The Clatterbridge Cancer Centre Magazine Spring 2016 FREE please take me home

Transforming Cancer Care £15 million new cancer hospital appeal launched In this issue... Clatterbridge in the Community Chemotherapy at home extended to patients Life after cancer in the fast lane Patient Pete Williams shares his story Pioneering Breast Cancer Trials Vital research using the ‘window of opportunity’ Contents News 3 £1.6 million investment in new radiotherapy technology Clatterbridge Board welcomes new executive member New PET-CT service 7 Telephone service helping reduce new patients’ anxiety Our telephone numbers are changing in 2016 10 Cancer treatment in the comfort of your own home Welcome 11 The Hair Fairy - ‘Look Good Nights’ Chief Executive, Andrew Cannell Hello my name is...

12/13 Worrying attitudes to cancer Firstly, I would like to wish everyone a Happy New Year. 14 Staff Achievement Award winners We ended 2015 with a major achievement – submitting an application The Care Certificate - Deborah Prout for full planning permission for our new centre in Liverpool. 15 Emma Holmes moves from the office to the frontline With this in mind, 2016 is going to be an incredibly exciting year for It’s a win win for Callie! the Trust as we hope to get full planning permission in the spring and building work will start at the end of the summer. Following years of Features planning this will be a fantastic milestone and it will mark the start of an incredible journey. 4/5 Patient Pete Williams’ story 16/17 Pioneering Breast Cancer Trials To help us achieve this, our Charity will be launching a £15 million New 19 Consultant profile – Professor Pieter Postmus Cancer Hospital Appeal later in the year. We already have a lot of people showing their support but we need more – take a look on pages 8-9. 20 Liverpool mum is inspiring fellow cancer patients with wellbeing initiative We’ve had some big service developments over the last few months: we’ve extended our Treatment at Home service, we now have our own Charity News PET-CT, we’ve invested in new 8/9 £15 million New Cancer Hospital Appeal equipment and are working on 18 Bronze for Clatterbridge Physicists at the some pioneering breast cancer Bangor Rally! trials. You can read about all of Get in these inside this issue. Cartoonist Bill Tidy’s Afternoon Tea touch John Berry jumps in the saddle We have also carried out a 22 Events calendar survey into people’s attitudes to We would love to hear cancer. The results, shown on The Clatterbridge Wig Walk 2016 pages 12-13, were a real eye about your experiences at Grand Atlantic Ball success opener and showed that work the Centre, so please get still needs to be done to raise in touch. Transforming Cancer Care awareness of the signs and symptoms of different cancers. 6 Positive response to new hospital designs Emer Scott Associate Director of Foundation Trust News Communications 21 Meet your Governors emer.scott@ Become a Governor Chief Executive Andrew Cannell clatterbridgecc.nhs.uk Dates for your diary 0151 482 7920 Time for You @cccnhs 23 Recipe and puzzle

2 Spring 2016 Headline News Our picks from the latest topics...

£1.6 million investment in new radiotherapy technology ››› We have added a new world-class piece of equipment to our portfolio of treatment options.

With help from charitable donations, the £1.6 million piece of kit called the Varian Edge is the second machine of its kind to be purchased by the Centre. Working in sync with the original Varian Edge, specialists are now delivering more accurate radiotherapy treatment to patients with complex, hard to reach tumours.

Kieran Woods, head of radiotherapy, said: “The advanced technology will be primarily used to treat lung cancer patients with a specific technique called stereotactic ablative body radiotherapy (SABR). Whilst the technology itself delivers a faster treatment experience for patients, it will also help to streamline the treatment process by working in conjunction with the Edge we already have.”

We are the only UK facility to be recognised as a Varian Educational Reference Centre. As a leading facility for radiotherapy we host workshops and conferences for leading clinicians from across the globe.

New PET-CT service ››› The Centre introduced a new Clatterbridge Board welcomes permanent PET-CT service in new executive member November. Positron emission tomography– computed tomography (PET-CT) ››› Barney Schofield, Director of Reshaping our executive team is a diagnostic imaging technique Transformation & Innovation joined with this new role emphasises the that combines a PET scan with a CT us in November. importance transformation and scan to produce detailed pictures innovation will play in our continued that provide even better information Barney previously worked as the growth and success and our about how tissue is working. PET- Programme Director and Associate ambitions in the coming years. CT has revolutionised medical Director of Strategy at University diagnosis in many fields including Hospitals of North Midlands NHS Welcome Barney! cancer staging and radiotherapy Trust. planning. Barney is an Executive member of A mobile PET-CT scanning unit the Trust Board and will lead on the previously operated at the Centre service redesign and organisational once a week, but following a £2m transformation required to prepare for investment in a new scanner and our new cancer hospital in Liverpool, estate improvements the Imaging as well as supporting our innovative department is now running our approach to cancer care and treatment. own permanent service. Working closely with colleagues at the Royal The role includes identifying new Liverpool hospital, who also have opportunities to ensure we continue a PET-CT scanner in operation, we delivering true clinical excellence and are now able to offer patients across the best quality care while remaining the region a choice of locations at our long-term clinical and financial their earliest convenience to meet sustainability. the national standard of a five-day appointment turnaround.

