ACLT brochure 2009:Layout 1 7/10/09 11:48 Page 1

The in association with The National Blood Service presents

Daniel De Gale 1987 - 2008

Sponsors & Supporters

Charity Fundraising Dinner & Dance Saturday 10th October 2009 Altitude 360 “Save the world one life at a time” ACLT brochure 2009:Layout 1 7/10/09 11:48 Page 3

As your hosts we warmly welcome you to celebrate the ACLT’s 13th successful year as a registered charity at the 10th ‘Gift of Life’ Fundraising Ball.

However, in light of our son, Daniel De-Gale’s untimely and donors.. We have now set ourselves an additional challenge to This year’s event is once again in association with the National Collectively you are all helping tonight to turn the almost tragic passing on the 8th October 2008 and weeks after his assist in raising awareness and recruiting potential donors from all Blood Service (NBS) and its public awareness campaign such as the impossible challenges ahead into real solutions. appearance and great speech at last year’s Ball, we have taken Minority Ethnic Communities in an attempt to increase the odds of VIP Appeal, which encourages blood and bone marrow donation in the decision to mark this year’s Gift of Life Ball as the very last finding donors for all. The numbers of potential donors from all the African, African Caribbean, Mixed Race and all minority ethnic Many thanks to our many volunteers, Staff, Trustees, Patrons. of its kind. The event, which originally annually celebrated the Minority Ethnic communities is appalling low and therefore reduces communities. Family and Friends. We truly appreciate your continued support anniversary of his Bone Marrow Transplant, will now be a the chances of finding suitable matches. and ideas. celebration of his great and influential life as well as giving Tonight there will be opportunities to win many Raffle prizes plus hope and inspiration to those fighting Bone Marrow cancers As the ACLT moves forward and continues to raise awareness and to there will also be a Silent and Loud Auction to win many varied and Many thanks to our amazing phlebotomists, who take the small such as Leukaemia. host registration drives throughout the UK, the African, Caribbean, valuable items. Therefore we hope that you have not left your debit blood samples. Once again without your steady hands it would be Mixed Race and Ethnic Minority representation on the National or credit cards at home as the aim and purpose of the evening is to so much more difficult, you all make it look so easy and have a very Blood Service and Anthony Nolan Trust bone marrow registers We established the ACLT, a Croydon based charity, in June 1996 raise much needed donations on the Trusts behalf. calming effect on the potential donors. continues to grow, and this in turn offers hope to all sufferers because after 24 years of existence of the UK registers, only 550 around the world. Black people had ever registered - that's just 23 people coming Looking back over the last 13 years once it is amazing to see what Thank you all for your support through the past 13 years, we hope forward per year on average! When the charity was set up, Daniel has been achieved within the ACLT. Daniel De-Gale’s successful that you will continue to positively enhance the work of the ACLT in In June 1999, after six years of searching for a bone marrow match, had already been suffering from Leukaemia for 3 years and we were transplant, meeting his donor and the awarding of The Pride of 2009 and beyond. 12 year old Daniel De-Gale finally received a bone marrow informed that his only hope of survival was to receive a bone Britain award to us (Beverley and Orin) has been the personal transplant at Great Ormond Street Hospital. His donor was a 45 year marrow transplant. Due to the fact that bone marrow contains highlights. In addition the sight of many thousands of people The ACLT is funded by private donations and we sincerely hope that old lady called Doreene Carney living in Detroit, Michigan, USA who racially specific characteristics, the compatible donor for Daniel registering at our drives as potential Bone Marrow donors has left tonight you will also be able to financially support this great joined the register in the hope that one day she would be able to could only be found within the black or mixed race population. us all at the ACLT feeling so emotionally high. Finally getting the Fundraising event tribute (to the late great Daniel De-Gale), and assist someone in need. news of successful donors being located and known patients leave tonight’s event with an everlasting visual and audible WOW At the time there were around 285,000 registered potential bone getting a 2nd chance of life is the most rewarding of experiences. impression. We travelled with Daniel to Detroit in April 2004 to meet the person marrow donors in the U.K. Unfortunately, only approx. 550 were who gave him back his life and we were all able to say ‘thank you’ to black or mixed race. We were informed that there was only about a The ACLT has raised the numbers of potential Black/Mixed Race In closing we hope you all enjoy an evening of exceptional food, this wonderful person who didn’t know us from Adam but wanted to 1 in 250,000 chance of Daniel finding a compatible donor. This was donors from 550 to approx. 29,000, and many lives have been saved friendship, entertainment & warmth. do something so powerful. Doreene said at the time: “I had no idea due to the low numbers of the Black community on the register and in the process. The ACLT has directly recruited at least 25 Black, how one simple act could impact on so many people in such an the vast diversity of the racial group. White and Ethnic Minority donors who have donated Bone Beverley De-Gale & Orin Lewis amazing way.” Marrow/Stem Cells to a sufferer, including Daniel De-Gale’s cousin (Parents of Daniel De-Gale and Co-Founders of the ACLT) Bone Marrow is a blood-like liquid, which can be donated by one Kamisha Guthrie, Johanna Charles, Francesca Clarke, Helen “When I tell my story, people ask me what happened to your bone? person to another in a simple procedure. The likelihood is that Robinson, Footballer Clive Wilson and Actor David Harewood. Southbridge House, Southbridge Place, Croydon, CR0 4HA I just want to let everybody know that there is nothing to be afraid finding a matching donor is considerably greater in donors from [email protected] of. I can honestly tell you that I sowed a seed and I have reaped my the same ethnic background. The long term aim of the ACLT is to raise funds (estimated £1.5M www.aclt.org harvest. We are here on this earth to help other people and we per annum) to start a small independent UK Ethnic Minority Bone Tel No. 020 8240 4480 should do all that we can. I feel blessed that I could be part of A person of African, Caribbean or Mixed Race descent suffering Marrow Register facility to assist and sit alongside the existing Fax No. 020 8240 4481 Daniel's healing and part of his life." from Leukaemia or other Bone Marrow disorders has a very poor World Bone Marrow Registries. That will enable us to undertake chance of finding a suitable bone marrow donor, something worldwide donor searches on behalf of Black, Mixed Race and This is why the ACLT was set up; sadly there are thousands of presently like a 1 in 100,000 chance and possibly higher, compared Ethnic Minority patients in all around the world. Funds raised will people awaiting a life saving Bone Marrow Transplant like Yvette to a possible 1 in 5 chance for a White Northern European sufferer. enable us to set up the register database and pay for the testing of Gate, Donna Benjamin, Cyril Onyejekwe, and Sandra Hinds. The real This still gives a Leukaemia or Bone Marrow disorder sufferers of many potential Bone Marrow donors by external UK Laboratories. In stars and celebrities in the room tonight are the various donors, Black origin a very poor chance of finding a suitable match, simply the long term future fund the creation of our own Daniel De-Gale patients, recipients, ex sufferers and their families. These brave but because we are not registering in large enough numbers. laboratory to enable an in-house ACLT testing and research facility. inspirational individuals are the real reason why everyone else is in attendance tonight. If you have not joined the register already and Our ultimate aim is to increase the number of Black and Mixed Race We would like to take this opportunity to say a very special ‘Thank would like to know how to become a potential lifesaver please people on the UK bone marrow registers to approx. 60,000, by You’ to our Event Management team ‘The One Event’ headed by Ms contact us on 020 8240 4480 or check our website www.aclt.org for raising awareness and undertaking numerous Bone Marrow Paschorina Mortty and all our Sponsors, Performers and attendees. details about our future clinic dates. registration drives and also promoting the need for regular Blood ACLT brochure 2009:Layout 1 7/10/09 11:48 Page 5 ACLT brochure 2009:Layout 1 7/10/09 11:49 Page 7

