Living Well with Chronic Illness: a Call for Public Health Action
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THE NATIONAL ACADEMIES PRESS This PDF is available at http://nap.edu/13272 SHARE Living Well with Chronic Illness: A Call for Public Health Action DETAILS 350 pages | 6 x 9 | HARDBACK ISBN 978-0-309-38773-6 | DOI 10.17226/13272 AUTHORS BUY THIS BOOK Committee on Living Well with Chronic Disease: Public Action to Reduce Disability and Improve Functioning and Quality of Life; Institute of Medicine FIND RELATED TITLES Visit the National Academies Press at NAP.edu and login or register to get: – Access to free PDF downloads of thousands of scientific reports – 10% off the price of print titles – Email or social media notifications of new titles related to your interests – Special offers and discounts Distribution, posting, or copying of this PDF is strictly prohibited without written permission of the National Academies Press. (Request Permission) Unless otherwise indicated, all materials in this PDF are copyrighted by the National Academy of Sciences. Copyright © National Academy of Sciences. All rights reserved. Living Well with Chronic Illness: A Call for Public Health Action LIVING WELL WITH CHRONIC ILLNESS A Call for Public Health Action Committee on Living Well with Chronic Disease: Public Health Action to Reduce Disability and Improve Functioning and Quality of Life Board on Population Health and Public Health Practice Copyright National Academy of Sciences. All rights reserved. Living Well with Chronic Illness: A Call for Public Health Action THE NATIONAL ACADEMIES PRESS • 500 Fifth Street, NW • Washington, DC 20001 NOTICE: The project that is the subject of this report was approved by the Governing Board of the National Research Council, whose members are drawn from the councils of the National Academy of Sciences, the National Academy of Engineering, and the Institute of Medicine. The members of the committee responsible for the report were chosen for their special competences and with regard for appropriate balance. This study was supported by Contract No. DP000607 between the National Academy of Sciences and the Arthritis Foundation, and Contract No. 200-2005-13434, TO# 30 between the National Academy of Sciences and the Centers for Disease Control and Prevention. Any opinions, findings, conclusions, or recommendations expressed in this publication are those of the author(s) and do not necessarily reflect the view of the organizations or agencies that provided support for this project. Library of Congress Cataloging-in-Publication Data Living well with chronic illness : a call for public health action / Committee on Living Well with Chronic Disease: Public Health Action to Reduce Disability and Improve Functioning and Quality of Life, Board on Population Health and Public Health Practice, Institute of Medicine of the National Academies. p. ; cm. Includes bibliographical references. ISBN 978-0-309-22127-6 (pbk.) — ISBN 978-0-309-22128-3 (pdf) I. Institute of Medicine (U.S.). Committee on Living Well with Chronic Disease: Public Health Action to Reduce Disability and Improve Functioning and Quality of Life. [DNLM: 1. Chronic Disease—prevention & control. 2. Health Policy. 3. Population Surveillance. 4. Quality of Life. WT 30] 362.1—dc23 2012012233 Additional copies of this report are available from the National Academies Press, 500 Fifth Street, NW, Keck 360, Washington, DC 20055; (800) 624-6242 or (202) 334-3313; http:// www.nap.edu. For more information about the Institute of Medicine, visit the IOM home page at: www. iom.edu. Copyright 2012 by the National Academy of Sciences. All rights reserved. Printed in the United States of America The serpent has been a symbol of long life, healing, and knowledge among almost all cultures and religions since the beginning of recorded history. The serpent adopted as a logotype by the Institute of Medicine is a relief carving from ancient Greece, now held by the Staatliche Museen in Berlin. Suggested citation: IOM (Institute of Medicine). 2012. Living well with chronic illness: A call for public health action. Washington, DC: The National Academies Press. Copyright National Academy of Sciences. All rights reserved. Living Well with Chronic Illness: A Call for Public Health Action “Knowing is not enough; we must apply. Willing is not enough; we must do.” —Goethe Advising the Nation. Improving Health. Copyright National Academy of Sciences. All rights reserved. Living Well with Chronic Illness: A Call for Public Health Action The National Academy of Sciences is a private, nonprofit, self-perpetuating society of distinguished scholars engaged in scientific and engineering research, dedicated to the furtherance of science and technology and to their use for the general welfare. Upon the authority of the charter