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Or RING 111 Wrythe Green Surgery, Wrythe Lane, Carshalton, Surrey THE PATIENT PARTICIPATION GROUP NEWSLETTER FOR PATIENTS OF WRYTHE GREEN SURGERY Editor: Meg Jefferies MA, BSc hons. Autumn 2014 Issue 17 Wrythe Green Surgery, Wrythe Lane, Carshalton, Surrey SM5 2RE Telephone: 020-8669-3232 Fax: 020-8773-2524 General Manager: Mrs A Cartmell SURGERY HOURS GENERAL PRACTITIONERS EDITORIAL: Partners Telephone: 08.00-18.30 Now that, sadly, summer is over we need to consider Mon-Fri Dr. A Galloway seasonal tasks. Firstly, for those eligible for a free Dr. A Smith Dr. M Wells ‘flu jab, when you receive your invitation to attend Dr. S Saeed the surgery for this purpose, please take it up. The RECEPTION AVAILABLE Dr. C Keers main invitations have already been dispatched for 08.00—18.30 Associates appointments in October but some injections may be Mon-Fri. administered in November. If you are concerned Dr. J Rogers Dr. H Sheikh about any aspect of this then please discuss this with Late evening appointments: Dr. A Jacob your GP. If you are concerned about offered dates Monday (sometimes Dr. E Martinez or you are unable to attend then please enquire at Wednesday) Dr. V Patel reception so that an alternative date can be offered. Dr. M Siva from 18.30 - 20.30 For those not eligible automatically for free anti-flu OTHER MEDICAL STAFF injections at the surgery but who are concerned ( pre-booked appointments only please enquire at Physiotherapists about contracting ‘flu, many pharmacies can offer this service at reasonable cost. the desk) Mrs Kay Jinkins Mrs Jane Tyrrell Your Patient Participation Group (PPG) is now a Saturday appointments: member of the National Association of Patient Nursing Staff Please enquire at the desk Participation Groups, NAPP (sponsored by our Sister Sally Bullen surgery). NAPP advises on best practice for PPGs Sister Julie Rajaratnam OUT OF HOURS CALLS Sister Tracey Bennett and holds annual conferences. The importance of Nurse Jackie Warner patient care and patient participation groups 020 -8669-3232 (for onward attached to GP surgeries cannot be overstressed. direction) HEALTHCARE ASSISTANT Tracy Connolly One of our, and all other, surgeries’ tasks is to Or RING 111 implement Enhanced Services, some of which already CONTENTS operate, eg. extending appointment booking to two- APPOINTMENTS ON-LINE Page week rather than one-week intervals, on-line Editorial 1 prescription and appointment booking. There are You can now book Surgery details appointments on line. likely to be further developments in future and we Fibromyalgia (talk) 2-3 shall keep you informed about these as they occur. Please enquire at the Recep- tion desk for details We were glad to see a substantially increased Mental Health /Dementia 3 attendance at our meeting on 23 September featuring a talk on Fibromyalgia and hope that more REPEAT PRESCRIPTIONS Hospital Discharge report 4-5 of you will attend in future. All details are on the last ON-LINE (Healthwatch Sutton) page of this newsletter should you wish to come to Please enquire at the ‘Flu jabs 5 our next meeting. Our next talk on 2 DECEMBER is Reception desk for details about MARIE CURIE CANCER CARE. If you, or Notes from Public 6-7 someone close to you is affected, you may well SURGERY WEBSITE: Meeting in Wallington, wish to come. You will be made very welcome. If www. wrythegreensurgery.nhs.uk July 2014 you wish to address queries to our PPG, please Updates 7 write c/o our Practice Manager, Mrs A. Cartmell. NHS CHOICES www.nhschoices.net Receive newsletters by email PPG membership and Attendance at talk 8 WRYTHE NEWS FEATURE Talk on FIBROMYALGIA We were very pleased to have Maxine Marshall-Hogg who leads the Carshalton and Morden Support Group* for Fibromyalgia, **CFS/ME** sufferers to talk to us about this enigmatic but often severely debilitating and chronic painful illness at our PPG meeting on 23 September. She thanked the meeting participants for attending and for the opportunity to speak What is it? Maxine explained that in common with **myalgic encephalitis (better known as ME) and chronic fatigue (CF) ** are varied both in terms of what they are and how they affect individuals. The Fibromyalgia UK group describe the most common symptoms affecting sufferers as comprising muscle pain and stiffness; disturbed sleep and fatigue; poor concentration, specific ‘tender’ points and Irritable Bowel Syndrome (IBS). Roughly 2-4% of the population is affected. This is a considerable proportion of our population!! What are its effects? This figure and the possible symptoms mean that precise and early diagnosis is often very difficult. Whereas polymyalgia (from the Greek meaning ‘many pains in the muscles’) polyrheumatica and polyarthritis can be generalised pain in the body, thus meriting this somewhat vague description, Fibromyalgia has some distinct features. For example, there are 18 points in the body which can trigger often very severe pain when aggravated by touch or pressure. It is confirmed (as Fibromyalgia) on the basis of this widespread pain for 3 months or more, and a course of blood tests, eliminating other conditions. It