ANNUAL REPORT FISCAL YEAR ENDING JUNE 30, 2016 we imagine a world without pulmonary fibrosis LETTER FROM OUR INTERIM CEO AND CHIEF MEDICAL OFFICER

Friends, The past year has been one of the most exciting yet for the Pulmonary Fibrosis Foundation (PFF). In March of 2016, the first patient was enrolled into the PFF Patient Registry, a valuable research tool available in the fight against pulmonary fibrosis (PF). The Registry is a collection of information about PF pa- tients, including their diagnosis and how it was made, lab and test results, and medical outcomes. You can read more about the Registry and the role it is playing in the search for a cure on page 4.

In this report you will also read about the PFF Summit 2015, our largest Summit yet (page 10), Broadway Belts for PFF! 2016 (page 14), the recipients of the research awards the Foundation sponsored in 2015 (page 18), and much more. We are deeply grateful to the PFF’s donors, sponsors, partners, and volunteers. Your contributions lay the groundwork for everything the PFF accomplishes, and help bring us closer to realizing our shared vision of a world without pulmonary fibrosis. Sincerely,

SCOTT STASZAK GREGORY P. COSGROVE, MD, FCCP

INTERIM CHIEF EXECUTIVE OFFICER CHIEF MEDICAL OFFICER

2015/2016 ANNUAL REPORT 1 OUR MISSION OUR VISION We imagine a world without pulmonary fibrosis. The Pulmonary Fibrosis Foundation (PFF) mobilizes people and resources to provide access to high-quality care and leads research for a cure so people with pulmonary fibrosis (PF) will live longer, healthier lives.

WHAT WE DO

By actively engaging the PF community, the Pulmonary Fibrosis Foundation has developed essential programs available to those living and working with pulmonary fibrosis.

Our signature programs include: • PFF Care Center Network WHAT IS PULMONARY FIBROSIS AND • PFF Patient Registry • PFF Patient Communication Center WHAT ARE THE CAUSES? • PFF Ambassador Program • An international network of support groups and online communities Pulmonary fibrosis is a condition in which There are many types of PF for which • PFF Summit the walls of the air sacs of the lungs become we don’t know the cause. One specific • A comprehensive suite of disease education materials thickened and stiff due to a build up of type of PF of unknown cause is called scar tissue. This scar tissue makes it more “idiopathic pulmonary fibrosis” or Our expert Medical Advisory Board and the biennial PFF Summit allow us difficult for the lungs to transfer oxygen into IPF. IPF is diagnosed when either a to maintain an ongoing dialogue with physicians, researchers, industry the bloodstream. computerized axial tomography scan or representatives, and the patient community. The Foundation fosters a a lung biopsy show certain findings in collaborative environment between these groups. Our peer-reviewed Pulmonary fibrosis can result from a number the absence of an identifiable cause. research program supports projects that improve understanding of of causes: certain environmental agents IPF is a progressive, fatal lung disease, (molds, birds, fibers, dusts), medications for which there is no known cure. pulmonary fibrosis and can lead to successful therapies. (antibiotics, chemotherapy), radiation therapy, autoimmune diseases (scleroderma, The Pulmonary Fibrosis Foundation has a four-star rating from Charity rheumatoid arthritis), or a genetic Navigator and is a Better Business Bureau accredited charity. predisposition. However, in most situations the cause is unknown.

2 PULMONARY FIBROSIS FOUNDATION 2015/2016 ANNUAL REPORT 3 A MAJOR MILESTONE FOR THE PFF PATIENT REGISTRY

In the spring of 2016, the Foundation reached a much-anticipated milestone: the first patient “Information collected through the PFF Patient Registry will help facilitate ongoing research necessary to better understand how we can help people living with multiple types was enrolled into the PFF Patient Registry, the most comprehensive research tool available to of pulmonary fibrosis, including other diseases that often include PF, such as rheumatoid- help us in the fight against pulmonary fibrosis. arthritis associated pulmonary fibrosis,” said Kevin Flaherty, MD, MS, Steering Committee Chairman, PFF Care Center Network and PFF Patient Registry. “This project provides an The PFF Patient Registry will permit researchers, through the generous contribution of incredible opportunity to advance progress toward a cure for pulmonary fibrosis.” medical data by patients, to gain a better understanding of how different forms of PF The Foundation is grateful to its CCN partners across the country. To learn more about the progress, who is affected by PF and how patients respond to different treatments. Patient CCN and to view a full list of the sites, visit pulmonaryfibrosis.org/medical-community/pff- enrollment takes place at sites in the PFF Care Center Network (CCN), a national network care-center-network. of 40 sites in 27 states across the country. The Registry includes a biorepository, where patients can choose to also donate blood samples. Data from the Registry will help inform best practices in care and identify potential treatment targets. The Registry will also assist in identifying patients who may wish to participate in clinical trials. The Registry was made possible, first and foremost, by the patients who agreed to participate. We can’t thank them enough for their contributions. The initiative was also made possible thanks to the hard work of our PFF Care Center Network colleagues, Registry funders, dedicated volunteers, and partners. Funding for the Registry was generously provided by founding partner Genentech, visionary partner Boehringer Ingelheim, The Cowlin Family Fund at the Chicago Community Trust, the Rattner Family Foundation, the McQuaid Family Foundation, InterMune, Biogen and the Jenny H. Krauss and Otto F. Krauss Charitable Foundation Trust, in memory of Stephen N. Dirks. Further PFF CARE CENTER donations will provide expansion opportunities that will enhance this research tool. NETWORK AND REGISTRY SITES

To contribute to this important program, please donate now.

For more information, call 844.TalkPFF (844.825.5733) or email [email protected].

4 PULMONARY FIBROSIS FOUNDATION 2015/2016 ANNUAL REPORT 5 HIGHLIGHTS

2015

September THE PF COMMUNITY LET THE WORLD KNOW ABOUT PF DURING PULMONARY FIBROSIS AWARENESS MONTH

US CONGRESS FORMALLY RECOGNIZED PULMONARY FIBROSIS AWARENESS MONTH

November LARGEST-EVER PFF SUMMIT TOOK PLACE IN WASHINGTON, DC

THE PFF ACQUIRED THE RIGHTS TO THE DAUGHTERS OF PF PROGRAM FROM THE COALITION FOR PULMONARY FIBROSIS. THE FOUNDATION RELAUNCHED THE PROGRAM IN APRIL OF 2016 UNDER THE NAME PFF DAUGHTERS PFF Senior Medical Advisor, Research Development, Harold R. Collard, MD, speaking at the PFF Summit 2015, the largest Summit conference to date. December ON DECEMBER 1, GIVING TUESDAY, PFF SUPPORTERS RAISED OVER $31,000

2016

February THE 6TH ANNUAL BROADWAY BELTS FOR PFF! RAISED $180,000 TO BENEFIT THE PF COMMUNITY

March FIRST PATIENT WAS ENROLLED IN THE PFF PATIENT REGISTRY

April PFF DAUGHTERS RELAUNCHED The performing cast of Broadway Belts for PFF!

Michele Peters, PFF Ambassador, thanking the PF community for a successful Giving Tuesday.

6 PULMONARY FIBROSIS FOUNDATION 2015/2016 ANNUAL REPORT 7 PFF DAUGHTERS members use their collective voice to PFF PATIENT COMMUNICATION CENTER (PCC) increase awareness about pulmonary fibrosis, advocate staff is available to listen and lend support by for improved care, and raise support for continued personally answering every call and email and offering research efforts. Membership in the PFF Daughters educational resources to patients, caregivers, and program is open to anyone affected by pulmonary health care providers. fibrosis—past, present, and future. The inaugural application cycle opened in April of 2016.

need info? call (toll free) 844-TalkPFF

PFF Daughters The PFF’s Information Hub A NEW PFF SIGNATURE PROGRAM PROVIDING ANSWERS AND SUPPORT

