Sickle Cell & Thalassaemia Association of Counsellors
DISTRICTS WITH SICKLE CELL AND THALASSAEMIA COUNSELLORS AND CLINICAL SPECIALISTS
List Updated by Maureen Scarlett STAC Secretary
GREATER LONDON
BARKING & DAGENHAM, HAVERING & Acute Adult Haemoglobinopathy Specialist Nurse: REDBRIDGE Shola Shoyemi Haemoglobin Disorders Service Haematology Department Cedar Centre- Unit Management Office Tel: 01708 435 6171 King George’s Hospital Acute Paediatric Haemoglobinopathy Specialist Barley Lane Nurse: Albin Bendiola Goodmayes, Essex ACAD Unit IG3 8YB Tel: 01708 453 075 Tel: 020 8970 8301 Email: [email protected] Fax: 020 8970 4370 [email protected] Admin: Anna Robinson Barking, Havering and Redbridge University Hospital NHS Email: [email protected] Trust Haemoglobinopathy Specialist Nurse: Queens Hospital Christine Williams Rom Valley Way Mobile: 07958 221 274 Romford Email: [email protected] Essex [email protected] RM7 0AG Community Adult Haemoglobinopathy Specialist Nurse: Deo Boodoo THE ROYAL LONDON HOSPITAL [email protected] Whitechapel Road Mobile: 07966 575785 London E1 1BB Welfare Benefits Advisor: (Mon & Thurs) Tel: 0203 539 0000 Pamela Jones: Psychologist: Ioanna Ampati Clinical Nurse Specialists: Email: [email protected] Heather (Kim) Newell Abidemi Olateju Haemoglobinopathy Nurse Counsellor: Barts Health Trust Jane Mattison CNS Paediatric Haematology Barking, Havering and Redbridge University Hospital Office 2, Children’s Support Services Trust Level 6, Central Tower Haematology The Royal London Hospital Ground Floor Pink Zone E1 1BB Queens Hospital Tel: 0203 594 0401/0399 Rom Valley Way Pager: 07659152645 Romford Email: [email protected] Essex [email protected] RM7 0AG Email: [email protected] Aldine Thomas (Adults) Tel: 01708 435000 extn. 4735 Haematology Day Unit Mobile :07956 682144 Ground Floor South Tower Tel: 0203 594 1877 Pager: 07659126840 Email: [email protected]
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BEXLEY Email: [email protected] (See Greenwich) Clinical Nurse Specialist (Paediatric): (Roald Dahl Haemoglobinopathy) BRENT Edith Aimiuwu Brent Sickle Cell & Thalassaemia Centre Whittington Hospital Central Middlesex Hospital Tel: 020 7288 3017 Acton Lane, Email: [email protected] London NW10 7NS Clinical Nurse Specialist (Thalassaemia): Tel: 020 8453 2050/52 Emma Prescott Fax: 020 8453 2051 Tel: 020 7272 3070 Bleep No: 2866 Email: [email protected] Email: [email protected] Website: www.sickle-thal.nwlh.nhs.uk ROYAL FREE HOSPITAL Specialist Nurse Consultant/Service Director: Haemoglobinopathy Specialist Midwife Dr. Lola Oni OBE - Tel: 0208 453 2053 Ana Gonzalez Senior Specialist Nurse (Acute-Adults): Fetal Medicine unit Florence Esara - Tel: 020 8453 2169/2562 Royal Free London Senior Specialist Nurse (Acute/Community Paeds) Pond Street Vacant London Specialist Nurse (Community): NW3 2QG Olivia Kudom – Tel: 0208 453 2168 Tel: 020 7472 6428 (direct Line) Specialist Midwife: 020 7794 0500 ext 38961 Bleep 1067 Sherry Amoroso-Mensah - Tel: 020 8453 2069 Clinical Psychologist: UNIVERSITY COLLEGE LONDON HOSPITAL: Dr. Kofi Anie - Tel: 020 8453 2060 Assistant Psychologist: Clinical Nurse Specialist for Haemoglobinopathies Hannah Boardman – Tel: 020 8453 2070 Paediatric and Adolescent Nurse Researcher: Giselle Padmore-Payne Annette Gilmore - Tel: 020 8453 2135 Haematology Department Specialist Social Worker (NW Sector): Cancer Services Zita Noone -Tel: 020 3313 4655/ 07901 103058 250 Euston Road Email: [email protected] London NW1 2PG Tel: 020 3447 5239 (paediatric patients) CAMDEN & ISLINGTON Tel: 020 3447 9638 (adult patients) Whittington Health: Email: [email protected] Sickle Cell & Thalassaemia Centre 17a Hornsey Street Clinical Nurse Specialist in London N7 8GG Haemoglobinopathies (Adults): Tel: 020 3316 