November - December 2016 Focus on Epilepsy
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November - december 2016 Focus on Epilepsy THE NEWSLETTER OF THE EDMONTON EPILEPSY ASSOCIATION The Epilepsy Association of Northern Alberta - Our 56h Year of Service (This Newsletter can be viewed in full colour on our website.) FREE MEMBER ACTIVITY A Christmas Karol: The Karol Wojtyla Annual Nativity Play November December 3rd @ 2:00 p.m. Fun BINGO for Prizes Friday, November 25th, 1:00 – 3:00 pm “Old” Royal Alberta Museum Theatre EEA Office 12845—102 Avenue (Pre-register by Noon, Nov. 24th) Pre-register by noon, Nov. 30th The November Member Outing Is being held the first weekend of December—See Below. Annual Christmas Lunch and Social December Saturday, December 10 A Christmas Karol, Nativity Play For more details see page 3. Saturday, December 3rd @2:00 p.m. “Old” Royal Alberta Museum Theatre 12845—102 Avenue Meet at Front Doors of the Museum @ 1:45 (Pre-register by Noon, Nov. 30th) “Help Seize The Day !” Christmas Lunch & Social Thursday, March 23rd, 2017, During Saturday, Dec. 10th, 12:00 - 3:00 pm Epilepsy Awareness Month Central Lions Seniors Centre 11113 - 113 Street NW In Support of Epilepsy Awareness, (Pre-registration by Noon, Dec. 7th ) A Celebration of Greek-Themed Fine Food and Wine Fun BINGO for Prizes Further Details on page 8! Friday, December 23rd, 1:00 – 3:00 pm EEA Office (Pre-register by Noon, Dec. 22nd) 2017 EEA ANNUAL GENERAL MEETING and Volunteer Recognition Event Timelines: Whichever Your Faith, We Wish When: Thursday, February 23rd 5:45 FREE Light Supper Our Members and Friends Much Where: Room 113/115 6:15 Annual General Meeting Enjoyment During Your Holiday St. John Ambulance Building 7:15 Volunteer recognition event 12304-118th Ave. 8:00 Wrap-up Celebrations! Hanukkah Adult Support Group Schedule (Group meets from 1:00 - 3:00 p.m. in the EEA office.) Please call the Office to advise if you will be attending. Christmas (Support Group has been moved to Tuesdays.) New Year’s Eve Tuesday, November 8th, 2016 Tuesday, December 13th, 2016 Edmonton Epilepsy Association The Epilepsy Association of Northern Alberta Focus on Epilepsy is published 6 times annually by the Edmonton Epilepsy Association. Edmonton Epilepsy Association Articles appearing in Focus on Epilepsy do not nec- The Epilepsy Association of Northern Alberta essarily reflect the opinions of the Association. 11215 Groat Road NW Edmonton, AB T5M 3K2 We welcome your contributions: (780) 488-9600 Do you have a poem or maybe a short story (1/2 (780) 447-5486 fax page) that you would like to share with others. Or 1-866-EPILEPSY maybe you have read a book from our library and [email protected] want to share a review with others. If you would www.edmontonepilepsy.org like to share your wisdom, please submit your items to Sharon at our office or e-mail her at [email protected] Member Agency Link to E-Action’s On-line BOARD OF DIRECTORS Epilepsy Resource and President...Cheryl Renzenbrink Community Vice President...Ann Gillie Treasurer...Anna Tymoszejko Secretary…Cameron Reid Executive Director...Gary Sampley Directors-at-Large: Tammy Anast Szymon Bamburak EEA Employabilities Programs Guy Doucette Erin Duke Employment Counselling Assistance with Resumes Doug Griffiths Craig Heyland In-office Skills Training Tim McCallen Anne Starreveld Referrals to Select EEA Partners In Employability Brian Wilkie For Further Information contact EEA Executive Director, Gary Sampley, 488-9600 or [email protected] STAFF Gary Sampley... Executive Director & Chief Operating Bus Tickets Available for Members in Officer [email protected] Reduced Circumstances Sharon Otto... Program Manager & Education Our 2016 allotment of Donate-A-Ride bus tickets is now depleted. Coordinator However, Alberta Blue Cross has very kindly donated a number of [email protected] adult ticket packs to us to hopefully get us through till next April. Dr. Sunny Kim…Counsellor These can be accessed by MEMBERS with limited financial resources [email protected] who need help getting to medical appointments, EEA events, food shopping, etc., and who do not qualify for an AISH bus pass. Cam Reid…Volunteer Coordinator [email protected] Call 780-488-9600 or drop by to pick them up. Now you can Donate to the EEA online! If you would like to make either a lump sum Donation or a monthly donation contribution to the Association by credit card, please visit our website, www.edmontonepilepsy.org, and click on the Canada Helps Logo. This donation program gives you the ability to instantly print off a donation receipt. Page 2 Focus on Epilepsy News from the EEA Office Forty years ago, Dr. Elout Starreveld co-founded the Adult Convulsive Seizure Clinic at the Glenrose Hospital in Edmonton. He recently retired as the Director of the ACDC. On November 3rd, Dr. Starreveld was hon- oured in front of a capacity crowd in the Glenrose Audi- torium. The inscription on his presentation read: PRESENTED WITH DEEP APPRECIATION TO DR. ELOUT STARREVELD IN