2013 IDF AnnualReport Immune Deficiency Foundation 40 West Chesapeake Avenue, Suite 308 Towson, MD 21204 800-296-4433 www.primaryimmune.org [email protected]

Why does IDF say THINK ZEBRA? In medical school, many doctors learn the saying, “when you hear hoof beats, think horses, not zebras,” and are taught to focus on the likeliest possibilities when making a diagnosis, not the unusual ones. However, sometimes physicians need to look for a zebra. Patients with primary immunodeficiency diseases are the zebras of the medical world. So IDF says THINK ZEBRA! From Our Leadership

As parents of children with primary immunodeficiency diseases, we know how difficult it can be finding information or guidance when a family member is diagnosed. When the Immune Deficiency Foundation (IDF) was founded in 1980, one of the main goals was to provide tools and resources to those living with primary immunodeficiency diseases (PI). It is with that same spirit and perspective that IDF exists today, thriving as a patient organization.

We are proud to relay that in 2013, IDF launched major initiatives that brought the IDF community together, provided new resources and helped patients and families advocate for themselves and take control of their lives.

IDF 2013 National Conference IDF hosted one of the largest National Conferences in the Foundation’s history in Baltimore, MD last June, with more than 1,200 people attending, including 44 states, Washington, DC, and twelve countries. Our National Conference is the world’s largest gathering of families affected by PI and offers exceptional opportunities. First, the largest delegation of the PI community ever, approximately 300 people, traveled from Baltimore to Capitol Hill for a historic IDF Advocacy Day. When the conference sessions began, participants of all ages gained skills to manage their health, while several first-time attendees experienced meeting other patients for the first time. All learned from experts in the fields of healthcare, life management, and other disciplines. Many who attended remarked that they left the conference empowered and prepared to better manage living with their PI.

At the National Conference, many new initiatives were launched, but in particular two essential resources were introduced. The IDF Patient & Family Handbook for Primary Immunodeficiency Diseases - 5th Edition, the trusted publication featuring new chapters and the latest information about diagnosis, treatment and life management was given to attendees, along with other new publications. To satisfy the demands of our growing community and to stay current with the latest technologies, the IDF website, www.primaryimmune.org, was redesigned and audited. It is now mobile responsive with easy-to-use menus and additional content, including life stage sections.

IDF Walk for Primary Immunodeficiency IDF launched a national walk program in 2013, IDF Walk for Primary Immunodeficiency. Many in our community have long asked how they can create awareness about PI and help IDF, and the walk program gives them the opportunity to do just that. Three walks were held in Philadelphia, Los Angeles, and Chicago and nearly 1,300 walkers participated. More than $430,000 was raised from walkers and sponsors. The response from the first year was extraordinary! There were teams of family and friends, teams of coworkers, teams of classmates. Patients and families living with PI really reached out and rallied those closest to them. We were truly inspired by the generosity and enthusiasm of our community, and we are extremely grateful to our walkers and sponsors. IDF Walk for Primary Immunodeficiency is undoubtedly a game-changer for the PI community—it’s a way for our community to make a lasting impact.

PI CONNECT As the year came to a close, we received wonderful news. In December 2013, IDF was approved for a funding award for PI CONNECT from the Patient-Centered Outcomes Research Institute (PCORI). We were thrilled! IDF was one of only 29 recipients and the selection was very competitive. We were so honored to have IDF recognized for its expertise, resources and commitment to engaging patients.

PI CONNECT will be part of PCORnet: the National Patient-Centered National Clinical Research Network. This network aims to advance the shift in clinical research to patient-centered studies, giving patients “a seat at the research table.” Our PI CONNECT will be part of a secure, national data network that improves the speed, efficiency, and use of patient-centered comparative effectiveness research to boost the efficiency of health research. PI CONNECT will build upon our existing programs supported by our motivated patient community who want results.

It is hard to only focus on three of our achievements when there were so many accomplishments during the year. Please review this Annual Report 2013 that captures an incredible year during which IDF continued to be the authoritative source for the PI community, providing patients and family members with vital tools to help them improve their lives. We appreciate the hard work and dedication of so many who made it possible.

Sincerely,

John Seymour, PhD, LMFT Marcia Boyle Chair, IDF Board of Trustees IDF President & Founder IMMUNE DEFICIENCY FOUNDATION

2013 Year in Review

Mission Statement The Immune Deficiency Foundation (IDF) is the national patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases (PI) through advocacy, education and research. As we reflect on the past year, it is always helpful to review the statistics behind our ongoing programs and activities to evaluate the impact IDF had while working on behalf of our community in 2013.

Patient Services As a national patient organization, education is central to our mission and each year, IDF hosts patient education meetings throughout the country. IDF believes it is imperative to increase efforts to partner with healthcare professionals in geographic regions to reach more patients and enhance the content of the meetings.

Patient Education Programs In 2013, IDF hosted 20 Education Meetings, which are daylong meetings where local experts present medical and life management sessions to adults. We also had three Family Conference Days, which are Education Meetings with the addition of a youth program for ages 5 and up. Through these meetings, we reached 1,294 people.

IDF 2013 National Conference The IDF 2013 National Conference, held June 25-27, 2013 in Baltimore, MD, provided hundreds living with PI the opportunity to learn more about the disorders, to discover ways to manage their health, and to connect with others who understand. More than 1,200 people of all ages traveled from all over the world, including 44 states, Guam, France, South Africa, the United Kingdom, Canada, Italy, Germany, Australia, Israel, Belgium and Argentina. It all began with IDF Advocacy Day on Thursday, June 27. Approximately 300 people traveled to Washington, D.C. to advocate for needs of our community—this was the largest delegation of the PI community on Capitol Hill ever. They met with Members of Congress for personal meetings throughout the day. Later that day, everyone returned to Baltimore for the Welcome Reception officially kicking off the conference, featuring a performance of the national anthem and an Armed Forces Color Guard. Over the next two days, 53 healthcare and life management experts conducted nearly 40 presentations that provided vital information to patients and families. Speakers discussed advancements in diagnosis and treatments as well as topics related to living with PI, like autoimmunity, allergies, mental health, parenting skills, employment, health insurance and more. “All of the speakers presented their topics in a manner which was easy to understand for non- clinicians,” said one attendee. “This was my first conference. I intend to make it the first of many.”

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Children, tweens and teens participated in age appropriate, educational activities during the IDF Youth Program. Parents were thankful for the experiences of their children. A mother of a patient explained, “The experience of meeting other children that have the same diagnosis as my son with CVID was priceless for him.” Another mother said, “Thank you for helping our children become better educated about their disease. You have made our lives easier and better because we have the knowledge and understanding of primary immunodeficiency.” At the end of each day, everyone had a chance to relax with special celebrations. Friday’s Stars and Zebra Stripes Gala included the THINK ZEBRA! Silent Auction, musical entertainment and an awards presentation. Family fun was had by all at Saturday’s IDF Night at the National Aquarium in Baltimore. The IDF 2013 National Conference was a tremendous success, educating patients and families and bringing together so many members of the community. “This was the most amazing and positive experience,” said one patient, “I will be recommending this to anyone with primary immunodeficiency … You put together an experience that was so affirming for us.” The IDF 2015 National Conference, the eighth national conference, will take place at the Hyatt Regency New Orleans on June 25-27, 2015.

The Boyle Scientific Achievement Award At the IDF 2013 National Conference, Michael S. Hershfield, MD received The Boyle Scientific Achievement Award. Established by IDF in 1992, this award pays tribute to a member of the medical/scientific community who has extensively contributed toward improving the diagnosis and care of patients with primary immunodeficiency diseases. Dr. Hershfield is a professor of medicine and biochemistry at Duke University Medical Center in Durham, NC. He has authored or coauthored nearly 100 research articles and case reports related to PI. Dr. Hershfield has also sparked collaboration with an international group of pediatric immunologists in efforts to reach a consensus on optimal therapy for patients with Severe Combined Immune Deficiency (SCID) and other specific types of PI. “For more than two decades, Dr. Hershfield’s pioneering research efforts and generous donation of his expertise and laboratory testing of SCID blood samples have provided a vital global resource for diagnosing and treating ADA-deficient SCID and ruling it out in the others,” said Rebecca Buckley, MD, Professor of Pediatrics and Professor of Immunology at Duke University Medical Center and Chair of the IDF Medical Advisory Committee. “We are confident Dr. Hershfield’s dedication to primary immunodeficiency will inspire other physicians and researchers by showing how scientific achievement can directly impact patients and lead to a better quality of life for people with these diseases.”

IDF Achievement Award Carol Ann Demaret, a long time IDF Board member, received the IDF Achievement Award at the IDF 2013 National Conference for her work on

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behalf of the PI community. Carol Ann’s son David Vetter, affectionately known as the boy in the bubble, was born with SCID. Carol Ann has been an active and devoted member of the IDF Board of Trustees since 1992. “She has never turned down a request to assist in our mission,” explains IDF President & Founder Marcia Boyle, “She has given testimony to Congress and in her state on a number of issues, ranging from SCID Newborn Screening, Medicare access to IVIG.” Whenever given the opportunity, she works to raise awareness of primary immunodeficiency. IDF has worked for many years on the Medicare IVIG Access Act, which was signed into law by the President on January 10, 2013. This law was the result of advocacy from the whole community, but Carol Ann holds a special place in its success. U.S. Representative Kevin Brady (R-TX) was our lead champion in Congress because of his constituent, Carol Ann. Representative Brady actually thanked her in his remarks on the floor of the U.S. House of Representatives on H.R. 1845, the Medicare IVIG Access Act, December 19, 2012.

IDF Teen Program The period of transition from adolescence to adulthood is a difficult time for most individuals; however, those affected by PI have an even more complicated time. The IDF Teen Program contains many elements and ways to reach teens in the best ways possible. Throughout all the components are opportunities for teens to develop into strong, capable individuals. Training is offered to teen volunteers on the IDF Teen Council. Council members provide support at various IDF programs and interact with other teens on IDF Common Ground, www.idfcommonground.org, the social network exclusively created for teens living with PI where they can connect, share ideas and support one another.

IDF Teen Escape Weekends IDF Teen Escape weekends are a central part of the teen program. Teens, ages 12 – 18, learn from healthcare and life management experts, mentors and peers, and issues they face are tackled and confidence is gained. Meanwhile, parents participate in sessions geared toward their own issues and concerns. In 2013, IDF Teen Escape weekends were held in and Dallas, TX, Needham, MA, and Orlando, FL. In total, 238 people attended the weekends in 2013.

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IDF Volunteer Network to patients with a PI as classified by the World Health IDF has a nationwide network of dedicated volunteers Organization and is intended for undergraduate students committed to increasing awareness of PI in local attending or entering college or a technical training school. communities. Many serve as peer support volunteers to The Varun Bhaskaran (WAS) Scholarship Program is open offer encouragement and understanding to others as they to undergraduate or graduate students living with Wiskott- live with PI. Others provide information on local resources, Aldrich Syndrome (WAS). host educational meetings, advocate for public policy, For the 2012-2013 school year, 55 scholarships were organize fundraising events and support the awarded through the Eric Marder Scholarship Program, IDF Walk for PI. totaling $40,000. The Varun Bhaskaran Scholarship In 2013, peer support volunteers offered personalized Program awarded two scholarships in the amount of encouragement and advice to 263 patients or family $1,000 each. members living with PI in addition to spending thousands of hours supporting others at IDF Friends. Patient Advocacy Program In 2013, IDF’s patient advocacy services helped fill the IDF Plasma Partners Program need for over 5,200 requests from patients and families The IDF Plasma Partners Program creates awareness seeking education, information and assistance. We assist about PI diseases and shows the intertwined relationship patients with PI with a broad array of services including between patients, plasma donors and employees in inquiries related to diagnosis, treatment, health insurance, plasma collection centers throughout the U.S. IDF peer support and literature requests. arranges plasma center visits for patients and family The top three reasons that patients call IDF are for: (1) members where they can gain a better understanding of education, (2) assistance in dealing with the many health the importance of plasma donation. Often they are the first insurance problems that they encounter and (3) assistance patient or family member who lives with PI that the center in locating an immunologist in their area. staff or plasma donors have ever met. By hearing their stories, the donors and employees better understand the Healthcare Professional Outreach lifesaving role they play in the lives of patients through the IDF fosters a supportive environment for groundbreaking plasma collection process. The companies that participate continuing medical education to improve the diagnosis, in the IDF Plasma Partners Program help raise funds and treatment and care of primary immunodeficiency diseases. awareness for IDF. In 2013, our volunteer network helped IDF programs and publications for healthcare professionals spread awareness by distributing thousands of pieces of promote the recognition and management of primary educational materials and spoke to approximately 3,500 immunodeficiency diseases. people during 70 visits to plasma centers. Volunteers also significantly contributed to our advocacy IDF Medical Advisory Committee ISSUE 15 | JUNE 2013 IDF MEDICAL ADVISORY COMMITTEE Rebecca The IDF Medical Advisory Buckley, MD - Chair and fundraising efforts, making them absolutely vital to Duke University School of Medicine, Durham, NC Zuhair Ballas, MD University of Iowa, Iowa City, IA Mark Ballow, MD State University of New IDF’s mission. Overall, thousands of volunteer hours are Committee (MAC) is comprised York, Buffalo, NY R. Michael Blaese, MD Consulting Medical Director IDF, Towson, MD Francisco Bonilla, C MD, l PhD in Boston ic Children’ a s Hospital, l F Boston, o MA on primar cus Mary Ellen Conley, MD y immunodef of prominent immunologists from University of iciencies donated to IDF each year! Tennessee, Memphis, TN Charlotte Cunningham-Rundles, Mt. Sinai Medical MD, PhD Center, New York, NY Alexandra Filipovich, Cincinnati MD Children’s Hospital, Cincinnati, OH throughout the country to support Thomas Fleisher , MD National Institutes of Health, Bethesda, MD IDF appreciates the companies that participate in the Ramsay Fuleihan, MD Children’s Memorial Hospital, Chicago, IL Erwin Gelfand, MD National Chronic Jewish the mission of the IDF through the Medical and Research Denver, CO Center, Vivian Hernandez-Trujillo, IDF Plasma Partners Program and help raise funds and Miami MD Children’s Hospital, Miami, FL Steven Granulomatous Holland, MD National Institutes of Health, Bethesda, MD development of science based Richard Hong, MD Biomosaics, Burlington, VT awareness for IDF. The support, enthusiasm and creativity Howard Lederman, Disease MD, PhD Johns Hopkins Hospital, Baltimore, MD Harry Malech, MD National standards for diagnosis and Institutes of Health, Bethesda, MD Stephen Miles, MD All Seasons of center employees along with the generosity of plasma Allergy, Asthma & Immunology The Woodlands, TX , Luigi Notarangelo, MD Boston Children’s care for individuals with primary Hospital, Boston, MA Hans Ochs, MD Seattle Children’s Hospital, donors has helped this valuable program develop from a Seattle, WA Jordan Orange, MD, PhD Texas Children’s Hospital, Houston, TX Jennifer Puck, MD immunodeficiency diseases. University of California, San Francisco, San Francisco, CA few centers in 2005 to nearly 300 centers nationwide. John Routes, MD AUTHORS Children’s Hospital of Wisconsin, Milwaukee, William WI Jennifer Shearer, MD, PhD W. Leiding, MD Texas Children’s Hospital, Houston, TX Harry E. Richard Stiehm, MD L. Malech, MD UCLA School of Medicine, In 2013, members of the MAC Los Angeles, CA Steven Kathleen Sullivan, MD, M. Holland, MD Children’ PhD s Hospital of In 2013, the centers helped raise $145,377.00. Thank you Philadelphia, Philadelphia, PA T roy Torgerson, MD, PhD Seattle Children’s Hospital, Seattle, WA presented at IDF local Patient Jerry Winkelstein, MD to Biotest, CSL Plasma and Grifols for their participation. Baltimore, MD Education Meetings and and the 2015 National Conference. They IDF Academic Scholarship Programs contributed to IDF publications, including the development IDF awards scholarships to undergraduate students living of the IDF Patient & Family Handbook – 5th Edition and with PI who plan on completing their post-secondary Clinical Focus on Chronic Granulomatous Disease, which education. The Eric Marder Scholarship Program is open were published in 2013. Members played valuable roles

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with health insurance issues that concern our patients. In Medical Meetings and Exhibits addition, members of the MAC help answer questions from IDF strives to increase visibility in the medical community patients, families and healthcare professionals throughout by attending national medical conferences that generally the year. include a booth in the exhibition hall. This allows staff to interact with physicians and other healthcare providers who IDF Nurse Advisory Committee see patients with PI, to discuss educational opportunities The IDF Nurse Advisory Committee (NAC) works to improve and to distribute educational literature and discuss IDF the quality of healthcare and education provided by nurses resources. In 2013 IDF exhibited at American Academy for patients with primary immunodeficiency diseases and to of Allergy, Asthma and Immunology, American College of increase awareness of primary immunodeficiency diseases Allergy, Asthma and Immunology, Immunoglobulin Nursing through professional education and outreach. In 2013, the Society, and Infusion Nurses Society. NAC participate in innovative projects that will help improve the quality of healthcare and education provided by nurses IDF presented scientific posters for: for patients with PI here in the U.S. and internationally. • American Academy of Allergy, Asthma and Immunology NAC members present at patient meetings, contribute to (AAAAI) IDF publications and help answer questions received from • Association of Public Health Laboratories (APHL) patients. Nursing Guidelines for Administration of Immunoglobulin Replacement Therapy is a comprehensive review of standards for administration of Ig therapy, developed by members of the IDF Nurse Advisory Committee. The guidelines were published in the January/February 2013 PI CONNECT issue of The Journal of Infusion Nursing (Indexed in IDF Patient-Powered Research Network, Bringing Together MEDLINE, CINAHL Plus, PubMed). This document is the IDF ePHR and USIDNET first of its kind to offer infusion nurses solid guidelines on the standard of care in Ig administration. In December 2013, IDF was approved for a funding award for PI CONNECT, the new IDF Patient-Powered Research IDF and USIDNET LeBien Visiting Professor Network, from the Patient-Centered Outcomes Research Program Institute (PCORI). PI CONNECT will be part of PCORnet: The IDF and USIDNET LeBien Visiting Professor Program the National Patient-Centered National Clinical Research promotes improved knowledge about the diagnosis and Network. PCORnet aims to advance the shift in clinical treatment of PI. Teaching hospitals throughout North research to patient-centered studies, giving patients “a America may request a leading clinical immunologist to lead seat at the research table.” PCORI envisions PCORnet Grand Rounds or present at other educational activities, to be a secure, national data network that improves the such as bedside rounds or house staff and/or medical speed, efficiency and use of patient-centered comparative residents conferences. This program is available at no cost effectiveness research. to the participating hospital. PI CONNECT connects the information patients enter in their In 2013, visiting professorships were held at Children’s IDF ePHR, the online personal health record for patients Mercy Hospital, Children’s Memorial Hospital, William with PI (formerly known as the IDF eHealthRecord) with Beaumont Hospital, SUNY Downstate Medical Center, the United States Immunodeficiency Network (USIDNET) St. Francis Hospital and Medical Center and Stony Brook patient-consented registry, which contains clinical data on Children’s Hospital. In 2013, 1,040 healthcare professionals several thousand patients with PI. Bringing together this were reached through the Visiting Professor Program. information through PI CONNECT gives researchers a better idea of the patient experience. PI CONNECT along with all networks in PCORnet will form a new national resource that aims to boost the efficiency of health research. PI CONNECT will launch in September 2014.