granted to it by the Congress in 1863, the Acad- emy has a mandate that requires it to advise the federal government on scientific and technical matters. Dr. Ralph J. Cicerone is president of the National Academy of Sciences. The National Academy of Engineering was established in 1964, under the charter of the National Academy of Sciences, as a parallel organization of outstanding en- gineers. It is autonomous in its administration and in the selection of its members, sharing with the National Academy of Sciences the responsibility for advising the federal government. The National Academy of Engineering also sponsors engineer- ing programs aimed at meeting national needs, encourages education and research, and recognizes the superior achievements of engineers. Dr. Charles M. Vest is presi- dent of the National Academy of Engineering. The Institute of Medicine was established in 1970 by the National Academy of Sciences to secure the services of eminent members of appropriate professions in the examination of policy matters pertaining to the health of the public. The Insti- tute acts under the responsibility given to the National Academy of Sciences by its congressional charter to be an adviser to the federal government and, upon its own initiative, to identify issues of medical care, research, and education. Dr. Harvey V. Fineberg is president of the Institute of Medicine. The National Research Council was organized by the National Academy of Sci- ences in 1916 to associate the broad community of science and technology with the Academy’s purposes of furthering knowledge and advising the federal government. Functioning in accordance with general policies determined by the Academy, the Council has become the principal operating agency of both the National Academy of Sciences and the National Academy of Engineering in providing services to the government, the public, and the scientific and engineering communities. The Council is administered jointly by both Academies and the Institute of Medicine. Dr. Ralph J. Cicerone and Dr. Charles M. Vest are chair and vice chair, respectively, of the National Research Council. www.national-academies.org Copyright National Academy of Sciences. All rights reserved. Living Well with Chronic Illness: A Call for Public Health Action COMMITTEE ON LIVING WELL WITH CHRONIC DISEASE: PUBLIC HEALTH ACTION TO REDUCE DISABILITY AND IMPROVE FUNCTIONING AND QUALITY OF LIFE ROBERT B. WALLACE (Chair), University of Iowa, Iowa City RONALD T. ACKERMANN, Northwestern University Feinberg School of Medicine, Chicago, IL KAREN BASEN-ENGQUIST, The University of Texas, MD Anderson Cancer Center, Houston BOBBIE A. BERKOWITZ, Columbia University School of Nursing, New York City LEIGH F. CALLAHAN, The University of North Carolina at Chapel Hill RONNI CHERNOFF, Geriatric Research, Education & Clinical Center, Central Arkansas Veterans Healthcare System, and Arkansas Geriatric Education Center, University of Arkansas for Medical Sciences, Little Rock DAVID B. COULTAS, The University of Texas Health Science Center at Tyler SHERITA HILL GOLDEN, Johns Hopkins University School of Medicine, Baltimore, MD JEFFREY R. HARRIS, University of Washington School of Public Health, Seattle RUSSELL HARRIS, University of North Carolina at Chapel Hill KATIE B. HORTON, The George Washington University School of Public Health and Health Services, Washington, DC M. JEANNE MIRANDA, Center for Health Services Research, University of California, Los Angeles MARCIA NIELSEN, Patient Centered Primary Care Collaborative, Washington, DC OLUGBENGA G. OGEDEGBE, New York University Lagone Medical Center, New York City PATRICK REMINGTON, University of Wisconsin School of Medicine and Public Health, Madison DAVID B. REUBEN, David Geffen School of Medicine, University of California, Los Angeles MICHAEL SCHOENBAUM, National Institute of Mental Health, Bethesda, MD v Copyright National Academy of Sciences. All rights reserved. Living Well with Chronic Illness: A Call for Public Health Action Study Staff E. LORRAINE BELL, Senior Study Director PAMELA LIGHTER, Research Assistant CHELSEA FRAKES, Senior Program Assistant ANDREW LEMERISE, Research Associate HOPE HARE, Administrative Assistant AMY PRZYBOCKI, Financial Associate ROSE MARIE MARTINEZ, Senior Director, Board on Population Health and Public Health Practice vi Copyright National Academy of Sciences. All rights reserved. Living Well with Chronic Illness: A Call for Public Health Action Reviewers This report has been reviewed in draft form by persons chosen for their diverse perspectives and technical expertise, in accordance with procedures approved by the National Research Council’s Report Review Committee. The purpose of this independent review is to provide candid and critical comments that will assist the institution in making its published