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ED307760.Pdf DOCUMENT RESUME ED 307 760 EC 220 265 AUTHOR Bogdan, Robert TITLE "We Care for Our Own'" Georgia Citizen Advocacy in Savannah and Macon. INSTITUTION Syracuse Univ., NY. Center on Human Policy. SPONS AGENCY National Insi. on Disability and Rehabilitation Research (ED/OSERS), Washington, DC. PUB DATE Dec 87 GRANT G0085C03503 NOTE 32p. AVAILABLE FROM Syracuse University, Center on Human Polacy, Research and Training Center on Community Integration, 724 Comstock Ave., Syracuse, NY 13244-4230 ($2.25). PUB TYPE Reports Descriptive (141) EDRS PRICE MF01/PCO2 Plus Postage. DESCRIPTORS *Adult Foster Care; *Advocacy; Community Programs; *Developmental Disabilities; *Foster Care; Friendship; Helping Relationship; Placement; *Severe Disabilities; State Programs IDENTIFIERS Georgia ABSTRACT The report describes the Georgia Citizen Advoca y program which links developmentally disabled persons with persons in the community who will look out for their interests. The program is commended for its emphasis on development of "advocate/protege" relationships which are often just the starting point for involving the disabled individual in a network of relationships. Three specific relationships are highlighted in the report. Conclusions include the following: the program capitalizes on aspects of Georgia culture such as neighborliness, helping your own, and independence; the staff's close relationship to the community is an important aspect of the program's success; a relationship between a disabled and nondisabled person is likely to expand to other relationships in the community; strong ideological commitment by an agency is likely to improve the quality of life for disabled persons; and people in meaningful relationships with disabled persons grow to take them for granted and derive gratification from them. (DB) * Reproductions supplied by EDRS are the best that can be made * from the original document. *******************************************.r.************************** U S DEPARTMENT OFEDUCATION and imptosement Office of Educational Research EDUCATIONAL RE SOURCESiNFORMATION argmEwc, j..1.14 document has beenreproduc ed as received from the person orOrcla,ZahOn onginating it Minor Changes nave peenmade th improve rePrOdur hon guahty stated P IP,SrIOCo Poir'SOr. iew or OP,OnSreoresenl official inert do not necessarily, OERI POYOon of policy Center on Human Policy "WE CARE FOR OUR OWN": GEORGIA CITIZEN ADVOCACY IN PAVANNAH AND MACON "PERMISSION TO REPRODUCE THIS BEST COPYAVAILABLE MATERIAL HAS BEEN GRANTED BY Steven Taylor 2 TO THE EDUCATIONAL RESOURCES INFORMATION CENTER (ERIC)" "WE CARE FOR OUR OWN": GEORGIA CITIZEN ADVOCACY IN SAVANNAH AND MACON by Robert Bogdan Syracuse University Center on Human Policy Research and Training Center on Community Integration 724 Comstock Avenue Syracuse, New York 13244-4230 (315) 423-3851 Preparation of this case study was supported by the National Institute on Disability and Rehabilitation Research, U. S. Department of Education under Cooperative Agreement No. G0085C03503 awarded to the Center on Human Policy, Divis:on of Special 2ducation and Rehabilitation, Syracuse University. The opinions expressed herein are solely those of the author and no official endorsement by the U.S. Department of Education shoulD be inferred. December 1987 This is one of a series of reports on programs and services that support people with severe disabilities in the community. The purpose of the series is not to evaluate programs or services, but rather to describe innovative practices for integrating people with disabilities into community life. I had neve' been to Savannah. A blurred image of the old South was in my mind when I got off the plane late Sunday night. The shuttle that served my hotel was closed, forcing me to take a taxi. A woman in her fifties, her grey hair pulled back, was my driver. By the way she drew on her cigarette and talked to the other waiting drivers I could tell she had been driving a long time. Something I asked provoked a short autobiography. She was raised in rural Georgia in a house with no running water, heat or electricity. At sixteen she developed a skin disease which required visits to Savannah. The bus was expensive so one day she came to town with ten dollars and didn't return. This proud independent women now has asthma. She is thinking about retiring even though she has no pension or savings. But that didn't phase her as she told me: "If you grew up here like I did, with unly the basics, you don't need a whole lot. You can make it. There are good people. They will look after me. We take care of our own." During my stay in Savannah and then in Macon I met other people whose remarks brought me back to the taxi driver's comment. The idea that people have personal resources to draw upon, and that neighbors can be counted on, were sentiments I heard expressed as I visited with the staff, advocates, and proteges in the Georgia Citizen Advocacy program. The belief in the strength of the human spirit and the need to return to values