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TEAM TISCH MS NEWS Team Kanter Featured on the Cover of Ramsey Neighbors Magazine!

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TEAM TISCH MS NEWS Team Kanter Featured on the Cover of Ramsey Neighbors Magazine! INTERNATIONAL MULTIPLE SCLEROSIS Management Practice TISCH MS RESEARCH CENTER OF NEW YORK Healing MS The IMSMP newsletter to address the needs of our patients and keep you informed of the latest research treatments and ways to heal An Announcement from the IMSMP & Tisch MSRCNY Spring 2020 on the Coronavirus Volume 3, Issue 46 We are aware of the growing concern of the Coronavirus (COVID-19) and would like to address some common questions our patients have been asking. Despite being in the midst of an outbreak of this respiratory disease, there are still very few cases in the United States. However, people with multiple sclerosis may be taking some MS medications that can modify or alter the immune system, which can increase the risk of certain infections. The following guidelines should be followed at all times, as we continue to monitor the situation. Updates can now be found regularly on our website and social media pages. Individuals who are experiencing symptoms and may have traveled to areas of concern, or have been in contact with somebody who has traveled to these areas, should call ahead to their primary care physician before seeking treatment in person or head to an urgent care facility for testing. If you feel you may have been exposed to the virus and have any upcoming appointments at the International Multiple Sclerosis Management Practice, please call (212) 265-8070 to discuss how to proceed. Prevention and Ways to Protect Yourself* • Wash your hands often with soap and water for at least 20 seconds, especially after going to the bathroom; before eating; and after blowing your nose, coughing, or sneezing. If soap and water are not readily available, use a hand sanitizer that contains at least 60% alcohol. Always wash your hands with soap and water if your hands are visibly dirty. INSIDE THIS ISSUE • Avoid large crowded areas and unnecessary physical contact. • Update on Tisch MSRCNY’s Phase II Trial and the • Avoid social activities and gatherings with close, intimate contact, examples Experimental Research Center include: playing cards, mahjong, etc. collecting and handling money, holding hands in religious settings, holding poles while riding the subway or other public transportation. • Recommendations for a Better Infusion from your Nurses *A portion of this information was obtained from the following websites: https://www.cdc.gov/coronavirus/2019-ncov/community/get-your-household-ready- • The Neuroprotective Benefits of for-COVID-19.html Tea by Dr. Deneb Bates https://www.health.ny.gov/diseases/communicable/coronavirus/ https://www.nationalmssociety.org/About-the-Society/News/What-You-Need-to- Know-about-Coronavirus Healing MS TISCH MSRCNY NEWS Update on the Phase II Trial and the Experimental Research Center Tisch MSRCNY Stem Cell Team Rendering of the Third Floor Expansion Phase II Trial Experimental Lab The Phase II Clinical Trial is under way and we have enrolled 48 Construction is underway on the third floor. Once completed, the patients. The primary progressive multiple sclerosis (PPMS) blocks new space will allow us to expand our research endeavors and better have been completely filled and we are working on fully enrolling understand aspects of MS such as the differences between SPMS and the remaining secondary progressive multiple sclerosis (SPMS) PPMS and patients with cerebellar dysfunction. Advances in these blocks. Out of the enrolled patients, 33 have begun treatment and areas will greatly improve our understanding of the disease and the we hope to have all patients started on treatment by the end of opportunities for therapy. 2020. No official results can be released at this time because the trial is blinded and no interim analyses have been completed. The If you would like to donate to Tisch MSRCNY research, please visit study is a double-blind crossover type design which means that the www.tischms.org/donate! patients enrolled are randomly assigned to placebo or stem cell for the first treatment year and then receive the other treatment in year two. Dr. Violaine Harris and Dr. Saud A. Sadiq are the only people aware of who is receiving stem cells. DEPARTMENT OF REHABILITATION SERVICES Annual Checkup With Your PT and OT difference in the course of your level of wellness and independence with the activities you need and like to do. Getting re-evaluated regularly by a rehabilitation professional not only provides information about whether you have any new or worsened impairments but also re-addresses your physical and cognitive goals for improvement. Reviewing and updating a home exercise program is