The PFF Daughters began with the Coalition the population and engaging them in the For those living with pulmonary fibrosis, obtaining someone who’s knowledgeable not only for Pulmonary Fibrosis as a project focusing fight against PF.” the most accurate and current information can be about the Foundation and the resources we on women and girls whose parents had a challenging and frustrating task. The PFF Patient offer but is also well-informed about the been diagnosed with PF. Now part of the “We’re here to fully support the PFF’s drive Communication Center (PCC) provides patients, disease itself.” Foundation’s suite of signature programs, and direction through advocacy, awareness caregivers, and health care providers with the The PCC received over 3,000 inquiries PFF Daughters brings members together to and fundraising,” says Lisa Boyd, PFF most up-to-date medical information, between July 1, 2015 and June 30, 2016. increase awareness about PF, advocate for Daughters Steering Committee Chair and a communicates the availability of support services, The top requests were for general disease improved care for people with PF, and raise Team PFF leader. “All three are absolutely and provides information about other essential information and education materials. support for continued research efforts. vital aspects of keeping a foundation resources. Questions came in from 35 countries around Membership in the PFF Daughters program healthy and strong. We take all our “People find a lot of information online and some the world, including Australia, Argentina, is open to anyone affected by pulmonary direction from the Foundation and are of it may be helpful,” says David J. Lederer, MD, Canada, India, Mexico, Italy, Puerto Rico and fibrosis — past, present, and future. there to support them.” MS, Senior Medical Advisor, Education and the United Kingdom. Callers contacted the “This is a group that’s really passionate Awareness. “But a lot of information may be PCC from 45 US states. The top five states about spreading awareness of PF,” says misleading or frightening and needs to be put into were California, Florida, New York, Texas and Kate Gates, PFF Director of Programs. context. Reliable information about the disease, Illinois. “From hosting support groups and its expected course, available therapies, and local The PFF Patient Communication Center is fundraisers, to talking to legislators about resources are critical to managing this disease.” staffed Monday through Friday, 9:00 a.m.– PF, to getting the word out on social media, The PCC helps callers find in-person and online 5:00 p.m. CT. Contact the PCC at PFF Daughters work really hard to find support groups where they can reach out to other 844.TalkPFF (844.825.5733) or creative ways of reaching new segments of people with this condition. Dr. Lederer also notes, [email protected]. “When you call the PCC, you can expect to talk to

8 PULMONARY FIBROSIS FOUNDATION 2015/2016 ANNUAL REPORT 9 PFF SUMMIT 2015 brings community together Held November 12-14, the PFF Summit 2015 provided a collaborative environment aimed at improving education and awareness of pulmonary fibrosis (PF) and identifying new approaches to treat, and ultimately cure, the disease.

RECORD ATTENDANCE POSTER AWARDEES A record number of more than 700 researchers, health care professionals, pulmonary Robert Guzy Washington University School of Medicine, “Fibroblast-Specific FGF Signaling in fibrosis patients, caregivers and industry leaders from 18 countries gathered in Bleomycin-Induced Pulmonary Fibrosis” Washington, DC for the third biennial PFF Summit 2015, an international scientific conference presented by the PFF. Justin Oldham the University of Chicago, “TOLLIP, MUC5B and the Response to N-acetylcysteine Among Individuals with Idiopathic Pulmonary Fibrosis” The PFF Summit 2015 featured new plenary sessions for the entire PF community and two Rachel Scheraga Cleveland Clinic Foundation, “The Mechanosensitive Transient Receptor keynote addresses. “The Future of Drug Development in Pulmonary Fibrosis — A Potential Vanilloid 4 (TRPV4) Ion Channel Mediates the Pro-resolution/Anti-fibrotic Regulatory Perspective” was delivered by Janet Woodcock, MD, Director, Center for Drug Macrophage Response to Endotoxin (LPS)” Evaluation and Research at the Food and Drug Administration on “Collaborative Networks as Tools for Improving Clinical Care” was presented by Pat Furlong, president and chief Louise Hecker University of Arizona, “Impaired Myofibroblast Dedifferentiation Contributes to executive officer, Parent Project Muscular Dystrophy, on November 14. Non-Resolving Fibrosis in Aging” Renea Jabolonski Northwestern University Feinberg School of Medicine, “SIRT3, the Anti- Aging Major Mitochondrial Deacetylase, is Important for Preventing Pulmonary Fibrosis.”

10 PULMONARY FIBROSIS FOUNDATION 2015/2016 ANNUAL REPORT 11 WAYS TO GIVE DONATIONS power all of the Pulmonary Fibrosis Please consider supporting the mission of the PFF. Foundation’s (PFF) accomplishments. Every dollar Your donations to the PFF enhance patient support services, increase research funding, and broaden given to the PFF increases awareness of pulmonary disease education outreach. fibrosis (PF), provides resources and support to those MAKE A DONATION Online Visit pulmonaryfibrosis.org/donate living with the disease, and expands the research that By Mail Use the donation envelope in this issue By Phone Call us at 888.733.6741 improves outcomes for patients. PLAN A TEAM PFF FUNDRAISING EVENT Team PFF Event Leaders are individuals who have created fundraising events to honor a friend or a loved one. To learn more about Team PFF, visit pulmonaryfibrosis.org/teampff.

PLANNED GIVING Please think about including the Pulmonary Fibrosis Foundation in your estate plan and leave a

legacy that will live on in the PF community. To get started, contact your financial advisor.

MONTHLY GIVING Our generous monthly donors provide stability and support for our important programs. To learn more, TERENCE HALES EMILY visit us at pulmonaryfibrosis.org/pledgefaqs. NYC RUN-WALK-HIKE FOR PULMONARY FIBROSIS ONE PAGE AT A TIME EMPLOYER MATCHING GIFTS The 9th Annual NYC Run-Walk-Hike for Pulmonary Fibrosis was held in June in New York Nine-year-old Emily decided join the Please consider maximizing your donation through City’s Central Park. fight for a future without PF by creat- an employer matching gift program. To find out ing her own fundraiser. Emily chose to whether your employer will match your gifts, “As the son of someone who was diagnosed with PF, and who knows the horrible shock and read for her event because it’s some- visit pulmonaryfibrosis.org/employermatch. pain of the disease, I am committed to helping find a cure.” said event leader Terence Hales. thing she struggles with and it re- SPONSORSHIPS The Annual NYC Run-Walk-Hike for Pulmonary Fibrosis has raised more than half a million minds her of what her grandma, who The PFF offers a number of opportunities to dollars for PF research since its inception. has PF, experiences every day: strug- sponsor the Foundation and specific events. gling to breathe. Terence is a member of the PFF’s board of directors. His father, Thomas Hales, is an emeritus Custom opportunities are available. To learn more, member. “You just gotta stay strong and have visit pulmonaryfibrosis.org/ways-to-give/ hope,” Emily said. “There’re so many sponsor-an-event. people out there losing lives because Your donations have a positive and lasting impact of this. Give back. You have to give on the PF community. The Foundation thanks you back.” for your generosity and support.

12 PULMONARY FIBROSIS FOUNDATION 2015/2016 ANNUAL REPORT 13 Broadway Belts for PFF! HAMILTON STAR’S PULMONARY FIBROSIS RAP Actor and rapper Daveed Diggs, who won both a Grammy and Emmy for his roles as Thomas Jefferson and Marquis Attendees spent an evening with the show You Can’t Take it With You. de Lafayette in the hit musical Hamilton, debuted a stars in New York City at this special rap during Broadway Belts for PFF! 2016. The Broadway stars showcased their belting talents rap, titled “Breathe,” was inspired by the PF community signature event showcasing during an evening of melody under the musical and the mission of the PFF. Broadway’s best performers. direction of Christopher McGovern and returning director Carl Andress, who has directed all six of the

A NIGHT OF STARS Broadway Belts for PFF! performances. The star- studded cast included Tony Award winner Randy Key members of the PF community Graff (City of Angels), Cady Huffman (The and Broadway’s finest united for a Producers), Judy Kaye (Phantom of the Opera, Nice unique evening of exceptional Work If You Can Get It), Grammy Award winner Daveed Diggs performing his original entertainment during the sixth annual Daveed Diggs (Hamilton), Telly Leung (Allegiance), rap titled “Breathe.” Broadway Belts for PFF! Grossing Robert Creighton (The Mystery of Edwin Drood), approximately $180,000 in one night, Lisa Howard (It Should Have Been You), Margo proceeds benefit the Pulmonary Seibert (Rocky) and Hunter Ryan Herdlicka (Once Fibrosis Foundation’s Michael Upon a Mattress). Kuchwara Fund for Idiopathic Pulmonary Fibrosis Research, Education, and Advocacy.

Held at New York’s historic Edison From the left: Lisa Howard, Zakiya Young, Telly Theatre, award-winning actress and Leung, and Ryan Herdlicka dedicated PFF advocate Julie Halston hosted the event for the sixth time with her incomparable humor and skillful narration. She most recently appeared in the hit Tony-nominated Broadway

Robert Creighton leading an energetic performance.

14 PULMONARY FIBROSIS FOUNDATION 2015/2016 ANNUAL REPORT 15 PULMONARY FIBROSIS AWARENESS MONTH We let the world know! September is Pulmonary Fibrosis Awareness Month. Members of the global PF community celebrated and raised awareness in a variety of ways.

PFF Ambassadors went to Washington, DC during Pulmonary Fibrosis Awareness Month to participate in the Rally for Medical Research and ask for increased NIH funding.

