SUMMER 2016 NEW YORK CITY - SOUTHERN NEW YORK CHAPTER MS CONNECTION NEWSLETTER

INSIDE 03 04 05 06 WALK MS 2016 CHAPTER VOLUNTEER RESEARCH THIS WRAP-UP NEWS CORNER ISSUE 2 MS CONNECTION: SUMMER 2016

PUBLICATION OF THE NATIONAL MULTIPLE SCLEROSIS SOCIETY, NEW YORK LETTER FROM THE CITY - SOUTHERN NEW YORK CHAPTER 733 THIRD AVENUE, NEW YORK, NY 10017 CHAPTER PRESIDENT

212-463-7787 Welcome summer!

Chairman For many of us this is the time Jeffrey L. Silverman of year we are able to slow down, Secretary take some time off, enjoy the easi- er pace of summer but remain mindful that the heat may worsen Tobi Rogowsky Treasurer MS symptoms. We encourage you to read this issue of MS Con- Malcolm P. Wattman, Esq. nection while taking advantage of the warm weather outdoors or in a comfortable air conditioned environment. President Robin Einbinder, LCSW, MPH We at the chapter will continue to stay engaged with the work Editor in Chief at hand for the thousands of people in our community impacted Liz Samurovich by multiple sclerosis and invite and encourage you to join us for Editor our summer programs including: Traveling with MS, Tennis, Daphne Mack Education programs at affiliated Partners in MS Care, and Designer Creative Writing. Daisy Chong Fueled by your donations, these programs help us provide services focused on your physical and emotional well-being; understand- CONNECT WITH ing that caring for mind, body and spirit is what helps people US ONLINE: affected by MS live their best lives. www.MSnyc.org [email protected] So we hope you’ll sit back, relax and enjoy reading this issue which

contains a great interview with Janis Winehouse, the mother of Like us: the late singer Amy Winehouse, who visited us from across the facebook.com/NYC pond, and an article about longtime volunteer Derek Ishmael SouthernNY whose dedication to fundraising and awareness building on Staten Follow us: Island is inspiring. twitter.com/NMSS_ Best wishes, NYCSNY YouTub e : MultipleSclerosisNYC Robin Einbinder Instagram: President @multiplesclerosisNYC JOIN THE MOVEMENT: www.MSnyc.org 3 DAVID OSMOND INSPIRES AND ROCKS WALK MS NYC On Sunday, April 17, beautiful weather, more than 5,000 walkers showing community spirit and a tal- ented guest performer, by the name of David Osmond, came together on Pier 26 in Manhattan to close out the 2016 walk season at the chapter. Walk MS NYC – Southern NY took place over two weekends in April at five additional sites – West- chester, Putnam, Rockland and Orange Counties and Staten Island – raising awareness and funds for local programs and services to help more than 12,000 people living with MS in our community live their best lives and support the Society’s critical research to drive progress and help transform the pace of MS research progress – accelerating breakthroughs that will change lives and end MS forever. David, who is living with MS, inspired walkers during the opening ceremony by sharing his journey with the disease, which included temporary paralysis. David is the son of Alan Osmond of the iconic Osmond Brothers music group. Alan too is living with MS. David was the recipient of the National MS Society’s prestigious Spirit of Life Award as well as the Ambassador of the Year Award in 2012. In partnership with Novartis Pharmaceuticals Corporation, he launched Our Voice in Song™, an educational campaign that aims to empower people with relapsing MS to take charge of their disease. He performed his inspirational song, inspired by his grandfather’s words, “I Can Do This.”

On the Cover: Chapter President Robin Einbinder and singer, songwriter, musician David Osmond at Walk MS NYC.

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CHAPTER NEWS “The diagnosis was a relief but MS is difficult and so varied in everyone, so you just have to look at it as it is, and deal with it,” she says. “You MS WARRIOR FROM just have to accept what you can and cannot do.”

Janis eventually developed spasticity in her right ACROSS THE POND leg and some lesions on the brain, which affected her memory and concentration that resulted in her being permanently restricted from driving.

Janis, who is active with the MS Society United Kingdom fundraising and serving as an ambassa- dor, says although she has never hid her MS she “really didn’t talk about it” until “a year prior to the death of Amy.”