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IDF ePHR (Previously IDF eHealthRecord) Registry, USIDNET staff attended patient and professional The IDF ePHR is the meetings in 2013. At the end of 2013, USIDNET was electronic personal health instrumental in helping secure funding through PCORI for record specifically developed PI CONNECT. for individuals and families living with PI. At the end of Public Policy and Advocacy 2013, there were 1,089 accounts. To enhance the user experience and overall functionality, IDF ePHR will be redesigned and built on an entirely new system in 2014. Currently the system allows users to safely store all their health information in one place and to easily print and share their information. It can be conveniently accessed from a computer, tablet or smartphone. It can help users keep track of medications, supplements, diagnoses, infections, symptoms, infusions, medical visits and medical history. IDF staff can provide personalized assistance to users if needed. Taking all the helpful features found in the original IDF eHealthRecord, the new IDF ePHR will add convenient tools to help patients live healthier lives. This one central location will offer the latest advancements in health record system management. In 2014, upon registration, IDF ePHR users Through public policy action and advocacy, IDF strives to will have the opportunity to consent into PI CONNECT and USIDNET. be a strong and influential voice on the issues affecting our community and our quality of life. The IDF 2013 Advocacy United States Immunodeficiency Network Day on Capitol Hill was held in conjuncture with the IDF (USIDNET) 2013 National Conference. Inviting all National Conference The United States Immunodeficiency Network (USIDNET) attendees to join us on Capitol Hill in meetings with their is a research consortium established to advance scientific elected officials, we saw almost 300 participants in this research in the field of PI. The work of this consortium is historic event. Our 2013 Advocacy Day was the largest funded by the National Institute of Allergy and Infectious gathering of patients with PI on Capitol Hill ever, with Diseases (NIAID) of the National Institutes of Health (NIH). volunteers visiting 140 offices to meet with their members of The role of USIDNET is to provide resources for work on PI. Congress about issues important to the PI community. Eight These resources include the establishment and expansion separate Federal and State level calls to actions were sent of a Patient Registry, a program for the education and through the IDF Action Alert system generating 3,239 letters mentoring of young investigators, and the maintenance of and calls to Policy Makers. a Repository for cells for use in research. The goal of the Registry is to advance research in this field and to examine Newborn Screening for Severe Combined Immune and improve the quality of life of patients; at present more Deficiency (SCID) than 3,700 patients have joined and medical data entered. SCID was once only identified after serious life-threatening For the mentoring resource, young physicians and fellows infections. It can now be detected using the same dried are given a number opportunities to meet with and learn blood spot that is used for other newborn screening tests. from experienced investigators working in PI, including the In 2010 SCID was added to the federal recommended eImmune Deficiency Foundation yearly intensive course in PI offered in conjunction with the universal screening panel thanks to the work and advocacy Clinical Immunology Society. The Repository, managed by of the IDF community. Now the work remains to get this test Coriell, now contains cell lines from patients with a variety of added to the panel in all 50 states. PI; these are made available to investigators who need these Five new states began screening for SCID in 2013: materials in their research. Minnesota, Ohio, Pennsylvania, Utah and Wyoming. IDF administers USIDNET, overseen by a steering States currently screening for SCID: California, Colorado, committee of the leading clinical immunologists in the U.S. Connecticut, Delaware, Florida, Illinois, Iowa, Maine, To increase awareness of and participation in the Patient Massachusetts, Michigan, Minnesota, Mississippi, New

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Jersey, New York, Ohio, Oregon, Pennsylvania, Rhode item for the IDF 2013 National Conference, and IDF Island, Texas, Utah, Washington, West Virginia, Wisconsin continues to advocate for this important legislation through and Wyoming. Also screening: District of Columbia and action alerts, petitions and work with Congressional offices. Navajo Nation. States currently planning to begin screening IDF also advocates at the state level, submitting testimony in 2014: Arkansas, Missouri, Nebraska, North Dakota, in support of legislation that caps out of pocket costs for Oklahoma, Puerto Rico, South Carolina, Virginia. States medications covered under specialty tiers in six states: where Advisory Committees have approved adding SCID, California, Delaware, Georgia, Maryland, Pennsylvania but have a longer timetable for implementation: Georgia, and Rhode Island. Legislation in Delaware was ultimately Maryland, and North Carolina. successful at capping specialty tier cost sharing at $150 per In 2013, IDF translated into Spanish educational materials medication per month. we developed for parents who learn their baby received Grassroots Advocacy an abnormal screen on the TREC test and for those who Action Alerts have been very successful in mobilizing our receive a positive diagnosis of SCID. community to raise awareness on critical issues. In 2013, IDF utilized the Action Alert system for three state level calls Implementation of the Affordable Care Act to action in response to SCID newborn screening legislation With passage of the Affordable Care Act (healthcare reform and specialty tier legislation. These were instrumental in law), IDF and fellow members of the American Plasma campaigns that saw successful passage of legislation that Users Coalition (A-PLUS) have worked together with the created caps on specialty tier cost sharing and enactment purposes of changing regulations as well as educating of SCID legislation. patients on implementation issues, submitting comments to Federal agencies and updating the IDF Health Insurance IDF filmed two new videos for the Advocacy Channel in Toolkit to help patients find appropriate health insurance 2013–advocacy training for meetings with policymakers and coverage. IDF also continues to monitor implementation SCID newborn screening in California. In 2013, video views on the state level advocating on issues relevant for patients of the Advocacy Channel totaled 3,285, the largest number with PI including opposition to state legislation that would of views in the channel’s history. allow automatic substitution of biosimilars without prior notification. IDF continues to educate patients about Survey Research implementation efforts and opportunities for advocacy on IDF national patient surveys provide crucial insight into the IDF website and at Patient Education Meetings and the the personal impact of PI and help the IDF develop IDF 2013 National Conference. policies for improved diagnosis and treatment. The major health surveys conducted by the government in the U.S., Private Health Insurance the National Health Interview Survey and the National Over the past several years, the health insurance industry Health and Nutrition Examination Survey, do not collect has increasingly been looking at the cost and increased information on PI. usage of Immunoglobulin (Ig) as an issue and has devised As such, in 1995, IDF undertook the first national survey various tactics to decrease Ig treatment costs at the of the state of PI in the U.S. The only national estimates of expense and risk of patients. the characteristics and experiences of patients with PI are Of major concern to the PI community is the increasing from the three National Patient Surveys conducted by IDF trend of insurers shifting costs onto patients through the in 1996, 2002 and again in 2007. use of pharmacy benefit tiers. Some insurance plans place In 2013, we conducted the 4th National Patient Treatment drugs into different tiered categories based on cost, placing Survey. Over 1,600 individuals completed and returned expensive specialty medications like Ig into new specialty their questionnaires. We were also finally able to schedule tiers. These specialty tiers are now commonly requiring the second national survey of physicians and PI. The patients to pay a percentage of the actual cost of these membership of the AAAAI was surveyed through the web drugs – from 20% to 50%– often costing hundreds, even first, and the remaining members were mailed a survey in thousands, of dollars per month for a single medication. August with returns still coming back at the writing of this These practices are placing medically necessary treatments report. out of reach for average Americans. IDF joined the Coalition for Accessible Treatment (CAT) to advocate for a solution The IDF Survey Research Center continues to provide to this problem with introduction of the Patients’ Access to timely data, analysis and expertise on issues of importance Treatments Act, HR 460. HR 460 was the main advocacy to the PI community. During 2013, the Survey Research

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Department has provided active assistance in the following There were several new initiatives. areas: New Logo • IDF 2012 National Patient Survey After 33 years, a new IDF logo was created to present a • IDF 2013 National Treatment Survey & QOL Survey fresh, updated presence on our online vehicles as well as o Over 1,600 returned surveys all our printed materials. The community enthusiastically • Consulting for Primary Immune Deficiency Treatment embraced it. Consortium New Website o WAS, CGD In 2013, to satisfy the demands of our growing community • Consulting for USIDNET and to stay current with the latest web developments • IDF 2013 Physician Survey of PI and mobile technologies, www.primaryimmune.org was • Publication of “Indications of Autoimmunity and Auto- redesigned and audited in 2013. The new design improves Inflammation in X-Linked Agammaglobulinemia” in the usability with a user-friendly navigation system, making Journal of Allergy and Clinical Immunology information easier to find. On the home page, clear calls to • Submission of manuscripts based on IDF survey data action prioritize information, and a full width slider highlights o Pediatricians events and programs. Most importantly, the site is now o Family Practice mobile responsive. More than 30% of users were accessing o Women’s Reproductive Health Survey the site with smartphones and tablets, so it was redesigned o Pulmonology to meet that need. All content on the site was audited, ensuring the most current information is available. New Communications patient life stage sections were created, including sections IDF communications manages the development and for infants and children, teens, young adults, and adults. production of IDF resources, both print and online, All chapters of the new handbook were added as individual providing vital information to patients, families and web pages, expanding the amount of information easily healthcare providers, continually expanding IDF’s accessible on the site. e-presence, and engaging more members of the IDF Reel Stories community. By expanding and engaging more people, IDF Along with the overall website redesigned, the IDF Reel can connect more patients and family members seeking Stories page was revamped to make it easier for users to answers and looking for others who understand—ultimately watch the more than 80 video testimonials detailing patient this will help improve their quality of life. experiences living with PI. The new IDF Reel Stories page, In 2013 IDF communications continued to enlighten and or video hub, displays the videos as easy to view thumbnails inform our community with our newsletter, IDF ADVOCATE, and organizes the videos by the following categories: published three times a year (circulation of 28,000), and a • Patient Stories monthly e-newsletter, Primary Immune Tribune, (reaching over 200). Our new website boasted a 41% increase in • Parent Stories visits over 2012. Our social networking sites, IDF Friends • Type of Disorder and IDF Common Ground, grew to almost 3,900 members. • Treatment Options Add to that, IDF maintained active blogs about news and • Patient Lifestage events in the community as well as the IDF TV hub for all • Diagnosis Story our videos, which have been watched 249,734 times. The IDF Arcade, filled with educational games for children of • Staying Positive all ages, has been visited 1,336 times. IDF took advantage • Healthy Lifestyle of external social media websites to promote programs • Volunteer and initiatives, and our numbers grew in 2013 with 5,179 • Patient Advocacy facebook likes and 730 twitter followers. In September 2013, IDF created an Instagram account gaining 39 followers by the end of the year.

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IDF Patient & Family Handbook for Primary Defenses, NIAID, NIH; and Steven M. Holland, MD, Immunodeficiency Diseases – 5th Edition Laboratory of Clinical Infectious Diseases, NIAID, NIH. In 2013, IDF The publications, introduced at the IDF 2013 National published the new Conference, outlines symptoms and diagnosis, as well as Immune Deficiency Foundation IDF Patient & Family treatment and management of Chronic Granulomatous Patient & Family Handbook for Primary Disease (CGD). Primary SPECIAL Immunodeficiency EDITIon! Handbook Immunodeficiency IDF Presents: Battle of the Bands - IDF PRESEnTS: for Primary Immunodeficiency Diseases – 5th Edition, New Comic Book Diseases a trusted resource for In 2013 the new IDF Comic Book was patients, families and published. It complements IDF’s popular healthcare providers. teen-friendly video In Tune with Your This edition was Immune System. This comic book developed by 44 version compares the human immune contributors, including system to a rock band. leading immunologists, National Primary Immunodeficiency healthcare providers, JIm oozE and life management Awareness Month and World PI Week munno and THE InVADERS and THE ImmunoS

experts. Editors were R. In April 2013, IDF promoted National HEAD To HEAD AT YouR BoDY AuDIToRIum

Michael Blaese, MD, Primary Immunodeficiency Awareness BRougHT To You BY THE IDF Medical Director; Month and World PI Week (April 22- Francisco A. Bonilla, MD, PhD, Boston Children’s Hospital; 29). We provided the community with talking points on PI, E. Richard Stiehm, MD, University of California Los Angeles; FAQ’s, IDF Information Sheet. We encouraged patients and M. Elizabeth Younger, CPNP, PhD, Johns Hopkins. and family members to host their own awareness and Introduced at the IDF 2013 National Conference, this fundraising events, and we promoted Awareness Month edition features new chapters and updated information and World PI Week through our all of our communications, about diagnosis, treatment and life management. It including our newsletter, e-newsletter, website, IDF Friends, expands the content of the Handbook by another 50% IDF Common Ground, facebook and twitter. During to 33 chapters with descriptions of nearly 100 different Awareness Month press release, IDF secured local media types of PI. The Handbook includes an overview of the opportunities to promote PI awareness and the resources immune system and PI to provide a basic description of available from IDF. the components of the immune system and how its defects lead to disease. There are 18 chapters covering the specific details of many types of individual types of PI themselves. There are additional chapters with general information relevant to the inheritance, laboratory diagnosis, general IDF Walk for Primary Immunodeficiency 2013 care and specific medical treatments as well as chapters on In 2013, IDF launched the first Walk for Primary life management issues for patients of different ages. New Immunodeficiency in Chicago, Los Angeles and chapters were added on subjects such as autoimmunity, Philadelphia. Overall, nearly 1,300 walkers participated, allergies and infections-topics of critical interest to many in and more than $430,000 was raised from walkers and our community. There are also new chapters on stem cell sponsors. IDF Walk for Primary Immunodeficiency supports and gene therapy, innate immune defects and an enlarged vital IDF programs and services, and increases awareness section on phagocytic cell disorders within the chronic about primary immunodeficiency across the country. granulomatous disease chapter. Walkers showed incredible enthusiasm at the Greater Clinical Focus on Primary Immunodeficiencies: Chronic Philadelphia Walk, held Sunday, September 29 at Penn’s Granulomatous Disease Landing. Teams of walkers arrived in customized team In 2013, IDF published Clinical Focus Chronic t-shirts—some even wore fun hats and socks. Walkers Granulomatous Disease, authored by Authored by Jennifer registered online prior to the event and received their own W. Leiding, MD University of South Florida, Department online fundraising page to create teams, add members of Pediatrics, Division of Allergy, Immunology, and and easily spread the word and raise funds. There were Rheumatology; Harry Malech, MD, Laboratories of Host teams of coworkers, teams of classmates—patients and

12 Annual Report 2013

2013 Year in Review continued

families living with primary and Nick Cacucciolo did an immunodeficiency really amazing job! reached out and rallied those IDF wrapped up in the closest to them. Windy City for the Greater In Philadelphia, more than Chicago Walk on Sunday, 500 walkers helped raise October 27 at Cantigny over $75,000. The Greater Park in Wheaton, IL. The Philadelphia Walk committee, temperatures were a little including Chuck Lage, Terry cooler, but the crowds were Halper, Judy Kozulak and April just as motivated. There Sica, were dedicated to making were more than 525 Chicago the first walk go smoothly, and it definitely did! walkers, and over $90,000 was raised. There were many On Saturday, October 19, IDF traveled to the West Coast for who made Greater Chicago walk a success including chair the Greater Los Angeles Walk at El Dorado East Regional Amy Walsh, the Berryhill Family and the many members of Park in Long Beach. Like Philadelphia, the teams showed the walk committee (too many to name). up in spirited gear with lots of energy. Special guest James In addition to the three national sites, Biotest hosted a local Worthy, a former Los Angeles Laker and NBA Hall of Famer, walk at their headquarters in Boca Raton, FL and many attended to show his support and pump up the crowd. participated in the Nationwide Virtual Walk, which ran until There were over 250 LA walkers and almost $65,000 was December 31, 2013. raised. Greater Los Angeles co-chairs Rich Low, and Kristy

13 Leadership

IDF Board of Trustees

John Seymour, PhD, LMFT - Chair Barbara Ballard Douglas R. Bell John Boyle, PhD Marcia Boyle Joel Buckberg - Secretary Rebecca H. Buckley, MD - Medical Advisory Committee Chair Carol Ann Demaret Steve Fietek - Vice Chair Terry Halper Mary Hurley Seth Kaufman Chuck Lage Robert LeBien Richard Low, Jr. Front row, from left: Mary Hurley; Carol Ann Demaret; Marcia Boyle; Brian Rath Barbara Ballard; Rebecca H. Buckley, MD, Medical Advisory Committee John Smith Chair; Amy Walsh. Back row: John Seymour, PhD, LMFT, Chair; Steve Amy Walsh Fietek, Vice Chair; Terry Halper; Richard Low, Jr.; John Smith; Chuck Lage; John Boyle, PhD; Robert LeBien; Joel Buckberg, Secretary. Not pictured: Douglas R. Bell; Seth Kaufman; and Brian Rath.