Spring 2016 3 FEATURE Life after cancer in the fast lane -year-old Pete Williams from “I was third quickest in Europe in my Pete added: “I have been building a 74 Warrington has been in younger days back in 1968 on my new machine for some time now. It is the sport of motorcycle sprint and home-built double-engined Triumph powered by an aircraft engine! This drag racing for over 50 years. That drag-bike. It covered the standing- one requires a fire-retardent suit. I is however, with a 12-month break start 1/4mile in 10.21 seconds setting wouldn't like to make any predictions in 2010 when he was diagnosed a course record which I held for about its speed but I will be with cancer at the age of 69. After four years. My top speed then was disappointed if I don’t get somewhere chemotherapy and radiotherapy 140.8mph. As it had two engines, and towards 300mph. I will keep going, as treatment, Pete took six months to was also temperamental, I called that long as I remain upright!” recover and get well enough to race bike “Two Faced” and the name has again, but he was determined to get stuck on all my machines. back in the saddle and return to his life and passion for speed. “My recent drag-racing and land speed racing has been on my Suzuki After five years of six-monthly check- Hayabusa which I bought second ups, he is now in remission. And hand back in 2006 and spent two in August 2014, just one month years radically modifying it for drag- before his 73rd birthday, he ran a racing. I clocked up a best speed speed of 203.1mph. Just to put of 196.6mph in 2012 but I needed a that in perspective, it is as fast as a bit more power to reach my target of Formula1 car and 20mph faster than 200mph, so I fitted a nitrous oxide kit. a jumbo-jet’s take-off speed! I battled with adverse conditions – rain, head winds and cross winds at Pete told us: “I have gone far faster in every attempt over the next two years my older years than I ever did in my to reach my target. But on the right younger years, and this puts paid to day and using the nitrous – I did it! the ‘knockers’ I’ve had over the years Not only did I do it, I exceeded it – who said I’m ‘over the hill’. At least 203.1mph! I’ve been to the ‘top of the hill’! “With that little extra boost, I got “I suffered a heart attack in 1998, but there. And I can’t help feel it was got fit again and had my race licence the little extra boost from the team granted to carry on. So getting the at Clatterbridge that got me through cancer diagnosis was a blow, but I to remission. With all the available knew if I kept my mind strong I could medical treatment in the world, come through this the other end too. sometimes it’s a positive mental I was referred to Dr Haylock at The attitude and that little extra boost – Clatterbridge Cancer Centre and the whatever that might be – that will get treatment and care I received could you through. And in my case, better not have been bettered anywhere than I had ever been before!” else. I am indebted to him and his team of nurses and radiographers Dr Haylock said: “Pete’s major for the excellent way in which I was passion is his sprint and drag looked after... and saved. When I was racing; in many ways his simple diagnosed with cancer, all I wanted determination has got him through. was to get rid of it out of my body so Ironically, he was quite saddle sore I could get back to riding my bike. after his treatment but he never I had to focus on my recovery so I complained and was a model patient could get where I wanted to be. determined to recover. I have great admiration for the way he has focused “Everyone at Clatterbridge played all his efforts on getting himself well a part in getting me to this point in and getting back to what he enjoys my life where I have achieved my most – speed!” personal best.

4 Spring 2016 FEATURE

“Everyone at Clatterbridge played a part in getting me to this point in my life where I have achieved my personal best.”

1968

Pete is hoping to reach close to 300mph in his new machine

Living with and beyond cancer There are two million people living with or beyond cancer in the UK. This figure is set to rise to four million by 2030. It's a cause for celebration that more people than ever are surviving after a diagnosis but we know the impact of cancer does not suddenly stop when treatment is over. The Living With and Beyond Cancer in and programme launched last year is a two-year project funded by Macmillan Cancer Support and hosted by The Clatterbridge Cancer Centre. Visit the website www.livinglongerlivingbetter.org.uk for more details.

Pete Williams (centre) with friends Chris Cullen (L) and Ben Cullen (R)

Spring 2016 5 TRANSFORMING CANCER CARE Positive response to new hospital designs

Detailed building plans for our new cancer hospital have been submitted to Liverpool City Council for full planning permission, after receiving an enthusiastic thumbs-up from people who took part in a four-week consultation on the final architectural designs.

he consultation, which ran from 19th October Tto 13th November, sought people’s views on anything that might be relevant to the application for full planning permission, including the building design and environmental impact.

A mobile exhibition visited Paradise Street in Liverpool, Aintree Shopping Park, Asda , Royal Liverpool Hospital and The Clatterbridge Cancer Centre’s sites in Wirral and Aintree to give people the chance to comment. They could also see the designs and give their views on the Transforming Cancer Care website (www.transformingcancercaremc.nhs.uk).

The response was overwhelmingly enthusiastic with Cleaning, portering & almost all the 382 people we met at the roadshows inpatient ward catering saying they were impressed by the design and the building plans. People also made helpful suggestions company called ISS has been chosen and comments – for example, about the importance of A following a competitive tender process to art in creating a warm and welcoming feel and the value provide ‘hotel services’ in the new cancer hospital. of the social space so inpatients don’t feel lonely in single rooms. The contract will cover catering for inpatients, cleaning and porters. It does not include services at The new hospital in Liverpool will be in addition Wirral, our Aintree radiotherapy unit, or catering in to services at our existing site in Wirral and our public areas of the new hospital. radiotherapy unit on the Aintree hospital site. The decision follows a formal open tender process and 18 months of hard work by staff from across The Clatterbridge Cancer Centre and patient representatives.

6 Spring 2016 NEWS Let us introduce ourselves Telephone service helping reduce new patients’ anxiety

››› Attending your first appointment at script to deliver small practical, but any new experience can be daunting, important, pieces of information on: and we understand it can be quite • driving directions to the hospital, overwhelming for new patients attending • parking and public transport instructions, the Centre for the first time, especially • details of amenities etc at the Centre. after receiving the shock of a cancer diagnosis. Results of the pilot published in January showed the phone calls have been 142 Where possible our administration teams well received by patients, with 99% of aim to follow up the first appointment participants agreeing the calls were useful patients were letter by telephoning new patients to and helped reduce the stress of their first surveyed confirm their appointment details. But the appointment. team decided this telephone call should be enhanced further to include more Sue Eagle, Head of Administrative Services information to help the patient absorb said: “Although this is extra work for the team, instructions better and also improve the we all felt it was important. The success support we could provide to them at their of the pilot has shown how patients appointment. appreciate the personal contact and 99% practical information, and we are said the call So, a new pilot scheme was initiated now looking to roll this out for all helped reduce the in September using four different consultants’ patients. Even if we stress of their first consultants’ caseloads. Two members of simply help them arrive at the front door appointment the Administrative Services Team have less stressed, it will be worth the extra effort. been making detailed phone calls to each We are always seeking to improve our care, new patient in the pilot, using a telephone however small the change may be.”

