annual Report 2010-2011i BOARD OF DIRECTORS staff Anna Cluxton Mitchell Fink Directors Emeriti NATIONAL STAFF Affiliate Staff President John Hennessy Ken Preston Jennifer Merschdorf Courtney Bugler Lisa J. Frank Chief Executive Officer Executive Director, Atlanta Affiliate Vice President Karen Borkowsky Kennedy Randi Rosenberg (1965-2010) Stacy Lewis Naomi Gewirtz Dinamarie Alcuri Joy Simha Cynthia Rubin Chief Program Officer and Executive Director, Northern NJ Affiliate Secretary Deputy Chief Executive Ann Partridge, MD, MPH Jennifer Johnson “MY Doctors saved Michael Wirth Heather McGrew Executive Director, Kansas City Affiliate Treasurer Chief Operating Officer Alane Davis my body, BUT ysc saved Jenna Glazer Program Manager, Duluth Affiliate Director of Development MEDICAL ADVISORY BOARD Michelle Esser my heart and s o u l” Lori Atkinson Program Manager, Philadelphia Affiliate Affiliate Development Director Ann Partridge, MD, Roz Kleban, MSW Irma Russo, MD Annie Hiller MPH - Chair Memorial Sloan-Kettering Cancer Center Fox Chase Cancer Center Mary Anjano Development Associate, Atlanta Affiliate Dana Farber Cancer Institute Volunteer Program Associate Thomas Kolb, MD Jose Russo, MD Kari Nesbitt Deborah Axelrod, MD Lichy & Kolb Radiology Fox Chase Cancer Center Kristen Buckler Affiliate Assistant, Atlanta Affiliate NYU Clinical Cancer Center Events Associate Minetta Liu, MD Lillie Shockney, RN Jean Rowe Leslie Bernstein, PhD Lombardi Comprehensive Cancer Center The Johns Hopkins Breast Center Julie Burns Program Manager, Atlanta Affiliate University of Southern California Affiliate Coordinator Susan Love, MD George Sledge, MD Nicole Taylor Ira Bleiweiss, MD Susan Love Breast Cancer Research Foundation Indiana University Hospital Virginia Falces Affiliate Manager, Seattle Affiliate Mount Sinai Medical Center Website Manager Edward A. Luce, MD Richard G. Stevens, PhD Jennifer Whaley W. Archie Bleyer, MD University of Tennessee University of Connecticut School of Medicine Dana Griffin Affiliate Manager, Central Ohio Affiliate St. Charles Medical Center Communications Manager Kathy Miller, MD Alexander J. Swistel, MD Pam Whyte Ernie Bodai, MD Indiana University Weill Cornell Breast Center Krysti Hughett Program Manager, Northern NJ Affiliate Sacramento Medical Center ResourceLink Specialist Anne Moore, MD Deborah Toppmeyer, MD as of 2011 Judy Garber, MD, MPH Weill Medical College Cornell Cancer Institute of New Jersey Megan McCann Dana Farber Cancer Institute National Program Manager Larry Norton, MD Eric Winer, MD Aron Goldhirsch, MD Memorial Sloan-Kettering Cancer Center Dana-Farber Cancer Institute Dana McCaw International Breast Cancer Study Group Development Manager Front and back cover Ospedale Regionale di Lugano Civico Kutluk Oktay, MD,FACOG Karrie Zampini, CSW, ACSW Center for Human Reproduction Fighting Chance Jennifer Owens photographs by

Laurie Goldstein, MD Administrative Coordinator East Side Women’s Ob-Gyn Associates Olufunmilayo Olopade, MD Dr. Kimberly Van Zee, FACS Chris Gharst Memorial Sloan Kettering Cancer Center Toral Shah University of Chicago Medical Center Clifford Hudis, MD Senior Accountant Photography Memorial Sloan Kettering Cancer Center Edith Perez, MD Nirmala Singh Left to right: Kristen Worden, Mayo Clinic Kathryn M. Kash, PhD Program Coordinator Kristin Rose, Dolores Kitchin, Thomas Jefferson University Bert Petersen, MD Jeannie Archuleta, Tameka Virginia Walters Dickerson, Amanda Tamayo, Beth Israel Medical Center Database Coordinator Megan McClendon, Lisa ii Covington, Jennifer Johnson From the CEO

serve as an advocate for every “MY Doctors saved young woman who hears the dreaded phrase “You have my body, BUT ysc saved breast cancer.” With the help of so many my heart and s o u l” wonderful supporters, spon- sors and partners, we are This is the phrase I most often use to describe my senti- raising the volume of that ment toward YSC after being diagnosed with breast voice—and ensuring it is cancer in 2010. I’ve experienced the power of YSC first- heard. We appreciate, and are humbled by, the com- hand and truly believe in the work YSC does, and being mitment and dedication of everyone connected to the named the new CEO in May 2011 was an incredible YSC family. This amazing assemblage of young women, honor. caregivers, family, friends, supporters, donors, sponsors, partners, as well as the medical community, never fails As a young survivor and a member of the YSC com- to amaze me. I am proud to be part of the impact YSC munity, I turned to YSC in my moment of crisis and has made in the lives of the women we serve, as well found support, guidance and friendship. I am one of the as look forward to YSC programs’ remaining impact- many grateful women who are stronger, better educated, ful, relevant, and in line with YSC’s mission to provide empowered and more confident because of the critical comprehensive services so that no young woman facing support and resources that I found through YSC. breast cancer feels alone. Every day, I continue to be inspired by the work, passion I am truly honored to be a part of the YSC community. and dedication of our community and especially my With your continued support, we will meet our goal of YSC colleagues. The staff at YSC understands and is getting closer to the day when every young woman fac- adamantly dedicated to helping young women face the ing breast cancer feels supported, heard and empowered. unique challenges of being diagnosed with breast cancer. We know we need to change the perception that breast cancer only affects older women. We need to provide more resources to young women to guide them through the tough decisions, treatment options and emotional Jennifer Merschdorf challenges that accompany a breast cancer diagnosis. We Chief Executive Officer need to ensure that every young woman facing breast Young Survival Coalition cancer has a voice. As CEO of YSC, it is my intention to

