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IL Movement Where We Have Been Where We Are Going IL NET an ILRU/NCIL National Training and Technical Assistance Project Expanding the Power of the Independent Living Movement The Independent Living Movement: Where We’ve Been, Where We’re Going A National Teleconference & Webcast Participant’s Manual April 12, 2004 Contributors to the training materials: Steve Brown June Kailes Maggie Shreve Julia Sain Paul Longmore Anne-Marie Hughey Kristy Langbehn June Sutherland Tim Fuchs i © 2004 IL NET, an ILRU/NCIL Training and Technical Assistance Project ILRU Program NCIL 2323 S. Shepherd Street 1916 Wilson Boulevard Suite 1000 Suite 209 Houston, Texas 77019 Arlington, Virginia 22201 713-520-0232 (V) 703-525-3406 (V) 713-520-5136 (TTY) 703-525-4153 (TTY) 713-520-5785 (FAX) 703-525-3409 (FAX) [email protected] 1-877-525-3400 (V/TTY - toll free) http://www.ilru.org [email protected] http://www.ncil.org Permission is granted for duplication of any portion of this manual, providing that the following credit is given to the project: Developed as part of the IL NET: an ILRU/NCIL National Training and Technical Assistance Project. Substantial support for development of this publication was provided by the Rehabilitation Services Administration, U.S. Department of Education. No official endorsement of the Department of Education should be inferred. The IL NET is a collaborative project of Independent Living Research Utilization (ILRU) and the National Council on Independent Living (NCIL), with funding from the Rehabilitation Services Administration through Agreement No. H132B99002. IL NET Presents: The Independent Living Movement: Where We’ve Been, Where We’re Going Page ii The Independent Living Movement: Where We’ve Been, Where We’re Going A National Teleconference & Webcast April 12, 2004 Participant’s Manual Table of Contents Agenda........................................................................................................................... iv About the Trainers........................................................................................................... v List of IL NET Staff ......................................................................................................... vi About ILRU & NCIL ....................................................................................................... vii About IL NET................................................................................................................ viii Learning objectives ......................................................................................................... 1 “Freedom of Movement”.................................................................................................. 2 The Start of the Independent Living Movement............................................................. 38 The Rehabilitation Act of 1973, as amended................................................................. 42 The Paradigm Shift........................................................................................................ 46 Civil Rights Laws & Disability Legislation ...................................................................... 48 “Selected Significant Dates in Independent Living History”........................................... 52 Appendix A: Agencies & Organizations........................................................................ 63 Appendix B: “Reality Versus Rhetoric Inventory” ......................................................... 73 Appendix C: “History of Independent Living” .............................................................. 126 IL NET Presents: The Independent Living Movement: Where We’ve Been, Where We’re Going Page iii The Independent Living Movement: Where We’ve Been, Where We’re Going Agenda All Times Eastern 2:15 Distribute and review handout materials 2:30 Discuss the following questions: • Is it contradictory for people with disabilities to demand both civil rights and specialized services? • How did/does the Independent Living movement both parallel and differ from other civil rights and disability rights movements in the United States and worldwide? • How have public policies and services supported and/or hindered Independent Living for people with disabilities? 