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ILAE : the Next Generation 2018 Annual Report International League Against Epilepsy ILAE : The Next Generation 2018 Annual Report INTERNATIONAL LEAGUE AGAINST EPILEPSY OUR VISION International League Against Epilepsy’s vision is a world in which no person’s life is limited by epilepsy. OUR MISSION International League Against Epilepsy’s mission is to ensure that health professionals, patients and their care providers, governments, and the public worldwide have the educational and research resources that are essential in understanding, diagnosing and treating persons with epilepsy. Table of Contents GOVERNANCE TOPIC-ORIENTED COMMISSIONS Executive Committee . 4 Diagnostic Methods . .62 President . .5 Epidemiology . 66 Treasurer . .7 Genetics Commission . 68 Vice-President . .8 Medical Therapies . 71 Epilepsia. 12 Neurobiology . 74 Epilepsia Open . 14 Pediatrics . .82 Epileptic Disorders. 18 Psychiatry . 85 Wikipedia Epilepsy Project. 22 Surgical Therapies . 87 Director of Interactive Media. 23 Young Epilepsy Section (YES) . .89 International Director of Meetings . 25 Headquarters and Chapter Services Staff . 28 CHAPTER REPORTS Chapter List . 91 TASK FORCES Chapter Map . .92 Communications. 29 Chapter Reports . 93 Epilepsy Education . 32 Epilepsy Guidelines . .33 CONSTITUTION . 151 Driving Sub Task Force . .34 Global Outreach . 35 BYLAWS . 156 Joint IFCN-ILAE Task Force on EEG Databases. .37 Next Generation . 40 Nosology and Definitions . 41 Headquarters Office Traumatic Brain Injury and Antiepileptogenesis . .42 2221 Justin Rd, #119 - 352, Flower Mound, TX, USA 75028 Tel +1 860.586.7547 Publications . .44 Fax: +1 860.201.1111 https://www.ilae.org REGIONAL BOARDS ILAE-Africa . 46 Chapter Services Office ILAE-Asia and Oceania . .49 7 Priory Hall ILAE-Eastern Mediterranean . 51 Stillorgan Co. Dublin ILAE-Latin America . 53 Ireland ILAE-North America . .59 Tel +353.1.278.4908 Fax +353.1.205.6156 International League Against Epilepsy — Annual Report 2018 3 Executive Committee 2017-2021 PRESIDENT IBE PRESIDENT (EX-OFFICIO) Samuel Wiebe, Canada Martin Brodie, UK SECRETARY-GENERAL IBE SECRETARY-GENERAL (EX-OFFICIO) Edward Bertram, III, USA Mary Secco, Canada TREASURER IBE TREASURER (EX-OFFICIO) J. Helen Cross, UK Anthony Zimba, Zambia VICE PRESIDENT INVITEES: Alla Guekht, Russia STRATEGIC ADVISOR PAST PRESIDENT Jean Gotman, Canada Emilio Perucca, Italy EPILEPTIC DISORDERS EDITOR-IN-CHIEF ILAE-AFRICA Alexis Arzimanoglou, France Angelina Kakooza-Mwesige. Uganda EPILEPSIA OPEN CO-EDITORS-IN-CHIEF ILAE-ASIA and OCEANIA Aristea Galanopoulou, USA Akio Ikeda, Japan Dieter Schmidt, Germany Xufeng Wang, China ILAE-EASTERN MEDITERRANEAN Chahnez Triki, Tunisia ADVISOR ON PUBLIC HEALTH Shichuo Li, China ILAE-EUROPE Eugen Trinka, Austria WIKIPEDIA EDITOR-IN-CHIEF Nicola Maggio, Israel ILAE-LATIN AMERICA Roberto Horacio Caraballo, Argentina ILAE-NORTH AMERICA Nathalie Jetté, USA EPILEPSIA, CO-EDITORS-IN-CHIEF Astrid Nehlig, France Michael Sperling, USA International League Against Epilepsy — Annual Report 2018 4 President Samuel Wiebe The completion of my first full year as President of the ILAE co-Editor, Dr Sándor Benizcky, and is refining its focus as is a fitting moment for reflection. Are we taking the necessary the prime educational journal of the League. We continue to steps towards achieving our vision? Are we making the most learn about the intricacies and opportunities of Wikipedia- of new opportunities? What are the challenges ahead and Epilepsy, and we are making gradual but steady gains under how are we responding? The balance of this year’s activities its new editor, Dr. Nicola Maggio. is a strong indicator that we are off to a strong and produc- tive start. I highlight below some of the salient developments The Next Generation: from 2018. At the outset, one of my main goals was to engage the Education: younger generations of epilepsy professionals in a meaning- ful way, and so we created the “Next Generation” Task Force, Years of consultation and planning have culminated in the chaired by Dr. Helen Cross. Under the umbrella of this Task creation of a competencies-based curriculum for epilepsy, Force, three initiatives have flourished, all primarily led by Dr with three levels of proficiency or expertise, i.e., basic, Helen Cross: medium, and advanced. Under the leadership of Dr Ingmar Blümcke, dedicated staff with expertise in distance learning 1) YES (Young Epilepsy Section): A dynamic and effective have been recruited to help us create our own case-based on- group of professionals under 40, whose aims are to improve line teaching modules. We are building a strong partnership the professional development of young people in epilepsy, culture in education by joining efforts with other organiza- and to deepen the participation of young people in