Our telephone numbers are changing in 2016

››› Later this year The switchboard number will straight away as we will Clatterbridge Cancer change from 0151 334 1155 have a divert in place Centre will be changing to 0151 556 5000. for approximately 6-12 1 2 ABC 3 its telephone numbers. months; so any calls to DEF Direct Dial telephone old telephone numbers We are moving to a new numbers for departments will be automatically 4 GHI 5 JKL 6 telephone system that will and our satellite routed through to the new MNO provide a better service radiotherapy centre in numbers. and help save money Liverpool will also change, 7 PQRS 8 TUV 9 by reducing the costs of along with internal Once all of the numbers go WXYZ outgoing calls. Costs to call extension numbers. live we will be publicising the Centre will not change. them on our website and * 0 + # Don’t worry if you don’t on posters and leaflets When we change to the know the new numbers across the hospital. new system, the main

Spring 2016 7 Charity News £15 million New Cancer Hospital Appeal Plans for the major new cancer hospital are almost complete with We’ve heard from building work due to begin this year. some patients As our vision to transform cancer care gets one step closer, it becomes clearer that this is an opportunity to achieve great things. We want to build the best who told us what hospital we possibly can in the heart of Liverpool and make big investments in our Wirral site. We know we can do this, but we need your help. Later this year The Clatterbridge we will be launching a £15m New Cancer Hospital Appeal to help ensure we Cancer Centre, and can do the best we can today, for cancer patients of the future. the New Cancer Hospital Appeal Andy from “In 2012 my means to them. wife Julie was diagnosed with an aggressive form of brain cancer. It was so important to me to be with her for the entire journey. I wanted comfort, and to make the most of my time with my loved one. It was my focus, that I could hold her hand as she slipped away. To hear that The Clatterbridge Cancer Charity will fund reclining chairs at the new hospital, so patients can be close to their loved ones when they need it most will be invaluable to thousands of people in the future.”

Jonny Vegas and his Dad Lol Bernie from New Brighton “My “You hear that word and you daughter called me and told me think the worst. Your head goes she had a lump in her breast. They to places it shouldn’t really go to, say be careful what you wish for, it’s a natural reaction. But when because I wished it was me instead. you go to Clatterbridge, they’re so Unfortunately in 2009 it was me as well professional. It’s overwhelming just as her. Nobody knows what’s round how positive an atmosphere there the corner, you just have to enjoy life. I is. It seems odd that you think know some people can’t afford to give yourself lucky that you got ill where an awful lot of money, but well, I dress you got ill. Thankfully, my Dad has up as a green bucket and collect loose come through this treatment and change from people. My husband and I’d like to say thank you for the I have now raised £179,000. Every peace of mind you gave us. The penny adds up, so please get behind Clatterbridge Cancer Charity really this wonderful appeal.” needs to raise £15m, and if they do, we can ensure this once in a generation project happens. YOU can help Transform Cancer Care, not only for our families, but for families in the future.”

8 Spring 2016 Charity News £15 million New Cancer Hospital Appeal

Terry from Bootle “They found out through scans that I had cancer of the liver two years ago, then earlier this year I was the first person in the UK to Becky from Liverpool “They trial a brand new therapy which helps told me the cyst they had found my body’s immune system identify was a type of cancer. My ears and fight the cancer. The potential were ringing, I didn’t even know that these developments might bring what to think – everything went is huge, and I’m very proud that this muffled. Cancer strikes the is happening in our area. I want to family, and it could be anyone call on the people of Liverpool, Wirral, no matter what age you are. Cheshire and beyond to help build the Clatterbridge is a fantastic best possible hospital we can.” place that gives unbelievable treatment. We were in awe of how they made cancer seem like nothing to be scared of. How anyone does that I really don’t Beth from Upton “My life before know.” diagnosis was very happy. Then it was confirmed that unfortunately the cancer that was initially breast cancer, was metastatic and had spread to my liver and my bones. My oncologist put me on a new clinical trial; 11 months in, I remain on it. The New Cancer Hospital Appeal for me, will mean more doctors doing more research, and I know myself, being on a clinical trial that it’s living breathing proof that research is working. Please give what you can.”

Info You can hear these stories in full in our New Cancer Hospital Appeal film. Visit clatterbridgecc.org.uk to watch and find out how you can be part of this incredible journey or call 0151 482 7948 to have a chat and find out more.

With your help, we can make the most of this once-in-a-generation opportunity for the people of Merseyside, Cheshire and beyond.

THE NEW CANCER HOSPITAL APPEAL

Spring 2016 9 NEWS Cancer treatment in the comfort of your own home

“We want to make our patients’ treatment journey as smooth as possible.”

Nurses from the Centre option by their consultant. is truly fantastic. The service I have are taking our world-class received is second-to-none – having chemotherapy service into more Joan Spencer, General Manager a dedicated specialist in your home patients’ homes. for Chemotherapy services at The to give you your treatment and Clatterbridge Cancer Centre, said: “We answer any questions or just have a ollowing the success of a pilot want to make our patients’ treatment chat makes a real difference. I would Fscheme, we are now delivering journey as smooth as possible and certainly recommend the service more treatments in patients’ homes one way of achieving this is by being and I believe it’s definitely the way as we expand our pioneering able to offer suitable patients the forward.” ‘Treatment at Home’ service to option to have their treatment in Liverpool patients. the comfort of their own home. For Please discuss the Treatment at some patients it can be a struggle and Home options with your consultant. The service was first piloted on extra stress travelling to our clinics suitable Wirral patients receiving for treatment – we want to avoid this Herceptin (trastuzumab) treatment where possible and offer alternatives. (given for the treatment of breast cancer). The service was expanded “The project is still in the early A survey was carried out to the Halton and regions, phases so we currently only offer and more recently suitable patients this service to suitable patients in May/June 2015 of 37 in Liverpool and St Helens have receiving Herceptin (trastuzumab) patients who had received benefited from receiving their treatment treatment. In the future we are their chemotherapy in the comfort of their own homes. looking at offering this service to treatment at home and the more patients receiving different feedback was exemplary. This service is part of the types of chemotherapy and for Clatterbridge in the Community different cancer types.” 100% of patient said they were programme, offering specialist very satisfied with the service treatment away from a hospital One patient who is benefitting from and would recommend home setting and closer to home. For the new service is 76-year-old Lilian treatment to others and 100% many patients, they will always Kenrick from . She said: “If agreed that they were well receive treatment in a Clatterbridge you’re diagnosed with cancer you looked after, had confidence in Chemotherapy Clinic, but a will travel anywhere to get the best the nurse’s ability and felt safe percentage of ‘qualifying’ patients treatment but to be offered a one- receiving treatment at home. will be offered this new treatment to-one service in your own home

10 Spring 2016 NEWS The Hair Fairy! ››› 51-year-old Tracy Potter opened Hair Fairy Wigs in Gateacre, Liverpool nearly five years ago. But her business is more than just a shop selling wigs. Her personal experience with hair loss at an early age pushed her to create something to help and encourage women going through the painful experience of losing their hair.