8853/8854 Fax: 020 7690 3552 Bernadette Hylton Clinical Services Manager & Community Matron Department of Haematology Matty Asante-Owusu 1st Floor Central Tel : 020 3316 8858 250 Euston Road London NW1 2JP Email: [email protected] Tel: 020 3456 7890 Ext 77969 Senior Haemoglobinopathy Nurse: Mobile: 07943 826529 Tukiso Manonga Email: [email protected] Tel: 020 3316 8860 Email: [email protected] Antenatal Screening Co-ordinator: Administrative Manager: Hilary Hewitt Michael Coker 020 3316 8854 Fetal Medicine Unit Email: [email protected] Elizabeth Garrett Anderson Wing Senior Clinical Psychologist: University College London Hospital Dr Helen Caird 020 3316 8859 235 Euston Road Email: [email protected] London NW1 2BU Antenatal Screening Co-ordinator: Tel: 0845 155 5000 x76152 Tara Boyle Email: [email protected] Whittington Hospital Highgate Hill London N19 5NF Tel: 0207 288 5108/07766 205362 2 Sickle Cell & Thalassaemia Association of Counsellors
CITY & HACKNEY Homerton University Hospital NHS Foundation Reception/Fax: 020 8251 7248 Trust Clincal Nurse Specialist (Paediatrics) The Sickle Cell & Thalassaemia Centre Vacant 457 Queensbridge Road Email: [email protected] Hackney Clinical Nurse Specialist: Rhonda Skeete (Antenatal & London E8 3AS Neonatal) Tel: (Switch Board) 020 7683 4570 E-mail: [email protected] Fax: 020 7853 6709 Tel: 020 8251 7246 Clinical Specialist Nurse: Linda Sawyerr (Adults) Lead Nurse & Service Manager E-mail: [email protected] Natasha Lewis Tel: 020 8251 7247 Mobile: 07970 829335 Email: [email protected] EALING CP House Specialist Nurse Counsellor: Adults Ealing Hospital NHS Trust Rashida Goswami 97-107 Uxbridge Road Tel: 020 7853 4573 London Mobile: 07813 115956 W5 5TL Email: [email protected] Specialist Nurse Haemoglobinoapthies, 0-18 Years: Specialist Nurse Counsellor: Paediatrics Brigid Offley-Shore Keisha Osmond-Joseph Tel: 020 8825 8241 Tel: 020 7683 4572 Fax: 020 3313 9157 Mobile: 07813 115957 Mobile: 07932 480 078 Email: [email protected] Email: [email protected] Centre Administrator : Dianne Miller Email : [email protected] Specialist Midwife (High Risk): Charlie Adjetey Tel : Switchboard Ealing Hospital NHS Trust Clerical Officer: Cara Phillips (Thus & Fri only) Uxbridge Rd Community Development Officer: Cynthia Dickson Southall. MIddx Tel: 020 7683 4578 UB1 3HW Email: [email protected] Tel:020 8967 5113 Social Liaison Officer: Claudine Mathews Mobile: 07980 584416. Tel: 0207 683 4573 Fax: 02089675633 [email protected] Email: [email protected] Clinical Psychologist: Gemma Davies Email: [email protected] GREENWICH & BEXLEY
Sickle & Thalassaemia Service Specialist Midwife: Tolu Ahmed Gallions Reach Health Centre Care of Antenatal Clinic Bentham Road Homerton University Hospital NHS Foundation Trust Thamesmead SE28 8BE Homerton Road Tel: 020 8320 57123 Fax: 020 8311 8895 London E9 6FR Admin: Email: [email protected] Tel: 020 8510 7258 Fax:020 8510 7682 [email protected] Email: [email protected]
Specialist Nurse Counsellor: Lydia Taylor Down Clinical Nurse Specialist Sickle Cell (Antenatal & Neonatal) Liz Odeh - Haematology Department Email: [email protected] Homerton University Hospital NHS Foundation Trust [email protected] Homerton Row, London E9 6SR Tel: 020 8320 5711 Tel: 020 8510 5555 Beep No 362 Specialist Nurse Counsellor: Paediatrics Email: [email protected] Kemi Ajamufua Tel: 0208 320 5740 CROYDON Email: [email protected] Sickle Cell & Thalassaemia Centre Specialist Nurse Counsellor: Adult 316-320 Whitehorse Road Vacant Croydon, CR0 2LE Tel: 020 8251 7229 3 Sickle Cell & Thalassaemia Association of Counsellors