1 C4YW A weekend of Annual Conference for Young Women hope, education, with Breast Cancer friendship and fun!

Nearly 800 people traveled to Orlando, Flor- from around the world to participate in an ida, in 2011 to participate in the Conference amazing three days of education, encourage- for Young Women Affected by Breast Cancer ment, hope and support. The annual confer- “It can be so difficult to (C4YW), the largest gathering of young ence, co-hosted by Young Survival Coalition be dealing with breast women with breast cancer in the world. (YSC) and Living Beyond Breast Cancer (LBBC) with support from lead sponsor cancer in your 20s, it Young women, their families, friends and Susan G. Komen for the Cure, gives women members of the medical community came helps so much to be a unique opportunity to put aside the stress and worries of treatment and with other women who home life, and draw upon the understand.” strength of their mutual experi- ences. C4YW offers scientific over- views of current and upcoming the warmth of the relationships that are treatments, sessions focused developed both in person and online. on long-term survivorship, information for young women For more information about C4YW, dealing with the effects of visit www.C4YW.org. To participate in the early menopause, tips to help C4YW community online, visit C4YW on face relationship and intimacy Facebook or follow the conference on Twitter challenges, along with talking @ C4Y W. to young children about cancer while promoting camaraderie, fellowship and community. Attendance at C4YW “C4YW offered me a continues to grow and it has chance to learn, share become an increasingly criti- cal resource to young women, and connect.” with not only the educational material presented, but also

2 Photo by Dana Freeman Griffin, YSC C4YW 2011, Property of YSC 3 YSC in action Adopt A Hospital At YSC, we encourage everyone to be engaged, An easy way to volunteer Advocacy get educated and feel The most important role that YSC can play in the life of a young woman diagnosed confident to speak out! with breast cancer is to let her know she is not alone—and that there are resources and support designed just for her. in Action All actions, both big and small, can have a positive effect on how To make sure that every young woman in the United States diagnosed with breast a young woman feels about her cancer knows about YSC, a dynamic volunteer program was created to ensure that experience with breast cancer. all doctors, health providers and community support groups know that support for Advocacy can happen in the young women exists at YSC. doctor’s office, in a classroom, Everyone can make a difference. It’s simple and easy to … Adopt a Hospital! with a community group, and with your elected officials. Visit the YSC website, click on the Get Involved tab, and complete the volunteer profile to request your materials. In a few short weeks, a packet will arrive at the Breast cancer not only affects mailing address you provide with pamphlets to hand out to the medical providers the survivor, it also impacts the and facilities you’ve adopted in your community. As a result of your work, these multiple relationships in her life. materials will make their way into the hands of newly diagnosed young women. If you This message must be brought have questions, don’t worry—we are here to help. There are tips on our website for to policy makers and healthcare introducing yourself and your story and for explaining the Adopt a Hospital program. providers to challenge the status quo. Together we can bring a As an Adopt a Hospital volunteer you become a crucial link between YSC, your local critical focus to understanding community, and every young woman newly diagnosed with breast cancer. the unique challenges faced by For more information about volunteering for Adopt a Hospital, contact young women and improving [email protected] or call 877.YSC.1011. the quality of life for all young women affected by breast cancer. Advocacy is about more than the • Doctor’s offices story of one woman’s experience Need ideas of • Treatment centers with breast cancer—it is about places you ensuring that everyone who cares can adopt? • Radiation-oncology offices for someone facing cancer has a • Hospital or clinic resource centers voice. • Social workers’ offices Remember that your voice is • Health fairs powerful—and you can be an agent for change. • Local cancer support centers 4 mammogram performed and underwent genetic mean for the future . . . and the experience of a Young testing, which came back with negative results. new reality. With her family’s support, Rachel continues to live With her fierce determination, Rachel began to Empowered in New York City, where she’s spent several years look for a positive way to put her passion for and building friendships and knowledge of wine to her career. When she work. She subsequently Strong was first diagnosed, she found a job working was working full-time as a social media/com- managing events at an munity manager for a iagnosed in 2011 at the age of 37, upscale wine bar and in small wine importer. Rachel Keenan heard those words recent months Rachel It was a perfect fit for “you have breast cancer” just weeks had secured a position Rachel and not only after seeing the doctor for what she at an elite wine bar that allows her to continue thought was a rash on her breast. she was excited about. working, but also to Rachel, who had always been gener- Unfortunately, she was be engaged in learning ally healthy, thought, “I’ll go on an unable to continue with about social media antibiotic and everything will be back her new position after engagement. to normal.” Instead, she had a biopsy and within only two months, due Rachel keeps moving two weeks of her initial visit, Rachel was diagnosed to a decrease in physical forward each day and with stage IV breast cancer. strength she’s experienc- in every aspect of her ing as a result of her As a young woman living in New York City away life. With the support diagnosis. from her family, Rachel relied on a close friend to of fellow survivors be by her side when her doctor suggested she might Finding the supportive at YSC, along with want to have someone there when she received the environment and tar- the information results of her tests. She then received the news that, geted resources of YSC contained in YSC’s at 36, not only did she have breast cancer, but also was critical to helping educational materi- it had spread to her lungs and was now metastatic. Rachel regain her sense als, Rachel is making of control. When Rachel Rachel Keenan, Property of YSC informed decisions One of the most difficult things for Rachel was found the YSC support group in New York City, and reclaiming her life. She’s finding what it means telling her family, who lives in Seattle, about her she instantly discovered a group of young women to remain positive, live a full life and remember diagnosis. Rachel’s mother hopped on a plane and whom she could relate to. A group of women who that, at 37, she remains young, empowered and was in New York the next day. Her mother, Pat, understood what it felt like to be told, “You have strong. was Rachel’s rock during the first weeks of her breast cancer.” Though they haven’t all experi- diagnosis, accompanying her to tests and appoint- Looking ahead to the future, Rachel is starting enced the same diagnoses or the same treatment ments, as Rachel navigated through her new reality to date again. Calling upon resources from YSC, paths, they share similar journeys. They under- and tried to determine the course of treatment that Rachel’s learning to understand and embrace her stand what it’s like to look into their mother’s would be best for her. Being faced with this news new body, find her way in the dating world, and eyes and tell them they have breast cancer. They caused Rachel’s sister, Sarah, to think about her feel comfortable discussing her diagnosis with understand what it’s like to have plans for their own health. Sarah subsequently had a base-line potential partners. future abruptly change, what this diagnosis could 5 tour de pink®