So deeply missed and forever loved

Daniel David De-Gale (14 March 1987 - 8 October 2008) inspired and new, celebrity, young and old, rich and poor, Daniel did not For the last 9 Gift of Life Ball’s Daniel has made an impromptu speech Special thanks to many young friends and associates of Daniel, a major push to promote awareness of Leukaemia, Bone Marrow discriminate he loved, respected and cared for all those in life. That love that has brought many of the attendees close to tears and raised the especially the “PLAYZO” family for keeping his flame alive and shining Transplantation and Blood donation in the 's was definitely in the church on Friday. In attendance were the Duchess roof with the applause from the standing ovation. through your words and deeds. Stay strong and keep focused on your black and ethnic minority community when, as a child, his of York, Colin Salmon, Richard Blackwood, Keisha Buchanan, Rudolph own ultimate prize for your life and career. Walker, Alastair Stewart, , Ian Wright, Garth Crooks and At last year’s event Daniel said “I am studying hard and will complete mother Beverley and I (Orin Lewis) launched a a charity called many more Celebrities. my final year at university in order to become successful and make my Finally, special thanks to Sharmaine, Angela, Audley, Raymond, the ACLT in a desperate search for suitable bone marrow donors parents proud.” Of course he was cruelly robbed of the chance of Pauline, Ellington, Doreene Carney, nephews, nieces, cousins and other for Daniel and the many other Black and Mixed Race sufferers. Step-brother, Andre Hackett, gave a very brief but highly charged and completing his final year, but the Chair of the University Awards Board, extended family members for all of the continuous love and support witty tribute to Daniel which had everyone in stitches of laughter. His with the agreement of External Awards Examiners at his University has that Beverley, Dominique and I have received. The following words reflect my own personal tribute to my beloved son, wonderful comment “Daniel had not many years in his life but plenty of recognised the great educational work that Daniel had already Daniel De-Gale, affectionately known as "PLAYZO" to a lot of his friends. life in his years” brought an instant prolonged round of applause. completed and have made an exceptional decision by awarding him a In closing, I feel blessed. Daniel De-Gale brought countless hours of joy I am a very lucky person, and I'm incredibly grateful to have had him as Special posthumous Aegrotat award on the basis of Daniel's and smiles to the faces of his entire family, as well as to everyone who my step son (SON). I am here to tell everyone what a huge influence he Thanks to Doreene’s wonderful gift Daniel was able (and continues) to performance in those parts of the course that he was able to complete. spent more than a few minutes around him. Daniel made the world a was on my life as well as all of those who knew him. He made such an inspire those fighting ill health, especially Cancer, to never give up and An Aegrotat award takes account of the likely outcome if a student had happier place, was a tremendous role model and he will be sorely impact on me and I am sure on you so I will try to keep this short. live life to the maximum. He also inspired tens of thousands of people been able to complete the requirements of the course. Beverley and I missed. from all races (especially Black/Mixed Race) and walks of life to find out will be very proud parents at the Graduation awards Ceremony in He was the most level headed individual you would wish to ever meet, and listen to the facts about Bone Marrow and Blood donation. He made December. This feature is meant as a tribute to Daniel. But he would have insisted humble and kind to a fault. He had his faults like the rest of us, however so many people give up believing the Myths, Fears and Taboos about that it is not just about him, he would say what about Imogin and the he would always listen and take note of constructive advice. He loved Bone Marrow and Blood donation and convinced them to register as Additionally, the University have also set up an award named the Spirit others needing help now? his family, especially his Mum, Dominique and his biological Dad, potential lifesavers. A classic example is Ms Helen Robinson who I of Sports Therapy Daniel De-Gale award in his memory. This will feature Benedict. In turn he showed me love and total utter respect, despite my recently met by pure chance at an ACLT Fundraising event. She every year the student nominated will receive a certificate for the Therefore please register to see if you can help the many others perceived tough external appearance. Inside I always felt very proud of informed me that back in the autumn of 1998 she took time off work to award, and is based on Daniel's efforts in studying as hard as he could needing a matching Bone Marrow donor and those needing Blood being his father and told him so. The last Xmas and Birthday card that queue outside in the freezing cold to register as a potential donor at the through all that life threw at him. Transfusions.. he gave me expressed very clearly his feelings for me for being there ACLT’s biggest ever Registration drive in the car park of