Disability Timeline - Advocacy
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Disability History: an Introduction
Disability History: An introduction Take a journey through the rich history and culture of the disability community with Lawrence Carter-Long (LCL) as your guide. LCL, the communications director at the Disability Rights Education and Defense Fund (DREFD), a national civil rights law and policy center at the Ed Roberts Campus in Berkeley, California, is a lifelong activist. Transcript begins. [rhythmic violin and percussion music] [A lean, middle-aged white man with bleached-blonde hair swaggers with cerebral palsy into a building through an automatic sliding door. He stops at the base of a red, spiral ramp—the centerpiece of the lobby at the Ed Roberts Campus—and speaks to the camera.] LAWRENCE CARTER-LONG: In 2011, the Ed Roberts Campus opened in Berkeley, California, named after one of the founders of the independent living movement—a now worldwide movement of disabled people working for equal opportunity, self- determination, and respect. [A montage of photos and footage shows disability rights protests from around the world.] LCL: Here at the Ed Roberts Campus, accessibility is not an afterthought. It’s built in— everything from the architecture to the tenants here in the building, advocacy groups, nonprofits, the supports and services. [on-screen text: Lawrence Carter-Long, Communications Director, Disability Rights Education and Defense Fund] [LCL turns and walks up the spiraling ramp. A person in a wheelchair speeds down the ramp, past a photo mural of the 5O4 sit-in. LCL proceeds to narrate the history of the disability rights movement in the US from various locations in the building.] LCL: Disability rights are a part of civil rights history, but in order for that to be understood by the masses, we’ve got to get behind it in the ways that people have fought to include other things. -
Intersectionality and the Disability Rights Movement: the Black Panthers, the Butterfly Brigade, and the United Farm Workers of America
JW Marriott Austin, Texas July 19-23, 2021 Intersectionality and the Disability Rights Movement: The Black Panthers, the Butterfly Brigade, and the United Farm Workers of America Paul Grossman, J.D., P.A. Mary Lee Vance, Ph.D. Jamie Axelrod, M.S. JW Marriott Austin, Texas July 19-23, 2021 Faculty Grossman, Axelrod and Vance Consulting, Beyond the ADA Paul Grossman, J.D., P.A. US, ED, OCR, Chief Regional Civil Rights Attorney, SF, retired Guest Lecturer for Disability Law, Harvard Graduate School of Education, Hastings and Berkeley Colleges of Law, U.C. NAADAC, OCR DisNet, & CAPED Faculty Member Former AHEAD Board Member; Blosser Awardee AHEAD and CHADD Public Policy Committees Member The Law of Disability Discrimination for Higher Education Professionals, Carolina Academic Press (updated annually) JW Marriott Austin, Texas July 19-23, 2021 Faculty Grossman, Axelrod and Vance Consulting, Beyond the ADA Jamie Axelrod, M.S. Mary Lee Vance, Ph.D. Dir., Disability Resources, Northern Arizona University Dir., Services for Students with Disabilities, Sacramento State University ADA Coordinator/Section 504 Compliance Officer, Northern Arizona Former AHEAD Bd. Member; University Member, JPED Editorial Bd.; Immediate Past President AHEAD Board Member, Coalition for Disability Reviewer, NACADA National Advising Journal Access in Health Science and Education Co-editor, Beyond the ADA (NASPA 2014) Member AHEAD Public Policy Committee JW Marriott Austin, Texas July 19-23, 2021 Caveat This presentation and its associated materials are provided for informational purposes only and are not to be construed as legal advice. You should seek your Systemwide or house counsel to resolve the individualized legal issues that you are responsible for addressing. -
The Frailty of Disability Rights