“MS is a cruel mistress but you can still challenge her,” she says. “Don’t be afraid to challenge MS and be positive, don’t look at what you can’t do, It was 1979 and she was 25 years old, married look at what you can still do.” and had just given birth to her son Alex, when she first experienced tingling in her fingers and feet. SAVE THE “They (the doctors) kept saying it might be, it could be (MS) but they couldn’t say abso- lutely; but they did tell me not to get pregnant DATE! again,” says Janis Winehouse, mother of the late Sunday, GRAMMY award-winning singer Amy Wine- October 23, 2016 house, during a visit to the chapter. “But in 1983, Pier 92/94, Amy was born.” Manhattan Janis, who was born in Brooklyn, but raised and REGISTER AT: www.bikeMSnyc.org still resides in London, England, was in New TAKE $10 OFF REGISTRATION: York City, with her husband Richard, to meet Use discount code: MSC with the publisher of her first book, “Loving There is a required fundraising minimum of Amy: A Mother’s Story.” $200 and a registration fee of $55. Janis was officially diagnosed with multiple scle- The registration fee increases to $75 in August rosis in 2003 and had to be hospitalized for the so sign up today! exacerbations (flare-ups) that are associated with the relapsing-remitting form of MS she lives with. *This issue has been brought to you by a generous grant from JOIN THE MOVEMENT: www.MSnyc.org 5

VOLUNTEER CORNER For more than a decade, Derek Ishmael, of Staten Island, has not only been a dedicated volunteer for the chapter but also a suc- cessful fundraiser.

Derek says the first event which he volunteered for was Bike MS NYC when his wife, Barbara McKeon, the chapter’s Director of Employment Services, joined the staff.

DEREK ISHMAEL However, his connection to multiple sclerosis comes through Scott Singer, the best man at their wedding who was diagnosed “VOLUNTEERING with MS about 25 years ago. "We truly admire him for going into work every day while navigating mobility issues without GIVES ME A SENSE complaint,” he says. OF SATISFACTION” Derek volunteers annually for Walk MS, Climb MS and Bike MS. Additionally he has volunteered for the Women on the Move Luncheon, Adaptive Tennis, Muckfest MS, and Race Against MS. However, he found his event of choice in Walk MS Staten Island saying he “loves doing the Walk because it has a great sense of community and since no special equipment or training is needed anyone can participate.”

In the 10 years he has co-led his team, The FunRaisers, they have grown from four members to at times as many as 24, and have cumulatively raised more than $40,000 to drive groundbreaking research, provide life-changing programs and guarantee a supportive community for people living with MS.

“Volunteering allows me to give back to the community which makes me feel productive,” says Derek, who is retired now. “Moreover, I’m very impressed by the work ethic of the hard working staff at the chapter.”

To learn more about volunteer opportunities, email [email protected].

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ADVOCACY (Congressmans Tonko and Maloney) signed on to our funding request for the National In- stitutes of Health. These funds will be used to analyze how the immune system responds to dif- ferent stimuli while providing the basic research to develop MS therapies. RESEARCH A NEW WAY TO SEE Magnetic resonance imaging (MRI) of the brain helps doctors diagnose multiple sclerosis and ob- serve disease activity and progression in people with the disease. However, MRIs have limita- tions and can be a time-consuming, expensive ADVOCATING FOR MS and – for some people – frightening procedure.

For these reasons and others, researchers have ON CAPITOL HILL been exploring optical coherence tomography, The Public Policy Conference in Washington, or OCT, as a non-invasive, relatively inexpensive D.C., focused on three key issues: MS Research and well-tolerated imaging method to track dis- funding, the Advancing Research for Neurologi- ease progression and the effects of MS therapies. cal Diseases Act and access to MS medications. Chapter staff and volunteers met with Senator Results of a four-year study, published Novem- Charles Schumer, who agreed to sign on to our ber 2015 in Annals of Neurology, suggest that priority legislation, the Advancing Research for the rate of tissue thinning seen on OCT reliably Neurological Diseases Act (S.849). This bill would mirror overall brain degeneration, with specific create a centralized data collection system at the layer of the retina showing atrophy at similar Centers for Disease Control (CDC) and would rates as specific brain regions seen with MRIs. In track and collect data on neurological diseases. addition, these similar rates of atrophy between In addition, we were also able to recruit OCT and MRI were more strongly associated in a new member for the Federal MS Cau- progressive MS. cus, Congressman Sean Patrick Maloney. As a result of our meetings on Capitol Hill, two Learn more at www.nationalMSsociety.org/re- more members of Congress from New York search.