Tour de Pink® brings amateur riders that beating breast cancer is not just and expert cyclists together to create about medicine. It is about the atti- a supportive community on wheels— tude to beat it. Emanuela was someone Embracing raising awareness that young women who believed in trying to maintain can be affected by breast cancer. In a normal routine and keeping spirits 2010 the three-day rides expanded high. Though it was not always easy, the Challenge – from the East Coast to include the with the help of YSC, she was able to West Coast, creating a bicoastal op- get the tools she needed to help face ® portunity to support YSC. breast cancer beyond medicine. Tour de Pink Members of the YSC community were As a first time Tour de Pink partici- so eager to participate in the event that pant, Michael rallied the support of we saw a strong expansion of Tour de his family and friends to raise more Pink one-day events in 2011. Com- than $8,500, making him one of the munities took to their bikes to support top five personal fundraisers for the the cause in Duluth, Minnesota, 2011 East Coast ride. Joining the where we saw a nearly 50 percent in- three-day ride gave Michael an op- crease in the number of riders. And in portunity to pay tribute to Emanuela Atlanta, Georgia, the crowds swelled and a chance to be with people who to almost 1,000 people. With the ad- understood his passion and determina- dition of Tour de Pink Indoor, YSC’s tion, and cheered him on every mile of new indoor stationary bike event, rid- the way. ers of all levels joined the Tour de Pink The success of Tour de Pink lies with team in Kansas City and Northern the encouragement of the countless New Jersey in 2011. individuals who answer the call to Every year there are amazing stories of support young women facing breast why people chose to take the challenge cancer by cycling in the event, helping to both ride and raise funds to help riders train, and rising to the challenge YSC provide critical resources and of riding and/or fundraising. For more support. One incredible story from information on any of YSC’s Tour 2011 highlights a husband, Michael de Pink events, to sponsor a rider, or Mastrogiacomo, who rode in honor to get your company involved, visit

Photo by Jake Orness, Giant Bicycle, Inc. and memory of his wife, Emanuela. A ysctourdepink.org and our Tour de recent widower, Michael rode in Tour Pink pages on Facebook, or search @ de Pink East Coast to let people know YSCTdP on Twitter.

6 Left to right: Lisa J. Frank, Board Vice President and founding member of YSC; Elysa Walk, General Manager, Giant Bicycle, Inc.; Jill Frey, founding member of YSC.

Photo by Jake Orness, Giant Bicycle Inc.

7 YSC on the ground

EMPOWER! Courage Night

YSC’s Atlanta affili- From New York to California, YSC affiliates host special events atlanta ate received a grant in san diego designed to support, enrich and strengthen young women with 2011 from the State of Georgia’s Department breast cancer, during and after treatment. On the West Coast, YSC San Diego, the oldest of Community Health, funded by the state’s volunteer-led YSC affiliate, holds a very special event that cares for both body and mind, Breast Cancer License Plate Fund, to focus on while providing a night of fun and support. reducing health disparities among uninsured For the past five years, SK Sanctuary spa or underinsured young women in the Atlanta in La Jolla, California, has partnered with metro area. The program’s aim, to help young YSC San Diego, graciously donating their women take control of their physical health, space and services to YSC constituents dur- was called EMPOWER! The main message of ing a private event in the month of Octo- the campaign was “Know Your Body. Know ber. In 2011, more than 35 young survivors the Truth.” took advantage of the quiet, comforting In addition to producing educational materi- space of the spa, leaving the stresses of ev- als, the grant allowed the affiliate to engage eryday life at the door. After a few hours of local media with ads featured in print outlets, relaxation, pampering and shared laughs, on the radio, on bus stops and in subway sta- the young women of YSC were re-fortified tions and online. The ads encouraged people to face their journeys with cancer. to text a special code on their phone to receive As part of the evening, women attended important information about young women an educational session hosted by Dr. John Apostolides, who explained and their risk for breast cancer. Once a young more about DIEP flap, a type of breast reconstruction, which transfers skin and fat from the woman replied, breast health messages were lower abdomen to the chest to reconstruct a breast after mastectomy without the sacrifice of scheduled to arrive via text message every any of the abdominal muscles. month to their phone. This special event empowered young Brochures to announce the public service women with breast cancer in San Di- campaign were distributed in more than encouraged ego to embrace their bodies, feel good 400 locations including community centers, about themselves, learn more about healthcare facilities and local retailers. breast cancer and strengthen their Revitalized Through this campaign, more than 24 mil- sense of the YSC community. lion people saw or heard the message from Photo: YSC San Diego Affiliate, supported YSC Atlanta that young women can and do 2011 Courage Night get breast cancer. Property of YSC

