The Arc News in Indiana Supported Decison Making Page 2 ABA Funding Sources Page 4 Erskine Green Training Institute Page 6 Achieve with us.

Vol. 59, No. 2 www.arcind.org Spring 2016

ABLE Act, High School Diploma Legislation Pass 2016 Session of General Assembly The 2016 session of the Indiana ation of the Achieving a Better Life actuarial analysis, accounting, on behalf of individuals with General Assembly came to a close Experience (ABLE) Board that will investment management, or disabilities other areas of finance on March 10. Despite the short work to establish a qualified ABLE - Individual with a disability session that did not allow time for program in Indiana. This will allow - Individual with legal expertise - Family member of an individual and knowledge in estate planning the passage of many initiatives, The individuals and families to make with a disability - Individual who is a Arc of Indiana successfully champi- contributions to an ABLE account representative of a statewide Next steps will include work by oned the passage of legislation to for qualified disability expenses that association that advocates the board to establish policies and allow ABLE accounts to be open in will benefit an eligible individual administrative guidelines for the Indiana and legislation to provide with a disability. Our thanks to ABLE program, and action in the the opportunity for all students to Senator Luke Kenley, Representative 2017 legislative session to provide earn a high school diploma with Edward Clere, and State Treasurer funding to staff the program. This consistent curriculum requirements. Kelly Mitchell for their leadership should allow families and individuals Unless otherwise indicated, all bills reported in supporting SB 11. to begin funding ABLE accounts were waiting for Governor Pence to sign into later in 2017. law as we went to press. Members of the ABLE Board will include: HB 1219 – High School Diplomas SB 11 – ABLE Act • State Treasurer HB 1219 passed unanimously in SB 11 passed unanimously in the • Secretary of Indiana Family and the Indiana House and Senate. The Indiana House and Senate and was Social Services bill requires a high school operated signed by Governor Pence on March Advocates for the ABLE Act following testimony on • Budget Director the bill in the House — Erika Steuterman, The Arc of by a school corporation to offer 21. The bill provides for the cre- • Lieutenant Governor Indiana Governmental Affairs Committee Chairman; State Treasurer Kelly Mitchell; SAI President Melody students the opportunity to earn • Governor Appointees Cooper; Kristen LaEace, CEO, Indiana Association any type of state diploma approved - Individual with experience in of Area Agencies on Aging; Executive Director Kim Dodson. by the state board of education. It Continued on page 7 NON-PROFIT ORGANIZATION PERMIT NO. 1715 PERMIT INDIANAPOLIS, IN U.S. POSTAGE PAID U.S. POSTAGE Celebrating 60 Years “...it is not where we stand, but where we are going that counts.” – Joe Newman, Acting President, 1955

The Arc of Indiana was established in 1956 by par- serving people with intellectual and developmental dis- ents of children with intellectual and developmental abilities and their families. disabilities (I/DD) who joined together to build a better Throughout 2016 The Arc will be celebrating the import- and more accepting world for their children. Today, the ant milestone of our 60th Anniversary. We will be looking back combined strength of local Arcs, state Arcs and The Arc on the history of our accomplishments, and looking forward of the United States makes The Arc the largest national to new goals and achievements. In this issue of The Arc News community-based organization advocating for and in Indiana, we look back on The Arc’s years 1971-1985. Printed on recycled paper Printed 1971 Grant provides funding for 1972 $43,400 pledged at first children with disabilities training on recreation. Ride-A-Bike. ADEC, not enrolled in school. The Arc in Elkhart County, 1973 Regional conference of The still holds an annual Arc held in Indianapolis. Ride-A-Bike event. 1,000 in attendance. Resolution passed to take 1974 Hosted forum on legal action if necessary residential services. to implement special 1975 Conducted “Project education funding. Understanding,” statewide “Child Hunt” conducted public awareness campaign. to locate school-age Continued on page 5 The Arc of Indiana The St. 107 N. Pennsylvania Suite 800 Indianapolis, IN 46204 317-977-2375 The Arc of Indiana Spring 2016