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program taught her the importance of physical fitness and led her to participate in a triathlon and the NYC marathon. Ultimately, all of it in- spired her to go back to school to pursue a mas- ter of social work degree.

Hannah says she wants to give back, to empower others. “You must speak up; ask for help when you need it. Be persistent and patient.”

Her hope for the future…to graduate and that a cure for MS will be found in her lifetime. WELLNESS RESOURCES

LIVING WITH MS WELLNESS AND ACCESS- IBILITY IN NYC PARKS HELPING OTHERS AND Fitness is on the front line for New Yorkers living WINNING PERSONALLY with disabilities! In January of 2009, Hannah P. knew something Our wellness/fitness classes have concluded for was wrong. A trip to a neuro-ophthalmologist the summer break, but there’s another fantastic brought her a quick diagnosis of MS at the age opportunity in the works if you live in New York of 24. She began a disease modifying treatment City. You can now get access to an array of modi- fied fitness programs and accessible pools by join- right away, and had no relapses for four years but ing up with the NYC Department of Parks and she was feeling depressed. Her friends encour- Recreation at a reduced rate of $25. aged her to join a support group at the chapter; a decision that has impacted her life and others. According to the Center for Disease Control and Prevention, “One in two adults with disabilities She started volunteering with the program for get no aerobic physical activity compared with the newly diagnosed, and moved on to become one in four adults without disabilities.” an MS Champion and Ambassador, and a peer counselor. She says that the Living Well with MS Accessible facilities, from beaches to carousels,

*This issue has been brought to you by a generous grant from 8 MS CONNECTION: SUMMER 2016

and adaptive hubs within the city’s parks system, (CIS por sus siglas en inglés). Aunque el CIS ensure that New Yorkers living with disabilities puede o no puede convertirse en EM, las have plenty of opportunities for physical activities. personas con CIS tienen alto riesgo de desarrollar EM. Incluir el CIS como curso de “Reducing the fees at NYC Parks’ recreation la EM, permite a la persona tratarse con una centers for individuals with disabilities will pro- terapia modificadora de la enfermedad. vide more affordable access to recreation centers • La EM remitente recurrente se describirá that provide adaptive exercise equipment, ac- como activa (con recaídas o con RM activa) cess to swimming pools, and overall accessibil- o no activa y como que empeora (aumento en ity for people with disabilities which is part of discapacidad) o no. the City’s disability agenda,” said Victor Calise, • La EM primaria progresiva y la secundaria Commissioner of the Mayor’s Office for People progresiva serán activas (con recaídas o RM with Disabilities. activa) o no activas y progresivas (aumenta To learn more about accessibility and programs gradualmente la discapacidad) o no progresi- at NYC parks: http://www.nycgovparks.org/ vas. accessibility Esta revisión facilitara conversaciones entre cada individuo con EM y su equipo médico acerca EN ESPAÑOL de lo que está sucediendo con la enfermedad en diferentes puntos de tiempo para que puedan identificar las estrategias de tratamiento óptimas. NUEVO ENTENDIMIENTO Para más información en español sobre la EM y las opciones de tratamiento comuníquese con La Sociedad Nacional de EM al 1-800-344-4867, DE LOS CURSOS DE LA EM opción 3. Por María A Reyes-Velarde

Debido al nuevo entendimiento de la EM y pro- greso en la tecnología de la resonancia magnética (RM), el Comité Asesor Internacional de En- RECEIVE MSCONNECTION sayos Clínicos de la EM recomendó la siguiente revisión de la descripción de los cursos de la EM: THROUGH YOUR EMAIL • Eliminar el curso de la EM recurrente pro- Help save the environment and keep postage gresiva. Las personas con este curso serán costs low! Email [email protected] to consideradas con EM primaria progresiva activa. receive MS Connection via your inbox. Añadir el síndrome clínicamente aislado

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The Dystel Memorial Golf Classic 20 16 Monday, June 6, 2016 | Sunningdale Country Club | Scarsdale, NY DYSTEL MEMORIAL GOLF CLASSIC

34th ANNUAL RACE AGAINST MS

2016 Thursday, June 16, 2016 at Belmont Park Race Track, Turf & Field Club HONORING: Joseph Szabo, Tishman Speyer PRESENTED BY: Atlas-Acon Electric Service Corp./New York Electrical Power Services • Platinum Maintenance • Structure Tone, Inc. • Unity International Group To reserve your spot today, please call Gina Nicoletti at 212.453.3235 or email [email protected]

