March-April Edition 09
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The UNAPD MARCH-APRIL ‘09 A bi-monthly newsletter for Uganda National Action on Physical Disability VOL. 7, ISSUE 2 Councilors of Makindye Division struggle to carry up-stairs their fellow councilor, Angella Balaba, to attend a works committee meeting in the inaccessible newly-constructed building for the division. See full story of page 8. INSIDE THIS ISSUE : • The least understood Post-Polio Syndrome………………………………………..…………...3 • Disability Rights Awareness Project set to go to the grassroots…..…………………………4 • UNAPD activities in pictures……………………………………………………………………….5 • Types of physical disabilities……………………………...………………………………………6,7 • Makindye Division faces court over inaccessibility…...……..……………………………….…8 • More UNAPD members get trust fund.…………………………………………………….…...9 • The saved savior ……….. ……..…………………………………………………………………...10 • The tight stage for the youth with disabilities.……..……………………………………….…11 • How children with Disabilities can play games.…………………………………………….....12 UNAPD, Namasole Road, Kikuubo Zone, Gayaza Road Plot 459, Kanyanya, P.O.Box 959, Kampala, Uganda Tel: 041567541 OR Email: [email protected] . Website:www.unapd.ug WORD FROM THE EXECUTIVE DIRECTOR 2 One of the key activities going on in EDITORIAL UNAPD is evaluation of the long- term partnership with Dansk Hand- KCC: From falling cap Forbund (DHF) and Danish to inaccessible buildings Brain Injury Association (DBIA). Our partnership with DHF started in It seems authorities at Kampala City Council have now 2002. Since then, DHF has sup- become immune to criticisms but this will not stop us ported four projects: Capacity from expressing our concerns over the inaccessible physi- Building Project (2003-05); UNAPD cal environment in the city, brought about by the weak Local Branch Empowerment Project city administration. Mention KCC and somebody immedi- ED Meldah (2005-07); the current Capacity Build- ately reflects about the garbage that liters the entire city, Tumukunde ing and Accessibility Project (2007- shoddy work, mismanagement and fallings buildings that 2010); and Wings Project. With have claimed tens of thousands in recent months. DBIA, the partnership started in 2005 with support of the Uganda Brain Injury Project (UBIP - 2005-07) and the cur- Persons with Physical Disabilities wish to add an insult to rent Uganda Brain Injury Support Project (UBISP - 2008- the KCC’s injury that the surviving buildings are inaccessi- 09). ble to them. Inaccessibility starts from City Hall, spread- The two partners together with UNAPD found it neces- ing widely to all other KCC divisions, then to the rest of sary to analyse the outcome of the work, strategies used the buildings. The newly constructed Makindye Division and way forward for the partnership as well as the level of two-storied building takes centre stage. cooperation. The outcome of the evaluation will enable UNAPD to make new strategic interventions to improve According to councilors, the inaccessible building was the way she does work, for the benefit of our members, constructed without any approved plan, though former stakeholders, partners and the entire disability fraternity. Mayor John Ssebaana Kizito laid its foundation stone. We The evaluation process started on April 20 th , when Mi- wonder how the mayor can commission the construction chael Larsen from Denmark arrived for a nine-day visit to of a building that has no plan and doesn’t take care of ac- cessibility needs of PWDs as required by law. UNAPD. He held a couple of meetings with staff and board members, and discussed the methodology to be One of the PWDs councilors at the division, Angella used during the evaluation, among others. UNAPD to- Balaba, on April 20 protested being carried up stairs to gether with Michael also identified a local consultant to the council hall for a works committe meeting. Balaba and carry out the evaluation. The local consultant will visit a number of member districts and sub-county associations her fellow PWDs councilor Abdu Ssebagala are members to collect views from members. I am sure some members of the works committee, but find it hard to access the council hall on the first floor. have already interacted with the local consultant. I urge you to give him the necessary cooperation he needs. An They are now preparing to drag the division into court external consultant will also arrive on May 18th from over inaccessibility, as its their only remaining option. Denmark to work with the local consultant. UNAPD strongly supports the councilors because the The evaluation will last for two months (April-June), cli- peaceful ways of sensitizing the division authorities over maxing with a workshop in July where the findings of the accessibility has not worked. evaluation will