ESSAY THE FRAILTY OF DISABILITY RIGHTS JASMINE E. HARRIS† INTRODUCTION .............................................................................. 30 I. THE CASE OF COVID-19 & THE ROLLBACK OF DISABILITY RIGHTS ..................................................................................... 33 A. Access to COVID-19 Related Treatment ........................................... 34 B. Access to a Free Appropriate [and Remote] Public Education .............. 38 II. THE INSTABILITY OF DISABILITY RIGHTS .................................. 45 A. Morality, Medicine, and Bad Differences .......................................... 45 B. Stealth Advocacy and the Absence of Public Contestation .................... 46 C. The Difficulty of Defning Disability ................................................. 49 III. BEYOND COVID-19 ..................................................................... 52 A. Identifying the Next Waves of Disability Discrimination ..................... 53 B. Reimagining Legal & Policy Interventions ........................................ 57 1. Olmstead Enforcement ......................................................... 58 2. Cleburne and Rational Basis Review ..................................... 59 3. Disability as National Security ............................................. 61 CONCLUSION .................................................................................. 63 † Professor of Law, University of California—Davis; J.D., Yale Law School; A.B., Dartmouth College. This Essay has benefitted from thoughtful -
Clinical Research – a Journey Toward Diversity
September Accelerated Cure Project for MS 2017 Accelerating research towards a cure for multiple sclerosis Clinical Research – A Journey Toward Diversity Clinical trials are an essential part of the drug development process. Regulatory agencies such the Food and Drug Administration (FDA) use information gathered from clinical trials to decide if medicines are safe and effective. It is important to have ethnic diversity in clinical trials to better understand diseases, and the full impact of certain drugs. Different ethnicities can have unique responses to the same disease. Studies have shown that MS can be especially active in African Americans. The effectiveness of many drugs can also vary depending on the patient’s ethnicity, lifestyle, culture and genetic makeup. For example, about 50 percent of Asian patients and 75 percent of Pacific Islanders lack the enzymes required to activate Plavix (a blood thinner). Certain classes of hypertension drugs have recently been found to be less effective in African American patients. According to the National Institutes of Health (NIH), minorities account for fewer than 10 percent of patients enrolled in clinical trials. African American men are twice as likely as Caucasian men to die from prostate cancer, yet they represent just 4 percent of prostate cancer clinical trial participants. Suicide is one of the top three causes of death among Asian American women under 45 years of age, yet they represent just 1 percent of major depressive disorder clinical trial participants. And while the prevalence of diabetes among Mexican Americans and Puerto Ricans is more than double that of Caucasians, those groups combined represent just 4 percent of diabetes trial participants. -
2021 SPECIAL EDITION Works Cited P
Hannah Casey p.2 John Ward p.3 Maya Cummings p.4 Kiara Bush p.5 Isabel Thubron p.6 Tristen White p.7 Natalie Fout p.8 Deztiny Quesenberry p.9 2021 SPECIAL EDITION Works Cited p. i WV Disability History PO Box 625 - Institute, WV 25112 Week p.ii 2021 DISABILITY ESSAY CONTEST The SILC is very pleased to share this Special Edition of the IL Edge showcasing the winners THE of the 2021 Disability History Essay Contest. The contest has not been funded since the fall of 2017, and we are very happy to be able to bring the contest back to all West Virginia High School Seniors. The contest reinforces WV Disability History Week held the third week of October. Awards are typically presented at High School Senior Awards Ceremonies, which presented a challenge this year and we thank all the high schools represented for working with us on how to accomplish this. SPECIAL EDITION 2021 - WVSILC - The theme for the contest this year was, “The significance of Section 504 of the Rehabilitation Act of 1973 – Past and Present”. This special edition of our newsletter includes all the winning essays, photos of the authors, and a bit of information to help you get to know these students. The authors of the winning essays received an engraved key chain and a check for the amount of their award as follows: State Winner - $3,250 District 1st Place Winners - $1,750 District 2nd Place Winners - $1000 Congratulations to all the winners! I hope this contest continues to motivate high school seniors to not only submit an entry, but to learn more about disability history and how the disability rights movement has changed our world and our lives. -