Self-Advocates Supported Decision of Indiana Making offers Alternative President’s to Guardianship Corner The Arc of Indiana continues to someone else make decisions for work on its Supported Decision them. SDM is the least restrictive Melody Cooper, President Making project with the National option available and would be less Self-Advocates of Indiana Melody Cooper Resource Center for Supported Deci- costly to both the State and those sion Making. The project focuses on who might otherwise seek guard- I hope you all enjoyed a wonderful Day at the State House event. We a review of current laws and policies, ianship by avoiding expensive court Disability Awareness Month! This shared the message of the ABLE Act as well as how supported decision processes and unnecessary legal fees. is a good time to reflect on how far with our legislators and government making might fit within the array we’ve come, and to realize that there officials, and thanked them for their of supports available to people with SDM uses friends, is still much to do so that people work. We’d like to thank all of the disabilities. family members and with disabilities are fully heard and governmental officials who met with advocates to give Supported Decision Making understood. us that day. (SDM) is an alternative to guard- people with disabilities Over the past few months our In April, Shawn Fulton and I will ianship that uses friends, family the help they need and members have had the chance to have the chance to represent SAI members and advocates to give want, to understand the use their voices. Our Vice President, at the Disability Policy Seminar in people with disabilities the help situations they face and Shawn Fulton, and I both had the Washington, D.C. We look forward they need and want to understand the choices they must chance to testify on SB11, ABLE Act to learning more about disability the situations they face and the make, so they can make legislation that would allow people legislation and having the oppor- choices they must make, so they can their own decisions. with disabilities and their families tunity to speak to our legislators on make their own decisions. It does to set aside money in special ABLE Capitol Hill. not replace more formal substitute The Arc of Indiana is honored to accounts that would not affect their During Disability Awareness decision making legal structures, be a part of this project. Next steps important benefits and services. Month, and every month, I encour- but it is one more alternative, include reaching out to legislative In addition, over 100 self-advo- age you to keep using your voices to another tool in the toolbox so to leaders to urge them to study SDM cates from all over Indiana joined produce change in your communi- speak, that would enable people to in an interim study committee with together at the State House on Feb- ties and in our state! use their own support systems and the goal of introducing legislation ruary 11 for the annual Valentine’s family to obtain information and next session that would make SDM make decisions instead of having a reality in Indiana.

A View from My Window Hosted by Michelle Fischer The Arc Utility The Arc of Indiana welcomes you to listen in to A View from My Window, our podcast hosted by Michelle Fischer. Support Program Visit www.arcind.org/AViewfromMyWindow to listen to the latest edition The Arc of Indiana Utility Support Program can help with utility bills and past podcasts of A View from My Window, including these recent shows: for families with a dependent child, one or more family members with a disability, and income at or below 250% of the federal poverty level. A View into #60Stories60Years Eligible Utility Support Services A View with Scott Chesney • Up to two months heating or cooling utility bill assistance Scott Chesney is a navigator of life with paralysis and President of Raise Hope Foundation that trains, mentors, and places people with • Deposit assistance to begin services disabilities and veterans in financial services careers. • Funding to prevent disconnection of services A Tribute to Jewel Kats • Funding to reactivate services Jewel Kats was a children’s book author and the inspiration for Harper • Funding to cover utility debt back to one year from date of Lodge, the first Archie Comics character with a disability. application Learn More Like A View from my Window For additional information, visit: with Michelle Fischer www.arcind.org/our-programs/ on Facebook the-arc-of-indiana-utility-support-program Follow Michelle’s Blog – My Life Apply for Assistance and Stories Behind the Mic To apply for assistance contact: Join Michelle on Twitter Gina DeWilde, Utility Support Program Coordinator, @MFView [email protected] or 800-573-9816

