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The Cerebral Subject and the Challenge of Neurodiversity
BioSocieties (2009), 4, 425–445 ª London School of Economics and Political Science doi:10.1017/S1745855209990287 The Cerebral Subject and the Challenge of Neurodiversity Francisco Ortega Institute for Social Medicine, State University of Rio de Janeiro, Rua Saˇ o Francisco Xavier 524, Rio de Janeiro CEP 20550-900, Brazil E-mail: [email protected] Abstract The neurodiversity movement has so far been dominated by autistic people who believe their condition is not a disease to be treated and, if possible, cured, but rather a human specificity (like sex or race) that must be equally respected. Autistic self-advocates largely oppose groups of parents of autistic children and professionals searching for a cure for autism. This article discusses the posi- tions of the pro-cure and anti-cure groups. It also addresses the emergence of autistic cultures and various issues concerning autistic identities. It shows how identity issues are frequently linked to a ‘neurological self-awareness’ and a rejection of psychological interpretations. It argues that the preference for cerebral explanations cannot be reduced to an aversion to psychoanalysis or psychological culture. Instead, such preference must be understood within the context of the dif- fusion of neuroscientific claims beyond the laboratory and their penetration in different domains of life in contemporary biomedicalized societies. Within this framework, neuroscientific theories, prac- tices, technologies and therapies are influencing the ways we think about ourselves and relate to others, favoring forms of neurological or cerebral subjectivation. The article shows how neuroscien- tific claims are taken up in the formation of identities, as well as social and community networks. -
The Joy of Autism: Part 2
However, even autistic individuals who are profoundly disabled eventually gain the ability to communicate effectively, and to learn, and to reason about their behaviour and about effective ways to exercise control over their environment, their unique individual aspects of autism that go beyond the physiology of autism and the source of the profound intrinsic disabilities will come to light. These aspects of autism involve how they think, how they feel, how they express their sensory preferences and aesthetic sensibilities, and how they experience the world around them. Those aspects of individuality must be accorded the same degree of respect and the same validity of meaning as they would be in a non autistic individual rather than be written off, as they all too often are, as the meaningless products of a monolithically bad affliction." Based on these extremes -- the disabling factors and atypical individuality, Phil says, they are more so disabling because society devalues the atypical aspects and fails to accommodate the disabling ones. That my friends, is what we are working towards -- a place where the group we seek to "help," we listen to. We do not get offended when we are corrected by the group. We are the parents. We have a duty to listen because one day, our children may be the same people correcting others tomorrow. In closing, about assumptions, I post the article written by Ann MacDonald a few days ago in the Seattle Post Intelligencer: By ANNE MCDONALD GUEST COLUMNIST Three years ago, a 6-year-old Seattle girl called Ashley, who had severe disabilities, was, at her parents' request, given a medical treatment called "growth attenuation" to prevent her growing. -
The Stone Age Origins of Autism
Chapter 1 The Stone Age Origins of Autism Penny Spikins Additional information is available at the end of the chapter http://dx.doi.org/10.5772/53883 ‘Their strengths and deficits do not deny them humanity but, rather, shape their humanity’ Grinker 2010: 173 [in [1]] © 2013 Spikins; licensee InTech. This is an open access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/3.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. 