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Impact Report 2016 COMMUNITY IMPACT REPORT 1 WITH GRATITUDE Our sincerest gratitude to all of our major donors for their dedication to championing kids’ cancer care. A special thank you to those who have committed to POGO with a multi-year agreement (indicated below with an *asterisk). Your ongoing commitment provides stable funding for today and tomorrow, allowing POGO to plan ahead, knowing that we have your support. POGO’s Lead Partner: $575,000 Supporters: $5,000 - $9,999 Coast to Coast Against Cancer Foundation* Abigayle Lobsinger Family Skate Apotex Foundation - Honey & Barry Sherman* Platinum: $300,000 - $449,999 Karen Beattie & Jason Butorac Cadillac Fairview Run* The Ben and Hilda Katz Charitable Foundation John Billowits Silver: $100,000 - $199,999 BMO Capital Markets The MacNamara Family Canadian Tire Associate Store #152 Bronze: $50,000 - $99,999 John & Pattie Cleghorn & Family Scotiabank Shari & Tony Fell Forum Equity Partners* Leaders: $25,000 - $49,999 LBJ Family Foundation CIBC Children’s Foundation Cory Freedman Hudson’s Bay Company Christopher & Judy Gower Kitchener Kids with Cancer Run & Walk Harry Rosen Inc. Toronto Women’s Run Series* Derek Janzen TD Securities Underwriting Gord Love Hope Charity Auction Jeff Lozon The McLean Foundation Benefactors: $10,000 - $24,999 National Homes Delta Elevator Company Ltd. Prichard-Wilson Family Foundation Factory Shoe Kitchener CCAM Fundraiser at Toronto Foundation Freedom International Brokerage Company Realtax The G&G Foundation for Charitable Giving Richard Rival J.P. Bickell Foundation Daniel Sklivas Kitchener Rangers Clarky’s Kids Tri KiDS Triathlon Series The Lawrence and Judith Tanenbaum Family Foundation The Melman & Yakobson Families RBC Foundation Scotiabank Toronto Waterfront Marathon Underground Specialties Inc. Peter & Teresa van Schaik List of donors continued on pages 30-31 COVER PHOTO BY TYNAN STUDIOS A MESSAGE FROM THE CHAIR OF THE POGO DEVELOPMENT CABINET To start, let me say that I am thrilled to chair the POGO Development Cabinet, a group of highly talented, philanthropic individuals who have come together for a single cause: to champion childhood cancer care. When I first learned about POGO, I was immediately impressed with the breadth and depth of the work they do in the field of pediatric oncology. The POGO motto—For kids with cancer, for now, for life—reflects this perfectly. It speaks to the longevity of POGO’s relationship with each child who experiences cancer, during treatment and beyond, as well as their commitment to the quality of care and quality of life for each and every patient, family and childhood cancer survivor. I am equally impressed by the way its stakeholders understand, respect and act as ambassadors for the various programs and services POGO provides. As you read this report, you will hear directly from families about the invaluable support they receive during treatment. Two survivors describe two very different programs that help them manage their ongoing care and promote optimal quality of life. POGO education events engage experts in the field, as well as survivors with lived experiences, to communicate the latest and greatest achievements in pediatric oncology. And finally, POGO researchers describe the importance of ongoing surveillance and research to help advance the field of pediatric oncology. POGO is at the forefront of development and innovation in this field that fights tirelessly to support kids with cancer, and I am very honoured and proud to be a small part of that. Fay$Wu$ e(Signature$ $ $ Fay Wu Chair, POGO Development Cabinet 1 OUR PARTNERS BOARD OF DIRECTORS POGO PARTNER HOSPITALS Hon. Stephen Goudge, QC (President) Tertiary Partners Dr. Anthony Chan (Treasurer) The Hospital for Sick Children, Toronto Ms. Judy Van Clieaf (Secretary) McMaster Children’s Hospital, Dr. Ronald Barr Hamilton Health Sciences, Hamilton Dr. Danielle Cataudella Children’s Hospital, Ms. Heather Connelly London Health Sciences Centre, London Ms. Mary Jo De Courcy* Kingston General Hospital, Kingston Mr. Colin Graham Children’s Hospital of Eastern Ontario, Ottawa Dr. Lawrence Jardine Satellite Partners Dr. Donna Johnston Trillium Health Partners, Ms. Denise Mills Credit Valley Hospital, Mississauga Dr. Harvey Schipper* Orillia Soldiers’ Memorial Hospital, Orillia Dr. Mariana Silva Northeast Cancer Centre, Dr. Brenda Spiegler Health Sciences North, Sudbury Mr. John Sullivan* Windsor Regional Hospital, Windsor Dr. Charmaine van Schaik Grand River Hospital, Kitchener-Waterloo Dr. Jim Whitlock Rouge Valley Health System, Ms. Fay Wu Centenary Health Centre, Toronto East *Indicates retired in fiscal 2015/2016 Southlake Regional Health Centre, POGO DEVELOPMENT Newmarket CABINET AfterCare Partners Ms. Fay Wu (Chair) Children’s Hospital, Dr. Danielle Cataudella London Health Sciences Centre, London Dr. Anthony Chan