PAGE 2 The Arc News in Indiana The Arc of Indiana Spring 2016

Executive Director’s Column Facing Change and the Future Together As disability amendment to our Community we live in. What is it we need to make 5. Partnership Advantage awareness month Integration and Habilitation Waiver, sure we continue to support of our This strategic plan comes at a is concluding and we need to stay focused on the end chapters and the people and families critical time in the development of autism awareness goal – which is a more sustainable, they serve? How do we continue to the organization. The environment Kim Dodson month begins, it efficient waiver that supports as many be the leading advocacy organization in which The Arc operates is rapidly is a great time people as possible. for people with disabilities and their changing. We have had a great deal to think about what lies ahead for Change is difficult and some- families? of success over the years, and now is The Arc of Indiana, our 43 chapters times scary. However, we have been Although the plan is not yet final- the time to not only respond to the throughout Indiana and the thou- through it many times, and more ized, we have identified five strategic changing environment, but also to sands of people with disabilities in times than not, change has been leads for our organization: be transformative in our response. our state. Times are changing, and good. 1. New Models of Services to It is essential that The Arc continue we need to get ready. Last summer The Arc of Indiana’s Members and Chapters to be relevant and responsive to our As you look at new policies being constituencies, while being nimble Board of Directors started our strate- 2. Extending our Scope of handed down from the federal and able to seize opportunities that gic planning process and wanted to Geography and Diversity government regarding home and look at things a bit differently. They present themselves. community based services, we need didn’t want to evaluate what we do 3. Currency of Awareness and I look forward to what lies ahead not face everything as a challenge and its impact; they wanted to look Advocacy through Stories and know we will face change but perhaps as an opportunity. Even at what we need to do to remain 4. Innovation and Continuous together, and together we can make as Indiana moves forward with an viable in this ever-changing culture Improvement great things happen.

Celebrating Our Local Chapters of The Arc The following stories exemplify when Kiew was just a toddler, and Terry and Kevin participate in the good work that is happening she has lived with an aunt and uncle several programs offered by The throughout the state thanks to the ever since—first in the jungles of Arc of Greater Boone County. Terry 43 local chapters of The Arc. To find Burma and then in a refugee camp participates in Arc Artisans, earning a chapter in your area, visit: www. for many years before coming to the income through his artwork; and arcind.org/about-the-arc/local-chap- United States. Kevin is part of a mobile cleaning crew. For recreation, Terry and Kevin enjoy ters. In addition to her bright smile, working on their drum and bongo skills Kiew has a gift for music and the Easter Seals Arc of in music class. Their favorite way to arts. She understands very limited Northeast Indiana spend their extra time is volunteering Burmese, no English and is non-ver- Brittani Parker and Wesley Mull The Arc in Allen, Dekalb, in the Lebanon community. bal, so most of her communication provides individuals with disabilities Huntington and Steuben began by gesturing and pointing. with the opportunity to share their Last year, The Arc of Greater Boone Counties Derek and co-worker Mary Jo agree stories and showcase their talents. County joined an “adopt a street” program, pledging to keep one mile that Kiew has made huge strides in Participation in a professional theatre of the street that runs in front of one understanding phrases and catching production is an exciting chance their buildings clean. When Terry and on to daily routines—all with that to demonstrate to the community Kevin learned through the Lebanon big smile on her face. that all individuals have inspiring Rotary Club that there are 51 billion and impactful stories to share, and pieces of litter discarded on US road- Stone Belt Arc that all people have artistic skills, The Arc in Monroe County ways every year, they were inspired to dreams and aspirations. Performers became enthusiastic participants in Brittani Parker and Wesley Mull work for several months to write and the program and the rotary club’s goal performed monologues of their per- rehearse their stories. Performances to make Lebanon the cleanest city in sonal stories to live theater audiences in past years have been given to sold- Indiana. Terry and Kevin are proud that Kiew Ler at Stone Belt’s I AM YOU produc- out audiences on the Bloomington their efforts are making a difference Those who know Kiew Ler say that tion in 2014. Family relationships Playwrights Project stage. and that through volunteering, they if her sunny outlook doesn’t inspire inspired both of their performances. Visit www.stonebelt.org for more are able to give back to the Lebanon you, then the story of her life will. Wesley’s handmade Granny puppet information about this year’s show. community. “Her radiant smile brightens the helped him tell the story of his close room,” says Derek Stanley, one of the relationship with his grandmother The Arc of Greater Boone Direct Support Professionals Easter before she passed away. Brittani County Seals Arc of Northeast Indiana’s dedicated her performance about On any given day when you can Adult Day Center. her family relationships to them for ask Terry Scott and Kevin Jackson Kiew began attending the Adult their love and support. how they are doing, they always Day Center in Spring 2015. She is This bi-annual production will respond “Great!” Their positive from Burma and came to America have its fifth season in June 2016 attitudes inspire their co-workers just five years ago. Her mother died with 10 new performers. I AM YOU and staff daily. Terry Scott and Kevin Jackson