CENTRAL LONDON COMMUNITY HEALTH Sickle Cell & Thalassaemia Care Manager (HAMMERSMITH, FULHAM, KENSINGTON, Vacant CHELSEA & WESTMINSTER) Haringey Council Sickle & Thalassaemia Service 40 Cumberland Road Richford Gate Primary Care Centre Wood Green Richford Street London N22 4SG London W6 7HY Tel: 020 8489 3269 / Fax: 020 8489 3032 Tel: 020 3315 2980/2375 Email: @haringey.gov.uk Fax: 020 3 315 2986 Email: @haringey.nhs.uk Haemoglobinopathy Specialist Nurse: Based at George Marsh Centre on Thursday Vesna Graham afternoon Tel: 020 3315 2980 Housing advice worker – at George Marsh on Fridays Email: [email protected]
HAMMERSMITH HOSPITAL HOUNSLOW & RICHMOND Gary Weston Centre Sickle Cell and Thalassaemia Service Haematology Department 3rd Floor Hammersmith Hospital Heart of Hounslow Centre for Health Du Cane Road 92 Bath Road London W12 0HS Hounslow TW3 3LN Clinical Nurse Specialist (Adults): Tel: 020 8630 3363 / Fax: 020 8630 3380 Lydia Alexander Community Nurse Specialist: Sonia Ambo Tel: 020 3313 8372 Bleep: 9513 Email: [email protected] Email: [email protected] Specialist Social Worker (NW Sector): Zita Noone KINGS COLLEGE HOSPITAL Tel: 020 3313 4655 / 07901 103058 Denmark Hill Email: [email protected] London SE5 9RS Tel: (Switch Board) 020 7737 4000 Nurse Specialist (Adults): Marlene Allman HARINGEY Tel: 020 3299 4968 George Marsh Sickle & Thalassaemia Centre Fax: St Ann’s Hospital (part of North Middlesex University Email: first [email protected] Hospital NHS Trust) Clinical Nurse Specialist - Paediatrics: St Ann’s Road Sandra O'Driscoll Tottenham Tel: 020 3299 3773 London N15 3TH Email: Sandra.o’[email protected] Tel: 020 8442 6230 Fax: 020 8442 6575 Email: [email protected] Joan Walters - Senior Nurse Practitioner Lecturer Centre Manager/ Nurse Specialist (Children & Young People) Nasser Roheemun Florence Nightingale School of Nursing & Midwifery Haemoglobinopathies: King’s College, London Specialist Nurse: James Clerk Maxwell Building Cristiano Mbonazo-Ndandu 57 Waterloo Bridge Road Email: [email protected] London SE1 8WA Tel: 020 7848 3510 / Fax: 020 7848 3555 Linda Keir - Paediatric Community Sickle & Pager: 07659 143610 Thalassaemia Nurse Specialist Email: [email protected] / [email protected] Francis Mate-Kole – Haemoglobinopathy/Blood Transfusion Specialist Nurse (at George Marsh twice a week) North Middlesex University Hospital NHS Trust Sterling Way Edmonton N18 1QX Tel: 020 8887 4301 Email:
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NEWHAM The Sickle & Thalassaemia Centre WANDSWORTH PCT 19 –21 High Street South Sickle Cell & Thalassaemia Counselling & East Ham Information Service London E6 6EN St Georges / Community Services Wandsworth Tel (Reception): 020 8821 0800 Balham Health Centre Answer phone: 020 8821 0800 120-124 Bedford Hill Fax: 020 8821 0808 Balham, London Email: [email protected] SW12 9HS Email; for Patient requests- elt- Tel: 020 8812 6236 [email protected] Fax: 020 8700 0634 Service Manager/Specialist Nurse: Email: [email protected] Sekayi Tangayi Acting Manager – Haemoglobinopathy Tel: 020 8821 0800 Theresa Oyiadjo PA and Operational Manager to Sekayi Tangayi – Specialist Nurse Counsellor (Antenatal & Neonatal): Christine Amadasun -0804 Specialist Nurse Counsellor (Adults): Team Lead -Specialist Nurses – Adults – Leteshia Abrahams Cheryl Tawana-0809 Adolescents/Paeds: Community Nurse – Adults – Beverley Telesford Paediatric Community Nurse – Email: [email protected] Paediatric Community Nurse – Grace Adjei-Chukwu-0813 ST GEORGE’S HEALTHCARE NHS TRUST HCA/ Data Admin- Clinical Nurse Specialist Barbara Chinakwe-0813 Corral Rose Clerical Administrators- Clinical Nurse Specialist Shuma Ahmed and Yasin Saho 0208 821 0800 c/o Ruth Myles Unit, 2nd Floor Family Support Worker: Christine Black-0800 St James Wing Tel: 020 8821 0800 St George's Hospital Psychologist - Dr Jayne Griffith 0800 Blackshaw Road Tel: 020 8821 0800 London SW17 0QT SOUTH EAST LONDON Tel. 020 0725 3025 (direct