Tesco’s when he really needed help and assistance. Shopping Mall in Brixton. She did so because of Daniel and wanting to Everyone changes the world. The only question is how and by how Daniel may no longer physically be with us but his aura, vibe and effect help him and anyone else. Well some years later she actually went onto much? What is your legacy? on his family, friends and the wider community of all races and Daniel was a former Leukaemia sufferer who was diagnosed with the become a matching donor for young lady. There are many other similar nationalities is so profound and longstanding. His name made people condition in April 1993, suffered 2 relapses over a 6 year battle and who examples including his cousin, Kamisha Guthrie and actor David An Earth Angel walked amongst us and his name was Daniel and he smile and think of all the potential good things in life. So please at some finally won his battle against Leukaemia when on 16th June 1999 at the Harewood. That is what Daniel De-Gale was all about, believing, aspiring never really grasped the effect he had had on the community and stage today raise a glass and make a toast to celebrate Doreene age of 12 he received a bone marrow transplant from an unrelated and achieving. people in general, because let’s remember he was still only a young Carney’s wonderful gift and another toast and make a cheer to the great donor, Doreene Carney, at Great Ormond Street Hospital. boy/man. He went through a lot for his short years, but he is still only a Daniel De-Gale who achieved more in 21 years of life than many of us As a long term tribute to Daniel’s memory the ACLT & the NBS have boy. Albeit a very courageous, awe inspiring, positive thinking young ever could in countless lifetimes. The transplant enabled Daniel to pass 12 GCSE’s and 4 A Levels, attend commenced a new campaign to encourage the Black and Mixed Race man whose legacy will go a long way in affecting so many other lives. Metropolitan University completing 2 years studying Sports community to become regular blood donors as well as potential Bone Daniel your mission in this world has been accomplished, you have Therapy and truly enjoying life and making many new friends despite Marrow donors by donating a unit (475 mls) of blood. In March on the Beverley and I have always known there had to be a method to this helped save so many lives and helped inspire so many others to try and battling too many (non publicised) physical hurdles he had to anniversary of what would have been his 22nd birthday, a total 90 Black madness that Daniel had to live through and it is generally felt that give the gift of life. So it is now for the rest of us to do the right thing as encounter during the last 9 years of his life. & Mixed Race people donated 1 unit and we also managed to recruit an from a negative situation a positive solution began. But now we have to a true legacy to you and do likewise. additional 20 new bone marrow donors. Most in attendance were carry without our Daniel, it is very tough but we will not stop trying to Daniel was in remission and free of Cancer, but it was after a long and already on the bone marrow register. help others in need, because that is what Daniel would automatically My brave and handsome son Daniel De-Gale, what an inspiration he is brave fight with an illness not related to his cancer, that Daniel passed expect from us and we will not let him down. to us all. away on the afternoon of Wednesday 8th October 2008 in University Our aim is to celebrate Daniel’s legacy and all that he achieved in his College Hospital, London due to complications with his health which life by encouraging the community to step forward and to donate blood The entire family of Daniel De-Gale would like to express our thanks and Thank you Daniel eventually led to multiple organ failure. I watched him fight with on a regular basis to help the many people requiring frequent and/or deep appreciation for the many expressions of sympathy, consolation, tremendous courage and strength to the very end. He is my ultimate life saving blood transfusions and to become potential bone marrow love, support and prayers during the last 12 months. Sleep Tight and Good Times hero. donors. A special personal thank you to Ms Janet Irons who with the assistance Orin Lewis Daniel was 21 years old. Last week (5th to 9th Oct) the ACLT and the NBS coordinated a ‘Daniel of Lauren Farrow and other ACLT/Family members ensured that the (Proud Step-Father and written on behalf of Beverley and Dominique) De-Gale Blood Donation Week’ in London, Croydon, Birmingham and many messages of condolences and all ACLT operational activities were He was loved by so many people and this became very clear on Friday Bristol. where many Black and Mixed Race people, especially young monitored and controlled during the the days and weeks before and 24th October when so many people gathered to pay respect to the people stepped forward as blood donors as a tribute to Daniel. after Daniel’s passing.. Also a special thanks to Verna Brackett for legend, Daniel David ‘Playzo’ De-Gale. Among those were friends old personally and practically supporting Beverley and me (Orin) during the hours and days after Daniel's passing. ACLT brochure 2009:Layout 1 7/10/09 11:49 Page 9