*This issue has been brought to you by a generous grant from 10 MS CONNECTION: SUMMER 2016

PROGRAMS AND SERVICES CALENDAR AUGUST AUGUST - OCTOBER 2016 WEBINAR AND TELELEARNING SERIES: Unless indicated otherwise below, for more MOOD IN MS information and to register call 1-800-344-4867, Tuesday, August 9, 2016 option 1 or visit www.MSnyc.org. 8 – 9:15 p.m. Each free webinar and telelearning program features two presenters with time for Q&A. SUPPORT GROUPS For more information visit: www.nationalMS- The chapter offers free support groups for indi- society.org/telelearning viduals living with MS, as well as their families and caregivers. Professionally led groups are SEPTEMBER organized around topics related to MS concerns, experiences and resources. Most groups run WEBINAR AND TELELEARNING SERIES: on a monthly schedule after a summer hiatus. HEALTH INSURANCE Visit www.nationalMSsociety.org/Support Tuesday, September 13, 2016 GroupsNYC for group listings starting in 8 – 9:15 p.m. September. Each free webinar and telelearning program features two presenters with time for Q&A. SELF-HELP GROUPS For more information visit: www.nationalMS- Ongoing self-help groups, led by trained volun- society.org/telelearning teers, for people living with MS in New York City and in Westchester, Rockland, Orange and Putnam Counties. For listings visit Groups and MOVING FORWARD Discussions at www.MSnyc.org and click on Saturday, September 17, 2016 “Find a Group”. 9:00 a.m. – 3 p.m. New York City - Southern NY Chapter office PEER CONNECTIONS 733 Third Avenue, 3rd floor This program allows you to search for and connect New York, NY 10017 with a peer support volunteer who has ‘been there’ This program is specifically designed for people and can provide helpful tips, suggestions and emo- newly diagnosed with MS within the last tional support for the challenges that MS presents. three years to provide an overview on MS and, Visit www.MSConnection.org to learn more. through a panel of experts, answer questions that typically accompany an MS diagnosis. Topics include: treatments, research, nursing perspective and management of MS, adapting JOIN THE MOVEMENT: www.MSnyc.org 11

CAN DO MS JUMPSTART® PROGRAM FOR to life with MS. Lunch will be included. Family members and friends are encouraged to attend. YOUNG PROFESSIONALS Saturday, October 15, 2016 8:30 a.m. – 4 p.m. EVERYDAY MATTERS Faculty House-Columbia University Saturday September 24, 2016 64 Morningside Drive 8:00 a.m. – 5:00 p.m. New York, NY 10027 New York City - Southern NY Chapter office A free one-day program for professionals with MS 733 Third Avenue, 3rd floor to get a JUMPSTART on navigating their lives New York, NY 10017 with MS while managing careers and planning for This one-day program is for family members the future. Topics will include employment, finan- impacted by MS. This program will increase cial planning, health care, wellness, and relation- knowledge of the principles of positive psychol- ship/family questions. This is a great opportunity ogy and how to applly them as a strategy for to meet and learn from other young people living living with MS in the family and to identify with multiple sclerosis! community resources for support and connec- tion.

OCTOBER WEBINAR AND TELELEARNING SERIES: SUPPORT PARTNERS AND FAMILIES Tuesday, October 11, 2016 8 – 9:15 p.m. Each free webinar and telelearning program features two presenters with time for Q&A. For more information visit: www.nationalMS- society.org/telelearning 12 MS CONNECTION: SUMMER 2016