line/voicemail) Sickle Cell & Thalassaemia Centre 020 8672 1255 Ext. 3025/ Bleep 7520 Wooden Spoon House Fax. 020 8725 5442 5 Dugard Way E-mail: [email protected] Off Renfrew Road Kennington ST MARYS HOSPITAL (PAEDIATRICS ONLY) London SE11 4TH Paediatric Department Tel: 020 3049 5993 Fax: 020 3049 6069/6085 Praed Street Service Manager/Clinical Lead: London W2 1NY Nkechi Anyanwu Paediatric Haemoglobinopathies Clinical Nurse Tel: 020 3049 5999/ Mob: 07717 701464 Specialist: Catherine Mkandiwire Email: [email protected]. Tel: 020 3312 3346 (Office) Case Managers/Specialist Nurses: Mob: 07795 651153 Olufunmilola Aoko--ext 5968 Email: [email protected] Yvonne Owusu-Sekeyere ext 5983 Patience Ologe--ext 6123 Kemi Johnson - 6137 Emma Gedeon – 6184 Olukemi Ajamufua - 6042 Genetic Nurse Counsellor: Esther Ifinnwa Email: [email protected] Email: [email protected]
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ST THOMAS’ HOSPITAL SUTTON & MERTON PCT Department of Haematology Specialist Counsellor for Haemoglobinopathies: 4th Floor Southwark Wing Carol Edwards Guy’s Hospital St Helier Hospital Great Maze Road Wrythe Lane London SE1 9RT Carshalton, Surrey Tel: 020 7188 2710 SM5 1AA Fax: 020 7960 5865 Tel: 020 8296 3371 or 2000 E-mail: [email protected] Consultant Health Psychologist: Dr. Nicky Thomas Email: [email protected] TOWER HAMLETS Tel: 02071882725 Tower Hamlet Bleep: 1911 Sickle Cell & Thalassaemia Service Clinical Psychologist: Heather Rawle Spitalfields Health Centre Email:[email protected] 9-11 Brick Lane, Tel 02071882725 Spitalfields Bleep 0781 London Heath Psychologist Mina Abedian E1 6PU Tel 02071882718 Tel: 020 7650 5217 Mobile 07825282083 Fax: 0207 650 5220 Service Director: Paediatric Sickle Cell Nurse Specialist: Natasha Lewis Tel: 020 7188 9432/ bleep 2733 Email: [email protected] Mob:07771 345847 Specialist Nurse Counsellor: Email: Caroline Anele CNS-Haemoglobinopathies – Adolescent Mobile: 07971 655893 Transition Email: [email protected] Luhanga Musumadi Administrator: Sara Mamsa Tel: 020 7188 2710 Bleep 2256 Email: [email protected] Mob. 07770678851 Email: [email protected] WALTHAM FOREST Advanced Nurse Practitioner –Adult Sickle & Thalassaemia Service Haemoglobinopathies/Nurse Manager 2nd floor Wood Street Health Centre Neill Westerdale Linford Road Tel: 020 7188 2710 Walthamstow bleep 1843 Mobile 07770683947 London E17 3LA Email: [email protected] Tel: 020 8430 7639 / Fax: 020 8430 7641 Clinical Nurse Specialist - Haemoglobinopathies CNS Adult Haemoglobinopathies Email: [email protected] Judith St Hilaire Specialist haemoglobinopathy Nurse: Marcia Hird Email: [email protected] Email: [email protected] Mobile 07920711266 Service secretary/administrator: Sandra Springett Bleep 2868 Email: [email protected] Tel 02071881424
Senior Paediatric Sickle Cell Research & Specialist Nurse Sharon Ndoro Evelina London Children’s Hospital Sky 6th Floor, St Thomas’ Hospital Westminster Bridge Road, London SE1 7EH Tel: 020 7188 6637 (Office) 07917591562 (Mobile) Fax: 020 7188 4612 Email:[email protected]
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CENTRES OUTSIDE LONDON
AIREDALE (WEST YORKSHIRE) BRADFORD Millennium Business Park Sickle Cell & Thalassaemia Department Station Road Manningham Clinic Steeton Road Lumb Lane Nr Keighley Bradford BD8 7SY BD20 6RB Tel: 01274 730836 Tel: 01535 338757 Haemoglobinopathy Counsellor: Sobia Khan Fax: 01535 338738 Email: [email protected] Reception: 01535 606111 Haemoglobinopathy Genetic Counsellor: Pauline Haemoglobinopathy Counsellor: Janet Hall Garnett Email: [email protected] Email: [email protected]
