POST-POLIO DIRECTORY 2021© Post-Polio Directory 2021©

Post-Polio Health International’s POST-POLIO DIRECTORY 2021© Post-Polio Directory 2021©

1 Introduction

2 International Health Professionals and Support Organizations

11 United States Health Professionals and Support Organizations

27 Other Useful Contacts

Post-Polio Directory 2021© is for information purposes only. A listing does not imply endorsement by Post-Polio Health International.

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50 Crestwood Executive Center #440, St. Louis, MO 63126 USA 314-534-0475, 314-534-5070 fax [email protected], www.post-polio.org, www.polioplace.org

UPDATED 4-24-21 Introduction: PHI, then Gazette International Networking Institute, published its firstPost-Polio Directory in 1985 to assist survivors of polio who were experiencing the late effects of polio to find health professionals. At the 1983 Conference, the organization was charged with encouraging the formation of local support groups and the current Post-Polio Directory includes those groups, too.

How it is organized: There are three sections. 1) International Health Professionals and Support Organizations, which are organized alphabetically by country with health professionals listed first in alphabetical order by city, followed by support groups listed by alphabetical order by city. 2) United States Health Professionals and Support Organizations, which are organized alphabetically by state with health professionals listed first in alphabetical order by city, followed by support groups listed in alphabetical order by city. 3) International and US Other Useful Contacts listed by topical areas.

How to use it: Post-Polio Health International’s comprehensive websites (www.post-polio.org, www.polioplace.org, www.ventusers.org) contain years of information about the late effects of polio and are continually updated. The Post-Polio Directory is a good place to start to find local resources. Support groups also may be able to suggest names of local health professionals. Another option is to contact a physiatrist – physician specializing in physical medicine and rehabilitation, or a rehabilitation center. A few rehabilitation centers stated that while they don’t have a post-polio clinic, they are confident that their staff of rehabilitation professionals has sufficient knowledge and experience with treating neuromuscular diseases (or disabling neuromusculoskeletal conditions) to be able to successfully treat polio survivors. Articles of interest: • Polio Doctors, Post-Polio Clinics, • Options When a Post-Polio Clinic is not an Option (pages 36-39) • Support Groups , Post-Polio Support Group Resources

How to join PHI: Post-Polio Health International is a Membership organization. To support its activities, join PHI at http://shop.post-polio.org or by printing out a Membership form. Post-Polio Directory is free with Contributor and Sustainer Memberships.

Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.html 1 International Health Professionals and Support Organizations

*Post-Polio Clinic

AUSTRALIA–Health Professionals Polio Polio Victoria Inc. Ross House, 247-251 Flinders Lane *Mt Wilga Private Hospital Melbourne, Victoria 3000 66 Rosamond St +61 431 702 137, [email protected] Hornsby, New South Wales 2077 www.postpoliovictoria.org.au +61 2 9847 5000, +61 2 9477 1253 fax www.polionsw.org.au/late-effects-of-polio-assessment-clinic Mornington Peninsula Post-Polio Support Group Frances Henke Stephen de Graaff, MB, BS, FRACM, FAFRM Mornington, Victoria Director of Pain Services, Epworth Rehabilitation [email protected] 888 Toorak Rd Camberwell, Victoria 3124 Polio NSW Inc +61 3 9809 2444, +61 3 9889 6756 fax Gillian Thomas PO Box 2799 *Polio Services Victoria, Melbourne North Parramatta, NSW 1750 Russel Anbiah, Physiotherapist +61 2 9890 0946 St. Vincent’s Hospital Melbourne [email protected], www.polionsw.org.au PO Box 2900, Bolte Wing, Nicholson St Fitzroy, Victoria 3065 Polio NSW, Port Macquarie Post-Polio Support Group +61 3 9288 3900, +61 3 9288 3808 fax Gail Hassall [email protected], www.psv.svhm.org.au Port Macquarie, NSW +61 2 6581 4759, [email protected] *Late Effects of Disability and Orthotic Clinic Dr. Mei Ang, Rehab Specialist Post-Polio Network of Western Australia Fiona Stanley Rehab Hospital Tessa Jupp, RN Murdoch, Western Australia PO Box 257 +61 8 6152 7420 Subiaco, Western Australia (Floreat area) +61 8 9383 9050, +61 8 9383 9075 fax *Post-Polio Network of Western Australia Clinic [email protected] Dr. John Watson, MBBS, FANZCA www.upnaway.com.au/~poliowa Tessa Jupp, RN PO Box 257, Subiaco, 6904, Western Australia (Floreat) Post Polio Networks (Qld) +61 8 9383 9050, [email protected] Spinal Injuries Association www.upnaway.com.au/~poliowa 109 Logan Road Woolloongabba Queensland 4102 AUSTRALIA–Support Groups PO Box 5651 West End, Queensland 4101 Polio Network Victoria +61 7 3391 2044 Independence Australia – Community Solutions [email protected], www.spinal.com.au 208 Wellington St Collingwood, Victoria 3066 AUSTRIA–Support Group +61 3 1300 704 456, +61 3 1300 704 451 fax [email protected] Selbsthilfe Polio – Post-Polio Syndrome [email protected] www.polio-selbsthilfe.at www.independenceaustralia.com/polio 15 groups BANGLADESH–Health Professional Polio Australia Incorporated Dr. Raju Dhakal PO Box 500, Kew East, Victoria 3102 Chairman at Dept. of Physical Medicine and Rehab. Ste 119C, Level 1, 89 High Street Bangabandhu Sheikh Mujib Medical University Kew, Victoria 3101 Room No.130, Block-C +61 3 9016 7678, [email protected] Shahbag, Dhaka-1000 [email protected]/au, www.polioaustralia.org.au [email protected]

Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.html 2 BELGIUM–Support Groups *Montreal Neurological Institute & Hospital Daria A. Trojan, MD, Director, PM&R European Polio Union Diane Diorio, MD, Neurology Walvisstraat 32 3801 University St B 2018, Antwerp Montreal, QC H3A 2B4 [email protected], www.europeanpolio.eu 514-398-8911, 514-398-2745 fax PostPolio België Diorio: 514-398-5034, 514-398-3972 fax Johan Bijttebier Elizabeth Dean, DipPT, BA, MS, PhD Nachtegaalstraat 47 Department of Physical Therapy 2060 Antwerpen University of British Columbia +32 3 288 7794, +32 3 226 2315 fax 212 Friedman Building, 2177 Wesbrook Mall [email protected], www.postpolio.be Vancouver, BC V6T 1Z3 Association belge des Paralyses – ABP asbl 604-822-7398, [email protected] Chaussée de Gand 1434 B-1082 Brussels CANADA–Support Groups +32 2 421 69 62, www.abpasbl.be (Alphabetical order by province) Southern Alberta Post-Polio Support Society BRAZIL–Health Professionals 403-813-9583, [email protected] Daniel Ramos Rodrigues Figueirado, MD www.polioalberta.ca Hospital de Apoio de Brasilia Southern Alberta Post-Polio Support AENW 3 Lote A Setor Noroeste, Brasilia - DF Society-Lethbridge 70684-831, Brazil 403-329-9453, [email protected] +55 65 99352-5005 www.sappss.com www.saude.df.gov.br Wildrose Polio Support Society Sergio Silva de Mello, Anesthesiology Glyn Smith Rua Rio de Janeiro n 1881 780-428-8842, 780-475-7968 fax 1301, Belo Horizonte [email protected] [email protected], [email protected] www.polioalberta.ca/wildrose/wpss.htm *Federal University of Sao Paulo’s Medical School Post-Polio Network (Manitoba) Inc Dr. Acary Oliveira, Chief, Neurology Dept SMD Self-Help Clearinghouse Tatiana Mesquita e Silva, Physiotherapist 204-825 Sherbrook St Abrahão Quadros, Physiotherapist Winnipeg, Manitoba R3A 1M5 Rua Estado de Israel, 899 - VL. Clementino 204-975-3037, 204-975-3027 fax Sao Paulo, SP [email protected], www.postpolionetwork.ca +11 5571-3324, +11 5083-1051 [email protected], www.institutogiorgionicoli.org.br Polio New Brunswick Peter Hefferman BRAZIL–Support Groups 506-635-8932, [email protected] Associação Luso Afro-Brasileira de Poliomielite Polio Northern New Brunswick e Síndrome Pós-poliomielite Claudia LeBlanc Stepaway Polio 506-548-1919, [email protected] Rua Pau Ferro n.400 Polio Nova Scotia Jardim Faye Joudrey A Associação G-14 de Apoio aos Pacientes c/o Abilities Foundation of Nova Scotia de Poliomielite e Síndrome Pós-Pólio 3670 Kempt Rd Sao Paulo Halifax, Nova Scotia B3K 4X8 www.pospolio.org.br 902-453-6000, [email protected] www.abilitiesfoundation.ns.ca CANADA–Health Professionals Ontario - Post-Polio Canada A Division of March of Dimes Canada K. Ming Chan, MD, FRCPC, Professor Jennifer Cote Division of Physical Medicine & Rehabilitation 888-480-5903, [email protected] Centre for Neuroscience www.poliocanada.ca 5-005 Katz Group Centre, University of Alberta Edmonton, AB T6G 2E1 780-492-1614, [email protected]

Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.html 3 Grey Bruce Huron CHINA–Health Professionals Sharon and George Rahn 519-364-3224, [email protected] Fang Han, MD Sleep Center, The People’s Hospital, Peking University Niagara Chapter No. 11 South Road Xizhimen Ron Speer Xicheng District, Beijing 100044 289 -891-8283 + 86 10-88324206, [email protected] [email protected], [email protected] C.M. Chu, MD, MSc, FRCP, FCCP North Bay Chapter United Christian Hospital Sharyn Emond Dept of Medicine & Geriatrics, Division of Respiratory Care 800-263-3463 ext 7731 130 Hip Wo Street, Kwun Tong [email protected] Kowloon, Hong Kong SAR +852 3513 4822, +852 3513 5548 fax Peterborough Chapter [email protected] Sarah Baslas 800-263-3463 ext 7738, [email protected] Jianan Li, MD Director, Department of Rehabilitation Medicine Thunder Bay Chapter First Affiliated Hospital of Nanjing Sandy Rutherford Medical University [email protected] 300 Guangzhou Rd Windsor & Area Chapter Nanjing 210029 Gayle & Bruce Tait [email protected] 519-252-8248, [email protected] Hamilton-Brant Chapter CUBA–Support Group Northumberland Chapter Dr. Pedro Luis Gonzalez, Director Sudbury Chapter ACUFIN Toronto Peel & York Chapter Calle 8#10 Entre 17 y m.torres Keith Rashid Reparto Libertad, Holguin 800-263-3463 ext 7213, [email protected] Polio Prince Edward Islands CZECH REPUBLIC–Support Group Stephen Pate Asociace Polio Polio Association of the Czech Republic 902-566-4518, [email protected] Ludvika Bradová Association Polio Quebec Kosmonautů 2288, 44001 Louny Gilles Besner +420 222962074, [email protected], www.polio.cz 514-489-1143, 514-489-7678 fax 877-765-4672 tollfree outside Montreal DEMOCRATIC REPUBLIC OF THE CONGO– [email protected], www.polioquebec.org Support Group Polio Regina Inc. (Saskatchewan) l´Association Congolaise “Debout et Fier” (ACDF) Carole Tiefenbach StandProud [email protected] [email protected], [email protected] http://nonprofits.accesscomm.ca/polio www.standproud.org Saskatchewan Awareness of Post-Polio Ron Johnson DENMARK–Health Professionals 306-477-7002, 306-373-2665 *Special Hospitalet [email protected], www.geocities.com/sapponline Fjeldhammervej 8 2610 Rodøvre CHILE–Health Professionals +45 36 73 90 60 [email protected], www.specialhospitalet.dk Clínica Los Coihues Av Laguna Sur 6561,Estación Central Merete Bertelsen, PT Santiago Lise Kay, MD +56 2 24657900 Special Hospitalet Fjeldhammervej 8 2610 Rodøvre +45 36 73 90 44 [email protected], [email protected]

Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.html 4 DENMARK–Support Group GERMANY–Health Professionals Polio Foreningen The following 5 clinics have been certified by Fjeldhammervej 8 Bundesverband Polio: 2610 Rodøvre +45 36 73 90 60, [email protected], www.polio.dk *Rehaklinik Raupennest, Altenberg Dr. med. Friedemann Steinfeldt Rehefelder Str. 18 FINLAND–Support Group 01773 Altenberg Suomen Polioliitto Ry (Finnish Polio Association) *Rheuma-Klinik 1 A Kumpulantie 6th floor Bad Bramstedt Neurologische Abteilung 00520 Helsinki Prof Dr. med. Wolfgang-Ludwig Gross (09) 686 0990, www.polioliitto.com Ärztlicher Direktor Fachkrankenhaus Dr. med Andreas-Christoph Arlt FRANCE–Health Professionals Ärztlicher Direktor Rehabilitation Oskar-Alexander-Str. 26 Dr. Vincent Tiffreau 24576 Bad Bramstedt Service de Médecine Physique et de Réadaptation MCU-PH Centre de Référence des Maladies Neuromusculaires *Neurologisches Rehabilitationszentrum Quellenhof du CHRU de Lille Hôpital Swynghedauw Bad Wildbad CHRU de Lille Chefarzt PD 59037 Lille Cedex Dr. Peter Flachendecker +33 3 20 44 58 31, +33 3 20 44 58 32 fax Kuranlagenallee 2 75323 Bad Wildbad Dr. Isabelle Laffont Département de MPR CHU Lapeyronie *Klinik Hoher Meißner 371, avenue du Doyen Gaston Giraud Bad Sooden-Allendorf Neurologische Abteilung 34295 Montpellier Cedex 5 Dr. med. C. Schröter – Leiter +33 4 67 33 87 17, +33 4 67 33 86 71 Neurologischer Abteilung [email protected] Hardtstrasse 36 37242 Bad, Sooden-Allendorf Dr. Raul Morales Département de Neurologie *Klinik Miriquidi CHU de Montpellier, Hôpital Gui de Chauliac Thermalbad Wiesenbad, Gesamte Klinik 80 Bd Augustin Fliche CHÄ Frau Dr. med. Frohberg 34395 Montpellier Cedex 5 Freiberger Straße 33 +33 4 67 33 77 36, [email protected] 09488 Thermalbad Wiesenbad Pr. Francois Boyer Dr. Friedemann Steinfeldt Pole MPR CHU de REIMS Polio – Spezialambulanz Dresden Hôpital Sébastopol Goetheallee 28 48, rue de Sebastopol Dresden, Saxony 01309 51100 Reims +49 0357 3767979, +49 3505 6305777 fax +33 3 26 78 85 97, +33 3 26 78 44 80 fax [email protected] [email protected] Chefarzt Neurologie & Geriatrie Dr. W. Rink FRANCE–Support Groups Reha-Zentrum Passauer Wolf Groupe de Liaison et d’Information Post-Polio (GLIP) Bgm.-Hartl.-Platz 1 34, rue des Coutures 94086 Bad Griesbach – Therme 51100 Reims +49 0853 2274511, [email protected] +33 3 51 00 13 58, [email protected] Katholisches Klinikum Koblenz www.post-france.org Polio Schwerpunkt Ambulanz Service de Médecine Physique et de Réadaptation Dr. med. Axel Ruetz GH Lariboisière-F. Widal Kardinal-Krementz-Straße 1-5 200 Rue du Fbg St Denis 56073 Koblenz 75010 Paris +49 261-496-6526, +49 261-496-6528 +33 1 40 05 42 05, +33 1 40 05 48 51 fax [email protected], www.kk-koblenz.de [email protected]

Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.html 5 GERMANY–Support Groups Dr. Ujagar Singh Polio Care Society Civil Hospital Eika Aachen e.V. G.S. Memorial Hospital [email protected], www.polio-forum.de Bathinda Road Polio Initiative Europa e.V. Rampura Phul 151103 Deutsch – Europaische, Arbeitsgemeinschaft Bad Stebener Str. 8 IRELAND–Health Professionals 95138 Bad Steben-Thierbach

+49 9288 363, +49 9288 925 500 fax Deirdre Murray, PhD Beaumont Hospital, Dept of Physiotherapy www.polio-initiative-europa.de PO Box 1297 Polio Selbsthilfe e.V. Beaumont Rd, Dublin 9 Auf den Hüchten 15 [email protected] 33647 Bielefeld Professor +49 5 21 / 40 35 35, +49 5 21 / 1 36 29 93 fax Orla Hardiman, MD, Beaumont Hospital [email protected] PO Box 1297 www.polio-selbsthilfe.net Beaumont Road, Dublin 9 Polio Echo (01) 809 2174 Weberweg 4 D-78126 Königsfeld IRELAND–Support Group www.polio-echo.eu Polio Survivors Ireland Bundesverband Polio e.V. Susan Dowling Freiberger Strasse 33 Unit 319, Capel Building Thermalbad Wiesenbad, Sachsen 09488 Mary’s Abbey, Dublin 7 +49 3733 504 1187, +49 3733 504 1188 fax +353 1 889-8920, [email protected], www.polio.ie [email protected], www.polio.sh Organisation consists of 10 federal state organisations, ISRAEL–Health Professionals 73 regional groups and 42 contact addresses. *Hadassah Medical Organization GHANA–Health Professionals Isabella Schwartz, MD Rehabilitation Clinic – Post-Polio Raphael Amuzu Dzameshie Mount Scopus Hospital Orthopedic Training Centre POB 24035, Jerusalem PO Box 306 +972 2 584-4111, +972 2 582-3515 fax Nsawam www.hadassah.org.il +233 34 2122031 [email protected], www.otcghana.info *Tel-Hashomer Chaim Sheba Medical Center Yeheskell Shemesh, MD HUNGARY–Support Group Neurological Rehabilitation, Post-Polio Clinic Ramat Gan Hungarian Polio Foundation +972 3 530-3725, +972 3 535-2888 fax www.polio.hu [email protected], www.sheba.co.il Shoshana Goldberg Mayer, OTR INDIA–Health Professionals Milbat – The Israel Center for Technology & Accessibility Megha Sheth Tel-Hashomer Lecturer in Physical Therapy Ramat Gan 52621 SBB College of Physical Therapy, VS General Hospital +972 3 530-3739, +972 3 535-7812 fax Ahmedabad ISRAEL–Support Group Dr Satendra Singh, MD, FSS Assistant Professor of Physiology The Polio Handicap Association in Israel Member, Medical Education Unit Jacob Surany University College of Medical Sciences & GTB Hospital PO Box 8186 Delhi 110095 Ramat Gan 52181 Member, Medical Humanities Group +972 35755660, +972 507754415 cell Founder, Infinite Ability; Coordinator, Enabling Unit, EOC +972 35757770 fax, [email protected] Creator, The Enablist [email protected]

Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.html 6 ITALY–Health Professionals KOREA (Republic of)–Health Professional Laura Bertolasi, MD Jae-Young Lim Ospedale Di Malcesine, Neurophysiology Seoul National University Bundang Hospital Via Val di Sogno Department of Rehabilitation Medicine Malcesine 82 Gumi-ro 173 beon-gil +39 045 8124462, [email protected] Bundang-gu, Seongnam 463-707 +82 31-787-7732, +82 31-787-4056 fax Antonio Toniolo, MD [email protected] Professor of Medical Microbiology, University of Insubria Department of Clinical and Biological Sciences Wan-Ho Kim Viale Borri, 57 National Rehabilitation Center 21100 Varese 58, Samgaksan-ro, Gangbuk-gu +39 0332 278.309, +39 0332 260.517 fax Seoul 01022 [email protected] +82 2901 1700, [email protected]

