A Genetic Point of View: the Effects of Ancestry Testing on Racial and Ethnic Identities
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Genetic Discrimination in the Workplace: an Overview of Existing Protections Melinda B
Loyola University Chicago Law Journal Volume 30 Article 2 Issue 3 Spring 1999 1999 Genetic Discrimination in the Workplace: An Overview of Existing Protections Melinda B. Kaufmann Stock and Leader, P.C. Follow this and additional works at: http://lawecommons.luc.edu/luclj Part of the Civil Rights and Discrimination Commons, and the Labor and Employment Law Commons Recommended Citation Melinda B. Kaufmann, Genetic Discrimination in the Workplace: An Overview of Existing Protections, 30 Loy. U. Chi. L. J. 393 (1999). Available at: http://lawecommons.luc.edu/luclj/vol30/iss3/2 This Article is brought to you for free and open access by LAW eCommons. It has been accepted for inclusion in Loyola University Chicago Law Journal by an authorized administrator of LAW eCommons. For more information, please contact [email protected]. Genetic Discrimination in the Workplace: An Overview of Existing Protections Melinda B. Kaufinann* Our fate is in our genes. I. INTRODUCTION The sophistication of genetic technology has grown at an amazing rate. As this technology improves, scientists can predict more genetic markers and traits than ever before. 2 Genetic information can poten- tially benefit society because it is likely to lead to cures and treatments for currently incurable genetic disorders. This knowledge, however, also has the potential to create a biological underclass of people based on their latent genetic disorders. Some critics have gone so far as to suggest that knowledge of genetic fitness could be used to choose between parents in custody battles, or to determine whether potential adoptive parents are suitable.3 More commonly, however, genetic technology can be used to screen applicants for both employment and health insurance. -
Eugenomics: Eugenics and Ethics in the 21 Century
Genomics, Society and Policy 2006, Vol.2, No.2, pp.28-49 Eugenomics: Eugenics and Ethics in the 21st Century JULIE M. AULTMAN Abstract With a shift from genetics to genomics, the study of organisms in terms of their full DNA sequences, the resurgence of eugenics has taken on a new form. Following from this new form of eugenics, which I have termed “eugenomics”, is a host of ethical and social dilemmas containing elements patterned from controversies over the eugenics movement throughout the 20th century. This paper identifies these ethical and social dilemmas, drawing upon an examination of why eugenics of the 20th century was morally wrong. Though many eugenic programs of the early 20th century remain in the dark corners of our history and law books and scientific journals, not all of these programs have been, nor should be, forgotten. My aim is not to remind us of the social and ethical abuses from past eugenics programs, but to draw similarities and dissimilarities from what we commonly know of the past and identify areas where genomics may be eugenically beneficial and harmful to our global community. I show that our ethical and social concerns are not taken as seriously as they should be by the scientific community, political and legal communities, and by the international public; as eugenomics is quickly gaining control over our genetic futures, ethics, I argue, is lagging behind and going considerably unnoticed. In showing why ethics is lagging behind I propose a framework that can provide us with a better understanding of genomics with respect to our pluralistic, global values. -
Legal Responses to Discriminatory Actions: a Comparative Analysis Hugo Rojas Alberto Hurtado University
Loyola University Chicago International Law Review Volume 5 Article 3 Issue 2 Spring/Summer 2008 2008 Legal Responses to Discriminatory Actions: A Comparative Analysis Hugo Rojas Alberto Hurtado University Follow this and additional works at: http://lawecommons.luc.edu/lucilr Part of the International Law Commons Recommended Citation Hugo Rojas Legal Responses to Discriminatory Actions: A Comparative Analysis, 5 Loy. U. Chi. Int'l L. Rev. 127 (2008). Available at: http://lawecommons.luc.edu/lucilr/vol5/iss2/3 This Feature Article is brought to you for free and open access by LAW eCommons. It has been accepted for inclusion in Loyola University Chicago International Law Review by an authorized administrator of LAW eCommons. For more information, please contact [email protected]. LEGAL RESPONSES TO DISCRIMINATORY ACTIONS: A COMPARATIVE ANALYSIS Hugo Rojast I. Introduction Comparison is, at its core, an odious device. However, comparative analyses provide us with the opportunity to learn from others' experiences. The purpose of this essay is to evaluate and analyze the different variables that exist in the treat- ment of discrimination across divergent legal cultures. Within each of the de- fined variables, it is possible to detect levels of normative intensity, with some countries focusing more on the victim's ability to glean monetary compensation and others focusing on the punishment and/or sanctioning of the discriminator and still others focusing on variables in between. Ultimately, it is not my inten- tion to assert that any one model is more suitable or effective in its treatment of discrimination than another. Instead, the intricacies of a variety of legal cultures are laid out like a map, providing an overview of the diverse geography that exists in the legal treatment of discrimination and simplifying the task of navigat- ing this ever-changing terrain. -
Mapping Our Genes—Genome Projects: How Big? How Fast?