be disseminated to UNAPD, partner’s rep- resentative, and stakeholders. Accessibility is not a favour, but right a to everybody, en- The process of developing a new five-year strategic plan shrined in many domestic and international legislations (2009-2013) is also ongoing. Some of you have already that are binding to Uganda. A case example is the Per- interacted with another consultant working on this plan sons with Disabilities Act 2006 (Part IV) and the UN and have given your input. He has also consulted with Convention on the Rights of Persons with Disabilities board members, staff and MPs representing persons with (Article 9). disabilities. Many other stakeholders will be consulted. The strategic plan will provide a strategic direction for According to the Local Governments Act 1997, Kampala UNAPD. City—and all its five divisions - municipalities and town councils should only approve plans for buildings that are I am also happy to note that our new project, Labour accessible. It’s shameful for KCC to approve a building Market Project has kicked off. A Programme Officer and plan for Makindye division (if at all it is there) contrary to an assistant have been recruited. The Disability Rights government’s policy. Fund and the Sustain Project (Village Savings and Loans KCC and other local authorities have no moral ground to Associations), that started this year, are also going on demand private constructors to make their buildings ac- well. The Accessibility Project, UBISP and Wings project cessible when theirs are not. They should practice what are also moving on. Read more about these projects and they preach. other information inside. UNAPD VISION: A society where people with physical disabilities are accorded rights enjoyed by all citizens WORD FROM THE CHAIRMAN 3 Post-Polio Syndrome: A least understood condition Post-Polio Through years of studies, scientists have result from disuse of muscles and joints. Syndrome confirmed that PPS is a very slowly pro- This fact has caused a misunderstanding (PPS) is in- gressing condition marked by periods of about whether to encourage or discour- creasingly rais- stability, followed by new declines in the age exercise for polio survivors or indi- ing a lot of ability to carry out usual daily activities. viduals who already have PPS. concern after Diagnosis Exercise is safe and effective when care- studies indi- PPS may be difficult to diagnose in some fully prescribed and monitored by experi- cated that PPS people because other medical conditions enced health professionals. Exercise is affects 25-50 can complicate the evaluation. Depres- more likely to benefit those muscle percent of sion, for example, also is associated with groups that were least affected by polio. polio survi- fatigue and can be misinterpreted as PPS Exercises that strengthen the heart mus- vors, or possi- or vice versa. For this reason, some clini- cles are usually more effective. Heavy or bly as many as Hon. James Mwandha cians use less restrictive diagnostic crite- intense resistive exercise and weight- Chairman UNAPD 60 percent. ria, while others prefer to categorize new lifting, using polio-affected muscles may be What is PPS? problems as the late effects of polio. counterproductive because they can fur- PPS is a condition that affects polio survi- ther weaken rather than strengthen these Polio survivors with PPS symptoms need vors years after recovery from an initial muscles. to visit a physician trained in neuromuscu- acute attack of the poliomyelitis (polio) lar disorders to clearly establish potential Exercise should be reduced or discontin- virus. PPS is mainly characterized by new causes for declining strength and to assess ued if additional weakness, excessive fa- weakening in muscles that were previously progression of weakness not explained by tigue, or unduly prolonged recovery affected by the polio infection and in mus- other health problems. time is noted by either the individual with cles that seemingly were unaffected. It is important to remember that polio PPS or the professional monitoring the Symptoms include slowly progressive survivors may acquire other illnesses and exercise. muscle weakness, unaccustomed fatigue, should always have regular check-ups and Can PPS be prevented? and, at times, muscle weaknesses. Some preventive diagnostic tests. patients experience pain from joint degen- Polio survivors often ask if there is a way eration, and increasing skeletal deformities Managing PPS to prevent PPS. Presently, no intervention are common. Some patients experience Although there is no cure, there are rec- has been found to stop the deterioration only minor symptoms, while others may ommended management strategies. Seek of surviving neurons. But physicians rec- develop visible muscle weakening, or medical advice