ITALY–Support Groups KOREA (Republic of)–Support Group Associazione Nazionale Polio e Sindrome Postpolio Korea Polio Association Louise Read, Deputy President Jeongnip Center for Rehabilitation via della Lungara 3 16-3 Guei-2dong 00165 Roma Gwangjin-gu, Seoul +39 065895895 (tel & fax), +39 3395773796 cell +82 2-446-1237, +82 2-454-2144 [email protected], www.postpolio.it [email protected], [email protected], www.jeongnip.or.kr Self-help/ Support Group Associazione Nazionale Polio e Sindrome Post-polio MEXICO–Health Professionals Aurelio Sugliani *Clínica de Atención Integral en Síndrome Post Polio Via Einstein 4 Instituto Nacional de Rehabilitación 20059 Vimercate Milano Calzada México-Xochimilco, No. 289 +39 6 851380 cell, +39 3397484492 fax Col. Arenal de Guadalupe, México, D.F., C.P. 14389 [email protected], www.postpolio.it www.cnr.gob.mx Associazione Interregionale Disabili Motori Dra. Alejandra Castillo Millán Ospedale – Via Gardesana Jefa de Consulta Externa 57 – 37018 Malcesine +59 99 10 00, ext. 11 125, y 11 126 +39 045 6584293 Dra. Teresa de Jesús JAMAICA–Health Professional Baños Mendoza Coordinadora Médica de la Clínica Sir John Golding Rehabilitation Centre +59 99 10 00, ext. 13 115 6 Golding Avenue Kingston 7, Jamaica MEXICO–Support Groups http://sirjohngoldingrehabilitationcentre.com Post-Polio Litaff AC Association JAPAN–Support Groups E. Liliana Marasco Garrido Iztaccihuatl 53-303, Col. Hipodromo Condesa Japanese Network of Polio Survivors CP06100 Mexico City Masakuni Mukoyama, MD +52 55-55-74-29-26 (tel & fax) 3 Kuromoncho [email protected], www.postpoliolitaff.org Higashiku, Nagoya 461-0035 +81 52-932-1854 (tel & fax), [email protected] Organización Mexicana Para el Conocimiento de los Efectos Tardiós de la Polio, AC (OMCETPAC) The Polio Association Japan Sergio Augusto Vistrain Diaz Mariko Koyama Lago Ontario No. 3-G 1-6-5-602 Minowa Col. Tacuba, Mexico City, DF Taito-ku, Tokyo 110-0011 +52 55-55-27-63-89 (tel & fax) +81 3 3872 7359 (tel & fax) [email protected], www.postpoliomexico.org [email protected], www5b.biglobe.ne.jp/polio

Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.html 7 NEPAL–Health Professionals Ingebjorg Irgens, MD Sunnaas Rehabilitation Hospital Raju Dhakal, MBBS, MD Bjørnemyrveien 11 Physical Medicine & Rehabilitation 1450 Nesodden Bluebird International Clinic +47 66 96 90 00 Bluebird Mall, Tripura Marg Kathmandu 44600, Nepal Elisabeth Farbu, MD +977 1-4228896 Dept of Neurology Stavanger University Hospital NETHERLANDS–Health Professionals N-4068 Stavanger [email protected] *University of Amsterdam Prof. Frans Nollet, MD, PhD NORWAY–Support Group Prof. Marianne de Visser, MD, PhD Academic Medical Centre A01-425 Norwegian Polio Association (LFPS) Meibergdreef 9 LFPS, Postboks 9217 1105 AZ Amsterdam Grǿnland, 0134, Oslo Nollet : +31 20 566 4049, +31 20 566 9154 fax [email protected], www.polionorway.no [email protected] de Visser : +31 20 566 3445, +31 20 697 1438 fax PAKISTAN–Health Professional [email protected] Mahboob ur Rehman, Chairman Mahboob School of Physiotherapy NETHERLANDS–Support Group Gandhara University, Habib Physiotherapy Complex Postpolio Support Group of the Dutch Association Sector B2, Phase-5 for Neuromuscular Diseases (VSN) Hayatabad, Peshawar Lt. Gen. van Heutzlaan 6, 3743 JN Baarn +92-91-5819128, +92-334-9071388 fax +31 35 5480480, +31 30 5480499 fax [email protected], www.hpcpk.org [email protected], www.vsn.nl PHILIPPINES–Support Group NEW ZEALAND–Support Groups Productive Differently-Abled Association (PDAAS) Polio NZ Inc Marcelo P. Mongkil, Ptr/Chaplain/President PO Box 260 Brgy. Cablalan, Glan, Sarangani Province 9517 Mosgiel 9053 +63 90 68 26 39 78, [email protected] 0800 4 POLIO, [email protected], www.polio.org.nz 20 branches nationwide POLAND–Health Professionals Auckland Post-Polio Support Group *Mossakowski Medical Research Center Polish Doreen Chandler, QSO Academy of Sciences 36 Eastern Beach Rd Ewa Matyja, MD, PhD Bucklands Beach, 2012 Dept of Neuropathology +64 9 534-6151, +64 9 537-3104 fax 5 Pawinskiego [email protected] 02-106 Warsaw +48 22 668 5520, +48 22 668 5532 NIGERIA–Support Group Milena Laure-Kamionowska, MD Wheelchairs for Nigeria [email protected], www.cmdik.pan.pl Ayuba Gufwan #17 JCMI Drive, Kattan Rikos POLAND–Support Group by Jos North LGC Housing Layout off Liberty Dam Road Jos, Plateau State Polski Stowarzyszenie Polio +234 8035 985123, [email protected] http://postpolio.lublin.pl http://wheelchairsfornigeria.org SCOTLAND–Support Group NORWAY–Health Professionals Scottish Post-Polio Network Prof. Nils Erik Gilhus 8 Orchard Grove Neurology, University of Bergen Leven KY8 5XB N-5021 Bergen 0131 447 3486, [email protected], www.sppn.org.uk [email protected] Post-Polio Syndrome/Late Effects of Polio

Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.html 8 SIERRA LEONE–Support Group Jesús Sancho, MD Respiratory Care Unit, Respiratory Medicine Dept Polio Challenge Association Hospital Clínico Universitario Sylvanus Bandu Avd. Blasco Ibañez 17 113 Fourah Bay Road 46010 Valencia Freetown 077-593742 +34 96 3862600, +34 96 3862657 fax [email protected] [email protected]

SLOVAKIA–Support Group SPAIN–Support Groups Asociacia polio v SR Associats de Polio I Postpolio de Catalunya (APPCAT) Stefan Grajcar Juli Sellés Linares, President [email protected], http://polio-sk.webnode.sk Carrer Virgili, 18 08030 Barcelona SLOVENIA–Support Group [email protected], www.appcat.org Paras, Društvo Paralitikov Slovenije Asociación Gaditana de Personas con Síndrome Cesta 24. junija 23 Post-Polio (AGASI) 1231 Ljubljana Plaza Sunday Bohorquez, 12 (01) 563-34-68, (01) 561-27-10 fax 11130 Chiclana de la Frontera [email protected], www.drustvo-paralitikov.si 669562491 mobile [email protected], www.agasi.org.es SOUTH AFRICA–Support Groups Euskadiko Polio Elkartea Astrid Gorvett Eibar [email protected] [email protected] Resource only http://polioeuskadi.blogspot.com.es Post-Polio Network RSA Associatión Afectados de Polio y Sindrome Postpolio Cottage #1, Cheshire Home Chatsworth Lola Corrales, Presidenta 10 Equality Street, Croftdene, Chatsworth C/Luis de Hoyos Sainz 18 4092 KwaZulu-Natal 28030 Madrid +27 79 964 1847 cell, +27 86 668 3288 fax +34 686 000 171, [email protected] www.postpolioinfor.org SPAIN–Health Professionals Poliocyl, es la associacion des los afectados de polio y syndrome de postpolio Institut Guttmann de castilla y León Neurorehabilitation Hospital [email protected], http://poliocyl.blogspot.com Cami de Can Ruti, s/n 08916 Badolona Association of Post-Polio Syndrome of the +34 93 497 77 00, +34 93 497 77 04 fax Valencian Community [email protected] Valencia [email protected] Dr. Josep Gámez Clara Campoamor 10, 8-4 08902 L’Hospitalet de Llobregat SWEDEN–Health Professionals Barcelona *Sahlgrenska University Hospital Dra. Dolores Mancilla Alcantara Katharina Stibrant Sunnerhagen, MD, PhD UGC Rehabilitación y Medicina Física del HU Puerto Real Rehabilitation Medicine Ctra. N-IV Km. 665 SE-41345 Gôteborg 11510 Puerto Real (Cádiz) +46 31 3422803, +46 31 415433 fax 956 00 55 12 / 956 00 55 04 *Skåne University Hospital Ana Aguila Jan Lexell, MD, PhD, Professor, Medical Director Universidad Rey Juan Carlos Dept of Rehabilitation Medicine Madrid SE-205 02 Malmö [email protected] +46 040 33 10 00, +46 413 55 67 09 fax [email protected], www.skaneuniversityhospital.se

Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.html 9 *Karolinska Institutet *Ege University Prof. Kristian Borg, MD, PhD Arzu Yagiz On, MD Dept of Rehabilitation Medicine Medical Faculty, Physical Medicine & Rehabilitation Danderyd University Hospital, Bldg 39 Kampüsü 35040 S-182 88 Stockholm Danderyd Bornova – Izmir +46 8 6555255, [email protected] [email protected] Prof. Arne Sandberg Dept of Neurophysiology, University Hospital TURKEY–Support Group S-75185 Uppsala Polio Derneği [email protected] Megapol Tower, Adalet Mahallesi, Anadolu Caddesi 41/9-1, Bayrakli - Izmir SWEDEN–Support Group [email protected], www.poliodernegi.org Riksforbundet for Trafik-, Olycksfails – och Polioskadade (RT) UNITED KINGDOM–Health Professionals Vintergatan 2, 172 69 Sundbyberg *Lane-Fox Respiratory Saint Thomas’ Hospital 08-629 27 80, 08-28 15 60 fax PPS Rehabilitation Programme [email protected], www.rtp.se Guys & St Thomas’ Foundation Trust Lambeth Palace Rd SWITZERLAND–Health Professionals London, England SE1 7EH +44 207 188 3447, +44 207 188 3449 fax Maja Strasser, MD Neurologische Praxis Carrie-Ann Wood Hauptgasse 5 Deputy Clinical Lead Physiotherapist for Rehabilitation Solothurn CH-4500 Guys & St Thomas’ Foundation Trust +41 32 623 61 11, +41 32 623 61 12 fax St Thomas’ Hospital [email protected] Westminster Bridge Road www.neuropraxis-solothurn.ch/maja-strasser.php London SE1 7EH +44 020 7188 7188 SWITZERLAND–Support Group [email protected] Schweizerische Interessengemeinschaft für das Dr. Nicholas Hart, Consultant Physician Post-Polio Syndrom (SIPS) Lane Fox Unit Communaute d’intérêt Suisse pour le syndrom post-polio (CISP) St Thomas’ Hospital Comunità Svizzera d’interessi per il sindrome post-polio (CSIP) Westminster Bridge Road Schweiz. Vereinigung der Gelähmten London SE1 7EH Sihlhaldenstr. 1 A Referral: +44 020 7188 6115 8136 Gattikon Enquires regarding post-polio syndrome: +41 26 323 94 33, +41 26 323 27 00 (fax) +44 020 7188 6115 www.polio.ch, www.aspr-svg.ch UNITED KINGDOM–Support Groups THAILAND–Support Group Polio Survivors Network Foundation to Encourage Disabled Persons PO Box 954, Lincoln 80 Moo 7, Tambon Samranrat Lincolnshire, England LN5 5ER Amphur Doi Sakhet, Chiang Mai 50220 +44 1522 888601, +44 870 1600840 fax 085-708-8711 [email protected] [email protected], www.assistdisabled.org www.poliosurvivorsnetwork.org.uk British Polio Fellowship TURKEY–Health Professionals Citibase 44 Clarendon Road *Sisli Etfal Hospital Watford, Hertfordshire WD17 1JJ Jülide Öncü, MD +44 800 0431935, , +44 20 8842 0555 fax Physical Medicine & Rehabilitation [email protected], www.britishpolio.org.uk 34377 ŞİŞLİ Istanbul +90 212 373 50 00, +90 212 224 07 72

Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.html 10 United States Health Professionals and Support Organizations

*Post-Polio Clinic

ALABAMA–Health Professionals ARKANSAS–Health Professional Jack D. Denver, MD Kevin Collins, MD 1500 Southlake Park Ste 150 Rehabilitation Medicine Consultants of Arkansas, PA Hoover, AL 35244 Springhill Medical Plaza 205-874-9663, 205-874-9667 fax 3401 Springhill Dr Ste 460 North Little Rock, AR 72117 Larry W. Epperson, MD 501-945-1888, 501-945-4102 fax Neurology Consultants of Montgomery 1722 Pine St Ste 700 Montgomery, AL 36106 ARKANSAS–Support Group 334-834-1300, 334-834-8347 fax Central Arkansas Polio Survivors (CAPS) Betty S. Schmidt ALABAMA–Support Groups Quitman 501-589-3555, [email protected] Birmingham Post-Polio Support Group http://centralarkansaspoliosurvivors.com James Jarrell Resource and newsletter only 205-980-0050, [email protected] Tennessee Valley Post-Polio Support Group CALIFORNIA–Health Professionals Janie C. Carter Huntsville Dynamic Bracing Solutions 256-859-2177, [email protected] Marmaduke D.R. Loke, CPO www.geocities.com/tvppsg 6092 Innovation Way Carlsbad, CA 92009 Mobile Area Post-Polio Support Group 760-814-8475, 760-814-8497 fax Charles Gollott [email protected] 251-689-5268 http://DynamicBracingSolutions.net [email protected] Progressive Medical Helen A. Kent, BS, RRT ARIZONA–Health Professional 2720 Loker Ave W Ste P Colin Bamford, MD Carlsbad, CA 92010-6606 University Physicians (Neurology/Sleep) 800-491-2292, 760-448-4448, 760-448-4449 fax 2800 E Ajo Way Ste 102 [email protected] Tucson, AZ 85713 www.progressivemed.org 520-626-7664, 520-694-8888 Royal Orthopedic Company Craig R. Johnson ARIZONA–Support Group 5102 Canterbury Dr, PO Box 2441 Cypress, CA 90630 Polio Epic Inc. PO Box 17556 714-821-8410, 714-209-7708 fax Tucson, AZ 85731-7556 Christine Phan, MD Joanne Yager 520-296-1471, [email protected] Chief of Physical Medicine Rehabilitation Frank Frisina 520-360-9365, [email protected] Kaiser Permanente, Department of Physical Medicine Micki Minner 520-307-0174, [email protected] Imperial/Orchard Medical Office [email protected] 9353 E Imperial Hwy www.polioepic.org Downey, CA 90242 562-657-2418, [email protected]

Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.html 11 *Rancho Los Amigos National Rehabilitation Center M. Peggy Portwood, MD Post-Polio Service Physical Medicine, Rehabilitation, Electrodiagnosis 7601 E Imperial Highway 2288 Auburn Blvd Ste 101 Downey, CA 90242 Sacramento, CA 95821 877-726-2461, 562-385-7111, 562-401-6247 fax 916-640-8161, 916-640-8151 fax Morris Baumgarten, MD *Carol B. Vandenakker-Albanese, MD Orthopedic Surgeon University of California-Davis Medical Center 931 Buena Vista St #505 Physical Medicine & Rehabilitation Duarte, CA 91010 3301 C St Ste 1500 626-357-9931, 626-359-0739 fax Sacramento, CA 95816 916-734-7463, 916-734-6493 fax

Geoffrey L. Sheean, MBBS, MD [email protected] Clinical Professor, Neurosciences ALS Center & Neuromuscular Division Jeremy Wren, DO University of California San Diego Mercy Medical Group 9500 Gilman Dr # MC0662 Physical Medicine & Rehabilitation La Jolla, CA 92093 3000 Q St, Fourth floor [email protected] Sacramento, CA 95816 916-733-3373, dignityhealth.org Andrei N. Dokukin, MD Physical Medicine & Rehabilitation Andrew Skalsky, MD Lakewood Regional Medical Center Chief of Rehabilitation Medicine 3650 E South St #101 Rady Children’s Hospital & Health Center (adults) Lakewood, CA 90712 3020 Children’s Way MC 5096 562-633-1765 San Diego, CA 92123 858-966-8974, 858-966-6721 fax Barry Ludwig, MD Neurology & Rehab Medical Group Rhoda Olkin, PhD 100 UCLA Medical Plz, Ste 425 California School of Professional Psychology Los Angeles, CA 90024 Alliant International University San Francisco 310-794-1500 1 Beach St Ste 100 San Francisco, CA 94133-1221

Susan L. Perlman, MD 415-955-2129, [email protected], [email protected] Clinical Professor, Neurology Director, Ataxia Center & HD Center of Excellence Lorne Label, MD 300 UCLA Medical Plaza Ste B200 2100 Lynn Rd Ste 230 Los Angeles, CA 90095-8346 Thousand Oaks, CA 91360 310-794-1195, 310-794-7491 fax 805-497-4500, 805-495-1717 fax [email protected] [email protected] Eric Alexander, MD Martinez Medical Offices CALIFORNIA–Support Groups Physical Medicine & Rehabilitation High Desert Post-Polio Support Group Hacienda Bldg, 200 Muir Rd Julie Hueftle Martinez, CA 94553 Apple Valley 925-313-4740 760-686-5813, [email protected] *Casa Colina Centers for Rehabilitation Sierra Hills Post-Polio Syndrome Group Richard Shubin, MD, Neurology Auburn Kathy SanMartino, PT, NCS, ATP, CLT Barbara Childress: [email protected] 255 E Bonita Ave, PO Box 6001 Carolyne Reed: [email protected] Pomona, CA 91769-6001 909-596-7733, 909-392-9152 fax, 909-450-0391 fax Mary Correia [email protected] Bakersfield 661-836-9220, [email protected] Howard Orthopedics, Inc Resource only 3065 Richmond Parkway #112 Richmond, CA 94806 Sacramento Region Polio Survivors Group 510-222-1282, 510-222-1284 fax Loretta Haynes www.howardorthopedics.com 916-844-7676, [email protected] www.sacramentopoliosurvivors.com

Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.html 12 San Francisco Bay Area Polio Survivors (SFBAPS) Post-Polio Group/California North Coast PO Box 5104 Janet Johnson Concord, 94524-0104 PO Box 9397 510-223-4772, 650-368-8185, Santa Rosa, CA 95405-1397 415-440-5657, 925-926-0110, 925-837-3728 707-524-7865, [email protected] Stella R. Cade: [email protected] Phyllis Hartke: [email protected] COLORADO–Health Professionals [email protected], www.SFBAPS.org Deeann Vink, PT Polio Support Group of the San Gabriel Valley Advanced Spine Physical Therapy & West Inland Empire Drake Professional Park Marci Ellison: 626-484-3116 343 W Drake Rd Ste 102 Mary Ellen Stan: [email protected] Fort Collins, CO 80526 Polio Survivors Association 970-204-9635, 970-204-9730 fax Richard L. Daggett www.advanced-spine.com Downey Julie Trail, DPT 562-862-4508, 562-252-8128 fax A Personalized Physical Therapist Email contact preferred 6021 S Syracuse Way Ste 105 [email protected], [email protected] Greenwood, CO 80111 www.polioassociation.org 720-448-6820, 720-446-3523 fax Rancho Los Amigos Post-Polio Support Group [email protected], www.apersonalizedpt.com Diane Ekonen *Marny K. Eulberg, MD Downey Mountain & Plains Post Polio Clinic 562-861-8128, [email protected] 9461 W 37th Pl Post-Polio Support Group of Orange County Wheat Ridge, CO 80033 M. Priscilla Hiers 303-829-1538, 303-940-9800 fax Fountain Valley [email protected] 714-968-1675, [email protected], www.ppsupportoc.org COLORADO–Support Groups Polio Survivors Plus Sue Lau / Carol Shahandeh Colorado Post-Polio Council PO Box 5513 Sue Brandon Orange, CA 92863-5513 [email protected] 714-393-5706, 714-639-7497 Nancy Hanson, Easter Seals Liaison [email protected] 303-233-1666 ext. 237, [email protected] East Ventura County Post-Polio Support Group Aurora Sharon L. Ertel Myrna Schmidt Oxnard 608-790-5755, [email protected] 805-485-9664, [email protected] Colorado Springs Riverside Area Polio Survivors Hal Goldberg Bryan & Judy Mahoney 303-212-0017, [email protected] Riverside Grand Junction/Delta 951-788-9310, [email protected], [email protected] Melanie McClanahan San Diego Polio Survivors 303-638-3302, [email protected] Rick E. Kneeshaw, MA Lakewood/Golden San Diego Annette Beck 619-884-1220 303-427-1789, [email protected] Gladys Svensrud: 858-271-9288 [email protected], http://polio.home.mindspring.com Northern Colorado (Fort Collins) Support Group Peter Way Marin County Post-Polio Support Group 970-223-7479, [email protected] Francine Falk-Allen San Rafael North Metro Area [email protected] Jill Eelkema 612-865-4528, [email protected]

Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.html 13 Pueblo Aldo Alvarez, MS, LPO, CPO Mary Agnes Leonard Ortho Pro Associates 719-544-4789, [email protected] 9150 SW 87 Ave #B100 Miami, FL 33176 South Metro Area 305-598-9688, www.orthoproassociates.com Hal Goldberg 303-212-0017, [email protected] Tamar S. Ference, MD Assistant Professor, Department of Rehabilitation Medicine CONNECTICUT–Health Professional 1120 NW 14 St, 952, PO Box 0169060 (C-206) Miami, FL 33136 Luci Juvan, MD 305-243-4588, 305-243-6605 appts, 305-243-4650 fax Gaylord Specialty Healthcare [email protected] 50 Gaylord Farm Rd Wallingford, CT 06492 *Post-Polio Treatment, Education & Research Center 203-284-2800, www.gaylord.org Khema Sharma, MD University of Miami Miller School of Medicine Dept of Neurology CONNECTICUT–Support Group 1120 NW 14 St, 1317 The Polio Outreach of Connecticut Miami, FL 33136 Linda Wheeler Donahue, President 305-243-7400, 305-243-1249 fax Southbury, CT [email protected] 203-264-1075, [email protected] Andrew Sherman, MD Irma Heilbron, Secretary University of Miami School of Medicine 203-376-2233, [email protected] PO Box 016960 http://poliooutreachct.com Miami, FL 33101 305-243-6605, 305-243-3520 fax DISTRICT OF COLUMBIA–Health Professional [email protected] and 1475 NW 12th Ave, Miami, FL 33136 John Aseff, MD NRH Regional Rehabilitation 305-243-6605 102 Irving St NW Ste 3418 *Post-Polio Evaluation Team of North Central Florida Washington, DC 20010 Amy E. Clunn, MD 202-877-1657 Southeastern Rehabilitation Medicine 3305 SW 34th Cir Ste 101 Michael Wroten, MD Physical Medicine & Rehabilitation Ocala, FL 34474 102 Irving St NW 352-732-3110, 352-373-4321 appts Washington, DC 20015 866-346-8677 toll-free 443-366-2682 Mitchell J. Freed, MD 2501 N Orange Ave Ste 505 FLORIDA–Health Professionals Orlando, FL 32804-4674 407-898-2924, 407-894-5387 fax Michelle Guevin, PT, MHSc, MTC Palma Sola Medical Associates Cynthia Henley, PT 2227 59th St W 7655 SW 142 St Bradenton, FL 34209 Palmetto Bay, FL 33158 941-795-5922, 941-761-1682 fax 305-733-8809, [email protected] [email protected] Rodolfo Eichberg, MD Peter Schreiber, MD Rehabilitation & Electrodiagnostics Physical Medicine & Rehabilitation 2914 N Boulevard 632 Del Prado Blvd N Ste 101 Tampa, FL 33062 Cape Coral, FL 33909 813-228-7696, 813-228-0677 fax 239-772-5577 *Halifax Medical Center/Neuroscience Center FLORIDA–Support Groups Carolyn Geis, MD Boca Area Post-Polio Group Physical Medicine & Rehabilitation Maureen A. Sinkule: 561-488-4473, [email protected] 303 N Clyde Morris Blvd Carolyn DeMasi: 352-245-8129, [email protected] Daytona Beach, FL 32114 www.postpolio.wordpress.com 386-425-5911, [email protected]

Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.html 14 Meg Magnan GEORGIA–Support Groups Carrabelle 260-701-2960, [email protected] Atlanta Post-Polio Association (APPA) Resource only Wayne Nichols, President 3111 Springlake Dr Post-Polio Alliance of South Florida Buford, GA 30519-3972 Barbara Gratzke 770-530-9629, [email protected] Miami www.atlantapostpolio.com 305-987-5328, [email protected] Coastal Empire Polio Survivors Assn Inc Post-Polio Support Group of Brevard County Cheryl Brackin JoAnn McDonald Savannah Melbourne 912-927-8332, [email protected] 321-622-8040 www.coastalempirepoliosurvivors.org North Central Florida Post-Polio Support Group Carolyn P. Raville IDAHO–Health Professionals Ocala Robert H. Friedman, MD 352-489-1731, 352-465-3825 fax Idaho Physical Medicine & Rehabilitation [email protected] 600 N Robbins Rd Ste 300 www.postpoliosupport.com Boise, ID 83702 Pensacola Post-Polio Support Group 208-489-4016 Clara Norsworthy, 850-944-5834 Leigh Dethlefs, [email protected] ILLINOIS–Health Professionals Pensacola Colin Franz, MD Southern Hillsborough County Post-Polio Support Group Physical Medicine & Rehabilitation Pam Vogelsang Shirley Ryan Ability Lab Sun City Center 355 E Erie St, 15-N Outpatient 813-294-8186, [email protected] Chicago, IL 60611 312-238-1657, [email protected] Power Over Polio Support Group Barbara Meyers Kristi L. Kirschner, MD The Villages University of Illinois College of Medicine 352-753-2263, [email protected] Dept of Neurology & Rehabilitation Chicago, IL GEORGIA–Health Professionals [email protected] Resource only, does not see patients Dale C. Strasser, MD Emory University School of Medicine Raymond P. Roos, MD Center for Rehabilitation Medicine Director, Motor Neuron Disease Clinic 1441 Clifton Rd NE Ste 118 University of Chicago Medical Center Atlanta, GA 30322 5841 S Maryland Ave Ste MC 2030 404-712-3837, 404-778-5770 appts Chicago, IL 60637 404-712-5668 fax, [email protected] 773-702-6390, 773-702-5546 appts www.rehabmed.emory.edu 773-702-9076 fax, MDA 773-702-9089 [email protected] Ken Collier, CO, BOCO, LO Augusta Orthotics & Prosthetics, Inc. Scheck and Siress 2068 Wrightsboro Rd Prosthetics, Orthotics, Pedorthics Augusta, GA 30904 2551 N Clark St # 200 706-733-8878, 866-365-2674, 706-733-4434 fax Chicago, IL 60614 [email protected], www.augustaoandp.com 773-472-3663 (Also in Bannockburn, Evanston, Hickory Hills, Carolyn Podolski, OTR/L, MA Naperville, Oakbrook Terrace, Oak Park, Southland Health and Rehabilitation Rush University Medical Ctr, Schaumburg, UIC) 151 Wisdom Rd www.scheckandsiress.com Peachtree City, GA 30269 770-631-9000 ext 127, [email protected]

Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.html 15 James Sliwa, DO IOWA–Health Professionals Physical Medicine & Rehabilitation Shirley Ryan Ability Lab Donna J. Bahls, MD 355 E Erie St, 15-N Outpatient Physical Medicine Chicago, IL 60611 Capital Orthopedics & Sports Medicine 312-238-1000 12499 University Ave, Ste 210 Clive, IA 50325 515-440-2676 ILLINOIS–Support Groups Polio Survivors & Friends of East Central Illinois IOWA–Support Group Annamaria T. Barber, RN Charleston Tri-State Post-Polio Support Group 217-345-1549 after 4 pm Joan D. Bellmann [email protected] Dubuque 563-588-1692, 563-588-9833 fax, [email protected] Polio Survivors of Springfield Area Ann R. Hughes KANSAS–Health Professionals Riverton 217-741-2531, [email protected] John Fan, MD Hutchinson Clinic Mary Ann Buckingham 2101 N Waldron Worth Hutchinson, KS 67502 708-448-7237 620-669-2231 Resource only Tad Wrench, MPT INDIANA–Health Professionals Preferred Physical Therapy LLC 315 W Washington Deborah Goodwine, MS Sterling, KS 67579 Certified Nutritionist 620-204-6116 3686 E Fall Creek Pkwy N Dr and 2803 N Lorraine Indianapolis, IN 46205 Hutchinson, KS 67502 317-329-9833, [email protected] 620-662-3111, [email protected] Rehabilitation Associates of Indiana Atul T. Patel, MD 6330 E 75th St Ste 110 Kansas City Bone & Joint Clinic, Inc Indianapolis, IN 46250 Corporate Medical Plaza Bldg 317-588-7130, 317-588-7133 fax 10701 Nall Ave Ste 200 Overland Park, KS 66211 Scheck and Siress 913-381-5225, 913-901-0186 fax Prosthetics, Orthotics, Pedorthics 6629 W Lincoln Hwy (Rt 30) Schereville, IN 46325 KANSAS–Support Groups 219-864-9501 Central Kansas Polio Survivors Support Association Jean Graber INDIANA–Support Groups Pretty Prairie 620-459-6355, [email protected] Michiana Polio Network www.ckpolio.org Darlene Lidy Goshen, IN 46526 Topeka Post-Polio Support Group 574-522-2368, [email protected] Linda Lessman Topeka Roxann O’Brien 785-272-5138 Zanesville 260-638-4766, [email protected] Wichita Post-Polio Support Group Carole Utermark Wichita 316-651-5685, [email protected]

Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.html 16 KENTUCKY–Health Professional Lauro S. Halstead, MD, MPH 4405 East-West Hwy Ste 504 William P. Williamson, II, MD Bethesda, MD 20814 Rehabilitation Associates, PSC [email protected], www.laurohalsteadmd.com 220 Abraham Flexner Way, Ste 300 Louisville, KY 40202-1887 Barbara C. Sonies, PhD, CCC-SLP, BRS-S 502-899-3623, 502-584-3480 fax Dept of Hearing & Speech Sciences [email protected] University of Maryland 0100 LeFrak Hall LOUISIANA–Health Professional College Park, MD 20742 301-405-5237, [email protected] Stephen Kishner, MD LSU School of Medicine Reginald Nettles, PhD, CGP 1450 Poydras St Licensed Psychologist and Professional Life Coach New Orleans, LA 70112 6217 Ironwood Way 504-412-1100 Columbia, MD 21045-4466 410-290-7999, 443-583-2353 fax, [email protected] LOUISIANA–Support Group Amit Bhargava, MD, MS (Orthopedics), RMSK Physical Medicine & Rehabilitation Easter Seals LA Polio Support Network Medical Director Janet Pepperman Advanced Interventional Pain & Sports Medicine Center Prairieville 20 Crossroads Dr Ste 210 504-450-0480, [email protected] Owings Mills, MD 21117 410-581-2969, 410-581-5775 fax, www.bPain.com MAINE–Health Professionals Richard Parker, PhD MARYLAND–Support Groups 72 Front St The Polio Society Bath, ME 04530 Reginald Nettles, PhD 207-443-6180 Columbia Dorothy L. Woods Smith, PHD, RN, AHN-BC 410-290-7999, [email protected] Houses of Healing Polio Support Group of Central Maryland 25 Wakely Ct Jean E. Williams Portland, ME 04103 Columbia 207-797-8088, [email protected] 410-312-0606, [email protected] www.housesofhealing.com Fay Baker: 301-596-4156, [email protected]

MAINE–Support Groups MASSACHUSETTS–Health Professionals

Portland Region Post-Polio Support Group Nicholas S. Hill, MD Jane P. Lindquist Chief, Pulmonary, Critical Care & Sleep Medicine Falmouth Tufts Medical Center [email protected] 800 Washington St Ste. 257 207-576-3868 Boston, MA 02111 Post-Polio Support Group of Maine 617-636-4288, 617-636-5953 fax Ann B. Crocker [email protected] West Gardiner *International Rehabilitation Center for Polio (IRCP) 207-724-3784, [email protected] at Spaulding-Framingham www.ppsgm.org Darren Rosenberg, DO, Medical Director Spaulding-Framingham MARYLAND–Health Professionals 570 Worcester Rd Framingham, MA 01702 Noah Lechtzin, MD, MHS, FCCP 508-532-4259 Pulmonary & Critical Care Medicine www.spauldingrehab.org/services/outpatient/post-polio.aspx Johns Hopkins University 1830 E Monument St 5th Floor Baltimore, MD 21205 410-502-7044, 410-502-7048 fax, [email protected]

Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.html 17 Stephanie T. Machell, PsyD MICHIGAN–Support Groups Rehabilitation Psychology 40 Speen St Michigan Polio Network Framingham, MA 01701 Tim Brown, Vice Chairman and Treasurer 617-776-4001, [email protected] Grosse Point Woods 313-886-6081 Albert Loerinc, MD [email protected] Pulmonary Medicine www.michiganpolionetwork.com New Bedford Rehabilitation Hospital 4499 Acushnet Ave Southeast Michigan Post-Polio Support Group New Bedford, MA 02745 Bonnie E. Levitan 508-995-6900, 508-998-9365 fax Grosse Pointe [email protected] 313-885-7855, [email protected] Post-Polio Connection MASSACHUSETTS–Support Groups Sunny Roller, MA Liina Paasuke, MA

Amherst Post-Polio Support Group Ann Arbor Philippe G. Galaski 734-971-1715, [email protected] 413-727-8639 [email protected] Mid-Michigan Post-Polio Support Group Ethel Jean Iutzi

North Shore Area Post-Polio Support Group Harrison Barbara Mintz 989-539-3781, [email protected] Newburyport 978-465-1059, [email protected] Lansing Area Post-Polio Support Group Margaret Nielsen MICHIGAN–Health Professionals 517-336-5921, [email protected]

*Ann T. Laidlaw, MD MINNESOTA–Health Professionals University of Michigan Health Systems Physical Medicine & Rehabilitation Jennine Speier, MS, MD 325 E Eisenhower Ste 100 Physical Medicine & Rehabilitation Ann Arbor, MI 48103 Sister Kenny Rehabilitation Associates 734-936-7175, 734-615-6713 fax, [email protected] 800 E 28th St Minneapolis, MN 55407

Michael Andary, MD, MS 612-863-4495, 612-863-8942 fax 1200 E Michigan Ste 520 www.sisterkennyinstitute.com Lansing, MI 48912 517-364-5260 Mark Christopherson, MD Physical Medicine & Rehabilitation

Steven R. Hinderer, MD Mayo Clinic Michigan Abilities Center 200 First Street SW Physical Medicine & Rehabilitation Rochester, MN 55905 34020 7 Mile Rd Ste 102 507-284-0966; 507-255-1625 fax Livonia, MI 48152 734-622-9500, [email protected] * Gillette Children’s Specialty Healthcare Jill Gettings, MD

Frederick M. Maynard, MD 435 Phalen Blvd 427 E Michigan St Saint Paul, MN 55130-5302 Marquette, MI 49855 651-636-9443, 651-628-4484 fax 906-228-8217, [email protected] [email protected] *Center for PM&R, PC www.Gillettechildrens.org Daniel M. Ryan, MD 13850 E 12 Mile Rd Ste 2B MINNESOTA–Support Group Warren, MI 48088-3730 586-778-4505, 586-552-4878 fax Twin Ports Post-Polio Network Leo F. Plewa Hermantown 218-729-9635, [email protected]

Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.html 18 MISSOURI–Health Professionals MONTANA–Support Group Jennifer L.K. Clark, MD, PC Polio Survivors of Montana Physical Medicine & Rehabilitation Ann Tuss Columbia Orthopaedic Group 406-750-0352, [email protected] 1 South Keene St www. poliosurvivorsofmt.org Columbia, MO 65201 Resource only 573-443-2402, 573-876-8647 fax [email protected] NEBRASKA–Health Professionals Karl J. Haake, MD Jacob Keough, CO The Center for Pain Management OrthoMedics 100 St. Mary’s Plaza 13217 F St Jefferson City, MO 65101 Omaha, NE 68137 573-636-3483 402-614-7321 Melvin Karges, MD [email protected], www.orthomedics.us Physical Medicine & Rehabilitation Victoria McHugh, DPT 702 E 34th St Ste 100 Key Physical Therapy Joplin, MO 64804 7686 Walnut St 417-782-1700, 417-782-1747 fax Omaha, NE 68124 Keith Smith, CO 402-578-3146, 402-916-1739 fax Orthotic & Prosthetic Lab, Inc [email protected] West County Patient Care Center 777 S New Ballas Ste 116 W NEBRASKA–Support Group Saint Louis, MO 63141 Nebraska Polio Survivors Association 314-567-7775, 314-567-3792 fax Elaine Allen [email protected] PO Box 6076 *Center for Advanced Medicine Neuroscience Center Omaha, NE 68106-0076 Martin B. Wice, MD 402-932-5426 Kate Marlow, MD [email protected], www.ne-polio.org 4921 Parkview Place Ste 6C Saint Louis, MO 63110 NEVADA–Support Group 314-362-4503 South Nevada Association of Polio Survivors (SNAPS) Sylvia Soden MISSOURI–Support Groups Las Vegas Maryann “Miki” Gudermuth 702-331-9813, [email protected] 1314 Brookshire Rd http://snapsnv.org Cape Girardeau, MO 63701 573-275-0754, [email protected] NEW HAMPSHIRE–Health Professionals Resource only * Granite Physiatry, PLLC Greater Kansas City Post-Polio Support Group Stuart J. Glassman, MD, FAAPMR Judith Wilson 60 Commercial St Ste 303 816-741-1620, [email protected] Concord, NH 03301 www.postpokc.org 603-223-8145, 603-223-8146 fax www.granitephysiatry.com Greater St. Louis Post-Polio Support Group 314-534-0475, [email protected] Martha Torrey, PT Foothills PT Mid-Missouri Post-Polio Support Group Alvin G. Cook, Sr. 28 Commercial St Sedalia Concord, NH 03301 660-829-0902, [email protected] 603-225-5132, [email protected]

Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.html 19 NEW JERSEY–Health Professionals Thelma Van Liew 908-753-6514, [email protected] Jerald Zimmerman, MD Resource only 370 Grand Ave Ste 102 Englewood, NJ 07631 Monmouth Post-Polio Support Group 201-567-3370 (press 6), [email protected] Thomas Wilczewski 732-229-9343 Richard L. Bruno, HD, PhD Clinical Psychophysiology Morris County Polio Network International Centre for Post-Polio Education & Research 973-769-0075, [email protected] Hackensack Ocean County Polio Support Group 201-342-6777, [email protected] Mary Jane Vecchione www.postpolioinfo.com Toms River, NJ Resource only 732-341-6805, [email protected] Melanie-Ann Llanes, PTA Facebook.com/OCPPSG Marguerita Murray, MS, OTR/L Southwest Jersey Hackensack Meridican Health Anna Nasuti Mountainside Medical Center 856-740-1106, [email protected] 1 Bay Ave Montclair, NJ 07042 NEW MEXICO–Health Professional John R. Bach, MD Department of Physical Medicine & Rehabilitation Kimberly Encapera, MD Behavioral Health Sciences Building Rehabilitation Hospital of Southern New Mexico 182 S Orange Ave 4441 E Lohman Ave Newark, NJ 07103 Las Cruces, NM 88011 973-972-2850, 973-972-5725 fax 575-521-6440, 575-521-6551 fax [email protected], www.doctorbach.com, www.breatheNVS.com, www.breatheBB.com NEW MEXICO–Support Group Arthur J. Sakowitz, MD New Mexico Post-Polio Support and Education Group Pulmonary Medicine Assoc PA Susan S. Turner, LCSW 1 W Ridgewood Ave Ste 206 12836 Lomas Blvd NE Ste B Paramus, NJ 07652-2361 Albuquerque, NM 87112 201-493-0366, 201-493-0379 fax 505-275-0203, [email protected] Bacharach Institute for Rehabilitation 61 Jimmie Leeds Rd NEW YORK–Health Professionals Pomona, NJ 08240 TMR Orthotic Prosthetic Service 609-748-2081 Ethel Mieles Robert Martinez NEW JERSEY–Support Groups 2418 Ditmars Blvd Astoria, NY 11105

Polio Network of New Jersey (PNNJ) 718-726-8477 Lottie Esteban, President 110 Chestnut Ridge Rd, #330 Jonathan Breux, CO, CPED Montvale, NJ 07645 Hanger Clinic 201-391-0758, [email protected], www.pnnj.org 310 Pennsylvania Ave Elmira, NY 14904