Letting the World Know PFF SUPPORTERS GET CREATIVE

The PFF’s awareness initiative, Pulmonary • Writing letters to the editor Fibrosis Awareness Month, provides members of the PF community with an opportunity to • Personalizing their social media create their own unique grassroots campaigns pages with custom PFF timeline and fundraising events. Participants in 2015 photos and profile pictures went on to golf, run, walk, bowl, cook, and much more to raise awareness and funds for the PFF. Visitors to pulmonaryfibrosis.org found links to information about physician and patient educational events, and tools to help PF Warrior Linda and her family them achieve their fundraising goals. sporting blue during a homecoming event. Alongside fundraising events, supporters participated in a variety of ways, including by Kevin R. Flaherty, MD, MS, • Asking their elected officials to officially Steering Committee Chairman, declare the month of September PFF Care Center Network and Pulmonary Fibrosis Awareness Month Nick Khan participated in PFF Patient Registry, wearing a #BlueUp4PF during Pulmonary blue wig and jumping into Lake • Starting fundraisers Fibrosis Awareness Month in Michigan to support PF • Joining the #BlueUp4PF social media memory of his dad. awareness. campaign

16 PULMONARY FIBROSIS FOUNDATION 2015/2016 ANNUAL REPORT 17 2015 PFF RESEARCH FUND AWARDS The Pulmonary Fibrosis Foundation (PFF) places enormous importance on thank you creating an environment that will assist in the development of effective treatments for pulmonary fibrosis (PF). We are developing this environment by directly funding research, promoting advocacy efforts, encouraging collaborative to our relations between industry and academic researchers, delivering key communications to patients, and developing solutions to bridge existing gaps in PF research. The I.M. Rosenzweig Junior Investigator Awards and the Albert Rose Established donors Investigator Awards support projects that offer a high likelihood of improving the understanding of pulmonary fibrosis (PF) in the following areas: basic science, translational research, clinical medicine/research, and social science/quality of life.

$500,000 and above Select Rehabilitation, Inc. Patti Tuomey, EdD & Chris Martin Genentech, Inc. Virginia Severinghaus The Winfield Foundation I.M. ROSENZWEIG JUNIOR INVESTIGATOR AWARDS Boehringer Ingelheim Dave & Diane Steffy Paul Yaworsky, PhD Jerry & Linda Strickland Jose D. Herazo-Maya, MD - Yale University $100,000-$499,999 Steve & Joan Wald $2,500-$4,999 “Serum microRNA Expression Profiles as Biomarkers in Idiopathic The Cowlin Family Fund through the Chicago The Ahearn Family Pulmonary Fibrosis” Community Trust $5,000-$9,999 Kristin Barnable Biogen, Inc. Linda Armyn The Baupost Group, LLC Funded by Genentech The McQuaid Family Martin & Colleen Attwell Melanie Beck Joe & Carolyn Borus Paul & Susan Bergna Jonathan Kropski, MD - Vanderbilt University $10,000-$99,999 BP Fabric of America Fund Berman DeValerio Bayer Schering Pharma AG Broadway Cares/Equity Fights Aids John & Jacolyn Bucksbaum “RTEL1 and DNA Damage Signaling in Pulmonary Fibrosis” Bristol-Myers Squibb Esther E. Bryan CBRE Funded by the NYC Run-Walk-Hike for Pulmonary Fibrosis Anthony & Marsha Clesceri Connect the Docs Pam Choney Coalition For Pulmonary Fibrosis Gail Craddock Ashley Cirilli Donna Wade Charitable Trust Daryl & Steven Roth Foundation Connors & Ferris, LLP ALBERT ROSE ESTABLISHED INVESTIGATOR AWARDS Doug & Gay Lane Charitable Foundation George & Elizabeth Eliades Culliton-Metzger Family Gunterberg Robert Edmunds Jr. & Mary Lou Edmunds FibroGen, Inc. Foundation Tracy Luckhardt, MD, MS - University of Alabama, Birmingham Robert Edmunds, III Richard Fracasso Shirley Devol “Frailty as an Outcome Measure in Idiopathic Pulmonary Fibrosis” Friends of Dave & Diane Steffy Jennifer A. Galvin, MD Dan & Zoe Bubany Funded by a grant from Boehringer Ingelheim Pharmaceuticals, Inc. The France Foundation Kelley Drye & Warren, LLP Peter Lawrence Drench Gilead Michael & Linda Keston Dungan Family Foundation Global Academy for Medical Education Martin Family Foundation Eastern Idaho Pulmonary Fibrosis Support Hon Yuen, PhD, MS - University of Alabama, Birmingham Tom & Alice Hales Marise Morrow Group “Home-Based Pulmonary Rehab for Patients with Pulmonary Fibrosis” Mike & Donna Henderson National Basketball Association Anne Ferguson Henry M. Staley Charitable Trust Vania & Barbara O’Connor FluidDA, Inc. Matthew Hudson Cheryl A. O’Meara Suzanne Gylfe & Family Inspire Prime Time Marketing Sean Dugan & Lianne Hales Shaw The Karl G. Hudson Jr. Foundation, Inc. Rosenthal Family Foundation Mary E. Halston Fred & Virginia Krauss Bruce Rosenzweig, MD Ken Madsen & Michelle Harmon-Madsen Larry L. Luing Family Foundation San Marino Iron Co. Carolyn Hicks David McNinch Robert Schulz Suzanne M. Hill Michael P. Savoca Memorial Foundation Alan & Pam Schwed James Kendall Hirst Pete DeVito Memorial Foundation, Inc. Senator Investment Group LP Steve & Bev Hossa Promedior, Inc. Phil Spangenberg Joy Kellenbarger Pulmonary Fibrosis Society Spectrum Health Medical Group Daniel M. Rose, MD The Steel Partners Foundation Lawrence Rosenzweig Team Jeffery for PF Romalda Schwed Todd Tullis 18 PULMONARY FIBROSIS FOUNDATION 2015/2016 ANNUAL REPORT 19 2015/2016 SUPPORTERS