She said: “I have had alopecia since along for support. We run them in 0151 428 8881 (between 9-4pm). I was 11 years of age. I’ve lost all my the shop, away from the hospital hair, eyelashes, eyebrows – the lot, so environment, and the atmosphere Tracy was recently selected, I know exactly what these patients are is always lively! We offer a drink in recognition of her personal going through. As a supplier the shop on arrival and we have a make-up contribution to society, to attend a is on the NHS supply chain list, and artist on hand to give advice, and if special 60th anniversary Women I’ve worked closely with Clatterbridge possible a mini makeover. There is a of the Year Lunch in . The since opening. It’s been a great hairdresser who can trim your wig, a lunch celebrates exceptional women commercial success so far, but what nail technician and therapists to talk for being an inspiration to others, I am more proud of is the support I’m through skin care issues. I’m running demonstrated by their courage, able to offer my clients. them every other month at the minute selflessness and dedication. and I’d like to invite any readers of “With the help of friends, I’ve been your magazine to come along.” We celebrate Tracy too! Thanks for all running a free pamper session called you do for our patients. ‘Look Good Night’. The sessions are Anyone wanting to take Tracy up open to anyone who is experiencing on her offer to join the free pamper Visit www.hairfairy.com hairloss, and they can bring a friend sessions, please contact her direct on

Hello my name is...

››› NHS staff across the country medicine registrar. Since leaving a human connection, beginning a are being asked to tell their patients hospital, she started a campaign on therapeutic relationship and building their name, as part of a campaign Twitter asking NHS staff to make a trust to deliver compassionate care. launched by a terminally ill doctor pledge to introduce themselves in We are passionate in supporting this on Twitter. future to their patients. campaign. Look out for the campaign name badges on staff uniforms." The “hello my name is” campaign The Centre is supporting the was started by Yorkshire doctor Kate campaign to remind about the Staff and patients are being asked to Granger after she became frustrated importance of introductions in the show your support for Dr Granger’s with the number of staff who failed to delivery of care. Susan Reynolds, campaign on Twitter by sending introduce themselves to her when she Manager of Advanced Nursing her a message at @GrangerKate, was an inpatient with post-operative Service, said: "We firmly believe that include your name and the phrase sepsis. it is important to know someone’s #hellomynameis. name, but this runs much deeper. Dr Granger has terminal cancer This is more than just knowing Don't forget to follow the Centre on but continues to work as an elderly someone's name; it's about making Twitter. Our twitter name is @cccnhs

Spring 2016 11 NEWS Worrying attitudes

››› A study1 conducted on behalf of The Clatterbridge Cancer Centre to cancer has uncovered worrying attitudes amongst Brits towards cancer.

The survey, which questioned 2,010 Would you be willing to UK consumers on their opinions about cancer, also revealed a glaring change your lifestyle to lack of knowledge amongst many of the nation’s adults, showing reduce the risk of that there is work still to be done in increasing widespread awareness cancer? and understanding of the disease. Despite a recent medical study advising that up to 90% of cancers are A recent study has exposed that, when asked what Brits caused by external factors2, the survey would be willing to do to reduce their risk of cancer: carried out for The Clatterbridge Cancer Centre found that people are reluctant to change their lifestyle habits to reduce the risks, suggesting • Just 20% of smokers that many are prepared to take a said they would quit chance with their health.

The study also found that an • Only half (53%) would be willing unwillingness to make small lifestyle to take up regular exercise changes isn’t the only thing plaguing the nation when it comes to cancer awareness. Although 63% understand that the earlier you are diagnosed, would not lose weight • 51% the easier it is to treat cancer, the majority display a shocking lack of knowledge when it comes to signs • 60% would continue to top up and symptoms, even of the most their tans by sun worshipping or ‘common’ cancers. According to the using tanning beds study, many people still aren’t sure what to look out for.

• Less than half (46%) would When asked if they felt confident that hit the hay earlier and get a they would recognise the symptoms better night’s sleep of different cancers, more than half said that they wouldn’t recognise the early signs of breast cancer. The • 34% wouldn’t opt for a figures were frighteningly low for healthier diet the UK’s other three most common cancers, with just 14% knowing the symptoms of prostate cancer, 59% of drinkers wouldn’t 18% lung cancer and 24% bowel • cancer. And well over 90% of people be willing to drink less wouldn’t recognise symptoms of other common cancers including pancreatic, ovarian and uterine • 14% wouldn’t change a thing (womb) cancers.

12 Spring 2016 NEWS

As well as signs and symptoms, the study shows a huge span in the awareness levels of different types of cancer. There are over 200 types of cancer3, yet many people don’t realise just how many types there are, or that it can affect so many different parts of the body.

Breast - 92%

Lung - 87%

Prostate - 85%

Mouth - 81%

Cervix - 74%

Blood - 74%

Interestingly, of those surveyed, 64% at all. Cancer can occur anywhere in had had direct experience of cancer, the body. Ovary - 72% either having had it themselves or with an immediate family member who had. “Cancer treatment is progressing Bladder - 71% all the time and places like The Dr Peter Kirkbride, Medical Director Clatterbridge Cancer Centre are of The Clatterbridge Cancer Centre carrying out new research and clinical Uterus (womb) - 62% NHS Foundation Trust, said: “A trials, both for common and rarer healthier lifestyle can significantly cancers. It’s really important, however, Thyroid - 56% reduce the risk of developing cancer that we all do what we can to reduce as well as improving general health our chances of developing cancer and wellbeing. Eating better, moving by leading healthier lifestyles – and Eye - 34% more, drinking less alcohol and that people know what symptoms to reducing sun exposure will mean look out for and consult a healthcare % of people aware or heard cancer Neck - 30% you’re much less likely to develop professional if they develop them. cancer, and smokers can get lots of support to help them quit. “Early diagnosis and Penis - 28% early treatment helps “Recognising early symptoms of save lives.” cancer could save your life – the Nervous system - 18% sooner you’re diagnosed and start For full survey results visit our website treatment, the better the outcome Muscle - 17% – but this survey has revealed that www.clatterbridgecc.nhs.uk many people just don’t know what For advice on how to check for signs warning signs to look out for. On and symptoms of cancer visit Ear - 14% top of this, there are many types of www.nhs.uk/conditions/cancer cancer that people haven’t heard of None of the above - 1%