IDF Staff Management Team

Marcia Boyle Lawrence A. LaMotte President & Founder Vice President, Public Policy Katherine Antilla Julie Nzambi Vice President, Education and Volunteers Human Resources & Office Manager Christine Belser Sarah Rose Vice President, Programs and Communications Director of Finance

14 Annual Report 2013

Leadership continued

IDF Medical Advisory Committee

Rebecca H. Buckley, MD – Chair Harry L. Malech, MD Duke University School of Medicine National Institutes of Health Zuhair Ballas, MD Stephen Miles, MD University of Iowa All Seasons Allergy, Asthma & Immunology Mark Ballow, MD Luigi Notarangelo, MD State University of New York Boston Children’s Hospital R. Michael Blaese, MD Hans D. Ochs, MD Seattle Children’s Hospital Francisco Bonilla, MD, PhD Boston Children’s Hospital Jordan Orange, MD, PhD Texas Children’s Hospital Fabio Candotti, MD National Institutes of Health Jennifer M. Puck, MD University of California, San Francisco Mary Ellen Conley, MD University of Tennessee Sergio D. Rosenzweig, MD, PhD National Institutes of Health Charlotte Cunningham-Rundles, MD, PhD Mt. Sinai Medical Center John Routes, MD Children’s Hospital of Wisconsin Alexandra H. Filipovich, MD Cincinnati Children’s Hospital William T. Shearer, MD, PhD Texas Children’s Hospital Thomas Fleisher, MD National Institutes of Health E. Richard Stiehm, MD UCLA School of Medicine Lisa Forbes, MD Texas Children’s Hospital Kathleen Sullivan, MD, PhD Children’s Hospital of Philadelphia Ramsay Fuleihan, MD Ann & Robert H. Lurie Children’s Hospital of Chicago Troy Torgerson, MD, PhD Seattle Children’s Hospital Erwin Gelfand, MD National Jewish Medical and Research Center James Verbsky, MD, PhD Medical College of Wisconsin Vivian Hernandez-Trujillo, MD Miami Children’s Hospital Jerry Winkelstein, MD Loris Aro, RN Steven Holland, MD Sussman & Associates Immunology National Institutes of Health Howard M. Lederman MD, PhD Johns Hopkins

IDF Nurse Advisory Committee

William Blouin, MSN, ARNP, CPNP Terry Raburn, RN, BSN, ACRN Miami Children’s Hospital Texas Children’s Hospital Maggi Dodds, RN, MS, CPNP Linda Anastasia Schneider BSN, RN, CPN Baylor College of Medicine/Texas Children’s Hospital The Children’s Hospital of Philadelphia Carla Duff, CPNP, MSN, CCRP – Vice Chair Debra Sedlak, CPNP University of South Florida Duke University Medical Center Kristin Epland, FNP-C Gretchen Vaughn, RN, MSN, CPNP Midwest Immunology Clinic All Children’s Hospital Debbie Manning, RN, BSN M. Elizabeth M. Younger CRNP, PhD – Chair The Children’s Hospital of Philadelphia Johns Hopkins University School of Medicine Kathleen McGregor, MN/MPH Seattle Children’s Hospital

15 2013 IDF Sponsors

Each year leading companies in the healthcare industry provide financial support to IDF. Without such funding, IDF would be unable to provide our community with many of the services, resources and programs that contribute to the improved quality of life for the individuals and families of those living with primary immunodeficiency diseases (PI).

IDF Core Service Sponsors are dedicated partners that support IDF at the highest level. They help fund direct services that offer peer support, help locate a specialist and offer information on dealing with health insurance issues. Local IDF patient meetings are offered throughout the country because of their generosity. They support medical and scientific programs like our Consulting Immunologist Program and the IDF & USIDNET LeBien Visiting Professor Program, as well as IDF exhibits at medical meetings.

IDF does not charge for membership, so funding from sponsors allows IDF to provide services and publications free of charge to our community.

Our sponsors understand the chronic nature of PI. Because the diseases never go away, patients and their families will continually rely on IDF, and we extend sincere appreciation to these companies for their continual support to make this possible.

IDF Core Service Leaders Baxter International Inc. CSL Behring Grifols

IDF Core Service Supporters Biotest Pharmaceuticals lgG America / ASD Healthcare / US Bioservices Octapharma

IDF Sustaining Contributors Kedrion Biopharma Vidara Therapeutics Walgreens – IG Therapy Program

IDF Sponsors Accredo Healthcare BioFusion BioRx BioScrip Specialty Pharmacy Coram Healthcare CVS Caremark Orsini Healthcare RMS Medical Products

16 Annual Report 2013

2013 Revenue

-0.01%

3.03%

7.04% Contributions and Grants

8.46% Government Grants and Contract Revenue

Investment Income

81.47% Other Income

Special Events

2013 Expenses

5.97%

Medical and Scientific

9.50% 17.73% Services to Patients and Families

Administration and Finance

Marketing and Fundraising

66.80%

17 IMMUNE DEFICIENCY FOUNDATION

Consolidated Statement of Activities and Changes in Net Assets For the Year Ended December 31, 2013

Temporarily Permanently Unrestricted Restricted Restricted Total

PUCLIC SUPPORT AND REVENUE:

Public support:

Contributions and grants $ 4,234,335 $1,280,325 $7,000 $ 521,660

Net assets released from restrictions 1,445,410 (1,445,410) - 0 - - 0 -

Total public support 5,679,745 (165,085) 7,000 5,521,660

Government grants and other contract revenues 573,524 - 0 - - 0 - 573,524

Revenue:

Investment income 204,782 - 0 - 721 205,503

Other income (780) - 0 - - 0 - (780)

Special events 477,269 - 0 - - 0 - 477,269

Total revenue 681,271 - 0 - 721 681,992

Total public support and revenue 6,934,540 7,000 7,721 6,777,176

EXPENSES:

Program services:

Medical and scientific 1,091,753 - 0 - - 0 - 1,091,753

Services to patients and families 4,112,536 - 0 - - 0 - 4,112,536

5,204,289 - 0 - - 0 - 5,204,289

Supporting services:

Administration and finance 585,042 - 0 - - 0 - 585,042

Marketing and fundraising 367,399 - 0 - - 0 - 367,399

952,441 - 0 - - 0 - 952,441

Total expenses 6,156,730 - 0 - - 0 - 6,156,730

CHANGE IN NET ASSETS 777,810 (165,085) 7,721 620,446

NET ASSEST, BEGINNING OF YEAR 5,252,503 1,695,390 33,691 6,981,584

NET ASSEST, END OF YEAR $ 6,030,313 $ 1,530,305 $ 41,412 $ 7,602,030

18 Annual Report 2013

Consolidated Statement of Functional Expenses For the Year Ended December 31, 2013

PROGRAM SERVICES SUPPORTING SERVICES Medical Services to Administration Marketing and Patients and and Grand Scientific and Families Total Finance Fundraising Total Total

Salaries $321,267 $1,085,952 $1,407,219 $233,063 $135,142 $368,205 $1,775,424

Employee benefits 35,745 117,801 153,546 44,129 11,151 55,280 208,826

Payroll taxes, etc. 28,908 92,446 121,354 16,661 12,868 29,529 150,883

385,920 1,296,199 1,682,119 293,853 159,161 453,014 2,135,133

Professional fees 385,528 836,740 1,222,268 145,711 78,973 224,684 1,446,952

Training, conference, conventions, & meetings 54,249 1,218,458 1,272,707 2,574 37,199 39,773 1,312,480

Travel 60,112 119,402 179,514 10,797 16,494 27,291 206,805

Awards and grants 44,449 41,700 86,149 10,000 - 0 - 10,000 96,149

Occupancy 22,956 106,667 129,623 24,321 9,057 33,378 163,001

Insurance 2,005 9,319 11,324 2,219 1,240 3,459 14,783

Printing and publications 53,807 189,969 243,776 6,708 21,354 28,062 271,838

Telephone 6,917 28,265 35,182 11,383 3,990 15,373 50,555

Postage and shipping 22,899 82,990 105,889 5,275 10,209 15,484 121,373

Supplies 13,144 18,697 31,841 41,945 4,716 46,661 78,502

Rental and maintenance of equipment 7,643 29,804 37,447 12,931 4,012 16,943 54,390

Miscellaneous - 0 - 20 20 2,142 3,150 5,292 5,312

Advertising 200 4,826 5,026 - 0 - 7,654 7,654 12,680

Dues and subscriptions 717 41 758 1,756 583 2,339 3,097

1,060,546 3,983,097 5,043,643 571,615 357,792 929,407 5,973,050

Depreciation and amortization 31,207 129,439 160,646 13,427 9,607 23,034 183,680

$1,091,753 $4,112,536 $5,204,289 $585,042 $367,399 $952,441 $6,156,730

19 Donors

$500,000 and above Susan Rosenthal and Michael Richard Hong, MD Baxter International, Inc. Hershfield Family Charitable Fund Independent Portfolio Consultants CSL Behring Rebecca and Lawrence Stern Gordon Kanofsky Grifols Family Foundation Cecelia and Stanley Lane, MD National Institutes of Health The William Brown Foundation, Inc. Susan and Stephan Levy Wireless Zone Foundation for Giving, Inc. Christina Lingen and Kenneth Reinowski $100,000-$499,999 Joel Lipschultz Biotest Pharmaceuticals Corporation $2,500-$4,999 Erin and Richard Low IgG America / ASD Healthcare Allergy & Asthma Specialists, PC Janine Marcus / US Bioservices Anne Marder and Wally Bishop Noelle and Blaine Marder Octapharma Marcia and John Boyle Mark Christopher Auto Center Vidara Therapeutics, Inc. Christopher’s Towing, Inc. Mark Christopher Properties, LLC The Columbia Foundation Nancy and Sidney Martin $50,000-$99,999 Judith Dean Navistar, Inc. Kedrion Biopharma ENA Healthcare Comunications Linda and William Olson Teresa and Jeffery Puretz Memorial Middle School Paradise Auto & Truck Center Sigma-Tau Pharmaceuticals Quinsigamond Community College Pence Brothers Siding, Inc. Walgreens - IG Therapy Program Kathleen Sullivan and Bob D’Zuro Plasmacare, Inc. D. Shawn Wilson PRECO, Inc. $25,000-$49,999 Raymond James Charitable Accredo $1,000-$2,499 Endowment Fund American Legion Child Welfare Foundation Suzanne and Jim Almas Barbara and John Routes Axelacare America’s Compounding Center Cora Scarlet BioRx Koryn and Curtis Anderson Doris and Thomas Schleigh, Jr. BioScrip Arnold S. Penner Foundation Harry Schroeder, MD Coram Specialty Infusion Services Barn Hoops Foundation Patricia and Raymond Smerge Express Scripts Catherine and Mike Barrett STARCON Larry Berkelhammer and Irma Botvin Eilean and Mark Steiner $10,000-$24,999 Lisa Betts Sugar House Casino Third Mind, Inc. Biofusion Tara and John Boyle Wellington Tichenor, MD Kimberly and Nick Calamos Diane and Joel Buckberg Vehicle Accessory Center Clinical Immunology Society Rebecca Buckley, MD Kim Vickers CVS Caremark Corporation Annette and Nicola Cacucciolo Garrett Wilson The Guetz Foundation Lisa and Mark Camp Ramie Zomisky The Hutsell Family Fund Laura and William Carroll Leerink Swann, LLC Lisa and Peter Cella Lisa and Douglas Goldman Fund Centurion Automotive & Powersports, Inc. $500-$999 MountainView Chevrolet Community Health Charities of Nevada Sheryl Allen Orsini Healthcare Nancy Cross Ally Financial Perkin Elmer Customized Custodial Services, Inc. AlphaNet, Inc. Kristen and Brian Rath Delta Marketing Dynamics Steve Anderson RMS Debbie Duhe and David Martinez Katherine and Daniel Antilla Wiskott-Aldrich Foundation Maria Elias Balloon Affair Enterprise Holdings Foundation William Barr $5,000-$9,999 The Feuerring Foundation Bentley Field Hockey Ramya and Deepak Bhaskaran Kristy and Nick Cacucciolo John Geraghty Blood Centers of America, Inc. Haemonetics Linda Graziano Bowling Fundraiser for IDF SCID Initiative Beverly and Robert Hanson H&B Global Industries Kelli Bryan Jim Kinnear Jane Haylor and Melvin Berger, MD, PhD Dawn and Robert Burns Louis and Virginia Clemente Foundation, Inc. William Hindin Robin Campos Pfizer, Inc. Mary Elizabeth and Michael Holland, MD

20 Annual Report 2013

$500-$999 (cont.) Elizabeth and Greg Raetz Betsy and Michael Bald Laura Guenther Irene and Rob Carman Mary and Ranjit Rath Lucy and Herbert Ballien Carolyn Guin Central Pennsylvania Donna and Dennis Ready Molly and Mark Ballow, MD Elizabeth and Evan Hand Surgical Associates Jennifer and Marc Richmond Marcellus Barnes Gillian and David Hanus David Church Shelley and Jim Romeo Shawna and Larry Barttelt Harbor Truck Bodies Computershare Cindy and Michael Ross Victoria and B. Randolph Mary and Lawrence Hennessey Culver’s Frozen Custard Marianne Schill Bateman Ric Hersh Butterburgers Judith and Frederick Schott Danielle and Bryan Bauer Carol Higgins June and James Curley Yvette Schreiber Christine and Chuck Belser Larry Holstein Katie Davidoski Teri Schrock Aleece Bentzinger Gay and H. Bradley Howett Dana De Vivo Joan and Greg Schwarz Zina and Randy Berryhill Ann and Gerry Huot Diamond Hills Auto Group Alan Shaw Lisa and James Betsworth Mary and Alan Hurley Russell Dodd Tracy Shaw Biomat USA IBM Employee Services Center Elwood School #203 Tiffany Sims and Randal Judith Shor Bogdan IBPN Marketing Research Student Council Ketchum, Jr. Lisa and Peter Mayorga Bureau, Inc. Employees Charity Organization Allan Smith Susan Bonds Jill and Jeff Jones of Northrup Grumman Patricia Spolar Stephanie and Edward Booker JSCS Limited Partnership Lauren Evans St. Vincent De Paul Parrish Roger and Colleen Brock Rhonda and John Karas Ken Fredrickson Judith and E. Richard Jill Brody and Ross Lambert Veronica and Brian Kaspszak Ramsay Fuleihan, MD Stiehm, MD Laurie and Kenneth Brovold Debra and Robert Kenney Michael Fuller Kim Sullivan Quynh Budzynski Carol and Ray Kerstetter Maria Gary Kris Surratt Robert Carman Michael Kinzly Chris Greeno Tristan Svare Donald Coffman Ian Laperriere Megan Guenther Mary Szela Barbara and Scott Coker Largo Concrete, Inc. Gene-a Salvati Lynne and Rick Szott Martha Coleman Richard Leather Sharon and Robert Halva TEL Foundation Brian Conrad Sharol Holstein Harper Collins Publishers Phyllis and Arthur Taub Kathy Courtright James Lewandowski HTW Auto Center Sara Thompson Kelly Covarrubias Mary Litwiller Heather and Chris Huot Tara and John Tisch Martha and John Cowan Krista Bock Mangan and Norma Jaime and Gilbert Uranga Josette Tracy Jennifer Craycraft James Mangan Teresa and William Jednorski Trinity Emergency Christina Criona Maritz Dealer Solutions Ann Kloostra Medical Service Holly and Ken Crombie Sherry Markham Ai Lan and Roger Kobayashi, MD Laura and Jeff Uecker CustomInk Frances Massa Triantafil Korologos United Way of Greater Christine and Christopher MassMutual Financial Group Koros, Inc. Philadelphia and SNJ D’Amico Howard McCreesh Kory Kvist Universal Floor & Wall The David and Eleanore Rukin MD Logistics, Inc. Janet and Charles Larsen Systems, Inc. Philanthropic Foundation Melody and Mark Medellin Mike Marks US Best Carol Davis Sandra and Aubrey Miles, Jr. Myra and Michael Marranzino Irene and Lawrence Walsh Carol Ann Demaret Tamara Miller Gene Martinka Jennifer Weyman-Chartoff Dickinson Janitorial Jill Moret Nicole and Lee Mauk and Robert Chartoff Supplies, Inc. Gail and Sydney Nelson Robert McNeil Marilyn and Jerry Lynn Diehl Deborah and Peter O’Malley Josette and John Miller Winkelstein, MD Kim DiGangi Our Mother of Good Counsel Sandra Monroe Jay Wolfe Daniel Durling Council of Catholic Women Debra Morelock Julie and Peter Wyss Anne Reddy and Shawn Everts Jane and Lawrence Palumbo Evon Mucker-Davis Graig Fantuzzi Ruth and Rodney Parry Andrew Murphy $250-$499 Tom Fitzgerald Amy Patterson Kenneth and Esther Noel Thayer and Chip Adams Chris Fitzmaurice Sara and Jeremy Penn Fern Norris American Agricultural Dayna and Brian Fladhammer Sue and Richard Petrelli Ocean View Presbyterian Insurance Company Victoria and Robert Foster William Phillips Church Sewing Circle American Express Rita and Carl Friebel, Jr. Pivot Design Matthew Parlow Charitable Fund Beatriz Gallegos Ellen and Robert Pratt Carrie Dolan and Mark Pellegrino Ameristar Casinos, Inc. Ignacio Gonzalez Nicholas Preddice Daniel Plourde, Jr. Kristin and William Archibald Barbara and Peter Goodman Linda and Elliott Puretz Poretta & Orr, Inc. Chris Athon Susan and David Gough Ellen Rabb Printing Solutions Atlantic Sportswear, Inc. Kathleen Grabowski Norma Ramsey