Mapping Our Genes—Genome Projects: How Big? How Fast? April 1988 NTIS order #PB88-212402 Recommended Citation: U.S. Congress, Office of Technology Assessment, Mapping Our Genes-The Genmne Projects.’ How Big, How Fast? OTA-BA-373 (Washington, DC: U.S. Government Printing Office, April 1988). Library of Congress Catalog Card Number 87-619898 For sale by the Superintendent of Documents U.S. Government Printing Office, Washington, DC 20402-9325 (order form can be found in the back of this report) Foreword For the past 2 years, scientific and technical journals in biology and medicine have extensively covered a debate about whether and how to determine the function and order of human genes on human chromosomes and when to determine the sequence of molecular building blocks that comprise DNA in those chromosomes. In 1987, these issues rose to become part of the public agenda. The debate involves science, technol- ogy, and politics. Congress is responsible for ‘(writing the rules” of what various Federal agencies do and for funding their work. This report surveys the points made so far in the debate, focusing on those that most directly influence the policy options facing the U.S. Congress, The House Committee on Energy and Commerce requested that OTA undertake the project. The House Committee on Science, Space, and Technology, the Senate Com- mittee on Labor and Human Resources, and the Senate Committee on Energy and Natu- ral Resources also asked OTA to address specific points of concern to them. Congres- sional interest focused on several issues: ● how to assess the rationales for conducting human genome projects, ● how to fund human genome projects (at what level and through which mech- anisms), ● how to coordinate the scientific and technical programs of the several Federal agencies and private interests already supporting various genome projects, and ● how to strike a balance regarding the impact of genome projects on international scientific cooperation and international economic competition in biotechnology. -
1 Constructing the Scientific Population in the Human Genome Diversity and 1000 Genome Projects Joseph Vitti I. Introduction: P
Constructing the Scientific Population in the Human Genome Diversity and 1000 Genome Projects Joseph Vitti I. Introduction: Populations Coming into Focus In November 2012, some eleven years after the publication of the first draft sequence of a human genome, an article published in Nature reported a new ‘map’ of the human genome – created from not one, but 1,092 individuals. For many researchers, however, what was compelling was not the number of individuals sequenced, but rather the fourteen worldwide populations they represented. Comparisons that could be made within and among these populations represented new possibilities for the scientific study of human genetic variation. The paper – which has been cited over 400 times in the subsequent year – was the output of the first phase of the 1000 Genomes Project, one of several international research consortia launched with the intent of identifying and cataloguing such variation. With the project’s phase three data release, anticipated in early spring 2014, the sample size will rise to over 2500 individuals representing twenty-six populations. Each individual’s full sequence data is made publicly available online, and is also preserved through the establishment of immortal cell lines, from which DNA can be extracted and distributed. With these developments, population-based science has been made genomic, and scientific conceptions of human populations have begun to crystallize (see appendix). Such extensive biobanking and databasing of human populations is remarkable for a number of reasons, not least among them the socially charged terrain that such an enterprise inevitably must navigate. While the 1000 Genomes Project (1000G) has been relatively uncontroversial in its reception, predecessors such as the Human Genome Diversity Project (HGDP), first conceived in 1991, faced greater difficulty. -
Your Dna Is Your Resume: How Inadequate Protection of Genetic Information Perpetuates Employment Discrimination
