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Gearing up for Hospice Advocacy in 2012

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Gearing up for Hospice Advocacy in 2012 The Monthly Membership Publication of the National Hospice and Palliative Care Organization February 2012 Inside Caring for LGBT Patients Gearing Up for Hospice Sexual orientation and gender identity are complex constructs that aren’t easy to make sense of. So what are the wrong questions to ask and what are the Advocacy in 2012 right ones when caring for patients at the end of life? Kimberly Acquaviva, a noted authority on LGBT aging, provides valuable guidance. Hospice in the Continuum In partnership with the local faith community, Family Hospice and Palliative Care launched a Transitions program in 2011 to improve access among African Americans in Pittsburgh’s Greater North Side. Learn more about the partnership and the results so far. The Voice of NCHPP NCHPP Spiritual Caregiver Section leader, Bonnie Meyer, discusses the need for a standardized tool to measure spiritual suffering— but also shares a tool now in Two Free Events to Help You Hone Your Skills and Hit the Hill Running use at Hospice of the Bluegrass. Meet NHPCO Hospice ith every member of the House of Representatives, one third of the Senate Ambassador, Torrey DeVitto and the White House up for election in 2012, the new year is going to be Short Takes W another political nail-biter—especially with issues like the national budget • Helping Families Cope With Grief crisis and entitlement reform hanging in the balance. So what does this mean for • MLC Learning Journal Wins the Gold hospice advocacy? • National Center Hosts Coalition It means that engaging members of Congress, both on the Hill and in their home states, Member News and Notes is going to be even harder than last year. While the summer months are generally the Regulatory Tip of the Month height of legislative activity during any Congressional session, the elections will make Resource Links to Bookmark June and July more eventful and action-packed. News From FHSSA To make sure “the voice of hospice” is heard through the noise, NHPCO and its affiliate, the Hospice Action Network (HAN), are offering two opportunities to help members hone their advocacy skills, network with colleagues, and begin building or developing relationships with members of Congress. And they’re making both events free for NHPCO provider-members and staff. continued on next page continued from previous page New HAN Advocacy Intensive June 18 and 19, 2012 Being held just two blocks from the U.S. Capitol at the Washington Court Hotel, this two-day conference will focus exclusively on Hospice Advocacy, and teach best practices that you can use when interacting with members of Congress. And, as noted earlier, any and all members of the hospice community are encouraged to participate, from clinicians to development managers to volunteers. Hospice Advocates with NHPCO president/CEO, Don Schumacher, during a past Hill Day. Over the course of two days, participants will: On March 27 and 28, NHPCO of the U.S. Capitol). There will be • Get a political ‘snapshot’ of and HAN will host their fourth high-level concurrent sessions, the current Hill climate and annual Hill Day, being held in a Congressional staff panel, how it relates to hospice care conjunction with the Management and a Congressional keynote back home (information that’s and Leadership Conference at address, plus a Pep Rally to kick helpful for meetings on the the Gaylord National Hotel and off meetings on the Hill. This Hill as well as meetings with Convention Center (just eight Intensive is designed for leaders, your board). miles from Capitol Hill). Each staff and advocates at every • Hear directly from key year this event gets better, and level— board members and senior Hill staff during a panel this year is no exception. Based leadership, interdisciplinary team discussion on best practices on feedback from participants, members, volunteers, and even (e.g., communicating with Hill Day 2012 will include new patients and families. members of Congress during virtual strategy sessions that will Here is an overview of the two site visits, meetings, and other be offered in advance of the event. opportunities so you, your staff situations). Then on June 18 and 19, the and your hospice supporters can • Attend an evening dinner, HAN Advocacy Intensive will be plan for and, hopefully, attend one with a keynote address by a held, also in Washington, at the or both. current member of Congress. historic Washington Court Hotel • Network and participate in (which is literally in the shadow message coordination sessions continued on page 4 2 NewsLine NHPCO Reports on Hospice Care in America One of the projects that NHPCO is widely recognized for is the annual report, Facts and Figures: Hospice Care in America. This report provides an overview of trends in the growth, delivery, and quality of hospice care at the national level. A wide variety of statistics related to patient and provider characteristics are presented, as well as information