21 IMMUNE DEFICIENCY FOUNDATION

$250-$499 (cont.) John Adams Lindy Berggreen Diann and John Buss Anne and Martin Randisi Kathleen Addison Cynthia and Gregory Berlacher Jarrett Byrnes Trina and John Restivo Nell and Tom Addkison Michael Bernhardt Nancy Byrnes Rev3 Triathlon AdvancedLith Printing & Bindery Kelly Bertolazzi Linda Bywater Tara and Jeff Reynolds Lydia and William Akerman Dorothy and Tristram Bethea Team Caeden Debra and Gregory Rich Marisol Alanis-Gonzalez Bethlehem Baptist Church Cafe Press G. Wendell Richmond Norma and Dixon Aldridge Allen Bingen Andrea Caggiano RMK Consulting, Inc. Sylvi Alexander Megan Birch Linda Caldwell Barbara and George Roberts All County Exteriors Linda Bishop and Mary Anne Cangemi Jacqueline Robinson Heather and Larry Allen Gilman Schultz III Karen Capozzi Rosa Maria’s Sharon and Ron Allen Julie and Todd Black Jerry Carbonari Daniel Ross Esther Allman Paul Black Susan and Fernando Cardoza Susan Hickman Nanette and Carlos Almeida Jerold Blutman Evelyn and Anthony Carfagno Joseph Russo Joann and Peter Almen Angelique Bly John Carlisle Klaus Schaefer Molly and David Altobelli BNY Mellon Catherine and Gary Carpenter Jeanette Seil Kathy and Steve Altobelli Christopher Bobbitt Donna and Michael Carr Randall Sexton Altria Group, Inc. Sheila and Krista Bock Beverly and John Carroll Anjmun Sharma Terry Altschuler Anne and Warren Boley Anna Carson William T Shearer, MD Jack Alvino David Bond Janeese Carter Roberta Sickles David Amerson Joanne Bonner Reid Carter Simple IT Care John Amidei Jennifer Bono Geraldine Cathcart Amanda Skoskiewicz Thomas Andersen Julia and Thomas Bontrager Cedar Roof Company Marissa and Michael Smith Chris Anderson Linda and Gary Bosko Nicholas Cedrone Marsha and Keith Smith Jerald Anderson Kathleen and Daniel Bosley Jorgelina Chaij Mary Ann South, MD Jonathan Anderson Samuel Botsford Yuka and Joshua Chait Debra and Joe Stefanelli Shannon Anderson James Boyle Karen Chapin Lisa and Kenneth Steffes Susan Anderson V.P. Boyle Janice Charlton Terri and Michael Sterner Architectural Hardware, Inc. Janet Bradfield Thom Chawluk Lori and Michael Stevenson Donna and Doug Arnwine Brainstorm Creative, Inc. Thomas Chawluk Martin Suss Janina Arnwine Michael Braniger Maria Checton Nadina Szew Carole and Estelle Art Winnie and Craig Bratlien Chelsea Tavern Pam and Bobby Taub James Art Susan Brauns Karen Chester Carmen Thompson Louie Aubert Steve Brehmer Kathleen and Edmund Chesto Joanna and Christopher Tierno Laurie and Michael Austin Kathleen and Roy Bremner Chovan Associates Town of Chelmsford Alicia and Charles Auzqui Alyssa Brennan Christina and Gordon True IA Manny Ayala Linda Myers Churchward United Refrigeration & Anne and Robert Bachman Richard Brennan Jessica Ciralsky Air Conditioning Baird Foundation, Inc. Clarence Bringe City Wide Maintenance United Stationers John Baldwin Bristol Myers Squibb Co of Cleveland Charitable Trust Colleen and Thomas Banks Emilee Brock Connie and David Claes Adrian Varas Sarah Barnard Patsy and Michael Broge Candice and Stan Clark, Jr. Margaret Vaughn Susan and Brian Barnes Steve Broll Susan Clark Victor Villarreal Linda and Brian Barrett Lynda Brotemarkle The Clarke Family Marilyn von KleinSmid- Susan Bassett Kathleen and Richard Brown Amy Clarke Randolph Damon Bates Skeeter Buck Elizabeth Clarke Amy and Shawn Walsh Sharon Batkin Elizabeth Buckman Mary Beth Clayton Willow Group LTD Karen and Lars Bauerle Steve Buford Clear Creek FFA Leonard Wislow Michelle Baumgartner Ann Bullinger Cheryl Cleveland Andrea Witlin and Denise Becker Marietta and Allan Bullington Betty and Joseph Codispoti Edward Dippolito Jonathan Becker, MD Mary Burkey Tania and Sydney Coker Cynthia and Joseph Zuraw Jasper Bede Mary and Christophe Bursk Jackie Cole Renee and Mark Bekier Pam Buschbacher Nikki Collins $100-$249 Carolynn Belgiorno Barbara and Serge Sadoques Tim Collins Anonymous (3) Bentanu, LLC Alan Bushbaum Barb and Jim Colony A Quality Facility Services Bentley Football Families Mike Busia Kristin Conley Karen Berger Annette and Paul Buss Lori Coons

22 Annual Report 2013

$100-$249 (cont.) Lisa and Stephen DiOrio Thad Florence Donna and David Golder Alison Costello Kathleen and Wayne Dircks Tara and Matthew Flotta Jonathan Goldsmith Michael Costelloe Kathleen DiStefano Laura Floyd Gabriel Gonzalez Jauna Cothran DNB First Joe Fonck Mary Lee and Roy Gourley Anisa Cott Irma Dodd McNelia Linh Fong Tanya Grannemann Russell Craig Mari Donato FOP Lodge 156, Inc. Melissa Grazioso Christal Crain Patti Donnelly D. Ann Ford and Christina Purdy Linda Green, MD Karen Craven Anish Doshi Cheryl Forlines Brenda Greenfield Andrew Crawford Patricia and Robby Doss Carole Forno, RN Carolyn Grever Lisa and Michael Crawford David Doyen Lori and Jason Fortier Virginia Griffith Ellen Craycraft-Daugherty Alicia Doyle Barbara Foxman Barbara Grisham Danielle Criona Nancy and William Doyle Greg Balestrero and Henry Guenther April Croissant Eric Drap Frances Higgins Jean Guenther June Croissant Dual Exchange Land Co, Inc Julie Francis Sarah Guerra Cindy Crosbie Kathleen and Russell Dumas Frankie’s Used Auto Parts Nancy and Thomas Guetz Joan Csaposs Charles Durkin Liane Fraser and Elizabeth Kraut Richard J. Guillot MD, FAAAAI Carmen and Ann Cummins Denise Dvorak Donna and Michael Frecker Madhu and Adi Gundlapalli Ed Curran Beth Dwyer Kay and Ron Freeman Jane and Bill Hadley D-A Specialty Co, Inc. Media Dynamics Melissa and Adam Freestone Marcia and Terrance Haise Ryan Daly E&G Drywall and Supply Kathleen Friday and Theresa and Terry Halper The Daniels Family Kyzier Easley Alexander Biele Linda and Burton Halpert Jeannine Daniels Linda and Steve Eatherton Dominique Frio Paul Halsch Nicholas DAnna Jete and Phyllis Edmisson, Jr. Elizabeth Fritz Matt Hambridge Charles Darwall Ruth and John Egan Timothy Frye Caroline Hamilton Lorraine and William Davidson Jennifer Eichinger Jeanice and Jason Fuchs Colleen Hammond Marcy and William Davidson Paula Elendt Mozelle and David Funderburk Wanda Hancox Amanda Davis and Shirley and Kenneth Elmore Kay Gaffud Hank’s Refrigeration, Inc. Richard Minervini Emerald Asset Management, Inc Michael Gaffud Bryan Hansen Kelsey Davis Kristin Epland Debbie Galloway Cheryl Hanson Linda Davis Victoria Epperly Patricia and Edward Ganley Shannon and Michelle Hanson Edgar Dawson Carol and James Max Ernst Jennifer and Larry Gardner Karen and Christopher Hardnick Gayle Dax-Conroy Mary and Charles Ernst The Garloch Family E. Sylvia and John Harrison and Jan Conroy Patrician and Brian Evans Michele and Ben Garren Terry Harville, MD M. Teresa De La Morena Exclusive Glass Tinting Shawn Garrett William Hassett Michael DeAddio Elaine Fabian Kathy Garrison Thomas M. Hauser, MD, PhD Erin Deal Maria Elena Falcon Lois and Richard Garwin Phillip Healey Jerry DeCicco Natalie Fanticola Tabatha Garwin Judith Healy Joanne Decosta Douglas Fantuzzi L. Ben Gaudin II Helen Heck Diane and John DeGregorio Gayle Fantuzzi Lewis Gedansky Elizabeth Heimburger Melinda Del Giudice Ann Marie Farner Juliann Geijer Janice Heinssen Sharon and Louis Delaby Constance Farrar Judy Geletko Henrik Hellem Catherine Delaney Sandra Farrell GEM Consulting Mel Hellem Kitty Delany Kim and Art Farren Alison Gemmill Jaclyn and Adam Heller Ernest DelDuchetto Chuck Feddermann Gail Genthner K. Heller DaNeil Deller Barbara and John Felicciardi Ryan George Neil Heller Anne and Thaya Deputy Mark Felici Elaine Germont-Gavette Meredith Lee Heltzer Kim Derenzis Dawn Ferron and Richard Gavette MaryAnn Hendowski Elizabeth Desimone Earl Fetzer Linda Gersch Marian and Maynard Henjum Nanci and J. Deverin Russell and Chere Fidler Lori and Giuseppe Giampaolo Denise and Marty Henley Tom Devine Jacquie Field Genevieve Gibbs Patty Herbert Alice and Steve Diana Neil Finegold Karin Gilford Carole and Robert Herm Kathleen Dibble Dave Finley Jan Gilmer Heladia Hernandez Karen Diehl Tammy Finnigan Marla and David Gilmore Brandi Higgins Robert Diehl Molly Finucane Anita Gleistein Cheryl and James Higgins Donna and Richard Dieterle Tammy Flannery Joni Gliwa Nancy and Raymond Hill Laura Dillenberger Michael Aaron Flicker Breda Goddard Jaye Hilton

23 IMMUNE DEFICIENCY FOUNDATION

$100-$249 (cont.) Jean and Michael Kaliner, MD Denise and Michael Leiden Paige McCrensky Ruth and Edsel Hiner Venkata Kalisetty Jason Lennon Pam and Brian McCullough Jennifer Hintz Denise Kalman Denise and Robert Lenz Jeanne McDonald Edward Hoey, RN Karen Kasik Meyer Levin Michael McGee Gerald Hoffstetter Beth Katz Laura and Charles Librizzi Colleen McGuire Jill and Earnie Hogan Elizabeth Kauffman Sandra Librizzi Lisa McHale Barry Hoggard and Janet Kaye Eric Smith Dan McHugh James Wagner Laine Keahey David Livingston Virginia McHugh-Kurtz Gail and Craig Hollenback Renee and Frederick Keator Dorothy and Ralph Locke Janet and Richard McKellar Martha Holman and Russell Keck Elizabeth Loftus Catharine McKenna Raymond Guzy Carol Kelly Jodi and Gregory Lombardi Nicole McManus Jackie Holt Kurt Kelso Shari and David Lombardi Nancy and Michael McNulty Greg Honiotes Cynthia and Kary Kemble Sandra Loo Carmen Medina Steven Honma Melba and Don Kemble Douglas Loock Rajan Mehta, MD Joe Horton Steve Kemble Ruth Lotsof and Daniel Komarek Linda Meil Sarah M. Horton Rebecca Kemp Diane and Francis Lubarski Agatha Melamed Emily Hovermale KenCrest Services Ida and Bruce Lubich Michael Mele Joshua Howard Kathleen and Michael Kennerley Lisa and Kevin Lucas Mohan Menon Rolande Howard Faith and William Kenney Julie Lundquist and Don Mensching Megghan Hoyt Barry Kesselman Branko Kosovic Helen and Paul Meosky HRH Repair, LLC KidsCorner Pediatrics Ray Lyons Nai and Scott Merilatt Elizabeth and Steve McCrea Kirk Kinberg M&M Electrical Merkaba Massage Amy and Mark Huftel Madeleine Kineavy Kathleen Macartney Donna Marie Mezsaros, PhD Edward Hughes Katherine King Walter Magee and Gerald Meszaros Tami Hugunin Ruth King Leonard Mahler Patricia and Robert Mette David and Kathie Huhtala Adele Kirkpatrick Christine and Kenneth Mahurin Katherine Metz, RN Dale Hulst Charles Kirkpatrick Sallie Makar Suzanne and Charles Meyer Bob Humer KitchenTech, Inc. Kerri Maloney Pamela Meyers Pam Hunsinger Linda Kline Ann Manaktala Antje Michel and Martin Vey Kristy Hunston Brenda and Russell Klouzek Allyson and Nicholas Mancini III Katie and William Milano Jan and Charles Huot KMMG, LLC Angelina Mangano Geri and Garry Miller Claudia Huot and Joseph Taylor Phil Knell Michelle Manke Gregory and Joyce Miller Jacklyn and Paul Huot Amy Knoebel Sandy Marczewski Jennifer Miller John Hurley Luke Knutson Douglas Marello Rosalyn Millerbarr Susan and Martin Hurwitz, MD Nancy Kosakowski Claire Margolis Genevieve Mills Marcia Husband Karen Kowalski Bonnie Markham Margaret Mitchell Michelle and Tony Iannucci Charles Kramer Staci Maronski Barbara and Phillip Mitchell ID Griffith, Inc. Matthew Kravitz Megan and Vincent Maronski Ryan Mitchell Susan Irwin Sharon and Hannah Krengel Guadalupe Marquez Henry and Megdelene Mitchler Patrick Iwanicki and Kyle Kruska Nicholas Marrangoni Hamid Jack Moallem Stephen Wolf Ginger Kudchadker Mary Jane Martelli MOC Products Barbara and Joseph Dana Kuhn, PhD Philip Martelli Nancy Moore Jackson, MD Kimberly and Robert LaBerry Matthew Martin Sarah Moore Beryle Jackson Michelle and Scott Labrecque Timothy Martin Kathleen and James Mora Gina Jacobsen Annette Lage Valenda Martin Dalia Morales Julie Jacobsen Maggie and Chuck Lage Victoria and Kerry Martin Anna and Gregory Morgan Becky and William Jednorski Yvonne and Troy Lagrone Rebecca Martinka Stuart Morgan Derrick Jefferson Crystal Lake Kimberly Marx Kristina Morris Lisa Jewell Carol Lambe Dawn Marzarella Matthew Morris Johnson & Johnson Robert Landers Michal Marzec and Xan Moseley Matching Gifts Program Cecelia and Stanley Lane, MD Ewa Jancvewska Robert Mosher Nadine Johnson Kira Lanier Bonnie and Scott Maschke Karen and Moss Seaborn, MD Barbara and Johnny Johnston Laurie Gordon DDS, LTD Jeani McAleer Kimberly Mossman Herman Johnston Marianne Lavery Drew McAllister Pam Motsenbocker Glenna Jones Michele Leggio Sean McCarthy Mary and D.T. Motzko Kenneth Kalchbrenner Tina and Joseph Leggio Tina McCray Mary Motzko

24 Annual Report 2013

$100-$249 (cont.) Becca and Danny Patzek Joni and James Roach Elizabeth Secord, MD, FAAAAI Stephen Mulligan Marie Paulk Erin and Ed Robbins Marilyn and Howard Seidmon Jan and Alan Murbach Daniel Pearlman Linda Robertson Alix Seif Georgia and James Murphy, Jr. Mary Pelenis Cheryl Robles Chelsee and Troy Self Connie and Timothy Myjak Ivan Pelly Bernadette Rock Kathy Serfin Marilyn Nagle Chassity and Jeremy Pence Margy Rockoff Judith and Don Shafton Theresa and Michael Nastri Allison and David Penn Jodi Roda Bobby Shand National Association of Patricia and Paul Penn Pam and Mark Roden Patricia and Stephen Shannon Basketball Coaches Anthony Perez Erica Rodriguez Warren Shaw, Jr. Jayne Naughton Deborah Perian Daniel Rogers Michelle Sheeler Margaret Naughton Haven and Susan Perkins Matt Rokusek Jana and Jeff Shelton Patricia Naughton Lydia and Angelito Pernala Joy and Franz Rolli Tami Sherman Nicolet Neidlinger J. Jason Perry Jessica Romanoff Jerry and Cathy Shier Linda and JK Neisser Mark Phillips Natalie Romanoff Brent Shimman Virginia and Jack Nelligan Kristina Philpott Rosemarie and Demetrio Romeo Jon Shultz Mark Nelson Anna Pisciotta Anthony Rooklin Beverly Shwarzer Sheryl and James Neuman Sabrina Pisciotta Jeffrey M. Rosch Margaret Sica Lawrence Neumann Sandra Place Georgina Roselli Therese and Stephen Siegle John Neunson Karen Plaisance and David Rosenthal, DO Rita and Timothy Sierra Xuong Nguyen David Young Hillary Ross Laura Sievert and Eric Cooper Janice Nichols Marianne and Robert Plucienik Diane Roussel-Dupre Naveen Sikka John Niebuhr Denise Plunkett Lisa and Charles Russell Patrice Silver Sharon Nisengard Katherine Polk Megan and Jason Ryan Ian Silverberg Jesse Noller Ann and Daniel Polto Susan Rybacki and Kevin Simmons Joan and Donald Norkus Kim and Mark Polto Lucinda Cathcart Skky Allstars Sharon Nowaczyk Bonnie Poole Kerri Ryder Barbara Small Tom Nugent Leanne and Steve Ports Ashley Sacrider Desirae Smick Summer Nunez Lynne Powell Safety Net of Oregon S.J. Smit Julie Nzambi Gerald Powers Cheryl and Casimir Diane Smith Thomas O’Brien Jeanette Price Saintcross, Jr. Kent Smith Candace O’Connell Gary Privett Saint-Gobain Corporation Kristin and Chris Smith Elizabeth and Matt O’Connor Public Communications Inc. Marc Salit Margaret and Robert Smith Kathy O’Dare Jennifer Puck, MD and The Salon at 142 Robin Smith Shelli and Michael O’Donnell Robert Nussbaum, MD Asia and Tom Saltmarsh Sherrie and Pete Smith Karyn Odway Rosemary Purrazzella Jim Samargis Tom Smith Dana and William Oliver Margaret Ralph Anita and Chronis Sapalidis Cindy Snyder Olivia’s Restaurant Robert Rambo Gene Sbalchiero Mary Danette Snyder Amber, Kevin and Chase O’Neil Nicholas Rashid Melissa and Christopher Nicole Snyder Kimberly and William O’Neil Lynn Ray Scalchunes Socius Order of Friars Minor Cynthia Reardon Justin Schall Michael Sokoloski Karin Osofsky Vernon Rebello Ann and Jim Schaller Karen and George Solliday Susan Ossoff and Gregory Durell Chris Reck Christina and Patrick Scheper Ronald Sorozan Elaine Ostrowski Loretta Reed Karen Scheu Jan and William Southerton Joseph Owen, PharmD Arthur Rento Susan Schimmel Sandra Spangenberger Bruce Pace Alene and Paul Reuschel Janet and Donald Schrock, Sr. Christina Spatz Debra and Charles Pace John Reynolds Merenin Schrock Spotlight Dance Academy Jane Pack Sandra and Marlon Rhodes Margaret and William Schroeder Marion and Gary Stagner Theresa and Ralph Papesh Ariel and Christina Riccitelli Peg and Bob Schultz Susan Stagner Brian Parker Carol Rice Melinda Schwartz Frank Stanek, Jr. Joyce Parker Lynne and Richard Rice Allison Schwarz Barbara Stark-Baxter, MD Melissa and Zane Parker Kathleen Richards Kathleen and Malcolm Barbara Steele Laura Parr, MD Sheila Richmond Schweiker Mary Stegall Rick Parsons Anthony Ricketti, MD Peter Scilla Elyse Anne and Craig Steinhart Carrie Pasquesi Daniel Riis Christine and James Scotti Ellen Sternberg Niraj Patel Brittney Riley Mark Searcy Charles Frederick Stevens Patient Services Inc Felix Rivera Larry Searle Dale Stevens