RECOGNITION OF YOUR MANY YEARS OF EXCEPTIONAL SERVICE TO THOSE WHO LIVE WITH EPILEPSY BY YOUR COLLEAGUES, YOUR PATIENTS, L. to R. Dr. Starreveld, ACDC R.N. Kim Mahe, YOUR STAFF AND THE EPILEPSY EEA Executive Director Gary Sampley, and COMMUNITY. ACDC Director Dr. Ken Makus WE ARE PROUD AND GRATEFUL TO HAVE KNOWN YOU. Annual Christmas Lunch and Social Saturday, December 10th, 12 – 3 p.m. Central Lions Seniors Centre, 11113 113 Street, Edmonton In keeping with our tradition of a different ethnic theme each year, this year will have a Portuguese theme, with entertainment by Rancho Pioneiros de Edmonton “ $15.00 per person (remainder EEA subsidized). Limited full subsidies available for those in need. Call the EEA office 780-488-9600 to book your seats (pre-registration by December 5th required). Everyone in attendance will get to take home a special gift of their choosing. 2016 Garage Sales - A Success! EEA held two fundraising garage sales - one in May and one in September. The total money raised from sales was $5140.65. which will go to help fund EEA Programs and Services Thank you to all our item donors and volunteers who worked the events! November - December 2016 Page 3 News from the EEA Office N Collective Kitchen Program Starting in January 2017 This is a combined support and training program to assist members living on a limited income who lack a knowledge of proper nutrition, as well of budgeting and cooking skills. Working collectively, course participants are guided into the world of nutrition and how it affects their seizures and overall health. The course also covers issues such as low cost cooking, food preparation, budgeting skills and planning ahead. A hands-on course, it has components of active teaching. Each participant gets to take home what they have cooked, usually four to six individual portions, in freezable containers capable of fitting into a fridge freezer compartment. The next Collective Kitchen Project runs from 12:30-3:00 pm on Friday January 13, February 10, March 17, April 14, May 12 and June 16. Interested members can phone Sharon at the EEA Office at 780-488-9600 to register. Registration is limited to eight participants. 2017 EEA Scholarship Awards The Edmonton Epilepsy Association will fund two $1000 Scholarships in 2017, for the purpose of assisting students to advance to or continue with College or University studies. Application for these Scholarships is open to Greater- Edmonton area students aged 17-29 years of age who are currently under a Canadian physician's care for epilepsy and are Canadian Citizens or who have permanent resident status. Visa students are not eligible for this award. Deadline for applications is March 1st, 2017 To download an application, visit our website: www.edmontonepilepsy.org, or call our Office at 780-488-9600 if you wish to receive one by mail. We’re Looking for an Achiever! Do you know someone living with Epilepsy who has accomplished significant success in life, inspiring others in the process? If you would like to nominate someone for our 2017 “Achiever of the Year” Award, please do so, in writing, to the EEA office by March 1st, 2017. If you have any questions about the criteria for the award, please contact EEA Executive Director Gary Sampley at 780-488-9600 or [email protected] Does Your Child or Teen Have Upcoming Sports, Arts, or Recreational Activities Costs? The Garry Hannigan Memorial Life Enhancement Scholarships for Youth, to a maximum of $500 each, are available for Youths of any age, up to the age of 18, to assist them in participating in Sports, Cultural or Recreational Activities that will enhance their development as individuals. Scholarship criteria, eligibility details and the current Application Form can be downloaded from www.edmontonepilepy.org, or a hard-copy Application can be mailed to you on request to the EEA Office, 780-488-9600. Page 4 Focus on Epilepsy . News From The EEA Office Mirella Nardi of Alberta Blue Cross presents EEA Executive Director Gary Sampley with 420 ETS Bus Tickets for the use of our members in need who do not qualify for the AISH bus pass. The tickets are a god-send for us, as our annual allot- ment of ETS Bus Tickets received in April was to- tally depleted in October. Thank you Blue Cross for your generosity and caring! EEA Member Tianna Lizotte, Age 14, On her return from the 2016 Miss Teen Canada Fort Vermillion, AB Globe Events, Tianna presents EEA Executive Direc- 4th Princess, Miss Teen Canada Globe, tor Gary Sampley with the proceeds of her fundrais- 2016 ing for epilepsy. Read Tianna’s Story Online in the March/April Thank you Tianna and Congratulations!! and May/June Editions of the EEA Newsletter November - December 2016 Page 5 Halloween Potluck, EEA Office Page 6 Focus on Epilepsy Halloween Potluck, EEA Office November - December 2016 Page 7 Epilepsy Awareness Gala Page 8 Focus on Epilepsy Epilepsy News From Around the World This is What It Is Like To Be A Young Person With Epilepsy It isn’t easy, but you can’t let it win.