Briefing on Major Areas of Work

APPENDIX - 1 Luton Dementia Action Alliance’s Joint Commissioning Strategy for People Living with Dementia & their Carers Luton 2016 – 2020 Working in Partnership - 1 - Table of Contents Page 1 Foreword 3 2 Executive Summary 5 3 Introduction 5 4 What is Dementia? 6 5 What have we achieved over the last five year? 7 6 Dementia in the UK 8 7 National Policy Context and Drivers for Change 9 8 The I Statements & 2020 Challenge 9 9 Commitment to Carers 11 10 Dementia in Luton 12 11 Headline Messages – Older People 16 12 Headline Messages - Other High Risk Groups 16 13 Where We Would Like To Be 18 14 How We Will Get There 20 15 Integrated Personal Commissioning 21 16 Appendix A Dementia Strategy Working Group Members 23 17 Appendix B Dementia Care Pathway 25 18 Appendix C Work Plan November 2016 26 - 2 - Foreword Many of us will know someone who has been affected by dementia, be it a relative, friend or work colleague. As our population changes and more people live into older age, dementia will affect many more people each year. This Joint Commissioning Strategy demonstrates a commitment across Luton to improve the lives of people with dementia, their carers and their families. We will do this by ensuring that there are more opportunities for early diagnosis, support and treatment for people with dementia by developing more and better services to meet the changing needs of those with dementia. We will ensure that people, families and carers affected by dementia know what services and support to expect and where to go for information and help. There is no doubt that ensuring that the aspirations contained in the National Strategy and the Challenge on Dementia 2020 are delivered on a local level will require a great deal of work and commitment by those responsible for commissioning and providing services in Luton. However, we have every confidence that we, in the Clinical Commissioning Group, Local Authority, primary and acute care, GP’s, Voluntary and Independent bodies, will rise to the challenge of delivering the changes needed. Since the launch of Living Well with Dementia in 2009, dementia has rightly become recognised as a major national issue affecting 21 million people, or one third of the UK population. The scale of the challenge is great, with an estimated 1,636 people currently living with dementia in Luton. Those living with dementia face great personal uncertainty, both during its early stages and as their condition progresses. Unfortunately, some people face those challenges alone but many are supported by family members or friends, who also struggle with the day to day implications of caring for someone with a progressive condition that can affect people of all backgrounds and has no known cure. Whether they have the support of family or friends or not, people with dementia are often socially isolated, with many unable to say that they feel fully part of their community. Dementia also poses serious challenges for health and social care services. The condition is sometimes difficult to identify early, and once a diagnosis is given, it can be difficult to find the right support. People with dementia face an increased risk of health or care crisis, sometimes resulting in unplanned admission to hospital, which is often not the best place for them. We have worked with people with dementia, their carers and our partners from the statutory, voluntary and independent sectors to develop specialist services to diagnose and support people with dementia, with a particular focus on helping people to live well and stay healthy at home for as long as possible. As strong as our foundations are, we know that we have more to do. In particular, we must improve our ability to provide a timely dementia diagnosis and ensure that people with - 3 - dementia and their carers get the right support, whatever their individual circumstances. Beyond services, we must also continue to strive towards becoming more dementia friendly as a community. We want a community where people living with dementia and their carers can all say yes to the ‘I’ statements (page 8), we will know that we have got it right when this happens. Signed: Maria Collins Chair Luton Dementia Action Alliance “As a town we’re committed to ensuring Luton is a dementia friendly community. We’re seeing an increase in the number of people living with dementia in Luton and it’s important that we ensure they are confident engaging with their community. We are committed to working together and encourage you to join us in meeting this challenge by understanding our Strategy and working with us to deliver it. Cllr Aslam Khan Portfolio Holder - Public Health & Commissioning - 4 - Executive Summary This Joint Commissioning Strategy sets out our vision for the development and commissioning of services and support for people with dementia and their carers in Luton over the next four years. The Commissioning Intentions and Actions set out in the strategy; seek