Master of Ceremonies/Performers

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AGAZINE M careers through The National Black Terrence Higgins Trust and Women's performing a series of spectacular Jazz Artist and UMA 2008 nominee, T BUSHMEAT RumkingRELL’S RUMFES TRADE CB BUR IAN AT MAHIKI EJO MIXING IT IVALS INE LAD • DRINKS & FEST DU’A • RESTAURANTS T’S ISLAND GRILLS Women’s Network and is a Visiting Aid. Beverley also presents BBC2’s Christmas concerts in London, and has just won the Best Jazz Artist No doubt his growing fan base will be • TONY WRIGH N RECIPES • TRAVEL AFRICAN-CARIBBEA EVILFISH ADS UP WITH D ROS PLAY HE PS FROM THE P HOUSANDS TI HOLDEM WIN T NO LIMIT TEXAS RS RULES OF S FOR BEGINNE Professor at the University of the Art. radio show ‘Beverley’s Gospel Nights’. Birmingham and Harrogate., for the 2009 MOBO awards. captivated by Adaggio’s rich POKER Bookings/events information: YolanDa’s talent knows no boundaries interpretations, influenced by classic Brenda has pledged her support to The In 2008, Beverley established her own www.thomasspencerwortley.com. as she enjoys TV show presenting and composers such as Dvorak and Bartok GV Media business solutions in print & online African Caribbean Leukaemia Trust record label - Hurricane Records, to pursuing an academic career in and contemporary artists such as over many years, for which we are release her sixth album ‘100%’ in Management Science and Social Mobb Deep for many years to come. For further info contact Ope Bonkole, Head of Advertising, Marketing and Circulation truly grateful. Once again, we are 2009, featuring a duet with Chaka Research, finishing her PhD at the honoured to welcome Brenda as the Khan. University of Kent...whilst finalising host of this year’s Gift of Life Ball, and her debut album and securing a much how appropriate since she also hosted sort after recording contract! 020 7510 0340 the very first Gift of Life Ball in June 2000. ACLT brochure 2009:Layout 1 7/10/09 11:49 Page 11