8 A Picture is Worth a

Thousand Words Chris Gharst Photography Gharst Chris On a beautiful summer day in 2011, breast cancer survi- kansas city vors from around Kansas City gathered to take part in a powerful photo shoot that would reveal the shocking truth that young women can and do get breast cancer. Some of these women bravely shared their stories and allowed themselves to be part of this amazing project to help raise awareness in their communities. Amanda was a busy law school student; Megan was newly married; Jennifer was pregnant with her first child; and Dolores, Kristen, Kristin, Jeannie, Lisa, and Tameka were busy moms raising young children and balancing careers. The youngest of the group, Megan, was only 24 when she was told she had Stage II breast cancer. At the time of her diagnosis, Megan was newly married and had recently moved to Kansas City. Like so many young women, she had no family history of the disease. Megan chose to take an aggressive approach to battling her Triple-negative breast cancer with chemo, surgery, and radiation. While facing the challenges of her treatment regimen, Megan found herself working full time while her husband completed law school. Acknowledging the po- tential financial impact of treatment and the importance of retaining her insurance coverage, Megan faced the demands of maintaining her position as the deputy communications direc- tor for Congressman Dennis Moore, a former member of the U.S. House of Representatives representing the Kansas City, Kansas, metro area. Now, almost three years past her date of diagnosis, Megan is thriving in her career and vol- unteers for Young Survival Coalition, most recently putting her professional skills to work as the marketing chair of the YSC Kansas City affiliate. In addition to getting her career back on track, she and her husband Joe are expecting their first child in May 2012—an event they were not sure would be possible after her diagnoses and subsequent treatment. Unfortunately Megan’s story is not as rare as we would hope. Every year, young women are diagnosed with breast cancer—causing them to wonder how they will continue to keep up at work, raise their children and be there for their families. Together these nine women have more than 38 years of survivorship spanning from one year to over 12. Just as they did in treatment, these women underwent different scenarios with their diagnoses, but together they joined each other in support and friendship, creating a bond that helped them feel stronger and hopeful and which lasts through today—as seen in these commanding images.

Time and artistic direction were generously donated by photographer Chris Gharst and his Amanda Tamayo, amazing team. diagnosed age 29 9 Thanks to Third Annual Our Sponsors

Congressional For the third year in a row, the Congressional Women’s Softball Lead Sponsor Women’s team took to the field in a bipartisan show of support for young McDonald’s Softball Game Hitting women with breast cancer. The team faced off against last year’s champions, the female members of the Washington Hill Press Hall of Fame Corps. Pfizer Toyota Both teams brought together powerhouse players and dedicated the The Ugly Mug coaches who were by their side every step of the way. The Congres-

sional Women’s team was led by captains Rep. Debbie Wasserman MVP Schultz (D-FL), Rep. Jo Ann Emerson (R-MO), Sen. Kirsten Gil- Congressional Federal Field librand (D-NY), and Sen. Kelly Ayotte (R-NH). The women of the Credit Union Washington Hill Press Corps were once again led by Dana Bash Gray-Loeffler of CNN, Trish Turner of FOX, and this year they were delighted Washing ton Press Corps to add Carrie Budoff Brown from Politico to round out their team All Star Dana Bash, CNN * captains. 901 Restaurant Congressional Women Christina Capatides, ABC Pepsico Jennifer Bendery, Huffington P Calling the game and keeping the crowd informed and excited were Sen. Kelly Ayotte* Jessica Brady, Roll Call ost Rep. Shelley Moore Capito NBC’s Andrea Mitchell and Sen. Amy Klobuchar (D-MN). Carrie Budoff Brown, P Rep. Kathy Castor olitico* In addition we would Leigh Ann Caldwell, C-SPAN Rep. Susan Davis The ceremonial first pitches were thrown out by Steve Hilton, Julie Davis, Bloomberg like to thank the amazing Rep. Donna Edwards corporate vice president of government relations representing the Erika Dimmler, CNN volunteers, the YSC Rep. Jo Ann Emerson* Elise Foley, Huffington P game lead sponsor McDonald’s, along with YSC CEO Jennifer Mer- Sen. Kirsten Gillibrand* ost Washington, D.C. Affiliate, Kasie Hunt, P schdorf and U.S. Supreme Court Justice Sonia Sotomayor, a true Sen. Kay Hagan olitico Jill Jackson, CB the YSC Board of Directors, Rep. Colleen Hanabusa S Yankees fan who practiced for her opening pitch in Yankee Stadium! Brianna K and the organizing Rep. Kathy Hochul eilar, CNN Stephanie K Rep. Grace Napolitano otuby, CNN Among the evening’s crowd were members of the media, staffers committee for their tireless Jackie Kucinich, USA T Rep. Laura Richardson oday energy and commitment to Lisa Lerer, Bloomberg from the hill, friends, family, members of YSC’s Board of Directors Rep. Ileana Ros-Lehtinen Abby Livingston, CNN and D.C. affiliate, and some notable VIPs, including Republican YSC. Rep. Linda Sanchez Gregory Simmons, ABC Rep. Jean Schmidt House Speaker John Boehner and Minority Leader Nancy Pelosi. Lynn Sweet, Chicago Sun- Rep. Debbie Wasserman Schultz* Times Shawna Thomas, NBC Rep. Betty Sutton It was nonstop action from the first inning when Rep. Laura Rich- Trish Turner, Fox* Amy Walter, ABC ardson (D-CA) kicked off the night with a three-run home run. The *Captains press team played well and came back slowly to tie up the game in *Captains Coaches: Tori Barnes, Jim Kiley, the top of the 6th inning, 4-4. With two outs and two runners on, erlmutter, Rep. Joe team captain and breast cancer survivor Rep. Debbie Wasserman Rep. Ed P Coach: Dave Espo, Associated Baca, Rep. Joe Donnelly, Rep. Schultz made the game winning hit, bringing Rep. Linda Sanchez Left to right: Rep. Debbie Wasserman evin Brady Press Dan Webster & Rep. K Base Coaches: John Wallace, Fox Schultz (D-FL); Rep. Donna Edwards (D-CA) across home plate for the winning run! This was the first- (D-MD); Rep. Jean Schmidt (R-OH); News, and Carl Hulse, New York ever win for the Congressional Women’s team, who dedicated their Rep. Susan Davis (D-CA); Rep. Kathy Times victory to colleague Gabrielle Giffords (D-AZ). Castor (D-FL); Rep. Linda Sanchez (D-CA); Sen. Kristen Gillibrand (D-NY); 10 and Rep. Shelley Moore Capito (R-WV). Photo by Jeff Malet Photography Thanks to Our Sponsors

