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25 Years of ADA: Progress, Promise and Potential

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American Cowgirl Road Trip USA New Perspectives 25 Years of ADA: Progress, Promise and Potential life beyond wheels newmobility.com JUL 2015 $4 CONQUER CONCRETE WITH THE WIJIT LEVER-DRIVE & BRAKING SYSTEM Wijits are the fast, fun, easy-to-use lever-drive & conditioning and help you sustain a healthy lifestyle. braking system that attach to your manual wheelchair Covered by the VA and most public and private and let you stop safer, turn sharper, climb higher, insurance, Wijits allow you to use one wheelchair and go further than you can in a standard push-rim to exercise, traverse your campus or workplace, wheelchair; without the sore shoulders, torn gloves, and deftly maneuver within your home. Wijits are or dirty hands that are endemic to push-rim use. available in 20”, 24” and 25” wheel sizes, making Unlike power-assist devices, Wijits enhance them the perfect propulsion system for children, your cardiovascular adults and seniors. Call us today to schedule a demo or to learn more about the entire line of innovative products from Innovations Health. Extend Your Reach with GoWing Dynamic Arm Support Whether you need a little assistance or a lot of help, the GoWing Dynamic Arm Support from Innovations Health Devices helps you get more out of life. GoWing quickly mounts on any power wheelchair and provides assistive support for your arm to let you easily reach objects that are currently beyond your grasp. (800) 659-4548 Powered by www.InnovationsHealth.com CONQUER CONCRETE Wijit-master Claire has rocked Wijits since she was three. Watch her carve up the concrete at www.facebook.com/InnovationsHealth. ErGOtrans safe transfer harness ErGOtrans GoWing safe transfer harness Powered by We’re so excited, we flipped our lid. VaPro Plus includes an integrated 1000 mL collection bag VaPro Touch Free Hydrophilic Intermittent Catheter The right balance of ease of use and protection now available with or without an integrated collection bag. • The protective sleeve allows you to grip the catheter anywhere. • Prehydrated and ready to use—no need for additional lubricant. Call 1.888.740.8999 to request a sample* For more information, visit hollisterpeoplefirst.com *RX Only. Federal (USA) Law restricts this device to sale by or on the order of a physician or other healthcare practitioner licensed under state law to order this product. The Hollister logo, VaPro and VaPro Plus are trademarks of Hollister Incorporated. © 2014 Hollister Incorporated 922739 CONTENTS VOLUME 26 NUMBER 262 July 2015 life beyond wheels FEATURES 13 AMERICAN COWGIRL Amberley Snyder was born to ride horses. Becoming paralyzed at the age of 18 has only fed her lifelong passion. BY NATALEA WATKINS 21 USA ROAD TRIP Two Harvard freshmen drive cross-country — from San Francisco to Boston — to get a firsthand view of accessibility. BY IAN RUDER 26 ADA PHOTO ALBUM As part of our ADA Celebration coverage, 20 photos capture key moments of ADA history, many taken by photographers with disabilities. COVER STORY 25 YEARS OF ADA 26 A comprehensive look back at the law that changed our lives for the better: JOSIE BYZEK documents the people and the issues that led to the writing of the ADA; JAMES WEISMAN recounts how the law itself has evolved from its inception to today; NM READERS tell us how their individual lives have changed as a result of the law; and the NM STAFF offers their take on what remains to be done. Cover and Contents Photos by Rachel Bridges/disABILITY History Museum DEPARTMENTS 4 BULLY PULPIT 44 UNITED SPINAL NEWS 5 CONTRIBUTORS 48 PARA/MEDIC 6 LETTERS 50 OUTDOOR TRACKS 8 NEWS 52 ERVIN 10 SCI LIFE 55 CLASSIFIEDS 43 SPOTLIGHT 56 CRIP BUZZ BULLY PULPIT life beyond wheels JULY 2015 NEW MOBILITY IS THE MONTHLY MAGAZINE OF PRESIDENT & CEO: JOE GASKINS VICE PRESIDENT OF PUBLICATIONS: JEAN DOBBS EDITORIAL Winning Hearts and Minds EDITORIAL DIRECTOR: JEAN DOBBS I was thrilled when the ADA was imple- millions retrofitting the arena. EDITOR: TIM GILMER mented in 1992. After more than 25 years About the same time, I took in a movie MANAGING EDITOR: JOSIE BYZEK SENIOR EDITOR: IAN RUDER as a wheelchair user, I was sick of fighting at a newly remodeled multiplex and found SENIOR CORRESPONDENT: BOB VOGEL stairways, inaccessible restroom stalls, and that my only choice of seating was in the job discrimination. But it didn’t take long to first row, about six feet from the screen. making travel easy for individuals with spinalEDITORIAL cord disabilitie SUBMISSIONS:s [email protected] discover that very few nondisabled people I could not even physically watch the knew the law existed. And most of those movie or read the subtitles. Like Allen, the who did know thought of the ADA as an theater chain’s owners ignored warnings CUSTOMER SERVICE optional “special consideration.” and complaints. I