2018 MARCH NY.Indd
VOLUME 23 NUMBER 9 MARCH 2018 RICE CONFRONTED ININ THISTHIS ISSUEISSUE Education, Camps L.I. ADAPT’s First Action Hits Dem. Rep. & Recreation PAGES 9 THRU 12 Empower Care Act Legislation Would Extend ‘Money Follows the Person’ PAGE 2 Rice Helps Pass HR620 Advocate Mystified By Rice staffer, left, listens to ADAPT member demands. Rice staffer, left, listens to ADAPT member demands. Her Vote to Change ADA he newly-formed Long Is- PAGE 3 land Chapter of disabil- ity-rights activist group RAISE Passes T Bipartisan Caregiver ADAPT chose the ADA Educa- tion and Reform Act HR 620 and Bill Becomes Law the only New York Democrat to PAGE 4 vote for the bill, Rep. Kathleen Rice to target for their first ac- NYC Has ASL Service tion, Feb. 22. (See story “Rice Mayor Announces Video and House Limit ADA” page 3 Tech For Deaf and USA Today column page 6.) PAGE 5 Thirteen L.I. ADAPT mem- Sports bers entered Rice’s Garden City ADAPT members gathered in Rice’s conference room include Bruce Dar- office and demanded an expla- ling ADAPT organizer and CEO of Center for Disability Rights, left, L.I. Parks Update, Paralympics, nation of and a public recanting ADAPT co-founder Sophia Ardi, United Spinal’s Jose Hernandez, cen- Goalball & Basketball of her vote on HR 620 that they ter and co-founder Marie Hickey, standing second from right. They were PAGE 14 & 15 Continued on page 18 joined by United Spinal CEO James Weisman, third from left. VISIT ABLE’S WEBSITE ADAPT members video conference with D.C. -
Eunice Rivers (Tuskegee Nurse)9,10 of Tuskegee Study
Teaching Ethics through Role-Play: Comparing Public Health Research Conducted at the Willowbrook State School with the Infamous Tuskegee Study Maya C. Rose, Jessica E. Brodsky, Elizabeth S. Che, Dvora Zomberg, & Patricia J. Brooks College of Staten Island and The Graduate Center, CUNY Background Why Revisit Willowbrook and Tuskegee Group Differences in Awareness Role-play • In their introduction to research ethics, college students often learn about the in Introductory Psychology Classes? Awareness of Tuskegee Awareness of Willowbrook • Promotes discussion of research ethics infamous Tuskegee study, where physicians left syphilis untreated in Black Pre Post Pre Post men from 1932 to 1972 in order to study the progression of the disease.1 • Encourages students to confront racism and ableism in American society • The hepatitis studies that took place at the Willowbrook State School from • Allows students to draw connections to textbook coverage of Tuskegee Yes (n = 130) 31 (23.8%) 129 (99.2%) 46 (35.4%) 128 (98.5%) 1956 to 1970 are less often discussed. At Willowbrook, intellectually disabled 4 No (n = 73) 12 (16.4%) 59 (80.8%) 27 (40.0%) 59 (80.8%) children were deliberately infected with hepatitis via food laced with fecal Student Role-Play (Part 3 of Homework) material for purposes of biomedical research. Total (N = 203) 43 (21.2%) 188 (92.6%) 73 (36.0%) 187 (92.1%) Tuskegee Study Participants (Last 87 and Ernest Hendon8) • Both studies exemplify the gross violations of human rights that were once "In 1932, I was poor 24-year-old sharecropper that had some “bad blood”. I had never been to the doctor and me like The majority of students (64%) reported that they took part in the role-play. -
B.R.I.D.G.E.S. Forecast
B.R.I.D.G.E.S. Building Relationships Intentionally to Develop Growth and Exemplary Services {August 2021} FORECAST WELCOME! AUGUST August 18 is “Never Give Up Day”. This day is about a mindset of determination to help us get through even the hardest of challenges. It is about motivating others and inspiring ourselves. Of course, we should try to keep this mindset all year round, but this day can help us get us back in the game and refresh us to keep going. To quote Thomas Edison, “I have not failed, I’ve just found 10,000 ways that won’t work”. To help us to never give up there are a few points to try and keep us going. 1. Adopt a “I won’t quit” mindset. 2. Remember and repeat your Why. 3. Find a different how and try a new technique or strategy. 