11 Circle of support

They met as strangers, but left as lifelong friends. It’s a sentiment that is heard time and again about young women who attend C4YW, the Annual Conference for Young Women with Breast Cancer. Though in itself the story is not unique, sometimes it is extraordinary. That was the case in Febru- Power ary 2011, when four women, from different parts of the country, who had never met in person, came together and through their shared experiences, formed a bond of friendship that would take them over 200 miles together. In 2010, Karen Rubin, while going through chemo, reached out for a chemo buddy via the YSC of Four online community boards, and found Mary Craige. Providing support to each other via phone and email, their friendship grew. The two women decided to meet in person and planned to attend C4YW in Orlando, Florida. During a conference session, Mary met Niki Calastas and Mary Schwartz and just knew that all four women would get along. The introduction to Karen was made and history began. Four young women, all with similar journeys, who had felt alone and isolated when they first got their diagnoses knew now that they would never again feel that way. They knew that they had become more than acquaintances and that their friendship was special if not extraordinary. Committed to facing cancer and their futures together, these four women decided that they would not allow another full year to pass without seeing each other again. Niki, who lives on the West Coast, suggested they ride in Tour de Pink, YSC’s three-day cycling fundraiser, held on the West Coast in October 2011. The others agreed. No longer strangers, but more like sisters, these four women set out to train to ride as a team, to fundraise and cover more than 200 miles in three days, just inside of a year out of treatment for breast cancer. These miraculous women were truly hitting the road to take their bodies back from cancer. Though they trained independently, living on both C4YW 2011, Tour de Pink West Coast, left coasts, they kept in touch by email and phone, encouraging each other to keep training, keep rid- left to right: Niki to right: Mary Craige, Niki ing, and to know that it would all be worth it when they saw each other in California and com- Calastas, Karen Calastas, Mary Schwartz, pleted the ride of a lifetime together. Rubin, Mary Karen Rubin. Property of YSC Craige, Mary Schwartz Over the three-day journey through some of the most scenic areas in California, they rode more Property of YSC than 200 miles together and celebrated the strength they had as young women, breast cancer survi- 12 vors and now best friends. board highlight For one night we are able to In Living Pink leave behind the obstacles that cancer has put in our way. We are able to leave the challenges of our lives at home, take our favorite fancy outfits out of the closet and enjoy a night of friendship, laughter and fun. We come together to celebrate the lives of all young women affected by breast Dinamarie Alcuri cancer. We come together to celebrate life, and the impact and power of the connec- inamarie Alcuri is a very special member of the YSC family. Involved since tions and friendships found at YSC. 2001, when she joined a group of women sitting in the living room of Lisa Whether it was playing roulette Marie Muccilo, founding member of the YSC Northern New Jersey affili- in New York City or dancing the ate, stuffing envelopes to be mailed to Ob/Gyns throughout the tri-state night away in Seattle, In Living area. Their efforts were one of the first tactics by the women of YSC to raise Pinks bring together the women awareness that young women were in fact at risk for and could be diagnosed supported by YSC, their friends, with breast cancer. family and members of the In 2006 and again in 2007, Dinamarie was awarded The President’s Volunteer community that understand the Service Award, given by The President's Council on Service and Civic Participa- importance of the mission and tion to recognize the valuable contributions volunteers make in their communi- services delivered by YSC. ties. She’s also been honored by Lifetime Television as a Breast Cancer Hero. At the national In Living Pink Throughout her life, Dinamarie has given her time and passion to creating an Gala in New York City, YSC unmistakable difference in the lives of young women facing breast cancer. Left to right: Michael Wirth, Treasurer, Board of Directors, honored longtime supporters YSC; Ana Cluxton, President, Board of Directors, YSC; Jennifer Merschdorf, Chief Executive Officer, YSC; Lisa This past year, Dinamarie was presented with the inaugural Volunteer Award Sanofi-Aventis and Steven Sil- J. Frank, Vice President, Board of Directors, YSC; Karen from YSC’s Northern New Jersey affiliate, which honors a member whose dedica- verstein, CEO of Spencer Gifts, Borkowsky Kennedy, Member, Board of Directors, YSC. tion and commitment has made a long-term impact on both YSC and the local with the YSC Circle of Excel- Photo by Emile Wamsteker Photography community. lence award for their dedication and commitment to YSC. This year the first Kristen Martinez Legacy Award was In addition to her work with young women in New Jersey, Dinamarie joined the presented posthumously to its namesake and accepted by her brother Raymond Scott YSC Board of Directors in 2007 holding various positions, most recently serving Martinez. In addition to the honorees of the evening, the organization was joined by as Secretary, and has helped raise more than $400,000 to honor the memory of Honorary Chair and Master of Ceremonies Chris Wragge, formerly of the CBS Early her friend, Lisa Marie, and to help all young women affected by breast cancer. Show and now CBS evening news anchor in New York City, fashion designer and Hon- Dinamarie has been a constant and orary Chair Betsey Johnson, and Karen Duffy, author, advocate and former MTV host. strong voice at YSC, from its grassroots New York City was not the only place that got to kick up its heels. Festivities were beginnings, to its growth to a national enjoyed in Seattle, Washington, with special guest YSC CEO Jennifer Mershcdorf; in organization with nearly 30 affiliates Kansas City with a fashion show; in Northern New Jersey where longtime supporter across the United States. She serves as the ADP was honored; Philadelphia, Pennsylvania; Houston, Texas, where founding voice of caregiver, friend, advocate, and member Roberta Levy-Schwartz was honored; Detroit, Michigan; Champaign-Urbana, dedicated volunteer. Illinois; and Central Ohio. Thank you to everyone who attended and supported the In Living Pink events around Board member Dinamarie Alcuri (left) receiving award the country and made these events so successful and special. from Joy Simha, board member and YSC founding member. Photo by Edward Bonacorsi Photography 13 Thank You!