Atlantic County 607-734-7215, 607-734-7750 fax, [email protected] Marge or Steve Disbrow 609-909-1518, [email protected] Scott Irwin, PT Pegasus Physical Therapy, PC

Bergen County Polio Support Group 114 Parkway Dr S Heather Broad Hauppauge, NY 11788 201-845-6317, [email protected] 631-543-1614, 631-543-1615, [email protected] Essex-Union Judith Glaser, DO Edwina Jackson 410 Lakeville Rd Ste 303 973-673-0380, [email protected] New Hyde Park, NY 11042 516-327-9777, www.drjudithglaser.com

Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.html 20 Jeffrey M. Cohen, MD NORTH CAROLINA–Support Groups Jung H. Ahn, MD Rusk Rehabilitation Institute Post-Polio Support Group of the High Country New York University Shelby Duane 240 E 38th St Boone New York, NY 10016 828-324-4223 212-263-6037 (Cohen), 212-263-6122 (Ahn) Triad Post-Polio Group Norma M.T. Braun, MD, FACP, FCCP Dan Moury Ombudswoman, Clinical Professor of Medicine Greensboro Icahn School of Medicine, Mt. Sinai Health System (MSHS) 336-413-4399, [email protected] Senior Attending, Department of Medicine Catawba Valley Post-Polio Pulmonary/Critical Care/Sleep Division MSSL-MSW Pam Rose Chair-Archives Committee Lincoln County Senior Center Medical Board – Mt. Sinai-St. Luke’s – Mt. Sinai 704-922-6709 (Roosevelt) West 1111 Amsterdam Avenue, Chapel 3; Room 323 Foothills Post-Polio Support Group New York, NY 10025-1737 Shelby 212-636-1369, 212-523-4410 (clinic), 212-523-4313 fax Wanda-Greg Horne, 704-482-8807 914-772-7930 (cell), [email protected] Dianne Garner, 704-434-4928 Maura Purpora, LMT Massage Therapy OHIO–Health Professionals 80 5th Ave Ste 906, New York, NY 10011 Anthony A. Hayek, DO 646-600-5220, www.maurapurpora.com Summit Rehabilitation Medicine 3975 Embassy Pkwy Ste 002 North Shore Orthotics-Prosthetics Ltd Akron, OH 44333 Robert Biaggi, CPO 330-668-4094 591 Bicycle Path Ste D Port Jefferson Station, NY 11776 Douglas B. Van Atta, LPO/CPO 631-928-3040, 631-474-8020 fax O & P Options, LLC [email protected], www.nsop.com 10547 Montgomery Rd Ste 600 Cincinnati, OH 45242 *Post-Polio Syndrome Research and Treatment Center 513-791-7767, [email protected] Burk Jubelt, MD University Health Care Center Gregory Nemunaitis, MD 4th Floor, 90 Presidential Plaza Physical Medicine & Rehabilitation Syracuse, NY 13202 Metro Health Medical Center 315-464-4243, [email protected] 2500 Metro Health Dr Cleveland, OH 44109-1998 Benjamin Seidel, DO 216-778-2929 Burke Rehabilitation 785 Mamroneck Ave *Cleveland Clinic Foundation White Plains, NY 10605 Robert W. Shields, Jr., MD 914-597-2332, 914-397-2794 fax, www.burke.org 9500 Euclid Ave Ste S90 Cleveland, OH 44195 NEW YORK–Support Group 216-444-0855, 216-445-4653 fax Prof. Michael Kossove, MS Adam Quick, MD Sullivan County, May-Dec 845-583-8436 The Ohio State University NYC and Long Island, Jan-May 718-767-8230 Wexner Medical Center, Dept of Neurology [email protected] 395 W 12th Ave 7th Floor Resource only Columbus, OH 43210 614-293-4969, 614-293-6111 fax NORTH CAROLINA–Health Professional Susan L. Hubbell, MD Physical Medicine Associates of NW Ohio Inc * Carolinas Rehabilitation 939 W Market St Ste 1 William L. Bockenek, MD 1100 Blythe Blvd Lima, OH 45805 Charlotte, NC 28203 419-228-5434, 419-228-4620 fax 704-355-9330, 704-355-0709 fax

Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.html 21 OHIO–Support Groups OKLAHOMA–Health Professionals Akron Post-Polio Support Group Linda Johnson, MD, FACS Brenda Ferguson Southern Plains Medical Ctr, PC Akron 2222 W Iowa Ste W 330-671-7103, [email protected] Chickasha, OK 73018-2738 405-224-8111, 405-222-9582, [email protected] Stark County Linda Conrad Thomas L. Keith, PT Canton Keith Physical Therapy Inc 330-877-2632 5700 NW 132nd St Oklahoma City, OK 73142 Central Ohio Polio Network 405-843-5710, 405-843-5720 fax, [email protected] Columbus Aldeen “Monica” Wilford: 614-581-6979 Keith L. Stanley, MD Susan Cull: 614-204-4089 Tulsa Bone & Joint Associates 4802 S 109th East Ave The Polio Connection Tulsa, OK 74146-5822 Charles Humerickhouse 918-392-1400, 918-392-1481 fax Cincinnati 513-777-3083, [email protected] OKLAHOMA–Support Group Miami Valley Post-Polio Support Group Arlene Zachritz Polio Survivors of Oklahoma Association Dayton W. Yvonne Leard 937-433-1186 Oklahoma City 405-946-1460 Coal Grove Polio Support Group Carolyn Melvin OREGON–Support Groups Ironton 740-532-7572 International Post-Polio Support Org (IPPSO) Shari Clement Fiksdal Ohio Polio Network Medford Patrick C. Kelly 541-282-3944, [email protected] Marietta http://international-post-polio-support.org 740-374-0538, [email protected] www.ohiopolionetwork.org PDX Polio Support Group–Portland Metro Area Cathleen Casey Greater Cleveland Post-Polio Support Group Char Pennie Alice M. Sporar [email protected] Mentor 440-942-1557, [email protected] PENNSYLVANIA–Health Professionals HELPS Post-Polio Support Group Winnie Walker William (Bill) DeMayo, MD New Philadelphia [email protected] 330-339-6910 Resource only Defiance Area (Northwest Ohio) Tri-Rivers Musculoskeletal Centers John Schatz Anna Gaines, MD (2 offices) 419-782-4699 Butler-Clearview 142 Clearview Circle Toledo Post Polio Connection Butler, PA 16001 Sandy Foss Saxonburg-S. Butler Commons Toledo 101 Alwine Rd Ste 206 419-893-8110 Saxonburg, PA 16056 866-874-7483 toll free, www.tririversmsk.com Wooster & Wayne County Vivian Gray Thyagarajan Subramanian, MD 330-264-2270 Penn State Hershey Neurology 30 Hope Drive, Building B Ste 1300 Hershey, PA 17033 800-243-1455, 717-531-3828, 717-531-0465 fax

Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.html 22 Janet D. Drake, PT, LCCE, FACCE, CAPP, TPS RHODE ISLAND–Health Professionals Penn Therapy 1800 Pennbrook Pkwy Claudia Wheeler, DO Landsdale, PA 19446 Medical Director, Outpatient Rehabilitation Services 215-661-8660 Rhode Island Hospital 765 Allens Ave Ste 110 Marinos Dalakas, MD Providence, RI 02905 Neurology 401-606-4150 900 Walnut St Philadelphia, PA 19107 Bill Burns, DPT 215-955-1234, [email protected] Courtney Teoli, DPT Choice Physical Therapy Barbara Swan, MD 55 Beach St ChoiceCare Physicians, PC Westerly, RI 02891 1370 Federal St 2nd floor 401-348-1010, www.choicept.org Pittsburgh, PA 15212 412-828-4409, doctors.ahn.org/Barbara-E-Swan Adrian Hamburger, MD Westerly Spine & Pain Center Robert Mannherz, MD 35 Wells St Unit 4 Suburban Orthopaedic Specialists, PC Westerly, RI 02891 283 Second Street Pike, Ste 120 401-348-3865, www.westerlyspine.com Southampton, PA 18966 215-355-7220, 215-355-7222 fax RHODE ISLAND–Support Group Richard P. Rosenstein, DO Shoreline Polio Survivors Abington Rehabilitation Associates William Nieranowski Abington Health Center - Warminster West Greenwich, RI Stein Bldg, 205 Newtown Rd, Ste 104 401-497-3060, [email protected] Warminster, PA 18974 www.shorelinepoliosurvivors.yolasite.com 215-674-3337, 215-674-4247 fax Charles Ehring SOUTH CAROLINA–Health Professionals Harry J. Lawall & Son 701 Easton Rd Holly H. Wise, PT, PhD Willow Grove, PA 19090 Division of Physical Therapy 215-657-3344 Medical University of South Carolina 151 Rutledge Ave B312, PO Box 250700 Abington Health Center - Schilling Charleston, SC 29425 2510 Maryland Rd, Ste 150 843-792-4051, 843-792-0710 fax, [email protected] Willow Grove, PA 19090 215-674-3337, 215-674-4247 fax TENNESSEE–Health Professionals PENNSYLVANIA–Support Groups Patricia A. Abbarno, LCSW 111 Center Park Dr Ste 1300 Pennsylvania Polio Survivors Network Knoxville, TN 37922-2124 215-858-4643 865-693-9997, 865-531-0994 fax [email protected], www.papolionetwork.org [email protected] Pennswood Post-Polio Support Jeffrey S. Hecht, MD Jim Smith Physical Medicine (inpatient only) Newtown Tennova Rehab Care Center 215-860-3547, [email protected] 900 E Oak Hill Ave Knoxville, TN 37917

Hanover Post-Polio Support 865-545-7763, 865-545-8507 fax, [email protected] Deborah Stambaugh http://gsm.utmck.edu/surgery/faculty/hecht.cfm Spring Grove 717-969-5049, [email protected] Robert W. Greene, Jr., MD Physical Medicine & Rehabilitation 6005 Park Ave Ste 112 Memphis, TN 38119 901-761-5885, [email protected]

Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.html 23 TENNESSEE–Support Group Kevin C. Matthews, CO/LO Advanced Orthopedic Designs Polio Heroes of Tennessee/Nashville Area 12315 Judson Rd Ste 206 Nickie L. Lancaster, RN San Antonio, TX 78233 529 Albany Dr 210-657-8100, 210-657-8105 fax Hermitage, TN 37076-1422 [email protected] 615-889-3007 www.advancedorthopedicdesigns.com

TEXAS–Health Professionals Bradley S. Merritt, MD Physical Medicine & Rehabilitation Robert Emerson, MD Trinity Rehabilitation Center The Austin Diagnostic Clinic 3131 Troup Highway Pulmonary Disease/Sleep Disorders Tyler, TX 75701-8350 12221 MoPac Expressway N, 1st Floor, South Entrance 903-510-7006, 903-510-7010 fax Austin, TX 78758 512-901-4017 TEXAS–Support Groups Kim Barker, MD Texas Bay Area Polio Survivors Group Physical Medicine & Rehabilitation John Hartman University of Texas-Southwestern 713-502-7679, [email protected] 5161 Henry Hines, Blvd Dallas, TX 75390 Fort Worth Area Polio Survivor Support Group 214-645-2080, 214-645-2852 fax, [email protected] Marilyn Foster PO Box 471109 Joseph Viroslav, MD Fort Worth, TX 76147-1109 Sleep & Breathing Disorders 817-336-1769, [email protected] Professional Office Bldg 2 5939 Harry Hines Blvd, 2nd Flr Ste 110 Polio Support Group of Central Texas Dallas, TX 75390 Gayle H. Nashed 214-645-5337, 469-916-0087, 469-916-0089 fax Georgetown 512-869-5569, [email protected] Thomas DiBello, CO, FAAOP Regional Director, Hanger Clinic South Plains Post-Polio Support Network 11155 S Main Carol J. Thompson Houston, TX 77025 Shallowater 713-747-4171, 888-814-0711, 713-747-4249 fax 806-832-5683, [email protected] [email protected], www.dynamicoandp.com Carolyn (Kelley) Da Silva, PT, DSc, NCS UTAH–Health Professionals School of Physical Therapy, Texas Woman’s University Reva P. Rauk, PT, PhD, MMSc, NCS 6700 Fannin St University of Utah, College of Health Houston, TX 77030 Department of Physical Therapy 713-794-2087, 713-794-2071 fax, [email protected] 520 Wakara Way Ste 302 Salt Lake City, UT 84108-1213 Lisa Wenzel, MD 801-581-8665, 801-585-5629 fax Christine Krull, MD [email protected] Memorial Hermann TIRR 1333 Moursund St Hallie J. Robbins, DO Houston, TX 77030 Physical Medicine & Medicine 713-797-5248 or 713-797-5942, 713-797-5095 fax Integral Rehabilitation, LLC 1925 S Wasatch Dr Robert McMichael, MD Salt Lake City, UT 84108 Neurology Associates Arlington/Mansfield 801-631-6288, 801-485-2729 fax 2800 E Broad St Ste 504 [email protected] Mansfield, TX 76063 817-225-0410, 817-261-7315 fax

Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.html 24 UTAH–Support Group Everett Post-Polio Support Group of Washington State Rhonda G. Whitehead Post-Polio Support Group of Utah Bothell Deb Hunt 425-488-0219 Salt Lake City [email protected] 801-718-1077, [email protected] Polio Outreach/North Central Washington VERMONT–Health Professional Jim & Sandee Thornton East Wenatchee Andrew J. Haig, MD 509-884-8856, [email protected] Physical Medicine & Rehabilitation Pain Management Ursula Schmidt 373 Blair Park Rd Ste 206 Olympia Area Williston, VT 05495 360-456-8097 802-857-5671, 802-662-4835 fax, www.haigmed.com Resource only Olympic Peninsula Post-Polio Support Group VIRGINIA–Health Professional Paul D. Tucker Port Angeles Peter A. Caprise, Jr, MD 360-452-6487 Orthopaedic Surgeon [email protected] 2405 Atherholt Rd Lynchburg, VA 24501 Tri-Cities Post-Polio Support Group 434-485-8500, 434-485-8599 fax, www.occva.com Norma Peters Richland VIRGINIA–Support Groups 509-946-5485, [email protected] Northern Virginia Post-Polio Support Group Renton, South Seattle & South King County Cities Carol Dexter Mimi Sangder Falls Church Seattle 571-606-4346, [email protected] 206-725-8937 Sharman R. Collins WASHINGTON–Health Professionals Spokane 509-448-8517, [email protected] Joshua Benditt, MD, FCCP Resource only Respiratory Care Services University of Washington Medical Center Tacoma/Pierce County Post-Polio Support Group 1959 NE Pacific St, Campus Box 356522 Marlys Tron Seattle, WA 98195 253-863-9556 206-543-3166, 206-685-3678 fax [email protected] Sandra Morley 253-752-6176 Ny-Ying Lam Resource only Rehabilitation Medicine University of Washington Medical Center Bev Nading 1959 NE Pacific St Sunnyside Seattle, WA 98195-6490 509-837-4265 206-598-4295 [email protected] Resource only WASHINGTON–Support Groups Vancouver Post-Polio Support Group Susie Koeser Polio Outreach of Washington Vancouver Stanley Barber 360-574-4523 800-609-5538 [email protected] www.poliooutreach.com

Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.html 25 WEST VIRGINIA–Support Group Mid-Ohio Valley Post-Polio Support Group Wood County Society Brandon Gress 304-428-4280 [email protected]

WISCONSIN–Health Professional William Waring, III, MD Medical College of Wisconsin Rehabilitation Medicine Clinic - West 9200 W Wisconsin Ave Milwaukee, WI 53226 414-805-7342,414-805-7919 fax

WISCONSIN–Support Groups Madison (WI) Area Post-Polio Support Group Gail Kempfer DeForest [email protected] Linda A. Tomter Eau Claire 715-834-8837, [email protected] Resource only Paul Garness La Crosse 608-788-5331, [email protected] Resource only Post-Polio Resource Group of Southeastern Wisconsin Harvey Padek Cedarsburg/Milwaukee 262-421-8621, 414-403-8424 [email protected], www.pprg.org

Online discussion groups: USA Governmental This site (www.skally.net/ppsc/ppsc-l.htm) links to many Centers for Disease Control and Prevention (CDC) discussion groups. It also includes a description of and 800-232-4636, 888-232-6348 (TTY) caveats about the groups. www.cdc.gov Post-Polio Health International does not monitor any online National Institutes of Health (NIH) post-polio discussion groups, but, it does have a Facebook 301-496-4000, 301-402-9612 (TTY) page at www.facebook.com/home.php. www.nih.gov

Professional Medical National Institute of Neurological Disorders & Stroke (NINDS) American Academy of Neurology (part of NIH) 800-879-1960, 651-695-2717, 612-928-6000 (International) 800-352-9424, 301-496-5751, 301-468-5981 (TTY) http://patients.aan.com www.ninds.nih.gov American Academy of Orthopaedic Surgeons Social Security Administration 800-346-2267, 847-823-7186, www.aaos.org Office of Public Inquiries 800-772-1213, 800-325-0778 (TTY) American Academy of Physical Medicine www.ssa.gov and Rehabilitation 847-737-6000 www.aapmr.org Associations/ Organizations

American Board for Certification in Orthotics, American Chronic Pain Association (ACPA) 800-533-3231 Prosthetics and Pedorthics, Inc. 703-836-7114 www.theacpa.org www.abcop.org Chronic Pain Association of Canada (CPAC) 780-482-6727 American College of Chest Physicians 847-498-1400, 800-343-2227 (toll-free in US) www.chronicpaincanada.com www.chestnet.org Easter Seals 800-221-6827, 312-726-6200 American Orthopaedic Foot and Ankle Society 847-698-4654, 800-235-4855 www.easter-seals.org www.aofas.org March of Dimes Birth Defects Foundation (National Office) Association of Rehabilitation Nurses 800-229-7530 914-997-4488 www.rehabnurseorg www.marchofdimes.com

American Physical Therapy Association (APTA) Restless Legs Syndrome (RLS) Foundation 800-999-2782 (voice-toll free) 507-287-6465 703-684-2782, 703-683-6748 (voice/TDD) www.rls.org www.apta.org Rotary International 866-976-8279 (toll-free), 847-866-3000 The American Occupational Therapy www.rotary.org Association, Inc. (AOTA) 800-377-8555 (TDD), 301-652-2682 World Health Organization (WHO) www.aota.org Geneva, Switzerland +41 22 791 2111 www.who.int

Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.html 27 Disability Rights/Independent Living Topical Resources American Association of People with Disabilities (AAPD) SCOLIOSIS 800-840-8844 (Toll free voice/TTY) (curvature of the spine) 202-457-0046 (voice/TTY) www.aapd.com National Scoliosis Foundation 800-NSF-MYBACK, 800-673-6922 Independent Living Research Utilization (ILRU) www.scoliosis.org 713-520-0232 (voice/ TTY) www.ilru.org Scoliosis Research Society 414-289-9107 Mobility International USA www.srs.org 541-343-1284 (voice/TTY) www.miusa.org Shoes of Different Sizes National Council of Independent Living (NCIL) National Odd Shoe Exchange 877-525-3400, 202-207-0334, 202-207-0340 (TTY) 480-892-3484 www.ncil.org www.oddshoe.org National Council on Disability (NCD) The One Shoe Crew 202-272-2004, 202-272-2074 (TTY) 918-364-7463 www.ncd.gov www.nepacil.org National Organization on Disability (NOD) Nordstrom’s 646-505-1191 ext 122 888-282-6060 www.nod.org www.store.nordstrom.com Rehabilitation International 212-420-1500 www.riglobal.org

Assistive Technology (Equipment) AbleData 800-227-0216, 301-608-8998, 301-608-8912 TTY www.abledata.com Pass It On Center – National AT Reuse Center 800-497-8665 www.passitoncenter.org/locations/search.aspx RESNA Society 703-524-6686 www.resna.org Find a Certified AT Professional

50 Crestwood Executive Center #440, St. Louis, MO 63126 USA 314-534-0475, 314-534-5070 fax [email protected], www.post-polio.org, www.polioplace.org

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