in a Continuing Care Retirement Community Anne M. Wyatt-Brown | 75 PART 2: WORKING AND PLAYING IN THE CARE HOME Second Sitting Betsy Struthers | 91 Shelter in Place Laura Dunbar | 93 Long-Term Care for the Future Just What Is Real Anyway? Peter J. Whitehouse | 103 Dementia (Re)performed Interrogating Tensions between Relational Engagement and Regulatory Policies in Care Homes through Theatre Julia Gray, Pia Kontos, Sherry Dupuis, Gail Mitchell, and Christine Jonas-Simpson | 111 “Hooray for You and Me” The Story of a Theatre Group Aynsley Moorhouse | 127 PART 3: LITERARY AND CULTURAL PERSPECTIVES My Mother Defines Purgatory Betsy Struthers | 153 The Third Age in the Third World Outsourcing and Outrunning Old Age to The Best Exotic Marigold Hotel Amanda Ciafone | 155 Who Cares? The Terror of Dementia in Ian McEwan’s Saturday Peter Simonsen | 175 Outside the Nursing-Home Narrative Race and Gender Exclusions in Green Grass, Running Water Patricia Life | 191 Love, Age, and Loyalty in Alice Munro’s “The Bear Came over the Mountain” and Sarah Polley’s Away from Her Katrin Berndt and Jennifer Henke | 203 PART 4: SOCIAL AND HISTORICAL PERSPECTIVES Rising Fog Betsy Struthers | 227 An Enveloping Shadow? The Role of the Nursing Home in the Social Imaginary of the Fourth Age Chris Gilleard and Paul Higgs | 229 A New Home, A New Beginning, A New Identity Old Age, Life Narrative and Self-Presentation in the Novel The Real Captain’s Sea by Zvonko Todorovski Marija Geiger Zeman, Zdenko Zeman, and Mirela Holy | 247 Home Care Home Reflections on the Differentiation of Space in Living and Care Settings Isabel Atzl and Anamaria Depner | 265 Home, Hotel, Hospital, Hospice Conflicting Images of Long-Term Residential Care in Ontario, Canada James Struthers | 283 Authors | 303 Acknowledgements This book comes out of a collaborative friendship that emerged through mutual interests in how the humanities could re-think old age, especially its stigma- tizing association with nursing homes. On separate continents, we had been reading and writing about the same novels and films with similar goals in mind. Coming together to ask questions about what stories offer to re-thinking the institutionalization of late life has led to scholarly fulfilment and personal joy. So, we start by thanking each other. Our scholarly partnership was made possible entirely by the support of our mentors and colleagues, especially in the development of the European and North American Networks on Aging Studies (ENAS & NANAS). The contri- butions of its members are too many to enumerate, but we are grateful to the scholarly and administrative work that has pushed the field to grow by leaps and bounds. We have received impressive feedback to our panels about the book topic at ENAS and NANAS conferences. We hope this book adds to the richness of the field while provoking new critical questions that can only be answered through fulsome debate and listening across differences. We especially thank the scholarly and collegial support offered to our work on this book by Annmarie Adams, Pat Armstrong, Hugh Armstrong, Katie Aubrecht, Suzanne Bailey, Susan Braedley, Andrea Charise, Jacqueline Choin- ière, Thomas R. Cole, Tamara Daly, Charmaine Eddy, Amelia DeFalco, Michelle Gadpaille, Lesley Gillis, Marlene Goldman, Maureen Daly Goggin, Peter Goggin, Alisa Grigorivich, Hannah Grist, Jaber Gubrium, Heike Hartung, Sara Humphreys, E. Ann Kaplan, Stephen Katz, Janice Keefe, Pia Kontos, Rüdiger Kunow, Valerie Lipscomb, Martha MacDonald, Roberta Maierhofer, Teresa Mangum, Barbara Marshall, Kate de Medeiros, Raquel Medina, Derek Newman-Stille, Desmond O’Neill, Cynthia Port, Dana Sawchuk, Mark Skinner, Margaret Steffler, and Aagje Swinnen. Martin Boyne was a gracious yet meticu- lous copyeditor, for which we are very grateful. For other technical and admin- istrative support, we thank Sylvia Dick, Justin Sutton, Wendy Winters, and Julia Prochinig. For explicit financial support, we are most grateful to the Trent Centre for Aging and Society, Reimagining Long-Term Residential Care: An 10 Care Home Stories International Study of Promising Practices (PI: Pat Armstrong file# 412-2010- 1004), the Center for Inter-American Studies and the University of Graz, and the Social Science and Humanities Research Council of Canada (Insight Grant file# 435-2015-1787). Rhonda graces the cover of the book thanks to the generosity of Nelson McDonald, who granted permission without cost to use Holly Crooks’s image of Marguerite McNeil in the title role of the short film Rhonda’s Party. We express the deepest gratitude to our contributors who have offered us a delightful and provocative array of personal and scholarly writing about care homes. To a one, they have been models of collegiality and rigour, making this process as enjoyable as it could have been. For moral support, we are so fortunate to have our families, especially Doug, Sepp, and Lena. We thank them from the bottom of very full hearts. Prologue Betsy Struthers THE PUSH Such a beautiful day, Mom welcomes me in. She’s fully dressed, hair freshly permed. Can we go out for a walk? In the elevator and along the hall to the vestibule, she chatters about the blue eggs in the nest on the dining room window sill. When they will hatch. When the chicks will fly. The whole floor’s making bets. Smell the lilacs, listen to those birds! We head for the glasshouse in the park, three blocks, one busy street, and there we’re stopped – I can’t tip the wheelchair over the stubborn curb, afraid I’ll lose my grip. Let me, two tattooed arms crook down to lift the chair and Mom, as if they were weightless, and sets them right. Thanks, I stutter. He waves my words away and bows, Grandmother, I honour your days, turns and shambles off to join a group of men sprawled, playing cards on a low stone wall. She’s quiet when we enter the tropic dome, the rooms of tulips, hyacinths, the crown of thorns. I’m tired, take me back. Click of tires over pavement cracks, the rhythm like that of my son in his stroller, the same strain to push against the pull of the slope ahead. The signal flashes red. I stoop to tuck her shawl. You’re good to me, she says and clasps my hand in both of hers. Like that, we’re stuck, waiting for the changing of the light.
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