on length of service, location and level of care, and staff and volunteer commitment. This highly regarded document is used by providers, others in the healthcare community, regulators, legislators and the media. NHPCO’s ability to make it available to the public affirms our role as a leadership organization. Every year we improve the report, building on the previous year’s edition. Two additions to this 2011 edition include sections on hospice use by Medicare beneficiaries and those within the nursing home population. Also new is an appendix that details the accuracy of NHPCO’s national estimates. The NHPCO Research Team works incredibly hard to bring together data—from many sources—to provide this comprehensive look at hospice care. The data come from state health and hospice associations, the Medicare Provider of Service file from CMS, and provider-member submissions to NHPCO’s annual National Data Set. All of you who participate in the National Data Set are an important part of the process. For your commitment and participation, I extend my deepest appreciation. If you have not read the report yet, please download a copy from the NHPCO website. It is featured in the News Room as well as in the Research section of the website. In next month’s issue of NewsLine, we will also look a bit more closely at some of the findings. J. Donald Schumacher President/CEO NewsLine 3 continued from page 2 with other attendees from your state who share similar concerns, challenges and goals. • Re-energize at a Pep Rally— with all attendees and some surprise guests. (The Rally is also a great opportunity for photos that can be used in newsletters and local media outreach.) • Meet with members of Congress (to be scheduled beforehand by HAN staff). During the Advocacy Intensive, participants will also have the Hospice Advocates compare notes during a strategy session at Hill Day 2010. opportunity to attend one of three concurrent educational sessions, something that will stand for the seasoned Hospice each focusing on a different out in your community. (This Advocate. Drawing on 50 aspect of Hospice Advocacy: session is an ideal choice for years of collective experience In-District Advocacy Session those interested in grassroots as senior-level Hill staffers This session will provide the activity and for first-time HAN and consultants, the panel basics on how to build on attendees.) will discuss the current political environment and the work you are doing on Media Advocacy Session how to best leverage your Capitol Hill once you return This session will show you advanced relationships with home, such as planning a how to get positive stories congressional offices into tour of your program with placed in your local media tangible advocacy results. your members of Congress, about your interactions with becoming a ‘go-to’ source members of Congress, along Registration is Free, But for him or her, and creating with tactics to help raise the Limited—So Book Early video testimonials. You’ll profile of hospice in your area. While participants will be also learn how to implement responsible for their travel and Lobbyist Roundtable Session these initiatives with minimal hotel accommodations, there is This session convenes a staff or material resources no charge for attending the HAN bipartisan panel of HAN and develop strategies to Advocacy Intensive. However, lobbyists to provide insights translate your advocacy into space is limited to 250 attendees— 4 NewsLine so please be sure to book early. coordination really pays off, with Registration will open in March. the hospice community making “We envision hospice To learn more now, send an email a strong impression during their managers and to [email protected]. meetings on the Hill. leaders speaking with When planning your trip, consider So this year, NHPCO and HAN legislators and their staying a few extra days. You can will offer two strategy sessions staff during Hill Day enjoy the sights of the city and rub in advance of Hill Day—in the in March. Then, at the elbows with DC insiders at one of convenient form of Webinars. Advocacy Intensive the many power spots around the Webinar dates and times (ET) are The Washington Court Hotel and as follows: in June, having the Capitol. (HAN staff will be happy voice of leadership, Hill Meeting Fundamentals: to offer suggestions.) You will interdisciplinary team March 13 (2 p.m.); March 14 also be just blocks away from the (6 p.m.); or March 19 (1 p.m.) members, and patients National Mall—near several of the and families heard Smithsonian museums and many Communicating with Congress: throughout the halls of of our nation’s monuments. How to Turn a 10-Minute Meeting with a Legislator into a Life-Long Congress.” Hill Day 2012 Relationship: March 27 and 28, 2012 Don Schumacher February 23 (6 p.m.); March 7 NHPCO President/CEO This annual advocacy event (1 p.m.); or March 13 (3 p.m.) is, once again, being held in Other Important Notes conjunction with the Management Hill Day registration will begin and Leadership Conference at at 5:00 p.m.
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