The Arc News in Indiana PAGE 3 The Arc of Indiana Spring 2016

Funding Sources for ABA Therapy in Indiana Michele Trivedi, MHA, The Arc Insurance Project Manager As of March 3, 2016 • Photos provided by Little Star Center Applied Behavior Analysis (ABA) is the process of Indiana Medicaid Health Insurance • May with copays; does not cover systematically applying interventions based upon Plans (NOT Waivers) deductibles OR premium payments for ACA the principles of behavioral theory to improve or private plans. socially significant behaviors, and to demonstrate All carriers in Traditional and Managed Medi- that these interventions are responsible for the caid must cover medically necessary autism treat- Grant Programs improvement in behavior. ment, including but not limited to ABA under the • United Health Care grant program. EPSDT program. Families seeking ABA therapy for their loved ones have a variety of funding options. If you Children will be screened to determine if they have questions, or need additional information are eligible for ABA Therapy services; how this will to navigate ABA funding, contact Michele Trivedi, be done has not been made public yet. The Arc Insurance Project Manager, at mtrivedi@ The program that will cover autism treatment arcind.org, 317-977-2375 or 800-382-9100. (EPSDT – Early, Periodic, Screening, Diagnosis and Treatment) must cover all medically necessary services for eligible children ages 0-21 in order to prevent or reduce potential life-long disability. Indiana Medicaid Waivers (for “support services,” NOT “medically necessary services”) • Check for Autism Support Groups and Grant • Behavioral Consultation Services are programs in your county via The Autism available, such as by a BCBA, Social Worker, Society of Indiana Ally Program. Behavioral Consultant and other qualified providers. • Some providers offer financial need-based assistance and payment plans; check with • Behavioral Consultant Services do not Private Health Insurance Plan your local providers. include front line technician services. • Employer based plan that is fully funded and • Check the Indiana Resource Center for • IBI or Intensive Behavioral Intervention regulated under Indiana Law or from a state Autism (IRCA) website for grants. that has an autism mandate. Services are in the state plan, are limited by • Individual policy purchased on the age and other factors. Public Schools – For Educational commercial market in Indiana. • Most individuals are on the Family Supports Services ONLY, Not Medically Waiver, which has a budget limit of $16,545. • Any HMO or Health Maintenance Necessary Treatment Organization plan purchased in Indiana. • Some school districts have hired BCBAs to • A self-funded or ERISA employer based consult with teachers. plan that voluntarily covers autism (they are • Some school districts will collaborate or not required to cover autism under a state contract with outside agencies for BCBA mandate at this time – they are under federal services and/or other behavioral services, law). including outside placement, when • Your Human Resources or Employee Benefit determined to be necessary in the Case department can tell you if your plan is Conference Committee planning of the fully funded (state regulated) or ERISA child’s IEP (Individual Education Plan). (federally regulated) and provide you with • Schools do not write any particular method documentation about autism coverage. of education into an IEP; therefore, parents Affordable Care Act Plan (ACA) should not expect to see “ABA Therapy” Children’s Special Health written into an IEP. • Purchased on the federally facilitated Indiana Services (CSHS) • If ABA therapy is needed to access education ACA marketplace, www.healthcare.gov. • Limited to $10,000 per child per year. and to make progress in academic and • Must follow the Indiana Autism Mandate state curriculum requirements, it should be • Is intended to be a source of supplemental provisions. included in the services offered. coverage for children who have special Federal Employee Health Care health care needs that are not covered by • Public schools do NOT treat medical Plans private insurance or Medicaid – private conditions; IDEA does not require treatment insurance and/or Medicaid must be billed – it requires services to access a free, appropriate • In 2017, ALL federal employee health care first. public education – this is a much different plans must cover medically necessary autism standard than clinical standard of care for • Coverage is limited to 23 specific conditions treatment, including but not limited to ABA treatment of a condition. therapy. (which covers over 500 diagnoses). • Schools should, and many would argue are • Reimburses for one-to-one BCBA services or • Federal employees should contact their HR obligated to, cooperate with the provision of BCaBA services only (TheBC aBA must be or benefits coordinator to inquire about medically necessary treatment during school under the supervision of a BCBA.) coverage in 2016, as some plans offered hours and in the school setting. coverage and some did not for 2016.

