Travel: Affordable Getaways
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life beyond wheels Travel: Affordable Getaways Kyle Walsh: Friday Night Lights Practicing Law on Wheels The Truth about Aging TO SUBSCRIBE, CLICK HERE newmobility.com APR 2017 $4 THE ORIGINAL Mark Zupan ADI IS THE ORIGINAL CARBON FIBER BACK. For over 15 years, we’ve worked with industry experts to produce ergonomically-designed seating that eases the strain on your lower back and provides you with comfort throughout the day. Plus, we have the largest offering of sizes and hardware available anywhere—five mounting options, three height choices (custom available), eight width selections, and two contour options. Created by actual wheelchair users, our carbon fiber back supports offer the perfect blend of form and function. DON’T SETTLE FOR AN IMITATION. stealthproducts.com STAND OUTeven when you‘re SITTING DOWN küschall® K-Series attract™ Visualize your own küschall® K-Series attract™ wheelchair at kuschallUSA.com/standout ©2017 Invacare Corporation. All rights reserved. Trademarks are identified by the symbols ™ and ®. All trademarks are owned by or licensed to Invacare Corporation unless otherwise noted. Form No. 17-006 170238 17-006 Kuschall Attract NewMobility Ad.indd 1 2/23/17 2:53 PM CONTENTS VOLUME 28 NUMBER 283 April 2017 life beyond wheels FEATURES 14 COACH, FAMILY MAN, QUAD High school football is larger than life in Texas, and Kyle Walsh has a front row seat from his power chair as an offensive line coach. SETH MCBRIDE reports. 19 LONG IN THE TOOTH, BUT NOT OVER THE HILL RICHARD HOLICKY talks with aging wheelers to see what they’re doing to make sure their final years are golden ones. 39 MY TRIALS AND TRIBULATIONS Spinal surgery forced STEPHANIE ARRACHE into a wheelchair, but it couldn’t make her give up her legal practice. GREAT AMERICAN ADVENTURES 28 LILLY LONGSHORE, ASHLEY LYN OLSON and TIM GILMER lead you from sea to shining sea in search of some of America’s best accessible, affordable destinations. Whether you are looking for relaxation, education or a little bit of both, they’ve got you covered with museums, monuments, hot springs, beaches and much more. Cover Photo by WheelchairTraveling.com DEPARTMENTS 4 BULLY PULPIT 13 EAT WELL, LIVE WELL 6 LETTERS 42 INNOVATIONS 8 NEWS 44 RAISING A RUCKUS 10 EVERYDAY ADVOCACY 47 CLASSIFIEDS 12 SCI LIFE 48 CRIP BUZZ BULLY PULPIT life beyond wheels APRIL 2017 NEW MOBILITY IS THE MONTHLY MAGAZINE OF PRESIDENT & CEO: JAMES WEISMAN VICE PRESIDENT OF PUBLICATIONS: JEAN DOBBS EDITORIAL More Neuropathic Pain Meds PUBLISHER: JEAN DOBBS “The Pain That Never Stops,” which ran in pump, do not make her drowsy, whereas tak- our March 2017 issue, elicited several helpful ing them by mouth does. Most of the drugs EDITOR: TIM GILMER responses from readers who shared their mentioned above have a known side effect MANAGING EDITOR: JOSIE BYZEK SENIOR EDITOR: IAN RUDER experiences in dealing with neuropathic pain. of causing drowsiness or sometimes tempo- SENIOR CORRESPONDENT: BOB VOGEL That story focused mainly on interviewees’ rarily impaired thinking. Deborah Gregson drug choices for pain relief. Also, many of making travel easy for individuals with spinalEDITORIAL cord disabilitie SUBMISSIONS:s echoes Mann’s experience in a second-hand [email protected] the respondents reported relying heavily on way: “My mom has had good success with a activities that distract from pain (exercise, baclofen pump, too, and it greatly reduces listening to or playing music, enjoying nature, side effects of oral meds.” CUSTOMER SERVICE doing internet research, etc.). The most surprising report came from But some readers contacted me after Roanne Kuenzler, who participated in a Toll-free 800/404-2898, reading the article and reported using differ- 2006 clinical trial run by Dr. Christine Sang, ext. 7203 ent drugs than those mentioned. One reader, director of Transitional Pain Research at Ken Braswell, wrote that he has been having Brigham and Women’s Hospital in Boston. good results with Lyrica (pregabalin), which Dr. Sang is an expert in SCI and neuropathic ADVERTISING SALES was FDA-approved in 2012 for treating neu- pain, and much of her research focuses on 718/803-3782 ropathic pain in SCI. Tom VanderMolen also trying to find new pharmaceutical treat- NATIONAL SALES MANAGER: uses Lyrica regularly as one of his treatment ments, like dextromethorphan, a common MEGAN LEE, EXT. 7253 meds, as well as hydrocodone, and when the AD MATERIALS: cold medicine ingredient. Mucinex DM, for pain gets super bad, he will use a low-dose DEANNA FIKE, EXT. 7250 instance, contains just 30 mg of this ingredi- fentanyl patch (Warning: fentanyl is one of ent, but Kuenzler, as a subject in Dr. Sang’s the most powerful and addictive drugs). PRODUCTION research, found that a high dose of 700 mg/ Research has shown that quite often PRODUCTION MANAGER: DEANNA FIKE day of dextromethorphan does a good job of taking more than one drug for neuropathic controlling her neuropathic pain. This does CIRCULATION pain