$2,500-$4,999 (continued) Margery Brittain Steven & Susan Fanaroff Independent Charities of America Andy Luber, PharmD Bert & Susan Oyama Mitchell Kovitz Frank & Stephanie Brodsky Larry Farmer Rasika Iyer Teresa Luterbach Laura Palagyi & Family Landscape Concepts Management Greg & Lori Brownfield Kathleen Fields Anne Jachimowski Larry & Shannon Lynn Thomas Panaggio Lincare dba Acro Pharmaceutical Services Walter W. Buckley Paul Fiumara Rick Jack, PhD Deidre MacKenna, PhD Rhalene Patajo, PharmD Ajay Madan & Family Maxine Kent Callinan Shannon Flowers Karl Jaeger Susan MacLean Ketan Patel, MD Sandra Martin Gail Campbell Paul Fogelberg Paul James, PharmD Carl & Barbara Maggio Tanvi Patel, PharmD Florence McErlane Ed Capen & Family Regan Fong, PhD Herbert Janick, PhD Christine Maloney Joe Patel Ken Meurer Karen Carroll Foundation For Art Research and Marica Jarvenpaa Edward T. Mannix, PhD Nirmal Patil National Home Oxygen Patients Carroll Family Fund of The Greater Education, Inc. Richard & Sharon Jenkins Richard Marshall, MD, PhD Jeff Pearce Association Cincinnati Foundation Kurt Frederick Joe Escobar Diamonds, Inc. Joseph & Kathleen Masterson Donnelly Penman The Nederlander Organization, Inc. Jessica Castle, PhD Franziska Frey Nick Johnson Alison Matsui Bruce Sloane New York-Presbyterian/Columbia University Tess Ceron Maria E. Fuentes, PhD Johnson & Johnson Matching Gifts Marvin May Mark Pilgrim Medical Center Chalmers Family Nicole Furfaro Program Mayo Clinic Richard Pitt Ogilvy CommonHealth Lisa Chandler Diana Gallagher, MD Charles Richard Jones, MD Ward & Eileen McCarthy Mark Plourde Olympic Signs Laurie & Clarke Chandler Herbert Gedge Doug & Carolyn Jones Robert McCeney Cindy Pohlen Cheryl A. and John M. O’Meara Charitable Dorothy Cheung, MD Xin Geng, PhD William Joyner III Maryjo McDonald Patricia Polak-Hillestad Foundation Stephen Choe Ronald Giannini, PharmD Robert & Jean Kane Brenda McGehee Jess Porter-Abate, PhD Patient Services, Inc. Jung Choi Ravi Gogte Kim Karpeles Cori McKenzie Danyel Portillo Phelps Hospital Donna Chow Rob & Michelle Goldman Katzman Family Foundation Todd McKeon, PharmD Gabrielle Powell Phoenix Exchange, Inc. David & Orietta Ciavaglia Golub & Co., LLC Gurinder Nihal & Jasjit Kaur Judy McLaughlin Practice Velocity The Royalty Trust City of Llano Diane Gooding Sam & Jessica Kavitsky Alexander McNamara Debbie Purcell Melissa Socci Michelle Clayton Catherine Goodrum Anne Keeley Stephen Mendel, PharmD Karina Raimundo The Yale-ILD Center Charlie & Doris Cohen Elizabeth Gould Willie Kemp Donald & Pamela Merwin Suja Raju Rosemary A. Zaccanti Scott Cohen Hans Graber Giulia C. Kennedy, PhD Mesirow Financial Eleanor L. Ramos, MD Sandra Cohn & Family Stephen Graessle John & Dolores Kent Microsoft Matching Gifts Program Michael Rankowitz $1,000-$2,499 Colin O’Malley Productions, Inc. Steven & Barbara Grapstein Mohammad Adil Khan, PhD Paul Miller Sandhya Ravindranath & Family 12 Oaks Senior Living Esther Cosio Jeffrey Green Meghal Khokhani, PharmD Mary Mitchell Raymond and Frances Hagrman AB Distributing Bernard Costello H. Gordon Martin Foundation Shonda Kidd Moglia Family Foundation Charitable Fund Charles Albert Janice Carden Culver Kevin S. Hack Vicky Knudson Rafiq Mohammadi Sailendra Reddy Joyce Alejo CWS Apartment Homes, LLC Hiromasa Hamada, PhD Melissa Koch Phillip Monk, PhD Esther Regan Allianz Life Insurance Co. of North America D. Sibley Richard Han Karl Kossen, PhD June Morgan The Estate of Diane Reichert Altstadt Business Forms, Inc. Binoy Daniel, PharmD Caroline J. Hanan Theodore Kramer, MD Lizette Yvonne Moros Burgos Kurt S. Reichert Michael T. Amato Ann Das Sally Hansen Claudia Kronfeld Charles & Elise Morris Elizabeth Reilly The Arthur J. Gallagher Foundation Vicki David Jonathan Harada Evadna Kronquist Motwani Families The Revolution FMO, LLC B.A.F. Memorial Fund Vinay Desai Sandra Harasym Regina D. Kunkel Majd Mouded, MD William & Crystal Ribich Ruth Bailey, PhD Eric Deutsch, PhD Carl Hare Richard D. Ladel Joshua Mugford, PhD Karl Richir, MD Campbell Scientific, Inc. Carlinda Dirks Jeffrey D. Harris Gary & Debbie Lambert Brian & Cricket Mullaney Ridgecrest Dental Candace L. Barbato DJB Group, Inc. Jigna Heble Cynthia Lander, PhD Wendy Munger Joseph Rodriguez Elizabeth Bellocchio, PhD David Dlugie Christine Hedgcock King David & Sandee Landsburg Yoshinori Nakachi Jesse Roman, MD Paula Belloni, PhD Ronald Dolon, EdD Carla Helaszek Kevin & Karen Lane Nardella, Inc. Glenn Rosen, MD George Beran Christine Dudenhoeffer David Herder Mark Langer National Jewish Health Mike Rosenbluth, PhD Pauline Bianchi Melissa Dupont Jeffery Herman Erik Larsen Barbara Newman RTI Health Solutions Biener Audi Dyskeratosis Congenita Outreach, Inc. Richard G. Hill Family Trust Kristin Larson John Nicholas, PhD Cheryl Runyon Kathy Biggs Charles Hogan Law Office of Lawrence A. Steingold Gary Nichols Mario Saikohn Blanche and Irving Laurie Foundation EBay Foundation Employee Engagement Kevin Holme, PhD David Lederer, MD Alejandra Nunez Karam Salama, DrPH Chad Blocker Fund Holson Family Foundation Jack & Susy Ledgerwood Denis O’Keefe Andrea Sambatti BlueCross BlueShield of Illinois Electronic Arts Outreach Michael W. Horton, PharmD Elizabeth Leitner Michael & Cyndee Olauson Charolette Saunders Booster Campaigns Elena Khan Trudy Hsu Bronwyn Lewis Amy Ollett Hans T. Schambye, MD, PhD Brian K. Borkan Elliott Family Jing Huang, PhD Richard & Mary Logan Amy Olson Rozsa Schlenker-Herceg, MD Denise Breeden Brendan Ellis Amy Huitt August Lopes On Target Laboratories, LLC Thomas Schroeppel Brighton Foundation Trust Thomas Enderwick Joanne Hulme, PhD Randy & Dawn Love Jeffrey O’Neil Bruce Schwartz Pamela Hatch & Nancy Britt Equity One, Inc. Filza Hussain Elizabeth Loya Tony & Kristin Orlando Robert Ezykowich Christine Osborne William Fahy Otis Elevator Family Guidance Center Beth Owens

20 PULMONARY FIBROSIS FOUNDATION 2015/2016 ANNUAL REPORT 21 2015/2016 SUPPORTERS

$1,000-$2,499 (continued) Latora Scott, PhD Suzyn Waldman Jim & Susan Brock James Dorr Majorie Harvey Bruce Lightsey Carolyn J. Scroggin Rebecca Weaver Steve Brownstein Dougherty/Fuino Agency Dean Harwood Karen Lillie Shivu Sharma Kenneth & Carrie Weaver Cheryl Brunello Draper & Kramer, Inc. Susan Haskins-Doloff Andrew H. Limper, MD Ray Shelmire Herron & Cary Weems Ronae Bunger Murray Dropkin Denise Hehnly James Linton Jr. Mary Lisa Sheridan Gerrit Weimann, MD Nancy Bunney Lynne Duffey Patricia Henley & Family Kristin Lovelady-Dickson Francois Sincholle, MD Stephanie Whalen, PharmD Sharon Burke Brigit Duffy-Woods & Family Christian Herchenhan James Loyd, MD & Jennifer Loyd Pitchumani Sivakumar Sarah Williams, PhD Joseph Burkhart Nickolai Dulin, PhD Heritage Oaks Bank Barbara & Aari Ludvigsen Camilla Sjoesten Lohmander Jane Williams Thomas & June Butkovich Mark Edmundson Hibernia Bank Mark Luff SL Industries Jennifer M. Wilson Anna Byrd The Elsevier Foundation Hodgson Russ, LLP Edward & Sharon Luikaart Steve & Jennifer Sloma The Wonderful Foundation Michael & Vitalina Byrd Teresa K. Evered Elaine B. Holthaus David A. Lynch, MD Eunice Smith Xo Communications Timothy & Elizabeth Cabradilla Darrel Everman Colleen Horan Barbara Lynn Jeremy Smith Richard H Yamada Thomas Caputo & Family Everyday Hero Horseshoe Bend Country Club G. L. Lynn Bernald Smith Kazuhiko Yamamoto Mark & Sandra Carter Richard & Joy Fassio Nancy Houser Beulah Macumber Roberta Smith Alan Young, PhD Robert Case Mildred Susan Feinstein Linda Howard Rebekah Magalis Ernest R. Smith Eileen Zilvetti Donald Casey Gaye Feinstein Hirz Howland Family Foundation Satya Malur, MD SMS Assist Claire Zuckerman Charles Cavaretta, MD First NBC Bank Michael & Melinda Hubbard Elaine Martin Rohit Sood, MD, PhD Linda Chan George & Heather Fischer Lois Huddleston John Martuge Christina Soubrane, MD $500-$999 Anil Chaudhry Kevin Robert Flaherty Tristan J. Huie, MD Stacy Mason Susan Spalinger Maha Abdalla, PharmD, PhD Ashely E. M. Cirilli FM Global Foundation Mary Pat Huske Tom & Cynthia McBride Specialty Design Co. Christopher Adams Jim & Martha Cirilli Matthew Forgione Illinois Tool Works Foundation Patrick J. McCann Ms. Runjhun Srivastava Patrick & Katy Ahern Matthew Clarage Geoff Fox Iron Pigs Motorcycle Club, Inc. William McCarthy Robert St. Germain Michael Akimori Jo Carol Clark Stuart & Mara Feldman- Fox ITC Service Group, Inc. Edward McCarthy, MD Enola B. Staeven AmazonSmile Foundation Jim & Wende Coffman Frankstown Club Jessica Jackson Doug McCullough Standard Parking Ameriprise Financial Employee Matching Cheryl Coffman & Family Judith Friedman Roger & Mary Ann Jackson Kim McDonough Robert & Amy Starling Gift Program Michael Dorf Friends Village at Woodstown Patricia James Geraldine McGuigan John Stauffer, MD The Ann Boddy Memorial Fund Frank & Barbara Colucci Elaine Gackle Janeen Barber Foundation Patricia McHugh Isabelle Steenhaut Jon Appelbaum Commissionaires National Office Gallo Companies David Johnson Tracy McInturff Sheila Story Aptar Computerized Inventory Concepts, Inc. Ganote Family Foundation, Inc. Linda Johnson Ginnie McKeon Susanne Stowasser, MD Shirley Arseneau Computing Technology Industry Christine Kim Garcia, MD, PhD Dorothy Jonson Conor McNabb Mark W. Surber, PhD ATSG, Inc. Association, Inc. Richard S. Gaster, MD, PhD Marcie Judges Brian & Diana McNamara Margaret Swanson Call Corp. Robert R. Copeland GB Consulting Daniel Kaplan, DDS & Tova Kaplan Erica McNeill Symetra Ball Metal Container - Golden Plant Kathleen Corey GE Foundation William Kapner & Family Cheryl Mead Claire Tardy Colette Ballou Mary Beth Cormier GE Foundation Matching Gifts Program Fred & Annie Katz M. Lynn Meadows John G. Teeter, MD Frances Bangert Josh & Stephanie Cormier Gary Gersh Ethan & Nicole Efros Kaufman John & Rhonda Meding Gregory Thomas, MD Bank of America Charitable Foundation Michael L. Cortina Margaret Gilmer Megan Kellner Medline Foundation Peter Thwaite Edward Barrow Gregory P. Cosgrove, MD Jane Gilmer Nancy Kelly Medtronic Foundation Titan Outdoor, LLC Kathy Barton Diane Coyle Stephen & Laurie Girsky Elizabeth Taylor Kemp-Pherson Mentor Graphics Foundation James Tobin Joanna Bateman Alan Cravitz Lawrence D. Goldwater Kerry, Inc. David Meyer Ronnie Toddywala, PhD Stephen Baumgart Crystal Media Networks Seth Goodchild Sonja De Groot Kim Thomas A. Mezera Margaret E. Tonda, PharmD Bay State Federal Savings Charitable Aidan Curran, PhD Janet Gooden Peter Lewis & Hyun Kim Michael Mineau Laurel Townsend Foundation Dean & Elizabeth Darbe Janice Goodwin Robert Kleckner Arthur Mitchell Marcello Trevisani, PhD Edward Beach Liddy Davies Google, Inc. Lori G. Knee Andrea Mitchell Shawn Tubman & Family Harry Beardsley Margaret DeBerry Kathy Gose & Family Eric Koch Doug Monroe Patricia Turnbough Ross Berbeco Gary Denning Richard & Sally Graham Kohl’s Department Stores, Inc. Edmund Moore University of Rochester Monique G. Bergeron Claudia Dent Becky Grasso Kenji Kojima Moots Family Carolyn Vanderberg Berkshire Hathaway Woodmont Realty Department of Dermatology Duke Steven & Alana Green Linus Koopmeiners Ilene Morris Jim Varga Bettie Carter Morgan Woman’s Club University Grey Group Eileen Kowal John Morthanos Suji Venugopal Prasad Bill Blackburn Alyssa Deresky David Grubb Jerry Kurr Joanna Moscow Peter Verwaijen Frances E. Blevins Michael Deverell Paul M. Guyre, PhD Labella Associates, D.P.C. Edward Murchie Virginia McCallum Charitable Trust Georgia Bockos Gina Dibella Bill Hales John Lambert Barbara Murphy Virtua Jagadish Boggavarapu Lawrence Dipietro Christoph Hallmann, MD Robert Lamphear Karen Murphy Julie Vu, PharmD James Bogush Gerard Sidorowicz & Nancy Dombrowski HamiltonJet, Inc. Roy Lawrence Lynn Murray John Wagner Philip Bolas Donald E. Reisinger, Inc. Harbor Consulting IP Services, Inc. Bobbie H. Lawson Kenneth Breeden Kristen Dooley Dan Lee Daniel & Danielle Brinsky Daniel Levitan, MD