BIRMINGHAM Acute : COMMUNITY Bradford Teaching Hospital NHS Foundation Trust Birmingham Community Healthcare Trust Pathology offices Sickle Cell & Thalassaemia Service Duckworth lane Soho Health Centre Bradford BD9 6RJ Soho Road Direct line 01274 3825211 Handsworth Haematology Ward 7 - 01274 364366 Birmingham Ward 7 day unit - 01274 364516 B21 9RY Haematology CNS: Susan smith Tel: 0121 545 1655 Email: [email protected] Fax: 0121 241 6736 Roald Dahl Paediatric / Haematology Nurse Specialist Email: [email protected] Paediatrics: Linda Brooks Service email: [email protected] Email: [email protected] Service Co-ordinator: Lurieteen Miller Ward 16 - Practice Development Office 07702141366 T: 01274 38 2313 Specialist Nurse - Haemoglobinopathy: M: 07971451680 Susan (Suzi) Crawford, Paulette Gaskin F: 2320 Haemoglobinopathy Nurse Barbara Bailey Mobile: 07540670509 BRISTOL University Hospitals Bristol Bristol Haemoglobinopathy Service Lower Ground 1 ACUTE Bristol Haematology and Oncology Centre Sandwell & West Birmingham NHS Trust Hoefield Road (Acute & Counselling) Bristol BS2 8ED Sickle Cell & Thalassaemia Centre Tel/Fax: 0117 342 4028 City Hospital Mobile: 07900264436 Dudley Road Clinical Coordinator: Anndeloris Chacon Winson Green Email: [email protected] Birmingham B18 7QH Tel: 0121 507 6040 / Fax: 0121 507 6050 Acute : Clinical Lead Nurse: Elizabeth Green Bristol Haematology and Oncology Centre Email: [email protected] Horfield Road Dionne Walters Bristol Email: [email protected] BS2 8ED Clinical: Haemoglobinopathy Clinical Nurse Specialist: Email:
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CARDIFF Sickle & Thalassaemia Centre EAST BERKSHIRE Butetown Health Centre (Slough, Windsor, Ascot, Maidenhead) Plas Iona, Butetown No longer has a service Cardiff CF10 5HW Tel: 029 20471055 / 029 2183 3283 EAST LANCASHIRE AND CUMBRIA AREA Fax: 029 2183 3285 (managed by Paediatrician- Dr Vanessa Holme) Haemoglobinopathy Counsellor: Paulette Palmer (Covers Blackburn/Burnley Area) Genetic Counsellor – Mon & Fri Benjamin Player Royal Blackburn Hospital Genetic Counsellor – Tues & Weds Caroline Kirwan Haslingden Road Personal Assistant: Sarla Patel Blackburn Firstname.surname@wales.nhs.uk BB2 3HH Email: [email protected] Tel: 01254 263555
Fax: 01254 293512 COVENTRY Ward 34 ESSEX University Hospital of Coventry and Warwickshire Essex Sickle Cell and Thalassaemia Service Clifford Bridge Road, Mayflower Community Hospital Coventry, Blunts Wall Road West Midlands Billericay CV2 2DX Essex Clinical Nurse Specialist: Melvis Nkamani CM12 9SA Email: [email protected] Tel: 01277 627904 Clinical Nurse Specialist: Beryl DouglasGreen Fax: 01277 621149 Email: [email protected] Mobile: 07956 619577 Administrator: Sharon Wiggett Advanced Specialist Practitioner: Lara Odelusi 02476 965830 Email;[email protected] Advanced Specialist Practitioner for Sickle Cell DERBY (SOUTH) & Thalassemia : Vacant Specialist Outpatient Department, Email: Level 1, Secretarial support: Royal Derby Hospital. [email protected] Uttoxeter Road, Derby, GLOUCESTER DE22 3NE. Sickle & Thalassaemia Service Haematology Clinical Nurse Specialist: Gloucestershire Hospitals NHS Foundation Trust Gail Fellows Edward Jenner Clinical Unit, Email: [email protected] Greater Western Road Tel: 07825 342918 Gloucester GL1 3NN Clinical Nurse Specialist: Susan Robb Tel: 0300 422 5224 Fax: 0300 422 5273 Email: [email protected]. Specialist Nurse/Counsellor: Joan Mitchell Email: [email protected] DUDLEY Black Country Partnership Foundation Trust Brierley Hill Health & Social Centre HERTFORDSHIRE Venture Way Apsley One, Postpoint 13, Brierley Hill Brindley Way, Dudley Apsley DY5 1RU Hemel Hempstead, Tel: 01384 321242 Hertfordshire HP3 9BF Fax: 01384 321230 Children’s Sickle Cell Nurse Specialist Mobile: 07766 541721 Phil Daly Haemoglobinopthies Specialist Nurse – Vicki Love Tel: 01442 454671 Email: [email protected] Mobile:07887 995059 Lead/Counsellor/Educator Maritess Navarro Email: [email protected] Email: [email protected] Mon, Tues, Weds