4 Recent Advances in Autism Spectrum Disorders - Volume II 1. Introduction 1.1. Minds from a stone age past Our modern societies have been said to house ‘stone age minds’ (see [2]). That is to say that despite all the influences of modern culture our hard wired neurological make-up, instinc‐ tive responses and emotional capacities evolved in the vast depths of time which make up our evolutionary past. Much of what makes us ‘human’ thus rests on the nature of societies in the depths of prehistory thousands or even millions of years ago. Looking back on the archaeological record of the early stone age there is much to be proud of in our ancestry. Not only our remarkable intelligence but also our deep capacities to care about others and work together for a common good come from evolutionary selection on early humans throughout millions of years of the stone age. As far back as 1.6 million years ago we have archaeological evidence from survival of illnesses and trauma that those who were ill were looked after by others, and by the time of Neanderthals extensive care of the ill, infirm and elderly was common, see [3,4]. -
Autism and Neurodiversity
If you or someone in your family has received a diagnosis, or identifies Autism and as on, the autism spectrum, you might be interested in knowing more about the neurodiversity movement. The neurodiversity movement can Neurodiversity provide a source of support and information about living with autism. WHAT IS NEURODIVERSITY? Neurodiversity is the differences in people’s brains that affect how we experience the world. The neurodiversity movement (NDM) argues that forms of ‘neurodivergence’ such as autism, dyslexia, and ADHD are inherent and valuable parts of the spectrum of human variation. There is no ‘right’ or ‘wrong’ way to develop. There is no ‘normal’ brain. THE SOCIAL MODEL OF DISABILITY Ideas about Neurodiversity parallel the social model of disability, which recognises that the negative consequences of having an impairment – i.e, the disabling quality of a condition – are often caused by societal structures rather than the condition itself. For example, some autistic persons may react badly to lights or sounds that are common in the social world as they may overstimulate their senses. The social model of disability argues that barriers in society create disability, and require reasonable adjustments for those who need them. There are parallels between the neurodiversity movement and other social justice movements like the broader disability rights movement and feminism. RESOURCES Blog posts The Neurodiversity Movement n ‘Autism Resources’ by Kit Mead n ‘Welcome to parenting within the Neurodiversity Paradigm’ WHO IS INVOLVED? by Ally Grace People like you: n ‘Here’s What Neurodiversity Is – n Autistic people and others discriminated against for their And What It Means for Feminism’ differences. -
Autism, Creativity and Aesthetics
Open Research Online The Open University’s repository of research publications and other research outputs Autism, Creativity and Aesthetics Journal Item How to cite: Roth, Ilona (2018). Autism, Creativity and Aesthetics. Qualitative Research in Psychology, 17(4) pp. 498–508. For guidance on citations see FAQs. c 2018 Taylor Francis https://creativecommons.org/licenses/by-nc-nd/4.0/ Version: Accepted Manuscript Link(s) to article on publisher’s website: http://dx.doi.org/doi:10.1080/14780887.2018.1442763 Copyright and Moral Rights for the articles on this site are retained by the individual authors and/or other copyright owners. For more information on Open Research Online’s data policy on reuse of materials please consult the policies page. oro.open.ac.uk 1 Autism, Creativity and Aesthetics Ilona Roth Affiliation Dr Ilona Roth, BA (Hons), DPhil, BA (Hons) Hum (Open), CPsychol, AFBPsS Senior Lecturer in Psychology, School of Life, Health and Chemical Sciences, The Open University Contact details School of Life, Health and Chemical Sciences, STEM Faculty, The Open University, Walton Hall, Milton Keynes, MK 7 6AA, United Kingdom [email protected] Biographical note Ilona Roth is Senior Lecturer in Psychology, School of Life Health and Chemical Sciences, The Open University. With background in cognitive psychology, she has teaching and research specialisms in autism. Roth’s longstanding personal and professional interest in the arts led her recently to complete a degree in Humanities and Romance languages. She is author of film, multi-media and written material on autism, including Roth et.al. (2010) ‘The Autism Spectrum in the 21st Century: Exploring Psychology, Biology and Practice’. -
Rethinking Autism, Communication, and Community