3:00 Teleconference Begins • Welcome and Introduction • History of the First CIL • Question & Answer Session • Passing of the 1973 Rehabilitation Act • The 1992 Reauthorization of the Rehabilitation Act • Independent Living Philosophy o the reframing of "disability" as a social and political, rather than simply a medical and rehabilitative, problem; o the shift in priorities from correcting individuals to reforming society; o the assertion that the necessary means for social participation and integration, whether devices and services or access and accommodations, should be enforceable civil rights rather than dispensations of charity; • Question & Answer Session o the contests for power with professionals and bureaucrats; o the quest for both individual and collective empowerment and self- determination. • Question & Answer Session 4:30 Fill out your evaluation forms and return them to the NCIL office IL NET Presents: The Independent Living Movement: Where We’ve Been, Where We’re Going Page iv About the Trainers Julia Sain has been working at Programs for Accessible living in Charlotte, NC since 1984. She has been a Peer Counselor's Assistant, ADA/Advocacy Coordinator, Assistant Director, Interim Director, and, currently, Executive Director. Over the years Julia has performed many training activities for consumers, business leaders, government personnel, human resource professionals, and CIL staff and Board members. She is a sign language interpreter and founder of the local chapter of Registry of Interpreters for the Deaf (RID). Julia has been the Executive Director of PAL since September 1997. Since that time she has been active with the Southeastern Center Directors Association, Region IV's coalition of center directors. She has held the offices of Secretary and Vice-President and President. Julia is serving her second appointment to the NC SILC. Julia Sain Phone: 704-537-0550 (V/TTY) Executive Director Toll free: 1-800-755-5749 Programs for Accessible Living Fax: 704-566-0507 5801 Executive Center Drive, Suite 101 Charlotte, NC 28212 Paul Longmore, Professor of History and Director of the Institute on Disability at San Francisco State University, specializes in Early American history and the history of people with disabilities. He earned his Ph.D. at the Claremont Graduate School and his B.A. and M.A. at Occidental College. Longmore has also written articles in scholarly journals and newspapers on themes related to the history of people with disabilities and their contemporary civil rights struggle. With Lauri Umansky, he co-edited The New Disability History: American Perspectives (New York University Press, 2001), an anthology of essays, and is co-editing a book series, The History of Disability, for NYU Press. A collection of his writings, Why I Burned My Book and Other Essays on Disability, was published by Temple University Press in 2003. He has been interviewed regarding disability-related issues on ABC's Nightline, ABC's World News Tonight, NBC's Today, and NPR's Weekend Edition, as well as in The Los Angeles Times, The New York Times, The Washington Post, McCall's, and TV Guide. He has obtained grants from the National Endowment for the Humanities to conduct a Summer Institute on Disability Studies, the National Institute of Disability and Rehabilitation Research to examine the impact of disability studies curricula, and the U.S. Department of Education to direct a mentoring project to facilitate the transition of students with disabilities from college to careers. Paul K. Longmore Professor Department of History San Francisco State University Phone: 415-338-6498 or 415-338-3382 1600 Holloway Avenue Fax: 415-338-7539 or 415-338-0952 San Francisco, CA 94132 IL NET Presents: The Independent Living Movement: Where We’ve Been, Where We’re Going Page v IL NET STAFF ILRU Lex Frieden Laurie Gerken Redd Executive Director Administrative Coordinator [email protected] [email protected] Richard Petty Dawn Heinsohn Program Director Materials Production Specialist [email protected] [email protected] Laurel Richards Training Director [email protected] ILRU Program 2323 S. Shepherd Suite 1000 Houston, TX 77019 713-520-0232 (V) 713-520-5136 (TTY) 713-520-5785 (FAX) [email protected] http://www.ilru.org NCIL Anne-Marie Hughey Kristy Langbehn Executive Director Project Director, Consultant [email protected] [email protected] NCIL June Sutherland 1916 Wilson Boulevard Project Associate Suite 209 [email protected] Arlington, VA 22201 703-525-3406 (V) Tim Fuchs 703-525-4153 (TTY) Material Specialist 703-525-3409 (FAX) [email protected] 877-525-3400 (toll-free) [email protected] http://www.ncil.org IL NET Presents: The Independent Living Movement: Where We’ve Been, Where We’re Going Page vi ABOUT ILRU The Independent Living Research Utilization (ILRU) Program was established in 1977 to serve as a national center for information, training, research, and technical assistance for independent living. In the mid-1980’s, it began conducting management training programs for executive directors and middle managers of independent living centers in the U.S. ILRU has developed an extensive set of resource materials on various aspects of independent living, including a comprehensive directory of programs providing independent living services in the U.S. and Canada. ILRU is a program of TIRR, a nationally
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