A Walk in the Park a Walk in the Park
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July|August 2014 Volume 24, Issue 4 A magazine dedicated to A Publication living well with limb loss of the AA WalkWalk inin thethe ParkPark Navigating Your Home Modification Choices Going to Camp for the First Time Hot Enough for You? 10 Air Travel Tips for Surviving a Flight SYMBIONIC ® LEG Move Naturally As the fi rst prosthesis to integrate a microprocessor knee and powered microprocessor ankle, the original SYMBIONIC LEG won the prestigious Popular Science “Best of What’s New” Award in . SYMBIONIC LEG takes this innovative technology to the next level, with a faster swing extension, a new kinematic sensor for added stability and a more powerful actuator for increased resistance across a wider range of stance fl exion. ASK YOUR PROSTHETIST if SYMBIONIC LEG is right for you. FOLLOW ÖSSUR ON TEL FAX © Össur, . WWW.OSSUR.COM SBL3 inMotion 0714.indd 1 5/30/14 6:20 PM message from the editor BE AN INFORMED READER Accessible Housing Editorial content (articles, news items, columns, editorials, etc.) in inMotion often contain healthcare & Transportation information. As an informed reader, You Can Get There From Here you should never make a decision about managing or treating your condition without consulting your own clinicians: They know you best. Sometimes, in our interviews with A man’s home is his castle; however, many seniors and people with disabilities people who are amputees, the person may feel like prisoners in their own home if they can’t move about like they being interviewed will say something could before. According to a recent housing survey, 83 percent of Americans age 45 and older would like to live in their current homes as long as possible. about his or her personal experience However, almost one in four expect that they or someone in their family will that may not be entirely consistent have trouble getting around that home within the next five years. A growing with standard practice. In these cases, trend to address this problem is the concept of universal design, which is we print what the person said because increasing in popularity for several reasons (see page 32). we think it gives readers insight into A that individual’s experience that we First, universal design promotes independence and prevents accidents. believe will resonate with others. But: Research shows that home modifications could prevent 30 to 50 percent of We urge you to always check with your all home accidents. Second, it looks good. People with disabilities don’t feel medical team before changing your like they’re settling for a personal nursing home. Finally, we all want more comfort and convenience in our homes, whether we have a disability or not. own healthcare regimen. People live longer than they used to, which means that more of us are, or will Advertisements in inMotion are be, living with disabilities. The traditional home that serves you well now, reviewed according to established while you’re healthy, won’t be so user-friendly when you’re older or if you criteria and guidelines. We aim lose a hand or a leg. to support public awareness of The ability to drive is equally important to our sense of independence. commercially available products – Driving means much more than simply getting from point A to point B. things that might be helpful to you When we lose our ability or license to drive, we lose a significant part of and to avoid advertisements that our life and identity. And personal mobility is more than just an individual might deceive or mislead the reader. issue. When transportation doesn’t work, other factors – our employment, Acceptance of advertisements in education, healthcare and economy – are affected as well. inMotion is not an endorsement by the Amputee Coalition. The Amputee But limb loss doesn’t mean the end of the road. With the proper equipment, education and training, vehicle modifications can provide a multitude of Coalition does not test advertised options (see page 20). products, conduct independent scientific reviews of them or ensure Home and vehicle modifications can open doors of opportunity to individuals their claims. Companies that sell who feel like they have lost their independence – you can still get there through the mail must comply with from here. federal regulations regarding customer notification if the product is not Bill Dupes, Senior Editor available within 30 days. The Amputee Coalition reserves the right to reject any advertisement for any reason, which need not be disclosed to the party submitting the advertisement. “Degrees of ability vary, but the basic principle remains the same: The degree of a man’s independence, initiative and personal love for his work determines his talent Opinions expressed in signed as a worker and his worth as a man. Independence is the only gauge of human virtue articles are those of the authors and and value. … There is no substitute for personal dignity. There