Portland State University PDXScholar Dissertations and Theses Dissertations and Theses Winter 3-31-2015 Rethinking Autism, Communication, and Community Involvement: Exploring Involvement in Online Communities, Communication Preference, Autistic Identity, and Self-Determination Colleen Anne Kidney Portland State University Follow this and additional works at: https://pdxscholar.library.pdx.edu/open_access_etds Part of the Psychology Commons Let us know how access to this document benefits ou.y Recommended Citation Kidney, Colleen Anne, "Rethinking Autism, Communication, and Community Involvement: Exploring Involvement in Online Communities, Communication Preference, Autistic Identity, and Self-Determination" (2015). Dissertations and Theses. Paper 2224. https://doi.org/10.15760/etd.2221 This Dissertation is brought to you for free and open access. It has been accepted for inclusion in Dissertations and Theses by an authorized administrator of PDXScholar. Please contact us if we can make this document more accessible: [email protected]. Rethinking Autism, Communication, and Community Involvement: Exploring Involvement in Online Communities, Communication Preference, Autistic Identity, and Self-Determination by Colleen Anne Kidney A dissertation submitted in partial fulfillment of the requirements for the degree of Doctor of Philosophy in Applied Psychology Dissertation Committee: Eric Mankowski, Chair Katherine E. McDonald Greg Townley Christina Nicolaidis Laurie Powers Portland State University 2015 i Abstract Autistic individuals experience marginalization and stigmatization, and are often not connected to mainstream services or organizations fostering peer relationships (Boundy, 2008; Jaarsma & Welin, 2012; Robertson, 2010). Therefore, the accomplishments of the online Autistic community in building a community for self- advocacy, peer-support, friendships, and identity development (Brownlow & O’Dell, 2006; Kidney, 2012) are important to recognize, empirically examine, and promote (Blume, 1997a; Davidson, 2008). -
Understanding and Promoting the Human Rights of Autistic People
Societies Without Borders Volume 15 Issue 1 The Human Right to Science Article 3 7-15-2021 Understanding and Promoting the Human Rights of Autistic People Keri E. Iyall Smith PhD Suffolk University, [email protected] Follow this and additional works at: https://scholarlycommons.law.case.edu/swb Part of the Human Rights Law Commons, and the Social and Behavioral Sciences Commons Recommended Citation Iyall Smith, Keri E.. 2021. "Understanding and Promoting the Human Rights of Autistic People." Societies Without Borders 15 (1). Available at: https://scholarlycommons.law.case.edu/swb/vol15/iss1/3 This Article is brought to you for free and open access by the Cross Disciplinary Publications at Case Western Reserve University School of Law Scholarly Commons. It has been accepted for inclusion in Societies Without Borders by an authorized administrator of Case Western Reserve University School of Law Scholarly Commons. Iyall Smith: Understanding and Promoting the Human Rights of Autistic People Understanding and Promoting the Human Rights of Autistic People Keri E. Iyall Smith Suffolk University 8 Ashburton Place, Boston MA 02108, email: [email protected] Acknowledgements: I would like to thank Mark Frezzo for his efforts to organize the International Sociological Association’s Thematic Group 03 session “Sociological Perspectives on Economic and Social Rights,” where this paper was first shared (Toronto 2019). I am also grateful to my fellow panelists, Anne Bryden, Brian Gran, Elaine Thais Lima, Maria Soledad Etcheverry, Marie Sépulcrchre, Zuzana Kusa, Paula Pinto and Teresa J. Pinto, and our excellent audience, all of whom helped me to deepen my work on this paper. -
Cognitive Functions and Calendar Calculation