4. Use failure as a lesson August Monthly observances: • National Black Business Month • National Back to School Month • American Adventures Month • American Artist Appreciation Month • Happiness Happens Month Please review the latest DODD health and welfare alerts at https://dodd.ohio.gov/wps/portal/gov/dodd/health-and-welfare There is some wonderful helpful information regarding summer safety. Here are some other summer safety tip ideas. Hydrate, Hydrate, Hydrate If you feel thirsty, you are already dehydrated Carry water with you and drink frequently, use a reusable water bottle Wear sunscreen when outside and reapply frequently Wear Sunglasses and hats Upcoming Rule Changes: July 1, 2021 Rule: 5123-10-05 (Early Intervention Program - Developmental Specialist Certification) September 1, 2021 Rules: 5123-2-08 (Provider Certification - Agency Providers) 5123-2-09 (Provider Certification - Independent Providers) https://dodd.ohio.gov/wps/portal/gov/dodd/forms-and-rules/rules-under- development/effective+dates+for+new+rules KUDOS The KUDOS for this month is going to be a little different. -
1 Archives Project Pennsylvania Developmental Disabilities Council
Archives Project Pennsylvania Developmental Disabilities Council Database List Entry #: Title of Item/Organization/Archive Type/Page Number/Available On-Line: #1 Accessible Presentations: Guidelines for Speakers Home and Community-Based Services Resource Network, Brochure, N/A, not available on line. #2 Advertising/Public Relations Curriculum for College Level Courses Professional Media Consultants, Pamphlet, 3 pages, not available on-line. #3 Autism Awareness Video for Law Enforcement/Community Service Personnel Harrisburg Chapter of the Autism Society of America, Video, N/A, available on line. #4 Bridging the Future: A Look Back at Embreeville Video, N/A, not available on line. #5 Community Guide & Resource Catalog The Community Involvement, Pamphlet, 15 pages, not available on line. #6 Embrace: Building Inclusive Faith Communities - It’s More Than Just a Parking Place and a Ramp Spectrum Community Services, Video, N/A, available on line. #7 High School Transition Manuals CD-ROM, N/A, not available on line. #8 Making A Difference In Transportation PADDC Emphasis in Transportation for People with Disabilities, Brochure, N/A, available on-line. #9 Making Accessibility Real: A Guide for Planning Meeting, Conferences and Gatherings The Home and Community-Based Services Resource Network, Book, 32 pages, not available on line. #10 Nursing Home Mentors Objective: Partnership for Choice Project, Project Summary Transition and Mentoring, Pamphlet, 4 pages, not available on-line. #11 Personal Assistant Training Manual Community Resources for Independence, Binder, 103 pages, available on-line. 1 #12 Praying with Lior, A Documentary Film Video, N/A, available on line. #13 Quick Ideas for Starting Grassroots Groups and Keeping Them Healthy Resource for Human Development, Inc., Pamphlet, 27 pages, available on-line. -
Closing the Gap: Housing (Un)Affordability in Philadelphia
University of Pennsylvania ScholarlyCommons Departmental Papers (City and Regional Planning) Department of City and Regional Planning 3-1-2003 Closing the Gap: Housing (un)Affordability in Philadelphia Amy E. Hillier University of Pennsylvania, [email protected] Dennis P. Culhane University of Pennsylvania, [email protected] Follow this and additional works at: https://repository.upenn.edu/cplan_papers Part of the Urban, Community and Regional Planning Commons Hillier, Amy E. and Culhane, Dennis P., "Closing the Gap: Housing (un)Affordability in Philadelphia" (2003). Departmental Papers (City and Regional Planning). 1. https://repository.upenn.edu/cplan_papers/1 Report commissioned by Philadelphia Affordable Housing Coalition, 2003. Publisher URL: http://www.cml.upenn.edu/presentations/CLOSINGtheGAP3.pdf This paper is posted at ScholarlyCommons. https://repository.upenn.edu/cplan_papers/1 For more information, please contact [email protected]. Closing the Gap: Housing (un)Affordability in Philadelphia Disciplines Urban, Community and Regional Planning Comments Report commissioned by Philadelphia Affordable Housing Coalition, 2003. Publisher URL: http://www.cml.upenn.edu/presentations/CLOSINGtheGAP3.pdf This journal article is available at ScholarlyCommons: https://repository.upenn.edu/cplan_papers/1 closing the Housing (un)Affordability GAP in Philadelphia Amy Hillier & Dennis Culhane Cartographic Modeling Laboratory University of Pennsylvania March 2003 Commissioned by the Philadelphia Affordable Housing Coalition This report was commissioned by the Philadelphia Affordable Housing Coalition (PAHC) with funds from the William Penn Foundation, the Samuel S. Fels Fund, the Prudential Foundation and members of PAHC. The PAHC was formed in 2001 by organizations who see Philadelphia’s affordable housing crisis up close, every day, from the front lines. -