essential for anyone who wants to move better Getting an annual checkup is commonly thought of with an and safer, regardless of whether one’s MS status has changed. This internist and a dentist. However, for people with multiple sclerosis is especially true for people who believe their daily program is too (and probably most people in society), there are many benefits boring, too difficult, or otherwise feel it is just not helping. During of getting a “checkup” by a physical therapist (PT), occupational the checkup, you will be re-evaluated and your goals will be reviewed therapist (OT), and speech-language pathologist (SLP). These to get you back on track. professionals are considered the primary providers of rehabilitation services for people with MS. Be sure to schedule your physical therapy and/or occupational therapy checkup today. If you are a patient at the IMSMP and have a Often, people believe that they should only see their rehabilitation local PT or OT, we will be happy to collaborate with them so you can professionals after they have an injury. For people with MS, continue with your local therapist after your visit. some think that they should only make an appointment after an exacerbation or “flare-up.” However, all people should see at least one of these professionals every year for a checkup. That’s right, you can get a PT, OT, and an SLP checkup and it may make the 2 Volume 3, Issue 46 A NOTE FROM THE NURSES Recommendations for a Better Infusion Here are some helpful tips from your or do crossword or Sudoku puzzles. You Infusion Team at the IMSMP: may also bring in a laptop/iPad with headphones if you’d like to surf the web/ Prepare your body: watch movies. Please be mindful, the An infusion means getting an IV, and the Infusion Suite is a shared common space, best thing you can do to prepare for it is to and noises are encouraged to be kept be properly hydrated. In the days before at low volumes, not to be disruptive to your infusion, drink plenty of water and others. Your nurses create a quiet, calming electrolyte-rich fluids (ex: Gatorade, Propel, environment for the comfort of all. Coconut water) and try to avoid excessive caffeine. Being well-rested is always a Bring food/snacks: good idea, but we understand it can be a Depending on your infusion, please challenge for some. If sleep is an issue for anticipate being here for most of the day. The IMSMP Infusion Team you, attempt to put forth some extra effort You can check in with the staff if you would (L to R Allan Zapanta, CNA, Katherine into getting quality sleep and rest in the like to get a more tailored time frame, Mulraney, RN, BSN, James McKee, RN and several days before your infusion. specific to your infusion. We encourage you Valentina Assenova, RN, BSN) to bring food with you. The infusion suite Bring a friend to your infusion: is equipped with a variety of refreshments You are able to bring a friend or family including coffee/tea/snacks. Feel free to member to your infusion as they can help bring your own favorite snacks, especially if in several ways. If you are nervous about you have food sensitivities. If your infusion the infusion, having a friend can help is several hours long and in the event you decrease your anxiety. If your plus one can don’t bring food with you, the infusion also drive you to the infusion location, nurses can provide a menu from local that can take a lot of pressure off your restaurants for delivery. Please be mindful, day. Having a driver can also be helpful delivery personnel are not permitted in the in the unlikely event that you have an Infusion Suite. An infusion staff member adverse reaction, or even if you just don’t will need to go pick up your order, which feel quite up to driving yourself home. A may be challenging if the day is eventful/ friend can also help you remember any demanding. Unfortunately, this does special directions that are given to you not apply to infusions on the weekends. March is MS Awareness Month by your doctor or nurse before you leave Staff are not able to accept any food the infusion center. Please be mindful to deliveries, and bringing your own food is CONNECT WITH US! limit your companion to a maximum of 2 recommended. visitors, as seating can be limited. Children Share YOUR story! under the age of 10 are not permitted in the Plan to go home and rest after the Infusion Suite. infusion: People can have different reactions to @IMSMP Dress for your infusion: an infusion. Some people may feel no @TischMSRCNY You will want to be comfortable and dress different, but others may be fatigued or in a way that makes you feel best. For drowsy. Some people have reported feeling some, that may mean athletic pants and as though they have more energy when a sweatshirt, or loose-fitting clothing that they finish an infusion.
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