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Email: susan.mckeown [email protected] Clinical Psychologist Dr Amani Zarroug LEICESTERSHIRE Paediatric Diabetes and Sickle Cell Teams Sickle Cell & Thalassaemia Service Hertfordshire Community NHS Trust The Merlyn Vaz Health & Social Care Centre Peace Children's Centre 1 Spinney Hill Road Peace Prospect Leicester Watford LE5 3GH WD17 3EW Tel: 01923 471 214 Direct line Tel: 0116 294 3057 Mobile: 07584 606 961 Tel: 0116 294 3010 / Fax: 0116 294 3058 Email: [email protected] Lead Nurse Counsellor/ Service Manager: [email protected] Daksha Elliott Working hours: Tuesdays, Wednesdays, Email: [email protected] Thursday afternoons, and Fridays Sickle Cell & Thalassaemia Community Nurse: Rebecca Sekyere HUDDERSFIELD Email: [email protected] Covered by Bradford centre Sickle Cell & Thalassaemia Support Officer: Daxa Parmar HULL Email: [email protected] City Healthcare Co-Partnership Community Haemoglobinopathy Support Assistant: Victoria House - Temporary Bharat Jivanji Park St Email: [email protected] Hull HU2 8TD LIVERPOOL – Acute Adults only Tel: 01462 617828 Centre for Inherited Blood Disorders Mobile: 07964 688450 (SickleCell, Thalassaemia and G6PD Deficiency) Shirley Simpson Abercromby Health Centre Clinical Lead for SystmOne (IT) / Co-ordinator for Grove Street Haemoglobinopathy/Newborn Bloodspot Screening Liverpool L7 7HG Email: [email protected] Tel: 0151 295 3859 Lead Clinical Nurse Specialist/Counsellor: LEEDS Vacant Sickle & Thalassaemia Centre Email: The Reginald Centre 2nd Floor Specialist Midwife: Vacant 263 Chapeltown Road Liverpool Women's Hospital Leeds LS7 3EX Crown St Tel: 0113 843 4351 Liverpool Fax: 0113843 4445 L8 7SS Clinical Lead: Trina Glynn 0113 84 34348/9 Direct Line-0151 702 4085 Email: [email protected] Switchboard: 0151 708 9988 page 137 Haemoglobinopathy Counsellors: Zeb-un-Nisa Mob-07717516134 0113 84 34350 Email: [email protected] Email: [email protected] Staff Nurse: Sue Jammeh Acute Email: [email protected] Dept of Haematology Admin Support: Shantelle Niles Royal Liverpool Hospital Email: [email protected] Prescott Street Liverpool Acute : L7 8XP St James’s University Hospital Adults: Andy Houghton Haematology Offices Tel: 0151 706 4702 Level 3, Bexley Wing Email: [email protected] Beckett Street Leeds. LS9 7TF Direct line 0113 206 8236 Ext: 68236 CNS- Red Cell: Susan Mckeown-Wade
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LUTON (STAC Secretary) Queen Victoria Road Sickle Cell & Thalassaemia Service Newcastle upon Tyne Cambridgeshire Community Services-Luton NE1 4LP Ground Floor, Futures House Tel: 0191 2829477 The Moakes Specialist Haemoglobinopathy Counsellor Marsh Farm Brigid Keane Luton LU3 3QB Email:[email protected] Tel: 01582 708312 / 0333 4050070 Fax: 01582 707309 NOTTINGHAM Community Nurse Specialist: Maureen Scarlett Nottingham Sickle Cell and Thalassaemia Service Email: [email protected] The Mary Potter Centre in Hyson Green [email protected] Gregory Boulevard Hyson Green Nottingham NG7 5HY MANCHESTER Tel: 0115 8838424 Sickle & Thalassaemia Centre Fax: 0115 8838425 352 Oxford Road Lead Specialist Nurse & Manager: Joanne Bloomfield At Junction of Denmark Road Email: [email protected] Manchester M13 9NL Specialist Nurses: Adewumi Ajayi Tel: 0161 274 3322 / Fax: 0161 273 7490 Email: [email protected] Centre Manager: Verna Davis Email: [email protected] Email: [email protected] Specialist Nurse (Acute – Adults) Doreen Richards: Haemoglobinopathy Specialist Midwife: Jane Nottingham University Hospital Raddats, Tel: 01159691169 Ext 53446 Paediatric Specialist Nurse: Sarah McDonald Monday Wednesday and Thursday Haemoglobinopathy Counsellor: Carol Douglas, Email:[email protected] Marcia