25 IMMUNE DEFICIENCY FOUNDATION

$100-$249 (cont.) Kit and Jeffrey Verona Christina Wilson Backhand Productions, Inc. John Stevenson Linda Videen Lois Wilson Ranjit and Pritam Badesha Diane, Cynthia and Lynn Vizek Eugene Wollaston Donna and Daniel Bagby William Stewart Judy and John Voytek Diane and James Wood Patrice and Jim Bagby Jeanne Stiles Shirley Vulpe Nancy Woodruff Dot Bailey Billie Stillwell Brandie Wagner Katrina Woodward Patti Bailey Jean Stipe and John Bosley, Sr. Deborah Wagner Virginia Woolridge Claire Bain Alec Stone Margaret and Jonathan Wagner Lisa Worthy Marie Baker Stratford Dental, PC Micki and Jack Wagner Mary and Nathan Mallory Nancy Bakos Seth Streeter Brandy Walsh Margaret Wortley Kathy Balbuena M. and R. Stringham Brett Walsh Kathleen Wrabley Shelli and Jeb Baldwin Lindsay Stubitsch Danielle Walsh Angela Yanez Bank of America Matching Gifts Donald Stufft Dennis Walsh Josephine Yocum Penny Bank Diane and Karl Stumpf Justin Walsh David Young Ashley Banks Alyson Sugar Laura Bauer Lisa Yuen Cindy Bardwil Robert Sugerman, MD Lori and Robert Walsh Nicole Zaccaria Maria and Terry Barnhill Janet Sullivan Megan Walsh Mary Ann Zamula Maggie Barr Kathryn Sullivan Michelle and Francis Walsh Lisa Zielinski Glen Bartlett Susan and Daniel Sullivan Patricia and Ed Walsh Jennifer Zingre Dean Barton Alice and Dale Sutter Theresa and Larry Walsh Jane Zoppo Lorene and Jeffrey Basham Patsy and J. Christopher Svare Kimberly Walters Stacey Zwick and Keri Gasparri Tammy Basile SWS Leasing, LLC La Donna Walters Jeni Bate Matthew Szott Sharon Wampler $50-$99 Janice and Raymond Bates Sheryl and Francis Taggart Margaret Warker Anonymous (1) Gail Bauer TalentWRx Suzanne Warnalis Amita Abraham Kyle Bauer Randi Talley Charlie Warren Joseph Adamkiewicz Michelle Bauer Rajendra Tanna, MD James Watts Dave Adornetto Gloria Bean Martha Tarpay, MD Mary Webb Alessandro Africa Carol Bearce Suzanne Taylor Danielle Weber David Agranat Carla Beatley Team Fully Equipped Patricia and David Weber Amber Allen Beatrice Perotti, Inc. Steven Tempel Carolyn Weed and Carol Allen Angelica Beaumont Nancy and Joseph Tessman William Rastetter Deborah Allen Barbara and Henry Bechard Rajiv Thomas Sandra Weiner Gale and Charles Altman John Beck Amy and Sean Thompson Virginia and Jonathan Weiner Tatiana Alvarez Rachel Beckley-Rich Threshold Group, LLC Deborah and William Weiss American Association of Linda and David Bedard Jenny Tibble Julie Wellborn Critical-Care Nurses Joyce and Robert Beelaert Becky and Joseph Tometich Erin Welsh Janet Anderson Jessica Beiler Margaret Topolski Mimi and Stanley Welsh Kayla and Jacob Anderson Habeeb Bello Anthony Toppi Alicia and Joseph Wengert Kris Anderson Jane Benditt Ken Trader Claudia Werlin Laura Anderson Ellis Benjamin Tree Doctors, Inc. Mary Ann Werner Tanya Anderson Kathryn and Joseph Bento Treister & Co, LLC Denise Westerberg Ann Andonian Bentz Whaley Flessner Anastasia Troupe Cathleen and David Westfall Jamie Annitto Barb Bergenoff TRPD FOP #156 Cathy and Paige Westfall Lauren Antonopulos Jan Bergeron Robert Truitt Carol and Charles Westling Marie Apke Carol Bergmann Nancy and Richard Tuck Carolyn Wheeler Jean and Charles Johnson Stacey Berk Patricia Tuck Gina and Darrel White Rebecca Arnaiz Larry Berkin Robert Mller Whitening Lightning, Inc. Olga Arnold Judy and Dennis Berkowitz UnitedHealth Group Mace Whiting Debbi Arnone Kathy Bernhard David Valdivieso Elroy Wicklund Arnold Aronson Stephanie Berry Robert Van Norden Carnet Williams Elizabeth Ascough-Jessen Beverly Berryhill Wendy and Peter Van Norden Reggie Williams L. Kimberly Ashcroft Debra and Charles Shirk Cathy and Rick VanDyken Brian Williamson Deana and William Ashline Kathleen and Steve Betchner Rahul Vangala, MD Lynn Wilmont Asghar Askari Heather Beverlin Wendy and Adrian Varas Cecelia Wilson and Susan Lauren Athon Bezak Chiropractic and Zachary Vassar Wilson Tomer Lawrence Axelrod Rehabilitation, PA

26 Annual Report 2013

$50-$99 (cont.) Patricia Cahill Janice and F. William Cope Leslie DiManna Big Skinny, Inc. Anna Calabrese Travis Cope Amanda Dixon Katherine Bigelow Ashley Caldwell Katherine and Thomas Corcoran Ronald Dixon Shirley Bigley LaMotte and Sharon Calkins Annette Cornell Doan Thuc Nguyen Living Trust Lawrence LaMotte Bobbette Cameron Vicki Cosey Cindy Docalavich Patricia and Eugene Birkner Wendy and David Campbell The Cosmas Family Robert Doherty Dorese Bledsoe Sharon Campbell Keith Courtright Don Doll Murray and Rhonda Blum Natalie Campos Kim Crawford Rebecca Donaghy Mary Blumer Kathleen Cangemi Heather and Todd Creasy Anne Donahue-Boddy and Barbara and Robert Bogg Amber and Walter Cannis Hector Crespo Charles Boddy, Jr. Jeff Bommelyn Stephen Caramenico Stephanie Criona Barbara Donald Nancy Bonelli Leslie Carlson Tracy Crowley Maryanne Dooner Ellen and Robert Bonham Michael Carroll Ruth Cruz Deborah Doran Sheila Bonilla Tina Carruthers Therese Cummings Jane Dorey Mark Bonin Stevi Castleman and Nancy and John Cygan Jane and Stephen Douglass Thomas Bonin Mark Romiti Dailygood Cathy and Timothy Downs Melissa Bookbinder Jane Caton Anne Dalin Jessica Doyle Karen Boseo John Celli Mark Damia Mark Drake Teresa Boyle Carolina Cely Ajeeta Dash Anita and Tim Drendel Melissa Bradley Gerardo Cerda Adrienne and Michael Davidson Frederick Drewes Sherry and Jim Brady Joseph Charnetski Christopher Davidson Joshua Dubois Gerry Brahney Candace and Samuel Chase Rebekah Davies Michael Dudley Kathleen Braswell Rick Chavez Greg Davis Michelle Dudley Paige and Dwight Braud Mary Chieppor Shanna and James Dawson Eugene Dudzinski John Brennick Sherri and Justin Chisari Rhonda and Christopher Day Jennifer and Bradley Duncan Nancy and Tom Brigham Janet Christensen Frederick De Brito Martin Duncan Ainsley Brinton Kaeley and Nate Christensen Ashanthi De Silva Darlene Dunlap Debra Broce Nancy Christian Roseann Deaver Lauren Dunlap Ceci Brodski Denise Cicchino Jillian Deaville Pierce Durant Stuart Brody Christina Clark Sheila and Ivan Debrito Bunny and James Durkin Susan Brogan Karen Clark Carmela Debrouwer Laura Durkin Glenda and Doug Brown Marnie Clark Development Enterprises Colleen Eckert Kimberly and Mark Brown Robert Clarke Corporation Helen and Michael Eder Laura Brown Nicole Cleary Anna Deck Edison International Employee Sharon and Dan Brown Amy Clements Andrew DeCollibus Contributions Campaign Dana and Jim Bruton Jennifer Cloutier James DeFilippi Patti Edzant Deana and Rod Bulington Harold Clumeck Ellen and Philip Delany Nancy Eichelberger Theresa Bumgarner Jodi Coblentz Lea Delgado Jeanne Eichinger John Bunn Rodney Coffield Kimberly and Adam Demetriou Norma Eichinger Ruth Bunn Colette and Bill Coffman Leslie and Theodore Demos Mel Elfin Bettie Burchardt John Coffman Margie Denoncour Alicia Elkins Margaret and Thomas Burda Lindsay Coffman Lori and Mark DePalma Jennielee Elliott Carol Burdick Patsy Coffman Kerry DePalo Patricia and George Else Margaret Burns Suzanne Cohen Michael DePrisco Jeri Lynn Else Jean and Merle Burns, Jr. Erna Colborn Angela Derrick David Elseroad Stephen Burns Debi Cole Christine DeSantis Linda Ely Roland Burquest Bridget Collins Barbara Detwiler Joan Engel Gale Burtch Laura Conahan Marylee and Robert Devenney Rebecca Englehart Carolyn Bury Sheila and Steven Conant Katherine and Charles DeVore Joyce Ercolino Mary Bushbaum Pamela and Robert Condello David DeWolf Timothy Ericson Julie Busking Rachel Conforti Vicki Di Vittorio Janah Esquivel Jane and William Button Kim Conrad Katy DiBernardo Lakecha and Tyron Eubanks Scott Bywater Lawrence Conrath Tyrone Dickey Joseph Fahhoum, MD Debra Cabrera Elizabeth Conte Patricia and Steven Dietch Dan Faigenblat Connie and Harry Cadotte Gloria Cooke Angelo DiGangi Jodie Fair Joan and Charles Cahill Amy Coopersmith John DiGrazio Joylene Fair

27 IMMUNE DEFICIENCY FOUNDATION

$50-$99 (cont.) Janet Gibson Janelle and Bydeia Harmon Teresa and Danny Ives Kristie Fair Joanne Giltner Phyllis Harn Craig Jackson Nancy Falk Tony Ginajlo Debi Harold Kathy and Adam Jackson Gregory Farber Anthony Giordano, Jr. Sarah Harper Jane and Walter Jackson Heidi and Kevin Fay Glenn Kerstetter Heating Christopher Hart Lance James Fran and Steve Fecske and Air Conditioning, LLC Gail Hart Tim Jamison Patricia and Donald Feiner Mary and Dann Glick Lois Hartranft Jennifer Burge, DDS, PC Carole Felintin Carol and Mike Goddard Judy Harvey Steven and Glenda Joerger Michele Fenster Eleanor and H. Michael Goetz Julie Hass The Jetter Family Daisy and Bill Fenton Mark Goetz Karen and Mark Havard The Johnson Family Karen Fernim Michael Gold Melodie Hayes Amy Johnson Helen Fiechtner Larry Goldsmith Jillian Heilman Ben Johnson First Team Shirley and Conrad Gorospe, MD Jennifer Heimall Gina and Chet Johnson David Fischer Sofia Gottschalk Ken and Wendy Heinz Ken Johnson Scott Fisher Jennifer Gowins Regenia Hendry Nina Johnson Sharon Fishter Sandy and Tom Grady Elisabeth Henifin T.J. Johnsrud Five Guys Burgers Margaret and Thomas Grafton Mary Sue Henifin Mary Anne and Richard Mary and Thomas Fleisher, MD Anjie Graham Kay and Rand Henjum Johnston, Jr Kim Fleming Gordon Grannis Raymond Henjum Austin Jones Regina Flores Grayfred Gray Tom Herrington Avis Jones Trace Ford Sue Greenawalt Paul Hess Ed Jones Barbara Forleo Trudy Greenleaf Donna Hettman Edward Jones Barbara Forlini Susan Gregg Kimberley Hieatt Jerilyn and David Jones Lois and Garold Fornander Steven Grenke Colleen Higgins Martha Jones Donna Fortier Beth Grever-Krogstad Marcia Higgins Wendy Jones Lela Foss Jak Griecci Kathleen and Bryan Hill Maureen Jordan Michelle and Neal Fox Carolyn and Thomas Griffith Natalie Hill Marlon Joseph Kim Frank Laura Grunwald Arnetta Hirschey Dina Kancepolsky Franks Home Repairs Mary Ann and Donato Elizabeth Hobler Judith and Scott Kaneff Maria and Mario Fratantonio Guadagnoli Chris Hodges Diana Kaschak-Williams Laura Fredrickson Sandra Guckian Debbie Hoen Joe Katz Maria Fredrickson Therese Guest Devon Hoernlein Barbara Kavanagh Arnetta and Barry Freeman Elaine Gulliford C.B. Hoffman Michelle Kaysen Linda Fryer Linda Gulrajani Elizabeth and Gary Hoffman Chris and Tim Kayser Marian Furst Chris and Jerry Guth Lydia Holland Reilly Kazawic John Fusco Rosalinda and Yoana Guzman Ursula Holleman Suzanne Keenan Rosalie and Ed Gabriel Jason Haas Melinda Hood Rosemarie Kehoe Fran Gale Evon Habel Keith Hopps Dawn Kelly Alicia Gallagher Jake Hale Antonios Horst Meva Kennedy Gail and Mark Galter Charlene and Charles Hall Brianne Houck William Kennedy Papia Gambelin Michelle Hall Despina Houck Ken’s Kars Jimmy Garcia Roxanne Hall Kris and Tom Hough Berta Ker Dorothy and William Gardner Nancy and Mark Hallenbeck Gilbert Hovermale Carol Kerns Bill Garner Michele Hallihan Teresa Howard Glenn Kersetter Jenny Garretson Sarah Halper Linda and David Paul Howell Lisa Kersten Eileen Garry and Sherman Heller Julie Halpin Kathy and Bruce Hulst Edward Kessler David Gartner Mary Hamilton Erin Hunt Virginia Kessler Matthew Garvey Elena Hamm Carol Hunter and Thomas Perry Brenda Key Beverly George Elizabeth Hammond Donna Hutchison Keystone Oaks High School Patricia George Diane Hanchett Lynda and Michael Hyde Kids Stuff & More, LLC Yvonne and James Gern Kathleen Hand Kathi and Robert Hylander Michelle Kiernan Florence and Michael Gersch Robert Hanley Lynn Hyndman Terri King Jan and Don Gersch Laurie and Brett Hansen Paul Hynes Deborah Kirk Karen and Thomas Giacomucci Matthew Hanson Anne and Kelly Ingersoll Jim Kirst Carolyn and James Caroline Hardin Patricia Innaurato Janet Klein Giannantonio Linda and Michael Hardin Kathleen Isaac D.M. and Thomas Kleine

28 Annual Report 2013

$50-$99 (cont.) Karen and Mark Lefkowitz Marc Marchesani Cathy Mersch Dawn Klouda Miriam and Robert Lehman Sheryl and Thomas Marciniec Linda Mette Greg Klouzek Jeffrey Leipzig Jeffrey Marcinko Thomas and Jane Metzger Russell Klouzek Melinda Levar Anna and Gregory Marcotte Greg Milani Colleen and Kevin Knoop Ariella and Naftali Levenbrown Kimberly Marcotte Diana and Frank Miller Patti Knorps Jon Lew June and Lawrence Markland Leta Miller Sarah Knowles Vivian and Edmund Liberski Joseph Maronski, Jr. Marghan Miller Lisa Kobrynski, MD, MPH Lucy Librizzi Angelina and Walter Marquez Nathan Miller Elizabeth Koepnick Angela Liller Sarah Marshall Wendy Milnes Holly Komaiko Hetty Lima Cindy Martin Jennifer Mindy Yung Koprowski Brandi Little Stan Martin Xavier and Lynn Minervini Mike Kornbluth Liz West Interpreting Services Ginger Martindale Anne Minotti Kathleen Kosnar Jeanann Lloyd Paula Martins Ann Mitchell Melanie Koto Beth Loftus Nancy and Matthew Martland Kasey Mitchell Timothy D. Kowalczyk Eileen Loftus Rebecca Massey Vesna and Lino Mogorovic Stacey Kraft Pauline Loftus Eileen Mastrio Laurie Montague Michael Kreinest The Lombardo Trust Jeannine Masucci Kay and Robert Moore Michelle Kreitz Kristen and Tammie Lombardo Cathy Matthews Kay Moore Shelley and Max Kreps Brittany Long Richard Matthews Kara Moran Mary Krist Bruce Long Rich Mauch Sandra Moran David Kruchkow Joyce and George Long Judith and Thomas Maupin Susan Moranski Marjorie and Donald Krug The Loock Family Katelyn and Christopher Garci Moreno Anna and Matuesz Kruzel Christine Lopez Mayberry Rhonda and Peter Morse Heather Kumor Janice Lopez Margaret and Merle Mayhugh Christina and Thomas Morzello Vivian Kunitzky Courtney Lorenz Michele and Joseph McAndrews Addie Moseley Jean Kuper Leah Lorenze Lara and Scott Mccabe Ken Motylinski Kelly Kupper Regina Lorenzen Brian McCaffrey Michelle Motylinski Diane Kurtessis Rintta Lott Michele McCarthy Jason Mullen Christine and Henry Kurtz Mike Loud Gina and Ronald McClung Pamela and Todd Mullen Rachel Kurtz Lisa Loughlin Don McCord Tony Munoz La Cakerie Lowry Park Zoological Becki and Erica McCormick Lisa Murray Angela La Cascia Society of Tampa, Inc. Diana and Steven McCulloch Mary and Patrick Murray Mary Ann and Louis La Conte Mary Jo Lowry Stephen McCunn Kelly Musser Melissa and Ryan Labovitch Michelle and Tom Ludwig Dena McDonald Armando Nanalig Marcia Labowitz Mike Lukas Peggy McDonald Kathleen Narlock Kristin Lacher Gail Lusvardi Lisa McGee Jeanne Marie and Gavin Nealon Roger LaFrance Kate Lusvardi Trudy McGee Jennifer Neisse Karen and Kedra Laman Margaret and Paul Lynahan Elizabeth McKenzie-Carter Ellan and Warner Nelson Ana and Juan Lamas R. Lynch Olivia McMurray Karen Nelson Mary Ann Lanier Mary MacDonald Christy and Gary McNiel Lois Nelson Michael Lantz Michele Madden Pamela and Anthony McQuillen Barb and Victor Nelson Joe LaPointe Barbara and Kenneth Hall Magee Karen McRae Steffanie Ness Kathleen LaPointe Ryan Maglione Michael McSally Jeannine and Wallace Neumann Louise Laquerre Jennifer Mahan Tony Meads Trent Newell Patricia Lardi Eileen Mahony Maria Medina Doan Thuc Nguyen Carol and Jansen Lasley Amelia and Robert Majerowski Sara Mee John Nguyen, MD Beverly Lawton Melanie Makhija Joe Mele Jason Niggel Pat Laystrom Patricia Maldjian Patricia Mele Mare Nikolic David Leamer Julie Maley Cherryl and John Melfa Cynthia Noble-Mohn Elizabeth Leclerc Jamie and Mike Malloy Lon Meltesen Amy Noel Barbara Leddy Brenda Mancino Nicole and John Melton Christine Nydam Judith Lee Marty Mandel Anthony Melvin Cheryl Obester Karen Lee Debbie and Glenn Manning Naydia Mena Jennifer O’Brien Theresa Lee Mali Mansoory Juan Mendoza Matt O’Bryon Wendy Lee Nisha Maradkel Anita Mentzer Allison O’Dell Robert Leen Dariel Marcalus Amanda Merriell Jason Ohearn

