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Strategy Refresh 2021-23 Strategy Refresh 2021-23 1 Who We Are

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Strategy Refresh 2021-23 Strategy Refresh 2021-23 1 Who We Are Strategy refresh 2021-23 Strategy refresh 2021-23 1 Who we are We have a dual role, first, as a Rethink Mental Illness campaigning organisation, bringing to bear is the charity for people our experience of working directly with carers and people severely affected by severely affected by mental illness to shape the health system, public attitudes and the wider social and mental illness. Our economic environment. Secondly, as a mission is to lead the provider of services directly to people who are severely affected by mental way to a better quality illness, both those with lived experience and carers. People, for example, but of life for everyone not exclusively, living with diagnoses of schizophrenia, bipolar disorder and severely affected by borderline personality disorder. mental illness. This includes people with The combination of the lived experience, their provision of services and carers, families and our campaigning is the One friends. Rethink principle and we put it into action to ensure everyone who is affected by mental illness can benefit from our approach. This work is guided, shaped and co-produced with people with lived experience of mental illness, who are at the heart of everything we do. Our vision is equality, rights, fair treatment, and the maximum quality of life for all those severely affected by mental illness. 2 Rethink Mental Illness © 2021 Our values It is important to us that we not only have a mission but that we pursue that mission in a way that all those who support us can relate to. We have added ‘equity’ to our values in 2021 in recognition that some groups, in particular people from black, Asian and minority ethnic backgrounds, are disproportionately likely to experience severe mental illness due Our values of hope, to social and economic factors including understanding, expertise, discrimination. In addition, older people are living with consequences, both mental and equity, commitment, passion physical, of many years with a severe mental and openness underpin illness and there is growing evidence that younger people are struggling with their everything we seek to mental health. A further value of equity will achieve. guide our external work campaigning for change, underpinning the way we deliver our mission of reaching underserved groups of the population, and helping us to become a truly anti-racist and inclusive organisation in the coming years. Strategy refresh 2021-23 3 The story so far The most authoritative 1 in 50 and up to date study of About one in every 50 adults will experience the prevalence of mental bipolar disorder at some point in their life.2 illness, NHS Digital’s Adult Psychiatric 1 in 100 Around one in 100 people live with a Morbidity Survey, diagnosis of schizophrenia.3 found that in 2014 one in six adults met the 1 in 100 criteria for a common Around one in 100 people live with a mental disorder, with diagnosis of borderline personality disorder.4 10 per cent of women and six per cent of 1 million men reporting severe Population projections from the Office for 1 National Statistics and polling by Carers symptoms. UK indicate that there are over 1,000,000 people caring for someone living with a mental health problem. In circumstances that are extremely challenging, too many people struggle to get the right care and support at the right time. 2 Institute for Health and Care Excellence (NICE). Bipolar disorder: assessment and management. NICE Clinical Guideline (CG185). 2020 3 National Institute of Health and Care Excellence. Psychosis and schizophrenia in adults: prevention and management. Clinical Guidance178. London: National Institute for Health and Clinical Excellence; 2014 1 https://digital.nhs.uk/data-and-information/publications/ 4 National Institute for Health and Clinical Excellence. Borderline statistical/adult-psychiatric-morbidity-survey/adult- Personality Disorder: Recognition and Management. The psychiatric-morbidity-survey-survey-of-mental-health- National Clinical Guideline Number 78. London: Royal College and-wellbeing-england-2014 of Psychiatrists; 2009, para 4: introduction. 4 Rethink Mental Illness © 2021 Based on HM Inspectorate of Prisons We are fighting hard surveys, 37% of the average monthly to change this. prison population live with mental health 5 or wellbeing issues at any one time. In Rethink Mental Illness was founded as a addition, the self-harm rate has doubled movement in 1972, by people living with a in five years, from 377 incidents per 1,000 diagnosis of schizophrenia and their carers. 6 prisoners in 2015 to 764 in 2019. In the intervening 50 years we are proud of what we have done to tackle stigma, In 2018, the National Clinical Audit of increase public awareness and political Psychosis found that of patients surveyed support for all people severely affected by who experienced psychosis: mental illness. We are proud also of the Only 36% had been offered some range of person-centred services we have form of CBT. delivered for thousands of people every year. Only one in ten patients in the audit Our award-winning information services were involved in work or education and advice lines, for example, have been a and less than half of those seeking lifeline for millions of people. work had been offered appropriate In 2019/20 over three million people support to help them find a job. visited our website, viewing more than 5.5 Most long-term mental health problems million pages. In the same time period, begin in adolescence with 75% of mental our contracted advice and helplines illnesses starting before a person’s 18th responded to 20,272 enquiries. Our Advice birthday.7 and Information Service, free and available to all, directly supported 4,559 people on Of huge concern is that people living with 7,668 issues. Our services, ranging from severe mental illness are more likely to advocacy, CQC registered services and experience poor physical health and are 4.5 housing directly supported 15,895 people.9 times more likely to die before the age of 75 than the general population.8 5 https://www.nao.org.uk/wp-content/uploads/2017/06/Mental-health-in-prisons-Summary.pdf 6 Ministry of Justice (2019) Safety in Custody Statistics: 2004 - 2019; England and Wales 7 Dunedin Multidisciplinary Health & Development Research Unit, http://dunedinstudy.otago.ac.nz/ 8 https://fingertips.phe.org.uk/profile-group/mental-health/profile/severe-mental-illness 9 https://www.rethink.org/media/4112/rethink-mental-illness-accounts-2019-2020.pdf Strategy refresh 2021-23 5 As our services have grown, we have Despite unprecedented commitment at the developed a broader understanding of the top of the NHS towards improving treatment mental health services which people may for mental illness, people are still waiting access. Although not all people who access up to an average of 14 weeks even for an some elements of our services may consider assessment.12 themselves to be severely affected by mental illness, their experience of the system helps Though the effects have been devastating us to reach those most severely affected. the pandemic has played a part in changing public discourse around the importance of Over the last decade, despite a political mental health. There is evidence that the environment dominated by austerity following government understands the importance the global financial crisis and latterly by of ensuring people living with mental illness Brexit, we have seen a sea-change in receive the support and care they need. funding, policy, and political and public Whilst the ambition shown so far is welcome, support for mental health. This has led to it is still insufficient to put mental health a reduction in levels of stigma and new on an equal footing with physical health. standards of care for people who live with Mental and physical health are not just of mental illness. There is now a commitment to equal value but are intertwined and are often increased investment through the NHS Long interdependent. Term Plan and the imminent reform of the Mental Health Act. The government response to date also contains a serious flaw. Funding has been In early 2020, countries across the world made available to deliver the NHS Long began to be affected by the global Covid-19 Term Plan, and additional funding has been pandemic. Our own research10 tells us that provided considering the increased demand 79% of those already unwell have seen their on services created by the pandemic. mental health worsen, as the routines and However, the support for people severely contact that underpin recovery and wellbeing affected by mental illness goes beyond the have been torn away. The pandemic is likely NHS; adult social care is equally as important to continue to exacerbate existing mental as is the impact of the welfare system. health and wellbeing problems among Without investment and reform many people young people where one in six young people severely affected by mental illness will now have a probable mental illness.11 The continue to not receive the care and support experience of past recessions also warns us they need. This puts at risk the commitments that unemployment and debt drive up mental made in the NHS Long Term Plan. As a illness. Furthermore, whilst media activity campaigning organisation we will continue before the pandemic and the pandemic to work constructively with organisations itself have brought mental health to the fore, and individuals who are leading change that there has been less emphasis in the media supports people severely affected by mental on
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