22 PULMONARY FIBROSIS FOUNDATION 2015/2016 ANNUAL REPORT 23 2015/2016 SUPPORTERS

$500-$999 (continued)

Sunil Murthy Patricia J. Sime, MD Curt Weinstein Rebecca Bascom, MD Holly B. Byrd Michael & Ginger Dewlen Paulina Muzzin Jagadeesh & Seema Sivadasan Westbrook Concrete Block Betty Baucom Cadre Curbing, LLC Jules Dierickx Max Nall Jay Smale Anna Westfall Beach Haven Moose Lodge #1575 Kevin Cahill Daniel Dilling, MD George Cameron Nash Cecilia Smith, DO Eric White, MD Linda Bechtel Virginia Cahill Dave Dodds National Carriers, Inc. Sheila Smith Shawn Wilson Beck, Villata and Co. P.C. Eileen Callahan Robert Donnelly National Main Street Center Richard Snee Witt’s Piggly Wiggly Michael F. Beers, MD Bob & Janet Campbell Darren Dougherty Thomas X. Neenan, PhD Heather Snyder Seth Wooten Lee Ann Bell Cannon Heyman & Weiss, LLP James & Karen Doyle Gilbert Norris Miriam Sonbolian, PharmD Beverly Brown Wright Rowland Bell John Capellupo Frederick W. Dreher Paul J. Nugent SRI Federal Credit Union Christine Wyble Bradford Bemiss, MD Car Trucking, Inc. Julie H. Dumas Constance Nutt Stanislaw Family Gayla S. Youngblood Ben E. Keith Co. Eva M Carmona, MD, PhD Julie Dunn Michael & Julee Oddino Vicki Stevens Zito Partners Mitch Bennett Linda Carpenter Jene & Kathie Durand Xitlalichomiha O’Dell Stinton Family Melanie Beohm Steve Casement Michael Durheim, MD Katherine Orr Heidi Stock $250-$499 Berkshire Hathaway Home Servies Jonathan Castano Andrea Duskas OSIsoft, LLC Charlie Strange III, MD The 1971 Piners Alexander Nielsen & Silke Berlinghof-Nielsen Richard J. Castriotta, MD Mary Lea Dutton Linda Osterman Mike Stuart Abington Memorial Hospital Andrea A. Berta Catani Family Robert East Patricia Overdyke Matthew Sullivan Ana Acevedo Todd & Julie Bertuzzi Mary Celenza Zana Easton Nayan Pandya Summit Veterinary Referral Center Carl & Marylin Acquistapace Verne & Nancy Berube Debra A. Chadwick Rebecca Edelmayer Ethan & Tracy Pardieu Sunrise Community Promotions, Inc. Kristin Wiggins Adams Mark Beverwyk Glenn Chapple Jeannine Edmundson Hiren & Patti Patel Sandra J. Surber Julia Adams Nitin Bhatt, MD Charles Chasin Lodeen Elliot PEC United Charities, Inc. Robert H. Sweeney Ayodeji Adegunsoye, MD Carmelita Biagtan Peter Cheng Sharon Elliot, PhD Timothy M. Perrin T. & R. Blacks Hardware, Inc. Ronald & Jeanette Adkins Damian A. Birnstihl Chipotle Mexican Grill Pamela Dawn Ellison Michele Peters Andrew M. Tager, MD Adventure Bound Camping Resorts Inez Bishop Chubb & Son, Inc. Employees of Clearwater Paper, Deanna Peterson Samuel Tambyraja, MD & Shomala Steve Aguillard Katharine Black, MD Churchill Family Cypress Bend Mill Piercey Investors Limited Tambyraja AIG Matching Grants Program William Black Sally Clark Rebekah English, DNP Plantscape Betty Telo T. Mark Aimone Stephen Blacker Linda Clemmons EnviroVac Kelsey Pleasant Third Rock Ventures D. Thomas Akey, MD T. Eugene Blanchard Danny & Margaret Coffman Michael Esmonde Dawn Polin Scott Thompson Karen Allen, MD Duane Bland Harold R. Collard, MD Maria del Carmen Espinola Jeffrey Poore Debra D. Thompson Allied Barton Security Services William Blinn Samuel Collins, PhD Joe Evangelista William & Michelle Propson Annette Thompson Allstate Giving Campaign Frederick Bogdan Mary Jane Colyer Jaime Faison Lenore Quiroga Leslie Tolle, MD Altair Advisers, LLC Colleen Bohaboy ComScore The Fannie Mae Team Real Estate Management Services Group Matthew Traylor Jacob J. Altmire Catherine Bonham, MD Rany Condos, MD Angelo Faraci Robert Reams Kerrie Trebonsky Joel Altobello Stephanie Boniecki Marlin Conry Jihane Faress, MD James & June Reed Kin Tak Esther Tsang John & Annette Ambler Francis & Janet Bonneville Karen Cooke Cheryl Fassanella Margaret Rehberg Marlene Tschaekofske Amquip Crane Rental, LLC Border Valley Trading Philip Cooper, DMD & Kathleen Cooper Arlene Faust Sander Kim & Vanessa Reichert-Kim William & Susan Tucknott Ping An, MD, PhD Robert Borowicz Kenneth & Jeanne Corcoran Fabrizio Fazzi, PhD Gemma Rickner Lauren Ulseth Judith Anderson Paul Boruta Glenn & Jennifer Coyne Teri Feider John Riley United Brotherhood of Carpenters & Joiners Anderson Family Benjamin Bowdon Vanessa J. Craig, MD Jamie Feinstein Ross EMBA-22’s of America-Local 45 Cathy Angle Marcus Bowen Ron & Carolyn Crowder Fellowship Baptist Church Joel Rumm, DVM United States Equestrian Federation Danielle Antin-Ozerkis, MD Sally Boyer Gary Curtis Peter Fichter Sandra Russell Hartnett University of Maryland Baltimore Kathy Appenzeller Perry Bozarth Cypress Lake High School Jeff & Lynn Fickes Steve & Laura Sadler Foundation, Inc. Craig Arakaki, MD David Bradley D’Angelo Family Ian Fiddes Salesforce Foundation Anupama Valluru Veronica Arbanil Greg & Tracy Braun Dave’s Contractor Sales, Inc. Scott & Julie Fineron L. Frank Salisbury Van Scoyoc Associates Armour Family Colleen Brophy, MD Mary Kay Davies Finetune Pilates Studio Sanofi Craig Vasey Al & Ann Asbury Anne Whitney Brown, MD Chuck & Marie Davies Patrick & Bridget Finney Autumn Schwed, DO Dorothy Vernimb Doris Aschke Matthew Brown Brian K. Davis First Baptist Church David Seng Shelia Violette, PhD Neelam Azad, PhD Robert Brownell, MD Dan & Suzanne DeBartolo First Midwest Bank Margaret Severson Vital Proteins, LLC Peter Bacola Harold Browning James Del Greco Flegal Insurance, Inc. Chaye Shapot Volunteer Firemen’s Beneficial Association Jose Baddini-Martinez, MD, PhD Lauren Bruning Joseph DeLaurentis Kama Fletcher Bonnie Shea of West Reading Pamela S. Baer Builders’ Wardware & Supply Co., Inc. Alexander M. Della Bella III, DMD Flexjet Sheedy Drayage Co. Voya Foundation Nancy Baldauff Ray Burbige Deloitte - West Tax Leadership Lori Flint Sheht Family David A. Wald Vincent Barrett Sandra Burgess Joseph & Mary DeRitis Florham Park Medical Center, Inc. Matthew Sher Walker School Thespian Society William Bartelt Michael & Leah Burkhardt Judith Derreth Thomas & JoAnn Fogarty Roger Wallace J. Cary Barton Carly D’Errico Ford Sunday School Class Stephen Wan Audrey Desforges Mike & Shayne Frankel Leslie Watters, MD Sandra Devol Eleanor Freeman