the ILAE. tions that share our educational aims. For example, we now You can learn more at https://www.ilae.org/about-ilae/ partner with the International Federation of Clinical Neuro- topical-commissions/young-epilepsy-section-yes. physiology (IFCN) for education in EEG. We are exploring 2) The Mentor-Mentee Programme: This takes place at partnerships with eBrain (www.ebrain.net) to adapt and use ILAE congresses and provides an opportunity for interac- some of their eLearning materials and courses. We have a tion between individuals in the early stages of their careers formal partnership agreement with BPNA for PET courses and seasoned epilepsy professionals, with the aim of sharing (www.bpna.org.uk/pet), which are now offered not only experiences that can inform the careers of the next generation in Europe, but also in Africa, Asia and Latin America. We of epileptologists. continue to partner with the World Federation of Neurology to deliver the epilepsy educational programme at the World 3) The Leadership Development Program: This highly suc- Congress of Neurology. In addition, we continue to support cessful, intensive programme is aimed at individuals in their the increasingly popular international courses on Neuropa- early-mid career who are taking on leadership roles in their thology, Neuropsychology, EEG and Imaging. Finally, the own region. Led by Drs Sheryl Haut and Jaideep Kapur, it highly popular ILAE online educational tool for epilepsy takes place over two days at our International Congress and and seizure classification (EpilepsyDiagnosis.org) has been is now being deployed in our Regional Congresses. revamped and revised to include the new ILAE definitions and nomenclature, under the direction of Dr. Kate Riney. ILAE Congresses: Our Journals: Our International and Regional Congresses must serve two important purposes. First, they need to be of the high- Thanks to our outstanding editorial teams, the solid devel- est scientific standard. Second, they need to provide for the opment of our three journals continues. Epilepsia maintains educational needs of our constituency. Accordingly, we are a milestone impact factor of five or higher.Epilepsia Open rethinking how the congresses are organized, in order to was accepted in Pubmed Central in March 2018, and all of optimize both the scientific and the educational aims, and to its articles are now in Pubmed. Epileptic Disorders has a new align the learning opportunities with our Epilepsy Curriculum. Dr Helen Cross is leading this effort. International League Against Epilepsy — Annual Report 2018 5 President Regional Executive Board: Finances: The Chairs of the six Regional Commissions and the We continue to benefit from the invaluable help of our Management Committee held a very productive strategic Finance Advisors to manage our finances wisely. As stated retreat in June 2018. This new exercise was extremely fruitful by our Treasurer, Dr Helen Cross, we continue to navigate and will be repeated annually. The purpose is to review the unpredictability of the stock market with invaluable strategic aims, inform our decisions for financial support, expert assistance, to ensure that the League’s finances are in assess progress, and share knowledge and experiences. Our good shape. We are approaching our endowment investment six Regional Commissions have new names. For example, the target. This will allow us to support targeted activities which “Commission on African Affairs“ now has the nimbler and we will choose strategically with input from our Regional more descriptive name “ILAE-Africa”; the same applies to all Executive Boards. Regions: ILAE-Asia, ILAE-Eastern Mediterranean, ILAE- Europe, ILAE-Latin America, and ILAE-North America. Commissions and Task Forces: Communication: Our many commissions and task forces dealing with specific topics have established a course of action during the first Dr Ed Bertram leads the Communications Task Force, and year. Numerous projects are underway, and they will come to Dr Jean Gotman leads the Publications Task Force and the fruition over the next few years. ILAE’s website development. It became evident that we needed to improve our communications within the ILAE Throughout this report, I have named a few of the leaders constituency, and importantly, with the community-at-large. responsible for the progress we have made this year. However, Accordingly, a dedicated writer has been recruited specifically the efforts are multitudinous. The League is truly fortunate to develop written material pertaining to ILAE activities that to have such a dedicated group of colleagues and friends can be published widely; both online and in other media. working towards a common goal. To all who have devoted their wisdom, time and energy to our cause over the
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