Клиническая и специальная психология Clinical Psychology and Special Education 2021. Том 10. № 1. С. 1–14. 2021, vol. 10, no. 1, pp. 1–14. DOI: 10.17759/cpse.2021100101 DOI: 10.17759/cpse.2021100101 ISSN: 2304-0394 (online) ISSN: 2304-0394 (online) Психические функции лиц с РАС Mental functions of persons with ASD Клинический случай человека с синдромом саванта из Турции: когнитивные функции и календарный расчет Биджакджи М. Университет Хаджеттепе, г. Анкара, Турция, ORCID: https://orcid.org/0000-0001-6865-9328, e-mail: [email protected] Кексал М.С. Университет Хаджеттепе, г. Анкара, Турция, ORCID: https://orcid.org/0000-0002-2185-5150; e-mail: [email protected] Балоглу М. Университет Хаджеттепе, г. Анкара, Турция, ORCID: https://orcid.org/0000-0003-1874-9004, e-mail: [email protected] Настоящее исследование представляет собой детальный отчет о клиническом случае человека с синдромом саванта из Турции. Авторы собрали информацию о мужчине 25 лет с синдромом саванта касательно возможностей его когнитивных функций: внимания, кратковременной памяти, автобиографической памяти, общего интеллекта, скорочтения, интерпретации текста и способностей к календарным расчетам. Сбор данных основывался на следующих методах: Тест невербального интеллекта (4-е издание) и пересмотренный Тест интеллекта Векслера для взрослых; цветные прогрессивные матрицы Равена на память; тест d2 на внимание; структурированный текст на чтение; протоколы интервью с семьей; а также протокол индивидуального интервью. Общий интеллектуальный уровень участника исследования составил 85 баллов, при этом незадолго до проведения данного исследования ему (в возрасте 25 лет) был поставлен диагноз общего нарушения развития. Человек с синдромом саванта продемонстрировал ограниченный объем внимания, но отличный уровень кратковременной, рабочей и автобиографической памяти, а также способности к календарным расчетам. -
Re-Storying Autism: a Body Becoming Disability Studies in Education Approach
This is a repository copy of Re-storying autism: a body becoming disability studies in education approach. White Rose Research Online URL for this paper: http://eprints.whiterose.ac.uk/140775/ Version: Accepted Version Article: Douglas, P., Rice, C., Runswick-Cole, K. et al. (5 more authors) (2019) Re-storying autism: a body becoming disability studies in education approach. International Journal of Inclusive Education. ISSN 1360-3116 https://doi.org/10.1080/13603116.2018.1563835 This is an Accepted Manuscript of an article published by Taylor & Francis in International Journal of Inclusive Education on 04/01/2019, available online: http://www.tandfonline.com/10.1080/13603116.2018.1563835 Reuse Items deposited in White Rose Research Online are protected by copyright, with all rights reserved unless indicated otherwise. They may be downloaded and/or printed for private study, or other acts as permitted by national copyright laws. The publisher or other rights holders may allow further reproduction and re-use of the full text version. This is indicated by the licence information on the White Rose Research Online record for the item. Takedown If you consider content in White Rose Research Online to be in breach of UK law, please notify us by emailing [email protected] including the URL of the record and the reason for the withdrawal request. [email protected] https://eprints.whiterose.ac.uk/ Re-storying Autism: A Body Becoming Disability Studies in Education Approach Douglas, P.a*, Rice, C.b, Runswick-Cole, K.c, Easton, A.d, Gibson, M. F.e1, Gruson-Wood, J.f2, Klar, E.g, and R. -
Autism Offers a Significantly Validating Reading of Apophatic and A-Theological Texts
Dunster, Ruth M. (2017) Mindfulness of separation: an autistic a- theological hermeneutic. PhD thesis. http://theses.gla.ac.uk/8205/ Copyright and moral rights for this work are retained by the author A copy can be downloaded for personal non-commercial research or study, without prior permission or charge This work cannot be reproduced or quoted extensively from without first obtaining permission in writing from the author The content must not be changed in any way or sold commercially in any format or medium without the formal permission of the author When referring to this work, full bibliographic details including the author, title, awarding institution and date of the thesis must be given Enlighten:Theses http://theses.gla.ac.uk/ [email protected] Mindfulness of separation: an autistic a-theological hermeneutic Ruth M Dunster MA MTh Submitted in fulfilment of the requirements for the degree of PhD Department of Theology and Religious Studies School of Critical Studies College of Arts University of Glasgow November 2016 ©Ruth M Dunster November 2016 1 Abstract This thesis argues that a literary hermeneutic based on a mythology of autism offers a significantly validating reading of apophatic and a-theological texts. Instead of a disability, this mythologised autism is read as a valid and valuable poetic theological thinking. The thesis argues that a mythological autism could be envisioned as a trinity, analogous to the three-in-one Godhead of Christianity. This means that each facet of the mythological autistic trinity is indissoluble from the others, are all are equally autism. The first element is termed Mindfulness of Separation, and this entails absence and unknowing as has been conceptualised in Baron Cohen’s theory of Mindblindness. -