is more effective than relying on a single drug. The latest research indicates that three not mean we should all run out and buy up CIRCULATION MANAGER: types of medications are most effective in massive amounts of Mucinex DM. Consult BEVERLY SMITH treating neuropathic pain: anti-seizure meds your doctor, and remember, everyone re- CIRCULATION COORDINATOR: (gabapentin and pregabalin); antidepressants sponds differently. MARIA KURTZ (amitriptyline); and opioids (hydrocodone If you are thinking we are relying too heav- POSTMASTER: Send address changes to New Mobility, 120-34 and tramadol). However, since each person’s ily on drugs for pain relief, the good news is Queens Blvd, #320, Kew Gardens NY 11415. that both massage and acupuncture have Subscription rates: $27.95/year; $35.95/year in Canada; response to drugs varies, other non-FDA-ap- $67.95/year international via airmail. proved meds may work, too. Further studies been shown to give neuropathic pain relief New Mobility (ISSN 1086-4741), Volume 28, Issue 283, is dealing with the SCI population are needed. as well. But, as it is with meds, one treatment published monthly by United Spinal Association, 120-34 Queens Blvd, #320, Kew Gardens NY 11415. Margaret Mann finds that intrathecally is not enough. This kind of pain just keeps Copyright 2017, all rights reserved. Reproduction without delivered morphine, as well as baclofen, con- coming. Finding out what works best for you permission of any material contained herein is strictly prohibited. We welcome comments; trols her pain, which is both neuropathic and requires diligent research and careful collabo- we reserve the right to edit submissions. musculoskeletal. She says that these drugs, ration with your doctor. Periodicals postage paid at Flushing, NY and additional mailing offices. when delivered by way of an implanted — TIM GILMER www.newmobility.com 4 NEW MOBILITY CONTRIBUTORS life beyond wheels APRIL 2017 CONTRIBUTING EDITORS Lilly Longshore is a writer, a speaker and an advocate for those MICHAEL COLLINS with physical disabilities and vision impairments. Passionate MIKE ERVIN about traveling, she is determined to continue her adventures via wheelchair and share the world of possibilities available to ROXANNE FURLONG those of every ability through her writing. As mother of a visu- RICHARD HOLICKY ally impaired son, she is the current parent representative on the PRISCILLA MALTBIE Board of Trustees for the Washington State School for the Blind. ALLEN RUCKER You can learn more about her at www.lillylongshore.com. ROBERT SAMUELS ERIC STAMPFLI ELLEN STOHL BOB VOGEL LOREN WORTHINGTON Paralyzed at 14, Ashley Lyn Olson is an access advocate and accomplished author, editor, public speaker, photographer, vid- eographer, website developer and entrepreneur. She created wheelchairtraveling.com in 2006 with the mission to empower people with limited mobility, their friends and loved ones to COMMUNITY PARTNERS access the world of adventure and travel. It is the first online com- KIM ANDERSON munity and largest database for accessible travel, with over 8,000 CHRISTIAAN “OTTER” BAILEY resources and hundreds of writers worldwide. She has a great pas- sion for life and the people, places and things that shape it. MARTY BALL TIFFINY CARLSON LAWRENCE CARTER-LONG RORY COOPER Seth McBride is a writer living in Portland, Oregon. When not JASON DASILVA serving as the news editor for NEW MOBILITY and writing features, DEBORAH DAVIS he tries to stay as active as possible, whether it’s wheelchair TOBIAS FORREST rugby or handcycling in the summer, or skiing in the winter. JENNIFER FRENCH This past summer he played on the U.S. Paralympic rugby team ALLISON CAMERON GRAY in Rio. His writing interests typically include anything related to MINNA HONG fitness, physiology, sports and adventure, but he appreciates a MARK JOHNSON good story on just about any subject. Writing for NEW MOBILITY, he GARY KARP finds that disability is just a small part of a larger story. NANCY BECKER KENNEDY BRITTANY MARTIN LINDA MASTANDREA Richard Holicky has been writing for NM since 1991. He worked LYNN MURRAY full-time in the Craig Rehabilitation Hospital Research Department ASHLEY LYN OLSON for several years and since 1997 as a consultant. In 2010 he TEAL SHERER was instrumental in creating, then facilitating, the three-part TARI HARTMAN SQUIRE Reinventing Yourself study, which focuses on dealing with the life- MITCH TEPPER style changes that come with SCI. Holicky has also penned an SCI REVECA TORRES caregiver’s guide and Roll Models, a “survivor’s manual” for people ANTHONY TUSLER with new spinal cord injuries. Holicky has served on the boards KARY WRIGHT of local CILs and NSCIA. He lives in Denver with his bride, Jeannie Dunham, and Leo, the attack cat. APRIL 2017 5 Diving in Cozumel Equipment Repair Media Inclusion LETTERS life beyond wheels Sex, Wheels & Relationships: Women’s Pleasure Christine & Jerrod: I identify with a lot of what these Living with Passion women are saying about the need to explore and be creative.