The Bryan and Eva Schreier Donor Clay Crumbliss Ben Klein LIST OF DONORS Advised Fund of The Morgan John Cumming Carol Klein Stanley Global Impact Trust Cynthia and Brian Trudell of the Howard Klein Michele Dinn and Keith R. Ayco Charitable Foundation Michael Koester McMurdy Del Rey & Company, CPAs, LLP Susan LaGrutta THANK YOU The Honorable Kibbie F. Payne Margaret Dennis Shelley Lazar Houlihan Lawrence Deutsche Bank Americas Michael Leddy Jacobson & Company Foundation Matching Gifts Erral Lengu FOR MAKING James and Virginia Welch Theodore Diaco Linda Lenyo Foundation Themis Dimon Leventhal Family Charitable Jonathan Metal & Glass Adina Dolfman Foundation, Inc. Macmillan Publishers Brian and Lauren Donaghy Josh Levine A DIFFERENCE Morgan Stanley Michael Donovan Lester L. Levy OH&M Electrical Corp. Mancini Duffy Leslie Lewkow Relying on the support of caring Evan Schwartz Paul Dunlap Mary Litterman individuals, businesses and foun- Robert Sharon Michael Dunn Dennis Love dations listed below, the New York Scott J. Sigal Colin S. Edwards David Low, Jr. City – Southern New York Chap- Sound Refrigeration & Air Eloise Briskin Foundation Richard Lozyniak ter strives to address the challenges Conditioning Steven Evans Michael Malafronte facing all those who are affected by Texas Rangers Baseball Foundation Seymour Falik Jorge Mandelbaum this life-long disease. Your com- Vornado Realty Trust Arthur J. Feibus Lizbeth Marano mitment and personal dedication Daria L. Wallach and Eric J. Wallach First Eagle Investment Amy Martini helps the 12,000 people living with Leslie Ziff Management Foundation MBI Group MS in the five boroughs, West- James Fischer Marilag Mendoza chester, Rockland, Putnam, Sulli- GIFTS OF $1,000 - $4,999: Fisher Brothers Foundation, Inc. Stephen Meyers van and Orange counties and gives Alan Abramson James Fortescue Brad Micklin us the tools necessary to create a Adirondack Foundation Matthew Foulds Sergio Millerman world free of MS. Contact Eliza- Eli Adler John Fowler Hardie Morgan beth Lee at elizabeth.lee@nmss. Howard Adler Frontstream Avon Products Catherine Mosbacher org or call 212-453-3274 for more Alliance Bernstein Foundation Inc. Kenneth Murawski information. AMA Consulting Engineers, PC Galaxy Glass Corporation Inc. Cormach Murrihy Daliah Amar Paul Galiano Bill Nelson We wish there was space to thank American Endowment Foundation Sonia Gardner Mark Newhall all of our generous donors. Re- Alan Appelbaum Elizabeth Giardina Marc Notari gardless of your gift’s size, it is Lowell Aptman Kimberly Gilbertson O’Herron Family Foundation Martha Gingrich O’Malley’s Fundraiser invaluable and tremendously Mary and Steven Arcieri Andrei Gnepp Raquel Palmer appreciated. The gifts listed here Liz Armstrong Daniel Goldman Perseus Books Group represent the generous support of Atlas Peak Foundation Brett Axton Goldman Sachs Gives Phoenix Interior Contracting individuals, corporations and Dana Goldstein Co. Inc. James and Alvina Bartos Balog foundations contributing $500 Jim Goodman Richard Pine Scott Barek and above during the period of Alex Goor Diana Podolsky Neal S. Barlia January 1 - March 31, 2016. Thomas Gottwald Tara Powers Leo Batali John Green Sidney Pratt Bauerschmidt & Sons, Inc. Jason Gregory Mitchell Rabinowitz Elizabeth Berens GIFTS OF $100,000 - $149,000: Martin Gross Rachel Adler Fine Art Terry Bernard Viacom Charlene Gulino Rajeev Bhaman Charitable Fund Bessemer Trust Hachette Book Group Richard Cardinal Cushi Beth Maher Family Foundation HarperCollins Publishers Scott Richter GIFTS OF $50,000 - $99,999: J. Birnbaum The Applebaum Foundation, Inc. Harris Foundation Sharon Richter Selma Bitz Ronan Harty Chris Rogers Bloomsbury USA GIFTS OF $25,000 - $49,999: Mary Henry Maxine Rose Jane Borg Gabriel Hernandez Faith Ryan Biogen Ellen Brodsky Gregory Ho Patricia Ryan Julie and Ken Burns Margaret Hoban Sandra Sackman GIFTS OF $10,000 - $24,999 Evan Burrows Richard Hofstetter Sheryn Sackman The Andrew W. Mellon Ellen Buscemi Starlett Hollingsworth Jeffrey Sands Foundation Miles Cahn IBM Employee Services Center Santander Bank, NA Drummy Charitable Trust Gift Giovanna Calvino Adam Ifshin Larry Scheinfeld GBRG, Inc. Rose Marie Campbell Inkwell Management Mary Schorr Harry S. Black & Allon Fuller Fund Paul Carlucci Italian American Club of Mahopac Schwab Charitable Fund David A. Krantz Janet Catalina Robert Ivanhoe Joel T. Schwartz MichaelPsaros Cheryl Cereso Abbi Jacobson Jacquie Segal David Shapiro Philip Chang David Jaffe Andrew Segovia Stephen Rogowsky and The Clifford Charney Ronan James Select Equity Group Herbert Rogowsky Foundation, Inc. Greg Chuebon Jewish Communal Fund Foundation Unity International Group Paula Cohen Richard Josephs Jerome Shaw Ron Cohen JT Roselle Lighting Jeffrey Silverman GIFTS OF $5,000 - $9,999: Community Health Charities of JustGive Simon & Schuster Dorothy Berwin New York Christos Kalvlas Ronald Solow Bloomberg L.P. Corinthian Media Jeff Keitelman Frank Stella, Jr. BNY Mellon Ashley Cranford Laurence Kirshbaum Sandra Sterling JOIN THE MOVEMENT: www.MSnyc.org 13