sued, along with others, One of those people was Paul Allen, the and after years of appeals the Supreme Toll-free 800/404-2898, billionaire owner of the Portland Trailblaz- Court forced compliance. Prior to the trial, ext. 7203 ers pro basketball team. In 1993, Allen I wrote a story about the blatant disregard began construction on the Rose Garden, of the ADA and our civil rights and sent it ADVERTISING SALES the Trailblazers basketball arena. Local to the only magazine I could find that was disability advocates had pointed out prior interested in both disability discrimination 718/803-3782 to the beginning of construction that mul- and quality production. That was my first NATIONAL SALES MANAGER: tiple ADA violations would follow if it went NEW MOBILITY story as a freelancer. MEGAN LEE, EXT. 7253 AD MATERIALS: forward as planned. Allen, normally an A year later I wrote my first cover story, DEANNA FIKE, EXT. 7250 agreeable man, ignored their warnings. an exposé of a wealthy coastal community On my first trip to the Rose Garden I sat in Oregon whose mayor and city council re- PRODUCTION in the only space available — at the very fused to acknowledge a disabled resident’s PRODUCTION MANAGER: DEANNA FIKE top of the arena in the “gimp ghetto” — no complaints about inaccessible sidewalks restrooms or concessions, just a concrete and businesses, one of them owned by the CIRCULATION pathway with rails. My daughter and I had mayor. The resident sued, and the city coun- CIRCULATION MANAGER: to bend forward and peer over a clear plas- cil chose to spend hundreds of thousands of BEVERLY SMITH tic “safety railing” just to see the postage dollars to combat the suit rather than spend CIRCULATION COORDINATOR: stamp-sized court hundreds of feet below. the money to remedy the lack of access. MARIA KURTZ I was angry. Their defiant position was supported by the A local attorney, Bob Pike, also a wheel- national Chamber of Commerce. POSTMASTER: Send address changes to New Mobility, 120-34 It is an understatement to say the ADA Queens Blvd, #320, Kew Gardens NY 11415. chair user, was angrier. He had bought Subscription rates: $27.95/year; $35.95/year in Canada; season tickets — excellent seats at $100 a encountered rough sledding in the begin- $67.95/year international via airmail. pop — but couldn’t see the game when ning. Even now, as then, the struggle is not New Mobility (ISSN 1086-4741), Volume 26, Issue 262, is published monthly by United Spinal Association. everyone stood up and blocked his view only about access, it is also about good will. Copyright 2015, all rights reserved. Reproduction without permission of any material contained herein is strictly whenever something exciting happened, Persistent advocacy has won many battles, prohibited. We welcome comments; meaning almost the entire fourth quarter. but the true victory will come when we win we reserve the right to edit submissions. Pike sued, as did the Department of Justice, the hearts and minds of the public. Periodicals postage paid at Flushing, NY and additional mailing offices. and eventually Allen had to spend tens of — TIM GILMER www.newmobility.com 4 NEW MOBILITY CONTRIBUTORS life beyond wheels JULY 2015 A key negotiator with Congress in drafting and supporting pas- CONTRIBUTING sage of the Americans with Disabilities Act, James Weisman has EDITORS worked to ensure the civil rights of people with disabilities and enhance their quality of life for more than 30 years. He is a long- MICHAEL COLLINS time senior vice president and general counsel of United Spinal MIKE ERVIN Association and was also a founding member of the board of ROXANNE FURLONG directors of the American Association of People with Disabilities. RICHARD HOLICKY In 2004, he was presented with the Universal Accessible PRISCILLA MALTBIE Transportation Award by United States Transportation Secretary ALLEN RUCKER Norman Mineta. He resides in Oyster Bay, N.Y. ROBERT SAMUELS ERIC STAMPFLI ELLEN STOHL Debbie Johnson has been a physical therapist for 15 years in BOB VOGEL rehab settings from North Carolina to Alaska. She has served on LOREN WORTHINGTON North Carolina’s Spinal Cord Injury Association’s board for 10 years, helping start the Raleigh Sidewinders Quad Rugby team and contributing to the chapter newsletter. Outside of work, her passions involve anything active, outdoors, and furry/four- COMMUNITY PARTNERS legged. She also occasionally dabbles in welding. She currently makes her home in the mountains of Asheville, N.C., with her KIM ANDERSON dogs, Tex and Molly, and cat, Willis. CHRISTIAAN “OTTER” BAILEY MARTY BALL FINN BULLERS TIFFINY CARLSON A disability rights attorney and professional photographer, Mary LAWRENCE CARTER-LONG Lou Mobley graduated from Duke Law in 1990 and began enforc- ing the ADA when it first went into effect. A person with a disability RORY COOPER herself, she lives with major depression and anxiety.
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