Asperger Syndrome
Texto de apoio ao curso de especialização Atividade física adaptada e saúde Prof. Dr. Luzimar Teixeira Asperger syndrome (sometimes called Asperger's syndrome, AS, or the more common shorthand Asperger's), is characterized as one of the five pervasive developmental disorders, and is commonly referred to as a form of high-functioning autism. In very broad terms, individuals with Asperger's have normal or above average intellectual capacity, and atypical or poorly developed social skills, often with emotional/social development or integration happening later than usual as a result. Asperger described his patients as "little professors". The term "Asperger's syndrome" was coined by Lorna Wing in a 1981 medical paper. She named the syndrome after Hans Asperger, an Austrian psychiatrist and pediatrician who himself had used the term autistic psychopathy. Contents [hide] • 1 Prevalence • 2 Characteristics o 2.1 Social impairments o 2.2 Narrow, intense interests o 2.3 Speech and language peculiarities o 2.4 Other characteristics • 3 Living with Asperger syndrome • 4 Definitions and diagnostic criteria • 5 Relationship to autism • 6 A gift and a curse o 6.1 Speculation about recognized people who may have Asperger syndrome o 6.2 Shift away from view as a disease • 7 Causes and etiology • 8 Controversies • 9 Culture • 10 See also • 11 Further reading • 12 References • 13 External links [edit] Prevalence A 1993 total population study carried out in Sweden found that, at a minimum, 3.6 per 1000 school-aged children definitely meet the criteria for Asperger syndrome. If merely suspected cases are included, the prevalence becomes approximately 7.1 per 1000 (Ehlers & Gillberg). -
"Genetics of Mathematical Aptitude" In
Genetics of Mathematical Advanced article Article Contents Aptitude • Introduction • Quantifying Mathematical Aptitude Varun Warrier, Autism Research Centre, Department of Psychiatry, University of • Mathematical Aptitude, Disability and Talent Cambridge, Cambridge, UK • Individual and Group Differences in MA Simon Baron-Cohen, Autism Research Centre, Department of Psychiatry, Uni- • Molecular Genetic Studies • versity of Cambridge, Cambridge, UK and CLASS Clinic, Cambridgeshire and Peterborough Conclusions NHS Foundation Trust (CPFT), Cambridgeshire, UK Online posting date: 16th August 2016 Normative variation in mathematical aptitude and arithmetic, suggesting evolutionary conservation of brain (MA) is relevant to many aspects of societal regions for numerosity (Hubbard et al., 2008). Several studies functioning, in particular for occupations in sci- have established numerosity in infants, suggesting that certain ence, technology, engineering and mathematics aspects of MA may be innate, and these are supported by studies that have identified a heritable component to MA. More recent (STEM). Though elements of numerosity have studies have focused on other aspects of MA, including sub- been identified in some animals, complex MA is domains of MA, and genetic correlation with other traits such uniquely human. Several studies, using a variety as reading and general intelligence (g). These studies have also of designs, have investigated the heritability of investigated changes in heritability of MA with time. A few MA, and the extreme ends of the dimension of this studies have also investigated the heritability of mathematical tal- trait – mathematics learning disability (MLD) and ent (MT) and mathematical learning disability (MLD). Over the mathematical talent (MT). Initial estimates of the last decade, molecular genetic investigations have provided novel heritability of MA ranged from 0.2 to 0.9, while insights into the genetic architecture of MA, suggesting that MA later studies identify more modest heritabilities is polygenic.