Eugene Stern Stuart Coleman Janet Horowitz Chris Nicolaou Marc Stern Charles Sternling Ray Compagna, Jr. Jeremy Hoshia Mary A. Nichols Alexis Strongin Lee Stettner Howard Corb John Howard Virginia Norton Robert Sussman TEI Group Aiden Corr Robert Hurwitz Craig Nossel James Tabling George Thanopoulos Brian Costigan Darren Jacobs NUKEM, Inc. Frank Taliercio Elizabeth Ulrich Elaine Crocker Jillian Janaczek NYP/Lawrence PT Robert Tannenhauser Suzanne G. Valenstein Kein Cross John J. Doody & Son, Inc. Department Karen L. Tarshis Karen Ann Vangor Marco Cuccagna Susan Johnson Olufunmilola Obe Courtney Taylor Verizon Foundation Michael Cummings Matthew Kaiser Barry O'Brien Nancy Taylor Christopher Viento Luino Dell'Osso Marla Kaplan Kevin O'Donnell Jane Thompson Tom Viola Kameka Dempsey Jason Katz John Osterman Totsy Foundation Laura Ward Andrew Dickinson Rory Kelleher Joseph Palumbo Neale Trangucci Akihiko Washington Michael DiMaulo Anna Kim Jennifer Panciera John Triantafyllos Stephen Weinstein Martin Domnitch Kings FDR Tolerance Markos and Stephanie Frank Trotta David Welch, Sr. Libby Dub Foundation Parlamas Marie Tuccelli Jonathan Wells Whitney Duboef Jamie Klein John Paskalides Two Sigma Elaine Whitaker Thomas Duffy Jeffrey Klein The Patricia and Clarke Achilleas Tzoulafis Jacqueline Williams Sally Durdan Marla Klein Bailey Foundation, Inc. Marian Valdata Evan Wise John Ehrhardt Anthony Klimas Christopher Patrick Verso Advertising Richard Wood Karen Elizaga Robert Klinek Penguin Books Timothy Vitale Workman Publishing Mark Ellenberg Charles Knapp Erica Peitler Bill and Jami Voge Lawrence Zicklin Susan Engelstein Cathy Kraus Missy Person Jason Vopni David Eppler Robin Krauss Carol Peterson and Robert Votruba GIFTS OF $500 - $999: Paula Eppolito Mark Laracy Robert Hurwitz Eileen Walsh Arthur Adler Eric Fein, Inc. Orly Lax Eric Prono Malcolm Wattman AFD Contract Furniture, Gabriella Espinoza Mimi Leitner Prosek Partners Allen Weisberg Inc. Lindsay Faiella Michele Leone Michael Proskin Andrew Weisenfeld Francine Alagappan David Fapohunda Edward Leventhal Priya Raju Michele Greene Weisman Michael Albanese, Sr. Farm Sanctuary Andrew Levine Paul Raschi Danielle White Vicki Allen Fidelity Charitable Gift Gerald Levy Judith Raymond Robert Willens Vincent Ambroselli Fund Stephanie Levy Matt Retzlaff Vicki Windler American Express Shelley Fischel Marijeanne Liederbach Tamara Richwine Gwenn Winhaus Foundation Steve Fischer Schulman Lobel Stacy Rifkin Peter Wunsch Asees Anand EG Fisher Charles Long, Jr. Charlie Rizzo Kathryn and Peter Gail Auster William Fox Kevin Lopyan Tom Rogers Yatrakis M. Axinn James Frazier William Mahan, Jr. Todd Rose Dwight Yellen Francis Azur Mark Fulchino Manhattan Painting & Todd Rosenberg Karen Ziman Daniel Barnett Carmela Fusco Decorating Dana Rosenthal Tanya Zuckerbrot Barry and Natalie Greene Eileen and Peter Galen Scott Manning Janice Roth Family Foundation Erin Gambolati Matthew Mansfield Mary Ann Rothman IN HONOR OF: Mark Begor Ruben Garcia Jose Marques Richard Rubin Barrie Gillies Colm Bennett, LPN Brooke Geller Lauren Marrus Rosemarie Russo Olga Pappas and Family Brittany Benningsdorf Shyam