How This Paralympian Won Gold in London
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The Official Magazine of MS Australia – ACT/NSW/VIC www.msaustralia.org.au/actnswvic ISSN 1833-8941 Print Post Approved: Summer 2012 PP 255003/08108 Overcome Carol depression Spotlight on Cooke the NDIS How this Paralympian Gifts you can won gold in London give yourself EMERGING 2012 GO FOR GOLD: TREATMENTS See page 36 New oral medications for inspiring stories www.facebook.com/MSAustralia http://twitter.com/MS_Australia www.youtube.com/MSSocietyAustralia Editor: Toni Eatts Publisher: Multiple Sclerosis Limited 38 ABN: 66 004 942 287 Website: www.msaustralia.org.au/actnswvic Frequency: Published quarterly in March, June, September, December Advertising enquiries: Tel: (02) 9646 0725, Fax: (02) 9643 1486, Email: [email protected] Design: Byssus, (02) 9482 5116, www.byssus.com.au Photographs: The stock images appearing in Intouch are sourced from Thinkstock.com 19 Cover: Ben Vella, Shoot Everything Photography Printing: Webstar Print MS Australia – ACT/NSW/VIC ACT Gloria McKerrow House 117 Denison Street Deakin ACT 2600 Tel: (02) 6234 7000 Fax: (02) 6234 7099 NSW Studdy MS Centre 80 Betty Cuthbert Dr Lidcombe NSW 2141 Tel: (02) 9646 0600 Fax: (02) 9643 1486 Victoria The Nerve Centre 54 Railway Road Blackburn VIC 3130 Tel: (03) 9845 2700 Fax: (03) 9845 2777 MS ConnectTM (information and services): 1800 042 138 (free call) Regional offices: Visit www.msaustralia.org.au/actnswvic and click on ‘Contact Us’ Privacy Policy: Visit www.msaustralia.org.au/ actnswvic for our full policy document ISSN: 1833-8941 14 Disclaimer: Information and articles contained in Intouch are intended to provide useful and accurate information of a general nature for the reader but are not intended to be a substitute 12 for legal or medical advice. Multiple Sclerosis Limited is not recommending medical or legal advice and readers must seek their own medical 9 or legal advice as may be appropriate. Advertising disclaimer: Advertisements are provided to assist consumers to locate and purchase suitable products and services. Multiple Sclerosis Limited does not endorse any one product or service over another, nor do we receive any commission on sale of items. Consumers are encouraged to discuss the options for exchange or return at time of purchase with a particular supplier as Multiple Sclerosis Limited is not liable in the event the product is not satisfactory. MS Australia – ACT/NSW/VIC is a not-for- profit organisation that has been supporting and helping people with multiple sclerosis (MS) since 1956. Through an extensive network of centres, branches, support groups and health services, the organisation provides specialist programs to people with MS, their families, carers, friends and healthcare professionals. © Multiple Sclerosis Limited 2012 2 intouch summer 2012 www.msaustralia.org.au/actnswvic www.msaustralia.org.au/actnswvic summer 2012 intouch 3 Contents CEO’s message FEATURES Welcome to the Summer 2012 issue of 12 My story: reclaiming the dream Intouch – and what a busy year it’s been. Carol Cooke outlines her journey to From a government-policy viewpoint, winning a Paralympic gold medal. it’s been dominated by the planned National Disability Insurance Scheme 14 Recognise depression (NDIS), and we have been working It’s essential to be aware of the hard to ensure that people with MS have symptoms because depression a loud and clear voice in how the scheme is common for people with MS. is shaped and implemented. 28 ‘Emerging treatments’ series: We are talking to the key decision makers in Canberra and Oral medications making the necessary changes to the structure of our services In the second part of our series, we so they meet the needs of people with MS and their carers, examine this new range of drugs. families and friends. On page 33, Daniel Kyriacou, National Corporate Communications Manager with the NDIS, answers questions about MS COMMUNITY some of the issues that might be of concern to you. You will also 19 MS Ambassador profile: see reports about NDIS-related activities our staff are involved in. Meet Jessica Grey. Although the NDIS has been top of mind, we have also been 23 Community fundraising: busy raising vital funds for maintaining our services and supporting Thank you for your hard work. research. I want to thank all the people who took part in recent events such as the MS Sydney to the Gong Bike Ride. At the time 24 Volunteers in action: of writing, more than $3 million had been raised from it, and none Meet people who are helping of that would have been possible if it weren’t for the hundreds of to make a difference. volunteers who gave up their Sunday to help stage this iconic event. As the year ends, I want to thank all the selfless volunteers who 26 