1 Independent study of 2,010 UK consumers, conducted by The Leadership Factor in December 2015 for the Centre 2 Research from Stony Brook University, New York, published in ‘Nature’ December 2015 3 Cancer Research UK Spring 2016 13 NEWS

Going the extra mile for you Has someone gone that extra mile for you while you’ve been treated or visited the Centre? Maybe one of your colleagues deserves a huge thank you for the hard work they do? We receive lots of nominations every month to acknowledge and reward staff for going that extra mile. It’s wonderful to Here’s your last hear about all the great work staff are doing to make the Centre and your experience the best it can be. four winners:

September 2015 October 2015 November 2015 December 2015 Jo McCaughey, Helen Beverley Williams, Kate Hancock, Roy Cockerill, Flint & Nikki Kernaghan Imaging Assistant TYA Psychologist Phlebotomist Principal Pharmacists Beverley was nominated Kate was nominated Roy’s nomination & the IM&T Pharmacy for her continued for the amazing life commented how he has Manager went the extra dedication and passion changing work she does the ‘magic touch’ when mile in supporting even though she has been with young people and taking blood samples. chemotherapy electronic undergoing treatment their families. She helps He is known for always prescribing during a for breast cancer herself. them cope with anxiety being pleasant and recent issue. They worked She is hard-working, and fears throughout happy and goes the voluntary weekends and meticulous and innovative treatment and offers extra mile to visit came in on days off to in her work and supportive flexible appointments patients on the wards in ensure no patient delays and thoughtful to patients so they can continue his spare time to follow and to support consultants. and colleagues. education and work. up his care.

The Care Certificate Deborah Prout (second left) ››› Congratulations Radiotherapy health and social care Support Worker, Deborah Prout, our settings. first Health Care Support Worker to Helen Porter, Director of have achieved completion of The Nursing and Quality, said: Care Certificate standards. “We have always ensured The Care Certificate was introduced a clear competency as a national initiative following framework for health the Cavendish Review (July 2013), care support workers and in response to the Francis to ensure safe practice Enquiry it is now mandatory that all and to support them in for existing staff to refresh or improve new Health Care Support Workers their development; however this their knowledge. Congratulations to (HCSW) undertake this programme nationally recognised programme Debbie, and thanks to all the staff of learning as part of their induction. supports and enables new staff to who have worked hard to implement The Care Certificate is a recognised take their first step on the career the new standards and support their qualification, transferrable to other ladder and also offers opportunities colleagues undertaking them.”

14 Spring 2016 NEWS From the office, to the frontline ››› Newly qualified radiographer Trying to juggle being a mum and Emma won a research prize for her Emma Holmes is a familiar face a mature student was hard, but so undergraduate dissertation, which around the hospital; she’s worked worth it. I graduated last July on was a literature review looking at here for more than 10 years. With my 44th birthday with a 2:1 BSc in HPV vaccination and the possibility the help and encouragement from radiotherapy from the University of of a gender neutral vaccination her colleagues Emma decided it Liverpool and I’ve been employed as programme in the UK. She also wasn’t too late to have a change in a radiographer since September. won a student competition run by career and swapped her admin job “I’m so lucky to be doing something I the Society of Radiographers for an to return to learning. love. Working with the patients every article based on her dissertation. Emma told us: “I started working day is so rewarding, they make all the in the radiotherapy department in hard work worthwhile. I can’t thank Well done Emma! 2005 as the Radiotherapy Clerk. everyone enough for supporting me, I love working here, I knew it was especially the General Manager of somewhere I never wanted to leave. Radiation Services Julie Massey for all her advice, and Sue Nixon, my “I’d always wanted to have a career “I’m so office buddy! Thank you for believing in therapeutic radiography, but with in me.” lucky to young children, and bills to pay it wasn’t ever an option for me to be doing return to education. But working something here, and seeing the brilliant work they do for patients, it became more I love. and more of an enticement. I was hitting 40 and the reality was ‘it’s now or never’. “I honestly don’t think I could have ever done it without the support from my colleagues. They encouraged me to apply for the degree course.

Sue Nixon (L) and Emma Holmes (R) It’s a win win for Callie!

››› We all know PAT* dog Her ‘off duty’ hobby helps including jumps, weaving Just her way of saying Callie wins hearts around keep her physically and poles, the seesaw and a thank you to him for giving the Centre regularly, but mentally active, owner Sue plank walk. She’s getting her so much love back!” did you know she’s been Yates told us: “She’s been round the course in about winning awards for her competing for two years 40 seconds which is agility skills too? now and has earned herself impressively fast! a huge box full of rosettes! “She has earned herself She practises so many rosettes; she’s regularly decided to share them with and really her young friends at the enjoys the Centre. When she first met competitions. Freddy he was wearing a They usually red baseball cap, so as involve a well as giving him loads pattern of up of love, she gave him her to 20 obstacles biggest red rosette to keep.

*Pets As Therapy Spring 2016 15 FEATURE

Windows of opportunities: Pioneering Breast Cancer

Trials 1.7 million new cases of breast cancer and 500,000 deaths from the disease were recorded globally in 2012. It also remains the most common cancer in the UK with around 51,000 people diagnosed each year.

Breast cancer is not one single disease – there are several different types. It can be diagnosed at different stages and can grow at different rates. This means that treatments will vary, depending on the type of breast cancer the patient has.

Professor Carlo Palmieri, Consultant Medical Oncologist at the Centre, is leading the UK in two pioneering studies focused on breast cancer. Prof Palmieri is prominent in developing and initiating translational and clinical research trials in the area of breast cancer, and is the chief investigator on a number of studies. These two research trials, due to commence this year, will provide vital insight into potential new treatments for two different types of breast cancer.

“Our new hospital in Liverpool will offer us our very own window of opportunity to be more active and lead on similar, essential research studies to develop new ways of beating this disease.