Washington and Lee Journal of Civil Rights and Social Justice Volume 7 | Issue 1 Article 8 Spring 4-1-2001 YOUR DNA IS YOUR RESUME: HOW INADEQUATE PROTECTION OF GENETIC INFORMATION PERPETUATES EMPLOYMENT DISCRIMINATION Follow this and additional works at: https://scholarlycommons.law.wlu.edu/crsj Part of the Civil Rights and Discrimination Commons, Disability Law Commons, Health Law and Policy Commons, and the Labor and Employment Law Commons Recommended Citation YOUR DNA IS YOUR RESUME: HOW INADEQUATE PROTECTION OF GENETIC INFORMATION PERPETUATES EMPLOYMENT DISCRIMINATION, 7 Wash. & Lee Race & Ethnic Anc. L. J. 117 (2001). Available at: https://scholarlycommons.law.wlu.edu/crsj/vol7/iss1/8 This Article is brought to you for free and open access by the Washington and Lee Journal of Civil Rights and Social Justice at Washington & Lee University School of Law Scholarly Commons. It has been accepted for inclusion in Washington and Lee Journal of Civil Rights and Social Justice by an authorized editor of Washington & Lee University School of Law Scholarly Commons. For more information, please contact [email protected]. YOUR DNA is YOUR RESUME: How INADEQUATE PROTECTION OF GENETIC INFORMATION PERPETUATES EMPLOYMENT DIsCRIMINATION Tobi T. Bromfield' L INTRODUCTION Genetic testing, the new Pandora's Box of medical knowledge, cannot be greeted with full embrace. While genetic testing is useful for indicating the number of persons likely to contract a known disorder, potential harm exists when identified groups which carry a presently known genetic disease are singled out.2 This technology's youth and potential discriminatory effects present grave dangers of racial discrimination against minorities due to the lack of understanding and misuse of genetic information by potential employers. -
Equity & Social Justice Resource Guide
Metropolitan King County Council Equity & Social Justice Section EQUITY & SOCIAL JUSTICE RESOURCE GUIDE “All human beings are born free and equal in dignity and rights.” 1 Equity Resources: Compiled using multiple national and local sources, May 2020 [this page left intentionally blank] 2 Equity Resources: Compiled using multiple national and local sources, May 2020 CONTENT I. Terminology THE LAW II. Protected Classes III. Legislation READING: IV. Books V. Blogs and Articles VI. Magazines VII. Reports MEDIA VIII. Films IX. Videos X. Podcast XI. Web Sites LANGUAGE EQUITY TRAININGS (To be added) XII. Online training XIII. Learning & Development FACILITATION (To be added) WELL BEING (To be added) ADDITIONAL READING XIV. Challenging Racism XV. Colorblindness, Diversity, Inclusion, and Equity XVI. Racial Equity Tool Kits XVII. Talking About Pronouns 3 Equity Resources: Compiled using multiple national and local sources, May 2020 TERMINOLOGY The following terminology is commonly used in conversations regarding social justice, diversity, equity and allyship. It is meant to be a starting point for engaging in open and honest conversation by offering a shared language of understanding. Please note, this list is not exhaustive and the meaning of these words may change and evolve based on context. If there is a term that you feel should be included here, please let me know. 1. Ableism: A system of oppression that includes discrimination and social prejudice against people with intellectual, emotional, and physical disabilities, their exclusion, and the valuing of people and groups that do not have disabilities. 2. Accomplice: An ally who directly challenges institutionalized homophobia, transphobia and other forms of oppression, by blocking or impeding oppressive people, policies and structures. -
Ancient DNA: a History of the Science Before Jurassic Park
Contents lists available at ScienceDirect Studies in History and Philosophy of Biol & Biomed Sci journal homepage: www.elsevier.com/locate/shpsc Ancient DNA: a history of the science before Jurassic Park Elizabeth D. Jonesa,b,∗ a University College London, Department of Science and Technology Studies, Gower Street, London, WC1E 6BT, United Kingdom b University College London, Department of Genetics, Evolution and Environment, Gower Street, London, WC1E 6BT, United Kingdom 1. Introduction an array of actors from futurists and enthusiasts to scientists and the popular press contributed to ancient DNA's early history, and that what This history highlights the search for DNA from ancient and ex- we see as science often has its