PAGE 4 The Arc News in Indiana The Arc of Indiana Spring 2016

Blueprint for Change: Celebrating 60 Years, from page 1 1976 L.S. Ayres adopts “Christmas Angel” Next Steps in the Journey project to raise funds for The Arc’s In 2010, The Arc of Indiana developed the Blueprint for Change, a transformational initiative designed prevention initiatives. to empower people with intellectual and developmental disabilities to shape their own future, nurture 1977 First Knights of Columbus Tootsie Roll and create natural systems of support, and strengthen the foundation of programs and services for people project begins. with I/DD and their families. Since that time, great progress has been made, but in other areas much SB 452 establishes Indiana Protection work remains to be done. and Advocacy Commission. To evaluate the achievements realized from the Blueprint for Change and lay out the next action steps 21 members of Youth-IARC attend Indiana needs to take, The Arc of Indiana has created a new report and a new initiative, Blueprint for national convention in Colorado. Change: Next Steps in the Journey, which identifies five critical areas: 1978 “Protect Every Child,” statewide campaign to promote immunizations, The “First Conversation” launched. 1979 Board Resolution calls for development of small residential group homes. 1980 Prenatal testing begins for rubella and RH factor. Building a Workforce Zoning measure passed restricting local ordinances from prohibiting establishment of group homes in community residential areas. 1981 Division of MR/DD becomes Division Establishing Shared Living on Developmental Disabilities. Developed Planning Your Estate booklet. 1982 Adopted resolution concerning withholding medical treatment from persons with intellectual disabilities Developing a System for People in response to “Baby Doe” case in with Challenging Behaviors and Bloomington that received national attention. Mental Health Needs 1983 John Dickerson named as Executive Director. Navigating Managed Care Indiana commits funds for people with intellectual and developmental disabilities living in nursing homes. Board approves development of Guardianship, Advocacy and Protective In future issues of The Arc News in Indiana we will explore each of the five critical areas. Services (GAPS) program. We invite you to read the full Blueprint for Change: Next Steps in the Journey report and to join us as 1984 “Future Planning: Decisions by Choice, we explore and develop the next steps in our shared journey. Not Chance” video developed and You can find the report by visiting: www.arcind.org/about-the-arc/blueprint-for-change distributed statewide as part of the To request a copy of the report, contact us at 317-977-2375, 800-382-9100 or [email protected] GAPS program. 1985 200 attend U.S. Department of Education hearing in Indianapolis.

Serving Hoosiers of all disabilities and their families for over 25 years Achieve Regardless of your age, or with us your child’s age or disability, The Arc of Indiana is proud to work planning for with our 43 local chapters of The Arc the future is important. throughout the state. Find a chapter near you by visiting www.arcind.org/ Trust I Helping families plan for the financial future of their loved one about-the-arc/local-chapters. We are Trust II Helping people with disabilities fund affiliated with The Arc of the United their own trust States. Learn more about The Arc by visiting www.thearc.org. www.thearctrust.org