16 Spring 2016 FEATURE

EMERALD BLUEBELL The ‘oestrogen receptor’ is found inside cells. The The second study, BLUEBELL, will focus on treatment receptor is activated by the female sex hormone of women with advanced human epidermal growth called oestrogen and is a key driver for the growth factor (HER2+) breast cancer and brain secondaries. of breast cancer cells. Over 80% of breast cancers This study has been funded by support from The express the oestrogen receptor (ER), making them Clatterbridge Cancer Charity and Cancer Research UK. oestrogen positive (ER+). Drugs which target and block ER called ‘endocrine treatment’ are key in the 15% of breast cancers overexpress the HER2 receptor treatment of such breast cancers. The widespread and this type of breast cancer is generally more use of endocrine therapy has helped significantly aggressive. Since 2005, the introduction of drugs which improve outcomes in ER+ breast cancers, however target the HER2 receptor (HER2 directed therapies), some breast cancers do not benefit from endocrine such as trastuzumab and T-DM1, have dramatically treatment and there is a vital need to develop new improved the outcomes for women with both early and treatments. secondary breast cancer which is HER2+.

Previous research had shown that using male sex However, studies in the laboratory have also shown that hormones called ‘androgens’, which bind to and HER2 promotes spread to the brain and recent clinical activate the androgen receptor (AR+), was an data has shown that as patients with secondary breast effective treatment for breast cancers. However, the cancer live longer (as a direct result of successful use of androgens fell from use due to its side effects, HER2 directed therapies); brain secondaries has as well as the development of newer endocrine drugs become a problem experienced by more and more such as tamoxifen and letrozole which are used as women. Given this, there is a real need for better hormone therapy options. Recently the development treatments to control the disease once it has spread of a drug called enobosarm (GTx, Memphis) which to the brain. The growth of HER2+ breast cancer cells targets the androgen receptor, without the side that have spread to the brain is, in part, dependent on effects previously seen, has awakened the potential a network within the cell called the ‘PI3K pathway’. The for using drugs which activate the androgen receptor BLUEBELL study aims to test a drug called buparlisib as treatments for breast cancer. In a recent study of (Novartis) which blocks this pathway in patients with patients with secondary or advanced breast cancer newly diagnosed HER2+ brain secondaries. enobosarm showed evidence of clinical activity. In BLUEBELL patients with HER2+ brain secondaries The EMERALD study, funded by Cancer Research who are awaiting surgery will receive buparlisib for UK, will be the first study to investigate the effects approximately two weeks. A special brain scan to of enobosarm in early untreated, newly diagnosed record the activity of the cancer cells called a PET scan breast cancer which is both oestrogen and androgen will be performed before and after the patient has taken receptor positive. The study will use the two week buparlisib to assess its effects on the cancer. The study period between diagnosis of breast cancer and will also analyse brain tissue taken from the patient surgery to give endobosarm to the patient to see how during surgery. This, like EMERALD, uses the period the drug affects the behaviour of breast cancer cells. of time, or the window of opportunity, before surgery to Such studies which use the period between diagnosis test a new cancer drug. and surgery to test a new drug are called ‘window of opportunity’ or ‘window studies’ and are key to the Prof Carlo Palmieri said: “Both studies are using the development and introduction of new agents in breast skill and expertise of colleagues in Liverpool and cancer. beyond. Research funded by charity donations and grants are crucial in developing and introducing The EMERALD study is set to enroll approximately new treatments to benefit patients now and in future 150 postmenopausal patients with newly diagnosed generations. Our new hospital in Liverpool will offer us ER+/AR+ early breast cancer who are awaiting breast our very own window of opportunity to be more active surgery. Patients will be randomised to receive the and lead on similar, essential studies to develop new enobosarm drug versus no drug treatment. ways of beating this disease.”

Enobosarm (GTx, Inc.) Buparlisib

Spring 2016 17 Charity News

It’s a Bronze for Clatterbridge Physicists!

An intrepid team of £240 Honda into a Super for winning the bronze physicists from The Mario Cart the team took medal in the race, and Clatterbridge Cancer on this epic drive across for being such incredible Centre have been Europe in a bid to hit ambassadors for the raising cash for our their fundraising target, charity. charity, but while with no idea that they many would rely on a were about to come third sponsorship page to out of 150 teams! boost funds, this team took it a step further! Robert told us: “We were really keen to support Racing against 150 Clatterbridge and taking teams, Robert Biggar, part in this adventure Laura Howard, James was perfect. Armed with Howard and Alice Biggar only a cassette player took part in The Banger and carrier bag of tapes Rally – Salo or Bust. we created so many Show your support The car race started in amazing memories.” Donations can be made in support of the team by visiting Cornwall with the finish their online fundraising page line in Salo, Italy. Having The team have so www.uk.virginmoneygiving.com/team/SaloOrBust2015 lovingly converted a much to be proud of

ATidy Afternoon Tea John jumps in the saddle Legendary cartoonist Bill Tidy picked up his pen and delivered his unique presentation to an to rein in funds audience of 1862 Club members and guests at The Royal Liver Building in November. When John Berry from South Wales hit 50 last year, he wanted to take on a ‘proper challenge’. Having He was ably supported owned racehorses for a number of years, he decided by Ken Dodd who took it was time to learn to ride and compete in a race. to the floor with an John says: “The whole experience was brilliant – it was impromptu performance really difficult to learn to ride but I was spurred on by all whilst those assembled the generous donations I received. I thought it would enjoyed a champagne be a way of giving something back to the local area afternoon tea. Originals where I’ve done business for so long.” of Bill’s cartoons were sold with half the money John successfully completed the Charity Flat Race at coming to the charity Ffos Las in November 2015, raising over £14,000 for alongside Doddy’s The Clatterbridge Cancer Charity. He said: “I came famous tickling sticks. last, but I definitely had the biggest cheer of the day.” You’re a winner in our eyes John.

Get involved For more information about The 1862 Club or if you’re thinking of organising your own event or sponsored challenge, contact the charity team on 0151 482 7948.

18 Spring 2016 FEATURE Consultant profile Professor Pieter Postmus Consultant Thoracic Oncologist

e joined The Clatterbridge Cancer HCentre and Liverpool Heart and Chest Hospital in March 2015 and was also appointed Honorary Professor of Thoracic Oncology at the University of Liverpool.