$100,000 + Center for Reproductive Medicine of Weill The Methodist Hospital System Cumberland Valley Girls Soccer Boosters Cornell Medical College Microsoft Giving Campaign Charles V. Davis CCA Industries, Inc. Center for Restorative Breast Surgery, LLC Miss Jessie's Alane D. Davis Genentech, a member of the Roche Group Stephen J. Cloobeck Mission Skincare Joseph Dayan, M.D. The Hershey Company Dana-Farber Cancer Institute Monarch Skin Rejuvenation Center Debbyoga, LLC National Philanthropic Trust Fidelity Charitable Gift Fund James P. Nekos Diamond Communications, LLC Oakley, Inc. Genomic Health, Inc. Northeastern State University Foundation, Inc. Ann Dickinson $50,000–$99,999 Innovative Architects Northland Plastic Surgery Dickstein Shapiro, LLP Kappa Epsilon Fraternity Omega Chapter Northside Hospital Diane DiYanni Amgen Lance Armstrong Foundation NYU Hospitals Center E.B. Cohen & Associates Assurance Agency, Avon Foundation for Women Laurence W. Levine Foundation, Inc. The Ohio State University Medical Center LLC sanofi-aventis U.S., Inc. Law Offices of Steven A. Varano, Esq. Donald Pearson East Cooper Hospital Spencer Gifts, LLC Lucy Activewear, Inc. Stephanie & Steve Pendray John Easton Urban Outfitters YSC gratefully McDonald’s Perricone, M.D. Marc Edwards $25,000–$49,999 Andrew S. McGhie Pfizer, Inc Empire PAC McLamore Family Foundation, Inc. John A. Plouse, Jr. Enbridge Energy, Limited Partnership acknowledges Amoena USA Corporation Menorah Medical Center Prom Management Group, Inc. Lori Fisher Annie Sez Karen Orczyk & Christine Benjamin Quinn Plastic Surgery Center, PC Bruce Forstall the generous Bristol-Myers Squibb Company MetLife Foundation Satya Foundation, Inc. Lisa J. Frank Eisai, Inc. Montclair Breast Center, PC John J. Sharkey, Jr. Janice Freeman contributions Georgia Cancer Coalition Myriad Genetics, Inc. The Stefano La Sala Foundation Jill and Jonathan Frey PepsiCo North Fulton Hospital University of Kansas Physicians, Department Friends of Mel Foundation, Inc. of our funders Southstar Energy Services, LLC Paramus Policemen's Benevolent Association of Plastic Surgery Beth A. Ghiradella Susan G. Komen for the Cure – North Jersey Saint Vincent's Academy The Wellness Community - National Laurie R. Goldstein, M.D. between Affiliate sanofi-aventis U.S. Matching Gifts Program Justin Gray July 1, 2010 Unite for HER Seattle Seahawks $1,000–$2,499 Green County Roller Girls, LLC $10,000–$24,999 Vicki Speakman Memorial Fund, Inc. Anonymous (6) Leslie M. Gulkis 1154 Lill Studio Andreas Halvorsen and Abraxis BioScience $2,500–$4,999 The Aaron Straus & Lillie Straus Foundation, Eldon M. Harding Susan G. Komen for the Cure – Columbus Anonymous (2) Inc. Jerri Harris June 30, 2011. Affiliate Belkin Burden Wenig & Goldman, LLP Aasha Surgical Dr. Jack Heil & Ms. Gayle Capozzalo Edward C. Smith Charitable Annuity Trust Andrew M. Berdon Abercrombie & Fitch Management Co. Hermione Foundation Firstgiving, Inc. Brooks Sports, Inc. Mike Allgaier Judy B. Hiltz Global Imports BMW Cynthia L. Carbone American Electric Power Hines Interestes Limited Partnership It's The Journey, Inc. Elizabeth G. Danes The Aspen Brands Company Huntingdon Valley Bank Kids II Foundation, Inc. Diagnostic Imaging Centers, P.A. Asset Management Specialists Stacy Morgenstern Igel Lee Jeans Dominique Daniela Associated Plastic Surgeons Amie C. Jew, M.D. Roberta & Lee Schwartz Edge Health Assurant Rachel Kaplan Liberty Mutual Group Inc. Richard Gaebler Awesome Alpharetta Kappa Epsilon Lighthouse Beauty Marketing Goldwell Haircare & Styling, KPSS, Inc. Kenneth C. Barrows Wendy Keating Lilly USA, LLC Greater Kansas City Community Foundation Denise Basham Maureen Kelly Lindsay Phillips, Inc. Courtney Hagen Bennett Thrasher Foundation Charles L. Kilmore Liv/giant Denise D. Hazen Michele Benson Michael Kolodziejski New York State Department of Health Hoboken Gold &Diamond Outlet Corp. Lisa Bilek La Jolla Cove Bridge Club, Inc. Original Bread, Inc. Holder Construction Foundation Breast Cancer Emergency Fund Lakewalk Brewery & Cafe Co. Pure Romance Parties, Inc. Ideeli, Inc. Christopher Bruce The Lash Group RX Medical Dynamics, LLC Indians, Inc. Cable Television Public Affairs Assoc. Heidi L. Levine Susan G. Komen for the Cure - Houston Affiliate Intouch Solutions Cancer Treatment Centers of America Christopher Limpus Susan G. Komen for the Cure - Philadelphia Jewish Communal Fund Patricia A. Carey Maureen B. Lobmeyer Affiliate Johnson & Johnson Services, Inc. Carmeuse Lime & Stone Deanna Lucianin UPHA Foundation, Inc. Richard Kacere Paula C. Carter lululemon usa, inc. Angie Makkyla $5,000–$9,999 Paul M. Keller Central Girls Basketball Booster Club Karen & Robert Kennedy Charles Penzone Incorporated Stephen C. Malamud, M.D. Anonymous (4) Christopher D. Ladd Evy Cirker Alan Margolin Engineers AKC Fund, Inc. Lawrence Memorial Hospital Anna & Brian Cluxton Ronald E. McCoy Babeland, LLC Joshua L. Levine, M.D., PC Congressional Federal Credit Union James J. McLoughlin BET Networks Robert Matloff Convention & Visitors Bureau of Dunwoody Mercer County Sports & Entertainment Brighton Retail Angela R. McCourt Cordell & Cordell, PC Commission, Inc. 