www.rettuk.org issue: one/2016 Rett News reg. charity no: 1 137820 Support today, hope for tomorrow company reg: 07339522 IN THIS ISSUE Claiming ESA at 16 and Beyond Virgin London Marathon 2016 Gall Bladder Disease Our Rett UK Champions Rett News Contents Welcome from the CEO 1 Support Round Up – Transitions 2 Support Round Up – Regional Days 3 Support Round Up – Specialist Clinic Information 3 Claiming Employment and Support Allowance (ESA) 5 Holiday Ideas 8 Fundraising 9 Fundraising Round Up – Thank You All 12 Fundraising – Virgin London Marathon 2016 14 Might You Be a Rett Champion? 17 Parallel London 18 Seasonal Scene Photo Competition Results 19 Research Article 20 Gall Bladder Disease in People with Rett Syndrome 21 An Ambassador's Story 22 300 Club Results 24 Memories – Victoria Benning IBC Make a Donation Form BC Rett UK, Langham House West, Mill Street, Luton LU1 2NA Tel: 01582 798910 · Direct Support Line: 01582 798911 Email:
[email protected] · Website: www.rettuk.org HONORARY POSTS - Patrons: Ann Clwyd MP, Dame Evelyn Glennie, Gloria Hunniford, Jon Snow PRESIDENT - Yvonne Milne MBE · VICE-PRESIDENT - Lorna Jaffa TRUSTEES - Honorary Chairman: Lorna Jaffa ·Honorary Vice-Chairman: Hilary Truss Honorary Treasurer: Lucy Duncan · Tim Addison, Pauline Bardon, Michael Britten, Becky Gordon, Peter Oliver, Julie Owen, Robert Valentine, Amber Westmoreland, Susan Westmoreland RETT UK STAFF - CEO: Becky Jenner · Family Support Manager: Julie Benson Family Support Officer: Patrice Hosier · Office Manager: Donna Tinch · Bookkeeper: Becca Prince. Rett News is published quarterly by Rett UK Editor: Robert McKay · Designers: 1st Impression · Printer: Creamers Ltd The views expressed herein do not necessarily represent the views of the editor or of Rett UK’s officers, members or Board of Trustees.