beginnings with ideas and individuals tinct organisms from the late 1970s to the mid 1980s, uncovering the that are outside the conventional confinements of the laboratory. origination and exploration of ideas that contributed to the con- Second, this article argues that from the beginning, particularly struction of this new line of research.1 Although this is the first preceding the release of Jurassic Park,thesearchforDNAfromfossils academic historical account of ancient DNA's disciplinary develop- was closely connected to the idea of bringing back extinct organisms. ment, there are other reviews and reports that outline its history.2 Ancient DNA elicited enthusiasm and speculation across different Most cite a paper published in Nature in 1984, where researchers audiences. Some imagined using DNA to study evolutionary history. reported the discovery of DNA froma140-year-oldextinctquagga,as Others speculated about its potential to resurrect long-lost species. the beginning of ancient DNA's history. -
Commencement Program 1977 Whitworth University
Whitworth Digital Commons Whitworth University Commencement Programs University Archives 1977 Commencement Program 1977 Whitworth University Follow this and additional works at: https://digitalcommons.whitworth.edu/commencement- programs Recommended Citation Whitworth University , "Commencement Program 1977" Whitworth University (1977). Commencement Programs. Paper 45. https://digitalcommons.whitworth.edu/commencement-programs/45 This Book is brought to you for free and open access by the University Archives at Whitworth University. It has been accepted for inclusion in Commencement Programs by an authorized administrator of Whitworth University. EIGHTY-SEVENTH SPRING COMMENCEMENT SUNDAY, MAY 15, 1977 Spokane, Washington "Friends, Iwill remember you, think of you, pray for you. And when another day is through I'll still be friends with you." THE PRELUDE THE CONFERRING OF THE GRADUATE DEGREES The Whitworth College Concert Band Edward B. Lindaman, L.H.D., Sc.D., President Richard V. Evans, DMA., Director Duncan S. Ferguson, Ph.D., Vice-President for Academic Affairs Jack W. Hatch, Vice-Chairman of the Board of Trustees Alvin B. Quail, Ed.D., Professor of Education, Director of Graduate THE PROCESSIONAL Studies March Processional Clare E. Grundman Ronald R. Short, Ph.D., Professor of Psychology, Director of M.A.A.B.S. The Whitworth College Concert Band Program Richard V. Evans, DMA., Director Glenn E. Fehler, M.Ed., Registrar THE INVOCATION A HYMN Ronald C. White, Ph.D., Chaplain Joyful, Joyful, We Adore Thee Joyful, joyful, we adore Thee, God of glory, Lord of love; Hearts unfold like flowers before Thee, Opening to the sun above. SCRIPTURE Melt the clouds of sin and sadness, Drive the dark of doubt away; Giver of immortal gladness, Fill us with the light of day. -
Genetic Discrimination
Genetic Discrimination Genetics in the Workplace Nondiscrimination Louisiana law forbids genetic discrimination and limits genetic Louisiana law also provides that an employer, labor testing in the workforce. organization or employment agency shall not discriminate on the basis of protected genetic information, and an Defi nitions employer, labor organization or joint labor management committee controlling apprenticeship, on-the-job Key terms are used to establish specifi c genetic discrimination training or other training program shall not discriminate and privacy protections. They are as follows: on the basis of protected genetic information. 1. “ Genetic monitoring” is the periodic examination of employees to evaluate changes to their genetic material Exceptions that may have developed in the course of employment due to exposure to toxic substances in the workplace. An employer, labor organization or employment agency may request protected genetic information with an offer of 2. “ Genetic services” are defi ned as the health employment. They may request, collect or purchase protected services provided to obtain, assess, or interpret genetic information if there is a request for, or receipt of, genetic information for diagnostic or therapeutic genetic services and the effect of genetic monitoring of purposes, or for genetic education or counseling. toxic substance shall be permitted in the workplace. If you believe you have been discriminated against, 3. “ Genetic test” means the analysis of human DNA, RNA, please contact the Louisiana chromosomes, and those proteins and metabolites Commission on Human Rights at 1-888-248-0859 or visit used to detect heritable or some somatic disease- us at www.gov.state.la.us/ related genotypes or karyotypes for clinical purposes. -
