BRIEFING PAPER Number 07103, 14 April 2020 Patient health records: By Elizabeth Parkin, Philip access, sharing and Loft confidentiality Inside: 1. Accessing and sharing patient health records 2. Sharing confidential patient information 3. Electronic health records 4. NHS data and cyber security 5. Patient Data, Apps and Artificial Intelligence (AI) 6. Cross-border data sharing after Brexit www.parliament.uk/commons-library | intranet.parliament.uk/commons-library |
[email protected] | @commonslibrary Number 07103, 14 April 2020 2 Contents Summary 3 1. Accessing and sharing patient health records 4 1.1 Charges to access records 5 1.2 Limiting access to health records 6 1.3 Parental access to child health records 6 1.4 Access to deceased patients’ health records 7 2. Sharing confidential patient information 9 2.1 Patient confidentiality and Covid-19 9 2.2 NHS Constitution and policy background 13 2.3 NHS Digital guidance on confidentiality 14 2.4 National Data Guardian for health and care 14 Caldicott principles 15 2.5 National Data Guardian for health and care: priorities for 2019/20 16 2.6 National data opt-out programme 17 2.7 Legal and statutory disclosures of information 18 2.8 Disclosure of NHS data to the Home Office 19 2.9 Public interest disclosures of patient information 20 2.10 Deceased patients 21 2.11 Assessment of capacity to give or withhold consent 23 2.12 Private companies contracted to provide NHS services 24 3. Electronic health records 25 3.1 NHS ‘paper-free’ by 2023 25 3.2 Summary Care Records 27 4.