Colin Salmon - Actor diagnosed as needing bone marrow transplants in finding ACLT Patrons life saving matches or that matching is race specific. I Colin Salmon is a Patron of the ACLT, immediately joined the register at an ACLT registration clinic registered as a potential donor and is and remain proud to be associated with the work that’s being one of 's best actors. With a done by continually raising awareness and the recruitment bold voice and posture, Colin makes his of new potential bone marrow donors’. I am thrilled that you have joined us tonight to characters a favourite among help raise funds for the African Caribbean audiences for every role he plays. He As a valued Patron of the ACLT, John has continuously Leukaemia Trust (ACLT). made his feature debut as Sgt. Robert helped to raise much needed funds on behalf of the charity. Oswald in the British mega-hit mini- series "Prime Suspect 2" (1992)” which I first met Daniel, Beverley and Orin as they gave him much acclaim among British audiences. He has a Keisha Buchannan embarked on their mission to find a donor. In recurring role in the James Bond films as Charles Robinson, – UK Singer June 1999, Daniel became the first black person M's Chief of Staff. He has also appeared as the Commander, James "One" Shade in the videogame-to-movie Resident Evil I first heard about the work of the ACLT in the UK to receive bone marrow from an (2002) and played Oonu, squad leader of the Skybax in the through a campaign in 2006 on behalf unrelated donor. Daniel celebrated nine years mini-series "Dinotopia (2002). His other film credits include of 7 year old Keiton Knight, who was Captives (1994), Wisdom of Crocodiles, The (1998), Fanny post transplant in June 2008, but sadly passed diagnosed with leukaemia and and Elvis (1999), Mind Games (2000), and My Kingdom away in October 2008. urgently needed a bone marrow (2001). His theatre credits include 'Ariadne' at London's transplant to survive. Queen Elizabeth Hall. Every year, over 24,000 people in the UK are The ACLT held numerous awareness diagnosed with Leukaemia or a related cancer. In events and registration drives in the hope of finding Keiton a the UK, a white person has at best a one in five David D. Haye aka life saving matching donor. Sadly, Keiton passed away at the chance of finding a bone marrow match, whereas “The Hayemaker” beginning of 2007 because a good enough match was not a black or ethnic minority has odds in the region found in time, however the charity was able to recruit My name is David 'The Hayemaker' hundreds of new potential donors through their tireless of one in 100,000 of finding a match. Haye and I am the current undisputed campaign. Our hope is that through Keiton and others before WBC, WBA, WBO and 'The Ring' and after him matches will be found for other patients Funds raised at Gift of Life this year will be used bone marrow transplant. For those patients who Magazine cruiserweight champion of around the world. to continue to raise awareness of the charity and do not respond to chemotherapy or radiotherapy, the world. My record is 22-1 (20 KO's), and I have been a professional boxer I felt very inspired by the charities compassion and strong help them in their mission to save the lives of a bone marrow transplant is their only hope of since December 2002. commitment to help anyone that finds themselves in this many black, mixed race and ethnic minority life. Shockingly, only 30% of these people will find dire situation and so I am honoured to be a part of the patients. Today, the co-founders (Beverley De- a match within their own family. I had the pleasure of meeting Orin Lewis, co-founder of the ACLT’s work and will do my bit to ensure they are able to Gale and Orin Lewis) continue to drive the ACLT ACLT in 2007. A meeting was arranged by a very good friend continue achieving the potential of offering the Gift of Life. who is a supporter of the work of the charity. Orin explained forward and recently passed the milestone of The Gift of Life Ball was intended as a way of to me at the meeting about the work of raising awareness, recruiting 29,000 donors, which has significantly celebrating Daniel’s bone marrow transplant recruiting potential bone marrow donors and blood donors Micah Richard contributed to saving the lives of 25 people. If which came despite the odds, but in light of his and to ultimately set up an independent ACLT bone marrow – Premiership (Manchester funds are raised quickly then the numbers of registry. I was able to experience the work of the charity 1st recent passing the ACLT have made the decision hand whilst attending a registration drive in West London on City) & International England donors and lives saved could rise substantially. to make this year’s event the very last it will host. Saturday 8th December the day of the Ricky Hatton v Floyd Footballer I hope you have a really enjoyable evening and Mayweather fight. I stopped off on my way to the Sky Just £10,000 will pay for 200 blood samples to be that you will join me in offering your support to Studios in West London to observe and to get registered I was made aware of the ACLT charity tested which could determine whether a myself. I was so impressed with the friendliness of the ACLT and the great work they are doing make sure that this year’s event is the biggest, volunteers and the approach taken by them to all members through my representative /Business matching donor can be found for the 7,000 black most awe inspiring and crucially, the most of the public wanting to register and the overall way in which Manager Chris Nathaniel. What and mixed raced people worldwide requiring a successful in its history. the work was being done. I meet some family’s that were inspired me the most was the fact that directly affected by the leukaemia and bone marrow the co-founders are the parents of a small child who needed transplants. I felt truly humbled and it really wasn’t a the help of a community to survive from a diagnosis of difficult decision to make in getting involved in the ACLT’s leukaemia. very worthy cause. It is a pleasure for me to say that I am a Patron of the ACLT and I will support They set up a charity in order to raise awareness within a the cause in any way possible. community that had never considered donating bone marrow or blood. They then went on to recruit all interested parties onto a register of potential bone marrow donors and John Barnes MBE also encourage blood donation. Not only did they assist in Sarah, Duchess of York finding a suitable donor for their son but then stepped up the ‘I have been a Patron for the ACLT since campaign to help other patients and their families in the 1999, when I was introduced to the De- same predicament their son was in. The ACLT has been going Gale/Lewis family by my friend Ian for 12 years and assists families who are looking for matches Wright who was already a Patron for all around the world. I am proud to be associated with the the ACLT. At the time I was not aware work and will do anything within my power to ensure the of the problems faced by people work goes from strength to strength. ACLT brochure 2009:Layout 1 7/10/09 11:49 Page 13