The Hospital for Sick Children, Toronto Mr. Jeffrey Gans Princess Margaret Cancer Centre, Toronto Hon. Stephen Goudge, QC McMaster Children’s Hospital, Dr. Corin Greenberg Hamilton Health Sciences, Hamilton Mr. Matthew Kelly The Ottawa Regional Cancer Centre, Ottawa Ms. Lenka Kimla Children’s Hospital of Eastern Ontario, Ottawa Mr. Kevin Kirby Southeastern Regional Cancer Centre Dr. David Malkin at Kingston General Hospital, Kingston Ms. Amy Milne Mr. Glen Oliver Dr. Charmaine van Schaik 2 MAKE NEW FRIENDS, BUT KEEP THE OLD. ONE IS SILVER, AND THE OTHER GOLD. Growing up, I remember this piece of wisdom passed down to us in the classroom, churches, clubs and organizations, and even in my home (my mom was a kindergarten teacher). I can’t think of a more fitting mantra for the not-for-profit sector today, and in particular with our work at POGO. In this year’s report you will read stories that exemplify POGO’s core strengths. As we continue to provide excellent service and programs to the community we serve, we are also engaged in developing the next five-year provincial plan to advance the existing childhood cancer system. You will have already seen the introduction from our Chair of the newly formed Development Cabinet, Fay Wu. Now, as you read this, we will be welcoming our new Medical Director while saying thank you but not goodbye to our outgoing Medical Director Dr. David Malkin. And of course heartfelt thanks to those donors and partners who have been supporting POGO for some time. Your contributions and commitment have helped build POGO to where it is today. Welcome to our new friends and donors who have joined our league of champions! In a time where choice is abundant, we are honoured and grateful you chose POGO. Silver and Gold. Sincerely, Lynn Wilson Chief Development Officer, POGO 3 AT ANY GIVEN POINT IN TIME, THERE ARE CLOSE TO 4,000 FAMILIES IN ONTARIO WITH A CHILD IN CANCER TREATMENT OR FOLLOW-UP CARE. FAMILY SUPPORT 4 AT ANY GIVEN POINT IN TIME, THERE ARE CLOSE TO 4,000 FAMILIES IN ONTARIO WITH A CHILD IN CANCER TREATMENT OR FOLLOW-UP CARE. While a cancer diagnosis comes as a shock at any age, when the patient is so young it seems incomprehensibly unfair. Parents must face their frightened and bewildered child, while they themselves may feel helpless and vulnerable, struggling to negotiate unfamiliar areas of a complex healthcare system. It is a world of which few of us are fully aware, unless we have to enter it ourselves. 5 FAMILY SUPPORT SELENA’S STORY: Creating a Happy Home for my Child with Cancer In 2014, both my husband and I were So when our healthy child who never had working long hours at high pressure jobs. so much as a cold said, “Mummy, I have a It seemed as though our daughter Selena tummy ache,” we didn’t just blow it off like was spending more time with her nanny we might have the year before. We and grandparents than with us, and she was immediately took her to a walk-in clinic. having behavioural problems at daycare. We The doctor pressed down on her stomach made the decision that Selena needed more and noticed her liver was swollen. Although “mom time,” so I took a leave of absence he attributed it to an infection, he was still from my job in women’s nursing apparel and curious so he made a requisition for an I started working part-time at a restaurant. ultrasound. And for that, I will forever It paid off: Selena’s behaviour changed 180 be grateful. degrees in that first year. She was happy and well-adjusted, and I got the opportunity to really know my kid in a way I hadn’t before. Selena’s stomach ache went away and she didn’t have a single symptom after that. If not for that ultrasound, they would never have detected a mass or ordered the blood work and CT scan that determined it was cancer. Selena was diagnosed with the worst type of Wilm’s tumour; we were told to get ready for a bumpy road. WATCH SELENA’S STORY: MEET OUR CHAMPIONS Creating a Happy Home When SK Your Child has Cancer @www.pogo.ca 6 Her protocol was experimental and based on yet-unpublished research out of the United States. Step 1 - Removal of her kidney and tumour Step 2 - 13 rounds of radiation Step 3 - 12 cycles of aggressive chemotherapy PHOTO BY TYNAN STUDIOS Selena’s treatment completely wiped out her eligible for, including POGO’s Financial bone marrow and she was in semi-isolation Assistance Program. for nine months. It was challenging. She And now Selena’s treatment is over and she couldn’t go to daycare, birthday parties or is doing so well. She is excited to start school; even the shopping centre. We decided to I am thankful that I get to return to the same make home the best possible environment job after being away for two years; and my we could and we celebrated everything, husband and I are determined to get back from a single poke to the end of a round of on track financially.
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