Oliver, Marilyn Burton Email:[email protected] Psychologist Paediatrics Dr Sonia Patel Specialist Nurse (Acute- Paediatrics) Hazel Marriott Email: [email protected] Nottingham University Hospital Wednesday and Thursday MILTON KEYNES Tel: 01159249924 Ext 63709 Sickle & Thalassaemia Service Email:[email protected] Milton Keynes Community Health Services Trust Headquarters PRESTON Standing Way, - Covered by Manchester Centre Eaglestone Milton Keynes MK6 5NG READING (WEST BERKSHIRE) Tel: 01908 243652 Sickle & Thalassaemia Service Tel: 07771 340192 Haematology Department Specialist Nurse Haemoglobinopathies: Susan Royal Berkshire Hospital Mew London Road Email: [email protected] Reading Berks RG1 5AN MIDDLESBROUGH Tel: 0118 322 7292 Academic Centre Fax: 0118 322 7755 The James Cook University Hospital Specialist Counsellor: Vanessa Newland Marton Road Email: [email protected] Middlesbrough Screening Co-ordinator: Jo Young TS4 3BW Email: [email protected] Tel: 01642 282802 Haemoglobinopathy Specialist Practitioner Antenatal Screening Co-ordinator Lindy Defoe Jeanne Harris Email: [email protected] Antenatal Clinic Royal Berkshire Hospital NHS Trust NEWCASTLE Level 2 Fetal Medicine Unit Maternity Unit 4th floor Leases Wing Tel and Fax 0118 322 8507 Royal Victoria Infirmary Email: [email protected]
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SCOTLAND (WEST of SCOTLAND) Margaretha van Mourik Acute Consultant Genetic Counsellor Sickle Cell & Thalassaemia Service West of Scotland Clinical Genetic Service Pathology Department Level 2A Laboratory Medicine Manor Hospital Southern General Hospital Moat Road 1345 Govan Road,Glasgow Walsall, West Midlands WS2 9PS G51 4TF Tel: 01922 721172 x 7389 Tel: 0141 354 9261 (59261) Fax: 01922 656809 Tel: Secretary 0141 354 9219 Nurse Specialist (Acute): Valerie Davis Tel: Main departmental line 0141 354 9200 Email: see Wolverhampton Email: [email protected] Mobile: 07506 201239
SHEFFIELD Haemoglobinopathy Service WEST MIDLANDS PERINATAL INSTITUTE Sheffield Children's Hospital Crystal Court Room E61, Orange Wing Aston Cross Western Bank Birmingham B6 5RQ Sheffield Regional Screening Child Health Coordinator: S10 2TH Glenda Augustine Haemoglobinopathy Specialist Nurse Tel: 0121 687 3471 Sheila Daley Fax: 0121 687 3401 Tel: 0114 271 7707 Email: [email protected] Fax: 0114 226 0640 Mobile: 07976601889 WOLVERHAMPTON [email protected] Sickle Cell & Thalassaemia Support Project [email protected] 2nd Floor Office St John’s House SOUTHAMPTON – No Service St John’s Square (managed by Paediatrician & Haematologist) Wolverhampton WV2 4BH Southampton General Hospital Tel: 01902 444 076/77 Fax: 01902 445 322 Dr Vandy Bharadwat - Paeds Sickle Cell & Thalassaemia Counsellor: Dr Mary Morgan – Paeds Pam Lakhpuri – Also covering Walsall Community Dr Shrini Narayanan - Adults Valerie Davis – Also covering Walsall Acute Tel: 023 80777 222 - Main Community Development Officer: Alexis Reid-Hamilton (Dudley & Wolverhampton) WALSALL Project Co-ordinator: Sutinder Herian Community Information Officer: Ravinder Raj Haemoglobinopathy service Email: [email protected] Bentley Health Centre Website:www.sctsp.org.uk Churchill Road Walsall WS2 0AW SOUTHERN IRELAND Tel: 01922 423506/07 Rosena Geoghegan Sickle Cell & Thalassaemia Community Advanced Nurse Practitioner Candidate in Counsellor: Pam Lakhpuri Haemoglobinopathy Email: [email protected] and Our Lady's Children's Hospital, [email protected] Crumlin, Mobile: 07506 201249 Dublin 12, Ireland Office:00 353 1 4096953 Admin Co-ordinator: Mrs Jas Kainth. Bleep: 00 353 1 4096100 Bleep Email: [email protected] and Email: [email protected] [email protected] Mobile: 07920 581513
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VOLUNTARY ORGANISATIONS LOCAL VOLUNTARY GROUPS