Human Rights and Genetic Discrimination: Protecting Genomics' Promise for Public Health Anita Silvers
College of William & Mary Law School William & Mary Law School Scholarship Repository Faculty Publications Faculty and Deans 2003 Human Rights and Genetic Discrimination: Protecting Genomics' Promise for Public Health Anita Silvers Michael Ashley Stein Repository Citation Silvers, Anita and Stein, Michael Ashley, "Human Rights and Genetic Discrimination: Protecting Genomics' Promise for Public Health" (2003). Faculty Publications. 712. https://scholarship.law.wm.edu/facpubs/712 Copyright c 2003 by the authors. This article is brought to you by the William & Mary Law School Scholarship Repository. https://scholarship.law.wm.edu/facpubs Human Rights and Genetic Discrimination: Protecting Genomics' Promise For Public Health Anita Silvers and Michael Ashley Stein he potential power of predictive genetic testing prophylactic and therapeutic intervention. They also delay as a risk regulator is impressive. By identifying any gain of knowledge (for themselves or others) about T asymptomatic individuals who are at risk of be- their genotype by refusing to participate in research proto coming ill, predictive genetic testing may enable those cols. Thus, fear of discrimination (whether or not factually individuals to take prophylactic measures. As new thera justified) has the potential to block benefits that otherwise pies become available, the usefulness of genetic testing might be gained from genomic knowledge. As a conse undoubtedly will increase. Further, when a person's family quence, scientists like Dr. Francis Collins, head of the medical history indicates a propensity towards a particular National Human Genome Institute, recommend strong le genetic disease, a negative test result may open up other gal protections against genetic discrimination.4 wise denied opportunities by showing that this person has Nevertheless, effective fed~ral regulation specifically not inherited suspect genes. -
Genetic Discrimination: Genealogy of an American Problem
Genetic Discrimination: Genealogy of an American Problem Janet Elizabeth Childerhose Department of Anthropology McGill University, Montreal November 2008 A thesis submitted to McGill University in partial fulfillment of the requirements of the degree of Doctor of Philosophy © Janet Elizabeth Childerhose 2008 ABSTRACT Genetic discrimination has been transformed from an isolated concern of a handful of professionals into a pressing civil rights and public policy problem in the United States over the last twenty years. My dissertation is a genealogical account of how genetic discrimination has been shaped into a problem of this stature. It answers two questions: Where did the problem come from? How has the problem changed over time? In Part One, I trace the history of concerns about discrimination from the 1970s to the present. Drawing from oral histories with key actors and organizations that shaped early public understanding of the problem, I show that concerns about genetic discrimination originated in diverse practices. These practices include workplace genetic screening, insurer discrimination against individuals with AIDS, the rapid commercialization of genetic tests in the 1980s, and health care reform. In Part Two, I present findings from a three-year ethnographic study of public policy hearings on genomic medicine in the United States that illustrate how new actors have been defining the problem of genetic discrimination since 1995. The hearings of the Secretary’s Advisory Committee on Genetics, Health and Society were a site where participants legitimized genetic discrimination as a civil rights problem and developed lobbying tools to persuade Congress to pass federal nondiscrimination legislation. Participants framed fear of discrimination as a barrier to the nation’s scientific progress and a significant threat to the lives of Americans.