to further transform individuals’ wellbeing, dementia care and support by continuing to develop better services. We will make sure that those people, families and carers affected by dementia know what services and support to expect and where to go for information and help. Work Streams will be established which cover the Key Themes set out within the Prime Ministers Challenge on Dementia 2020, also taking account of the CCG Improvement and Assessment Assurance Framework. Commissioning Intentions and actions in respect of each theme have been identified. These will be prioritised taking into account the timeframes outlined in the attached work plan – November 2016 and the priorities set by the Dementia Strategy Group, in light of available resources. The work plan will be refreshed six monthly in response to what people with dementia and their carers tell us they want and as our knowledge and experience about ‘what works’ increases. We will see an increasing level of people telling us that their experience is in line with the ‘I’ statements. Introduction The Luton Dementia Strategy 2016 - 2020 has been agreed by the members of the Luton Dementia Action Alliance and Luton’s Health & Wellbeing Bord. The Strategy explains our joint approach to ensuring that people with dementia and their carers are able to live well in Luton. The Strategy will last for four years and will have a delegated action plan, which will be reviewed quarterly by the Dementia Strategy Group. The Strategy covers 7 theme areas: Key themes: 1. Enabling equal, timely access to diagnosis and support. 2. Promoting health and wellbeing. 3. Developing a dementia friendly town 4. Supporting carers of people with dementia 5. Ensuring Excellent Quality of Care 6. Preventing & Responding to Crisis - 5 - Supporting theme: 7. Evidence based commissioning – this is an underpinning theme for all commissioning linked to this strategy and is embedded throughout. What will good look like? The National Dementia Strategy sets out a vision for the positive transformation of dementia services. A transformation that would ensure that all people with dementia have access to the care and support that they need; where the public and professionals alike are well informed; where the fear and stigma associated with dementia has been allayed; where the false beliefs that dementia is a normal part of ageing, and that nothing can be done, have been corrected; and where the provision and quality of care and support are equitable wherever people might live. This Joint Commissioning Strategy sets out our vision for the development and commissioning of services and support for people with dementia and their carers in Luton over the next four years. This strategy represents the flow needed to reach the desired outcomes for people living with dementia and their carers in Luton. Flow Inputs Outputs Outcomes Actions from Themes ‘I’ Statements work plan (p.26) (p.18) (p.9) How commissioning and delivering dementia services, as detailed in the work plan which will take us towards a more person-centred and personalised approach to delivering care and support. These changes will ensure that our future commissioning is in line both with the national agenda and NHS policy directive to ‘shift care closer to home’, delivering increased choice and flexibility in how health and social care needs are met. What is Dementia? Dementia is a set of symptoms that may include memory loss and difficulties with thinking, problem solving or language that affects daily life. A person with dementia may experience changes in their mood or behaviour1. Some of these are described as Behavioural and Psychological Symptoms of Dementia (BPSD). “Dementia is like brain failure. It describes a syndrome: a series of signs and symptoms, including changes to memory, emotional state and ability to manage.” Alistair Burns, National Clinical Director for Dementia in England. There are many different types of dementia, including: - 1 Factsheet: What is Dementia, 2013, Alzheimer’s Society. - 6 - • Alzheimer’s disease. • Vascular dementia. • Mixed dementia. • Dementia with Lewy Bodies. • Rarer causes of dementia, including corticobasal degeneration, posterior cortical atrophy and Creutzfeldt-Jakob disease. Dementia is progressive, which means that the symptoms will get worse over time. It can happen to anyone and there is currently no cure. Some risk factors for dementia, such as age and genetics, cannot be changed. There are many other factors that increase the risk of both vascular and Alzheimer’s dementia which could possibly be prevented by making certain lifestyle changes. This idea is often promoted by the message: ‘What is good for your heart is also good for your head’. These modifiable risk factors are identified in the ‘Headline Messages’. What have we achieved over the last five years? Over the last five years we have been working together to improve the outcomes for people living with dementia and their carers.

Load more