The Arc News in Indiana PAGE 5 The Arc of Indiana Spring 2016

Erskine Green Training Institute Building Skills, Achieving Success The Erskine Green Training Institute EGTI( ), a program of The Arc of including BSU sporting Indiana Foundation, graduated its first group of students on March 19. events, movies, plays, EGTI, located at the Courtyard Muncie at Horizon Convention Center LATE NITE at BSU, etc. in Muncie, Indiana, provides vocational training for a variety of jobs in the Community mentors hotel, food service, and healthcare environments. Students can commute or worked with students live onsite at the Courtyard Muncie. on identifying social activities to engage in During their time at EGTI, each week and then students work with instructors scheduled a time to par- to learn specific job skills, and ticipate in the activity. then practice those skills through on-the-job training and an intern- Toward the end of ship at Courtyard Muncie, Thr3e the session, students Wise Men Brewing Co., or IU learned how to seek Student Support Specialist Grace Clark and Ethan Arbogast learning Health Ball Memorial Hospital. out job opportunities the routes for the Muncie bus system. In addition, EGTI students receive in their home community and practiced interviewing and job retention skills. support and instruction on devel- Zach O’Connor, who studied Environmental Services at IU Health Ball oping and improving social and life Memorial Hospital, received high praise from a patient and was recognized skills that will be key to success on by hospital staff for excellence in service. Prior to graduation, Zach accepted the job, as well as instruction on a position at Riley Hospital for Children. In addition, three of the six Heart navigating and utilizing commu- of the House students, including Leslie, Olando Nicks, and Ethan Arbogast nity resources. accepted job offers prior to graduation. The students in EGTI’s inaugural The second 9 week session forEGTI students runs April 4 – June 4. class grew by leaps and bounds, and Leslie Morgan completes a job application. She later was hired at a hotel in Indianapolis. not just in their job skills. Enrollment at EGTI is Open for the Following Sessions Although employability was the main focus during students’ time at EGTI, Session 3 there was a lot of focus on social life and learning skills in how to get along with a July 11 – September 10 diverse group of people. Server Assistant/Host (Restaurant) Over the ten week program, with the Patient Transporter (Hospital) support of instructors, students worked to Housekeeping: Heart of the House (Hotel) pass three areas included in a Community Dietetics (Hospital) Access Checklist. Successful completion Session 4 meant students could independently walk to and shop at local stores, utilize public September 19 – November 18 transportation, and spend time on campus Housekeeping: Heart of the House (Hotel) at Ball State University. Dietetics (Hospital) Leslie Morgan was the first student to September 19 – December 17 master all three levels of the Community Front Desk Agent (Hotel) Access Checklist. She was able to show that Olando Nicks took the skills he learned Prep Cook (Restaurant) in the EGTI Heart of the House training she had the skills necessary to independently to secure a job in Indianapolis. and safely navigate the community. In her Scholarships and Funding Available free time, Leslie enjoyed taking Muncie’s MITS bus to shop at the Muncie There are a variety of funding avenues available to prospectiveEGTI students. Mall. Leslie has not only secured a job in Indianapolis, but also will be moving Scholarship dollars are available through a grant provided by AWS Founda- into her first apartment. tion, and Indiana Vocational Rehabilitation (VR) has provided funding to Students had the option to choose a majority of EGTI’s students. Prospective students are encouraged to meet an academic tutor, a fitness mentor, with a VR counselor to see if they qualify for VR services. Financing is also and/or a community mentor to work available through First Merchants Bank in Muncie, Indiana. with on a weekly basis during their For more information, visit www.erskinegreeninstitute.org or call time at EGTI. Students who worked 765-381-8071 or 877-216-2479. And be sure to follow EGTI on Facebook, with a fitness mentor enjoyed time Twitter @ErskineGreen, and Instagram @erskinegreen. working out in the fitness center and swimming at the facilities located at Although employability the Courtyard Muncie. is the main focus during The “Weekly Activity” bulletin students’ time at EGTI, board kept students up to date on there is a lot of focus on activities taking place in Muncie. Students were encouraged to view social life and learning skills the board to help make decisions in how to get along with a

about what they would like to do Zach O’Connor works out in the fitness room at diverse group of people. in the evenings and on weekends, the Courtyard Muncie.

PAGE 6 The Arc News in Indiana The Arc of Indiana Spring 2016

To Celebrate The Arc of Indiana’s 60 Years, a Membership Goal to Challenge Local Chapters To help celebrate The Arc of Indi- member of The Arc through your ana’s 60th anniversary, a statewide local chapter. If there is not a local goal of 25,000 members has been chapter in your area, please consider set in honor of this achievement. To joining The Arc of Indiana as an reach this goal, each chapter of The at-large member. Arc has been challenged to recruit (at Learn more about membership least) 60 new members during our and join as an at large member by annual membership campaign that visiting: www.arcind.org/about-the- kicked off March 14 and continues arc/join-the-arc. Find local chapters through May 31. of The Arc by visiting: www.arcind. We welcome you to become a org/about-the-arc/local-chapters

ABLE Act, High School Diploma Legislation Pass 2016 Session of General Assembly, from page 1

