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In Europe the Alzheimer Europe Magazine Issue 12 September 2012 DEMENTIA IN EUROPE THE ALZHEIMER EUROPE MAGAZINE SPecial secTION DEDica TO AUS TED THIS issueTRIA IN Maria Guzenina- Richardson, EU Commissioner Androulla Vassiliou discusses European Finnish Minister initiatives to address Alzheimer’s disease. of Health and Social Services, highlights the newly-launched Finnish Memory Liam Aylward, MEP (Ireland) Programme hosts a lunch debate on Alzheimer’s disease in the European Parliament. Aresenio Hueros Iglesias considers the consequences of recent austerity measures in Spain. TABLE OF CONTENTS 04 Welcome By Heike von Lützau-Hohlbein, Chairperson of Alzheimer Europe. Prioritising Dementia Policy Watch 06 Debating dementia 18 Addressing dementia in the EU in the European Parliament Androulla Vassiliou, European Commissioner A summary of Alzheimer Europe’s 13th lunch for Education, Culture, Multilingualism and debate, which was hosted by Liam Aylward, Youth, discusses the various ways in which MEP (Ireland) and focused on how European European initiatives may help people with health and research programmes are helping dementia and their carers. to address Alzheimer’s disease. 21 National Memory Programme, 11 Alliance in action Finland An update on some of the European A special report on the newly-launched Alzheimer’s Alliance members’ work to raise National Memory Programme, including Alzheimer Europe Board the awareness of dementia. interviews with Maria Guzenina-Richardson, Heike von Lützau-Hohlbein (Germany), Finnish Minister of Health and Social Services Chairperson 12 Ethical issues linked to restrictions and with Eila Okkonen, Executive Director, Iva Holmerová (Czech Republic), The Alzheimer Society of Finland. In addition, Vice-Chairperson of freedom of people with dementia Maria do Rosário Zincke dos Reis (Portugal), a carer lists what they expect and Sirpa Honorary Treasurer Dianne Gove, Information Officer, Alzheimer Pietikäinen, MEP (Finland) talks about the Sigurd Sparr (Norway), Europe, highlights the main points from Programme. Honorary Secretary Sabine Henry (Belgium) the first meeting of the working group on 25 Liane Kadusch-Roth (Luxembourg) the ethical issues linked to restrictions of Austerity measures Patrick Maugard (France) freedom of people with dementia. Maurice O’Connell (Ireland) The impact of austerity measures on people Sirpa Pietikäinen (Finland) 15 Comparing national dementia with dementia and their carers is discussed Alicja Sadowska (Poland) by Arsenio Hueros Iglesias, President of the Charles Scerri (Malta) strategies Henry Simmons (UK/Scotland) Spanish Confederation of Associations of Alzheimer Europe reports on the Public Families of People with Alzheimer’s disease Affairs meeting which saw representatives (CEAFA) and by Annette Dumas, EU Public Contact Alzheimer Europe at: Affairs Officer, Alzheimer Europe. Alzheimer Europe from national Alzheimer associations come 145, route de Thionville together to discuss dementia strategies L-2611 Luxembourg around Europe. 31 A success story Tel.: +352 29 79 70 Fax: +352 29 79 72 Antigoni Diakou, President of the Cyprus www.alzheimer-europe.org 16 PharmaCog project [email protected] Alzheimer Association, reports on the The importance of monitoring the successful collaboration between the Association and the Ministry of Health during Jean Georges, Executive Director progression of memory impairment is presented by Dr. Giovanni Frisoni, senior the work of the Multidisciplinary Committee Annette Dumas, EU Public Affairs Officer dedicated to Alzheimer’s disease. Julie Fraser, Editor researcher for the PharmaCog project. Dianne Gove, Information Officer Gwladys Guillory, 33 Policy News Event and Conference Coordinator Alex Teligadas, Communications Officer Alzheimer Europe highlights some of the Grazia Tomasini, Administrative Assistant recent policy developments. DEMENTIA Issue 12 IN EUROPE September 2012 TABLE OF CONTENTS THE ALZHEIMER EUROPE MAGAZINE SPecial secTION DEDica TO AUS TED THIS issueTRIA IN Dementia in the News Special focus: Austria 36 Spotlight on Luxembourg, Poland II Addressing dementia in Austria and Ireland Alois Stöger, Austrian Health Minister, A reflection of the work of three national discusses how the challenge of dementia is Alzheimer associations which celebrate being addressed on a national level. their anniversaries this year is provided by Alicja Sadowska, Chair, Alzheimer Poland, IV The view from Austria (20 years), Alain Tapp, Public Relations Manager, Alzheimer Luxembourg Association Austrian MEPs Heinz Becker and Angelika (ALA- 25 years) and by Niamh Sheeran, Head Werthmann talk about the situation in of Fundraising and Communications, The Austria for people with dementia and their Alzheimer Society of Ireland (30 years). carers. 