SICKLE CELL SOCIETY OSCAR SANDWELL 54 Station Road (Organisation for Sickle Cell Anaemia Research and Harlesden Thalassaemia Support) London NW10 4UA 120 Lodge Road Tel: 020 8961 7795 West Bromwich Fax: 020 8961 8346 West Midlands Email: [email protected] B70 8PL Website: www.sicklecellsociety.org Tel: 0121 525 0556 CEO: John James Centre Manager: Rachel McFee Email: [email protected] Email: [email protected] Mobile: 07879 555 332 www.oscarsandwell.org.uk DoH Nationwide Advisor Comprehensive Care: Dr. Asa’ah Nkohkwo OSCAR TRUST LIMITED Email: [email protected] 5 Lauderdale house Regional Care Advisor (South): Iyamide Thomas, Gosling Way Email: [email protected] Brixton Mobile: 07841 558 611 London SW9 6JN Regional Care Advisor (North): Comfort Ndive Tel: 020 7735 4166 Email: [email protected] Fax: 020 7820 9594 Mobile: 07841 558 612 Co-ordinator: Peggy Brown
UK THALASSEAMIA SOCIETY SICKLE WATCH 19 The Broadway African Caribbean Cultural Centre Southgate 9 Clarenden Road London N14 6PH Hornsey Tel: 020 8882 0011 London N8 0DJ Fax: 8882 8618 Tel: 020 8888 2148 Email: [email protected] Fax: 020 8881 5204 Website: http://www.ukts.org Director: Neville Clare President: Mike Michael Administrator: Elaine Miller SICKLE CELL ANAEMIA RELIEF FOUNDATION (SCARF) OSCAR BRIMINGHAM 163a Carr Rd OSCAR Birmingham Ltd Northolt 22 Regent Place Middx Jewellery Quarter UB5 4RJ Birmingham Tel: 020 8248 8316 B1 3NJ Director: Melville Jones Tel: 0121 212 9209 CEO Madge Milligan-Green SICKLE CELL ANAEMIA RESEARCH E-mail: [email protected] (SCAR) PO Box 88 OSCAR BRISTOL Barking, Essex 1T11 8PH Sickle Cell & Thalassaemia Centre Tel: 020 8514 3934 256 Stapleton Road Co-ordinator: Paul Walsh Easton Bristol BS5 0NP SICKLE CELL WOMEN’S WELFARE ASSOCIATION Tel: 0117 951 2200 (AYOKA) Fax: 0117 951 9570 Sickle Cell Project Email: [email protected] St Margaret’s House Website: www.bristoloscar.org 15a Old Ford Road Secretary : Marjorie Richie London E2 9PL Centre manager: Cathy Connelly Tel: 020 8981 9603 Co-ordinator: Theresa Shinyanbola
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THE SSCATS FOUNDATION Sickle & Thalassaemia Centre Lectures SYAC Business Centre 110-120 The Wicker Sheffield S3 8JD Tel: 0114 275 3209 / Fax: 0114 279 6870 Community Project Workers: Coral Jarratt; Nighat Khan Email: [email protected] [email protected]
SICKLE CELL/THALASSAEMIA SUPPORT GROUP OF BARKING, DAGENHAM AND HAVERING Ripple Centre, 121-125 Ripple Road Barking, IG11 7FN Project Co-ordinator: Cecilia Shoetan Tel No: 0208 532 7330 Mobile:07737 295 126 www.sicklecellbhr.org.uk/
NHS SICKLE CELL & THALASSAEMIA SCREENING PROGRAMME TEAM Website: CO-ORDINATORS/LECTURERS http://sct.screening.nhs.uk SPECIALIST COURSES
JOAN WALTERS Senior Nurse Practitioner Lecturer (Children & Young People) Florence Nightingale School of Nursing & Midwifery King’s College, London INDEPENDENT PRACTITIONER (with James Clerk Maxwell Building NHS SCREENING PROGRAMME) 57 Waterloo Bridge Road Cynthia Gill London SE1 8WA Independent Haemoglobinopathy Specialist Nurse Tel: 020 7848 3510 / Fax: 020 7848 3555 Weatherill House Pager: 07659 143610 New South Quarter Email: [email protected] / [email protected] 23 Whitestone Way Croydon CR0 4WF Tel: 020 3747 4747 Fax: 020 8686 6125 E-mail: [email protected]
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Anyone who wishes to become a member of the Sickle & Thalassaemia Association of Counsellors (STAC) or would like further information should contact:
Maureen Scarlett, Secretary on 01582 708312 or Lola Oni, Chair (see Brent)
STAC mailing address: Sickle & Thalassaemia Centre Balham Health Centre 120 Bedford Hill Balham London SW12 9HP Tel / Fax: 020 8700 0615 Email: [email protected] Website: Not running at present
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