which celebrate community and mutual support are at the heart of that program. Citizen advocacy in Georgia isn't just about 2 serving people who are developmentallydisabled by linking them with people who will lookout.. for their interests. It is about building community, about rescuinga society from a over- bureaucratic infrastructure. The citizen advocacy movement in Georgia is not "for" the developmentallydisabled, it is for all people. I visited the Georgia Citizen Advocacy officesin Savannah and Macon because our first round of visits(in 1986) to programs nominated for providing exemplar esidential programs for severely and profoundly disabled childrenand adults taught us that we had to study relationships ifwe were to understand quality living. The Georgia CitizenAdvocacy program had a reputation of doing a wonderful jobof matching ordinary citizens (who they call "advocates") withdevelopmentally disabled peopla (who they call "proteges") inways in which caring, supportive andmutually beneficial long term relationshipsdeveloped. During my visit I found those relationshipsbut I found much more. I found an agency that hada coherent world view and a group of people with a calling. When I contacted my would be host, TomKohler, I asked that I visit and talk to people whowere involved in ongoing caring relationships with severely and profoundlydisabled people (Georgia Advocacyserves "proteges" with a wide range of disabilities). In addition I told Tom I was particularly interested in the residential aspects of thedisabled person's life and how the relationship withan "advocate" affected that. 5 3 My original purpose in visiting Georgia was not tostudy the c.tizen advocacy concept or the organizationalunderpinnings of the programs. These had been described before. Rather my focus was to be on the relationships between the"advocate" and the "protege," and what I might learn about what is needed tofoster quality living for people who are severely disabled. While I more or less stayed true to my goal, Idid talk to various people involved with the program who gave me what I thought were important insights about the conceptual and organizational dimensions of citizen advocacy. Some of this information is included in this report. My intention was to concentrate on four sets of "advocates /protege" relationships in my visit. While this was my plan and to some extent it was executed, I discovered thct although a relationship might start as one-to-one and agency initiated, as other people in both party's lives get involved, the configuration becomes more complex. In some cases the advocate's spouse or friend may become so involved that what emerges is a threesome. In other cases a third partybecomes more involved with the person with the disability than the original advocate. The "advocate/protege" relationship, narrowly conceived, may be just the starting point for involving the person with the disability in a network ofrelationships. In addition, as the case studies of relationships will reveal, the "advocate/protege" relationship changes. At time it may be more active than at other times. At times it may be the only 4 relationship in the lifeof the person witha disability, at other times only one ofmany. For each relationship Italked to as many peopleas I could about the relationship. Most of the timewas spent interviewing advocates. The information reported here comes fromtape recorded interviews, newspaper articles,newsletters and other official agency literature, and a report compiled by the GeorgiaAdvocacy Office [Biklen, Sari(Ed.) Just Friends: OralHistories of Citizen Advocacy Relationships. Pat Wilson's profile ofMarilyn and Cynthia was particularly helpful, and I havedrawn extensively from Sidnie Shaffers' portrait ofClete Bergen and the Benjamins here.). (Although I concentrated on four relationships inmy visit, in this report I discuss only three. Theserelationships involved severely or profoundly disabled people; thefourth did not.) Marilyn and MonnieBrabham and CynthiaJones Marilyn and Monnie Brabham are an attractivemodern Black couple. They dress well and are fashionable, which is partand parcel of how they make their living. Monnie owns and operatesa beauty shop. Marilyn works full timefor a company but owns and operates a small women's clothing store ina shop right next to Monnie's establishment. Six years ago Cynthia began her new life withthe Brabhams. She was twelve then and for six of thoseyears she was a resident in a nursing home. Barbara Fisher of theMacon Citizen Advocacy office introduced Marilyn to Cynthia hopingto team the two. 7 Marilyn was appalled that such a young person was in a nursing home. She told her mother about Cynthia and said: "If I was Cynthia I would pray that someone would come along and take me out of there, expose me to the world outside." Marilyn remembers visiting the nursing home and feeding her new found friend globs of blended food that could have been hot dogs or steak. Marilyn was only 22 when she started her relationship with Cynthia.
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