also provides that a student with a The intent of the card is to help Bill 1337, which used people with SB 323 – Combined Reporting Study disability shall not be required to identify people with disabilities in disabilities to advance a very nar- Urges the legislative council to complete local requirements that emergency situations and to help row, political agenda. Proponents assign to the interim study com- exceed state requirements to receive first responders realize that the sit- presented no data showing that mittee on fiscal policy the following a diploma unless approved by the uation may need to be handled in a women are terminating pregnancies topics: (1) new requirements from case conference committee. Rep- sensitive manner. due to the fetus being determined CMS regarding home and commu- resentative Ed Clere was the lead HB 1012 was authored by Repre- to have a disability. Legislators have nity based settings; (2) the effect of author and Senator Pete Miller was sentative Eric Koch and sponsored a responsibility to improve the lives rate reimbursement and rate meth- the lead sponsor of HB 1219. by Senator Vaneta Becker. of all Hoosiers. They have a unique odology requirements on Indiana obligation to protect and improve HB 1012 – Identification Card/Bracelet HB 1337 – Prohibits Abortion of a Fetus waiver services; (3) the fiscal impact the lives of Indiana’s most vulnerable HB 1012 passed the House 93-0 Determined to have a Disability of the requirements; (4) the impact citizens. With the passage of HB of the change from daily rate billing and the Senate 48-1. The final con- HB 1337 passed the Senate 37-13 1337, legislators failed to put their HB to hourly billing for facility based ference committee report on and the House 60-40. time, energy and support toward 1012 passed the Senate unanimously. habilitation services. Also requires The bill prohibits a person from actions that would improve the lives FSSA to provide information by The bill requires the state depart- performing an abortion if the person of Indiana’s most vulnerable citizens. October 1, 2016, regarding (1) the ment of health, upon request, to issue knows that the pregnant woman is Instead, they allowed people with effect of the CMS requirements a bracelet, an identification card, or seeking the abortion solely because disabilities to be used as political on Indiana waiver services; (2) the both indicating that an individual of (1) the race, color, national origin, pawns and allowed a political organi- fiscal impact of the requirements has been medically diagnosed with ancestry, or sex of the fetus; or (2) a zation to push them into approving of the CMS rule; (3) the impact of a developmental disability. The diagnosis or potential diagnosis of a divisive law. the change from daily rate billing department may charge a fee for the fetus having Down syndrome The Arc did support the creation to hourly billing for facility based the bracelet and identification card. or any other disability. Provides for of a perinatal hospice brochure so habilitation services on the services Information collected by the depart- disciplinary sanctions and civil lia- women who are facing the difficult provided and the providers of the ment is confidential and certain bility for wrongful death if a person reality of their child having a disabil- services; and options identified by requirements must be met before knowingly or intentionally performs ity that will result in death, either in FSSA for ensuring viability of facility information may be released under a sex selective abortion or an abortion the womb or shortly after birth, will based habilitation services. a court order. conducted because of a diagnosis or know of resources available to them. SR 39 – Employment First Program potential diagnosis of Down syn- SB 192 – Guardianship and Adult A senate resolution urging the drome or any other disability. The Protective Services Report bill also requires the state department legislative council to assign to an of health to develop information Urges the legislative council to appropriate study committee the concerning perinatal hospice care, assign to the appropriate committee topic of the Employment First Pro- and requires physicians to provide a study of the visitation, commu- gram to promote and expands quality, information about perinatal hospice nication, and interaction with a community employment outcomes care to a pregnant woman who is protected person. Requires FSSA in for all people with disabilities. The considering an abortion because cooperation with the Indiana prose- resolution passed and will be consid- ered for summer study committee Eric Smith and Shawn Fulton, owners of Fulton the fetus has been diagnosed with a cuting attorneys council to prepare Express DJ, testified that passage of legislation lethal fetal anomaly. and submit a report to the legislative when the Legislative Council meets. allowing for the creation of ABLE Accounts council before December 1, 2016, would help them be able to save money that The Arc of Indiana is deeply dis- could be used to upgrade equipment and expand concerning adult protective services. their business. appointed in the passage of House