24 PULMONARY FIBROSIS FOUNDATION 2015/2016 ANNUAL REPORT 25 2015/2016 SUPPORTERS

$250-$499 (continued)

First Baptist Church Ladonna Greene John Hynes Edward Koplin Lulla Family LaDonna S. Miller First Midwest Bank Mridu Gulati, MD Yasunori Ichimura, MD, PhD Florian Kordas Fayong Luo, MD, PhD Lori S. Miller Flegal Insurance, Inc. David Guth Immaculate Conception Catholic Church Luka Korzeniowski Elizabeth Lyda, BS, RRT David Miller Kama Fletcher Robert Guzy, MD, PhD Hank & Martha Imwalle R. Matthew Kottmann, MD Thomas Lydigsen David Miller, PhD Flexjet Haag Engineering Charles Isherwood Jeff Kowal Gerard & Rosemary Lynch Susan Miller Lori Flint Susan Haber Bill & Margaret Ismon Mitchell Kowal Shwu-Fan Ma, PhD Millwright Local 740 Florham Park Medical Center, Inc. Jeff Hackett Anand Iyer, PhD Jacquelyn Kramer Barbara Mabee Kathryn Milne, MD Thomas & JoAnn Fogarty Hackettstown Regional Medical Center Carlo Izzo, DDS Delores Kreisler Debbie MacDonald Ferman Milster Ford Sunday School Class Tammy Haddad Renea Jablonski, MD Joyce Krempasky Evelyn MacLean Mims Family Mike & Shayne Frankel Dale & Lauren Haefner Gerald Jaeger Jonathan Kropski, MD Ann Marie Maguire Mark Minor Eleanor Freeman Amy Hajari Gloria Jaeger Joyce Kuffel Yasmin Mahal, DO Victoria Misik Christina Friday Terence F. Hales James G. Parker Insurance Associates Larry Kuhn Pamela Maino Missouri Cameo Club (MPAC) Barbara Friedland Stuart E. Hallett Jennings Chevrolet Tejaswini Kulkarni, MD Rhonda Malecha Maiko Mizuno Teresa & Martha Fuentes Kathleen M. Halston Barry Jensen Daniel Kurbanov, MD Regena Malvich David Modoski Sandra Gagnon Laura Hammel Chris Jenson Jennifer La Maria Manchisi Reid Monaghan Jean Gajewski Michelle Handler Sarah Jerome, PhD Lacey Moose Lodge #1907 Meeran Manji Joshua Mooney, MD Galatia High School Girls Softball Team Daniel Hanlon Jerome A. and Deena L. Kaplan Family Michael Lafauci Janice Mannke Joan Mooney Joe Galvan Lance & Nicole Harasym Foundation, Inc. Rosanne Lafauci Catherine Maresh William & Leah Mooney Patricia Ganun Amy Harrington Nikhil Jiwrajka Lakeside Medical Family Dominic J. Markajani Kerry & Jacqueline Moore Robert H. Garmoe Linda Harrison Johnny Mango’s Catering Asif Lala & Family Varun Marria & Family Ryan Hudgins & Sally Morgan Garritano Family William Harvey, MD & Betsy Harvey Laura Johnson Linda Lambert Douglas Marshall David Morganlander Nancy Gatto Nadia Hasaneen, MD, PhD Nora Johnson Landzettel & Sons, Inc. Maria Martin Scott Morin Tony Gattuso Jeffrey D. Hasday, MD Mary & Heidi Johnson Kim Lane, MD Fred & Maggie Mascia Julie Morisset, MD Georg & Reidun Gauger Robin Hasty Kirk D. Jones, MD Jim Lane Robert J. Mason, MD Sylvia Morrison Randolph Gaw Pam Hathcock Cary Ben Jones John R. Lanz Wendi Mason Dan Morrissey Bess S. Gayle William H. Hayes Terri Jordan Joseph A. Lasky, MD Jean Katherine Mathews Mark Mossman Chad Gehlbach Amy J. Haynes Jennifer Judge Terri Lathan Marti Mayben Danielle Mote Joseph Geiger Henk L. Hazelhoff Heidi Junk Trulee Lauermann Mayco International Mark Mulvaney Gemma Power Systems Louise Hecker, PhD Soma Jyothula, MD Law ElderLaw, LLP Juan Antonio Mazzei, MD, PhD Bob O’Bar & Neva Marie Murdock Tom Gent Thomas Heiden Siddhartha Kadia Richard LeBeau, PhD Mariano Mazzei, MD Patrick Murphy Kerry Geron Nancy Heitmeyer David W. Kamp, MD Michael Lech Cherri Mazzone My Health First Network The Andrew, Laurie & Sarah Gibbs Family Derrick Hendricks Robert J. Kaner, MD David B. Lederer James McAdams Girish B. Nair, MD Laura Gibson, MD Gina Herevia Carolyn Karch & Family Mairin Lee Molly McAlpine Rick Nardelli Katharine Gilbert Cody Hewitt Jonathan Karl & Family Jonathan Leff, MD Terry & Debbie McCarty David Naumann Megan Girtman, PhD Joseph J. Hickey Judith Karp David & Laurie Leli Kathleen McClure-Wight Jerald T. Neiman Marilyn K. Glassberg Csete, MD Jean Paul Higuero, MD Stan & Lynne Kastal Edward B. Leof, PhD Ross & Elisabeth McCoy Jane Nelson GlaxoSmithKline Foundation Stella E. Hines, MD Eric Rubin & Lisa Kates, MD Thomas & Joan Leonard Lindsay T. McDonald, PhD Lela M. Neubauer Craig S. Glazer Marie-Eve Hinse Mitchell Kaye, MD Jeanne Lepper James E. McErlane Chad Newton, MD Juleanna Glover Lawrence Ho, MD Richard Keefer Jr. Craig Lewis Shannon McFarland Jyoti Nigam Joseph Godfrey Anne Hogan Derrick Kennedy Paul & Emily Lewis Barbara L. McGrew North Anoka Plumbing, Inc. Antonio Goicoechea Mary Holmberg Bill Kerstetter Erik Lichter Caitlin McGuigan E. J. Nossent, MD, PhD Herb & Stephanie Gold Nicole Holmes Dolly Kervitsky Life EMS John P. McHugh Sr. Richard Notar Myron Goldman Barbara Hooper Kettler Family Kathleen O. Lindell, PhD, RN McKesson Foundation Matching Gift Program Craig Nuernberger Edward D. Goldstein Bob Hopper, PhD & Marti Hopper, PhD Iqbal Khan Alan Liwush Jim McNeill Flavia S. Nunes Soares, MD Stuart Goldstein Maureen R. Horton, MD Richard Korczynski & Mary Anne Kidon Mary Long Janet Meeteer Nuveen Investments, Inc. Doug Goodman Laurel Howard Hyun Kim, MD Joni Lore Jennifer Mefford Linda S. Obringer Bridget Gould Cara Hrusch, PhD June Kim, MD Agnes Lothridge Paul & Peggy Meillier Justin Oldham, MD Ryan Grady Fu-Mei Huang Saskia Kin Ginny Louloudes Michelle Meyers, BSN, RN Donald Olendorf Joseph & Roseann Grady G. Brian Huck Kathleen Kinser Marlies Lourens, MD, PhD MGM Dental Oracle Corp. Matching Gifts Starr Graff Debbie Huckle Morgan Kirkpatrick Kimberly Lovell, PhD David Midkiff Program Stacy Green J. Terrill Huggins, MD Nick Kladis Richard Luczyski Kathleen S. Mieras Orr Networks, LLC Clifford & Kim Greene Andrew Hughes, MD Ken Knox, MD Phil Luff Mike Abatti Farms, LLC Luis Ortiz James Hughey Meghan Koegler Edward Miklaszewski Ortley Beach Moose #399 James & Diane Hurley Kelsey Miles Kevin O’Shea Sameer Hyderi Joshua Miller Robert J Ostergaard