Peer support: have made such a significant contribution over the past 12 months. Sharing the MS journey Whether you’re helping out at a fundraising event, working in one 27 Support group profile: of our MS Community Shops, wrapping gifts at a Centro shopping The Taking Control Peer centre or spending a couple of hours reading to one of our residents, Support Group, Canberra we depend on you, and our clients depend on you. The 24 Hour Mega Swim is a wonderful example of having the community come together to assist people who have MS. On HEALTH & WELLNESS page 36, you can read about how some of this money is put to such 32 Take charge of your health: great use to help dreams become reality. Tips to help you to stay You might be aware that the 24 Hour Mega Swim was created by cool this summer Carol Cooke. Take a look at her inspiring story on page 12 and join 33 Spotlight on: The National me in congratulating Carol for her incredible gold-medal win at Disability Insurance Scheme the London Paralympics. To all our staff members, my sincere thanks for your dedication in 2012. During my first eight months at the organisation, I have really LIFESTYLE had my eyes opened to the amazing work you do. 36 36 Congratulations to our winners Finally, I wish you and your family a joyous Christmas and a We celebrate with the 2012 happy and healthy New Year. Go for Gold Scholarship winners. 38 Gifts for you: Our health professionals suggest ways to boost your health and happiness. Jim Carroll REGULARS CEO, MS Australia – ACT/NSW/VIC 5 Your say 6 News Look out for this symbol 9 MS insights 10 MS Readathon for information and articles 11 Q&A specifically relevant to family 20 Events members and carers of 22 Family and carers CARERS people with MS. 39 New resources 2 intouch summer 2012 www.msaustralia.org.au/actnswvic www.msaustralia.org.au/actnswvic summer 2012 intouch 3 Editor’s note Wow! Can you believe how quickly this year has gone? It seems only a few months ago I was writing the editor’s note for the Summer 2011 issue of Intouch. Now, the delightful Rebecca Kenyon is looking forward to sharing Christmas with her new baby girl, and I’ve returned to keep the editor’s chair warm during her maternity leave. Although this time of year brings joy to a lot of people, feelings of loneliness and depression can be stirred up in others. That’s why we have explored the causes of depression in this issue, on page 14. Being clinically depressed is more than feeling down for a few days. If your feelings of depression last for two or more weeks, you could need help from health professionals, especially because people with MS are more prone to depression compared with the general population. We hope you will take the time to read this important feature article and contact your GP if you think you are depressed. On page 28, you will notice we have continued our series about emerging treatments. In this issue, we look at oral medications, and you might be pleased to know that a couple of new drugs are on the horizon. We couldn’t head into the festive season without thinking about gifts, and on page 38, you will see a list of gifts with a difference: gifts you can give yourself; in fact, if you incorporate some of these ideas in your life, you will continue to be rewarded long after the festive season has finished. On behalf of the Intouch team, I wish you a merry Christmas and a happy new year. Toni Eatts Editor Rebecca Kenyon and her husband Michael and son Aiden welcomed Charlotte Jade into the world on 31 October. Follow us online www.facebook.com/MSAustralia http://twitter.com/MS_Australia www.youtube.com/MSSocietyAustralia Win a BMW 320i or a unique 20-night vacation Win first prize in our latest Art Union and you can choose between driving away in a new BMW 320i, valued at $65,000, or flying business class and taking a 20-night cruise that includes beautiful Alaska and the magnificent Canadian Rockies! Join Club MS and enter our exclusive draw to win 2oz of GOLD BULLION The odds of winning are fantastic, and ticket prices start at only $15. Buy your tickets and help MS Australia – ACT/NSW/VIC provide vital support and services to people living with MS! The competition is drawn on 14 December. Giving Life Back For more information and to purchase tickets, visit www.msraffles.org.au or FreecallTM 1800 287 367 4 intouch summer 2012 www.msaustralia.org.au/actnswvic www.msaustralia.org.au/actnswvic summer 2012 intouch PB Thank you for sharing your stories, tips and feedback. Your say We’d love to hear more! Write to us at [email protected] or post your letter to ‘Intouch’, PO Box 210, Lidcombe NSW 1825 ‘Disabled friendly’ Dancing through life We all know how difficult it is to find suitable motel or holiday I was diagnosed with Relapsing–remitting MS about accommodation.