is no standard of are not necessarily endorsed by the personal dignity except independence.” Amputee Coalition. ~ Ayn Rand, The Fountainhead Printed in the United States of America. Contact the Amputee Coalition at 888/267-5669 or amputee-coalition.org 3 I’m POSSIBLE Surfing, skateboarding, hanging with friends. Cameron Clapp epitomized “California teen” until one night when, in an instant, his life changed. At 15, Cameron was struck by a train. He lost both legs and his right arm. Encouraged and cared for by staff at Hanger Clinic locations nationwide, Cameron not only learned to walk again, he now surfs, runs competitively, swims and inspires others through peer-to-peer mentoring and motivational public speaking. In 700 clinics throughout the U.S., Hanger Clinic delivers integrated rehabilitative solutions to help more than 1,000,000 patients each year like Cameron turn their hopes and dreams into reality, break down barriers and move their lives forward. “IMPOSSIBLE IS AN To experience what’s possible at OPINION, NOT A FACT.” Hanger Clinic, call 1-877-4HANGER or visit www.hanger.com. 150 YEARS 700 CLINICS 1 VISION 1-877-4HANGER www.hanger.com Hanger Clinic Ads_8.37x11.25.indd 1 8/16/12 9:17 AM contents July | August 2014 sections 16 The Doctor Is In Hot Enough For You? A Walk in 18 Travel & Accessibility Passing Airport Security Single-Handedly the Park 20 Federal Affairs Back on the Streets of New York 22 growing Up as an Amputee Open Doors 24 34 Exercise & Fitness Abdominal & Gluteal Exercises 38 Perspectives Going to Camp for the First Time S URvIvIng A FlIgHT: Air Travel Tips 30 departments 10 3 Message From the Editor 8 Advocacy in Action 11 Events Calendar 12 limb loss Awareness 13 Who Is Your Amputee Hero? Navigating 32 Your Home 14 Special Message Modification 36 Advertiser Index Choices On the Cover Image courtesy of Petra Tepper. The Amputee Coalition recognizes the following National Sponsors for their valuable support. Platinum Sponsors gold Sponsors Silver Sponsors Bronze Sponsors The Board of Purdue Pharma Certification/ Accreditation Rusk (BOC) Rehabilitation at nYU langone College Park Medical Center Industries Scheck & Siress Contact the Amputee Coalition at 888/267-5669 or amputee-coalition.org 5 contributors Cindy Asch-Martin is a Kevin Messner was born in certified personal trainer guangzhou, China. At age 4 he was A Publication of the Amputee Coalition and lifestyle fitness coach, adopted and now lives in Arizona. Due InMotion magazine publishes unbiased journalism that seeks to “empower and motivate” living well and thriving and a left below-knee to a congenital birth defect, he had a with limb loss. The magazine targets amputees and their families and is provided free electronically to all friends of amputee. right knee disarticulation soon the Amputee Coalition and in hard copy to all subscribers. after his arrival. A high school Each issue covers health, well-being, exercise, life issues and Peggy Chenoweth is a left below- advocacy for amputees and their families. Stories showcase freshman and member of the amputees living and thriving with limb loss and profile knee amputee. She coordinates national Junior Honor Amputee Coalition programs and services. inMotion advertising sales and Society, he also enjoys maintains Facebook snowboarding, track and Editorial Board pages for the Amputee long-distance running. Coalition and the Orthotic Marshall J. Cohen Prosthetic Center. David McIntyre, MD, is a family Immediate Past Chair, Amputee Coalition Board of Directors practice physician. He is the lead Amy Di Leo is the founder of lisa Ann Cairns, PhD physician at the Allina Medical Clinic in Senior Market Analyst for Smith & Associates Aim Hi Public Relations Faribault, Mn. He writes ScottCummings, PT, CPO, FAAOP (AimHiPR.com) and has a monthly medical/humor Scientific & Medical Advisory Committee been a television and column for the Steve Custer print journalist for more Faribault Daily News. Production Manager, O&P Almanac for AOPA than 20 years. lacey Henderson Leif Nelson, DPT, ATP, CSCS, is the Amputee Coalition Paddy Rossbach Youth Camp counselor Harleen Gupt Chhabra is an artist, assistant chief of clinical care for vA/ writer/ blogger, a communications Jason T. Kahle, CEO, CPO, FAAOP DoD Extremity Trauma and Amputation OP Marketing and marketing advisor for a Fortune 5 Center of Excellence (EACE). He is a Stephen luce company and a mother (harleengupt. doctor of physical therapy, a certified Associate Director for Communications, CDC com). Drawing from her almost lifelong assistive technology David Mcgill above-elbow amputee experiences, professional, and a vice President, Reimbursement & Compliance for Össur she is working on certified strength and children’s books and nancy Miller conditioning specialist. Marketing Communications Specialist parenting resources for leslie Pitt Schneider the limb loss community. Eric Westover is a below-elbow Amputee Coalition Board of Directors amputee.