He is one of the world’s leading experts in the clinical specialty of lung cancer, having been involved with the treatment of lung cancer patients since 1978. He was previously the Chief Thoracic Oncologist in Groningen, the Netherlands for 10 years, and then spent 23 years as Professor and Head of the Department of Pulmonary Diseases at VUMC in Amsterdam. In that time he built a research and referral centre for the Netherlands for thoracic oncology, endobronchial therapy and pulmonary vascular disease.

He is now working with colleagues across Merseyside and Cheshire to improve care for lung cancer patients through clinical research and concentration of care.

He enjoys: Pieter is a family man and enjoys spending time with his family and friends. Personal interests: sports, reading, art.

He also: Likes to stimulate young people to get the best out of their talents by focusing on clinical research to answer patient and “Lung cancer is a disease-related questions. challenging disease. But doctors need to be He said: able to surmount it for the “Lung cancer is a challenging disease. But doctors need to be able to surmount it for benefit of their patients.” the benefit of their patients. Only specialised doctors will be able to do this.”

Spring 2016 19 FEATURE

Liverpool mum is inspiring fellow

cancer patients with She explains: “My diagnosis was tough but meeting my oncologist, Dr Sripadam, at the private clinic wellbeing initiative gave me real hope. He was really understanding and calmed me down, nspirational mum-of-two Natasha their bodies through diet and exercise making my situation a lot clearer. He IGrindley from Liverpool, a patient whilst undergoing treatment. After made it very easy to understand all at Clatterbridge Private Clinic, has discovering a new passion for how of the treatment options available to turned her cancer diagnosis into a food can affect the body, she studied me, which were many, and helped me positive cause for change. for a Diploma in Nutrition, which she to decide the best route to go down. gained earlier this year. Within a week I started chemotherapy. The 37-year-old was diagnosed with “Before my diagnosis, my diet was stage four stomach cancer 18 months Following a wave of support from dreadful. I was given a guarded ago and is currently undergoing people worldwide, the 37-year-old prognosis but with two young children treatment with Dr Raj Sripadam. now has plans to turn ‘Heal for Real’ to think about, I wanted to give Based on her own experience, she into a website offering an online my body the best chance I could established Facebook page ‘Heal for portal for nutritional information and possibly give it whilst I was having Real’ to share her story. Through the wants to roll out other patient support treatment and so I started reading up page, Natasha shares information initiatives across the country. on ways that I could help myself as I and advice on how patients can help underwent the chemo. “I started to change what I ate, cutting Natasha with children 6-year-old Gabriella out sugar, processed foods and and 4-year-old Liam introducing foods with high levels of alkalinity. I noticed big improvements in the way I felt. I set up a Facebook page, ‘Heal for Real’, to share my findings. It began to gain momentum and followers from across that world, who were all interested in what I was doing. It was then that I decided to go even further, gaining a Diploma in Nutrition earlier this year. “Nutrition and wellbeing are close to my heart. During such a difficult time of my life, knowing I’m making a difference to other people is spurring me to carry on. There is so much more I can do and learn and I’m constantly looking for new things to share. I’m working on turning ‘Heal for Real’ into a website. “My treatment is continuing and new options are becoming available all of the time, which Dr Sripadam is on top of. I’m confident that the prognosis will be good. I have a great support network, with my family, friends, all of the chemotherapy nurses around me and my supporters online who are all * Please note that this is a patient story based on first-person experience. The Clatterbridge Cancer Centre and Clatterbridge Private Clinic do not endorse third party advice that is not playing a part in my treatments. I feel directly from our clinicians. really positive about the future.”

20 Spring 2016 FOUNDATION TRUST NEWS

Meet your Governors ››› Governors representing the Wirral constituency invite you to meet them in the relaxed atmosphere of the Community Room, at the Tesco Moss site, Wirral on Thursday 21st April between 5 and 7pm.

This meeting is a chance for the governors to highlight their role and the work they are involved with to improve patients’ experiences of care at The Clatterbridge Cancer Centre. This is also an opportunity for people in the community and members of the Centre to raise any concerns that they may have, directly to the governors, as well as give feedback which the governors can then take back to the board.

Tesco Community Champion Debbie Layfield is kindly facilitating the meeting and providing Public Governors for Wirral: free refreshments. Jeanette Appleton (L) and Angela Cross (R)

Become a Governor Dates for

››› The role of a governor is very Any member over the age of 16 can your diary important. This is an opportunity be a governor as long as you live in to be a part of your local cancer an area that the hospital serves. centre, give a voice to its members Governor elections and advice to the board of directors You don’t need to have experience Governor nominations open on to impact the direction of the of formal meetings; full training and 3rd June and close on 1st July. organisation. support will be provided. Governors Members can vote for the are not paid; the position is voluntary, Governor they wish to represent We want to make sure the people however, expenses in connection with them between 25th July and we serve are involved and included attending meetings can be claimed – 17th August. when we make important decisions such as mileage allowances or public Governor results will be about how we operate. As a governor transport costs. announced on 18th August. you can represent the interests of our members and be the link between If the idea of being a governor interests the hospital, its patients, staff and you, call Andrea Leather on 0151 Public Council of Governor stakeholders. You can give local 482 7799. We can have a quick chat meetings (The Clatterbridge people and all those who use our about what’s involved and send you an Cancer Centre) services a greater say in how we information pack with more details. Monday 21st March 5.30pm are run. Monday 4th July 5.30pm Monday 31st October 5.30pm

Annual members’ meeting Thursday 22nd September

Spring 2016 21 Charity News

Events Calendar The Clatterbridge Wig Walk

Sunday 27 March Our annual Beside the Seaside Walk has had a makeover and will be Skydive Sunday returning this April as The Clatterbridge Wig Walk.

MAR Make your Easter Sunday ‘eggstra’ special and join us for an amazing Walkers will be making their way along tandem Skydive. the promenade at Crosby Coastal Park, home to Antony Gormley’s world famous Sunday 17 April iron men, in an array of colourful wigs. The Clatterbridge Wig Walk It was great to see everyone’s pet dogs APR Grab a fun wig, your family and last year and our Pooch Parade will friends and join us at Crosby certainly be back before the walk begins. Coastal Park for our annual 5 or 8k walk along the promenade. This has fast become one of our Saturday 30 April favourite events, the atmosphere as our Liverpool Spring 5k walkers gather together at the start with This hugely popular 5k takes place their friends and family is truly uplifting. in leafy Sefton Park, Liverpool. We’d urge everyone to come and join us for a day at the Sunday 29 May beach and take part in Rock N Roll Marathon – Liverpool the 5k or 8k walk.