Imogin Appiah Helen Robinson

But unfortunately in Tuesday 17th February 2009 donate marrow, or rather in my case stem cells. As I Imogin had relapsed and needed a bone marrow was donating cells the process involved me getting a transplant to survive. series of injections over a course of days. Once the right amount of cells had been ‘made’ they would be The love that I have for my daughter is incredibly ‘harvested’ during a procedure similar to dialysis. deep, she means the world to me I honour her and look upon her with the greatest of respect. She is and An appointment was then made for a nurse to come always will be a fighter. My day to day bedside to my house to administer the injections. I received routine was based on her survival, she is strong, we an injection every day for the next 4 days, and on the are strong and we reached out for support and 5th day I went into hospital to have the cells received support from fantastic people. As Imogin’s harvested. condition worsened, the ACLT organised a host of bone marrow registration clinics in a bid to find a I must say, the injections themselves were ok, but match for the Imogin. when the cells were growing it was mildly painful, partly relieved by pain killers. The harvesting was But we continued with our hope, strength and painless, just a slight scratch when the needles were continued determination to find her a match. going in. Although it does take a long time, I was in However recently a male cord blood stem cell donor the hospital for most of the day. was found to be a perfect match and Imogin My daughter Imogin Appiah is a wonderful underwent a life-saving transplant procedure. It all started 11 years ago, watching TV, Daniel I received fantastic aftercare, my Donor Co-ordinator intelligent little girl. She can be a handful at Imogin went into hospital on July 17 to start De-Gale and his parents were on GMTV was in constant touch asking how I was and for the times but she is my world. One can only preparation for the bone marrow transplant. She had campaigning for ethnic minorities to come next 5 years I had regular blood tests, just to ensure imagine my shock when I received the to go through four days of total body radiotherapy forward to donate blood to see if they were a that everything was as it should be and that no terrifying news that my baby was not well twice a day to kill off her diseased bone marrow. On possible bone marrow match for their son who adverse affects had been caused. July 19, she went into isolation and received the during my lunch break at work. donated stem cells at 11.30am at the Royal Marsden desperately needed a bone marrow transplant. It’s been quite a while since I thought about my Hospital. She was in isolation until Sunday 2nd donation that is until I turned up at a Comedy show That day Imogin was with her grandmother I went along to the blood donation, mobile unit August and is recovering extremely well. at the Hackney Empire, East London on the 23rd May September 18 2006, a double shock for two people in which had been set up in the car park at Tesco’s in 2009. Orin Lewis and a team of ‘volunteers’ were the space of only a few minutes. Entering Croydon’s Brixton, South London. After my blood donation I Imogin recently celebrated her 7th birthday and she there promoting ACLT and the good work they do. I Mayday hospital, I began to tremble uncontrollably went home and forgot all about it. is running around and is getting her appetite back. I wanted to introduce myself to let him know that it but I soldiered on only to have my worst fears am so thrilled and owe the community a huge debt was his son Daniel De-Gale that had inspired me all confirmed. My beautiful daughter had Acute A few years later I was contacted by The Anthony of thanks for turning out in their hundreds to support those years ago to become a donor. Lymphoblastic Leukaemia (ALL). I asked if it was bad Nolan Bone Marrow Trust who informed me that from my Imogin over a series of bone marrow registration news. Yes it is Sheila; however it is treatable, yes that blood donation, I had been identified as a clinics. Daniel started this for me all those years ago and most certainly. Those words became my strength potential match for someone. I was requested to now Orin has asked me to write my story, so in a and my hope. visit my doctor to have further samples of blood I want to say a heartfelt ‘thank you’ to everyone who funny way I’ve come full circle. taken, which would enable the Trust to confirm my registered, please, remain on the register of potential From this day Imogin started a two and a half year suitability. On this occasion I wasn’t. donors, you may be able to save someone life. Thank Helen Robinson course of chemotherapy and I was her full time carer. you to the Royal Marsden and St George’s Hospital July 2009 In October 2008 Imogin finished her treatment we Over the next few years, I was contacted on a further for looking after Imogin and ensuring her treatment celebrated with a trip to Disneyland Paris with the 2 occasions, again being asked to give blood as I was has to date been a success. Thank You to the News magical taxi tours. Amazingly, 250 children, the potentially a match and again I wasn’t. Media for highlighting Imogin’s plight and helping to London Ambulance Service, the Fire Brigade, the encourage the Black and Mixed Race community to British Police, and the French Police all helped to However on 3rd May 2002 I received a phone call register as donors. To everyone, especially my family make it an unforgettable weekend. informing me that I was a definite match for an and friends for their love and support during this individual in America, and would I be prepared to ordeal.

Words Written by Shelia Appiah, Imogin’s Mum ACLT brochure 2009:Layout 1 7/10/09 11:49 Page 15

