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Consumer Health Voice Collaborative Training Program Final Report Table of Contents

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Consumer Health Voice Collaborative Training Program Final Report Table of Contents Consumer Health Voice Collaborative Training Program Final Report Table of Contents Executive Summary ……………………………………………………………………………….. 2 Stakeholder Networks ………………………………………………………………………………. 3 Resources provided in hard copy …………………………………………………….. 6 Youth Co-design Process …………………………………………………………………. 7 Appendix 1: Youthworx Report ……………………………………………………. 8 Appendix 2: Youth Consumer Representative Database ……………… 11 Appendix 3: Unitec Community Skills Class Evaluation …………….. 13 Pacific Co-design Process ……………………………………………………………….. 14 Appendix 1: Pacific Training PowerPoint Slides ………………………… 16 Appendix 2: Pacific Consumer Representative Database …………… 42 Appendix 3: Pacific Consumer Representative Training Evaluation 44 Appendix 4: Recommendations from the Pacific Sector …………… 45 Disability Co-design Process …………………………………………………………….. 46 Appendix 1: Disability Training PowerPoint slides …………. 48 Appendix 2: Disability Training Handouts …………………….. 65 Appendix 3: Disability Consumer Representative Training Day Evaluation ……………………………………………….. 70 Appendix 4: Disability Consumer Representative Database …………………………………………………………….. 71 Appendix 5: Recommendations from the Disability Sector …………………………………………………………………………. 72 2 Executive Summary Our project was to co-design consumer representative training programs, build networks, develop resources and assist in running two trial training days. The resources were developed from the best existing training materials available either publicly on the web or through existing work we have done. Outside researchers were also employed to review and source information from the MOH website. NSCHV has prepared the core generic material as a starting point and reference for communities wishing to adapt it, so it is by no means intended as a final training document. The intention is that it is continually updated as more resources come to light. Draft copies have been provided to WDHB, ADHB and CMDHB for review, along with databases of those who trained and consented for their names to be put forward as consumer representatives. 3 Stakeholder Networks We scoped the Youth, Pacific and Disability sectors to identify the key agencies that had access to a wide database of potential consumers that may wish to train as consumer representatives for their community sector. This was done by attending community events and discussing the concept of co-design and consumer representatives. This took a lot longer than anticipated as most organisations knew little of what consumer representatives did or what roles they could be involved in, in health decision making. The following events were attended to network, discuss the project goals, and employ project managers: • Pasifika Festival assisted on the MPIA table(Ministry of Pacific Island Affairs) • University of Auckland/Health Promotions Forum, Health and Human Rights workshop for Pacific and Maori • Vakatatua Disability Launch – where we shared a display table with the Pasifika Arthritis educator • Radio interview on Tongan Radio Health and Wellness program • Network meetings with the Auckland City Council about their “Youth Engagement Toolkit” • Updates for the DHB community engagement coordinators and request for evaluation • Northern Cancer Network Consumer Reference groups meetings around consumer training material • Phab Pasifika disability launch • The Cube disability launch • WDHB Pacific and Disability leaders were asked for recommendations of possible project leaders It was necessary to spend the time to clarify what this project’s points of difference were to other Consumer Forums and Health Agencies that had already established such programs and received funding themselves. Some key differences are: • Lead agencies and individuals representing their communities were involved in the design and delivery of the training. These representatives were contracted to guide how the trainings should be best presented and to keep their communities informed and involved. • The trainings conducted were aimed at the grassroots level and not necessarily those who sit on boards with a mandate to represent their community. Participants were mostly potential consumer representatives who have the skills to talk about their experiences as well as the experience of others in their community. • The trainings had three main objectives for the participants: first, they were made “aware” that consumers’ views are being sought; second, build their confidence by making them realize that their views are valuable; and third, build their skills to 4 confidently articulate not only their own “issues” but how these issues will affect others. • This project included a database to demonstarate