26 PULMONARY FIBROSIS FOUNDATION 2015/2016 ANNUAL REPORT 27 2015/2016 SUPPORTERS

$250-$499 (continued)

Carol Osterman James & Glenda Rademacher John & Chris Sesko Sherri Taberner Robert & Debra Wacker Marieke Overbeek, MD, PhD John Raimondi Paula Severson Vincent Tacci Rajat Walia, MD Duane Oyen Sassan & Jo Ann Raissi SFG Fifth Third Bank Tom Taggart & Family Tarik D. Walker, MD Jen Palminteri, MD Vijaya Ramalingam, MD Grace Sgambati Janet Talbert Michael Walker Tanmay Panchabhai, MD Jayalakshmi Ramanuja Nicholas & Kay Shanny Judith A. Talley The Walking Club and Mall Walkers Tommy Pappas Elizabeth Rambo Barry Shea, MD Robert Tannhauser Jon Walkley Ginny Parmer The Estate of Mildred Rang Ryan Shen Sue Tarr Marie Walsh Thomas Paron Jaikar Rao, MD Dean Sheppard, MD Tartaglino Family Eugene Walter John Pastor Elli Rathbun Thirusha Sher Varsha Taskar, MD Robert Warchol Kapil Patel, MD James Rattner David Sherry Janet M. Taylor Sarah H. Warren Namrata Patel, MD John Redpath Laura Shoup Linda Sue Teets Wartner Family Nina M. Patel, MD Theresa L. Reed John Siefert, MD Krishna Thavarajah, MD Sharon Waters Anish & Alpa Patel Neal Reilly Richard D. Siegel Beth Thomas Marla Watson Craig Patrick Melinda Reiser Catherine Siler, PhD Thomas Sebold & Associates, Inc. Julie Wattenbarger Deborah Patrick RESCO Electronics Leann Silhan, MD Edward J. Thompson Jeri Webb Patrons of Il Cantone Cafe RGL Consultants Jeffrey Silverman Alice Thorpe Sam Weigt, MD William & Barbara Patten Samar Riaz, BSc, NMD Linda A. Simmons Irina Timofte, MD Peter N. Weil Karen Patterson, MD Richard Rice Joseph H. Skalski, MD Gregory Tino, MD Sarah Wells Steven Pavlakis, MD & Bonnie Pavlakis Dallas Richards Skincare Physicians, Inc. Tober Family Jane Wesner James G. Pazzanese Sharon L. Riches Howard & Sharon Sklar Nevins W. Todd, MD Lewis Wesselius, MD Denise Pecheur Matt Rightmire Gerald Smaldone, MD, PhD Rade Tomic, MD Mary Westberg Jannick B. Pedersen Rissman, Barrett, Hurt, Donahue, McLain Barbara Y. Smith Susan Elizabeth Tomita John-Michael & Linnea Westerberg Lisa Pedrogo Pearsall and Mangan P.A. Eric B. Smith Lauren Tomsic David White David Perlman, MD Richard Robbins Cherie Smith & Family Wolfe Tone Leona White Catherine Persichini Ashleigh Rodriguez Constance Smith Noel Totti Wick and Brother, Inc. Richard & Carol Peske Mauricio Rojas, MD Corrin H. Smith Georgene Tozzi Kesh Narayanan & Annelie Wilde Mike Kimmel & Christina Peterson Bryan Rojas Carol Smith Ms. Kimberly Treacy & Family Terry & Kim Marie Wilkins Si Pham, MD Hilary Rosen Steven Solimano Judith Triano Peter Williams Philadelphia City 6 Extramural Classic, Inc. Randall L. Rosenblatt, MD Joshua Solomon, MD Tri-Star Steel Delbert Williamson Amy Phillips Erin Ross Bill & Gabriele Sondermann Don & Christa Trotter Carolyn Wilson Dorothy Phipps Debra Roth Anne I. Sperling, PhD Jonathan Tunnicliffe Tiffany Winstone, MD Rosemary Pike Tonya Russell, MD Cortney Spraker Rick & Diane Turner Whitney Winter, PhD Bob & Ann Pike Barbara Ryan Frank Squilla Anne F. Turner Elizabeth Wiseman Roy Pilkington Eileen Ryan St. Elizabeth Hospital Michael Tuteur Kathleen Wittau Gregory Pinnavaia Michael Ryan Kenneth Stapleton United Health Group (NJ) Ed Wolski, MD Lucas Pitts, MD Jay H. Ryu, MD Scott Staszak & Laure Dussubieux United States Distilled Products Wong Family Marcia Place John & Lisa Rzepka Harry & Sandra Stavros University of Pennsylvania The Esther Wright-Alsup Family Lorraine Ploppa Ruth Sabella Bret & Toni Steffenauer Urology Associates, LLC Xiaoping Wu, MD Anna Podolanczuk, MD Regina Sackrider Sue Stevens Bernt van den Blink, MD, PhD Wim A. Wuyts, MD, PhD Daniel & Theresa Poland Donna Sage Raymond Stevenson Mirjam van Manen Larry & Colette Young Mary Pollock Shigeki Saito, MD Andrew Stockey Lisa Varela Guoying Yu, PhD Charles Pomo Mary Christine Salita Jeremy Stone Stephen & Mary Beth Verget Ana C. Zamora, MD Mary Porteous, MD Mary M. Salvatore, MD StoneAge Kathleen Vesey Betty & Lisa Zayas Family Cindee Porter Greg Sampson Timothy Stookesberry Veterans United Patty Zemke Al Portugal Nathan Sandbo, MD Mike & Leanne Storch Anna Viegas Yingze Zhang, PhD Alan & Sandra Pratt Dena M. Sano, LPN Alicia D. Stowers Viele, Solimano, Swagler & Chapman, CPA Karen Ziff Kathy Price Dryden Mandy Schmidt Don & Adriana Streicher PC Ken & Roxann Zoromski Protravel International Steven Schneider Mary E. Strek, MD Christine L. Vigeland, MD Michael Zucker John Puk, MD & Family Steve & Susan Schnoll Family Sisi Suarez Vineland Chapter #84 OES Kate Zuckerman Teresa Pulvermacher Eileen Scholl Ashok Subramanian Vivian Virden Queens Board of Business Agents Fran Schooley John & Nancy Sullivan Craig & Melanie Vitrano Suzanne Radcliffe Stephen Schultis John Sullivan Andrew R. Vranic, MD Sheila Sebastian Sulphur Springs Livestock Gerard Selvaggio ServiceNow