MAY Sign up for one of our charity places and join team Clatterbridge Sign up today at on either the half or full marathon. clatterbridgecc.org.uk

Sunday 19 June Mersey Tunnel 10k

JUN Run through the Mersey Tunnel and a coastal jog to the finish. Sunday 12 June Wirral Coastal Walk A 15 mile walk taking in Wirral’s Grand Atlantic Ball fabulous coastal line. Sunday 16–21 June Grand voyages across the sea her experience at Clatterbridge Cycle Transylvania was the theme of our annual Ball and Andy Shute who shared Fancy ‘getting your teeth’ into a in October 2015, held at The his story having recently lost his real challenge? Join our team of Hotel’s Rum Warehouse. incredibly brave wife Julie. The cyclists in the heart of Romania. atmosphere was electric on the Hundreds of guests attended, evening and we’re delighted to helping to raise an enormous announce that our next Charity Saturday 16–Sunday 17 July £105,000 with auction items that Ball will take place in Autumn Nightrider Liverpool

JUL included tickets to the Royal World 100km bike ride taking in 2016. Liverpool’s and Wirral’s iconic Premiere of Spectre, with our charity landmarks at night. Patron, 007 himself, Daniel Craig. Info Supporting the charity on the night Saturday 3 September were patient Becky Brothwood Be part of what is set to be a Man vs Mountain aged 18 who spoke movingly of magical evening. Call us today SEP Caenarfron Castle to Snowdon to book your table on summit run. Not for the faint hearted. 0151 482 7948. Sunday 4 September Ride of the Roses Cycle challenge through stunning rural Lancashire Find out more Find out more about our Charity events at www.clatterbridgecc.org.uk or call us on 0151 482 7948

22 Spring 2016

Time for You ✃ I’d like to support Roasted Butternut Squash The Clatterbridge with Sautéed Shiitake Mushrooms Cancer Charity and and Fresh Sage help to change lives Makes 4 servings. Per serving: 121 calories, 7g total fat (1g saturated fat), Please send me more information on; 14g carbohydrate, 2.5g protein, 2.5g dietary fibre, Supporting the charity at work 25mg sodium. Fundraising as a group Ingredients: Taking part in events Volunteering • 3 cups cubed butternut squash, 1/2-inch (1 lb.) Leave a lasting gift in my Will • 2 Tbsp. extra virgin olive oil, divided • 4 oz. package fresh shiitake mushrooms, sliced Name: • 2 cloves garlic, minced Address: • Salt • 4 fresh sage leaves, coarsely chopped Postcode: • Freshly ground black pepper Telephone: • 1 Tbsp. freshly grated Parmesan cheese Email:

Directions: I’d like to make a monthly gift of 1. Preheat oven to 350 degrees F. £5 £10 £15 Other 2. In medium size bowl, toss squash with 1 tablespoon olive oil. Instruction to your Bank or Building Society 3. Arrange butternut squash on baking pan. Roast until Originators Identification No. 8 3 9 6 9 9 fork tender, about 25-30 minutes. Set aside. DF Reference (for office use) 4. In large skillet, heat remaining oil over medium-high heat. Please pay The Clatterbridge Cancer Charity from the account detailed in this instruction subject to the safeguards assured by 5. Add mushrooms, garlic and pinch of salt and sauté the Direct Debit Guarantee. I understand that this instruction may remain with The Clatterbridge Cancer Charity and, if so, will be 4 minutes. passed electronically to my bank/building society. 6. Add sage leaves and continue sautéing 2 minutes. 7. Mix in squash. Continue to sauté another minute. To: The Manager 8. Season to taste with pepper and serve warm Bank/Building Society garnished with cheese. Address

Postcode:

Branch Sort Code Brain teaser Account No. Fill in the blanks so that each row, each 5 3 1 2 Signature(s): column and each 1 7 4 of the 9 3x3 grids contain one instance 2 of each of the Date: numbers 1-9. 7 8 4 6 2 7 Make your gift worth more 6 2 with Gift Aid I would like the charity to reclaim the tax on all donations I have made in the last four years, and all future donations. I am a UK tax payer, and I am paying 4 5 7 at least as much in income and/or capital gains tax each year as the charity reclaims on my donations. If you cease to pay tax, or change your address, 1 8 7 5 please contact the charity on 0151 482 7948. 2 1 6

Spring 2016 23 ✃ The Clatterbridge Cancer Centre Magazine Spring 2015 ADVERT

Beat the habit Have you made the decision to stop smoking and you need a bit of extra support and advice?

Our on-site pharmacy – PharmaC – is offering a smoking cessation service for staff, patients and visitors thanks to a partnership with the Wirral Stop Smoking Service and the Wirral Livewell Programme.

Trained stop smoking advisors are available to offer support and advice. They will discuss a support plan and talk through the alternative Nicotine Replacement Therapies (NRT) available – such as patches, inhalator, gum and lozenges. Following this, they will offer a weekly appointment to monitor progress and provide any additional support.

If you would like to make an appointment call 0151 552 1837 or email [email protected]

The advice session is free of charge, but there is a prescription charge of £8.20 (per item) for NRT, unless your prescriptions are free.

There will be no charge for Clatterbridge Cancer Centre patients.

Hospital shop and café

The Royal Voluntary Service shop and café provides convenient refreshments for patients, visitors and Brain teaser staff and provides a welcoming place to take a break. Solution Page 23 Opening times: 8 4 5 7 9 3 6 1 2 Wirral Liverpool 6 1 9 8 2 5 3 7 4 Coffee Shop (main entrance) Coffee Shop 2 3 7 6 4 1 5 9 8 1 2 3 4 5 7 8 6 9 8am-5.30pm Mon-Fri, 11am-2pm Sat & Sun (main entrance) 5 8 4 9 3 6 1 2 7 Tea Bar 9am-4pm Mon-Fri 9 7 6 1 8 2 4 5 3 9am-5pm Mon-Fri, closed at weekends 4 6 8 5 7 9 2 3 1 3 9 1 2 6 8 7 4 5 * The RVS also provide a trolley service to 7 5 2 3 1 4 9 8 6 inpatient wards before noon every day.