14 Cameo College of Essential Beauty Corinne D. Menn, M.D. Creative Designs - Creative Care, LLC Mike Messbarger Midland Park Self Storage, LLC Donations in Honor Michael Miller Robin Myers Diana Abehssera Ms. Kate Fitzsimons Dr. Kuo Anna Warren Schumacher Bruce H. Nagel Desiree Abernethy Lisa J. Frank Ms. Dana McCaw Lane Ms. Karen Sellars National Comprehensive Cancer Network Lynnette Agostini Jill Frey Amy Lin Sara Shainholtz Navigator Management Partners, LLC Ms. Dinamarie Alcuri Dr. Robert Friedman Jessica Livingston Betsy Shepherd Network For Good all women affected by breast cancer Elizabeth Furlong Nell MacKenzie Maria Siniscalshi Shawna C. Ogletree Andrea Applegate Dr. Lloyd Gayle Betsy Mandile Stephanie Smith Tosha O'Grady Baby Arakawa Tom Gillman's Three Aunts & Tricia Amanda Marchica Mrs. Christina Smith The Ohio State University Medical Center Arias Carol & Gene Glazer's 50th Anniversary Kelly Marinelli Ms. Tiffany Lynn Smith Lynn O. Orczyk Patti Balwanz & in Honor of the Nordies at Jenna Glazer The Massaro Family Stephanie Smith & Patrick Sullivan Overland Park Regional Medical Center Noon authors Grandpa Louie Ms. Dina Jacobs McCarthy Janet Smith's Mother & Daughter Palmetto Ford Truck Sales, Inc. Linda Barila Courtney Hagen Angela R. McCourt Gabrielle Strand Park Avenue Radiologists, PC Aimee Bariteau Dr. Halperin Kathryn McGough Joyce Suss Katie Bergfeld Christine Hartline Jennifer Merschdorf Dr. Swistel Partners at 723 8th Street, SE, LLC Joanne Brauns Ellen Hawa Dulcinea L. Merton Kristine Tanno Mike Pate Claudia Brown Ms. Margaret Heil Sheila Monterastelli Nicole Taylor Patterson Companies, Inc. Aril Bryant Ms. Alyson Heil Christine Cory Odell Julia Tiernan Piedmont Hospital Pamela Campos Ms. Lindsey Heil Andrea Oliveri's Birthday Lisa Town Terri M. Powell Mr. & Mrs. Douglas Capozzalo Ms. Carolyn Heil Lisa Peltier Michelle Klein Tubbs The Premselaar Foundation Dr. Jack Heil & Ms. Gayle Capozzalo Kim Heimberger Stephanie Pendray Marilyn Vacarella RA, Inc ChiPucksCancer Dara Holzman Laura Pennock Margo Wald Rat City Roller Girls, LLC Anna Cluxton The Friendship of S. Igel & K. Martinez Jamie Pleva Carol Walderschmidt Melissa A. Richardson Jan Valencia, Anne Self, & Judy Coffelt Jill Ihrke Jamie Pollack Christine Walker Edward Rodriguez Mr. & Mrs. Brian Condon Carla Impalli Lauren Pragoff Katie Weiss Rolling Out Entertainment Jennifer Cook Kim Jenkins Stacie Procaccini's 40th Birthday Kristin Smith Westbrook Joseph Rondinella Gandpa Louie & Gail Crasno Alyson & Eamonn Johnston Jill Pugh Mrs. Janet Whitten Ros-Lehtinen For Congress Carol Curcio-Mertz Dawn Jones Matt Purdue Jean Won Peter Finder & Cynthia Rubin Kathleen Danielson Lauren Kaiser's 13th Birthday Ms. Cindy Quinn Kristen Worden Paul J. Sadej, Jr. Renee DiPilla Geri Kane Alison Rein Dr. Kathleen Wright Saint Barnabas Medical Center Darlene DiSabatino Wendy Keating Kimberly Reith YSC Board, Staff &Volunteers Ms. Liz Doherty Maureen Kelly Michelle Rosch Gina Zdanowicz & Susan Zdanowicz Jennifer Sale Ana Duran Ms. Sally Kesh Deb Ross Mandy Zimmerli Santa Fe Distributing, Inc. Ms. Angela Evans Ronnie Kessenich Cynthia Rubin Cookie Zingarelli Savannah Fun Tours, LLC Ms. Virginia Falces Andrea Klein Mrs. Jennifer Ruegger Shannon Zureich Schaffer, Schonholz & Drossman, LLP Mr. & Mrs. Ray Fitzsimons Heather Kline Dr. Joseph Ruggiero Senior Whole Health Management, Inc. Dr. & Mrs. Brian Fitzsimons Barbara & Norma Ms. Jeannine Salamone Shawnee Mission Medical Center Ms. Wendy Fitzsimons Karen Kochevar Debbie Wasserman Schultz Kevin Shook Sigma Extruding Corp. Alan Buddy Simmons Fay Sklar Joann C. Slosberg Donations in memory St. Luke's Cancer Institute - Center for Breast Care Ms. Linda Allard Jody Garrison Kristen Martinez Maryann Smuda St. Thomas Aquinas High School JoAnn Alter Dr. Cynthia Gerstner Mr. John Massaro Frances Stein Carolyn & Charlie Strancke Kimberly Awao Helen Glueck Mr. Milton (Cookie) Matza Yaccino Steiner Strategic Staffing Solutions, Inc. Kathy Barnes Sigie Glueck Terry McLaughlin Janet Stevens Team Emerson Amy Bell Mrs. Amy Goueta Adrienne A. Miller Betsy Sunstrom Jeff Tebben Mrs. Laura Bogdanski Grandma Anne Lisa Marie Muccilo Eleanor Sweigart Title Boxing, LLC Elizabeth Borlik Grandpa Marty Dorothy Pannullo Joseph Tirone, Jr. Jennifer Tom Brandi Borr Cathleen Hart Mrs. Pat Krista Toba's family Tulsa Oilers Hockey, Inc Margaret Brammer Elizabeth C. High Rose Patche Alex Uba H. Carl Butler Joyce Hochhauser Tracy Pleva Hill Elaine Van Dercreek The Vanity Room Salon & Spa Matthew Byers Gene Holland Nina Ramsey Darlene Mable Brenizer Welsh Wal-Mart Foundation Jody Carrico Diane Kammerman Laura Rhodes Goldstein Mrs. Erika Wheeler Carl Stephen Warren, M.D. Marsha Nader Cotton Rochelle Kianovsky Maggie Goggin Rodoni Loretta Wilson Kristin Smith Westbrook Debra Czawursky Alyce Knapp Randi Rosenberg Nalini Yadla Michael I. Wirth Katherine Chin Dang Julia Kuznetsov Nancy E. Ruder Mrs. Pamela Zin Brian Withers Elizabeth Felling Susan Lanfray Vanessa Santos Carlos Woodward Lisa Fiatte Janice Losen Gertrude Shure Xcenda Elizabeth Fitch Shirley Landon Lupton James Smith 15 YSC LEADERSHIP CIRCLE Partner highlights