IL Movement Where We Have Been Where We Are Going
IL NET an ILRU/NCIL National Training and Technical Assistance Project Expanding the Power of the Independent Living Movement The Independent Living Movement: Where We’ve Been, Where We’re Going A National Teleconference & Webcast Participant’s Manual April 12, 2004 Contributors to the training materials: Steve Brown June Kailes Maggie Shreve Julia Sain Paul Longmore Anne-Marie Hughey Kristy Langbehn June Sutherland Tim Fuchs i © 2004 IL NET, an ILRU/NCIL Training and Technical Assistance Project ILRU Program NCIL 2323 S. Shepherd Street 1916 Wilson Boulevard Suite 1000 Suite 209 Houston, Texas 77019 Arlington, Virginia 22201 713-520-0232 (V) 703-525-3406 (V) 713-520-5136 (TTY) 703-525-4153 (TTY) 713-520-5785 (FAX) 703-525-3409 (FAX) [email protected] 1-877-525-3400 (V/TTY - toll free) http://www.ilru.org [email protected] http://www.ncil.org Permission is granted for duplication of any portion of this manual, providing that the following credit is given to the project: Developed as part of the IL NET: an ILRU/NCIL National Training and Technical Assistance Project. Substantial support for development of this publication was provided by the Rehabilitation Services Administration, U.S. Department of Education. No official endorsement of the Department of Education should be inferred. The IL NET is a collaborative project of Independent Living Research Utilization (ILRU) and the National Council on Independent Living (NCIL), with funding from the Rehabilitation Services Administration through Agreement No. H132B99002. IL NET Presents: The Independent Living Movement: Where We’ve Been, Where We’re Going Page ii The Independent Living Movement: Where We’ve Been, Where We’re Going A National Teleconference & Webcast April 12, 2004 Participant’s Manual Table of Contents Agenda.......................................................................................................................... -
Perceptions of Disability, Identity, Agency, Goal Attainment, and Young Adult Disability Programs Rachel Elizabeth Kallem Whitman
Duquesne University Duquesne Scholarship Collection Electronic Theses and Dissertations Spring 1-1-2017 Perceptions of Disability, Identity, Agency, Goal Attainment, and Young Adult Disability Programs Rachel Elizabeth Kallem Whitman Follow this and additional works at: https://dsc.duq.edu/etd Recommended Citation Whitman, R. E. (2017). Perceptions of Disability, Identity, Agency, Goal Attainment, and Young Adult Disability Programs (Doctoral dissertation, Duquesne University). Retrieved from https://dsc.duq.edu/etd/154 This Worldwide Access is brought to you for free and open access by Duquesne Scholarship Collection. It has been accepted for inclusion in Electronic Theses and Dissertations by an authorized administrator of Duquesne Scholarship Collection. For more information, please contact [email protected]. PERCEPTIONS OF DISABILITY, IDENTITY, AGENCY, GOAL ATTAINMENT, AND YOUNG ADULT DISABILITY PROGRAMS A Dissertation Submitted to the School of Education Duquesne University In partial fulfillment of the requirements for the degree of Doctor of Education By Rachel Kallem Whitman May 2017 Copyright by Rachel Kallem Whitman 2017 DUQUESNE UNIVERSITY SCHOOL OF EDUCATION ED.D. IN EDUCATIONAL LEADERSHIP Dissertation Submitted in Partial Fulfillment of the Requirements For the Degree of Doctor of Education (Ed.D.) Presented by: Rachel Kallem Whitman M.S.Ed., Duquesne University, 2011 B.A., University of Virginia, 2007 February 23, 2017 PERCEPTIONS OF DISABILITY, IDENTITY, AGENCY, GOAL ATTAINMENT, AND YOUNG ADULT DISABILITY PROGRAMS _______________________________________,