the reach and the inclusiveness of participants in the trainings. It also has a detailed description of training evaluations from the participants. • The modules were written in a generic fashion with simple language to ensure that delivery is appropriate to the community that would want to adopt it. The training presentations were modified by the Community Project leaders to ensure that information were culturally and sector sensitive that allowed for maximum interaction and reflection. One of the major limitations of the project is that there is no clear direction on who or what organisation will take up what it has begun. Participants’ databases will be provided to DHBs and local health consumer agencies, however there is no ongoing mentor or support for those who have been trained. A clear succession plan is needed so that the consumer representatives are not "left high and dry”. When the project started, the intention was that a National Consumer Agency or Local Consumer Agencies could further refine it into a guideline of core competencies or an online training and application tool along the lines of Ministry of Women’s Affairs’ “My board my strengths program”. However a separate business case would need to be resourced. An additional outcome not previously identified was raising the awareness in both Communities and Universities of the Consumer representative and patient engagement process around co-design of health services. 5 Resources provided in hard copy 1. Collaborative Training Manual a. Word copy b. PDF copy 2. Pacific Training PowerPoint 3. Disability Training PowerPoint 4. Pacific Training materials 5. Disability Training materials 6. Databases of consumer participants a. Youth b. Unitec c. Pacifika d. Disability 7. NSH “Observation” DVD and toolkit 8. Invitation flyers and overviews of training days 9. Unitec Evaluation 10. Youthworx Evaluation 11. Disability Evaluation 12. Pacific Consumer Training Promotion on Radio (MP3) 6 Youth Co-design Process Although we had a list of outcomes to achieve we started our co-design project as a blank page, so that what we set out to do, did not override the actual needs of the community groups. We identified that Auckland City Council were in the early stages of developing a “Youth Engagement Toolkit”, so rather than duplicate current initiatives underway, they offered to evaluate the material we prepared. In the process of working with Auckland City Council, Youthworx, Phab and Unitec Community Skills we identified that a full days training program would not be warranted. The primary reason of which is that Youth need immediate gratification and recognition and this project could not provide immediate or paid positions for them to take up. Therefore the recommendation was that youth already involved in either council local board reps or students in allied health courses be “shoulder tapped” and provided with the skills on a one to one basis. See attached appendices: Appendix 1: Youthworx report Appendix 2: Database Appendix 3: Unitec Community Skills Class Evaluation 7 Appendix 1: Youthworx Report 4"April"2012" " " North"Shore"Community"Health"Voice" PO"Box"33160" Takapuna" AUCKLAND(0627( ( Attention:((Deb(Dalliessi( " Re:(((YOUTH(CONSUMER(REPRESENTATIVE(TRAINING(PROJECT( ( We"understand"that"the"outcome"of"this"project"is"to"receive"information"as"to"how"to"attract,"train"and"support" health"consumer"representatives"between"the"ages"of"16L24"years.""In"particular,"you"would"like"to"find"out"from"the" young"people"themselves"as"to"how"a"consumer"training"day"should"be"run,"what"content"they"want"included"and" how"they"want"it"delivered.""" " YouthworX"has"been"involved"in"the"initial"planning"of"this"project,"the"promotion"and"dissemination"of"publicity" materials"and"organisation"of"the"youth"workshop"event"held"on"25"February"2012.""" " Publicity/Network0Dissemination0 0 YouthworX"has"a"database"of"over"160"youth"service"organisations"and"approximately"the"same"amount"of"individual" contacts." " The"flier"promoting"the"initial"youth"gathering"on"25"February"2012"was"emailed"to"the"database"on"13"February" 2012"with"a"follow"up"on"23"February"2012.""Confirmation"texts"were"also"sent"to"the"registrants.""The"database" included"all"local"community"coLordinators.""I"also"specifically"asked"key"contacts"Joseph"Bergin,"DevonportL Takapuna"Local"Board"Member,"and"Richard"Hills,"Kaipatiki"Local"Board"Member,"to"disseminate"it"to"their"own" youth"networks." " Establishment0of0Youth0Workshop0 0 Discussions"were"held"with"several"youth"groups,"students"and"youth"workers"and"it"was"agreed"that"it"would"be" best"to"run"a"coLdesign"workshop"prior"to"any"training"workshops"to"see"how,"when"and"why"young"people"would" attend"and"what"content"should"be"included"in"a"training"day."" " The"youth"consumer"representative"training"coLdesign"workshop"was"held"on"Saturday,"25"February"2012"from"12.00"
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