A Matching donor, so soon after registering Thank you to her unknown donor

However, a month after she registered, Michelle received a It was then that Sarah wrote to thank her donor. Although WE ARE ONE.... call from the National Blood Service to say she was a match there are no legal guidelines, NHS Blood & Transplant, which Gift of Life History for a leukaemia sufferer. With patient confidentiality of runs the blood transfusion and organ donor services, does paramount concern, Michelle was given no other details of not encourage donors and recipients or their families to the person whose life she might be needed to save. 'But it meet and, for two years after transplantation, will not even would not have made any difference if they had,' says pass on contact details. Michelle. 'I knew I could save a person's life.' When the organisation did pass on Sarah's note, Michelle That anonymous leukaemia sufferer was Sarah, who was first says that she 'smiled all day. I was just so happy to have diagnosed in May 2004 after she collapsed while looking for helped'. But, she felt, 'no words I could have expressed would bridesmaids' dresses for her wedding that summer. With the have been appropriate'. And she was mindful of the fact that ceremony on hold, during the next six months she was given Sarah had made it clear she was still recovering. 'I didn't four courses of chemotherapy. By Christmas the cancer was want to interfere, not knowing how ill she may still have in remission and three months later she married Mark, 36, a been,' says Michelle. teacher. Sarah says: 'Knowing there was a stranger out there who was Sarah returned to work, but in December 2005, her responsible-for my life was so difficult to comprehend,' consultant called to say her monthly blood tests showed the Sarah says. 'I had such immense gratitude towards this cancer had returned. While it could be held at bay with more person and I wanted desperately to say something, do chemotherapy, Sarah's survival depended on finding a bone Donor preparation something, to pay that person back.' marrow donor. Her siblings and husband were tested but did The photograph suggests they are the closest of not produce a match. Meanwhile, Michelle was being visited at home by a nurse So she then devoted herself to increasing awareness of the friends and could even be sisters... who injected her over five days with a hormone that would need for more black and mixed-race donors through the But because of Sarah's racial heritage - her mother Jenny, stimulate the release into the bloodstream of stem cells ACLT, which has already increased numbers from 550 when But, while blood unites them, they are not related. In 56, a teaching assistant, is English, while her father Gilbert, from her bone marrow. it first started in 1996, to a still insufficient 29,000 out of an fact, it is the first time that Sarah Thompson and 55, a retail manager, is Jamaican - the odds of finding a estimated 550,000 donors registered across all racial groups. Michelle Duncan have met. Last month, they suitable match were slim. Stem cells are capable of reproducing themselves and also 'Without a person on whom to focus, I did the charity work celebrated their incredible bond, brought together by produce 'daughter' cells that mature into cells with looking for random people to thank,' says Sarah. a new medical process and a large dose of sheer good So, the day Sarah was told there was no one on the bone particular functions - such as those of the immune system - marrow registry here or abroad who could save her was, she luck. and therefore form the very lifeblood of a bone marrow 2nd Anniversary and a poem says, 'the bleakest day of my life, a complete absence of transplant. hope'. In between another two bouts of more aggressive Three years ago, Sarah, 35, a secondary school teacher from On the second anniversary of her transplant, in November chemotherapy, Sarah and her family decided to try to locate Finally, Michelle went into hospital for peripheral stem-cell Brockley, South-East London, was suffering from leukaemia 2008, Sarah wrote to her donor once more, and she also a match themselves. treatment --when blood is taken from one arm, its stem cells for a second time. The only possible cure was a bone marrow enclosed a poem from Mark which thanked the person for his removed, and then returned via the other arm - and was transplant. Michelle, who had agreed to join the bone wife's survival. home within hours. marrow registry after a chance request when she went to ACLT assists Sarah in her search give blood, became her donor. 'That brought it home to me what I'd done,' says Michelle. ' The ACLT set up registration clinics across the capital in an 'It wasn't that different from giving blood,' she says. 'I was When you give blood, you don't have a clue where it goes. back to normal straight away, although I felt a little tired. Following the lifesaving transplant, Sarah wrote a letter of attempt to find Sarah a donor. 'Tissue types rarely match But here was a real person for whom I'd made a difference. But even if the treatment had been more invasive, I'd have thanks and in June this year, Michelle, 24, a human across different ethnic groups,' says Beverley De-Gale, And I then realised that I hadn't just helped her, I'd affected still gone ahead. I was shocked when I had the call to say I resources officer from Clapham, South London, felt ready to founder of ACLT. 'You have the best chance of finding a the lives of all the people around her, too.' So Michelle asked was a match, especially so soon after registering, but when reply. Today, they are still celebrating after a party that gave match from someone within your own family and, failing the National Blood Service to pass on her details. The pair you know that whoever's going to be receiving your bone Sarah the opportunity to introduce to her family and friends that, someone who shares the same ancestry, which is exchanged emails before meeting for the first time on July marrow has already been through so much worse, it puts the stranger who saved her life. particularly diverse among black and mixed-race groups.' At 23rd 2009. least 1,000 people joined the registry as a result, and three your own discomfort into perspective.' Their remarkable story begins in spring 2006, during a visit were found to be matches --for other sufferers. 'Before we met, I was so nervous. Would I be worthy of to the local blood bank. 'I was a regular donor,' says Michelle. Sarah's Transplant Michelle?' says Sarah. She need not have worried. 'It was like 'On my fourth visit, I was asked if I would consider joining Sarah remained in limbo, until that spring day when Michelle meeting an old friend: we ate, drank and talked non-stop for the bone marrow registry. I needed only to give an extra had agreed to give an extra sample of blood. Her Michelle's bone marrow was transplanted into Sarah using a three hours,' says Michelle, sample of blood for my DNA to be registered, so I agreed, compatibility was not perfect, not least because of the similar procedure as the method of removal. 'It took 40 then forgot all about it.' difference in racial backgrounds. minutes,' says Sarah. 'My mum, dad and sister were with me Sarah agrees: 'Even if she hadn't saved my life, I would and they cried the whole time. I was so excited, I sat there choose her as a friend.' Her father Andrew, 49, a chef, is Scottish, and her mother, texting all my friends,' she says. Marie, 46, is Mauritian. But still there were enough genes in 'Sarah will always be in my life,' says Michelle. 'We now have common for doctors to recommend going ahead. 'The stem cells soon find their way to the bone marrow and an unbreakable bond. start dividing again and making new cells,' says Dr Travers. Sarah was prepared for the transplant with eight days of It's why Sarah left hospital, just a week later, with a new 'Having someone tangible to thank, the person whose blood radiotherapy to eradicate any remaining cancerous cells and blood group, because Michelle's stem cells are now runs through my veins, has made such a huge difference to was given a 'conditioning treatment' in the form of drugs producing her blood. me,' says Sarah. 'Michelle was the perfect stranger and I am that removed some of her own bone marrow to make way for blessed to have finally met my match.' the transplant. Words re-produced courtesy of Joani Walsh and The Mail on Sunday ACLT brochure 2009:Layout 1 7/10/09 11:49 Page 17

