North American Association of Central Cancer Registries Standards For
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North American Association of Central Cancer Registries Standards for Cancer Registries Volume II Data Standards and Data Dictionary Sixth Edition Record Layout Version 9.1 Edited By Dianne Hultstrom March 2001 Sponsoring Organizations American Cancer Society American College of Surgeons American Joint Committee on Cancer Centers for Disease Control and Prevention Health Canada National Cancer Institute National Cancer Registrars Association Statistics Canada Edited By Dianne Hultstrom, B.S., R.H.I.T., C.T.R. Director of Education Impath Medical Registry Services One University Plaza Hackensack, NJ 07601 [email protected] Comments and suggestions on this and other NAACCR standards documents are welcome. Please send your comments to the Editor or any member of the NAACCR Board of Directors. The other volumes in the series, Standards for Cancer Registries, are: Volume I, Data Exchange Standards and Record Description Intended for programmers, this provides the record layout and specifications for the standard for data exchange, including correction and analysis formats. Released annually as an electronic document and posted on the NAACCR Web Site. Volume III, Standards for Completeness, Quality, Analysis, and Management of Data Intended for central registries, this provides detailed standards for many aspects of the operation of a population-based cancer registry. Volume IV, Standard Data Edits This documents standard computerized edits for data corresponding to the data standards in Volume II. The standard is primarily made available electronically as program code and a database. Copies of all standards documents can be viewed or downloaded from NAACCR’s Web Site at http://www.naaccr.org. For additional paper copies, write to the NAACCR Executive Office. Suggested citation Hultstrom D, editor. Standards for Cancer Registries Volume II: Data Standards and Data Dictionary Version 9.1, Sixth Edition. Springfield, IL: North American Association of Central Cancer Registries, March 2001. Support for editorial services of this volume was provided in part with Federal funds from the National Cancer Institute, National Institutes of Health, under Contract No. N02-PC-05030. Support for production and distribution of this volume was provided in part through a cooperative agreement to NAACCR from the Centers for Disease Control and Prevention, U75/CCU515998. These standards were adopted by the NAACCR Board of Directors in March 2001. Standards for Cancer Registries, Volume II: Data Standards and Data Dictionary, Sixth Edition TABLE OF CONTENTS NAACCR Board of Directors 2000-2001........................................................................................................................vii Uniform Data Standards Committee 2000-2001.............................................................................................................ix Members of the Volume II Work Group 2000-2001.......................................................................................................xi Addresses of Major Standard-Setting Organizations...................................................................................................xiii Preface to the Sixth Edition .............................................................................................................................................xv Chapter I: Problem Statement, Goals, and Scope of This Document ...........................................................................1 Chapter II: Historical Background and Status of U.S. Standards................................................................................7 Chapter III: Standards for Case Inclusion and Reportability.....................................................................................15 Chapter IV: Recommended Data Edits and Software Coordination of Standards...................................................19 Chapter V: Unresolved Issues ........................................................................................................................................23 Chapter VI: Pathology Laboratory Electronic Reporting Recommendations...........................................................31 Chapter VII: References .................................................................................................................................................89 Chapter VIII: Record Layout Table (Column # Order) ..............................................................................................93 Chapter IX: Required Status Table (Item # Order)...................................................................................................105 Chapter X: Data Descriptor Table (Item # Order).....................................................................................................119 Chapter XI: Data Dictionary........................................................................................................................................135 Appendix A: FIPS Codes for Counties and Equivalent Entities ...............................................................................337 Appendix B: EDITS Tables for Selected Data Items..................................................................................................353 Appendix C: Abbreviations and Acronyms Used .......................................................................................................367 Appendix D: Alternate Names......................................................................................................................................369 Appendix E: Grouped Data Items................................................................................................................................375 Appendix F: Tables and Data Dictionary Revisions...................................................................................................379 Index ............................................................................................................................................................................... 387 Version 9.1 -- Table of Contents v Standards for Cancer Registries, Volume II: Data Standards and Data Dictionary, Sixth Edition NAACCR BOARD OF DIRECTORS 2000-2001 President: Members at Large Thomas C. Tucker, M.P.D. 1999-01 Sally Bushhouse, D.V.M., Ph.D. 1999-01 Kentucky Cancer Registry Minnesota Cancer Surveillance System Suite A-230 Minnesota Department of Health 2365 Harrodsburg Road 717 Delaware, S.E. Lexington, KY 40504 P.O. Box 9441 Telephone: (859) 219-0773, ext 225 Minneapolis, MN 55440 Fax: (859) 219-0557 Telephone: (612) 676-5216 E-mail: [email protected] Fax: (612) 676-5099 E-mail: [email protected] President Elect: Vivien W. Chen, Ph.D. 2000-01 Jill MacKinnon, C.T.R. 2000-02 Louisiana Tumor Registry Sylvester Cancer Center Suite 900, Box 106 P.O. Box 016960 [D411] 1600 Canal Street Miami, FL 33101 New Orleans, LA 70112 Telephone: (305) 243-3426 Telephone: (504) 568-6047 Fax: (305) 243-4871 Fax: (504) 568-2493 E-mail: [email protected] E-Mail: [email protected] Dennis Deapen, Dr.P.H. 1998-02 Treasurer: Cancer Surveillance Program of Los Angeles Lilia O’Connor, M.B.A., R.H.I.T., 1997-01 1540 Alcazar Street, CHP204 C.T.R. Los Angeles, CA 90033 Northern California Cancer Center Telephone: (213) 342-2300 Greater Bay Area Cancer Registry Fax: (213) 342-2301 32960 Alvarado Niles Road, Suite 600 E-mail: [email protected] P.O. Box 5033 Union City, CA 94587-3106 Mary McBride 1999-01 Telephone: (510) 429-2500 Epidemiologist, Cancer Control Research Fax: (510) 429-2550 British Columbia Cancer Registry/Agency E-mail: [email protected] Cancer Control Research Unit 600 W. 10th Avenue Representative, Sponsoring Member Organizations Vancouver, BC V5Z 4E6 Connie Blankenship 2000-02 Canada American College of Surgeons Telephone: (604) 877-6122 Commission on Cancer, ACES Fax: (604) 877-0702 633 N. Saint Clair Street E-mail: [email protected] Chicago, IL 60611-3211 Telephone: (312) 202-5290 Georgia Armenta Yee, B.S.W., C.T.R. 1999-02 Fax: (312) 202-5009 Arizona Cancer Registry E-mail: [email protected] Arizona Department of Health Service 1400 W. Washington Phoenix, AZ 85007 Telephone: (602) 542-7320 Fax: (602) 542-7362 E-mail: [email protected] Version 9.1 -- NAACCR Board of Directors 2000-2001 vii Standards for Cancer Registries, Volume II: Data Standards and Data Dictionary, Sixth Edition UNIFORM DATA STANDARDS COMMITTEE 2000-2001 Joanne Sylvester, M.A. Sally Bushhouse, D.V.M., Ph.D. April Fritz, B.A., R.H.I.T., C.T.R. Chair * Minnesota Cancer Surveillance Surveillance Epidemiology and End American College of Surgeons System Results Program 633 N. Saint Clair Street Minnesota Department of Health Division of Cancer Prevention and Chicago, IL 60611 717 Delaware, S.E. Control Telephone: (312) 202-5298 P.O. Box 9441 National Cancer Institute Fax: (312) 202-5009 Minneapolis, MN 55440 National Institutes of Health E-mail: [email protected] Telephone: (612) 676-5216 Executive Plaza North, Fax: (612) 676-5099 Room 343 J Dianne Hultstrom, B.S., R.H.I.T, E-mail: 6130 Executive Boulevard, C.T.R. * [email protected] MSC-7352 Chair, Volume II Work Group Bethesda, MD 2082-7352 Impath Medical Registry Services, Susan Capron Telephone: (301) 402-1625 Inc. 2443 W. Moffat Street Fax: (301) 496-9949 16 Robert Road Chicago, IL 60647 E-mail: [email protected] Acton, MA 01720 Telephone: (773) 278-6207 Telephone: (978) 897-5330 Fax: (773) 278-0116 Ken Gerlach, M.P.H., Fax: (978)