29 IMMUNE DEFICIENCY FOUNDATION

$50-$99 (cont.) Liz Pinto Rita and Daniel Robinson Susan and David Seligson Shawntel Ojeda Jo Anne and Bart Pittari Janice and Dean Rockwell Rita Seyler Steve Olney Josephine Pittari Christine and Jim Rogers Carolyn and John Seymour Karen Olson Rita Ponce Monica Rogerson, MD Luanne Shafer Lisa Olson Jacqueline Pongracic Zander Rogin Pamela Shaffer Amy O’Mara James Porter Kara Roisum Deepa Shah Allison O’Neill Karen and Dave Porter Angie and Tony Rojek Svetlana Shapiro Dina Orapallo Hazel Porter-Davis Maureen and Daniel Romaine Jose Shaw Robert Ordway Yesenia Portillo Christine Rose Jennifer Shea Melissa Ortiz Darlene Powell Joan and Wendy Rosenbower Craig Sherman Maria Ortiz-Rodriguez Shirley Prakelt Kim Ross Pamela Sherwood Booth Lucinda Osborn Armand Prestidge Rita and Neil Ross E. Shields May Oshiro Colleen Prieboy Jill Ross-Blair Janet and Thomas Shoemaker Colleen and James O’Sullivan Liane Pruchnik Sharon Rost Jennifer Shoemaker Jennifer O’Sullivan Joyce Przybylski Cynthia Rowley Lesley and James Shore Julie Overholt Pura Vida Bracelets Davey Rowley David and Belkis Sica Eileen Owens Norma and Donald Purn Jacob Ruck Ed Siegler Karen and Jeff Owsley Donna Quinn Robbie Rudelich Marie and John Sieller Nada Paic Amy Radcliff Evelyn Rupert Eileen and William Silk Rebecca Palanca Maureen Raftery Emily Russell Karen Silk Ann and Perk Palmer Sandra and A. Joseph Rager Mary Jo and William Russell, III Ruth and Ronnie Simmons Stephanie Palomino Gita Ram Michael Rutkowski Sharon Simmons John Papp Towma and Jason Rastad Aaron Rutz Jeanne Simoncini Vermilio Paranal Ginny Razo Alison Ryan Jennifer and Bill Sims Nancy Park Randolph Reaves Regina Ryan and Steven Krynski Anne Marie Singh Teresia and Christopher Parker Jason Reddish Bonnie Sadler Helen Siorek Frank Pasciak Carolyn Reed Deborah Salmon Sisters of Mercy of the Americas Jemette and Joe Paskoski Darrell Reed Elizabeth and Brent Salsgiver Mid-Atlantic Community, Inc. Nancy and Mike Pasquerelli Gregory Reeder Joanne and Tom Salsgiver Carla and Paul Skiba Christopher Patterson Holly Regen Neagle, MD Sarah Sampson Nikki Skiniotes Sean Patterson Regen Spinal Rehabilitation, PC Shelly Sanders Mark Skoskiewicz Cynthia Pauley Barbara Reid Donna Sant Deborah and Christopher Small Michelle Payne Erin Reid Karen Santucci and Kathy and Charles Smalley Susan Pearring Rolland Reid Dominic Roca Kathy Smalley Barbie Pecotich Kathleen Reilly Liane Sassi Anne and Paul Smith Tim Pellegrini Robyn and Jayson Reising Connie Sauer Cindy Smith Monica Pequeno and Cathy Remick Catherine and Patrick Saulsbury Jean Smith Raul Cardona Elizabeth Rento Connie Saunders Karen Marie Smith Deborah and J.A. Percha Matt Restivo Joseph Sawicki Laurie J. Smith Dennis Permar, Jr. Maria Restivo-Adams William Scanlon Matt Smith Joanne Permar Alice and Bernard Reynolds Lynn Scarlett Nefertiti Smith Roxane Permar Michael Reynolds Stacey Schiding Tom Snooks Katie Perschon and Beth Rhodes Kathleen Schino Eden and Marcus Sohn Marc Lipschultz Denise and Peter Richards Reita and Charles Schmidt Dawn and Mitchell Souza Frank Perucca Tim Richardson Barbara and Jeff Schmitt Sovernet Communications Kristin Peterson Rick Pavia Fran and Marc Schnee Louise Sowers Tonya Peterson Suzanne and Jeff Rider Ondrea Schroder Carol Spadaro Nicole and Richard Petracca Linda Ridinger Andrew Schulman Sara Spatz Christine Petrie Jennifer and Joseph Riley Susan Schwerner Judy Spears Jay Pfister Chrissie Rissmiller LeighAnn Sciacca Jennifer and Gerald Spencer Dave Phelps Doug Rivenburgh Patty Scorcia Larry Stack Freda Phillips Lisa Roach Bill Scott Tonya Stahlmann Janet Phillips Karen and Donald Roberts Sarah and Joseph Searing Joan and William Staicos Esther Pieniazek Mark Robichek Laureen Segall Anne Starace Laine Pike Julie Robinson Jose Segarra Tifarah and Moshe Stareshefsky Scott Pillsbury Megan and Rob Robinson Joram Seggev, MD, OHTD Lynn and Lawrence Stasiak

30 Annual Report 2013

$50-$99 (cont.) Jessica Torres Keith Wilson Melinda and Kevin Albers Michael Stedman Paula Tremblay Malea Wilson Jacquelyn Alford Sheryl Stein Jamilyn Trillo Lucena and Raymond Winberg Eileen Allenstein Jody Stevens Socrates Trujillo Bryan Winsko Claudette and Ralph Allerdings Patti Stevens Turn Key Homes of Maine Deborah Wisdom Janice Allman Christopher Stevenson Caleb Turner Emilie Wojciechowicz Donna Almonte Daniya Stewart Elma Turner Michael Wolf Alexis Aloi Deanna Stewart Rachel and Matthew Umhoefer Sara and Myron Wolf Orlando Alonzo Marlene and Harold Stiener United Way of Central Pamela and John Wolfe Carol and Stanley Alpert Pamela Stofko Indiana, Inc. Laurie Wollaston Angelica Alvarez Kathryn Stohr Jane Unzeitig, MD Brian Woods Carol Ambush Carol Stollenwerk Ann Urbaniec Carol Woods Jean Ammon Cynthia and Lou Stoops Eileen Urh Margaret Woods Barbara Anderson Sharon and Randall Strait Michelle Utrup Kelly Wright Jodie Anderson G. Linda Strayhorn Jamie Utter Mari and Ted Wright Judy Anderson Angela Stulley Karen Vacca Melissa Wyckoff Robin Anderson Cynthia and Gregory Stuver Suzanne Valente Joy Young Jennifer Andrade Brenda Sullivan Rayann Vasquez Mary Young R.J. and A.M. Andreotti Margie Sullivan Josephine and Louis Vello Melissa Young Paula Anielak Nancy Summitt Betty Ventrice Sandra and Warren Young April Antoniou Karen Swedenborg Leslie Ventuleth William Young Mildred Applewhite Jill Sweeney Nancy Vernale-Brand Chanchu Isabelle Yu Christina Araque Kathleen Sweeney Maria Vernet Penelope Yungblut and Constance and John Susan Sweetman Michelle Vesser Raymond Ewing Archambault Laura and Stephen Swenson Kevin Vierick Helen Zade Sandra Ardis Janine Taglang and Rita and Brian Vyhnal Alice Zak Janet and John Aresta Michael Visnov Diane Walker Melynda Zaragoza Clare Ariano Christine and Mark Talbot Sharon Walker Maureen Zembricki Dave Arnold Donna and Gary Tamilio Meghann Wallace Vanessa Zepeda Rachel Arnopolin Erin Tancemore Brigid Walsh Lisa Zimmerman Jessica Arone Lizabeth Tannhauster-Fohtman Lori and Robert Walsh Nancy Zulawski Sherry Artman and Scott Fohrman Theresa Walsh Tracey Zuliani Mahendra and Shilaben Arvind Chris Tarbrake Janet and William Wang Susan and Dawn Asamura Selma Taylor Joan Weber Under $50 Mary Asher Jeanne and Paul Teague Todd Weber Anonymous (3) Elva and Manuel Ayala Lisa and Alan Teixeira Susan Weinbaum 19A Enterprises, LLC Linda Azbill Rhea Telson S.L. and S.G. Weisbarth A&H Svare Family Trust Dawn Babcock Texas Roadhouse Holdings, LCC Brian Weiss Eileen Abbey Valerie Bachus Han Thai Cal Wejrowski Michael and Deborah Abel Joe Badalamenti Christine and Chris Theodore Lisa Wellman Todd Abercrombie Mary Bailey Tristan Thibault John Wells Anthony Aberdeen Rhonda Baior Michael Thomas Jacki and Kyle Wesolowski Jeannie Acdan Stephanie Baker Robin Thomas Mary West Fred Achilles Florence Baldinelli Amy Thompson Denise and David Westcott Lynn Ackermann Maryalice and Charles Baldwin Angela and Dennis Thompson Christie Whitbeck, PhD Amie Adams Laurie Ballard Pilar Thompson Sandra and Warren Wicklund Barbara and Richard Adams Mary Banecker Tashia Thompson Lori Widelitz-Cavallucci John Adams Shaher Bano Terri and Robert Thompson and Chris Cavallucci Teresa Adams Tina Baranowski Thompsons Grill Wrap Jean Wilde Traci Adelman Ric Barauski Hally Tishler Jason Wilen Polly Adkins Ava Barber Jodie Tisserand Stacey Wilkinson Mary Adorno Mary Barber Laurel Todd Katherine Williams Kaja Adrian Elizabeth Barclay Marijo Tomasetti and Hsiang Sun Rosenda Afman Pauline Barlow Arthur Toretzky Kelly Williams Joanne and Kelly Ahlstrom Cathe Barnes Belen Tornabell Sonya and Danny Williams Sara Ahrens Missey and Dave Barnes Judy Tornowske Elaine Wilson Monica Alamillo Stacy and Nathanael Barnes

31 IMMUNE DEFICIENCY FOUNDATION

Under $50 Kim Biscoe Kylee Broomall Holly Carlson Yvonne and David Barnes Pat and Randy Bisset Dennis Brotman Angela Carney Tiffany Barnett and Sonya and Lon Bjornrud Debbie Brown Louise Carpentier and Marc Richard Karen Black Deborah Brown Noella Rocheleau Anne Barnhardt Morgan and Donnie Black Pandora Brown Paulette Carr Christine Barnhart Julia and William Blackburn Tamra Brown Rachel Carrillo Colleen Barr Kris Blackburn Yolanda Brown Patricia Carroll Tracy Barr and Justin Bird Nancy Blackburn Diane Browne-Sterdt Thomas Carroll Coralia Barraza Kelli Blackwell and Phillip Sterdt Gloria Carruth Betsy Barrett Saundra and Robert Blais Chassity Brugler Dora Cartaya Heather Barrett Kristin Blake Patricia and Grant Appell Charles Casado Amanda Barry Angela Bleemer Lory Bryant Mary Beth Casper Pam Barry Rita Bleifield Helen Bryne Anna Cassidy Jennifer Barthel Helen Blier Swider Lindsey Buchanan Kristy Castagna Diane Baschant Kandra and Ronald Blodgett Allyson Buckland Julia and David Castaneda Nancy Bashook Adam Bloom Monique Bueno Susan Catalano Amy Batchelder Fran Bloomfield Elaine Bukowski Paul Catani Vicki Baty The Boat Service Darlene Bulthuis Olivia and Steve Catarinella Tim Baum Meghan Bodendorfer Ann and Sam Bumgarner Luisa Cea Carla Bautista Gale and Michael Bonanno Christine Burghart Maureen Cebular Shilpa Bavikatte Anna Marie and Bo Bonelli Betty Burk Sandra and Kenneth Cederbaum Jane Beaudette Robin Boone Geraldine Burns Joyce Center Julia Beck Andrew Booth Susan Burrows Christine Cerquetelli Susan Beck and Matthew Joles Gayle and Jim Borel Jill Burson Tracey Chada Vicki Becker Christina and Ryan Borleis Jessica Burton Sandra and J.M. Chambers Thomas Beighlie Jean Borne Neely Buscemi Robert Chandler Jennifer Belfiore-Robinson Kim Borochaner Peter Butch Carol Chandross Chris Bell Laura Bosse Kathryn Butler Tawanda Chestine Melanie Benabides Gina Boucher Michelle Butler Ryan Chew Candace Benavides Stacy Boulan John Butter C. Chiapparelli and Frank Benditt Margaret and Ralph Boulay, Jr. Marilyn Button George Gramil Kristin Benjamin Lynn and John Bousquet Josh Cabalquinto Tammie Mercer Chmielewski Amanda Bennett Carol and Jerry Bowen Christine Cacucciolo Diane Chonko Amy and Mike Bennett Stormy Bowers Sharon Cain Diane Chorazy Heather Benser Jada Bowman-Burt Chris Cairns Annie Chriss John Bentz Vickie Bownds Vanna Cairns Dena Christofaro Beth Berendsen Eric Boyle Rita Caldwell Kate Chromicz Mark Berginz Jennifer Boyle Cheryl Calhoun Corey Ciaverelli Dianne and Gerald Bergman Rose Boyle Lisa Califano Robert Cicconi Glenn Berkin Alexandra Brand Karen Callaghan Lauren Cichy Carin Berkowitz Mark Brand Melanie Calvin Marisa Cipko Julian Berman Diane Braun Janie Cameron Maureen and Michael Cipriani Denise Berner Kathleen Braun Joyce Cammon Dawn and James Cipriano Angela Berryhill Troy Brehmer Kimberly Campbell Kathryn and Anthony Ciraolo Barbara Berryhill James Brew Susan Campbell Loretta Circkirillo Gregory Berryhill Allison and Todd Brewer Jennifer Campo Tammy Circkirillo Justin Berutich Margaret Briant Irene Canton Adrienne Cirone Karen Bewley Barbara Bridges Arthur and Joann Cantrell Claim Relief, Inc Elijah Bey Phyllis Briggs Patti Capizzi Tom Clancy Nancy and Larry Bickings Doug Brisco Mary Lou Cappellini Rebecca and Ryan Clapp Jane Biehl, PhD John Brock Neilee Capstick John Clare Yves Yuri Bien-Aime Carol Brockman Gina Caputo Barbara Lynn Clark Carl Bihler Gale and Bill Bromberger Michelle Carbone Donna Clark Dee Bilo Jackie Brooks Nate Cardin Matt Clark Teresa Biondo Joanne Brooks Dawn Carella Susan Clark Rita Bird Ruth Brooks Linda Carlin D’Amico Laurie Clarke-Mullen

32 Annual Report 2013

Under $50 Joanne and Richard Crosier Richard Deron Paula Egger Becky and Gaylon Clayton Rosemary and Jack Croudy Emily Desimone Chris Eggers Connie Clifford Ann Marie Crowell Mary Deste Hillary Eisenman Ruth Cobb Nancy and Kevin Crowell Nicolette Destefano Kiim Elliott Marian Cochran Sandra Cryder Anna and Giuseppe Detoma Michele Elliott Coconut Consignment Company Nancy and John Cultra Scott Dewberry Renee Elliott Ann Marie Cody Idalina Cultrera Michelle Di Gregorio Leslie Ellis Patricia Coe Mai-Linh and Dan Cummings Carmuchi Diaz Tojeiro Eula Elmore Colette Coffman Loretta Cunneely Justo Diaz Julie Elstner Billie Jo Cogley Kim Cunningham Gabrielle Dick Jean English Rita and David Cohen Maryann Cunningham Patricia DiCostanza Andre Enskat Irene Coleman Carole Curcio Jared DiDomenico The Epilepsy Warriors Shannon Coleman Mike Curran Barbara and Dennis Dietrich Foundation Faren Collins Jane Curry Kathi DiGiuseppe Theresa Ernst Suzanne Colville Tom Curry LaDonna Diller Julie Ernstein Committee to Elect Elbert Susan and Zoe Curt Rosalie and John Dilutis Kimberly Erskine Lee Guillory Senator Steven Cyrier Stacey DiMeglio Natasha Ervin Community Shares of Minnesota Beverly Czarnota Tara Dintino Maureen Espensen Scott Conklin Denise Dabisch Scott Dixey Juanita Estrada Eliane Consalvo Kyoung and Michael Dahlberg Bernadine Dixon Charlotte Etchison Bartholomew Constantino Irene and Richard Dal Canton Cher Doherty Monica Eurich Chris Constantino Mary Ann Dallmann Alice and Andy Doral John Evans Amanda Conway Jaime Damian Sheila and Richard Dorey Shawna and Bryce Evans Johanna Conyer Susan Danforth Christopher Dougherty Laura Everline Dale Cook Sara Daniele Annemarie Doughty Lorraine and Bill Eyl June and Robert Cook Jan Daniels Josephine Downes Beverly Fackelman Ashley Cooke Kasia Daniliszyn Denis Downton Gayle and Edward Fagan Janice Cooney Amy D’Aquila Ellen Doyle Kelly Fagan Camille Coonradt Dona Darr James Doyle Virginia Fain Robert Cooper Dasco Insurance Agency, Inc Judith Doyle Younan Fakhouri Troy Copeland Kelly Daugherty Debra Dragon Alex Familia Vicki and John Corbin Marguerite and Gerald and Kathie Drake Dana Fano Colleen Corcoran Kenneth Dauphin Lisa Drake Elaine and Robert Farley Kristina Corcoran Emily Davidson Linda and Jack Dreishpoon Suzanne Farmer Susan Corcoran Nancy Davies Donna Dressler and Gwen Faulkner Kathy and Dale Cornelius Traci and Kevin Davies Karen Weischedel Karen Feeney Diane Corniuk Delphine and Sam Davis Carol Dreyer Lois Fegan Nora Corrochano John Davis Gitesh Dubal Kris Feldman Judine Cosey Logan Davis Violet Dudik Melissa Fenchak Amy Cosgrove Mary Davis Patti Duff Cristina Fernandez Bob Costantino Proteon Davis Ellenmarie Dugan Michelle Ferris Diane Costello Richard Davis Katherine and Edward Dugan Carrie Fiarman Rebecca and Matthew Cotton Ruth and Raymond Davis Jessica Dunlap Jayme and Matthew Field Jack Cowan Theresa Davis Lawrence Durnil Judy Fields Stephanie Coyne Todd Day Alisa Dutkiewicz Kellilyn Fierras Peggy Crain Angelo De Brito Dwight-Pine Bluff-Lakewood Lisa Fifield Filiz Crandall Julie and Steve Deans Animal Hospitals LLC Jeanette Fink Arianna Cribb Erin DeBrita Diane Dyson Michael Finkelstein Patricia Crimi Catherine Degi Dan Eaglin Elizabeth Finley Donna Cristinzio Joyce DeJong Terri and Donald Easley Jennifer Finn Julie Crittenden Irma Delgadillo Michelle East Janet Firestone Christopher Crnkovic David Dellecese Carol and Andrew Ebert Melissa and Dan Firestone John Crone Virginia Delvecchio Diane and Robert Edelman Ward and Angie Firestone Kimberly Cronomiz Alicia Demoulin Bruce Edelmann Felice Fischer and Ben Katz, MD May Cropley Margaret and Brian Denoncour Scott Eder Dawn Fisher Jeff Crosby Tera DePaoli Alex Edwards Ed Fitzpatrick