SC would like to thank our premier partners for n November 2010 YSC introduced the Leadership Circle, YSC Leadership their generosity which helps us to create a strong to recognize individuals committed to ensuring the long- Circle Members community of support and provide hope, education term success of YSC. and encouragement during one of the most

With an annual pledge of $1,200 or more, donors who Ychallenging times of a young woman’s life. I YSC Recognizes these distinguished join YSC’s Leadership Circle play an essential role in ensuring individuals who have chosen to be- YSC can: come leaders in the circle of support • Provide educational and their commitment to upholding resources, including our mission that no young woman ™ the YSC necessity robust online and should face breast cancer alone. multimedia content so that young Anonymous women facing breast Aimée Bariteau & Eric Morgan cancer, along with Anna & Brian Cluxton their supporters Lisa J. Frank and caregivers, can connect to the best Courtney Hagen and most current Dr. Jack Heil & Ms. Gayle Capozzalo information available. Maureen Kelly - In honor of herself • Develop more comprehensive programming for young Ken Lin Fund women facing metastatic (advanced) breast cancer that Karen & Robert Kennedy reduces the sense of isolation and hopelessness in this ™ YSC edition. Look good. Do good. Oakley Necessity men

typically underserved population. Debi Memmolo & Greg Taxin The YSC is dedicated to the critical issues affecting youngakley wo will with breast cancer. Purchase YSC edition eyewear and O • Reach more newly diagnosed young women and provide Jennifer Merschdorf & Jeffrey Gannon support $20 to the cause. them with the educational tools and support they so // oakleywomen.com Karen Orczyk & Christine Benjamin 800.320.9430 // Pro Triathlete Survival Coalition, Inc., ©2011 Oakley, Inc. Jenny® IsFletcher A Registered Trademark Of Young Young Survival Coalition tries. desperately need to navigate their breast cancer journey. In The U.S. And Other Foreign Coun Stephanie & Steve Pendray In appreciation of their commitment to YSC, Leadership Circle Michele Przypyszny - In honor of members receive: Lisa Frank - In memory of Randi • VIP status at all YSC events. Rosenberg • Special acknowledgement on YSC’s website, at national Roberta & Lee Schwartz events, and in all printed materials. • Recognition as a Leadership Circle member on YSC’s donor The Simha-Chari Family wall at its New York City headquarters. Carolyn & Charlie Strancke - In honor • Recognition with a Leadership Circle YSC member pin to of Anna Cluxton wear at events. Kristin & Jeffrey Westbrook • Exclusive organizational updates from YSC’s Chief Executive Officer Jennifer Merschdorf. 16 Statement of Partner highlights Where our program dollars go Financial Position as of December 31, 2010

YSC spent more than $3 million ASSETS programmatically in 2010 Cash & Cash Equivalents addressing the critical needs Restricted $945,700 of young women diagnosed Unrestricted $814,233 with breast cancer—providing Unconditional Promises to Give $73,191 education, support and resources Other Assets $148,365 to ensure that no young woman Total Assets $1,981,489 would face her journey alone. LIABILITIES & NET ASSETS Current Liabilities $572,818 Non-Current Liabilities 451,189 Net Assets ¢ Unrestricted $774,299 Temporarily Restricted $383,183 Permanently Restricted $200,000 Total Liabilities and Net Assets $1,981,489 ¢ of every program dollar provides direct services Statement of activities 20 52 REVENUE is used to develop to young women with Contributions $2,299,267

new programs and breast cancer Interest Income $61 services for young Donated Goods & Services $97,493 women Event Revenue $2,109,861 Other Revenue $23,009 Total Revenues $4,529,691

is spent expanding EXPENSES outreach and Where did the Program Services $3,054,890

building awareness revenue come from? Supporting Services Management & General $577,290 that young women Corporate $1,910,240 ¢ can and do get Fundraising $902,757 Individuals $1,423,485 Total Expenses $4,534,937 breast cancer Grants $1,075,404

In Kind $97,493 28 This condensed financial information is Increase (decrease) in Net Asset $(5,246) Earned Income $23,069 based upon audited financials. A full copy Net Assets, Beginning of Year $1,362,728 of the 2010 audited financials is available Grand Total $4,529,691 by contacting YSC at 61, Broadway, Suite Net Assets, End of Year $1,357,482 2235, New York, NY 10006 17 youngsurvival.org • 877.YSC.1011 18