attacks the fibrous tissues around the body, the muscles, ligaments and tendons. Some patients even suffer severe pain from contact with certain types of clothing. Fatigue and exhaustion can be constant companions and many patients experience difficulty in moving limbs. Prolonged sitting, standing and lying can also aggravate symptoms and simple everyday tasks, such as writing, can be very difficult. Sleep does not refresh and deep, restorative sleep (stage 4) is lacking in Fibromyalgia sufferes many of whom can wake up in the morning feeling substantially worse than when they went to bed. There can be considerable suffering through weather, light and noise sensitivity and some patients suffer severe migraines, depression and low self-esteem. Concentration and memory impairment can be severely affected and every day can be different. Each sufferer’s symptoms vary and it is common to have many other overlapping conditions, such as Rheumatoid and Osteoarthritis, Lupus, Thyroid and mineral deficiencies. In a crowded room it can be difficult to distinguish individual sounds and noises. Pains in tender points are generally experienced as bi- lateral, on both sides of the body. Onset of Fibromyalgia can be sudden, sometimes triggered by stress and physical or /mental emotional trauma and general occurs in people between 20 and 60 years of age, with far more women than men sufferers (in common with rheumatoid arthritis, for example). It can be ge- netic and is also known to start as growing pains as a child and for all of which there is no known cure. Ironically, sufferers often do not look ill and some family, friends and doctors tend to dismiss the symptoms as they might dismiss ME. Fortunately, our surgery takes it very seriously. What are the causes and treatments? The abnormal, heightened sensitive nerous system, ciruses, hormonal disturbance, allergies and intolerances (food and environment) trauma and lifestyle may be implicated although a single, definitive cause has not yet been identified. Patients may need to be seen by a combi- nation of rheumatologists, neurologists and physiotherapists. Often steroids and painkillers in combination with drugs such as amitryptiline are used. Acupuncture and hydrotherapy may help as can properly considered and tailored exercise and Cognitive Behavioural Therapy. A patients needs to work closely with their doctor, as it takes some time ot establish the right treatments and medications needed. Unfortunately, NHS treatments may be of limited duration, due to cost and heavy demand for services. It can be difficult for those who are rendered unemployed by their Fibromyalgia to pay for indefinitely prolonged private treatment. An international conference of doctors held each year has indicated that Fibromyalgia is begin- ning to be regarded seriously as an illness (or syndrome comprising a set of symptoms resulting in general ill health as are Chronic Fatigue and Myalgic Encephalitis which clearly share some common ground). 2 /continued overleaf WRYTHE NEWS FOCUS A checklist of symptoms (‘map ‘f medicine’) is available on the British Pain Society website, Pain Pathway, which is for health professionals and the general public. - http://bps.mapofmedicine.com/evidence/bps/ index.html. For those requiring information and help with Fibromyalgia, please consult Fibromyalgia Association UK: Telephone: 0844 887 2444 or their websit: www.fmauk.org *The local Fibromyalgia support group meets on the last Wednesday of each month at the George Harvester in Epsom Road, Morden between 11.30am. - 1.30pm. For further information about this local support group, please contact Maxine on 0844 887 2577. ************************************************************************************************ MENTAL HEALTH PPG/PRG UPDATE - Mental Health The Clinical Commissioning Group Patient Reference Group held a meeting on 24 September which included an intensive workshop examining six key and priority health areas. We shall report on this later as results have to be analysed properly prior to the next PRG meeting in November. One area of concern is Mental Health provision in Sutton. Dementia is constantly in the national news, not least because there seems to be insufficient backup for carers and negative attitudes towards sufferers and their families. One of our GPs who specialises in this area has said that the Government and NHS are keen to try to reduce the stigma attached to dementia. The aim is to en- sure a parity of esteem for dementia sufferers alongside those suffering from other illnesses to en- sure adequate help and funding is made available to them. A Government report, entitled ‘No Health Without Mental Health’ published in 2011, lists six objectives for improving mental health out- comes. These are: That more people will enjoy good mental health; more people with mental health problems will recover; more people with mental health problems will also enjoy good physical health; more people will have a positive experience of care and support; fewer people will suffer avoidable harm; and, fewer people will experience stigma and discrimination.
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