28 PULMONARY FIBROSIS FOUNDATION 2015/2016 ANNUAL REPORT 29 2015/2016 TEAM PFF

thank you 3rd Annual James Lynam Memorial 5K Jennifer Wade Senior Project 3rd Annual Kickin It Full Throttle for A Cure Classic Car Show Jim Cormier Canal Walk Benefiting the PFF John Deere Golf Classic 3rd Irv Feldman Texas Hold’ Em Tournament & Casino Night Judges/Scheifele Wedding to our 5th Annual John F Tighe Walk for Pulmonary Fibrosis Keeping the Radiant Light of Jules Perez-Montiforte Alive 5th Annual Vic Vittorino Walk for your Next Breath 5K (PartyLite) 6th Annual Cruisin’ Toward a Cure for PF Kimberly Cole Afghan Fundraiser Te am PFF 6th Annual Pete DeVito Memorial Golf Outing Knock Your Pulmonary Fibrosis Pants Off! 7th Annual Garden State 5K Marree Paulson Memorial Fundraiser, Thirty One Party 9th Annual Greg Chandler & Guy F. Solimano Memorial Golf Tournament Mother Daughter Photo Shoot Art Shirk Birthday Mowery Clinic Jeans Day BAF Memorial Bike Run/Picnic Nancy Bacon Walk Bear Down for a Breath of Hope Newtown Elementary School Dress Down Day Bill Camp’s 70th Birthday NYC Run-Walk-Hike volunteers Bourbon & Barbeque Octoberfest Half Marathon, 5K, 10K and 40K Bike Bowling for Breath Order of Eastern Star – Grand Chapter of Washington -Vineland #84 Bowling for Pulmonary Fibrosis in Memory of Vincenzo Ciavaglia Coin Drill Donation Bracelets for PFF by Jools Dunn PartyLite Fundraiser Breath - Taking, Pulmonary Fibrosis Foundation Craft & Bake Sale Pennies from Heaven Breathe and Live Performance Matters Associates Fundraiser Breathe Easy Visual Arts Competition and Exhibition PFF Chipotle Fundraiser Breathe for Duffy Philadelphia Flyers Pulmonary Fibrosis Awareness Night Dedicated Supporters Breathe Fundraiser Pilot for A Cure MAKING AN IMPACT Breathtaking Jewelry for a Cause for IPF! Points for Pulmonary Fibrosis Katie Runs for Her Dad POP for PFF Walking Relay Team PFF event leaders are advocates who actively fundraise, promote, and host Caroline M Fell Memorial Walk Psych Out Pulmonary Fibrosis third-party events. Between July 1, 2015 and June 30, 2016, Team PFF event leaders Celebration of Sgt. Vern T Darlington’s Life Pulmonary Fibrosis Fundraiser with Jamberry! Change Makers Coin Jar Game Pulmonary Fibrosis T-shirt Campaign raised more than $450,000 in support of the PFF’s mission. Charity Golf Challenge Quad City Marathon Charlotte Saunders Transplaniversary Ready.Set.Breathe! Coffee/Donut Social for PFF Richmond Marathon Dance Performance Ride with Wave Debbie Is Amazing Robin Dellinger Yard Sale for PFF Divy and Joanne’s Wedding Rock for a Cure Donna Schwartz Memorial Walk Seidensticker Cup Egg Toss in Memory of Stephen Epstein Shop LaLuRoe for Pulmonary Fibrosis First Midwest Bank Jeans Day #ShowOut for Sharon Flipping Pages for Pulmonary Fibrosis Silver Falls Half Marathon in honor of Robert Lager Free to Breathe Skate for Stephen Golf Scramble for Global PF Awareness Month Songs for Cindy at Shank’s Tavern Harold W. Elbert Memorial and Research Fund Spectrum Health Jeans Day Hodgson Russ Dress Down Day Stephan Lively Fundraiser Breathe Free, Live Free Stick it to IPF Hudson Golf Tournament Strikeout Pulmonary Fibrosis IL Credit Union Jeans Day T1 10 Mile and 10K Innophos, Inc. Jean Day Teal Spin Craft Sales Ironman Chattanooga 140.6 Triathlon Participants of a Team PFF event, Maureen’s Jack up the WOD Against Pulmonary Fibrosis Memorial Mile Run, strike a pose. James Dylan and Amy’s Blue It Up for Pulmonary Fibrosis Awareness

30 PULMONARY FIBROSIS FOUNDATION 2015/2016 ANNUAL REPORT 31 2015/2016 TEAM PFF (CONT’D) FINANCIAL SUMMARY: FY2015-2016

STATEMENT OF FINANCIAL POSITION Team Jeffery Trivia Night AUDITED NUMBERS Team Joyce Challenge The Breathe Easy Fundathon The Clarence Friar Memorial Ready-Set-Breathe 5k and Fun Run Total Assets $ 6,743,740 The Newport and Walt Disney World Marathons Total Liabilities 2,404,432 Thomas Charles Sanders Fundraiser Trails for Charities Day Total Net Assets $ 4,339,308 Walgreens CT Annual Golf Charity Wanda James Golf Event West Virginia University Bake Sale Westphal Golf Outing STATEMENT OF ACTIVITIES: Wine Down for Pulmonary Fibrosis YEAR ENDED JUNE 30, 2016 Zielke Wedding Anniversary SOURCES OF REVENUE AUDITED NUMBERS 16% Other revenue Total Revenue Unrestricted $ 6,897,595 Temporarily Restricted 736,527

$ 7,6 3 4,122 Total Expenses 6,888,169

Change in Net Assets $ 745,953

84% SOURCES OF REVENUE Public support Public Support $ 6,434,748 84% Other Revenue 1,199,374 16% TWO CAMPAIGNS, ONE GOAL Total Revenue $ 7,6 3 4,122 100% When Sharon Cirilli passed away from pulmonary fibrosis in July 2015, her daughter, Ashley M. Cirilli, and daughter-in-law, Ashley E. Cirilli, wanted to do something to honor her memory. Sharon was a prolific ALLOCATION OF EXPENSES crocheter and an accomplished seamstress, and Ashley E., a ALLOCATION OF EXPENSES 19% Fundraising needlework enthusiast herself, sells Sharon’s and her own work at craft AUDITED NUMBERS shows, with proceeds benefiting the Pulmonary Fibrosis Foundation. Program Services by Category Ashley M. started a “Show Out for Sharon” campaign, which entailed PFF Patient Registry $ 809,845 Care Center Network 280,866 mailing out hundreds of PFF bracelets and asking friends and family to Research 277,121 share photos of themselves wearing the bracelets on social media. “We Outreach and Awareness 269,585 16% ended up getting 250 photos,” Ashley M. says. “For each one, the Cirilli family donated $5 and my Program Support 1,101,641 Management/ Patient Communication Center 38,790 general company, Disney, matched the contributions. It was a great way to keep Mom’s memory going and Physician and Patient Education 636,682 raise awareness of PF.” The Ashleys have contributed more than $12,000 to the PFF. “Even if it’s PFF Summit 699,806 only $25 at a time, we know we’re helping someone else and remembering an amazing person,” Support Groups 345,110 Legislative Advocacy 12,784 Ashley E. says. 65% Program services Program Services Total $ 4,472,230 65% Management and General 1,106,218 16% Fundraising 1,309,721 19%

Total FY2015-2016 Expenses $ 6,888,169 100%

32 PULMONARY FIBROSIS FOUNDATION 2015/2016 ANNUAL REPORT 33 PFF TEAM

OFFICERS

Scott Staszak INTERIM CHIEF EXECUTIVE OFFICER

Gregory P. Cosgrove, MD MEDICAL CHIEF MEDICAL OFFICER ADVISORY BOARD Laura Sadler BOARD MEMBERS CHIEF PROGRAM AND BUSINESS DEVELOPMENT Jesse Roman, MD OFFICER CHAIR George Eliades, PhD CHAIR Kevin K. Brown, MD STAFF PAST CHAIR Colleen Attwell Kevin R. Flaherty, MD, MS VICE CHAIR Marvin I. Schwarz, MD STEERING COMMITTEE CHAIR, PFF CARE CENTER PAST CHAIR NETWORK AND PFF PATIENT REGISTRY David McNinch VICE CHAIR Andrew H. Limper, MD David J. Lederer, MD CHAIR, SCIENTIFIC ADVISORY SENIOR MEDICAL ADVISOR, EDUCATION Dave Steffy COMMITTEE AND AWARENESS TREASURER Joseph Lasky, MD Harold R. Collard, MD Terence F. Hales VICE CHAIR, SCIENTIFIC SENIOR MEDICAL ADVISOR, RESEARCH DEVELOPMENT SECRETARY ADVISORY COMMITTEE Kerrie Trebonsky Nick DeVito Luca Richeldi, MD, PhD VICE PRESIDENT, FINANCE Laurie Chandler INTERNATIONAL WORKING GROUP Zoë D. Bubany Michael C. Henderson CHAIR VICE PRESIDENT, BOARD AND EXTERNAL RELATIONS Naftali Kaminski, MD Jeffrey James Swigris, DO, MS Rex Edwards EDUCATION WORKING GROUP Kathleen O. Lindell, PhD, RN VICE PRESIDENT, PFF CARE CENTER NETWORK CHAIR AND PFF PATIENT REGISTRY Daniel M. Rose, MD Timothy S. Blackwell, MD Jeri Webb Stephen A. Wald, PhD Jeffrey T. Chapman, MD ASSOCIATE VICE PRESIDENT, CONFERENCES AND MEETINGS Rany Condos, MD

Aryeh Fischer, MD Luis Arellano

Christine Kim Garcia, MD, PhD Patrick Belics

Andreas Günther, MD Janet Bianchetta

Susan S. Jacobs, RN, MS Daeshawna Cook

Naftali Kaminski, MD Mayra Diaz

David W. Kamp, MD Laura Devitt

Martin Kolb, MD Eirill Falck

Kathleen O. Lindell, PhD, RN Kate Gates

James E. Loyd, MD Gabi Hernandez

The Pulmonary Fibrosis Foundation David A. Lynch, MD Sheena Kelly has a four-star rating from Charity Navigator Fernando J. Martinez, MD, MS Mary Kiener and is a Better Business Bureau Imre Noth, MD Amy Kozyra accredited charity. Ralph J. Panos, MD Seth Klein

Ganesh Raghu, MD Heather Kundert

David A. Schwartz, MD Jennifer Mefford

Moisés Selman, MD Amanda B. Miller

Patricia J. Sime, MD Kyle Patterson

Charlie Strange III, MD Angela Perillo

Andrew M. Tager, MD Laurie Price

Janet Talbert, MS, CGC Sharon Reed

Eric White, MD Samantha Simmons

Meredith Taylor

34 PULMONARY FIBROSIS FOUNDATION Sean Thinnes 230 EAST OHIO STREET, SUITE 500 CHICAGO, ILLINOIS 60611–33201 www.pulmonaryfibrosis.org