33 IMMUNE DEFICIENCY FOUNDATION

Under $50 Crista Gebhardt Roxanne Greenstein Brooke Harrow Keri and Leo Fitzsimmons Linda Geers Mikal Greer Alecia Harshaw Janet Flaa Rhoda Gena Kristina and Chris Griffin Gregory Hart Michael Flanagan Michele Geraghty Maryeileen Griffith Scott Hart Bette Fleming The Gerber Family Karen Grimes Kathy Harte Joan and George Fleming Tammy Gerenser Noel Grissinger Jada Harvest LaQuay Fleming Mary Gettinger Monica Groff Mudassir Hasan Laura Flinders Erika Gettings Caitlin and Morgan Grose Connie and Stephen Hassinger Linda Flint Paula Geurin Sean Gross Sue and Larry Hatch Cristhian Flores Deana Gevrekis Sara Grossman Cindy Hauk Harold Floyd Charles Giamberardino Laura Grosz Cristina and Paul Haverty Kathleen and Liam Lucille Giammarinaro Priscilla and Roy Grundy Robin Hawkins Thomas Flynn Jill Gill Katherine and William Grussi Georgiann Hawrysz Jeanne Foley Marianne Gillespie Geneva Guardiola Jeanne Hayes Lisa and J. Peter Folkins Andrew Ginsberg Sandy Guendling Susan and David Hazard Diana Foltz Cathy Givens Stela Guernsey Rebecca Heidegger Tom Foncello Karon Glass Linette Guerra Stan Helfand Renee Forcey Marian and Joseph Glatterman Shannon Guest David Helfinstein Lauren Forsythe Katie Glatz Elizabeth Guin Arlene Helfrich Patricia Foster Yvette Glavan Jennifer Guist Penny Helker Heather Foust-Cummings Gisela Glodeck and Sally and Dick Gulbrandsen Mary Rose and James Heller Andrea Fox Edward Schwartz Richard Gurka Missy Helton Lisa and J. Ross Franck Kim Glovak Henry Guzinski Lloyd Hemauer Kevin Frank Ryan Glynn Christopher Haak Kristina Hencinski, RN Janice Frans Kathleen Godbout Christi Haas Lynn Henderson Christina Freeman Julie Godfrey Julie Habel Jeanne Hendrickson Kathleen and F. Freeman Howard Goffen Nadia Habig Mary Kay Hennessy Rebecca Freeman Lauren Goffen Stephanie Hagemann Monna Lou and Stephen Melissa Frey Stephen Gold Cheryl Hagen Henninger Kathleen Fridy Judith and Richard Goldbaum Carla Hairston Eric Henry Carla and Stan Friedman Lisa Goldberg Maggie Hajkowicz Sheila Henry Lori Friesen Wilma Goldenberg Mark Hakman Sarah Hensley Nancy Fritz Ronna Goldstein-Usmani Fay Halbert Karen Heraty Pam and Dallas Fritz Mindy Golub Ann Haley Wendy Herbert Leslie and Gloria Fry Lena Gonzalez Kristen Hallock-Waters Dorothy Herk Sue Fry Santos Gonzalez Nancy Halloran Anne Marie Herm June and Robert Gagen Krissy Goodlett Tim Halloran Maribel Hernandez Julie Gahl Charles Goodwin Michael Halper Dana and Sean Heron Mary and John Galiette Martha and Robert Goodwin Carol and John Halverson Carri Herring Christy and Robert Gallagher Betty Gordon Pamela Hamilton Rennee Herrion Kari Gallagher Debbie Gorniak Bernice and Ita Hammond Nancy Hesterberg Nicole and Robert Galvan Scott Gorrell Natalie and Gerald Hammond Tracy Hickey Michele Gambetta Joan and Raymond Gosselin Amy and Bobby Hand Pam and Rob Hicklin May Ganni Lisa Gossett-Brown Mary Ann Handzus Artie and Homer Hickman Susan and Richard Gannon Deborah Graham Carol and Bill Haney George Hicks Ana Garcia Ellen Grall Lisa Haney Wilbert Hightower Myra Garnett Susan and Jonathan Graves Holly and L. Hanna Dale Hiles Jack Garretson Greater Horizons Holly Hanna Fran Hill Linda Garrett Shelagh and Kevin Greatorex Tracie Hanna Janice Hill Rose Garrigan Fernanda Greco Jacque Hansen Donna Hinrichs Nicole Garza Colleen Greeley Melissa Hansen Katy Hirsch Lori Gastelum Chet Green Charlotte and James Harding Thekla and Herbert Hoag, Jr. Sheila Gate Margaret and Chester Green Janice Harff John Hodos Cheri Gaulke Cindy and Brian Greene Sandi Harkins Meghan Hoen Stella Gaylor Tara Greene Christina Harris Patti Hoerig Alex Gaynor Nadia Greenidge Richard Harrison Andrea Hoffman

34 Annual Report 2013

Under $50 Kelly and Michael Jednorski Allison Keith Wayne Kubs Dan Hofstetter Anne Jenemann Jennifer Keldahl Christine Kucelin Kimberly and Vin Hokanson Jacqueline and Henry Jensen Paula Keller Jennifer Kulikowsky-Moerler Bart Holland Julie Jindra Barbara and Harry Kellman Lindsey Kunkel Carole Holm Angela Johnson Sean Kelly Rebecca Kunkel Sheila and John Holmes Jennifer Johnson Jackquelyn Kennard Dana Kurpius Gloria Holtz Kiel Johnson Danielle Kertis Amy Kurtz Claudia Holtzman Michelle Johnson Victoria and G. Michael Kesling Megan Kvarta Lisa Honekova Sue and George Johnson Farah Khan Adrienne LaBare Melia and Ben Hooker Denise and James Johnston Julie Khani William LaBu Adam Hootnick Aaron Jones Mina Kidd Joseph Laccarino Joanna Hootnick Al Jones Carmon Kieffer and Marsha LaFerrara Allison and Patrick Horan Barbara Jones Mark Bentley Cindy LaFrance Miku Horimoto Drucilla and Brasel Jones Carol-Joy Kilpatrick Radka Lakosilova Debbie and Jim Hornbeck Elizabeth Jones Linda and Carl Kilpatrick Chad Lamb Peggy and Wayne Horner Henrietta Jones Don Kimball James Lamb Lucille Hough Jan Jones Patricia Kinahan Katherine Lambert Sarah Hovermale Jude Anne Jones Carol and Frank King Kristi LaMontagna Tina Hovermale Leslie Jones Debbie King Barb Lancaster Jen Howell Ellen and Walton Jack Jones Donna and Kenneth King Bridget Lane Pat Huebner Joyce and Jon Jordahl Laurie King The Lang Family Suzie Hui JP Morgan Chase & Co Paula King Annie and Lawrence Lang Heidi Huinker JP Morgan Chase Foundation Amy Kinney Gina Lanier Drew Humes JR Industrial Supply Co, Inc Judy Kinney Nancy and Francis Lanois Ryan Hunt Matthew Junemann Richard Kint Christine LaPointe Kathy and Wayne Hunter Lori Kalafut Christine Kirkwood William Lareau Stacie Huntley Jessica Kalina Carol Kirr Jen Larson Jacqueline Huot Jeff Kallis Kraig Kistinger Steve, Colleen, and Kathryn Huot Merle Kamen Amy Klade Chase Latchic Meg, Jim and Evan Hutchings Kathryn Kammerle Barbara Kladstrup and Carol Lauser Elizabeth Hutchins Sandra Kane and Jerry Radowitz Raymond Hostetler Gail and Roger Laverdiere Janelle and Steve Hutchins Gina Kanipe Gladys and Leonard Klansky Jamie and Scott Lawrence Derek Hydon Darlene and Michael Kanouse Annette and Herb Klaver Shannon Le Mintier Wilna Hylton Noah Kantrowitz Shirley and Morton Klein Kiya Lederle Paul Hyman Ryan Karbach Judith Kliebard Cindy Lee Keiko Ikeda Maggie Karcavich Dylan Klouzek Shinhuy Lee Brad Imel Linda Kassner Emma Klouzek Patricia Legge Gary Irani Marjorie and Steven Katz Laura Klouzek Miriam Leibovitch Lindsey Ireland Kathryn Kauffman Connie Sue Knepp Mary Catherine Leies Kymberly Roberts Irwin Seth Kaufman Jackie Knepp Christy Leighton Cindy Ishimaru Aditya and Raman Kaul Gail Knipp Sheila and Daniel Leivas John Jablow Sharon and Gerald Kautz Elaine and Jeffrey Koch Sheila Leivas The Jackson Family Becky and Bob Kayden Carla and Kim Koepke Miki and Paul LeMay Amanda and Todd Jackson Kathleen Kearney Ginny Kolze Caroline Lemus-Perez John Jackson Nicole Keating Alice and Burton Kominick G. T. Lenard Petra and Michael Jackson Barbara and Richard Keefer Susan Koppel Kelley Lenfest Betty and Charlie Jacobs Holly Keefer Tom Kovarik Michael Lerardi Rita Rae and Jerome Jacobson Linda Keegan Katherine Kowalchek Melissa LeRoy Wayne James Pamela and Richard Keegan Victoria Kowalewski Ann Lescher Nancy Jannush Scott Keeley Kevin Kozinski Sarah Lesser Tina Janopoulos Claire Kegerise Judith Kozulak Betty Lett-Clark Nancy Jarossy Heather Kehler Bethany and Kevin Krieger Rob Levin Charlotte and Roger Jaschke Jason Kehrberg Eric Kroll Rita and Salvatore Levota Lewis Jean-Charles Ceil Keim Kathleen Krupa Allison and Robert Lewis Laura Jednorski Tammy Keiser Seraphin Kuate Betty Lewis

35 IMMUNE DEFICIENCY FOUNDATION

Under $50 Stacie Marchiafava John McGratty Courtney and Ryan Moeller Barbara Lichtenwalter Jen and John Marcotte Mike McGreevy Janine and H. Adrian Mohr Ian Lichterman Theresa Marczak Shanna Mckee Eva Montibello Tyrone Ligon Myra Margolin Sandra McKeever Daisy Moore Daniel Lindsley Robert Marine Cindy and Joel McKernan Scarlett Lee Moore Kathy Lingo Madolyn and Mark Markham Amy McKlindon Christine Moran Rick Linsenmaier Brenda Marks Jen McManus Stacey Moran Janine Lion Liz Markum Tyler McMullen Margaret Morea Kathryn Lipan Mareya Marmoll Elizabeth McNabb Cheryl and J. Cal Moreland Debra Liszewski Vincent Marquez Jonathan McNabb Jesse Moreno Elizabeth Litten Kellie Marr Julie and Brad McNabb Natalie and Garth Morgan Marcella Lock-Levi Patricia and Robert Marrone Sarah McNabb Randy Morgan and Danielle Levi Paula Marshall Karen McNeily Karen and Alan Morris Ivanette Lofton Megan and James Martens Kristin Meadows Latasha Morris Ocean Lombardi Marilyn and Tim Martin David Mealer Mary Morris Maria Londono Mary and Jeffrey Martin Kathryne and Larry Mealer Christine Morrow Tami Lontka Richard Martin Fidela Medina Michelle Moser George Lopez Jessica and Martin Martinez Rosemarie Mehok Theresa Moses Scott Lorenze Kirk Maruca Monya Meinel Beverly Moskowitz John Loureiro Carol Marz Laurie Meinhold Tonya and Gordon Motley Carol Loy Pete Mascarenas Ian Meklinsky Cathy Mott Debbie Loza Reginald Masten Lynn Mellor Michelle and Kevin Mowry Dawn Lucero Leslie Mastrianna and Lori Melnyczuk Carl Moyer Jean Luculano Thomas Mucci Ruth and Jeremy Menken Robbi Muir Jeanne Lumadue Vincenza and Dennis Harold Menton Victoria Mukovozov Amber Luna Matarangas Stacey Merando Joyce Mulham and Austin Luse Robyn Mathy Martin Mercado Nancy Mondella Carolyn Luse Eliese Matteo Lisa Mercer Lynn Mullin Chris Lusvardi Marian Mattson Dana Merkle Kevin Mulqueeny Brad Lyles Samantha Mauric Metro Cleaning Service Debra and John Mulvey Latishia Lyles Christine Mawn Mandy Meyer Amanda Mummert Donna Lynady Allison and Keith Mayberry Michal Meyer Peter Munoz Peggy Lyons Marianna Mayer Christa Meyrick Barbara and Kenneth Murawski Stephanie Lyons Norma Jean Mayes Mary Jo Middleton Sarah Murphy Jill Macaluso Shirely Maynie Tyneisha Middleton Joan Murray Dorothy MacElroy Patricia Mays Sina and Stephen Miesner Melissa Murray Audrey Mack Patty and Pat Mazzaro David Mikesell Nancy Murray Christy Mackey Tiffany McArthur Amber Miladinovich Patti and Ronald Myers Venetzia Madison Laurie and Michael McCarthy Linda and Vincent Milano Becci Naatz Michelle Maez Lynda and William McCarthy Anna Miller Susan Nadrich Sandra and Thomas Magee Krista McClain Hillory Miller Parvin Naficy and Alan Doktor Loretta and Donald Mahan Kathy McCollum Liz Miller Danielle Naim Madeline Maish Cristi McCormack Lynn Miller Kevin Najimi Cheryl and Mike Majerus Mikayli and Jacob McCormack Roy and Lyle Miller Angela Natale Trisha Malahni SharShar and Pad McCormack The Milliard Family Donna and Don Neely Caroline Malapero Cecilia McCormick Jennifer Millner Jill Negro Joe Malek Cindy McCormick Cornelia and William Mills Faith Nelson Heidi and John Mallett Lorraine and James McCormick Angelina Minutolo Mirella Nerada Ellen and Michael Malloy Tricia and Ron McCoy Mary Missanelli Trent Nervick Nick Malloy Renee and Brant McCrory Martha Missildine James and Barbara Ness Mary Maloney Joy and Patrick McCulley Aliza and James Mitchell Amber Newman Joseph Mancuso Jean McDaniel Brenda Mitchell Brigitte Newman Vanessa Manjarrez Ginger McDevitt Connie Mitchell Debora Newman William Manning Mike McGee Nicole Mitchell Melissa Newton Martha Manzella Karin Mcgettigan Dana Mixa Thanh Nguyen Kathleen Marchese Robin McGowan Mark Mizrahi Shanna Nicholas