Gidumal Marlon Marshall Amy Scharf Jim Philips Alison Bernstein Phyllis and Alvin Alfred Martinez Tyler Schlater Amy Schumer Elena Bilik Goldman Leo Marzen Maureen Schneider Malcolm and Donna Jackie Bisbee Kathy Gray Douglas Mass Corey Schnieder Wat tma n Robert Blumenthal Daniel Greenberg Abby May Jay Schoenfarber Belle Bonder Lorie Greenberg Jonathan May Susan Schulman Angelo Bonvino Zach Greenberger Juliana May Andrew Schwenk IN MEMORY OF: Lori Bores Gary Greenfield Steven Mazzuchelli Alfred L. Scott Sylvia Berger Steven Bowman Laurie Gross James McElligott Jean Sears Ann Oakley Amy Brookshire Kenneth Grossman Gavin McElroy, PhD Arkel Sebag Dan Wallis Patrick Brosnan Mark Hadley Daniel McNamara Alan Septimus Richard Brown Joe Haller Jonathan Mechanic Barrie Shackman CORRECTION: Daniel Budasoff Adam D. Handwerker Salvatore Messina Mitu Shah In the Spring 2016 issue, Phyllis Bulhack Liam Hanley Robert Miller Chaye Shapot of MS Connection, Ms. Suzette Burdett Greg Hannon Linda Mirels David Shaw Elizabeth Stewart was in- Christopher Burke Cindy Hanson Christopher Mitrovich Fred Shaw advertently missing from Alexis Buryk Joyce and Marvin Morgan Stanley Global Albert Short the list of donors who Anthony Calabro Hartstein Impact Funding Trust, Merry Slone made gifts of $500 - $999. Casper Colosimo & Son, Carol Harvey Inc. Kevin Smith, Jr. Her gift was made in Inc. Hay House Jeannine Morris Susie Sobchak honor of Diarra Stewart Alison Chalmers Lawrence Helfant Douglas Morse Lloyd Sokoloff and Twanda Walker. Mary F. Cherif Wayne Heller James Moynagh Joel Solow We apologize for the Susan Christie David Hermer Eric Muller Marie Sorbera oversight. Thomas Cirocco Nilda Hernandez Brian Murphy Charles Sorrentino Clyde A. and Mary F. Lazarus Heyman Susan Nanus Steve Spoerle Parton Foundation Jason Hodes Anthony Navarino Francine Stein of The Morgan Stanley Emily Hofstetter Dominick Navarino Kate Steinberg Global Impact Trust Karen Holloman New York Administrative Michael Steinberg Shirley Cohen Debra Holmberg Employees John Steinmann NON-PROFIT ORG. 14 MS CONNECTION:U.S. SUMMER POSTAGE 2016 PAID UTICA, NY 733 Third Avenue, Third Floor,New York, NY 10017 PERMIT NO. 32

Early and ongoing treatment with an FDA-approved therapy can make a difference for people living with multiple sclerosis. Learn about your options by talking to your health care professional and contacting the National MS Society at nationalMSsociety.org or 1-800-344-4867 (1-800-FIGHT-MS).

Information provided by the Society is based upon professional advice, published experience and expert opinion. Information provided in response to questions does not constitute therapeutic recommendations or prescriptions. The National Multiple Sclerosis Society recommends that all questions and information be discussed with a personal physician. The Society does not endorse products, services or manufacturers. Such names appear here solely because they are considered valuable information. The Society assumes no liability for the use or contents of any product or service mentioned. * The content of this issue has not been influenced, altered or edited by the underwriter.