40 Reaching out to the community VIII Alzheimer’s disease is a reality in our society Kristina Westerlund, Communications and Office Manager of the Swedish association, Antonia Croy, President, Alzheimer Austria, Alzheimerföreningen, speaks about the reflects on the work of the association since association’s campaign to raise awareness it was launched in 1990. and understanding of the disease. X Some thoughts on the work 42 Members’ news of Alzheimer Austria A selection of news highlights from national Andreas Wrinker, Neurologist and Vice- Alzheimer associations around Europe. President of Alzheimer Austria, together with Michael Landau, Director of Caritas, diocese 45 Dementia in society of Vienna, reflect on the work carried out by the association. A brief look at some of the news and publications on dementia in the media. XI Living with dementia in Austria A carer from Austria relates his story about caring for his wife who lives with dementia. Photo credits European Parliament, European Commission, Alzheimer Europe, Heike von Lützau-Hohlbein by Heinz Schwarz. Layout binsfeld corporate Print Imprimerie Centrale, Luxembourg WELCOME WelcOME Welcome to issue 12 of the Dementia in Europe carers, it is essential that national dementia strat- magazine which is being launched during Alzhei- egies are put in place. Finland launched its mer Europe’s 22nd Annual Conference in Vienna. National Memory Programme in May 2012 and This conference is entitled “Changing perceptions, we provide extensive coverage with contributions practice and policy” and our special section high- from Maria Guzenina-Richardson, Minister of lights the situation in Austria, with contributions Health and Social Services, Eila Okkonen , Exec- from Alois Stöger, Health Minister for Austria, utive Director of the Alzheimer Society of MEPs Heinz Becker and Angelika Werthmann, as Finland, Sirpa Pietikäinen, MEP (Finland) and well as Antonia Croy, President of Alzheimer Aus- also from a carer living in Finland. tria and from a carer. I am particularly grateful to Arsenio Hueros We provide updates on the work at European Iglesias, President of the Spanish Confederation of Heike von Lützau-Hohlbein Chairperson, Alzheimer Europe level to help people with dementia and their Associations of Families of People with Alzhei- carers. Androulla Vassiliou, European Commis- mer’s disease (CEAFA), for his frank article on the sioner for Education, Culture, Multilingualism impact that austerity measures in Spain and the and Youth, explains how various European initia- work of CEAFA to try to put a national dementia tives can be used to support work in the field of policy in place. An overview of the consequences dementia. In June, Alzheimer Europe hosted its of austerity measures in Europe is provided by 13th lunch debate in the European Parliament Annette Dumas, Public Affairs Officer, Alzheimer which focused on how the European public Europe. health and research programmes will continue to address dementia in Europe. Whatever the climate, national Alzheimer asso- ciations across Europe strive to improve the lives of Since 2007, Alzheimer Europe has developed a people with dementia and their carers. We high- considerable body of work in the area of ethics. In light the work of five associations: Cyprus reports this issue we provide an update on our work in on their successful collaboration with the govern- 2012 dedicated to ethical issues linked to restric- ment, Poland, Luxembourg and Ireland look back tions of freedom. at 20, 25 and 30 years’ work respectively and Swe- den describes how the organisation successfully Also this year, Alzheimer Europe is continuing to reaches out to the community through a series of host a series of public affairs meetings with its theme nights. members and you will find a summary of the most recent public affairs meeting which compared I hope you enjoy our magazine and look forward national dementia strategies. Another focus is to meeting you during the conference. on our collaboration with European research programmes and we include a report from Dr. Giovanni Frisoni, explaining how PharmaCog may help people with memory problems. If we are really going to make a difference to Heike von Lützau-Hohlbein, the daily lives of people with dementia and their Chairperson, Alzheimer Europe 4 DEMENTIA Issue 12 IN EUROPE September 2012 PRIORITISING DEMENTIA THE ALZHEIMER EUROPE MAGAZINE PRIORITISING DEMENTIA Members of Alzheimer Europe’s 2012 Ethics Working Group meet in Brussels. Maurice O’Connell (Alzheimer Society of Ireland), Markus Löfström (Alzheimer Finland), Nessa Childers, MEP (Ireland) and Sean Kelly, MEP (Ireland) in discussion at Alzheimer Europe’s lunch debate in the European Parliament. Dr. Giovanni Frisoni talks about the PharmaCog
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