36 Annual Report 2013

Under $50 Patricia Paparelli Tony and Patsy Porche Pete Rizzo III Rebekah Nichols Nancy Parenti Susan Porter Douglas Roberto Mary Nicotra Helen and Mark Dickinson Amanda Poston Aeme Roberts Kasey Nilles Joan and Ralph Parise Eileen Poston Jeanne Roberts Lori Nine Bev Parker Karlie Pouliot Joanne Roberts Candy Nixon Karin and Daniel Parker Benari Poulten Malcolm Roberts Margaret Noah Lynn Parker Rich Predl Rebecca and Steven Roberts Meg Noreiko Laurel Parks Christine Prince Susannah Roberts Alenka and Santosh Noronha Anne and John Parnell III Rhoda and Morton Posner Pruce Andrea Robinson, MD Elizabeth and Ned North Jeanine Parrillo Vicki Pruett Christopher Robinson Becky Norum Nellie Pasala Margaret and Silvio Pucci Nichette Robinson Jennifer Nosko Mary Pasquesi Leigh Pukel Nicole Robinson Michelle Nothhelfer Amanda Passen Barbara and Lonnie Qualls Rich Robinson Katye Novinski Raymond Patane Daniel Quigley Valerie Robison Marilyn and Michael Nowalk Nisha Patel Susan Quigley Susan Rocca Michelle Nunez Pankaj Patel Molly Quinn Audrey Rockman Rita and Roberto Nunez Monica Patterson Loreen and David Rado Margarita Rodes Sharon and Arne Nystuen Richard Patterson Andrelyn Raffensperger Lindsay Rodriguez Nancy Oberhauser Mary Paul L. Railey Sophia Rodriguez Joyce and Vincent O’Connell Kevin Pearson Timothy Rainey Wilmarie Rodriguez Traci and Claire O’Connell Anna Pease April Rains Beth and Thomas Roehl Melissa Odonnell Cheryl Peckenpaugh Lupe and Ricardo Ramirez Sandy Rogers Payton O’Donnell Susan Pentlin Julie Ramsden Lois Rohe Jan O’Hanley Yael and Yaakov Perelmuter Kristy Ranallo Kat Rojina Sean Ohlemacher Suzanne and Victor Perez Aimee and Devon Randall Connie and William Roletter Laura Oiler Daniel Perich Christina Randall Deborah and Richard Roman Molly Older William Perlman Karen Rapozo Jennifer Rominger Laura Oliver Judith and Joel Perlson Penny and Terence Rathbun Julia Romm Lisa and Eric Olschwanger June Perlstein Penny Rathburn Sarah Rose Kevin O’Mara Martha Peters Maria Ravnic Jacob Rosen Marilyn and James Oneil Christopher Peterson Christine and Del Raymond Judith Rosenberger Gina Marie Onorevole Cathie Pezanoski Beth Reardon William Rosenberger Diane Oostendorp Andrea Pfancook Allyson Reboyras Bernice and Ashanti Ross David O’Regan Ann and Paul Phillips Amy Reed Marylou Ross Debra and John Orenstein Jerry Piaskowy Michele Reed Micheala and Robert Rossell Kate Orlando Lois Piccolotti Susan Reed Lisa Rossi Susan Orlowitz Kathleen Pici The Refinery Beverly Rossio Benjamin Ortiz Becky Piegore Sandra Reguera Bonnie and Stephen Rowley Lisa O’Shaughnessy Theresa Piehler Eric Reitzel Mary Royce Colleen O’Sullivan Mya Pierce Elizabeth Renner Sonya Rozansky Mary Theresa O’Sullivan Matthew Pigeon Sue Reynolds Desma Rozovics Benjamin Otero Laura Pignataro Adrienne Reynoso Patty Ruback Brijette Overby Denise Pike Mayann Rhod Frankie Rubel Susan and Kenneth Oxendorf Elaine Pilson Stephanie and Jim Ricer Elizabeth Rubero Christina Pacewicz Debra Pinto Stacey Ridinger Kelly and Jason Rubero Paulette Pacitti Nancy Pirozzi Pamela and James Riel Jason Rubin Gretchen Padula Lori and Frans Ploegmakers Rocco Rinaldi Joshua Rubin Mark Pagel Lois and William Ploetz Matthew Riojas, Esq Paul Rubin Samantha Pakech Ashley Pluta Sean Riordan Pauline Rubio Terese Palance Rena and Richard Pocrass Tom Rios The Ruiz Family Kathleen Palese Mona Polanek Donna and Bill Ripple Denise Ryan Jolene Palmer Betty Polimenakos Emery Risdall Maria and Edward Ryan Laura Palmer Rebecca Pollack Judith Ritner Jamie Ryder Marietta and Carlo Palombi Kathy Pollen Marie and Bryan River Linda Ryen Laura Palombo Lynda and Dan Polto Sam Rivera Greta Rzymek Susan Panny Jenny and Mike Pond Yvonne Rivera Mary Kay Sablich

37 IMMUNE DEFICIENCY FOUNDATION

Matthew Shaffer Shelly and Norman Speicher Irene Temple Cannaan Said Beverly Shanholt Angela Spencer Susan Terzuoli Ester Salama Agnes and Warren Shannon Diane and Gregory Spencer Christina Teubert Susan Salamon Shirley Shapiro Edwina Spencer Trudy Tharpe Maura Salata Rhonda and Edward Shapson Takarra Spivey Judith and Frederick Thibault Anahis Salgado Amy Sharp Jacqueline and Samuel Sprowls Andrea Thomas Gloria and Bernard Saloky Janalyn Sharp Ellen Squitieri Coleen Thomas Bill Saltzer Eileen Shaud Jean St. John and Peggy Thomas Barbara and Joseph Salus Kate Shea Steve Roenker Rachel Thomas Kathi Salyer Olive and Jerry Shea Justine Stamper Rene Thomas Ravi Sambangi Carol Shedlin Judy and Stephen Stanley Tami and Steven Thomas Ken Samson Elaine Sheehan Karen Stark Marc Thompson Alison Sanchez Kelly and Clint Shelby Ryan, Amber, Ezekiel Sandy Thompson Amanda Sanchez Melissa Shelly and Maddie Starkey Theresa Thompson Char And Mike Sands Marc Sherby Laura Stayer Thompson’s Grill Cindy Santo Tracy and Jacob Sherman Bette Steele Stacy Thorne Anita Sapalidis and Terrie Sherman Amy Steinberg Keith Thurman Anthony Scutti Cyndie Sherwood Rachel Stelly and Doug Ticaric Sassy Cakes, LLC Emily Shircel Robert Marcantel Jamie Tillerson Lisa Saxonmeyer Kathleen Short Anna Sterk Jonathon Timberlake Christopher Scalchunes Yvette and Jerry Shorten Brittaney Sterling Dianne Timbrell Carletta and Craig Scarberry April Sica Lauri Stetser Martin Timm Dave Schaefer Gail Sido Andrew Stevens Kathy Timmers Ashley Schettler Kristie Sieracki Grace Stevens Lourdes Tirado Lydia Schiazzano Lorraine Silk Susan and Kevin Veronica and Michael Todd Nancy Schieble Sergio Silva, Jr. Stevenson-Hulett Cynthia and Gary Tolin Carol and Francis Schmidt Stephanie Simmons Alison Stewart Lou Tomeo Courtney Schmidt Eileen Simpson Antonio Stewart Mary and Leo Topjian Rosemary Schock Julie Singer Carol Stewart Sandra Torcato Laura Schroeder Rosemarie Singh Sandy Stich Erik Torkelson Vicky and Mark Schubbe Gayle Sinitean Susan Stickley Priscilla Torres Dietrich Schuhl Krystyna Siwko S. Stinson Stephanie Trafton Sean and Gina Schwab Gwen Skalish Jacqueline Stipetich Kathleen Trapani Alison Schwartz Rosalyn Skelton Martha and Paul Stofcheck Esther Trauner Lorene Schweig Alfreda Skiffer Jodi and Jay Stough Ryleigh Travis Darla Schwertfeger Lynn Slazyk Darlene and Paul Stutelberg Sheila Treacy Maj Scott and Shirley Smothers Ralph Slesinski Dorothy and Joseph Suehle Olga and Alejandro Trejo Ruth Scotto Sandra Slesinski Patricia and Edward Suffern Marian Tress Jackie Scudiero Delisa Sliker Sugar Pink Cafe Karen and LaVern Tressler Jana Seagard Debbie Slowinski Kristie Sup Karen Tressler Jill Seagard Doug Slusser Shuichi Suzuki Francis Trevino Amy Seda Virginia Smalley Anne Swanson Daniela and Heidi Trimper Mag and Jim Seedorf Courtney and Toledo Smalls Stuart Swanson Stephanie Truitt Kevin Seifert Janice and Garry Smith Carol Sweet Janet Turnbough Tracy and Dale Selbert Jeanne Smith Sweetfrog Enterprises, LLC Andrea Turner Lisa Seligson Katherine and Ralph Smith Becky Swersky Richard and Arlene Tuton Jim Selken Megan and Charles Smith Erica Swift Barbara Tymchyshyn Angela and Richard Sell Rita Smith Andrea Szerzo Elisabeth Tyson Michael Senamontry Susan Smith Christine and Paul Szudrowicz Joan and Myron Uecker Carolyn Sennett Marianne Snell and Helen Curtis Anna Szudrowicz Brantlee Underhill Diana and Terry Senter Joan Snodgrass Mark Szumigalski United Way of King County Shane Serafini Robert Snyder Michelle Taliaferro United Way of the Greater Sheryl Sesack Mun Shig and Ock Jhee Son Michelle Tate Capital Region, Inc Sriranjani Seshadri and Lucie Soto Deborah Taylor Ruth Ann Uphoff Rajesh Ranganthan Deborah Souvigny Jamal Taylor Kathy Uram Anne Settanni Rick Sparks Katherine Taylor Jennifer Uribe

38 Annual Report 2013

Under $50 Patricia Wang Donna Whitehead Carole and Jay Wolt Lisa Utley Wantz Chevrolet, Inc Karen Wicklund Anna Womac Lynn Vaini Diane and Robert Ward Susan and Orion Wicklund Allison Wood Chantell Valdez Jenny Warnasch Lena Wiese Dianne and John Wood Angie and Raul Valle Joanne and Jim Waryga Diane Merrill-Wigginton Robbi Wood Ashley Van Dyke Rita Watkins Jennifer Wilke Tara Woodbury Sally Vance Marita and Mike Watson Angelae Wilkerson Nancy Woolridge Teresa Vance Stephanie And Darrick Watson Cindy and Doug Wilkins Amanda Wright Muranda and Michael Vanpatten The Waychunas Family Danielle Wilkins Anne Wright Elvira Vargas Caitlin Webb Nancy Wilkinson Carolyn Wright Josefina Vargas Diane Webb Kaitlin Wille Greta Wright Tyler Vaykovich Diane and David Weber Becky and Timothy Williams Tiffany Wright Sofia Vela and German Gomez Kimberly and Joel Weber Brenda Williams Rochelle and Scott Wyatt Jessica Velez Zack Weber DaRonthony Williams Susan Wynkoop Margaret Venneri Jim Webster Ein and Danny Williams Yarden Yanishevsky Kathleen Verna Margaret Webster Lisa Williams Alana Yankowitz Fred Vietri Mara Weinstein Pamela and Michael Williams Audrey Yannitty Becky Vigil and Marilyn Ednsley Megan Wejrowski Paula Williams John Yerka Valerie Vincent Dave Welker Rita and James Williams Jami Yetter Kacie Vitek Sandy Weller Raymond Willman Denise Young Karen Vizzi Janet and Rod Wellman Richard Willows Cynthia Yuchas and Frederick Vogt Donna Jeanne Wells Kathy Wilmont Jeffrey Benoit Karl Vollendorf Nancy Welsh Nancy Wilsey David Zacker Jacqueline Vollmer Bob Wernecke Albert Wilson Laura Zago Virginia Vonhof Pamela Werner Chris Wilson Melissa Zahlten Yanni Vourgourakis Lillian West Kellyn and Logan Wilson Jennifer Zakutney Kelli Voytek Mary Westberry Lola Wilson Beth Zarret Vladimir Vuksan Western Reserve Window Jeannie Wimble Monika Zarycka Sheryl Wagenheim Cleaning, LLC Deborah Winans Bernadette and Joseph Zeleznick Richard Wagner Lynette Westfall Jennifer and Henrick Winter Lynn Zepka Joanna Walk Norman A. Wettstein Shayla Winton Tong Zhang Jane and James Walker, Jr. Dara Wexler Sandra and William Witkoski Arlene Zilske Joyce Walker Leslieann and Alex Wheeler Lenny Wlezien Mary Zingales Lisa Walker Nancy Wheeler Lillian and Cass Wodynski Luanne and David Zipkin Mary Walsh Gloria and Kenneth Whitaker Kathie Wolfe Eunice Zordilla Norah Walsh Donna and Steven White Cathy Wolff Lucy Zurba Terence Walsh Martha Whiteacre and Deborah Wolff Betty and Stanley Walton Elaine Rhodes Alison Wolfley

39 IMMUNE DEFICIENCY FOUNDATION

IDF Walk for Primary Immunodeficiency Teams 2013

3 Amigos Got IgG? Ryan’s Rascals Team Six A Step Above Grannie B’s Team Ryder’s Stripes Team Stephanie Accredo Health Group Grifols Sean’s Troopers Team Superman Advocate Munchkins Halper’s Helpers See Jane Walk Team Tara Aidan’s Babes Ham-Wal Team Skip For My Lou Team Test Aidan’s Herd Holli’s Herd Slow pokes Team Tiger Lily Alyssa’s Angels Hope 4 Hunter Soldiers for Agammaglobulinemia Team Travis AlyssaStrong IDF Teen Team STARCON Striders Team Trooper Amy’s Antibodies Isa is a Fighter Stripez Team Zack April’s Amigos Isabelle’s Dream Support Wyatt Team Zebra Maddie’s Herd ASD Healthcare / USBioservices It is what it is Team Aidan Team ZebraMommas / IgG America IVIG and Tonic! Team Amerita The Blakey Bunch Ashley’s Angles Jack’s Team Team Arizona The Crease Augie Rocks Jersey Zebras Team Bick The Ellie-Gators Awkward Avengers Josie’s helping hand Team BioFusion The Germinators B COSEY for Life Judy’s Jammers Team Brian The Great Lakes Avengers Baxter/Parexel Jumping Jacks Team Caeden The IG for Stripes Team Bihn 44 Kedrion Biopharma Team CHOP The J.e.R.M Fighters Bioscrip Kennedy Team Corniuk The Jedi’s Biotest team Kristin’s Krusaders Team CuKo The Low Down on PIDDs Blood Type AUSTIN Kyzier’s Krew Team Davies The Mona Lisas Brandi’s Bunch Larsen Boys’ Superhero Squad Team Emilee The Shown Family Brayden’s Zebras Believe Lash Group Team Emily The Sub-Q-Tees Bubble Poppers Laura’s Amazing Antibodies Team Emma The West Coast Avengers Bunco Moms Lisa’s Big City Zebras Team Faith Tito & Alijah Caremark Lurie Children’s Team Fantastic ToKaVi Christopher’s Body Guards Madeline’s Wish for a Cure Team Frankie Tracy’s Troops Chuck’s Champs Megan’s Immune Boosters Team Gamma Girl Troop Ramus Cool Cousins Melanna’s Misfits Team Grifols u can’t see me Cope Family Michelle’s Team Team Guin - The Guin Globulins US Bio CA IVIG US Courageous Zebras Milano Boostin ImmuniTEAM Team IDF Walk for Dad Crainiac Miles for Madison Team Iowa Walk for the Cause Credit Suisse Mustaches for Mason Team Jackson and Justus Walk to a Different Hoofbeat CSL Behring No Big Diehl Team Jacob Walk with Walgreens for the IDF Curly Girl Club Noah’s Team Team Jodi and Julie Welch CVS Caremark Old Soul Fighters Team Joshua White Rock Renegades ‘97 David’s WAS Warriors Olvera Team Justin Wildcat Warriors Diane’s Gamma Angels Paddy’s Pub Team Magic Wilson’s Wonders Dorian’s Dream PID Rally Walkers Team Marcia Z Team Elwood Tigers Precious Pacific Zebras Team McKenna Zak Attack ERADICATORS Prime Time Zebras Team Naughton Zebra Frog Family for Aidan Pumping for Pattiann Team Nixon Zebralicious FladFam Rams Team Noah Zebraneestas FladFam Support Team Regina Armstrong Isaiah Team Olivia Zexy Zebra’s Germ Busters (Zay) Williams Team Rath Go for Gus RETC Cadets Team Red Go Joe 6 Ryan’s Gang Team Rosengard

40 Annual Report 2013

IDF Walk for Primary Immunodeficiency Sponsors 2013 National Presenting Sponsor Baxter International Inc.

National Supporting Sponsors lgG America/ASD Healthcare/US Bioservices Vidara Therapeutics Local Platinum Sponsors CSL Behring* Haemonetics Walgreens Infusion Services** Local Gold Sponsors Allergy & Asthma Specialists, P.C. Bio Products Laboratory** CVS Caremark Specialty Pharmacy Grifols Orsini Specialty Pharmacy Services Local Silver Sponsors Biofusion Biotest Pharmaceuticals Corporation** BioScrip* Hand & Stone Massage and Facial Spa Navistar Local Bronze Sponsor Poretta & Orr Inc.

*Two sites **Three sites

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Special Events IDF is grateful to the members of our community who raised funds on IDF’s behalf in 2013.

Adairis and Luis Perez Denis Downton Kathy Lingo Anthony Rooklin Travis Allen Jessica Ryen Doyle Susie Lynch Melissa Rosa Marylou Ammerman Michelle Dudley Carrie Lyons Samantha Rosen Curtis Anderson Ellenmarie Dugan Audrey Mack Elizabeth Rubero Laura Anderson Lauren Dunlap Jennifer Mahan Jeanette Scott Sherry Artman Nick Faber Wayne Mahan Chelsee Self Tracy Barr Jessica Ferguson Loretta Mann Madison Shaw Michelle Barrett Emilee Fontenot Megan Maronski Kerri Sowers Clarence Barton, III Michelle Fox Rebecca Massey Louise Sowers Ashley Beaty Diane Gorman Emma McCorkindale Susan Spann Laura Bekier Barb Grisham Tamara McKinney Shannon Stamey Brigitte Bennethum Odalid Guerra Pam McQuillen Sheryl Stein Heather Benser John Gunthowski Nai Merilatt Sarah Stollenwerk Michelle Bickerman Melissa Hallman Jennifer Michalak Kristin Strobl Sally Blumenburg Jennifer Hannigan Tamara Miller Becky Swersky Catherine Bourassa Karen Harkey Nikki Morris Tammy Swigert Emma Bozarth Cathy Haynes Stephanie Moseley Allison Tackett Celia Brent Cole Henjum Xan Moseley Michael Thomas Lindsey Bruce Pamela Holland Laurie Clarke-Mullen Rachel Thomas Jessica Brunner Dale Hulst Alia Naffouj Joanna Tierno Eli Bryant Heather and Chris Huot Cathy Palmer Elizabeth Trent Paula Burton Teresa and Dave Jednorski Elizabeth and Jonathan Pence Charlene Turner Stefani and Ralph Bush Daisy Johnson Nicole Petracca Susan Turner Missy Butler Jeff and Jill Jones Richard Petracca Kim Vickers The Cacucciolo Family Dina Kancepolsky Claudia Pope Austin Van de Vin Brian Conrad Michelle Kaysen Kim Powell Theresa Walsh Kimberly Conrad Cassie Steagall-Kelm Promise of Hope La Donna Walters Teri Conrad Victoria Kesling Aimee and Devon Randall Lynn Walton Dona Darr Paula King Joan Roberts-Reed Susan Watkins Tammy Davis Theron Knapp Debbie Rento Toni Westerfield Theresa Davis Susan Krebs Matt Restivo Cassidy Wilbanks Kitty Delany Cindy Lambeth Tina Richardson Brianna Wyckoff Amanda DiNovo Brian Lanni Wendell Richmond Tracie Young Amanda Dixon Kimberley Larsen Barb Roberts Zachary Dorsett The Leeth Family Zander Rogin

IDF Plasma Center Partners Program IDF appreciates the companies that participate in the IDF Plasma Center Partners Program and help raise funds and awareness for IDF. The support, enthusiasm and creativity of center employees along with the generosity of plasma donors has helped this valuable program develop from a few centers in 2005 to nearly 300 centers nationwide.

In 2013, the centers helped raise $155,213.44. Biotest Plasma CSL Plasma Grifols Plasma Center

The Immune Deficiency Foundation makes every effort to ensure the accuracy of donor and fundraiser lists. We extend our deepest regrets to any donor who may have been inadvertently omitted from this report. If you have a concern or correction, please contact us at 800-296-4433.

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