The Arc News in Indiana PAGE 7 The Arc of Indiana Spring 2016

Former Pacer Eddie Gill to Host Annual Golf Tournament The Arc of Indiana is excited to announce that former Indiana Pacer, Eddie Gill, will be following in the footsteps of Steve Green and Carl Erskine by hosting our annual golf tour- A Hole in One Anyone Can Make! nament. This annual tournament to benefit The Arc was started 26 years ago by baseball legend Try Your Luck at The Arc of Indiana Golf Ball Bounce Carl Erskine. Steve took over and hosted for $10 per golf ball or purchase 13 lucky golf balls for $100! 24 years before stepping down to spend more You do not need to be present to win! time with family. We are thrilled that Eddie has agreed to help us continue the fine tradition that Carl and Steve began. Up to 1,000 numbered golf balls wins $1,000. The numbered golf ball will be dropped from approximately that is 2nd closest to the hole wins Eddie grew up in Colorado and was named the MVP for the 1999 Big 100 feet onto Eagle Creek’s front $500, and $250 will go to the 3rd Sky Conference Men’s Tournament while playing for Weber State green at the start of The Arc of Indi- closest numbered golf ball. There is University. After college he played for the New Jersey Nets, Memphis Griz- ana’s 27th annual golf tournament, even a $250 prize for the numbered zlies, , , Seattle Super Sonics and our Friday, June 17, 2016. golf ball furthest from the hole. own . He resides in Zionsville with his wife Marissa and his two children. Please join us at Eddie’s inaugural golf tournament on June 17. The lucky participant whose golf To purchase your golf balls visit: Register at www.arcind.org/news-events/golf ball lands closest to the marked hole www.arcind.org/news-events/golf

#2“My dad is the reason I grew up to be the person I am today. I only wish I could be half the man he was while he was alive,” — Shawn Rector “Shawn is the first to arrive and the last to leave events; and is the first to volunteer for pretty much everything,” — nomination for Shawn, 2012 Outstanding Self-Advocate Award When asked why he does all the things he does — including active involvement with Self-Advocates of Indiana, Best Buddies, Special Olympics, and To help celebrate our 60th Anni- The Arc of Indiana — Shawn says that he just wants versary, we will be sharing 60 stories #1 In addition to being an accomplished artist, Whitney people to have the best life possible and help Long is taking steps to improve her health by setting those who do not have a voice or who are afraid and photos on 60 days, “#60Sto- fitness goals with her community exploration guide to be their own voice. ries60Years,” starting in March and at Noble/The Arc of Greater Indianapolis. As a long continuing throughout 2016. time IU fan, Whitney is gearing up for March Madness! We all have a story to tell and we would love to share yours. What story might you share? We are seeking a short story of just one or two paragraphs, or even a few sentences. 2016 CALENDAR OF EVENTS STAY CONNECTED FRIDAY STAY INFORMED This could be a proud moment EDDIE GILL GOLF TOURNAMENT & GOLF BALL BOUNCE June 17 with your son or daughter, what you Eagle Creek Golf Club, Indianapolis love best (and what drives you the craziest) about your brother or sister, SELF-ADVOCATES OF INDIANA ANNUAL PICNIC FRIDAY The Arc of Indiana Eagle Crest Picnic, Indianapolis July 15 Self Advocates of Indiana (Official) how you came to be connected with A View From My Window with Michelle Fischer The Arc, what dream you have for Erskine Green Institute yourself or loved one, how a teacher NCE SUMMER LEADERSHIP INSTITUTE MON-WED July 18-20 or direct support staff made a differ- Palm Springs, California ence in your life, a special moment DEALING FOR DREAMS, SATURDAY @TheArcIN you had in your role as a caregiver, BENEFITING THE ARC OF INDIANA FOUNDATION Aug 6 @SelfAdvocatesIN Horizon Convention Center, Muncie the hardest thing you have ever had @MFView to do, or the happiest moment (to @ErskineGreen date) in your life. SUNDAY THE ARC OF INDIANA 60TH ANNIVERSARY Sept 25 To join in our #60Stories60Years project, just email a photo and story INDYCOOKS FOR THE ARC SATURDAY to [email protected]. Dallara IndyCar Factory, Speedway Oct 15 “A View from My Window” www.arcind.org/aviewfrommywindow And if you or a loved one was MONDAY born in 1956, ’66, ’76, ’86, ’96, ’06 THE ARC MASTER TRUST 28TH ANNIVERSARY Visit Us or 2016 – we especially want to hear Oct 24 www.arcind.org www.erskinegreeninstitute.org from you for a special anniversary www.thearctrust.org project. THE ARC US NATIONAL CONFERENCE THU-SAT www.saind.org Orlando, FL Oct 27-29 Be sure to follow #60Stories60Years Sign-up for E-Newsletters on Facebook, The Arc of Indiana; THE ARC OF INDIANA CONFERENCE & Action Alerts and on Instagram and Twitter @ FRIDAY AWARDS LUNCHEON & ANNUAL MEETING Nov 18 www.arcind.org/contact-us/e-newsletter-sign-up TheArcIN. Horizon Convention Center, Muncie

PAGE 8 The Arc News in Indiana