ACLT Thanks

Organisations Individuals ACLT Family Kings College Hospital - 10k Runners - 6th June 09 Deborah Hamilton Jessica Huie Peter Harrison ACLT Volunteers Phlebotomy Training 5k Runners - 6th September 09 Deborah McNally Johanna Charles - Donor Playzo Family Addington Palace Kingston University ACLT Supporters Deniece Otar John Barnes Richard Nyeila All Stars Boxing Gym Lambourne Contractors Adetokunbo "T" Oyelola Dionne Lewis John Ferguson Rose Thompson Anthony Nolan Trust Lashings World XI Alastair Stewart Direct Debit Donors John Vincent Roy Williams - Donor Archbishop Tenison's C of E Lewisham Fire Station Alexander Amosu DJ Swing - RIP Kamisha Guthrie - Donor Sandra Butt - RIP School in Croydon Lillian Baylis Technology School Alfredina Kumbu-Smart Dominic Sutherland Katie Durham Sandra Hinds Barclay's Capital London College of All Fundraisers Dominique De-Gale Laura Murray Sarah Moore Battersea Arts Centre Communications Andrew Calvert Donna Benjamin Laverne Walker Sarah Thompson BBC London London Metropolitan University Angie Le Mar Doreene Carney Lawrence Lartey Sharifa Marshall Bigga Fish in Holloway Anthony Stileman Duchess of York Lesley Sackey Shelia Appiah Black Hair London Tonight (ITN) Arnold Sarfo-Kantanka Ebony Rhiney-James London Met Sports Therapy Simon Jean Blackbird Entertainment Loop Lounge in Croydon Audie Anderson Eddie Kadi Graduates Socio Design Ltd. British Bone Marrow Registry Loughborough University - ACS Basil Arindell Eddie Nestor Lorna Georgina-Brown Sophie Huggett Brunel University - ACS MTV Base Baz Singh Eileen Langan Lorraine Benjamin Garrett - RIP Suzann McLean Choice FM National Blood Service Beverley De-Gale's Family Eleanor Small Lynden David Hall - RIP Tamu Townsend Coburg Primary School Pakistan Embassy Beverley Frederick Emmanuel Adjei-Yeboah - RIP Marie Hanson Tanya Palmer COI Pride Media Brendan McGowan Emru Townsend RIP Mark Thompson Terry Jervis Colourful Radio QNS Caroline Neita Francesca Clarke Maurice Raynor Theo Clarke Comunica Plc Regents Park Mosque Cheryl Levy Gary John Lewis Michael Ogwo Tim Campbell University - ACS Sackville Travel Chris Phillips Gary John-Lewis Michelle Duncan - Donor Toksy Koiki Croydon College School of Social Entrepeanours Christina Renner George Ebenzer Ms Clarke-Donaldson Tony Fairweather Croydon Parish Church The Drum Centre in Birmingham Clive Wilson - Donor Guvna B Nadia Boukraa Trevor Walters De Montfort University - ACS The One Event Colin Salmon Helen Robinson - Donor Nida Usmani Trudy Simpson Essex University - ACS The Peter Harrison Foundation Conrad Franklin Helen Ross RIP Nii Sackey Verna Brackett Financial Direct Debit Donors Unison Black Members Cyril Onyejekwe Henry Bonsu One Off Donation Givers Wesley Ricketts Fire Brigade Conference Damien Roberts Humera Afzal Orchid Spencer Yolanda Brown Flying Circus University College Hospital Daniel 'Playzo' De-Gale Ike Amobi - RIP Orin Lewis's family Yvette Gate Gilbert Allen & Co University of Arts Daniel Rhule Ike Onurah P.A Hutchison Zeeshan Asghar GV Media Group Ltd University of Herts Danny Whyte - RIP Janelle Oswald Paschorina Mortty To all of the other outstanding Hackney Empire Staff University of Nottingham David Folb Janet Irons Patricia Macauley individuals such as sufferers, Heartbeat Entertainment Uxbridge College David Harewood Janet Onyejekwe Paulette Blye family members, potential JB Shakespeare Whitgift Shopping Centre Dean Sheikh Jasmine Dotiwala Paulette Simpson bone marrow donors, financial donors, and organisations that we J's Dance Factory Management Deanne - Donor Jelani Lewis Pauline & Ellington Benjamin have not mentioned due to lack of X2 Design Deborah Forth - Donor Jessica Elliott Peter Chua space, a big "Thank You" from the ACLT ACLT brochure 2009:Layout 1 7/10/09 11:49 Page 19

Celebrating 20 years of delivering strategic graphic design solutions for some of the world’s biggest brands. 5($&+287 $1'0$.($',))(5(1&(

We’re proud to be associated with ACLT and the 2009 Gift of Life Charity Fundraising Event. ACLT , Tel no: 020 8240 4480 Southbridge House, Fax no: 020 8240 4481 Southbridge Place, www.aclt.org Croydon, Charity No.1119516 T 020 8681 7612 Surrey CR0 4HA Company No.04956925 E [email protected] www.white-light.co.uk